For more medicine videos consider subscribing (if you found any of the info useful!): ua-cam.com/channels/Rks8wB6vgz0E7buP0L_5RQ.html Buy Us A Coffee!: www.buymeacoffee.com/rhesusmedicine Video Timestamps: 0:00 Fibromyalgia Definition - What is Fibromyalgia? 0:20 Fibromyalgia Epidemiology - How common is Fibromyalgia? 0:43 Fibromyalgia Symptoms 1:33 Cause of Fibromyalgia / Fibromyalgia Pathology 2:25 Fibromyalgia Diagnosis - Tender Points, Widespread Pain Index & Symptom Severity Score 3:56 Fibromyalgia Differential Diagnosis 4:17 Fibromyalgia Subtypes & Controversy 5:18 Fibromyalgia Treatment Options
🇨🇦 at 53 now been living with FB it hurts!! Locked in a mental hospital at 15 depression they called it. Still on too many meds. Days were i can not walk i work as a houpkeeper . I cry at night in pain. For over too many years
Times used to be very Challenging, i had the Worst days of my life living with Fibromyalgia & pains, I Appreciate you so much Dr igho, your herbs worked perfectly fine on me, All the pains are gone.
Tender Points diagnostic test has been discarded for use in diagnosis of fibromyalgia. Stay on top of the latest developments!! See a University Rhuematolgist
I feel that my fibromyalgia is the result of living through several extremely stressful events in my life, which has resulted in my nerves being "burnt out" . Not a medical description I know but I get up, everyday, feeling like I've been run over by a bus. A hot bath helps to get me moving but the pain is constant.
@@karendooks6244 you must eat beef, chicken, turkey, fish and vegetables. Almond ( 4-5 ) every time you 're hungry. Rise is ok. Bean ok but NO rise together
I had fibromyalgia for twenty two years. I felt like I had the flu every day of my life. I was on Tramadol until it was taken off the market. I was taking antidepressants and sleeping meds. Last fall I got fatty liver disease. I had to quite all my meds and go on a strict diet of no carbs and no sugar. Within a month I had no more fibromyalgia symptoms. Now five months later I have lost fifty pounds and feel great!! I not have taken any more medication and have no more liver disease. Best thing to ever happen to me was fatty liver disease and change my diet. I have not missed my old diet because I feel so much better.
I've heard that helps a lot of people with inflammation issues. I lost 40 pounds eating low carb but don't feel one bit better. But I know the weight loss is better for my joints.
It’s amazing how when women experience pain in general in their body that it’s assumed that there has to be some kind of psychological connection. As if to say it’s all in our heads. I’m sure men would not get the same analysis. Update: I combine Blackseed oil and castor oil (equal amounts) and rub these oils in my problem areas: joints and muscles. Blackseed oil has anti-inflammatory properties. Wonderful for maintaining symptoms and get relief. I discovered this on my own by the way. And THEN did the research to confirm. This isn't health advice so please proceed at your own risk. I do have to add this disclaimer.
I’m a 54 year old male. I was diagnosed in 1998 with fibromyalgia and it’s getting worse as I get older. Mine has turned ugly. I has BFS in my legs really bad. They twitch constantly day and night and causes leg cramps. I get it in other places that com and go. I thought everyone felt like crap all the time like me and just toughened it out and I was just a wimp. I work in construction until late 40s and it just took over. When I hear crap like this guy is suggesting like we just need to be happy and go to the gym we will just be fine. I hear you and I understand. But there are many men suffering as well. I’m sorry that you are suffering from this awful thing. I gave up on doctors and there BS. There was a doctor who actually has Fibromyalgia and he was the only one who made any sense and who understood. I do everything I can to fight this as you do I’m sure. But many days I cry. This is real and not in our heads like all we need is to be happy. Bless you and I understand.
@@terrymattson3587 Thank you for your feedback. It's definitely reassuring to hear from a male who has fibromyalgia. You're the first male person I've come across who does have what I have. I'm 45 and was diagnosed when I was in my 30s. Most of my health issues, including fibromyalgia, started after my pregnancy. Needless to say, that was my first and last. It pisses me off when females aren't taken seriously when they have medical issues. Have you seen the video on medical gaslighting right here on UA-cam? I'm sorry to hear you suffer from this as well. I've also given up on doctors as they are useless and prescribe endless medications that don't help. It's easy for others to judge how we should and shouldn't feel and what should and shouldn't help. The deep, throbbing muscle pain all over isn't in my head as well as yours. These are real pains. And it's funny how no one talks about inflammation in the body. I'm diabetic type 2 and have celiac disease. Pain isn't only in the muscles but also in all my joints including my neck. I use cbd oil for sleep currently, magnesium glycenate to relax my muscles and slow down my heart rate and tiger balm to rub on painful spots. I can even feel the pain in my spine and ribcages. I've given up on conventional meds that don't help and make things worse. After showering, I also allow the hot water to blast painful spots on my body, as hot as I can tolerate it. This helps in relaxing sore muscles. Maybe you should try it. God bless you as well and don't give up because there's one thing for sure doctors don't see: the tears on our pillows.
@@wakeup6759 I am 40 plus and reading your post makes me feel like it was describing me. Thank you all for sharing and thank you for the suggestion. I love thr be happy and exercise. Yes I believe it will help but if tkinf a few steps makes me want to cry from fatigue and pain, how a I suppose to make it to the gym. At ties just existing and breathing hurts. I keep hoping this 4 year flare-up let's up at some point. The deep & throwing pain, join pains and over all ravaging pain just makes me want to give up on life, but then you see your kids and put a smile on keep shuffling. I pray for a cure for all if us and all sickness.
@@blueearth3313 I totally understand where you’re coming from. I’m glad more men are speaking out on this issue of fibromyalgia since I thought it was just a female problem. There are times when I’m at the gym and I would just sit down and hold my head in my hands because of the pain. Yes even breathing hurts. There have been many times when I wanted to kick the bucket as well but I use my daughter as a motivating factor. You can use your kids as a motivating factor to not give up, as well as many others in your life who still need you. You can even use a door jamb to give yourself massages on your back. I use edge of a pillow to cushion my rib cage. Inflammation will always be present in our bodies as long as there are chemicals in our foods, pollution and other underlying health issues we might have. Yet, I’m hopeful that one day there will be an effective treatment without minimal side effects.
My son is in his late 20’s and has been diagnosed with fibromyalgia. He gets muscle spasms and cramps and sometimes feels like his feet are on fire. He has an increased sensitivity to pain. I have had fibromyalgia for years so there must be a genetic component to it but he and I have different symptoms.
As a FM sufferer for 25+ years I am grateful for this video. I pray those new to this condition will be more informed and able to fight their corner and not pushed from pillar to post by consultants.... TY SO MUCH
I’ve had fibromyalgia for for 22 years , everyday is different . Pain varies greatly from day to day . Sometimes I stay in bed or go no further then my recliner. After a while you learn how to deal with it and what you eat can make it worse also . Certain smells , tastes, and definitely sensitive to touch . Every inch of my body is sensitive to touch , I don’t being touched at all most of the time. Wearing clothes is painful especially anything even close to form fitting . Life sucks with this crap . Especially when you add everything else to it that you experience on a daily basis.
I find that Lyrica helps my fibromyalgia alot it don't take the pain completely away but it helps about 85% most of the time then I can get out and move around and such and that exercise helps another 5 to 10 percent
Have you ever had pain in the soles of your feet everything hurts and can’t wear shoes cause it hurts sensitive finger tips that hurt evening texting on my phone hurts
@@carolynarnott5002 yes especially the soles of my feet it sucks so much but people think we saying it just to get attention......my girlfriend didn't believe that I had it untill my doctor told her that hey this man is in real pain
@@carolynarnott5002 The pain in my feet gets so bad that I can barely walk. The only thing that helps me , is to stay offen my feet and if possible get a massage or use foot massager. Soaking in Epson salts helps a lot also .
The truth is that most if not all illnesses have a psychological component. I was diagnosed with ME/CFS, IBS and fibromyalgia twenty five years ago. Since then I’ve been through periods of being bed bound to being 80% functional, and it can vary. I’ve never thought of myself as depressive, I’ve always been positive and meditative but seven years ago, after the sudden and unpleasant break up of my marriage everything fell apart and I was diagnosed with C-PTSD, a condition dating back to pre-birth in my case. The shock was a revelation, I hadn’t realised how much energy I was pouring in to being a people pleaser problem solver for everyone else and suppressing my own needs and emotions. An essential childhood survival tactic of perfectionism. It has been a relief, at times a joy, at times unbearably painful letting it all fall apart. I have been curious about my own healing, physical and emotional, and have learned a lot along with way. While once I would have fiercely denied any emotional or psychological component to my illness(es) I found freedom in Bessel van der Kalk’s ‘The Body Keeps the Score’ and other related books. There is always a psychological component that creates a toxic stress that produces chemicals that trigger physical weaknesses or vulnerabilities that we carry. If we address and eliminate these we are part way to understanding ourselves and some of the way towards healing. Add to this being prepared to be curious, to experiment with diet and other therapies (cold water works for me, and meditation on a number of forms including slow walking in nature) we can feel more empowered and less helpless on our bad days or in our bad weeks or months. And I say this from the middle of a not very good phase, where some dietary self sabotage has played a part! 🤦🏼♀️😁 Good luck everyone, and take great care of yourselves. At the moment we are the only ones who can.
Great reply. I work as a therapist and have seen physical symptoms of fibromyagia greatly reduced after treatment. emdr in particular has shown reasonable results.
These are facts. I was diagnosed in my 30's. I have always had high tolerance for pain but always in pain which is why it took so long to be diagnosed. It was when I was treated for anxiety when it was discovered that I had Fibromyalgia. I don't wish it on anyone. Awesome and informative video! Thank you!
The same here! I have a very high pain threshold. Two huge babies. Natural births. After years of menstrual pain. Pain not cramps. Mega hormone imbalance. Finally approved for a hysterectomy. I had severe endometriosis. My dr said I had been in terrible pain for years. After my surgery I had body pain like I’ve never had before. My toenails hurt. I was diagnosed almost two years ago. But, I had lots of pain. I just thought that was how it was supposed to be. I was 45 when I had my hysterectomy. 49 when I was diagnosed. It sucks. And not many people believe you.
@@ginnyallen6273 almost my story. I was diagnosed 4 months ago with fibro, then just had the hysterectomy 3 months ago. In so much pain still. Wish it would all go away
snap it was only when i was sent for x-rays they discovered i had been walking around on two broken ankles for twelve months! and standing at work ten hours a day five days a week! as for recommending exercise they must be on drugs, having to go anywhere and i have to take it easy for a few days before hand and accept the fact that i will be two to three days in bed afterwards exhausted and in rotten pain all over! as for period pain thank god im out the other end of it but it used to be every 23 days and the first three days i would be puking with the pain!
Diagnosed with it in 2011. Took meds until 2017 where life hit and took a turn for the better. Painful, but for the better nonetheless. It Took 1 year to clean my system from prescription meds(including prescribed opioids) while doing that I completed the CASAC and switch career to social service field from the business field that it was great money, but I hated it. I am just sharing pieces of my journey in Hopes this can help someone🙏🏽 I am off of meds all together. Got strong Spiritual life, a holistic approach, change in food intake and lifestyle. I praise God for his shaking up to get me to this stage😉
I've had pain and symptoms since I was in my late 20's. I always complained to my doctors but not one, and there were many throughout the years, not one ever diagnosed me. "It'll go away" was basically the response. I was finally diagnosed last year. I'm 55 now and it was a relief to be heard. I ache from head to toe but at least I kmow for sure what it is.
Dr Obinyan herbal treatment cured me completely from fibromyalgia with in 3 weeks of taking his supplement. I can now sleep peacefully without any pain's..
Dr Obinyan herbal treatment cured me completely from fibromyalgia with in 3 weeks of taking his supplement. I can now sleep peacefully without any pain's..
I've had fibromyalgia since I was very young. I am now 50. I can say with all confidence that if you feel terrible and make yourself do more physically, it will only make you sicker. Pushing yourself really is a bad thing to do.
I'm diagnosed since 2004 as Fibromyalgi patient. Still have pains and fatigue. I have used the Tramadol 100mg when I can't stand and a unable to do something att all. Paroxetin 20mg/day. This combination make me happier and more mobile. Love from Sweden 🇸🇪😍
I also have fibromylagia and osteoarthritis, spondylitis sciatica and s1 chronic pain. I been struggling for 8 years now and the only thing I get is lyrica and nothing else 😪 I'm a nurse aide and I had to cut so many hours because I'm in severe pain and can't barely move some days 😫. The doctors don't want to give me anything for pain because of the opioid.
@@ma7608 See if they will give you /Buprenorphine and Naloxone for your pain. They give to chronic pain sufferers to take them off opiods. I've been taking it over 2 years now and it helps tremendously, this was for back pain. Now I wonder if I also have FM as the symptoms seem to fit.
I had fibromyalgia for over 30 years. I cured it with minocin alone very quickly. Minocycline will work but google for best manufacture to use. Many recommend the Torrent minocycline. I'd use bromelain with it to prevent antibiotic resistance. Nattokinase, serrapeptase is good for biofilm.
Can I suggest something hyperbaric oxygen treatment chamber or occlusion THERAPHY.the problem is poor oxygen perfusion in the tissue and cells of the body. Causing lactic acid and hif1alpha to accumulate in the cells that is responsible for all the pain that you suffering oxygen is the key to treating Fibromyalgia and CFS/me .if you have tried many things it give these thing a try just hoping these might help
I have had fibro and CFS for 20 plus years. The hardest part was getting a diagnosis. I found a great Rheumatologist and he has helped me so much. He monitors my bloodwork closely and on a good medication list. I also have hypothyroidism. When in a flair I get very sensitive to touch. One thing I have learned is I will gag brushing my teeth and eating when in a bad flair. I can't exercise when in high pain so I rest. I am active when I feel better. My daughter is 30 with 3 young children and has my same symptoms. She would suffer in silence because she knew I would feel awful for her. The biggest issue for me is people not getting it and judging me. I have learned to take care of me and not let people that judge bother me. To all who deal with this, hang in there and do what works for you. Gentle hugs to all.
I am a male who has suffered extreme exhaustion & pain for going on 50 years. I went to a so called expert in my area about 10 years ago. Within a minute of taliking to him he merely touched my right shoulder with a fingertip he exclaimed that he has ruled out cfs & the appointment was pretty much over after that. He did order blood tests to confirm the fact. The nurse told me that she was from another country & that over there the exam is much more extensive that the finger on the shoulder touch. After the decade since the pain and exhaustion is unbearable. Too bad our institutions don't do a better job than this.
You need magnesium brother. And lots of it..I take the brand Bioptimzer's. They are the only company giving the **7 types** of mag we need.. and are not getting daily.. I take it morning and at bedtime..It has my pain and stiffness down to a one..and fatigue is alot better too...Been on it 3 or so months now..Maybe it can help you..God bless..
I had fibromyalgia for over 30 years. I cured it with minocin alone very quickly. Minocycline will work but google for best manufacture to use. Many recommend the Torrent minocycline. I'd use bromelain with it to prevent antibiotic resistance. Nattokinase, serrapeptase is good for biofilm.
GOD help us. I have the same plus polymialgia and Chrons disease. It is very hard. Pain all over my body. Start a diet today. Hope works. God bless all of you.
Yes! My right thigh is the worst. Numbness constantly and then it turned in sensations like curved tunes of water trickling through my thigh, then deep internal itch that can't be relived by scratching, then it turned into stinging, burning and bee stings pains, then one morning it was excruciating nerve pain. I am using Voltaren ( helps a bit), anti itch polysporin liquid, and my heating pad, along with deep massage. This gives me relief, by bringing pain into a more bare able level. I get stabbing, shooting bee stings pains all over, but the thigh is the worst. I also have costochondritis rib pain which feels like a sword stabbing between my ribs and into my back. I have many other symptoms, but this is long enough.
Wow....I find ot extremely disgusting to read your childish comment @taboo. You do know this is a REAL CONDITION? You do know that it affects our lives? You do know that the pain is so bad that I cannot even sleep at nights, that I've had to give up my Nursing career and my life has deteriorated😞 How can you make fun at others? Please don't have digs at another person's sickness.....I pray you never have to experience this....
I got my diagnosis about 1 1/2 years ago, after six years of hearing doctors tell me I wasn`t sick. Knowing what it is, sure helps me explain why I can`t do whatever I want. But I still try to improve my health as best I can. I am currently using Sarotex to take the top of the pains, and I am working out with swimming, finding I manage pain and fatigue better in the water than on land.
@@sufiakhatun157 I went to a rheumatologist. In 1990 I had been having awful pains and went to my regular dr. After I broke down and bawled like a baby, that he decided I had arthritis and put me on arthritis meds. They didn't work. I was talking to a friend at church after I had been dealing with this for 2 years and she asked why he hadn't sent me to a rheumatologist. I had no clue but called and made an appointment. That appointment was an eye opener. Within 15 minutes she had a diagnosis and a treatment. I cried when I woke up the next day and had actually slept with minimal pain. I can't say life got easy, but it was better for a long time. Then in 2004 I went to a different rheumatologist and he upped my prescription and told me to not stop taking it even if I think it's not working. 8 years later we bought a house with a pool. I spent every day in that pool that I could. I had a huge setback when my husband divorced me and I lost the use of the pool. Suffice it to say the pool is a wonderful option if you can afford it. We even had ours switched to a saltwater pool and that really helped not only me, but my daughter (we have psoriasis and she has psoriatic arthritis now). At 68 I have other health issues that keep me from being more active, but I get asked all the time why I'm sick all the time - I just don't answer. They will never understand, just like my ex husband never understood. I take advantage of the days I feel good and knit when I don't. I've heard all the comments, dealt with all the looks and snide remarks and now I just don't give a flip. I don't have many friends and I'm ok with it because no one is judging my every move. One thing I always thought was odd - I had 2 different doctors prescribe an antibiotic for long term and that actually helped relieve some of the symptoms, but no dr. ever prescribed it for fibro.
Thank you very much for your video on Fibro.! The simple, to-the-point explanation is a perfect example that I show people when asked what my Fibromyalgia diagnosis really is!
watch DR ERIC BERG KETO AND INTERMITTENT FASTING COULD HELP .I HAVE PAIN BUT DO NOT TAKE MEDS ,HAVE SPINAL ARTHRITIS ,SHOULDER PAIN SINCE AGE 17 ,PAIN IN BUTTOCKS ,BUT I HAVE WEIRD LUMPS IN MY ABDOMEM AND RIB /TUMMY AREAS ,AND THEY ARE VERY SAW IF PRESSED ,DOCTORS SAY THEY ARE JUST LUMPS OF FAT ,I NOW HAVE PLANTAR FACILITIS TOO ,HAD IT A FEW YEAR BACK ,I AM NOT DIAGNOSED WITH FIBRO JUST CHECKING THE SYMPTOMS ,FORGOT I DO HAVE NECK PAIN AND STRUGLE WITH MY PILLOW ,I AWAKE MANY TIMES IN THE NIGHT ,SOMETIMES FOR THE TOILET BUT I NOW HAVE AGONY WHEN CHANGING FROM SITTING IN CERTAIN POSITIONS TOO STANDING AND EVERY NIGHT I LAY DOWN ,I HAVE PINS AND NEEDLES AND INNER VIBRATIONS .
Celery juice for both of these. Check out Anthony William. There is most likely a podcast episode of his, freely available via google to listen to. I know there is one for lupus, which is caused by Epstein-Barr virus. Take responsibility for your own healing.
Never cease praying! After over a decade on meds and fibromyalgia I am now on year 5 free of it and free of meds. I truly believe God healed me. It wasn’t easy, but worth it. I dealt with a lot of internal baggage and pains that needed to be addressed and with his mercy and the help of the Holy Spirit I am giving him the right away to fight the battles day by day. I wish you healing ❤️🩹 God speed🥰
Watch Dr. Osborne. All these conditions are inflammation conditions. Eliminate the inflammation and U will heal. Order yourself an alcat food sensitivity test and avoid the problem foods. 1st step
I was told I had Fibromyalgia for years… Come to find out I had a genetic disease called Hypermobile Ehlors-Danlos Syndrome, Cranialcervical Instability, Mast Cell Activation Syndrome and POTS. I say this some that it may also help someone get checked out if they may also have EDS as it also mimic’s the same symptoms .
Amazing to read this. Last month I was wondering the same exact thing because my muscles are extremely activity intolerant. I need to follow up with an MD.
May l ask “what type of disease is that ? I have been searching the internet and books on my issues, this l have never heard about , lam almost 💯 percent certain l either have a Pituitary tumor or Cushings / Cushion’s disease, l have been having all the symptoms, maybe some Sjrogens because of dry eyes and my redness , loss of vision and , l also have tingling pain in my hands and fingers ‘ every. day l think why don’t you go to the hospital, ? then l re think it a say “ for what ? So that they can say your crazy or a hypochondriac or just getting old or something !
@@florabraswell8423 You are worthy to get it checked out! Had the blurry of vision/tingley hands as well (blocked nerves in neck spine). My sis has the same and last week she had to go have a MRI of her neck (atlas) because her legs are falling out (and she was urged to go because normal fysiotherapy can actually be very dangerous (as in paralisation risk) if her atlas is compromised so to say) She doesnt has the results back, but please get yourself properly checked out to get proper treatment! 🤍
I was diagnosed with fibromyalgia 5 years ago and SLE Lupus 11 years ago. Changing your diet does help to reduce the symptoms and flares but everyone's body is not the same. My doctor had me keep a medical journal 3 months because I couldn't understand why I would have pain after having red meat, BBQ sauce, wine or coffee. Best thing I ever did for my health. I didn't eliminate everything from my diet because I have severe iron deficiency anemia and none of the iron meds have worked so I reduce my intake red meat but have given up all BBQ sauce & only have wine when my blood pressure is too low. I've found that eating beet & drinking lots of natural juice has helped me when I'm having a flare.
it also attacks the nervous system causing uncontrollable untolerating pain not to mention aggravating itching pouring sweat and freezing constantly without letting up but with a pain I compare to cancer the fybro is more painful than when I broke my ankle completely
I was diagnosed with fibromyalgia about 20 years ago and it affects my life daily. I have not found a medication that relieves the pain. I have used kratom for 7 years and it does relieve the pain and I get decent sleep. It affects my mental well-being. It is very debilitating on a daily basis. I would like to see more studies done on kratom and the effect on fibromyalgia.
Kratom helps me about 75 percent... It doesn't take away my pain completely but it does reduce it enough to make it somewhat more comfortable for me. The only problem I have with Kratom is that I'm retired and on a fixed income and the concentrated version of the Kratom that works for me is very expensive and cost prohibitive for the amount that I would need on a monthly basis. In the meantime I have opioids which not only help with the fibromyalgia but with my rheumatoid arthritis and my spinal and cervical stenosis. I just wish I didn't have to take the narcotic.
Debbie please try bioptimzer's Magnesium supplements..it has 7 types of magnesium in each capsule..I take daily a.m. and p.m. and it has helped tremendously..maybe it could help you too..
I was diagnosed with fibromyalgia in 2003. The pain is horrible and people really don't understand or believe how bad it is. Many of us suffer in silence. I'm now 51 and the pain hasn't gotten better. No matter what I take , it doesn't lighten up.
Fibromyalgia has ruined my life its completely taken over despite medication , the chronic fatigue is overwhelming i am constantly fatigued , i had a spinal fusion as a child which failed in Early adulthood leaving me with having to have all metal work removed from my spine . I am constantly in pain the burning pain i feel in my legs is awful along with swelling all over my body. I feel as through i can not carry on living like this anymore i have become desperate just for some relief of this terrible constant life of pain.
Please go see a mental health specialist to help with your depression. I have had fibromyalgia for over 20 years and it totally changed my active life. It is depressing at times but you should not be in a constant state of depression. I urge you to talk with a specialist.
Hi Kerry ,year ago I had scoliosis ,and had the op ,well years later ,I’ve now got fibromyalgia ,also osteoarthritis .I’ve still got my rod in my back, as I didn’t see any reason to take it out as it doesn’t bother me.well my surgeon told my mum ,I could get ostrioarthis ,and fibrosis witch was the na,e then for fibromyalgia.yes it’s totally ruined my life ,I try and make the best of things .It makes me mad when people say they know about it ,and really hasn’t got a clue.ok stay safe now ,reguards angie
I had fibromyalgia for over 30 years. I cured it with minocin alone very quickly. Minocycline will work but google for best manufacture to use. Many recommend the Torrent minocycline. I'd use bromelain with it to prevent antibiotic resistance. Nattokinase, serrapeptase is good for biofilm.
I stopped eating wheat/gluten/soy/dairy/grains 25 years ago. My fibromyalgia symptoms disappeared. I immediately dropped 12 pounds of water retention. A woman I knew who weighed 200 pounds and tried every diet...I told her about my eating habits. She too gave up wheat/gluten. In 6 months, she dropped 60 pounds and looked like a new person. Health food stores have many wheat/gluten free products these days.
gluten is so toxic. and it destroys the thyroid and gut. I'm also gluten and grain free. Unfortunately it wasn't the culprit of my fms. But it would be even worse if I ate it.
@@nikkyshairades9078 Chicken, fish, some red meat, beans. I buy rice pasta or cauliflower pasta/tortillas at the health food store. I purchase gluten-free cupcakes. Years ago, I would bake using half bean flour, half rice flour for cakes, pancakes. I eat a lot of vegetables, salads.
Thank You very much for this intuitive YT Video. 8% of the population may be underestimated bc as you state, many people don't report these conditions to their doctors or the doctors don't UNDERSTAND this conditon. My Pain managment doctor , also a Physiatrist, diagnosed me with FM. I have been suffering with Chronic pains and stiffness stemming from many spinal conditions: Dextroscoliosis of 25 degrees caused by a leg length discrepancy (shorter right leg at 1") as a result of a Femur Fracture in 1966 (age 15 at the time); encroaching Degenerative Disc Disease {DDD}, sites of spinal Stenosis (Lumbar , Thoracic and Cervical), Disc Bulges, and Facet Joint Arthritis with a Spondylioethis at L5-S1. I have Tinnitus, TMJ Syndrome, Occiptal /Neck pains, Military Neck, IBS / GERD for many years; Radiculapathy and Highly sensitized Central Nervous system and pheripheral nerve dmamge. My first cervical MRI in 2012 revealed that I have a More Than Normal Narrow Spinal Canal. I'm no Doctor, however, I have Common Sense and have done Much Research in these matters. One thing not mentioned here is : The Vagus Nerve, the motherlode of the nervous system. It is the largest of the Cranial Nerves that connects vital organs to your Brain. Your Spine is the motherlode of your Well Being. To me, is it No Wonder that with multitude of "squeezes" of my spinal chord is affecting my body and Mind. FTR, I take Gabapentin (trying to wean off of it, bc your body will want more and more - I take 300mg 2X a day form 3X a day. I also take many supplements to address Chronic Pain / Anxiety: Tumeric, Bromelain, Alpha lipoic Acid , Amino acids like NAC, L Arginine, L Theanine, and many others including vital Vitamains D3, K2, C, E, and B Complexes. I hope some of this story helps others. You Must Seek Your Own Answers, the Doctors will not help except to prescibe MEDS from Big Pharma.
I find from my experience, that you speak the TRUTH! The Drs push Big Pharma. I'm so sick of pills, pills, & more pills...that do NOT help anyways!!! I have been exploring my own remedies(yoga, tumeric, supplements, Cognitive Behavioral Therapy, etc) for years. I will say that I found my BIGGEST relief of symptoms when started on Cymbalta! That medication has been life changing for me! I had to just keep trying until I found what worked for me, but no Dr is going to do it for you. I went to MULTITUDES of DRS, until I finally figured out what works for me. This also including changing doctors several times! My BEST ADVICE: BE PROACTIVE; NOT REACTIVE!! And do NOT let anyone gaslight you!! YOU KNOW YOUR BODY!!! I hope this helps someone & is not just rambling, as I have been dealing with FM for close to 20 years now. I can honestly say...I feel the BEST currently that I've EVER felt throughout my journey. I reached this point several years ago & have been lucky enough to manage my symptoms effectively, which GREATLY improves my quality of life!
@@dawnwallace6337 I didn't include that in my "rant" but I have also tried microdosing & I smoke weed daily & have for years. I will say...I have NEVER seen any improvement of FM symptoms from weed(except for helping with some nausea)! However; you never know, it might help you! I just encourage you to try to find your own answers & stick to what works for you & chuck the rest! Hope this helps & hope you find relief🙏💗
Lovely I’m on that tract with supplements. Turmeric, L Arginine and vitamins D-3 K 2. The B- 3, B-6 and B12 was a struggle and Vitamin E was also costly and toke weeks of research. Your correct as well doctor just didn’t get the in-depth learning on many smaller events in their academic theater. Great news is the medical field is a great help with some doctors digging deeper on their own time to support the planet in her efforts from her ground of wealth and our animals care in the assist our health concerns. We have come a long way in Medical field considering the depth of debt that occurs from our American system to balance the growth in technologies the expansion for humanity we are blessed to have their help with the symptoms so we can continue in our lives of working and family building. I trust those that are inspired to help themselves learn and share is just stupidest and I’m thankful everyone for their wisdom in this oneness that racism can’t destroy. Peace
I was diagnosed by two doctors with the worst case of fibromyalgia. I discovered I was an Empath, feeling others pain and emotions. I am allergic to milk. When I switched to lactose milk, all my symptoms went away. I am today pain free. I also use an inversion table, but no pain at all and I’m 65
@NoTaboos everything is VIBRATION/ENERGY.... empaths feel other people's pain.... I do healing and clearing and have be careful NOT to take on others suffering - as I already have FIBRO.... NOT everyone is like you and have the feelings of a brick....
Lots of people with Complex PTSD (emotional neglect / abuse in childhood or other prolonged trauma/stress (i.e. discrimination/poverty) have fibro. It is already argued by Gabor Mate/Bessel van der Kolk its most likely the root of this condition 🧡 It could also establish through traumatic events such as traumatic accidents/war etc
I have had fibromyalgia for years and nothing helps it been put on different medication on one now i am scare to take because it's a drug i stay in pain it is missable i am not able to do things yes i believe you it comes from trauma had a broken collar bone hit by a car broken FEMA knee broken ribs wrist have anxiety put on a mild medication for that wish there was a treatment
Thanks for the comment. I’ve been wondering about this. I have read & seen a little by both VdK & Mate and have always had hypersensitivity (my sister would call me a hypochondriac growing up). I recently found out that during potty training my dad would beat me. Not sure how often, etc, but that was how he dealt with me most of my life, though the physical abuse stopped after a while. Thankfully my parents divorced when I was 5 so I saw a lot less of him. But my mom did her part by not interfering. All of these pieces are fitting together in my life’s puzzle. My widespread severe pain has been going on for ~3 months and I’m just starting to learn about it all.
I have fibo but mine wasn't though abuse mine was a injury and a joint syndrome didn't help it been diagnosed with it for 6 months now and really struggling right now gp has increased my painkillers but theybate not helping and my sleeping tablets isn't working which don't thinkbis helping
I've had this for Almont 20 Years. I personally do not fit into that Description. Maybe some due?! I'm not one of these. It's awful to live with. I've been to one of the Biggest Hospitals to be Diagnosed & Treated.
Everyone with Fibro needs to experiment with quitting carbs and sugar. Sugar makes pain worse. It's hard because most of us are addicts to sugar and don't realize. Try it for a month and keep a pain journal. Godspeed.
I drastically reduced my sugar/sweetener/refined carb intake 7 years ago. My fibromyalgia disappeared. I also do a 3 day water fast a few times a year. It keeps inflammation low in my body.
that can be the culprit for some people. unfortunately, not for me. I stopped sugar, processed foods, grains, artificial stuff, dairy, and I keep adding stuff for elimination. The only improvement I've seen with diet is I lost some weight and my stomach was no longer gassy. I'm in my 2nd year of this and I still feel awful and inflammation markers are high. I also have numerous cervical spinal issues which contribute to a great deal of pain, fatigue, and nerve symptoms.
@@nikkyshairades9078 sugar feeds inflammation. it's not good for anyone. it may not be the cure for many, but it's definitely the better option for all. Insulin issues can eventually cause hormonal imbalance with other parts of the body. Causing numerous symptoms and disorders.
@@ThisIsNotMyHome Laurie, I was going to post a comment but you beat me to it. Every sentence you wrote fitted my situation. Be assured, I've been down your exact road and still there. God bless. Pa. boomer.
With such a substantial percentage of the population having Fibromyalgia why isn't there more research being done to find a medication that would actually help with the pain and give us more energy. If I only had some energy I could deal with the pain more easily.
Im so tired of this condition At least it's acknowledged now. (Told it was growing pains all my life) Please someone find a way to help, the wide spread pain at night... especially night after night after night...takes it's toll mentally 🤯 dysfunctional mess
I make a tea with turmeric, ginger, cinnamon, cloves, and black pepper. I take it each morning, + vitamin k2 and vitamin D. I also take 40 million macrobiotic. I am also take Diclac retard 75MG, I only take two tablets a week now. At the start of all this I would say my pain was 500% now I am 5%. And the most important is I pray to Jesus and read His word every day. I hope this will help you. God bless
@@unablessington7168 that sounds great jesus is why im here. Had covid in feb 21. Almost died. Now in wheel chair. But im not here to stay in it. Im getting better. .
@@dawnwallace6337 Sorry to hear that Dawn. Psalm 107: 20. He sent His word, and delivered them from destructions. By the power and authority of Jesus Christ of Nazareth. I send His word to you this day. By Jesus stripes you are healed. Arise shine for your light has come and the glory of the Lord has risen upon you. You shall live and not die and declare the works of the Lord, in the Name of Jesus Christ of Nazareth and by the power of His word. Amen.
Bioptimzer's Magnesium supplements helped me..It has 7 types of magnesium in one capsule..I take one capsule in a.m. and 2 at bedtime. This has helped me alot.. And my King Jesus is all I need..He is my rock and my HELP in troubled times! I pray for all those who are stricken with this pain syndrome..and have lost hope..
was diagnosed with it. have had 2 c sections and a car accident that really hurt my back. Ive always worked and still do, Just had more inflammation in my body the last few years. started having joint pain in my hands in 2019 which is when rheumatology said not arthritis, but fibro. after covid twice the fatigue is just bad, worse than it used to be and i cant do as much at work. Take tramadol one a day when i work with ibuprofen. sometimes ill take one at night to sleep without pain. I was put on venlafaxine for anxiety about 7 months ago, its helped quite a bit as well. Witht hat and the tramadol it keeps seratonin longer so i can sleep better and helps with the pain. Today trying to pull a tin tab for corn hurt, the pressure of holding the container as i put it in the microwave. super sensitive. flare ups are so much fun..
I started developing fibromyalgia when I was 17 and got diagnosed when I was 20. I'm now 26 and cannot even walk without an aid. my symptoms have got progressively more severe as the years have gone on and I have not been able to work since I graduated from university three years ago. I would LOVE to know how to manage my symptoms better and actually function like a human again! I spend most of my time in bed nowadays :(
I'm pretty certain i will be diagnosed with this. Since I was 13 years old, I have had pain in my knees, and it has spread since then. I now have it in every single joint in my body to some extent. My worst are hips, ankles, and ribs. I have been going to the doctors for years begging themto find what's wrong but apparently nothing is wrong so what do i know 🙄
A fatigue buster that works for me and I even have heart failure with Fibro..Is mixing a greens powder (Pure Synergy's Superfood Powder) and Dr. Gundry's (Primal Plants powder) in 8 oz glass of iced spring water every morning..It taste great..and gives me the best energy I have ever known..Been doing this for two years..It is a bit pricey..but to me..it is worth it..Then I have my lifeboost coffee with my NativePath Collagen..and My Bioptimzer''s Magnesium capsule.. Has helped to improve the quality if my life..maybe this could help you and others..Praying for you..Jesus is my help always..
Deb I have 2 cups of coffee when I get up and when it is really bad I take a liquid B12 under my tongue hold it there for 5 minutes and then swallow it!
Get good sleep. Try trazodone first then work your way up. Get a sleep study done. Check thyroid panel and add thyroid per doc. Try sativa cannabis low doses. Drugs like nuvigial might be of some use. But are habit forming and inhibit sleep. Access Adequate nutrient intake. I have good days
I have self diagnosed fybromyalgia from around age 30 years. I am now perimenopausal too - at age 50 as my oestrogen production reduces, and it is hard to ignore the similarities in many of the symptoms (pins & needles being one of them - I didn't know this was a symptom of perimenopause).
I had fibromyalgia for over 30 years. I cured it with minocin alone very quickly. Minocycline will work but google for best manufacture to use. Many recommend the Torrent minocycline. I'd use bromelain with it to prevent antibiotic resistance. Nattokinase, serrapeptase is good for biofilm.
The painful period component interested me. I was diagnosed with fibromyalgia after I had a hysterectomy for endometriosis. I have had symptoms of fibromyalgia for years. My sister and cousin also have fibromyalgia. The one other issue I have is CRPS after a fall that resulted in hairline fractures in my right knee. The fibromyalgia was diagnosed and confirmed by my primary, orthopedic surgeons, a rheumatologist and a neurologist. I am being treated with the elevil and nuerontin. My CRPS does require a small dose of a stronger pain med. I also require tazanidine for muscle spasms that are very annoying.
I never knew that. My sister has fibromyalgia but never had endometriosis. My cousin also has fibromyalgia. My Mom had endometriosis and my Grandma had painful periods and had an operation but I am not sure if it was endometriosis. All of the girls in our generation of the Sears family have fibromyalgia. I was also told the endometriosis is linked to Lupus. My Grandfather had Lupus. I was told I look like a Lupus patient.
I have suffered with severe joint pain since my 20’s. My husband and his family always wanted to go camping and fishing which put me in contact with mosquitos and ticks. I thought I maybe had something from that but no doctor ever ran any tests. My pain in my knees was so bad I couldn’t stand up off the toilet without pushing up with my arms. I couldn’t hold a fork or pencil. I couldn’t stand a sheet against my knees. I only weighed 120 lbs and was 5’4” tall. By age 50 I had bone on bone knees and had to have total joints replaced, I had a doctor a rheumatologist say I had Fibromyalgia but my daughter a doctor said X-ray my mother’s joints. They think because you are female that pain is in your head, not real. Boy was he shocked when he saw how bad they were. Of course they were swollen. I always had small bones and my big husband thought I should keep up with him with physical work but I never did sweat like him and I suffered bad migraines with visual disturbances and vomiting. He thought I was a baby. He is dead from chemical exposure at his job causing him Pancreatic cancer and it went to the liver. I’m still in pain all the time and can’t sleep very well. But I’m alive and 75 with fake knees. All of my other joints are trashed.
I think I have fibro, my mother has it and I have every symptom.. it's so frustrating and I wanna just punch pillows and scream because I keep mentioning all my aches and pains and it's either "at least you don't work" or "too young to be in so much pain" even after taking care of my thyroid everything still hurts 😢 I just wanted to be heard I'm glad this whole comment section understands me. I'm only 32 and been dealing with it since 26, sometimes it's so bad you even forget you are still in pain because we are so used to it by now. I just want a morning where I'm not stiff, I'm well rested and my heels won't burn when I stand
Just in case it may benefit someone reading this .. I just now am researching into neuroplasticity. Rewiring the brain. Easier said than done. I know many people are skeptical and many claim it's hogwash. But I'm looking at teaching myself and not paying anyone as I simply can't afford it. When I say I've tried it all, believe me, I have. Except this. And the more I read upon it, I can see where it can help those with chronic conditions with pain or fatigue or both, and many more chronic conditions. Many people have had success with putting their chronic condition into remission. But it takes effort and dedication. Every day. I'm still learning and haven't incorporated a plan into my daily life yet. So I really can't answer any questions about it. But I wanted to share at least that info just in case it may help someone else. My heart goes out to ALL those suffering and I don't think none of us were meant to. No one deserves to. May we ALL kick suffering's ass!
Recently diagnosed with Fibro after years and years and normal test results, medicine, nobody believing me, no help at all…. It’s been a very emotional and stressful time. I just turned 33 this year. Now they want to test for MS to rule out that possibility. It’s horrible to always be in pain, be chained to your meds, and NEVER feel good. I’m ALWAYS exhausted no matter how much sleep I get. My diets a mess because I can’t eat half the time. Has anyone else experienced these same type of issues??
I've been having pain for the past three to four years and finally was diagnosed with fibro. I already dealt with an auto immune disorder so I thought.the pain and issues I was having we're due to that. I have a lot of the symptoms and wish I knew what to do about getting a better night's sleep. I'm going to start physical therapy soon and hope that will help.
I had fibromyalgia for over 30 years. I cured it with minocin alone very quickly. Minocycline will work but google for best manufacture to use. Many recommend the Torrent minocycline. I'd use bromelain with it to prevent antibiotic resistance. Nattokinase, serrapeptase is good for biofilm.
I have erythromelalgia, anxiety and a most of these symptoms except IBS and widespread muscle pain. Ive heard lack of REM sleep and poor quality sleep can cause these symptoms
I believe to have suffered for a decade and half . My doctor confirmed it but no cure in the UK . I'm relieved however so hopeless. The agony is undescribable.
Thank you, I really appreciate that somebody finally explaying in details what I've been going through. I've been told by my doctor that I have Fibromyalgia. But she Couldn't Explain Exactly what I have Now I finally understand thank you.
I was dx’d about 11 years ago. After going rounds with my pcp, insurance, x-rays, pt, orthopedic surgeon, blood tests, and an mri I was first dx’d with rheumatoid arthritis and a little osteoarthritis. I don’t have RA but I’m one of the people who are positive for it on a blood test. At any rate, after all of that rigamarole I was sent to a rheumatologist in Pittsburgh. Dude cracked me up. First I had full body x-rays. Then he did something that shocked me. HE READ MY FLIPPING CHART. He was ticked when he came into the room. First my osteoarthritis is so bad he said that if he were trying to judge my age from my bones he would be wrong. So that’s fun. But secondly I have fibromyalgia. That one shocked me. I hadn’t even considered it. I just knew I was hurting and that wasn’t normal. First I was put on gabapentin. It made me fall asleep while driving so I stopped that on a dime. Then my insurance company allowed me to have Lyrica. (Pregabalin) In PA they, at the time, did not have medical marijuana so I was also prescribed Vicodin. Here’s the problem. Fibros neuroreceptors will adjust to pain medications rather quickly. So you need more and more to regulate your pain. I’d been getting headaches, went to a neurologist, and he said my increased pain was likely due to the Vicodin. So I weaned myself off from that and ended up moving to Michigan where they had medical marijuana. I got a doctor who listens to me. I got a med card. And now I’m doing much better. Downside is that fibro can cause you to develop reactions to gluten. I now have a gluten allergy. As I type this I’m actually just finishing a prednisone treatment because I was glutened last week. (Actual allergy, I scratch myself bloody.) From my understanding there is a new treatment for fibro that involves an Muscular dystrophy medication along with exercise. I think it’s muscular dystrophy. I digress. Marijuana helps but I react pretty badly to high levels of thc so I only use just enough to kick in the CBD when I’m feeling really bad.
I know I have Fibromyalgia...I'm a nurse and have most of these symptoms. I have pain meds and Gabapentin prescribed. Helps but nothing takes away all the pain.
try the bioptimzer's Magnesium..it helped to restore my magnesium levels in the cells..7 types of mag in each capsule..I hope it helps you as well..I took 3 a day..and I slowly reversed my painful Fibro symptoms.. Praying that it helps you too..
I had fibromyalgia for over 30 years. I cured it with minocin alone very quickly. Minocycline will work but google for best manufacture to use. Many recommend the Torrent minocycline. I'd use bromelain with it to prevent antibiotic resistance. Nattokinase, serrapeptase is good for biofilm.
I have had this since 1981 after contracting a long term viirus with daily fevers, swollen neck lymph nodes, and night sweats. It went on for over a year. Tularemia. I also had a traumatic family life with the drowning death of my brother when I was still a baby, a severely depressed mother who became alcoholic, and a narcissistic father. I was also bullied at school for being a chubby, sensitive, redheaded girl with crooked teeth. (Weight loss and braces took care of two of those.) I therefore suspect my 42 year stint with this disease is from both somatic and psychiatric triggers. I hate it. It has impacted my productive adult years, keeping me from earning a good living, having to retire early, and worsening pain over time. I live in constant fear that if my husband dies before me, I will end up poverty stricken or even homeless. Some life, huh.
I use meditation,turmeric and honey and exercise daily to control my fibro. It works for me. No medication used in 17 years. I was diagnosed in 2002 after a nerve cord compression injury and later developed hyperthyroidism. My regime works for me.
Sometimes even the hairs on my head hurt along with everything else!! Painful muscles spasms constantly, leg pain, feet, knees, arms, entire spine, neck, arms, hardly able to walk etc.
This is the worst pain ever I also experience pain from my ankle up and very tender in my shins my two year old made me cry from touching my leg its that sensitive it's like a burning pain. I got diagnosed with fibro about 6 months ago the constant headache always tired and pain is getting to be to much
My fibromyalgia began in April, 2004, and is ongoing today. If anyone thinks that we have a LOW threshold to pain can think again. I received a total of 3 shots to my spinal cord, and my reactions to them were nominal. I remember telling the anesthesiologist that I'd trade my FM for that shot any day of the week, and I was barely exaggerating. I wouldn't wish FM on my worst enemy. It has forced me to make life choices I would not have otherwise made.
Totally agree..THIS pain syndome is not for the weak..I had to comment to say that i did try a magnesium supplement by Bioptimzer's..It has 7 types of magnesuim in each serving..My pain level is at a 1..now most days.. I started taking their breakthrough product 3 months back.. still taking 1 cap in am..and two capsules at night before bed.. Amy, It has worked for me when nothing else has.. maybe it could help you too..God bless..
I had fibromyalgia for over 30 years. I cured it with minocin alone very quickly. Minocycline will work but google for best manufacture to use. Many recommend the Torrent minocycline. I'd use bromelain with it to prevent antibiotic resistance. Nattokinase, serrapeptase is good for biofilm.
I was diagnosed years ago, swear by my fentanyl patches and my 6 monthly ketamine infusions. Sleep disturbance is a killer especially when linked with severe sleep apnoea, I feel like I have been run over daily! Had a great GP who helped me on my journey to find out what was causing my issues. Pain clinic near me is also pretty good
@Tigers360 I have been all the way through the pain killer list. Starred off with co-codamol which helped for a couple of years, then onto slow release morphine. Now on fentanyl patches. You need to get a good GP and a referral to your nearest pain clinic. Keep pushing your GP or you won't get anywhere unfortunately. Have you been officially diagnosed by a rheumatology team? As that can make it easier. They should start you off with low level pain relief and work your way up. I hope you get some relief from your pain. From a saint's season ticket holder 😊
I work as a CBT therapist and about 13 years ago I began to notice how many people coming to see me with fibromyagial had experinced significant emtional trauma. This may have taken the form of childhood abuse, domestic violence or even ex veterans. Sometimes when we treated with trauma particularly with EMDR the fibro symptom would diminish. So some times psychological treaments may be worth a try. Since this thought occurred to me some research has taken place which backs up this theory. If you google fibromyalgia and domestic abuse it should come up. Also read the book "The body keeps the score" which explains the science of how memories can be expressed as physical symptoms.
@davewoodward. Hello Dave, I've just read your information on fibro. You said that domestic abuse could set it of. I had two very bad d.a. marriages, and vowed never to trust a man again....then I had my husbad. Sadly I lost him a few years ago. I was diagnosed with fibr. about ten years ago, and my husband was just wonderful. Thank you for saving it can be caused by d.a. Blessings to you and thank you.
@thecrazyenglishcatladyfive7276 sorry to hear you lost your husband at the point your life was becoming more fulfilling. That's really sad.If you live in England the NHS talking therapies programme is very good if you ever wish to give it a try. It offers help for people with long term health conditions too. If you can't find where to access it locally post another message and I might be able to connect you to the right people. Either way I wish you well and thank you for taking time to reply.🤗
I was diagnosed recently but I have this problem for many years and it only got worse. I do believe it is a condition related to low metabolism and increased inflammation in muscle tissue. Some people are very sensitive but some are not. It is better to be sensitive because this condition leave you no choice but to be more active. Vegetarian diet, walking every day plus a lot of water helps. No carbs diet does not help me but makes it worse. Fibro is nasty condition which is hard to treat. I would avoid any medication unless it is a very bad day and pain is unbearable.
Mý daughter complained of muscle pain ,joint pain, headaches fatigue, stomachache n burning fingers n toes...so my physician said she had fibromyalgia Guess what?she continued having major symptoms n i took for a 2nd opinion...doctor did tests n diagnosed her with lupus She is sooo much better now
Got diagnosed at 24 after thinking it was fake, my mum has it and I thought she was faking. But when I was diagnosed it all made sense. My fibromyalgia was triggered by glandular fever I had at 16.
It's just a suggestion might help might not. Try HYPERBARIC OXGEN TREATMENT CHAMBER or dental occlusion THERAPHY. The caused of fibromyalgia and it's symptoms are accumulation of LACTIC ACID and hif1alpha in the cells so in order for the lactica cid and hif1alpha to be eliminated is by increasing your oxygen level in your tissue and cells. Just try it you might be surprised by the result reminder if you decide to try hyperbaric oxygen treatment chamber the 1st five session the symptoms will not go away but probably. 6and above session you will feel differently like your normal again just a suggestion that might help you
I had fibromyalgia for over 30 years. I cured it with minocin alone very quickly. Minocycline will work but google for best manufacture to use. Many recommend the Torrent minocycline. I'd use bromelain with it to prevent antibiotic resistance. Nattokinase, serrapeptase is good for biofilm.
I've never heard of glandular fever but I had glandular pneumonia around the time of my fibro symptoms. I've never heard of glandular pneumonia either at the time. All my glands from my head to my upper chest flared up and swelled triple or more in size. I didn't have much pain with it so it was weird. My ears stood out from my head like dumbo... not a good look
Because when you have fibromyalgia, your body is tense mode due to pain , anxiety, along with ( myself ) living in Abusive situations my life up until 50yrs old . Eye sensitivity to sunlight , restless leg syndrome, pins and needles in both feet . Head to toe fibromyalgia affects the whole body . I try to stay active, but since I caught Covid my flare with not calm down .
I do have fibromyalgia. (I awaken each day feeling as if I got hit by a truck the day before.) At my worst, & before diagnosis, I suspected I had this condition -- after a lot of reading & doing my own research. (I had to alert my doctor that I thought I had the condition, also that I thought Lyrica [which was very new at that point] would help a lot. She sent me to a rheumatologist who confirmed the fibro; my doctor then gave me free Lyrica samples from her clinic. I then got gov't. approval later on to cover the cost of a prescription -- & for any dose & for life!! This drug was not on the list of approved free meds. at the time. It may be now tho, now that a generic copy is avail. -- that is what is now covered for me, & works just as well.) At my worst, & before being diagnosed & put on medication, I was practically bedridden. I would lie flat on my back in bed, with my arms loosely at my sides, feeling my whole body just throbbing with pain, & for no discernible reason. If I moved an arm, a leg, even in the smallest movement, this would jack the pain up X 10 in that general area. My pain relief is as follows: Max. dosage allowed of Pregabalin (Lyrica)(600mgs daily), which removes about 75% of the pain; Tylenol 2 (Lenoltec with 15 mgs. of Codeine), which removes about 20% of the pain; & I manage the last 5% of the pain with a very effective, simple menthol rub, which works almost instantly after being rubbed into my muscles. I buy good-sized pots of the menthol rub at my local dollar store for about $2.50 and it lasts me probably several months -- I don't use it every day, but I probably should. All of these medications, in particular the Lyrica, gave me my life back -- and I slowly increased my dosages until I was taking the max. 600mgs of Lyrica per day. (I believe 800 mgs. would probably remove all my pain for me tho, unfortunately.) How I manage my life now: 1) I do not schedule any appts. or activities in the mornings -- I have to wait until my Tyl. 2s kick in, in particular, & about 4 of them -- 2 first thing & 2 maybe 3 hrs later, then I hv to wait an hr. or so after that before going out. 2) I do not spend any longer than 1 hr. at a time, at the most, doing housework or anything physical at home. If I need to sweep & mop floors, I usually do it in 10-15 min. increments. Takes forever, but at least I can get it done by myself. (I hv arthritis in my lower back, which doesn't help!!) 3) I take the Lyrica morning & night, 300 mgs. each time (altho I understand it can be taken all at once, once a day), and I am allowed to take a max. of 8 Tylenol 2s a day. I take usually 5 or 6 of those -- on a bad day, or a much more necessarily physically active day, I will go to the full 8 permitted tho. (Note: Under serious mental stress, I need a lot more Tyl. 2s, up to the 8 allowed daily, & they are not nearly as effective -- sometimes in such circumstances they can feel barely effective at all.) In any case, I bunch up the Tylenol 2s a little: I take 2 of them first thing, then another 2 maybe 3 or so hrs later. It's only after the 2nd two have kicked in that I can be out & about, doing errands or whatever. I can then walk about looking normal & mostly feeling relatively pain-free. I often take a Tyl. 2 before bed, otherwise I am uncomfortable enough that I hv trouble falling asleep. I leave out on my nightstand some water & a Lyrica for the morning, along with some Tyl. 2s -- I sometimes awaken early, well before I wish to get up, from the all-over muscle pain that's started up again. I then just grab my medications & try to go back to sleep for a while, which I can usually do, & then get up a little later, when the pain has "settled" somewhat. This doesn't happen every morning, that pain awakens me early, luckily. I normally try to take the Lyrica & 2 of the Tyl. 2s as soon as I awaken, or not long afterwards. I then wait for that to kick in a bit (usually reading in bed or sitting in a very comfortable chair -- with coffee), before even thinking of walking around much. Re the menthol rub, I believe you can use this up to 4 times daily. I only use it occasionally, but would probably benefit from using it more, such as every day as soon as I'm out of bed. The rub can also take the edge off from when, say, my first 2 Tyl. 2s start to wear off & before 2 more actually kick in, also when I take a single Tyl. 2 before sleep at night. So...that's about it. (At least all this got me my life back!! And it took me quite a while to get these pain meds. all figured out, what works for me.) When I first get up in the morning, without taking my meds first, I am kind of bent over & hv a lot of the all-over muscle pain. After my 2nd round of 2 x Tyl. 2s, and after taking maybe 100 steps outside, to loosen up, I am walking erectly, with not a lot of pain. I do find I tire easily tho & make sure there's somewhere to sit down for a cpl. of mins., every 200 feet or so along my route, in case I'll really need to sit down, when I am out strictly walking. I have trouble standing in line for long at different places, & if I hv to do such standing & waiting, I bring a fold-up canvas camp seat with me, which has a light aluminum frame & is not too difficult to carry. I picked that seat up for $4 + tax one summer, at my nearest dollar store. I imagine regular massages, professional or otherwise, would be very helpful re pain, but the cost is prohibitive re professional massages, at least for me, unfortunately. So, if anyone else has any other tips or tricks, please do let me know!!!
Wow, mine isn't so bad then. I am also taking Lyrica it does help! I think the worst part of having fibro is that possible don't believe you hurt! They can't see anything wrong with us so they dismiss it. I am wondering if you can get a physical disability parking tag for fibro?
@@prettywoman7776 had it for 10 years the prolonged issued then caused thyroid dysfunction and food allergies. So you may need to have thyroid tested and an alcat food sensitivity test also. Watch Dr. Osborne. Best of Luck
Everyone is saying it is not treatable, it is but takes a long time. Don’t forget vitamins and improve you diet, and exercises too with massage and swimming.I got my treatment outside uk and got my life back.
Merhaba ben nasıl bir tedavi süreci yaşadığını merak ediyorum da bir üniversite öğrencisi olarak bu ağrılarla yaşamak istemiyorum yardımcı olur musunuz bana Teşekkür ederim şimdiden
Take apple cider vinegar pills for 6 to 12 months it will kill the Candida yeast over growth causing your symptoms. Also eliminate carbs and sugar from the diet
FMS is an infectious arthritis. I had fibromyalgia for over 30 years. I cured it with minocin alone very quickly. Minocycline will work but google for best manufacture to use. Many recommend the Torrent minocycline. I'd use bromelain with it to prevent antibiotic resistance. Nattokinase, serrapeptase is good for biofilm.
I've had fibromyaglia since 2015, officially diagnosed in 2020. It's been a long haul, but one thing I really hate seeing is that when things like this say, "more likely to affect women than men". It drives me nuts. I get it, women are more likely to have fibromyalgia, but men also get it too. I suffer from a few other health conditions too which greatly impact my pain threshold. I truly hope they can continue to do more research and find a cure, but most likely not in my life time, sadly. I'm 35 now.
I had fibromyalgia for over 30 years. I cured it with minocin alone very quickly. Minocycline will work but google for best manufacture to use. Many recommend the Torrent minocycline. I'd use bromelain with it to prevent antibiotic resistance. Nattokinase, serrapeptase is good for biofilm.
I have a painful on fire scalp called "burning scalp syndrome". There is very little information in the medical field. I finally have found something that works really well for me ... a small dose of an anti-depressant called Escitalopram 10mg. I am not a doctor and am only relating my personal experience. This experience has been a nightmare for me!!
@@lilianacarmenprocopet1233 its feel like numb all the time, left side head, sometime pain, and this make me dizzy if under the sun. I think my spine behind my skull head had problem. My MRI scan for spine this September.
I was diagnosed with Fybro after my Dear Mum passed away...cld hardly walk the pain was horrific was walking with a walker had to sleep downstairs....Had bloods done was Anaemic had blood transfusion all pain went...was also deff in Vit B12 and Vit D....no more pain after...
I sympathize with all of you. I would like to know if anyone experiences extreme thirst because if the medication. I gave taken Lyrica, Percocets and Methicarbimol and get so dry that I can hardly swallow and tongue feels thick. Anyone else have that problem and if so, what helps? I drink copious amounts of water. I've tried lozenges, Biotine mouth rinse and nothing helps.
I drink so much water and at night I do need to have a cup next to me cause I get really thirsty. I stay away from sweets, fatty foods, and take my vitamins everyday. I take centrum A-Z so I can get all my vitamins. But everyday I'm in pain I sometimes just cry cause of the pain.
Just received my diagnosis yesterday after 15 years of being prescribed heavy drugs and thrown around drs. My family led to believe it was all in my head and that I was just an addict. I’ve been off all meds for 6 years now yet I don’t even know how to tell them because it feels like an excuse still. Ugh why do I need to be so broken ….
@@jill677 For me, I had to keep pushing and pushing for them to actually find out and treat what it is that is causing my pain. They always seemed reluctant, and I had to endure a lot of doctors trying to say my pain is impossible and that it's all in my head. It shamed me out of ever wanting to see them again, and I cried and broke down after almost every single interaction with a doctor for months. It's taken me 7 years for someone to finally give me a diagnosis in the last five months of incessantly pushing them, and I'm still not sure if it is just a cop-out or not to shit me up and make me leave them alone. There is no specific test for it. It's essentially the presence of chronic pain and other symptoms without a sufficient other diagnosis to explain them... But the trick here is having to test for all other conditions that could explain the symptoms, which I found doctors are highly unwilling to do. They made the call based off me continually complaining about my pain and after me pushing them into giving me tests like X-rays and MRIs to which verified I have arthritis and coalitions, tests for autoimmune disorder (especially for rheumatoid arthritis) that all came up negative, pushing for surgery to fix my coalitions for them to keep saying they don't want to do surgery to fix it, despite the steroid treatment proving that there is significant pain localized in the sites of coalition, that they don't think it will significantly reduce my pain, and having to actually get surgery to remove growths in my uterus after severe bleeding (which I also had to push for since they kept trying to chock it up to birth control) which pushed them into having to give me hormone level tests (before they only gave my thyroid tests which always came up negative) and a pelvic ultrasound which verified symptoms of PCOS. Before this I also had a diagnosis of IBS in my history and had undergone a lot of gastrointestinal tests, including endoscopy of my intestines (a procedure done under general or twilight sedation, but I declined sedation because they wouldn't even inform me that general anesthesia was an option if I was booked IN THE HOSTPITAL rather than in the OFFICE despite me continually requesting to be put under general anesthesia because I did not want to be conscious for this and am terrified of being high/ won't do twilight sedation- this whole process seemingly like it was done to try to manipulate me out of getting the procedure done in the first place and I still have unresolved trauma in how it was handled because this felt like surgical r a p e coerced by the refusal of information necessary for knowledgeable consent and pressure for the fear that without it I would die of what was making me sick), told to cut out gluten from my diet but without a diagnosis recorded as to why until I more recently pushed for the celiac blood test now that my country has it and came up negative for that. And it's already recorded that I have PTSD characterized by moderate to severe depression and moderate anxiety. Other symptoms were apparent in certain interactions with my doctors like the brain fog (fibro-fog). Essentially, this was a very long process of me learning not to really trust nor rely on my doctors and having to look into things myself to advocate for myself. And what sucks most is I at least got to do this under insurance. Most people don't have that blessing, especially since most of the time my doctors billed these as "unnecessary" tests. I had to keep IN WRITTEN RECORD my symptoms and my reasoning for pushing for these tests, and calling out their inaction, in order to stronghold them into actually doing anything else they risk a medical malpractice suit for negligence. The unfortunate part is these strongholds can make the doctors mark you as a difficult patient, and other doctors will see that, so I've gotten a lot of really poor treatment from doctors in the network for this. I'm actually a highly sensitive person with a burden complex, hence why I'd always break down crying after each interaction when I'd leave, but it was 7 years of chronic pain and nothing really being done and I'm so tired of it. I stayed in abusive situations for so long because I couldn't physically do the things I need to to support myself with this. I need to be able to get this under control to get out of those situation and have a life.
I love this information I have been suffering for years so much pain in my right lower back,my neck my back an my left elbow and now since I got covi is my fingers that hurt They are giving me pain killer and also injections but my sintomas got worse when its really cold or Iam going to gave my period.thank you for this.
I have been told I've had fibromyalga and lupus for 30 years. When I was first diagnosed many Drs had no idea what I was talking about so my rheumatologist became the only Dr I went to. It still seems strange to have something wrong with you that you or others don't really understand including Drs still.
Sorry from translator and longer : THIS IS A FIBROMYALGIE : I am an expert in fibromyalgia because I have had it for 40 years. I always had a good morale and I was the one who went up that of others. I always continued my activity; bowling, orthiculture, and painting because I have a college diploma (at home we say ''going to CEGEP'') 3 years in Commercial Design, Communications and Multimedia from 1980, when we did everything ''with a mitten''. ..I had a very big mononucleosis at 20 years old; I had all the lymph nodes swollen and the spleen on the verge of exploding...I had to spend 1 big month in bed without being able to hold a pencil. Once recovered (if we can say that) I was left with total exhaustion and a sore throat which persisted for 2 years as soon as the sore throat stopped, I had a kidney infection... never stopped. I went through 15 surgeries, and today I suffer from 17 various pathologies that are not related to my past surgeries. I had 2 children despite chronic fatigue and pain attacks ranging from moderate to severe, I did 2 and a half years of anti-gymnastics, I did 1 session of aquafit but nothing has ever improved my condition, no more than gluten-free diets etc....I was even a host family and at the same time as my children, I welcomed 23 teenagers into my home. I was suffering in silence but I didn't want to let go. I learned to manage everything based on my pain and fatigue. For a long time, I was treated as if I had a mental illness despite several therapies that always claimed the opposite. Finally in 2014, researchers from the Brooklyn University Hospital Center tested 2 groups of 400 people to whom they all passed a scan. Results: the group diagnosed with fibromyalgia had all the so-called “synchronized explosions” permanently in the area of the central nervous system and none in the other group. They understood that the central nervous system responds to triggers all the time and to do that, they had to find proof, so they performed biopsies in the hands (where there are the most noticeable triggers) in the 2 groups. It turned out that people expecting fibromyalgia had 100 times more nerve and blood endings (shunt) than the other participants in the non-fibro group. Since then, all the doctors who come out of universities know that it is a small fiber polyneuropathy and that this disease is located throughout the body and that the nervous system must respond to many more triggers than in a person. normal simply because of the amount of nerve endings. This also explains the large number of symptoms known for this disease. My doctor who studied in the US, France and Canada worked in a pain clinic and is always in contact with his colleagues and the majority of his patients are people with fibromyalgia. At 62 years old now, I have violent spasms of the arms, head and trunk and sometimes of the legs, but I also have episodes of convulsions which ''wake me up at night''; not always obviously but for my doctor, it proves the severity of my case, the most severe he has ever seen, as having neurological damage caused by fibromyslgia. Be careful, I don't want to scare anyone because a person can live with mild or moderate fibromyalgia all their life without ever getting as severe as me. Learning to live one day at a time is the best solution; there aren't really any others....at least there have never been any others for me. How to live with? 1.: You must first know how to recognize the first symptom of a crisis, which is the first for all crises. Once found, if this symptom is triggered, stop and rest with a muscle relaxant (immediately; do not let the pain set in because it will be more difficult to get rid of it. 2.: split your tasks because if one day you exceed your limit, you will wake up the next day and you will lose 2 or 3 weeks for the crisis to pass. Which does not mean doing nothing. You have to know how to dose. What obliges you dusting every room on the same day? Nothing. Split up everything you can. For example, gardening takes a lot so don't do the laundry on the same day. You get used to that. 3.: Do too in addition to the house chores, something you love, just to remember and reward you. And good luck for the rest. I was also part of a research program to counter pain with cannabis medical treatment so that the gouvernement recognizes its effectiveness and agrees to reimburse the treatments but all the research everywhere has not been successful because there is nothing conclusive in terms of calming the pain and moreover, that can lead you to depression and no longer living live your days because you are surely aware that it makes you ''vedge'' as most of those who consume it say. The only thing that in cannabis will help you in terms of pain is sleep, but it will be to the detriment of your days, relationships, etc. And finally, when you are well informed, it is easier to close the door on those who do not know anything and who judge you. And personally, I like to know the enemy before fighting against them.
I have tried one medication you mentioned here for my fibro but it didn’t help at all. Someone said to cut out carbs etc, that I believe is the right way as I have done this myself as well. I had some extreme stressors in my life that seem to have triggered it. Cutting all major stressors has been very helpful. But what have really helped me was the precursor to vit B3, NMN
I had fibromyalgia for over 30 years. I cured it with minocin alone very quickly. Minocycline will work but google for best manufacture to use. Many recommend the Torrent minocycline. I'd use bromelain with it to prevent antibiotic resistance. Nattokinase, serrapeptase is good for biofilm.
Connie Hubbard is completely correct. My mother has fibromyalgia and I was diagnosed years ago along with my my cousin diagnosed with a autoimmune disease causing her not being able to go out in the sun . She completely changed her diet and the autoimmune disease went away . I go on a fast called the Daniel Fast several times a year . Through going through this I have found , that eliminating sugars , processed foods, reds meats , and dairy had almost completely taken away all my fibromyalgia symptoms and IBS . Pain /soreness was gone , I slept better, bowel movement was normal. And lost weight which was great for my joints . There was other benefits as well but those were the major ones . It does work. Switched off to see and I feel awful again. So will say eliminating all that is hard but it is so worth it to feel better.
I pretty much have all the symptoms plus gastric reflux before an attack. Amitriptyline has helped somewhat, and I'm testing vitamin k2 with some improvement. Presumably, as it removes calcium from veins and arteries, there is better blood flow. I have attacks occurring before it rains. A rheumatologist told me that the barometric pressure drops before rain and scar tissue expands. The Canadians have categorised fibromyalgia as an autoimmune disorder, and imaging of brains of sufferers is different from non sufferers.
I believe Genetics have a factor in fibromyalgia. I have had it my whole live but not to the extreme now. I have 2 male cousins and 4 female cousins just on my dads side same generation.
The pain everyday drives me crazy sometimes. The hardest part is to sustain myself. Working enough to make enough money to pay my rent and bills. I find it so unfair that it is so hard. Winter is coming now here in Spain. More humidity. And financially its just hard if you have so much pain.
Fibromyalgia, l suspect rheumatoid arthritis too as fingers getting slightly bent in one side, pain in fingers, wrists, joints. Few days ago thumb got swollen, in pain and couldn't move it properly. Took two days to get the finger back to normal. IBS that contributed greatly to an anal fissure as well. So when l feel little better in one area, other gets worse. Could have 2, 3 max.. " normal? " days in few months. Poor sleep, sensitivity to light, food, chemicals, scents, anxiety... BUT I strictly reject any medications although l am in pain.. and pain can be unbearable, but l am also stubborn as hell. I just try to rest as much as possible and keep myself under tons of blankets. Some tears do fall down, won't lie. With such a sensitive body and side effects of everything that l am forced to edure with, am afraid as hell to put it through heavy pills on top. I know l might live better with them BUT don't want to damage my body any further.. usually liver can suffer great problems when taking pills on a long run. Also am afraid if l start to take anything, will feel such a relief that l won't stop taking stuff.. what a vicious cycle..
Sana I could definitely sympathize with you diagnosed at age 20 with Rheumatoid arthritis then Fibromyalgia then Candida then Epstein Barr Virus then IBS -C then Sygruen's Syndrome then anal fissures and just recently Tinnitus all in the last 45 years!
I had fibromyalgia for over 30 years. I cured it with minocin alone very quickly. Minocycline will work but google for best manufacture to use. Many recommend the Torrent minocycline. I'd use bromelain with it to prevent antibiotic resistance. Nattokinase, serrapeptase is good for biofilm. It cures all forms of arthritis also.
Like many others writing here, I believe my fibro started in childhood due to severe childhood abuse, which resulted in PTSD. I'm 69 now and after a lifetime of being told there was nothing wrong with me, it was all in my head, given antidepressants, etc. I was diagnosed with immunodeficiency disease. Pretty much any organ I have left now is always on the verge of crisis. I truly believe the most important thing I've done to help my pain levels and improve my quality of life is that I became a vegan. I started eating a low carb, highly alkaline, low fodmap diet (I spent months researching and compiling my food lists). It has changed everything for me and improved my quality of life to the point that I can now hold down a much-needed part-time job. Food is the best medicine! Each body is unique, so try to eat according to your own needs and pay attention to what works for you.
I got diagnosed with CPS (Chronic pain Syndrome). I have severe pain mostly on my legs seems to be the worst and throughout my body from head to toe. I also get neuropathy which is somewhat under control with Pregabalin. I get severe fatigue. I was diagnosed with UCTD and SLE based on symptoms. What's the difference btwn Chronic pain syndrome and Fibromyalgia? I also have Hashimotos.
Good question, I also have wide spread pain that started in 1st grade in my legs Eventually my whole body became effected by pain. The leg pain being Restless leg syndrome? I took a couple major falls as a kid, I always wonder if that was the cause. Good luck with your journey through these conditions.
honestly, unless someone is needing a certain label or diagnosis, it really doesn't matter. there's imbalance in the body which results in numerous conditions, symptoms, and disorders. As long as docs look at those symptoms and treat just that, the person will not get better. Everyone has root causes that they need to try and discover and work through to bring balance, which is when the healing starts. unfortunately, this can be quite a process and of course, is easier said than done. I'm in this process myself lol. I think everyone should first try to lay their foundation correctly. Then they can add to that foundation piece by piece. I personally think a strong foundation is your daily diet, regulating proper sleep patterns, and creating a healthy stress response. It sounds simple, but not so much. But when those 3 are in sync, that's when the healing will happen. My foundation is taking much longer than I thought lol.
Cold water swimming has helped enormously. Anti depressants aren't good if you have bi polar disorder. I take vitamins and magnesium. I can ameliorate my symptoms, but not get rid. One thing replaces another. The IBS and itchy skin are worse than pain for me.( My diet has been adjusted to accommodate both, but flare ups occur anyway.)
Hey great video! Do you have any stats regarding the misdiagnosis of Fibromyalgia being mistaken for 'sscd' 'scds'. I have recently been diagnosed with bilateral Scds, but I believe fully that my initial diagnosis of Fibro was completely wrong around 8 years ago. The symptoms mimic each other completely. ✌️
@@traceytansley1659 Hey Tracey, essentially it's holes in the vestibular system (inner ear) caused by either trauma or birth defect. There are many wide ranging symptoms, some of which are quite disturbing. Apparently this affects less than 1% of the population, but I feel there are close links to Fibromyalgia, and other such conditions as CFS. It can wreak havoc on your senses, as the vestibular system is responsible for your balance and sensory processing. Photo sensitivity, vertigo, nausea, widespread pain, fatigue, cognitive function, sleep issues, tinnitus, hearing loss, headaches, migraines and general sensory overloading. Every case seems different, in my instance, I have holes on both sides requiring a craniotamy with plugging and resurfacing of the holes I was only diagnosed in March, and confirmed using a CT scan of the temporal lobe area. I was 'diagnosed' with Fibromyalgia many years back. The specialist that saw me said he wasn't surprised that it had taken over a decade to diagnose me as doctors are simply not looking for it, being so rare. My theory is that I'm not unique, and having read on the UK scds website, that SCDS is often misdiagnosed for conditions such as Fibromyalgia, meniers disease, chronic fatigue syndrome and even autism! I felt that there are possibly people out there suffering with something that may not be as rare as the medical world believes, and I want to find more info on it and try to help raise some awareness. I have always felt that Fibromyalgia has been a bit of a get out of jail free card for the medical World, when something cannot be explained, I believe there is a link between them. ✌️
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Video Timestamps:
0:00 Fibromyalgia Definition - What is Fibromyalgia?
0:20 Fibromyalgia Epidemiology - How common is Fibromyalgia?
0:43 Fibromyalgia Symptoms
1:33 Cause of Fibromyalgia / Fibromyalgia Pathology
2:25 Fibromyalgia Diagnosis - Tender Points, Widespread Pain Index & Symptom Severity Score
3:56 Fibromyalgia Differential Diagnosis
4:17 Fibromyalgia Subtypes & Controversy
5:18 Fibromyalgia Treatment Options
Q
🇨🇦 at 53 now been living with FB it hurts!! Locked in a mental hospital at 15 depression they called it. Still on too many meds. Days were i can not walk i work as a houpkeeper . I cry at night in pain. For over too many years
Times used to be very Challenging, i had the Worst days of my life living with Fibromyalgia & pains, I Appreciate you so much Dr igho, your herbs worked perfectly fine on me, All the pains are gone.
Tender Points diagnostic test has been discarded for use in diagnosis of fibromyalgia. Stay on top of the latest developments!! See a University Rhuematolgist
Don’t eat chocolate, it makes the pain worse !
I feel that my fibromyalgia is the result of living through several extremely stressful events in my life, which has resulted in my nerves being "burnt out" . Not a medical description I know but I get up, everyday, feeling like I've been run over by a bus. A hot bath helps to get me moving but the pain is constant.
Stop eating gluten, milk and cheese. You 'll be fine 💪. Try for 2 weeks
Take apple cider vinegar pills for 6 to 12 months it kills the Candida yeast over growth that was able to grow during your stressed out periods.
@@bluesky7704 sorry I can't take them, I'm allergic to apples
try raw vegan diet.
@@karendooks6244 you must eat beef, chicken, turkey, fish and vegetables. Almond ( 4-5 ) every time you 're hungry. Rise is ok. Bean ok but NO rise together
I had fibromyalgia for twenty two years. I felt like I had the flu every day of my life. I was on Tramadol until it was taken off the market. I was taking antidepressants and sleeping meds. Last fall I got fatty liver disease. I had to quite all my meds and go on a strict diet of no carbs and no sugar. Within a month I had no more fibromyalgia symptoms. Now five months later I have lost fifty pounds and feel great!! I not have taken any more medication and have no more liver disease. Best thing to ever happen to me was fatty liver disease and change my diet. I have not missed my old diet because I feel so much better.
Trying to get your will power with the starch and sugar, I stop the meat,
I’m starting this tomorrow then! I’ve had fibromyalgia for 24 years!
@@worthyisthelamb7 Good luck and let us know how you get on. x
@@geni2906 Thankyou! Will do 😊
I've heard that helps a lot of people with inflammation issues. I lost 40 pounds eating low carb but don't feel one bit better. But I know the weight loss is better for my joints.
It’s amazing how when women experience pain in general in their body that it’s assumed that there has to be some kind of psychological connection. As if to say it’s all in our heads. I’m sure men would not get the same analysis.
Update: I combine Blackseed oil and castor oil (equal amounts) and rub these oils in my problem areas: joints and muscles. Blackseed oil has anti-inflammatory properties. Wonderful for maintaining symptoms and get relief. I discovered this on my own by the way. And THEN did the research to confirm. This isn't health advice so please proceed at your own risk. I do have to add this disclaimer.
I’m a 54 year old male. I was diagnosed in 1998 with fibromyalgia and it’s getting worse as I get older. Mine has turned ugly. I has BFS in my legs really bad. They twitch constantly day and night and causes leg cramps. I get it in other places that com and go. I thought everyone felt like crap all the time like me and just toughened it out and I was just a wimp. I work in construction until late 40s and it just took over. When I hear crap like this guy is suggesting like we just need to be happy and go to the gym we will just be fine. I hear you and I understand. But there are many men suffering as well. I’m sorry that you are suffering from this awful thing. I gave up on doctors and there BS. There was a doctor who actually has Fibromyalgia and he was the only one who made any sense and who understood. I do everything I can to fight this as you do I’m sure. But many days I cry. This is real and not in our heads like all we need is to be happy. Bless you and I understand.
@@terrymattson3587 Thank you for your feedback. It's definitely reassuring to hear from a male who has fibromyalgia. You're the first male person I've come across who does have what I have. I'm 45 and was diagnosed when I was in my 30s. Most of my health issues, including fibromyalgia, started after my pregnancy. Needless to say, that was my first and last.
It pisses me off when females aren't taken seriously when they have medical issues. Have you seen the video on medical gaslighting right here on UA-cam?
I'm sorry to hear you suffer from this as well. I've also given up on doctors as they are useless and prescribe endless medications that don't help.
It's easy for others to judge how we should and shouldn't feel and what should and shouldn't help. The deep, throbbing muscle pain all over isn't in my head as well as yours. These are real pains. And it's funny how no one talks about inflammation in the body. I'm diabetic type 2 and have celiac disease. Pain isn't only in the muscles but also in all my joints including my neck. I use cbd oil for sleep currently, magnesium glycenate to relax my muscles and slow down my heart rate and tiger balm to rub on painful spots. I can even feel the pain in my spine and ribcages. I've given up on conventional meds that don't help and make things worse. After showering, I also allow the hot water to blast painful spots on my body, as hot as I can tolerate it. This helps in relaxing sore muscles. Maybe you should try it.
God bless you as well and don't give up because there's one thing for sure doctors don't see: the tears on our pillows.
@@wakeup6759 I am 40 plus and reading your post makes me feel like it was describing me. Thank you all for sharing and thank you for the suggestion. I love thr be happy and exercise. Yes I believe it will help but if tkinf a few steps makes me want to cry from fatigue and pain, how a I suppose to make it to the gym. At ties just existing and breathing hurts. I keep hoping this 4 year flare-up let's up at some point. The deep & throwing pain, join pains and over all ravaging pain just makes me want to give up on life, but then you see your kids and put a smile on keep shuffling. I pray for a cure for all if us and all sickness.
@@blueearth3313 I totally understand where you’re coming from. I’m glad more men are speaking out on this issue of fibromyalgia since I thought it was just a female problem. There are times when I’m at the gym and I would just sit down and hold my head in my hands because of the pain. Yes even breathing hurts. There have been many times when I wanted to kick the bucket as well but I use my daughter as a motivating factor. You can use your kids as a motivating factor to not give up, as well as many others in your life who still need you. You can even use a door jamb to give yourself massages on your back. I use edge of a pillow to cushion my rib cage.
Inflammation will always be present in our bodies as long as there are chemicals in our foods, pollution and other underlying health issues we might have. Yet, I’m hopeful that one day there will be an effective treatment without minimal side effects.
My son is in his late 20’s and has been diagnosed with fibromyalgia. He gets muscle spasms and cramps and sometimes feels like his feet are on fire. He has an increased sensitivity to pain. I have had fibromyalgia for years so there must be a genetic component to it but he and I have different symptoms.
As a FM sufferer for 25+ years I am grateful for this video.
I pray those new to this condition will be more informed and able to fight their corner and not pushed from pillar to post by consultants....
TY SO MUCH
I’ve had fibromyalgia for for 22 years , everyday is different . Pain varies greatly from day to day . Sometimes I stay in bed or go no further then my recliner. After a while you learn how to deal with it and what you eat can make it worse also . Certain smells , tastes, and definitely sensitive to touch . Every inch of my body is sensitive to touch , I don’t being touched at all most of the time. Wearing clothes is painful especially anything even close to form fitting . Life sucks with this crap . Especially when you add everything else to it that you experience on a daily basis.
I find that Lyrica helps my fibromyalgia alot it don't take the pain completely away but it helps about 85% most of the time then I can get out and move around and such and that exercise helps another 5 to 10 percent
Have you ever had pain in the soles of your feet everything hurts and can’t wear shoes cause it hurts sensitive finger tips that hurt evening texting on my phone hurts
@@carolynarnott5002 yes especially the soles of my feet it sucks so much but people think we saying it just to get attention......my girlfriend didn't believe that I had it untill my doctor told her that hey this man is in real pain
@@carolynarnott5002 The pain in my feet gets so bad that I can barely walk. The only thing that helps me , is to stay offen my feet and if possible get a massage or use foot massager. Soaking in Epson salts helps a lot also .
@@shannongrayRFK I can take Lyrica, I'm allergic to it. My sister takes it and she says it helps her , but it's highly addictive.
The truth is that most if not all illnesses have a psychological component. I was diagnosed with ME/CFS, IBS and fibromyalgia twenty five years ago. Since then I’ve been through periods of being bed bound to being 80% functional, and it can vary. I’ve never thought of myself as depressive, I’ve always been positive and meditative but seven years ago, after the sudden and unpleasant break up of my marriage everything fell apart and I was diagnosed with C-PTSD, a condition dating back to pre-birth in my case. The shock was a revelation, I hadn’t realised how much energy I was pouring in to being a people pleaser problem solver for everyone else and suppressing my own needs and emotions. An essential childhood survival tactic of perfectionism.
It has been a relief, at times a joy, at times unbearably painful letting it all fall apart. I have been curious about my own healing, physical and emotional, and have learned a lot along with way. While once I would have fiercely denied any emotional or psychological component to my illness(es) I found freedom in Bessel van der Kalk’s ‘The Body Keeps the Score’ and other related books. There is always a psychological component that creates a toxic stress that produces chemicals that trigger physical weaknesses or vulnerabilities that we carry. If we address and eliminate these we are part way to understanding ourselves and some of the way towards healing. Add to this being prepared to be curious, to experiment with diet and other therapies (cold water works for me, and meditation on a number of forms including slow walking in nature) we can feel more empowered and less helpless on our bad days or in our bad weeks or months. And I say this from the middle of a not very good phase, where some dietary self sabotage has played a part! 🤦🏼♀️😁
Good luck everyone, and take great care of yourselves. At the moment we are the only ones who can.
Great reply. I work as a therapist and have seen physical symptoms of fibromyagia greatly reduced after treatment. emdr in particular has shown reasonable results.
These are facts. I was diagnosed in my 30's. I have always had high tolerance for pain but always in pain which is why it took so long to be diagnosed. It was when I was treated for anxiety when it was discovered that I had Fibromyalgia. I don't wish it on anyone. Awesome and informative video! Thank you!
The same here! I have a very high pain threshold. Two huge babies. Natural births. After years of menstrual pain. Pain not cramps. Mega hormone imbalance. Finally approved for a hysterectomy. I had severe endometriosis. My dr said I had been in terrible pain for years. After my surgery I had body pain like I’ve never had before. My toenails hurt. I was diagnosed almost two years ago. But, I had lots of pain. I just thought that was how it was supposed to be. I was 45 when I had my hysterectomy. 49 when I was diagnosed. It sucks. And not many people believe you.
@@ginnyallen6273 almost my story. I was diagnosed 4 months ago with fibro, then just had the hysterectomy 3 months ago. In so much pain still. Wish it would all go away
@@ginnyallen6273 hmmm, hysterectomy here as well ... hmmm, interesting
snap it was only when i was sent for x-rays they discovered i had been walking around on two broken ankles for twelve months! and standing at work ten hours a day five days a week! as for recommending exercise they must be on drugs, having to go anywhere and i have to take it easy for a few days before hand and accept the fact that i will be two to three days in bed afterwards exhausted and in rotten pain all over! as for period pain thank god im out the other end of it but it used to be every 23 days and the first three days i would be puking with the pain!
Same
Diagnosed with it in 2011. Took meds until 2017 where life hit and took a turn for the better. Painful, but for the better nonetheless. It Took 1 year to clean my system from prescription meds(including prescribed opioids) while doing that I completed the CASAC and switch career to social service field from the business field that it was great money, but I hated it. I am just sharing pieces of my journey in Hopes this can help someone🙏🏽
I am off of meds all together. Got strong Spiritual life, a holistic approach, change in food intake and lifestyle. I praise God for his shaking up to get me to this stage😉
Amen.. God is good. !
I've had pain and symptoms since I was in my late 20's. I always complained to my doctors but not one, and there were many throughout the years, not one ever diagnosed me. "It'll go away" was basically the response. I was finally diagnosed last year. I'm 55 now and it was a relief to be heard. I ache from head to toe but at least I kmow for sure what it is.
Stop eating gluten, milk and cheese. You'll be fine 💪. Try for weeks
Rossana is mostly correct. It's a Candida yeast over growth take apple cider vinegar pills for 6 to 8 months cut out carbs and sugar
It's just a suggestion try hyperbaric oxygen treatment chamber or occlusion therapy it will eliminate all the symptoms
Dr Obinyan herbal treatment cured me completely from fibromyalgia with in 3 weeks of taking his supplement. I can now sleep peacefully without any pain's..
Dr Obinyan herbal treatment cured me completely from fibromyalgia with in 3 weeks of taking his supplement. I can now sleep peacefully without any pain's..
I've had fibromyalgia since I was very young. I am now 50. I can say with all confidence that if you feel terrible and make yourself do more physically, it will only make you sicker. Pushing yourself really is a bad thing to do.
I'm diagnosed since 2004 as Fibromyalgi patient. Still have pains and fatigue. I have used the Tramadol 100mg when I can't stand and a unable to do something att all. Paroxetin 20mg/day. This combination make me happier and more mobile. Love from Sweden 🇸🇪😍
I also have fibromylagia and osteoarthritis, spondylitis sciatica and s1 chronic pain. I been struggling for 8 years now and the only thing I get is lyrica and nothing else 😪 I'm a nurse aide and I had to cut so many hours because I'm in severe pain and can't barely move some days 😫. The doctors don't want to give me anything for pain because of the opioid.
Please check out Anthony William. There is most likely a podcast episode for fibromyalgia of his, that is freely available via google.
Order an alcat food sensitivity test. Watch Dr. Osborne
@@ma7608 See if they will give you /Buprenorphine and Naloxone for your pain. They give to chronic pain sufferers to take them off opiods. I've been taking it over 2 years now and it helps tremendously, this was for back pain. Now I wonder if I also have FM as the symptoms seem to fit.
I had fibromyalgia for over 30 years. I cured it with minocin alone very quickly. Minocycline will work but google for best manufacture to use. Many recommend the Torrent minocycline. I'd use bromelain with it to prevent antibiotic resistance. Nattokinase, serrapeptase is good for biofilm.
I also have sensitivity to light, chemicals, smells, sometimes my skin hurts to touch. Stinks
I feel for you cause that's exactly me it's awful 😖
You are made of chemicals.
@@andrearoberts1936 stop eating gluten, mais, milk and cheese. You 'll be fine 💪. Try for 2 weeks
Can I suggest something hyperbaric oxygen treatment chamber or occlusion THERAPHY.the problem is poor oxygen perfusion in the tissue and cells of the body. Causing lactic acid and hif1alpha to accumulate in the cells that is responsible for all the pain that you suffering oxygen is the key to treating Fibromyalgia and CFS/me .if you have tried many things it give these thing a try just hoping these might help
Estrogen dominance causes skin hypersensitivity.
I have had fibro and CFS for 20 plus years. The hardest part was getting a diagnosis. I found a great Rheumatologist and he has helped me so much. He monitors my bloodwork closely and on a good medication list. I also have hypothyroidism.
When in a flair I get very sensitive to touch. One thing I have learned is I will gag brushing my teeth and eating when in a bad flair. I can't exercise when in high pain so I rest. I am active when I feel better.
My daughter is 30 with 3 young children and has my same symptoms. She would suffer in silence because she knew I would feel awful for her. The biggest issue for me is people not getting it and judging me. I have learned to take care of me and not let people that judge bother me.
To all who deal with this, hang in there and do what works for you. Gentle hugs to all.
I am a male who has suffered extreme exhaustion & pain for going on 50 years. I went to a so called expert in my area about 10 years ago. Within a minute of taliking to him he merely touched my right shoulder with a fingertip he exclaimed that he has ruled out cfs & the appointment was pretty much over after that. He did order blood tests to confirm the fact. The nurse told me that she was from another country & that over there the exam is much more extensive that the finger on the shoulder touch. After the decade since the pain and exhaustion is unbearable. Too bad our institutions don't do a better job than this.
Watch Dr. Osborne take apple cider vinegar cut out carbs and sugar and order yourself an alcat food sensitivity test. Good luck
You need magnesium brother. And lots of it..I take the brand Bioptimzer's. They are the only company giving the **7 types** of mag we need.. and are not getting daily.. I take it morning and at bedtime..It has my pain and stiffness down to a one..and fatigue is alot better too...Been on it 3 or so months now..Maybe it can help you..God bless..
@@bluesky7704 all junk science
I had fibromyalgia for over 30 years. I cured it with minocin alone very quickly. Minocycline will work but google for best manufacture to use. Many recommend the Torrent minocycline. I'd use bromelain with it to prevent antibiotic resistance. Nattokinase, serrapeptase is good for biofilm.
GOD help us. I have the same plus polymialgia and Chrons disease. It is very hard. Pain all over my body. Start a diet today. Hope works. God bless all of you.
Does anyone get vibrations and sensations that they’ve been plugged into an electric outlet along with stinging and burning ?
Yes!!!
Yes! My right thigh is the worst. Numbness constantly and then it turned in sensations like curved tunes of water trickling through my thigh, then deep internal itch that can't be relived by scratching, then it turned into stinging, burning and bee stings pains, then one morning it was excruciating nerve pain. I am using Voltaren ( helps a bit), anti itch polysporin liquid, and my heating pad, along with deep massage. This gives me relief, by bringing pain into a more bare able level. I get stabbing, shooting bee stings pains all over, but the thigh is the worst. I also have costochondritis rib pain which feels like a sword stabbing between my ribs and into my back. I have many other symptoms, but this is long enough.
Only nutcases like you.
@@ambushed6053 Was that the day you grew up and chilled out?
Wow....I find ot extremely disgusting to read your childish comment @taboo. You do know this is a REAL CONDITION? You do know that it affects our lives? You do know that the pain is so bad that I cannot even sleep at nights, that I've had to give up my Nursing career and my life has deteriorated😞 How can you make fun at others? Please don't have digs at another person's sickness.....I pray you never have to experience this....
I got my diagnosis about 1 1/2 years ago, after six years of hearing doctors tell me I wasn`t sick. Knowing what it is, sure helps me explain why I can`t do whatever I want. But I still try to improve my health as best I can. I am currently using Sarotex to take the top of the pains, and I am working out with swimming, finding I manage pain and fatigue better in the water than on land.
How do you get diagnosed if doctors always saying it’s in ur head. I suffer the symptoms and been diagnosed stress anxiety panic disorder by cbt.
@@sufiakhatun157 I went to a rheumatologist. In 1990 I had been having awful pains and went to my regular dr. After I broke down and bawled like a baby, that he decided I had arthritis and put me on arthritis meds. They didn't work. I was talking to a friend at church after I had been dealing with this for 2 years and she asked why he hadn't sent me to a rheumatologist. I had no clue but called and made an appointment. That appointment was an eye opener. Within 15 minutes she had a diagnosis and a treatment. I cried when I woke up the next day and had actually slept with minimal pain. I can't say life got easy, but it was better for a long time. Then in 2004 I went to a different rheumatologist and he upped my prescription and told me to not stop taking it even if I think it's not working. 8 years later we bought a house with a pool. I spent every day in that pool that I could. I had a huge setback when my husband divorced me and I lost the use of the pool. Suffice it to say the pool is a wonderful option if you can afford it. We even had ours switched to a saltwater pool and that really helped not only me, but my daughter (we have psoriasis and she has psoriatic arthritis now). At 68 I have other health issues that keep me from being more active, but I get asked all the time why I'm sick all the time - I just don't answer. They will never understand, just like my ex husband never understood. I take advantage of the days I feel good and knit when I don't. I've heard all the comments, dealt with all the looks and snide remarks and now I just don't give a flip. I don't have many friends and I'm ok with it because no one is judging my every move. One thing I always thought was odd - I had 2 different doctors prescribe an antibiotic for long term and that actually helped relieve some of the symptoms, but no dr. ever prescribed it for fibro.
Thank you for this honest medical review giving true insight to this very misunderstood disorder! So helpful.
Take apple cider vinegar pills for 6 to 12 months. It kills the candida yeast over growth causing the symptoms
Thank you very much for your video on Fibro.! The simple, to-the-point explanation is a perfect example that I show people when asked what my Fibromyalgia diagnosis really is!
I have lupus and fibromyalgia 😵💫 the last 7 months have been hell ,I feel like I've been in a very long flare that WON'T stop!
watch DR ERIC BERG KETO AND INTERMITTENT FASTING COULD HELP .I HAVE PAIN BUT DO NOT TAKE MEDS ,HAVE SPINAL ARTHRITIS ,SHOULDER PAIN SINCE AGE 17 ,PAIN IN BUTTOCKS ,BUT I HAVE WEIRD LUMPS IN MY ABDOMEM AND RIB /TUMMY AREAS ,AND THEY ARE VERY SAW IF PRESSED ,DOCTORS SAY THEY ARE JUST LUMPS OF FAT ,I NOW HAVE PLANTAR FACILITIS TOO ,HAD IT A FEW YEAR BACK ,I AM NOT DIAGNOSED WITH FIBRO JUST CHECKING THE SYMPTOMS ,FORGOT I DO HAVE NECK PAIN AND STRUGLE WITH MY PILLOW ,I AWAKE MANY TIMES IN THE NIGHT ,SOMETIMES FOR THE TOILET BUT I NOW HAVE AGONY WHEN CHANGING FROM SITTING IN CERTAIN POSITIONS TOO STANDING AND EVERY NIGHT I LAY DOWN ,I HAVE PINS AND NEEDLES AND INNER VIBRATIONS .
MMS has helped me, and the Synergy products and cannabis oil. (Starting with a detox) it rid me of so many symptoms. Good luck
Celery juice for both of these. Check out Anthony William. There is most likely a podcast episode of his, freely available via google to listen to. I know there is one for lupus, which is caused by Epstein-Barr virus. Take responsibility for your own healing.
Never cease praying! After over a decade on meds and fibromyalgia I am now on year 5 free of it and free of meds. I truly believe God healed me. It wasn’t easy, but worth it. I dealt with a lot of internal baggage and pains that needed to be addressed and with his mercy and the help of the Holy Spirit I am giving him the right away to fight the battles day by day. I wish you healing ❤️🩹 God speed🥰
Watch Dr. Osborne. All these conditions are inflammation conditions. Eliminate the inflammation and U will heal. Order yourself an alcat food sensitivity test and avoid the problem foods. 1st step
Thank you Heavenly Father for blessing us with another day and the opportunity to grow in your grace. Every day and every breath is a gift from God. 🙏
I was told I had Fibromyalgia for years… Come to find out I had a genetic disease called Hypermobile Ehlors-Danlos Syndrome, Cranialcervical Instability, Mast Cell Activation Syndrome and POTS. I say this some that it may also help someone get checked out if they may also have EDS as it also mimic’s the same symptoms .
Amazing to read this. Last month I was wondering the same exact thing because my muscles are extremely activity intolerant. I need to follow up with an MD.
I have fibromyalgia, eds, and pots 🤦🏻♀️ lots of fun !
May l ask “what type of disease is that ? I have been searching the internet and books on my issues, this l have never heard about , lam almost 💯 percent certain l either have a Pituitary tumor or Cushings / Cushion’s disease, l have been having all the symptoms, maybe some Sjrogens because of dry eyes and my redness , loss of vision and , l also have tingling pain in my hands and fingers ‘ every. day l think why don’t you go to the hospital, ? then l re think it a say “ for what ? So that they can say your crazy or a hypochondriac or just getting old or something !
@@Redeemed.4salvation good luck with that. Hope u have someone who won't won't treat u like ur nuts
@@florabraswell8423 You are worthy to get it checked out! Had the blurry of vision/tingley hands as well (blocked nerves in neck spine). My sis has the same and last week she had to go have a MRI of her neck (atlas) because her legs are falling out (and she was urged to go because normal fysiotherapy can actually be very dangerous (as in paralisation risk) if her atlas is compromised so to say) She doesnt has the results back, but please get yourself properly checked out to get proper treatment! 🤍
I was diagnosed with fibromyalgia 5 years ago and SLE Lupus 11 years ago. Changing your diet does help to reduce the symptoms and flares but everyone's body is not the same. My doctor had me keep a medical journal 3 months because I couldn't understand why I would have pain after having red meat, BBQ sauce, wine or coffee. Best thing I ever did for my health. I didn't eliminate everything from my diet because I have severe iron deficiency anemia and none of the iron meds have worked so I reduce my intake red meat but have given up all BBQ sauce & only have wine when my blood pressure is too low. I've found that eating beet & drinking lots of natural juice has helped me when I'm having a flare.
Black strap molasses for iron. Sweet potatoes are pain free. Pain free food list, Times of India article. I take micro amounts of iron supplements.
it also attacks the nervous system causing uncontrollable untolerating pain not to mention aggravating itching pouring sweat and freezing constantly without letting up but with a pain I compare to cancer the fybro is more painful than when I broke my ankle completely
I was diagnosed with fibromyalgia about 20 years ago and it affects my life daily. I have not found a medication that relieves the pain. I have used kratom for 7 years and it does relieve the pain and I get decent sleep. It affects my mental well-being. It is very debilitating on a daily basis. I would like to see more studies done on kratom and the effect on fibromyalgia.
Karton can I please ask what treatment that is I have not heard of this in the uk
Kratom is life saving for me. Pain medication doesn't help at all.
Kratom helps me about 75 percent... It doesn't take away my pain completely but it does reduce it enough to make it somewhat more comfortable for me. The only problem I have with Kratom is that I'm retired and on a fixed income and the concentrated version of the Kratom that works for me is very expensive and cost prohibitive for the amount that I would need on a monthly basis. In the meantime I have opioids which not only help with the fibromyalgia but with my rheumatoid arthritis and my spinal and cervical stenosis. I just wish I didn't have to take the narcotic.
I use kratom too. It does help me. What strain do you use? I have good vendor with very reasonable prices.
Debbie please try bioptimzer's Magnesium supplements..it has 7 types of magnesium in each capsule..I take daily a.m. and p.m. and it has helped tremendously..maybe it could help you too..
I was diagnosed with fibromyalgia in 2003. The pain is horrible and people really don't understand or believe how bad it is. Many of us suffer in silence. I'm now 51 and the pain hasn't gotten better. No matter what I take , it doesn't lighten up.
Fibromyalgia has ruined my life its completely taken over despite medication , the chronic fatigue is overwhelming i am constantly fatigued , i had a spinal fusion as a child which failed in Early adulthood leaving me with having to have all metal work removed from my spine . I am constantly in pain the burning pain i feel in my legs is awful along with swelling all over my body. I feel as through i can not carry on living like this anymore i have become desperate just for some relief of this terrible constant life of pain.
Please go see a mental health specialist to help with your depression. I have had fibromyalgia for over 20 years and it totally changed my active life. It is depressing at times but you should not be in a constant state of depression. I urge you to talk with a specialist.
Hi Kerry ,year ago I had scoliosis ,and had the op ,well years later ,I’ve now got fibromyalgia ,also osteoarthritis .I’ve still got my rod in my back, as I didn’t see any reason to take it out as it doesn’t bother me.well my surgeon told my mum ,I could get ostrioarthis ,and fibrosis witch was the na,e then for fibromyalgia.yes it’s totally ruined my life ,I try and make the best of things .It makes me mad when people say they know about it ,and really hasn’t got a clue.ok stay safe now ,reguards angie
I had fibromyalgia for over 30 years. I cured it with minocin alone very quickly. Minocycline will work but google for best manufacture to use. Many recommend the Torrent minocycline. I'd use bromelain with it to prevent antibiotic resistance. Nattokinase, serrapeptase is good for biofilm.
THC edibles, CBD oil and terpenes BCP, myrcene, are good for pain
@@yomomma8972 fibromyalgia is an infection. pain killers make no sense
I stopped eating wheat/gluten/soy/dairy/grains 25 years ago. My fibromyalgia symptoms disappeared. I immediately dropped 12 pounds of water retention. A woman I knew who weighed 200 pounds and tried every diet...I told her about my eating habits. She too gave up wheat/gluten. In 6 months, she dropped 60 pounds and looked like a new person. Health food stores have many wheat/gluten free products these days.
What’s your eating habits please?
gluten is so toxic. and it destroys the thyroid and gut. I'm also gluten and grain free. Unfortunately it wasn't the culprit of my fms. But it would be even worse if I ate it.
@@nikkyshairades9078 Chicken, fish, some red meat, beans. I buy rice pasta or cauliflower pasta/tortillas at the health food store. I purchase gluten-free cupcakes. Years ago, I would bake using half bean flour, half rice flour for cakes, pancakes. I eat a lot of vegetables, salads.
I went on a similar diet shortly before my diagnosis 34 years ago, I lost a lot of weight but it did not impact my FMS symptoms.
@@lynpatricia6854 another lady in the comments said strictly no carbs and sugar and after 22 years no more fms so I’m starting tomorrow!
Thank You very much for this intuitive YT Video. 8% of the population may be underestimated bc as you state, many people don't report these conditions to their doctors or the doctors don't UNDERSTAND this conditon. My Pain managment doctor , also a Physiatrist, diagnosed me with FM. I have been suffering with Chronic pains and stiffness stemming from many spinal conditions: Dextroscoliosis of 25 degrees caused by a leg length discrepancy (shorter right leg at 1") as a result of a Femur Fracture in 1966 (age 15 at the time); encroaching Degenerative Disc Disease {DDD}, sites of spinal Stenosis (Lumbar , Thoracic and Cervical), Disc Bulges, and Facet Joint Arthritis with a Spondylioethis at L5-S1. I have Tinnitus, TMJ Syndrome, Occiptal /Neck pains, Military Neck, IBS / GERD for many years; Radiculapathy and Highly sensitized Central Nervous system and pheripheral nerve dmamge. My first cervical MRI in 2012 revealed that I have a More Than Normal Narrow Spinal Canal. I'm no Doctor, however, I have Common Sense and have done Much Research in these matters. One thing not mentioned here is : The Vagus Nerve, the motherlode of the nervous system. It is the largest of the Cranial Nerves that connects vital organs to your Brain. Your Spine is the motherlode of your Well Being. To me, is it No Wonder that with multitude of "squeezes" of my spinal chord is affecting my body and Mind. FTR, I take Gabapentin (trying to wean off of it, bc your body will want more and more - I take 300mg 2X a day form 3X a day. I also take many supplements to address Chronic Pain / Anxiety: Tumeric, Bromelain, Alpha lipoic Acid , Amino acids like NAC, L Arginine, L Theanine, and many others including vital Vitamains D3, K2, C, E, and B Complexes. I hope some of this story helps others. You Must Seek Your Own Answers, the Doctors will not help except to prescibe MEDS from Big Pharma.
I read all u wrote i hate pain if pot helps me im signing up. I won't my life back
I find from my experience, that you speak the TRUTH! The Drs push Big Pharma. I'm so sick of pills, pills, & more pills...that do NOT help anyways!!! I have been exploring my own remedies(yoga, tumeric, supplements, Cognitive Behavioral Therapy, etc) for years. I will say that I found my BIGGEST relief of symptoms when started on Cymbalta! That medication has been life changing for me! I had to just keep trying until I found what worked for me, but no Dr is going to do it for you. I went to MULTITUDES of DRS, until I finally figured out what works for me. This also including changing doctors several times! My BEST ADVICE: BE PROACTIVE; NOT REACTIVE!! And do NOT let anyone gaslight you!! YOU KNOW YOUR BODY!!! I hope this helps someone & is not just rambling, as I have been dealing with FM for close to 20 years now. I can honestly say...I feel the BEST currently that I've EVER felt throughout my journey. I reached this point several years ago & have been lucky enough to manage my symptoms effectively, which GREATLY improves my quality of life!
@@dawnwallace6337 I didn't include that in my "rant" but I have also tried microdosing & I smoke weed daily & have for years. I will say...I
have NEVER seen any improvement of FM symptoms from weed(except for helping with some nausea)! However; you never know, it might help you! I just encourage you to try to find your own answers & stick to what works for you & chuck the rest! Hope this helps & hope you find relief🙏💗
Lovely I’m on that tract with supplements. Turmeric, L Arginine and vitamins D-3 K 2. The B- 3, B-6 and B12 was a struggle and Vitamin E was also costly and toke weeks of research. Your correct as well doctor just didn’t get the in-depth learning on many smaller events in their academic theater. Great news is the medical field is a great help with some doctors digging deeper on their own time to support the planet in her efforts from her ground of wealth and our animals care in the assist our health concerns. We have come a long way in Medical field considering the depth of debt that occurs from our American system to balance the growth in technologies the expansion for humanity we are blessed to have their help with the symptoms so we can continue in our lives of working and family building. I trust those that are inspired to help themselves learn and share is just stupidest and I’m thankful everyone for their wisdom in this oneness that racism can’t destroy. Peace
A strict plant based diet will help greatly read the plant paradox by dr Steven gundry
I was diagnosed by two doctors with the worst case of fibromyalgia. I discovered I was an Empath, feeling others pain and emotions. I am allergic to milk. When I switched to lactose milk, all my symptoms went away. I am today pain free. I also use an inversion table, but no pain at all and I’m 65
So, what does this "empath" bullshit have to do with anything?
@@NoTaboos Empaths feel others pain
@@kathymorris4553 Milk naturally has lactose. You don't know what you are talking about. Typical of people with imaginary diseases.
@NoTaboos
everything is VIBRATION/ENERGY....
empaths feel other people's pain....
I do healing and clearing and have be careful NOT to take on others suffering - as I already have FIBRO....
NOT everyone is like you and have the feelings of a brick....
Suicidal- too discouraged after 50 years of pain and stress. Too tired to fight for myself anymore.
i hope you’re doing okay friend ❤
🥺
❤
Lots of people with Complex PTSD (emotional neglect / abuse in childhood or other prolonged trauma/stress (i.e. discrimination/poverty) have fibro. It is already argued by Gabor Mate/Bessel van der Kolk its most likely the root of this condition 🧡
It could also establish through traumatic events such as traumatic accidents/war etc
I have had fibromyalgia for years and nothing helps it been put on different medication on one now i am scare to take because it's a drug i stay in pain it is missable i am not able to do things yes i believe you it comes from trauma had a broken collar bone hit by a car broken FEMA knee broken ribs wrist have anxiety put on a mild medication for that wish there was a treatment
Thanks for the comment. I’ve been wondering about this. I have read & seen a little by both VdK & Mate and have always had hypersensitivity (my sister would call me a hypochondriac growing up). I recently found out that during potty training my dad would beat me. Not sure how often, etc, but that was how he dealt with me most of my life, though the physical abuse stopped after a while. Thankfully my parents divorced when I was 5 so I saw a lot less of him. But my mom did her part by not interfering. All of these pieces are fitting together in my life’s puzzle. My widespread severe pain has been going on for ~3 months and I’m just starting to learn about it all.
I have fibo but mine wasn't though abuse mine was a injury and a joint syndrome didn't help it been diagnosed with it for 6 months now and really struggling right now gp has increased my painkillers but theybate not helping and my sleeping tablets isn't working which don't thinkbis helping
I've had this for Almont 20 Years. I personally do not fit into that Description. Maybe some due?! I'm not one of these. It's awful to live with. I've been to one of the Biggest Hospitals to be Diagnosed & Treated.
@@kathleenreed8245 I am so sorry you are having these symptoms as well. I hope you can have relieve soon and wish you lots of healing
Everyone with Fibro needs to experiment with quitting carbs and sugar. Sugar makes pain worse. It's hard because most of us are addicts to sugar and don't realize. Try it for a month and keep a pain journal. Godspeed.
I drastically reduced my sugar/sweetener/refined carb intake 7 years ago. My fibromyalgia disappeared. I also do a 3 day water fast a few times a year. It keeps inflammation low in my body.
Wow,so sugar could be the copyrights?
that can be the culprit for some people. unfortunately, not for me. I stopped sugar, processed foods, grains, artificial stuff, dairy, and I keep adding stuff for elimination. The only improvement I've seen with diet is I lost some weight and my stomach was no longer gassy. I'm in my 2nd year of this and I still feel awful and inflammation markers are high. I also have numerous cervical spinal issues which contribute to a great deal of pain, fatigue, and nerve symptoms.
@@nikkyshairades9078 sugar feeds inflammation. it's not good for anyone. it may not be the cure for many, but it's definitely the better option for all. Insulin issues can eventually cause hormonal imbalance with other parts of the body. Causing numerous symptoms and disorders.
It has worked well for me too. Not cured but way better.
@@ThisIsNotMyHome Laurie, I was going to post a comment but you beat me to it. Every sentence you wrote
fitted my situation. Be assured, I've been down your exact road and still there. God bless. Pa. boomer.
With such a substantial percentage of the population having Fibromyalgia why isn't there more research being done to find a medication that would actually help with the pain and give us more energy. If I only had some energy I could deal with the pain more easily.
And why are doctors not giving out medication that helps! Now what helps is a controlled substance!😢😢😢😢😢😢
@@randyarnold7082 I'm thinking of trying CBD.
Im so tired of this condition
At least it's acknowledged now.
(Told it was growing pains all my life)
Please someone find a way to help, the wide spread pain at night... especially night after night after night...takes it's toll mentally 🤯 dysfunctional mess
I make a tea with turmeric, ginger, cinnamon, cloves, and black pepper. I take it each morning, + vitamin k2 and vitamin D. I also take 40 million macrobiotic. I am also take Diclac retard 75MG, I only take two tablets a week now.
At the start of all this I would say my pain was 500% now I am 5%. And the most important is I pray to Jesus and read His word every day. I hope this will help you. God bless
Try to exercise. Be with happy people and swim every chance u can. U matter to me
@@unablessington7168 that sounds great jesus is why im here. Had covid in feb 21. Almost died. Now in wheel chair. But im not here to stay in it. Im getting better. .
@@dawnwallace6337 Sorry to hear that Dawn. Psalm 107: 20. He sent His word, and delivered them from destructions. By the power and authority of Jesus Christ of Nazareth. I send His word to you this day. By Jesus stripes you are healed. Arise shine for your light has come and the glory of the Lord has risen upon you. You shall live and not die and declare the works of the Lord, in the Name of Jesus Christ of Nazareth and by the power of His word. Amen.
Bioptimzer's Magnesium supplements helped me..It has
7 types of magnesium in one capsule..I take one capsule in a.m. and 2 at bedtime. This has helped me alot.. And my King Jesus is all I need..He is my rock and my HELP in troubled times! I pray for all those who are stricken with this pain syndrome..and have lost hope..
I’ve had it since 2011 after have major surgery & my life has never been the same. It’s a terrible thing to live with.
😢
was diagnosed with it. have had 2 c sections and a car accident that really hurt my back. Ive always worked and still do, Just had more inflammation in my body the last few years. started having joint pain in my hands in 2019 which is when rheumatology said not arthritis, but fibro. after covid twice the fatigue is just bad, worse than it used to be and i cant do as much at work. Take tramadol one a day when i work with ibuprofen. sometimes ill take one at night to sleep without pain. I was put on venlafaxine for anxiety about 7 months ago, its helped quite a bit as well. Witht hat and the tramadol it keeps seratonin longer so i can sleep better and helps with the pain. Today trying to pull a tin tab for corn hurt, the pressure of holding the container as i put it in the microwave. super sensitive. flare ups are so much fun..
I beat F.M.S. with Soy Protein. And a High Protein diet. I have not had any symptoms or pain now for 12 years.I had FMS for 14 years.
Good to know. I have all of these symptoms. It's very tiring living this way, day to day. Hope to one day be able to afford a checkup.
This is brilliant. Concise but more than sufficient. Thank you!
I've had fibromyalgia for 30 years now. It's amazing we don't know more about it after all these years 😢
do you have ptsd? it prob caused it
I started developing fibromyalgia when I was 17 and got diagnosed when I was 20. I'm now 26 and cannot even walk without an aid. my symptoms have got progressively more severe as the years have gone on and I have not been able to work since I graduated from university three years ago. I would LOVE to know how to manage my symptoms better and actually function like a human again! I spend most of my time in bed nowadays :(
Honestly try exercise, will feel hsrd at first but when you warm up it gets better. You can try sny exercise as long as your blood is pumping
I have the same problem and am taking ayurvedic medicine. There is a good change
@@shaijumundakkal4397 hi can you please let me know about ayurvedic medicine? Please 🙏
@@peerbasha2280 I am in Kerala. This is where I was treated. Medicines come in many forms. So you should see a doctor and get treated
I'm pretty certain i will be diagnosed with this. Since I was 13 years old, I have had pain in my knees, and it has spread since then. I now have it in every single joint in my body to some extent. My worst are hips, ankles, and ribs. I have been going to the doctors for years begging themto find what's wrong but apparently nothing is wrong so what do i know 🙄
Has anyone figured out how to cope with the debilitating tiredness and lack of energy with Fibro? I’m so tired of being tired.
A fatigue buster that works for me and I even have heart failure with Fibro..Is mixing a greens powder (Pure Synergy's Superfood Powder) and Dr. Gundry's (Primal Plants powder) in 8 oz glass of iced spring water every morning..It taste great..and gives me the best energy I have ever known..Been doing this for two years..It is a bit pricey..but to me..it is worth it..Then I have my lifeboost coffee with my NativePath Collagen..and My Bioptimzer''s Magnesium capsule.. Has helped to improve the quality if my life..maybe this could help you and others..Praying for you..Jesus is my help always..
It's a candida yeast over growth issue take apple cider vinegar pills for 6 to 12 months, you will get better. Might add a high quality prebiotic also
Deb I have 2 cups of coffee when I get up and when it is really bad I take a liquid B12 under my tongue hold it there for 5 minutes and then swallow it!
Yes...detox...avoid EMV completely...look for books from Anthony Williams...work on emotions and further on on past lives and ancestors energies
Get good sleep. Try trazodone first then work your way up. Get a sleep study done.
Check thyroid panel and add thyroid per doc.
Try sativa cannabis low doses.
Drugs like nuvigial might be of some use. But are habit forming and inhibit sleep.
Access Adequate nutrient intake.
I have good days
I have self diagnosed fybromyalgia from around age 30 years. I am now perimenopausal too - at age 50 as my oestrogen production reduces, and it is hard to ignore the similarities in many of the symptoms (pins & needles being one of them - I didn't know this was a symptom of perimenopause).
I had fibromyalgia for over 30 years. I cured it with minocin alone very quickly. Minocycline will work but google for best manufacture to use. Many recommend the Torrent minocycline. I'd use bromelain with it to prevent antibiotic resistance. Nattokinase, serrapeptase is good for biofilm.
The painful period component interested me. I was diagnosed with fibromyalgia after I had a hysterectomy for endometriosis. I have had symptoms of fibromyalgia for years. My sister and cousin also have fibromyalgia. The one other issue I have is CRPS after a fall that resulted in hairline fractures in my right knee. The fibromyalgia was diagnosed and confirmed by my primary, orthopedic surgeons, a rheumatologist and a neurologist. I am being treated with the elevil and nuerontin. My CRPS does require a small dose of a stronger pain med. I also require tazanidine for muscle spasms that are very annoying.
Endometriosis is linked to Mast Cell Activation Syndrome. So is Fibromyalgia.
I never knew that. My sister has fibromyalgia but never had endometriosis. My cousin also has fibromyalgia. My Mom had endometriosis and my Grandma had painful periods and had an operation but I am not sure if it was endometriosis. All of the girls in our generation of the Sears family have fibromyalgia. I was also told the endometriosis is linked to Lupus. My Grandfather had Lupus. I was told I look like a Lupus patient.
This is a disability you don't die from but with. My mother suffered for a very long time with this.
I have suffered with severe joint pain since my 20’s. My husband and his family always wanted to go camping and fishing which put me in contact with mosquitos and ticks. I thought I maybe had something from that but no doctor ever ran any tests. My pain in my knees was so bad I couldn’t stand up off the toilet without pushing up with my arms. I couldn’t hold a fork or pencil. I couldn’t stand a sheet against my knees. I only weighed 120 lbs and was 5’4” tall. By age 50 I had bone on bone knees and had to have total joints replaced, I had a doctor a rheumatologist say I had Fibromyalgia but my daughter a doctor said X-ray my mother’s joints. They think because you are female that pain is in your head, not real. Boy was he shocked when he saw how bad they were. Of course they were swollen. I always had small bones and my big husband thought I should keep up with him with physical work but I never did sweat like him and I suffered bad migraines with visual disturbances and vomiting. He thought I was a baby. He is dead from chemical exposure at his job causing him Pancreatic cancer and it went to the liver. I’m still in pain all the time and can’t sleep very well. But I’m alive and 75 with fake knees. All of my other joints are trashed.
I think I have fibro, my mother has it and I have every symptom.. it's so frustrating and I wanna just punch pillows and scream because I keep mentioning all my aches and pains and it's either "at least you don't work" or "too young to be in so much pain" even after taking care of my thyroid everything still hurts 😢 I just wanted to be heard I'm glad this whole comment section understands me. I'm only 32 and been dealing with it since 26, sometimes it's so bad you even forget you are still in pain because we are so used to it by now. I just want a morning where I'm not stiff, I'm well rested and my heels won't burn when I stand
Just in case it may benefit someone reading this .. I just now am researching into neuroplasticity. Rewiring the brain. Easier said than done. I know many people are skeptical and many claim it's hogwash. But I'm looking at teaching myself and not paying anyone as I simply can't afford it. When I say I've tried it all, believe me, I have. Except this. And the more I read upon it, I can see where it can help those with chronic conditions with pain or fatigue or both, and many more chronic conditions. Many people have had success with putting their chronic condition into remission. But it takes effort and dedication. Every day. I'm still learning and haven't incorporated a plan into my daily life yet. So I really can't answer any questions about it. But I wanted to share at least that info just in case it may help someone else. My heart goes out to ALL those suffering and I don't think none of us were meant to. No one deserves to. May we ALL kick suffering's ass!
I have lupus, a chronic bleeding disorder and of course, this. My shoulders hurt so bad all the time. I have a headache 24/7
Shoulders too no wonder
Three years of this....but im exaggerating it, putting it on, moaning about nothing, need to get a hobby....fed up isnt the word!
Recently diagnosed with Fibro after years and years and normal test results, medicine, nobody believing me, no help at all…. It’s been a very emotional and stressful time. I just turned 33 this year. Now they want to test for MS to rule out that possibility. It’s horrible to always be in pain, be chained to your meds, and NEVER feel good. I’m ALWAYS exhausted no matter how much sleep I get. My diets a mess because I can’t eat half the time. Has anyone else experienced these same type of issues??
I've been having pain for the past three to four years and finally was diagnosed with fibro. I already dealt with an auto immune disorder so I thought.the pain and issues I was having we're due to that. I have a lot of the symptoms and wish I knew what to do about getting a better night's sleep. I'm going to start physical therapy soon and hope that will help.
I had fibromyalgia for over 30 years. I cured it with minocin alone very quickly. Minocycline will work but google for best manufacture to use. Many recommend the Torrent minocycline. I'd use bromelain with it to prevent antibiotic resistance. Nattokinase, serrapeptase is good for biofilm.
I have erythromelalgia, anxiety and a most of these symptoms except IBS and widespread muscle pain.
Ive heard lack of REM sleep and poor quality sleep can cause these symptoms
My partner/girlfriend as 18 trigger points. I can assure you fibromyalgia is very, very, very real.
I believe to have suffered for a decade and half . My doctor confirmed it but no cure in the UK . I'm relieved however so hopeless. The agony is undescribable.
Thank you, I really appreciate that somebody finally explaying in details what I've been going through. I've been told by my doctor that I have Fibromyalgia. But she Couldn't Explain Exactly what I have Now I finally understand thank you.
I was dx’d about 11 years ago. After going rounds with my pcp, insurance, x-rays, pt, orthopedic surgeon, blood tests, and an mri I was first dx’d with rheumatoid arthritis and a little osteoarthritis. I don’t have RA but I’m one of the people who are positive for it on a blood test. At any rate, after all of that rigamarole I was sent to a rheumatologist in Pittsburgh. Dude cracked me up. First I had full body x-rays. Then he did something that shocked me. HE READ MY FLIPPING CHART. He was ticked when he came into the room. First my osteoarthritis is so bad he said that if he were trying to judge my age from my bones he would be wrong. So that’s fun. But secondly I have fibromyalgia. That one shocked me. I hadn’t even considered it. I just knew I was hurting and that wasn’t normal. First I was put on gabapentin. It made me fall asleep while driving so I stopped that on a dime. Then my insurance company allowed me to have Lyrica. (Pregabalin) In PA they, at the time, did not have medical marijuana so I was also prescribed Vicodin. Here’s the problem. Fibros neuroreceptors will adjust to pain medications rather quickly. So you need more and more to regulate your pain. I’d been getting headaches, went to a neurologist, and he said my increased pain was likely due to the Vicodin. So I weaned myself off from that and ended up moving to Michigan where they had medical marijuana. I got a doctor who listens to me. I got a med card. And now I’m doing much better. Downside is that fibro can cause you to develop reactions to gluten. I now have a gluten allergy. As I type this I’m actually just finishing a prednisone treatment because I was glutened last week. (Actual allergy, I scratch myself bloody.) From my understanding there is a new treatment for fibro that involves an Muscular dystrophy medication along with exercise. I think it’s muscular dystrophy. I digress. Marijuana helps but I react pretty badly to high levels of thc so I only use just enough to kick in the CBD when I’m feeling really bad.
I know I have Fibromyalgia...I'm a nurse and have most of these symptoms. I have pain meds and Gabapentin prescribed. Helps but nothing takes away all the pain.
try the bioptimzer's Magnesium..it helped to restore my magnesium levels in the cells..7 types of mag in each capsule..I hope it helps you as well..I took 3 a day..and I slowly reversed my painful Fibro symptoms.. Praying that it helps you too..
yeah just takes the edge off so you can work somewhat comfortably.
I had fibromyalgia for over 30 years. I cured it with minocin alone very quickly. Minocycline will work but google for best manufacture to use. Many recommend the Torrent minocycline. I'd use bromelain with it to prevent antibiotic resistance. Nattokinase, serrapeptase is good for biofilm.
I have had this since 1981 after contracting a long term viirus with daily fevers, swollen neck lymph nodes, and night sweats. It went on for over a year. Tularemia. I also had a traumatic family life with the drowning death of my brother when I was still a baby, a severely depressed mother who became alcoholic, and a narcissistic father. I was also bullied at school for being a chubby, sensitive, redheaded girl with crooked teeth. (Weight loss and braces took care of two of those.) I therefore suspect my 42 year stint with this disease is from both somatic and psychiatric triggers. I hate it. It has impacted my productive adult years, keeping me from earning a good living, having to retire early, and worsening pain over time. I live in constant fear that if my husband dies before me, I will end up poverty stricken or even homeless. Some life, huh.
Have you tried EMDR therapy for trauma...might be worth a try. Read "The Body keeps the score"
I use meditation,turmeric and honey and exercise daily to control my fibro. It works for me. No medication used in 17 years. I was diagnosed in 2002 after a nerve cord compression injury and later developed hyperthyroidism. My regime works for me.
Sometimes even the hairs on my head hurt along with everything else!! Painful muscles spasms constantly, leg pain, feet, knees, arms, entire spine, neck, arms, hardly able to walk etc.
This is the worst pain ever I also experience pain from my ankle up and very tender in my shins my two year old made me cry from touching my leg its that sensitive it's like a burning pain. I got diagnosed with fibro about 6 months ago the constant headache always tired and pain is getting to be to much
My fibromyalgia began in April, 2004, and is ongoing today. If anyone thinks that we have a LOW threshold to pain can think again. I received a total of 3 shots to my spinal cord, and
my reactions to them were nominal. I remember telling the anesthesiologist that I'd trade my FM for that shot any day of the week, and I was barely exaggerating. I wouldn't wish FM on my worst enemy. It has forced me to make life choices I would not have otherwise made.
Totally agree..THIS pain syndome is not for the weak..I had to comment to say that i did try a magnesium supplement by Bioptimzer's..It has 7 types of magnesuim in each serving..My pain level is at a 1..now most days..
I started taking their breakthrough product 3 months back.. still taking 1 cap in am..and two capsules at night before bed.. Amy, It has worked for me when nothing else has.. maybe it could help you too..God bless..
I had fibromyalgia for over 30 years. I cured it with minocin alone very quickly. Minocycline will work but google for best manufacture to use. Many recommend the Torrent minocycline. I'd use bromelain with it to prevent antibiotic resistance. Nattokinase, serrapeptase is good for biofilm.
I was diagnosed years ago, swear by my fentanyl patches and my 6 monthly ketamine infusions. Sleep disturbance is a killer especially when linked with severe sleep apnoea, I feel like I have been run over daily! Had a great GP who helped me on my journey to find out what was causing my issues. Pain clinic near me is also pretty good
@Tigers360 I have been all the way through the pain killer list. Starred off with co-codamol which helped for a couple of years, then onto slow release morphine. Now on fentanyl patches. You need to get a good GP and a referral to your nearest pain clinic. Keep pushing your GP or you won't get anywhere unfortunately. Have you been officially diagnosed by a rheumatology team? As that can make it easier. They should start you off with low level pain relief and work your way up. I hope you get some relief from your pain. From a saint's season ticket holder 😊
I work as a CBT therapist and about 13 years ago I began to notice how many people coming to see me with fibromyagial had experinced significant emtional trauma. This may have taken the form of childhood abuse, domestic violence or even ex veterans. Sometimes when we treated with trauma particularly with EMDR the fibro symptom would diminish. So some times psychological treaments may be worth a try. Since this thought occurred to me some research has taken place which backs up this theory. If you google fibromyalgia and domestic abuse it should come up. Also read the book "The body keeps the score" which explains the science of how memories can be expressed as physical symptoms.
@davewoodward. Hello Dave, I've just read your information on fibro. You said that domestic abuse could set it of. I had two very bad d.a. marriages, and vowed never to trust a man again....then I had my husbad. Sadly I lost him a few years ago. I was diagnosed with fibr. about ten years ago, and my husband was just wonderful. Thank you for saving it can be caused by d.a. Blessings to you and thank you.
@thecrazyenglishcatladyfive7276 sorry to hear you lost your husband at the point your life was becoming more fulfilling. That's really sad.If you live in England the NHS talking therapies programme is very good if you ever wish to give it a try. It offers help for people with long term health conditions too. If you can't find where to access it locally post another message and I might be able to connect you to the right people. Either way I wish you well and thank you for taking time to reply.🤗
I was diagnosed recently but I have this problem for many years and it only got worse. I do believe it is a condition related to low metabolism and increased inflammation in muscle tissue. Some people are very sensitive but some are not. It is better to be sensitive because this condition leave you no choice but to be more active. Vegetarian diet, walking every day plus a lot of water helps. No carbs diet does not help me but makes it worse. Fibro is nasty condition which is hard to treat. I would avoid any medication unless it is a very bad day and pain is unbearable.
I have it and its hell to live with
Mý daughter complained of muscle pain ,joint pain, headaches fatigue, stomachache n burning fingers n toes...so my physician said she had fibromyalgia
Guess what?she continued having major symptoms n i took for a 2nd opinion...doctor did tests n diagnosed her with lupus
She is sooo much better now
Got diagnosed at 24 after thinking it was fake, my mum has it and I thought she was faking. But when I was diagnosed it all made sense. My fibromyalgia was triggered by glandular fever I had at 16.
You must stop eating gluten, mais, milk and cheese. Two weeks and you 'll be fine but continue with diet
It's just a suggestion might help might not. Try HYPERBARIC OXGEN TREATMENT CHAMBER or dental occlusion THERAPHY. The caused of fibromyalgia and it's symptoms are accumulation of LACTIC ACID and hif1alpha in the cells so in order for the lactica cid and hif1alpha to be eliminated is by increasing your oxygen level in your tissue and cells. Just try it you might be surprised by the result reminder if you decide to try hyperbaric oxygen treatment chamber the 1st five session the symptoms will not go away but probably. 6and above session you will feel differently like your normal again just a suggestion that might help you
I had fibromyalgia for over 30 years. I cured it with minocin alone very quickly. Minocycline will work but google for best manufacture to use. Many recommend the Torrent minocycline. I'd use bromelain with it to prevent antibiotic resistance. Nattokinase, serrapeptase is good for biofilm.
I've never heard of glandular fever but I had glandular pneumonia around the time of my fibro symptoms. I've never heard of glandular pneumonia either at the time. All my glands from my head to my upper chest flared up and swelled triple or more in size. I didn't have much pain with it so it was weird. My ears stood out from my head like dumbo... not a good look
Because when you have fibromyalgia, your body is tense mode due to pain , anxiety, along with ( myself ) living in Abusive situations my life up until 50yrs old . Eye sensitivity to sunlight , restless leg syndrome, pins and needles in both feet . Head to toe fibromyalgia affects the whole body . I try to stay active, but since I caught Covid my flare with not calm down .
I do have fibromyalgia. (I awaken each day feeling as if I got hit by a truck the day before.) At my worst, & before diagnosis, I suspected I had this condition -- after a lot of reading & doing my own research. (I had to alert my doctor that I thought I had the condition, also that I thought Lyrica [which was very new at that point] would help a lot. She sent me to a rheumatologist who confirmed the fibro; my doctor then gave me free Lyrica samples from her clinic. I then got gov't. approval later on to cover the cost of a prescription -- & for any dose & for life!! This drug was not on the list of approved free meds. at the time. It may be now tho, now that a generic copy is avail. -- that is what is now covered for me, & works just as well.) At my worst, & before being diagnosed & put on medication, I was practically bedridden. I would lie flat on my back in bed, with my arms loosely at my sides, feeling my whole body
just throbbing with pain, & for no discernible reason. If I moved an arm, a leg, even in the smallest movement, this would jack the pain up X 10 in that general area. My pain relief is as follows: Max. dosage allowed of Pregabalin (Lyrica)(600mgs daily), which removes about 75% of the pain; Tylenol 2 (Lenoltec with 15 mgs. of Codeine), which removes about 20% of the pain; & I manage the last 5% of the pain with a very effective, simple menthol rub, which works almost instantly after being rubbed into my muscles. I buy good-sized pots of the menthol rub at my local dollar store for about $2.50 and it lasts me probably several months -- I don't use it every day, but I probably should. All of these medications, in particular the Lyrica, gave me my life back -- and I slowly increased my dosages until I was taking the max. 600mgs of Lyrica per day. (I believe 800 mgs. would probably remove all my pain for me tho, unfortunately.) How I manage my life now: 1) I do not schedule any appts. or activities in the mornings -- I have to wait until my Tyl. 2s kick in, in particular, & about 4 of them -- 2 first thing & 2 maybe 3 hrs later, then I hv to wait an hr. or so after that before going out. 2) I do not spend any longer than 1 hr. at a time, at the most, doing housework or anything physical at home. If I need to sweep & mop floors, I usually do it in 10-15 min. increments. Takes forever, but at least I can get it done by myself. (I hv arthritis in my lower back, which doesn't help!!) 3) I take the Lyrica morning & night, 300 mgs. each time (altho I understand it can be taken all at once, once a day), and I am allowed to take a max. of 8 Tylenol 2s a day. I take usually 5 or 6 of those -- on a bad day, or a much more necessarily physically active day, I will go to the full 8 permitted tho. (Note: Under serious mental stress, I need a lot more Tyl. 2s, up to the 8 allowed daily, & they are not nearly as effective -- sometimes in such circumstances they can feel barely effective at all.) In any case, I bunch up the Tylenol 2s a little: I take 2 of them first thing, then another 2 maybe 3 or so hrs later. It's only after the 2nd two have kicked in that I can be out & about, doing errands or whatever. I can then walk about looking normal & mostly feeling relatively pain-free. I often take a Tyl. 2 before bed, otherwise I am uncomfortable enough that I hv trouble falling asleep. I leave out on my nightstand some water & a Lyrica for the morning, along with some Tyl. 2s -- I sometimes awaken early, well before I wish to get up, from the all-over muscle pain that's started up again. I then just grab my medications & try to go back to sleep for a while, which I can usually do, & then get up a little later, when the pain has "settled" somewhat. This doesn't happen every morning, that pain awakens me early, luckily. I normally try to take the Lyrica & 2 of the Tyl. 2s as soon as I awaken, or not long afterwards. I then wait for that to kick in a bit (usually reading in bed or sitting in a very comfortable chair -- with coffee), before even thinking of walking around much. Re the menthol rub, I believe you can use this up to 4 times daily. I only use it occasionally, but would probably benefit from using it more, such as every day as soon as I'm out of bed. The rub can also take the edge off from when, say, my first 2 Tyl. 2s start to wear off & before 2 more actually kick in, also when I take a single Tyl. 2 before sleep at night. So...that's about it. (At least all this got me my life back!! And it took me quite a while to get these pain meds. all figured out, what works for me.) When I first get up in the morning, without taking my meds first, I am kind of bent over & hv a lot of the all-over muscle pain. After my 2nd round of 2 x Tyl. 2s, and after taking maybe 100 steps outside, to loosen up, I am walking erectly, with not a lot of pain. I do find I tire easily tho & make sure there's somewhere to sit down for a cpl. of mins., every 200 feet or so along my route, in case I'll really need to sit down, when I am out strictly walking. I have trouble standing in line for long at different places, & if I hv to do such standing & waiting, I bring a fold-up canvas camp seat with me, which has a light aluminum frame & is not too difficult to carry. I picked that seat up for $4 + tax one summer, at my nearest dollar store. I imagine regular massages, professional or otherwise, would be very helpful re pain, but the cost is prohibitive re professional massages, at least for me, unfortunately. So, if anyone else has any other tips or tricks, please do let me know!!!
Wow, mine isn't so bad then. I am also taking Lyrica it does help! I think the worst part of having fibro is that possible don't believe you hurt! They can't see anything wrong with us so they dismiss it. I am wondering if you can get a physical disability parking tag for fibro?
Order an alcat food sensitivity test and watch Dr. Osborne
@@prettywoman7776 it's yeast over growth take apple cider vinegar for at least 6 months to a year, cut out carbs and sugar
@@bluesky7704 Thank you!!!
@@prettywoman7776 had it for 10 years the prolonged issued then caused thyroid dysfunction and food allergies. So you may need to have thyroid tested and an alcat food sensitivity test also. Watch Dr. Osborne. Best of Luck
Everyone is saying it is not treatable, it is but takes a long time. Don’t forget vitamins and improve you diet, and exercises too with massage and swimming.I got my treatment outside uk and got my life back.
Merhaba ben nasıl bir tedavi süreci yaşadığını merak ediyorum da bir üniversite öğrencisi olarak bu ağrılarla yaşamak istemiyorum yardımcı olur musunuz bana
Teşekkür ederim şimdiden
Please share your experience
Been living with fibromayalgia for most of my adult life.
Take apple cider vinegar pills for 6 to 12 months it will kill the Candida yeast over growth causing your symptoms. Also eliminate carbs and sugar from the diet
FMS is an infectious arthritis.
I had fibromyalgia for over 30 years. I cured it with minocin alone very quickly. Minocycline will work but google for best manufacture to use. Many recommend the Torrent minocycline. I'd use bromelain with it to prevent antibiotic resistance. Nattokinase, serrapeptase is good for biofilm.
I've had fibromyaglia since 2015, officially diagnosed in 2020. It's been a long haul, but one thing I really hate seeing is that when things like this say, "more likely to affect women than men". It drives me nuts. I get it, women are more likely to have fibromyalgia, but men also get it too. I suffer from a few other health conditions too which greatly impact my pain threshold. I truly hope they can continue to do more research and find a cure, but most likely not in my life time, sadly. I'm 35 now.
Fibromyalgia is not psychological. Usually caused from severe trauma or infection
You are very right in there👍
I had fibromyalgia for over 30 years. I cured it with minocin alone very quickly. Minocycline will work but google for best manufacture to use. Many recommend the Torrent minocycline. I'd use bromelain with it to prevent antibiotic resistance. Nattokinase, serrapeptase is good for biofilm.
I have it. I have had 14 surgeries. The last two were in 3 years. Emergency neck surgery and kidney removal from cancer.
I had head pain since last October until now. I just diagnosed fibromyalgia by a professional . Even doctor don't know what I suffered.
How would you describe the head pain?i feel like my skull is in pain but no one belives there is such a think.
I have a painful on fire scalp called "burning scalp syndrome". There is very little information in the medical field. I finally have found something that works really well for me ... a small dose of an anti-depressant called Escitalopram 10mg. I am not a doctor and am only relating my personal experience. This experience has been a nightmare for me!!
Anti depressant didnt work for me
@@lilianacarmenprocopet1233 its feel like numb all the time, left side head, sometime pain, and this make me dizzy if under the sun. I think my spine behind my skull head had problem. My MRI scan for spine this September.
AND HOW ARE YOU NOW
Its just a part of me. The overall aches and pains are an everyday thing. AT 86 I have good days and bad days. I was diagnosed at 63.
I get it with hypermobility. Many doctors think people have MH or stress.
I was diagnosed with Fybro after my Dear Mum passed away...cld hardly walk the pain was horrific was walking with a walker had to sleep downstairs....Had bloods done was Anaemic had blood transfusion all pain went...was also deff in Vit B12 and Vit D....no more pain after...
Hj_hyxaez
I sympathize with all of you. I would like to know if anyone experiences extreme thirst because if the medication. I gave taken Lyrica, Percocets and Methicarbimol and get so dry that I can hardly swallow and tongue feels thick. Anyone else have that problem and if so, what helps? I drink copious amounts of water. I've tried lozenges, Biotine mouth rinse and nothing helps.
I drink so much water and at night I do need to have a cup next to me cause I get really thirsty. I stay away from sweets, fatty foods, and take my vitamins everyday. I take centrum A-Z so I can get all my vitamins. But everyday I'm in pain I sometimes just cry cause of the pain.
Just received my diagnosis yesterday after 15 years of being prescribed heavy drugs and thrown around drs. My family led to believe it was all in my head and that I was just an addict. I’ve been off all meds for 6 years now yet I don’t even know how to tell them because it feels like an excuse still. Ugh why do I need to be so broken ….
Please could you tell me how they diagnose it?
@@jill677 For me, I had to keep pushing and pushing for them to actually find out and treat what it is that is causing my pain. They always seemed reluctant, and I had to endure a lot of doctors trying to say my pain is impossible and that it's all in my head. It shamed me out of ever wanting to see them again, and I cried and broke down after almost every single interaction with a doctor for months. It's taken me 7 years for someone to finally give me a diagnosis in the last five months of incessantly pushing them, and I'm still not sure if it is just a cop-out or not to shit me up and make me leave them alone. There is no specific test for it. It's essentially the presence of chronic pain and other symptoms without a sufficient other diagnosis to explain them... But the trick here is having to test for all other conditions that could explain the symptoms, which I found doctors are highly unwilling to do. They made the call based off me continually complaining about my pain and after me pushing them into giving me tests like X-rays and MRIs to which verified I have arthritis and coalitions, tests for autoimmune disorder (especially for rheumatoid arthritis) that all came up negative, pushing for surgery to fix my coalitions for them to keep saying they don't want to do surgery to fix it, despite the steroid treatment proving that there is significant pain localized in the sites of coalition, that they don't think it will significantly reduce my pain, and having to actually get surgery to remove growths in my uterus after severe bleeding (which I also had to push for since they kept trying to chock it up to birth control) which pushed them into having to give me hormone level tests (before they only gave my thyroid tests which always came up negative) and a pelvic ultrasound which verified symptoms of PCOS. Before this I also had a diagnosis of IBS in my history and had undergone a lot of gastrointestinal tests, including endoscopy of my intestines (a procedure done under general or twilight sedation, but I declined sedation because they wouldn't even inform me that general anesthesia was an option if I was booked IN THE HOSTPITAL rather than in the OFFICE despite me continually requesting to be put under general anesthesia because I did not want to be conscious for this and am terrified of being high/ won't do twilight sedation- this whole process seemingly like it was done to try to manipulate me out of getting the procedure done in the first place and I still have unresolved trauma in how it was handled because this felt like surgical r a p e coerced by the refusal of information necessary for knowledgeable consent and pressure for the fear that without it I would die of what was making me sick), told to cut out gluten from my diet but without a diagnosis recorded as to why until I more recently pushed for the celiac blood test now that my country has it and came up negative for that. And it's already recorded that I have PTSD characterized by moderate to severe depression and moderate anxiety. Other symptoms were apparent in certain interactions with my doctors like the brain fog (fibro-fog). Essentially, this was a very long process of me learning not to really trust nor rely on my doctors and having to look into things myself to advocate for myself. And what sucks most is I at least got to do this under insurance. Most people don't have that blessing, especially since most of the time my doctors billed these as "unnecessary" tests. I had to keep IN WRITTEN RECORD my symptoms and my reasoning for pushing for these tests, and calling out their inaction, in order to stronghold them into actually doing anything else they risk a medical malpractice suit for negligence. The unfortunate part is these strongholds can make the doctors mark you as a difficult patient, and other doctors will see that, so I've gotten a lot of really poor treatment from doctors in the network for this. I'm actually a highly sensitive person with a burden complex, hence why I'd always break down crying after each interaction when I'd leave, but it was 7 years of chronic pain and nothing really being done and I'm so tired of it. I stayed in abusive situations for so long because I couldn't physically do the things I need to to support myself with this. I need to be able to get this under control to get out of those situation and have a life.
@@jill677 Sorry for the long rant. It's just a really long and frustrating process.
I love this information I have been suffering for years so much pain in my right lower back,my neck my back an my left elbow and now since I got covi is my fingers that hurt They are giving me pain killer and also injections but my sintomas got worse when its really cold or Iam going to gave my period.thank you for this.
Does your clitoris hurt?
I have been told I've had fibromyalga and lupus for 30 years. When I was first diagnosed many Drs had no idea what I was talking about so my rheumatologist became the only Dr I went to. It still seems strange to have something wrong with you that you or others don't really understand including Drs still.
Sorry from translator and longer :
THIS IS A FIBROMYALGIE :
I am an expert in fibromyalgia because I have had it for 40 years. I always had a good morale and I was the one who went up that of others. I always continued my activity; bowling, orthiculture, and painting because I have a college diploma (at home we say ''going to CEGEP'') 3 years in Commercial Design, Communications and Multimedia from 1980, when we did everything ''with a mitten''. ..I had a very big mononucleosis at 20 years old; I had all the lymph nodes swollen and the spleen on the verge of exploding...I had to spend 1 big month in bed without being able to hold a pencil. Once recovered (if we can say that) I was left with total exhaustion and a sore throat which persisted for 2 years as soon as the sore throat stopped, I had a kidney infection... never stopped. I went through 15 surgeries, and today I suffer from 17 various pathologies that are not related to my past surgeries. I had 2 children despite chronic fatigue and pain attacks ranging from moderate to severe, I did 2 and a half years of anti-gymnastics, I did 1 session of aquafit but nothing has ever improved my condition, no more than gluten-free diets etc....I was even a host family and at the same time as my children, I welcomed 23 teenagers into my home. I was suffering in silence but I didn't want to let go. I learned to manage everything based on my pain and fatigue. For a long time, I was treated as if I had a mental illness despite several therapies that always claimed the opposite. Finally in 2014, researchers from the Brooklyn University Hospital Center tested 2 groups of 400 people to whom they all passed a scan. Results: the group diagnosed with fibromyalgia had all the so-called “synchronized explosions” permanently in the area of the central nervous system and none in the other group. They understood that the central nervous system responds to triggers all the time and to do that, they had to find proof, so they performed biopsies in the hands (where there are the most noticeable triggers) in the 2 groups. It turned out that people expecting fibromyalgia had 100 times more nerve and blood endings (shunt) than the other participants in the non-fibro group. Since then, all the doctors who come out of universities know that it is a small fiber polyneuropathy and that this disease is located throughout the body and that the nervous system must respond to many more triggers than in a person. normal simply because of the amount of nerve endings. This also explains the large number of symptoms known for this disease. My doctor who studied in the US, France and Canada worked in a pain clinic and is always in contact with his colleagues and the majority of his patients are people with fibromyalgia. At 62 years old now, I have violent spasms of the arms, head and trunk and sometimes of the legs, but I also have episodes of convulsions which ''wake me up at night''; not always obviously but for my doctor, it proves the severity of my case, the most severe he has ever seen, as having neurological damage caused by fibromyslgia. Be careful, I don't want to scare anyone because a person can live with mild or moderate fibromyalgia all their life without ever getting as severe as me. Learning to live one day at a time is the best solution; there aren't really any others....at least there have never been any others for me. How to live with?
1.: You must first know how to recognize the first symptom of a crisis, which is the first for all crises. Once found, if this symptom is triggered, stop and rest with a muscle relaxant (immediately; do not let the pain set in because it will be more difficult to get rid of it.
2.: split your tasks because if one day you exceed your limit, you will wake up the next day and you will lose 2 or 3 weeks for the crisis to pass. Which does not mean doing nothing. You have to know how to dose. What obliges you dusting every room on the same day? Nothing. Split up everything you can. For example, gardening takes a lot so don't do the laundry on the same day. You get used to that.
3.: Do too in addition to the house chores, something you love, just to remember and reward you. And good luck for the rest. I was also part of a research program to counter pain with cannabis medical treatment so that the gouvernement recognizes its effectiveness and agrees to reimburse the treatments but all the research everywhere has not been successful because there is nothing conclusive in terms of calming the pain and moreover, that can lead you to depression and no longer living live your days because you are surely aware that it makes you ''vedge'' as most of those who consume it say. The only thing that in cannabis will help you in terms of pain is sleep, but it will be to the detriment of your days, relationships, etc. And finally, when you are well informed, it is easier to close the door on those who do not know anything and who judge you. And personally, I like to know the enemy before fighting against them.
I have tried one medication you mentioned here for my fibro but it didn’t help at all. Someone said to cut out carbs etc, that I believe is the right way as I have done this myself as well. I had some extreme stressors in my life that seem to have triggered it. Cutting all major stressors has been very helpful. But what have really helped me was the precursor to vit B3, NMN
Been suffering from this for years.
I had fibromyalgia for over 30 years. I cured it with minocin alone very quickly. Minocycline will work but google for best manufacture to use. Many recommend the Torrent minocycline. I'd use bromelain with it to prevent antibiotic resistance. Nattokinase, serrapeptase is good for biofilm.
Connie Hubbard is completely correct. My mother has fibromyalgia and I was diagnosed years ago along with my my cousin diagnosed with a autoimmune disease causing her not being able to go out in the sun . She completely changed her diet and the autoimmune disease went away .
I go on a fast called the Daniel Fast several times a year . Through going through this I have found , that eliminating sugars , processed foods, reds meats , and dairy had almost completely taken away all my fibromyalgia symptoms and IBS . Pain /soreness was gone , I slept better, bowel movement was normal. And lost weight which was great for my joints . There was other benefits as well but those were the major ones . It does work. Switched off to see and I feel awful again. So will say eliminating all that is hard but it is so worth it to feel better.
I have been living in hell for to fibro for the past 10 yrs . It has effected every single body organ. On top of that, not a single MD to help me.
I pretty much have all the symptoms plus gastric reflux before an attack. Amitriptyline has helped somewhat, and I'm testing vitamin k2 with some improvement. Presumably, as it removes calcium from veins and arteries, there is better blood flow. I have attacks occurring before it rains. A rheumatologist told me that the barometric pressure drops before rain and scar tissue expands. The Canadians have categorised fibromyalgia as an autoimmune disorder, and imaging of brains of sufferers is different from non sufferers.
I believe Genetics have a factor in fibromyalgia. I have had it my whole live but not to the extreme now. I have 2 male cousins and 4 female cousins just on my dads side same generation.
My mother and brother have it.
The pain everyday drives me crazy sometimes. The hardest part is to sustain myself. Working enough to make enough money to pay my rent and bills. I find it so unfair that it is so hard. Winter is coming now here in Spain. More humidity. And financially its just hard if you have so much pain.
Fibromyalgia, l suspect rheumatoid arthritis too as fingers getting slightly bent in one side, pain in fingers, wrists, joints.
Few days ago thumb got swollen, in pain and couldn't move it properly. Took two days to get the finger back to normal.
IBS that contributed greatly to an anal fissure as well. So when l feel little better in one area, other gets worse.
Could have 2, 3 max.. " normal? " days in few months. Poor sleep, sensitivity to light, food, chemicals, scents, anxiety... BUT
I strictly reject any medications although l am in pain.. and pain can be unbearable, but l am also stubborn as hell.
I just try to rest as much as possible and keep myself under tons of blankets. Some tears do fall down, won't lie.
With such a sensitive body and side effects of everything that l am forced to edure with, am afraid as hell to put it through heavy pills on top. I know l might live better with them BUT don't want to damage my body any further.. usually liver can suffer great problems when taking pills on a long run.
Also am afraid if l start to take anything, will feel such a relief that l won't stop taking stuff.. what a vicious cycle..
Sana I could definitely sympathize with you diagnosed at age 20 with Rheumatoid arthritis then Fibromyalgia then Candida then Epstein Barr Virus then IBS -C then Sygruen's Syndrome then anal fissures and just recently Tinnitus all in the last 45 years!
I had fibromyalgia for over 30 years. I cured it with minocin alone very quickly. Minocycline will work but google for best manufacture to use. Many recommend the Torrent minocycline. I'd use bromelain with it to prevent antibiotic resistance. Nattokinase, serrapeptase is good for biofilm.
It cures all forms of arthritis also.
Like many others writing here, I believe my fibro started in childhood due to severe childhood abuse, which resulted in PTSD. I'm 69 now and after a lifetime of being told there was nothing wrong with me, it was all in my head, given antidepressants, etc. I was diagnosed with immunodeficiency disease. Pretty much any organ I have left now is always on the verge of crisis.
I truly believe the most important thing I've done to help my pain levels and improve my quality of life is that I became a vegan. I started eating a low carb, highly alkaline, low fodmap diet (I spent months researching and compiling my food lists).
It has changed everything for me and improved my quality of life to the point that I can now hold down a much-needed part-time job. Food is the best medicine!
Each body is unique, so try to eat according to your own needs and pay attention to what works for you.
I got diagnosed with CPS (Chronic pain Syndrome). I have severe pain mostly on my legs seems to be the worst and throughout my body from head to toe. I also get neuropathy which is somewhat under control with Pregabalin. I get severe fatigue. I was diagnosed with UCTD and SLE based on symptoms. What's the difference btwn Chronic pain syndrome and Fibromyalgia? I also have Hashimotos.
Good question, I also have wide spread pain that started in 1st grade in my legs
Eventually my whole body became effected by pain. The leg pain being Restless leg syndrome? I took a couple major falls as a kid, I always wonder if that was the cause.
Good luck with your journey through these conditions.
honestly, unless someone is needing a certain label or diagnosis, it really doesn't matter. there's imbalance in the body which results in numerous conditions, symptoms, and disorders. As long as docs look at those symptoms and treat just that, the person will not get better. Everyone has root causes that they need to try and discover and work through to bring balance, which is when the healing starts. unfortunately, this can be quite a process and of course, is easier said than done. I'm in this process myself lol. I think everyone should first try to lay their foundation correctly. Then they can add to that foundation piece by piece. I personally think a strong foundation is your daily diet, regulating proper sleep patterns, and creating a healthy stress response. It sounds simple, but not so much. But when those 3 are in sync, that's when the healing will happen. My foundation is taking much longer than I thought lol.
Cold water swimming has helped enormously. Anti depressants aren't good if you have bi polar disorder. I take vitamins and magnesium. I can ameliorate my symptoms, but not get rid. One thing replaces another. The IBS and itchy skin are worse than pain for me.( My diet has been adjusted to accommodate both, but flare ups occur anyway.)
Hey great video!
Do you have any stats regarding the misdiagnosis of Fibromyalgia being mistaken for 'sscd' 'scds'.
I have recently been diagnosed with bilateral Scds, but I believe fully that my initial diagnosis of Fibro was completely wrong around 8 years ago.
The symptoms mimic each other completely.
✌️
What is bilateral Scds? Pls explain. Thank you
@@traceytansley1659 Hey Tracey, essentially it's holes in the vestibular system (inner ear) caused by either trauma or birth defect.
There are many wide ranging symptoms, some of which are quite disturbing.
Apparently this affects less than 1% of the population, but I feel there are close links to Fibromyalgia, and other such conditions as CFS.
It can wreak havoc on your senses, as the vestibular system is responsible for your balance and sensory processing.
Photo sensitivity, vertigo, nausea, widespread pain, fatigue, cognitive function, sleep issues, tinnitus, hearing loss, headaches, migraines and general sensory overloading.
Every case seems different, in my instance, I have holes on both sides requiring a craniotamy with plugging and resurfacing of the holes
I was only diagnosed in March, and confirmed using a CT scan of the temporal lobe area.
I was 'diagnosed' with Fibromyalgia many years back.
The specialist that saw me said he wasn't surprised that it had taken over a decade to diagnose me as doctors are simply not looking for it, being so rare.
My theory is that I'm not unique, and having read on the UK scds website, that SCDS is often misdiagnosed for conditions such as Fibromyalgia, meniers disease, chronic fatigue syndrome and even autism!
I felt that there are possibly people out there suffering with something that may not be as rare as the medical world believes, and I want to find more info on it and try to help raise some awareness.
I have always felt that Fibromyalgia has been a bit of a get out of jail free card for the medical World, when something cannot be explained, I believe there is a link between them. ✌️
@@jono_young thank you for the explanation Jono...much appreciated