I'm glad and a bit surprised that you recommend podcasts and online things to pass the time. We have to have something. I engage w/ comments quite a bit too. It gets me out of my negative headspace for a little while. There is a channel that tells people to get off all screen time to recover, and that's just bleak. We don't have the energy to do much, to get out much, or to do many house or cooking activities. To deny all screen time is to just exist and suffer and try not to let our minds just eat us alive.
Absolutely, finding ways to pass the time and engage in activities that can uplift your spirits is important during the recovery process. While it's true that excessive screen time can have negative effects, it's also important to find a balance that works for you. Engaging with online communities, listening to podcasts, and reading articles or watching videos that are positive and inspiring can be beneficial for your mental well-being. The key is to avoid excessive screen time that may lead to overstimulation and fatigue. Everyone's recovery journey is unique, so finding what activities help you stay engaged and hopeful is crucial. Keep doing what works best for you! 😊👍
Some really important points that you address here. I've had issues staying off screens and especially UA-cam even before CFS. However, back then, my fix was just to go outside for a run, to meet friends, or something of the like so I couldn't be on the screen. Those options are severely limited when you have CFS, so falling into the screen trap is so much easier. Lately, since I've been doing much better, I just go outside to sit on a bench and read and consciously decide not to take my phone with me. To me, that's also part of becoming more accustomed to being outside and in public again, be it just in a park.
This video was fantastic! You just spoke what I was intuitively doing. Im housebound not so much because of symptoms but my husbands work schedule. I listen to audiobooks, inspirational UA-cam videos, podcast ect. Everywhere there’s people telling you to get off the screens but I find it helps a lot. I can cook and clean (with pacing) while listening.
I tend to watch your videos on the “adjustment” days to pass the time to make sure I’m putting positive and hopeful things in my mind along with coloring Bible verse coloring books. I know it keeps me focused on the illness but it is a hopeful side and it makes me feel like I’m not alone. My mind definitely tries to make me feel isolated but I’m not in reality!
It's wonderful to hear that the videos bring positivity to your days! 🌟 Combining them with creative activities like coloring Bible verse books is a beautiful way to stay focused on hope and connection. 🎨📖🌈
Your videos have helped me understand being a workaholic got me to where I am. When I was exhausted, I listened to DIY videos and made 200+ loop woven potholders. 😂. Quilting is what I do for distraction, it helps me cope with perfectionism. There are no perfect scrap quilts. 😂
Lol, good to know 😂 I'm glad to hear that the videos have helped you gain understanding. Finding healthy outlets and hobbies, like quilting, can be a great way to cope with perfectionism and channel your energy into something enjoyable and creative. I'm happy that you found your 'thing'
Mmh, relatable!! It is scart when you get too much in your head and it is hard to even keep you occupied with something else because you are so completely full with stress, fear and thoughts
Exactly what I needed to hear now, since I'm noticing my brain is way too active with worry and selfcritic thoughts about the recovery process and what is possible for me to do to distract my mind which is not too much. And I know I'm doing my best and that it is a process, but confirmation is reassurance is always nice when it's a bit tough. I also really love it that you choose to not see any 'setback' as a setback, I also do that now! So that also strengthen my choice, BCS if you recovered, I can (from LC) 🍀🍀Gracias Miguel 😘💪🏽🙏🏽
I find doing art and crochet really helps me. It's mildly physical. It gets my mind off things and gives me something to look back at or even wear like a hat or earwarmers. Then I can learn more about it and grow my skill. If I'm up to it I'll paint which requires getting up and down to rinse brushes and stuff. When im stuck in bed I can listen to podcasts about it. Or watch videos about painting. Giving your mind somethig else to engage with.
Thank you for your videos. I have cfs for over a year, and I can now walk around the house, though I'm dizzy half the time. But I'm too afraid to walk up the stairs 2 floors and go outside by myself. So I'm pretty much stuck at home. I do go out once in one or two weeks, but it's only when I have to. Most of the time it's not that bad to go out and I return home with more energy. But sometimes after going out I feel sick, and because of this I'm still afraid to go out of my house, and I'm mostly staying at my bedroom, even though I know I'm capable of going out for a few minutes. The fear of having physical symptoms afterwards is too strong.
One of the most important things I've learnt from all of your videos is to not worry about symptoms. I try and apply this whenever I can, and if I feel myself worrying I just have to just put a halt on my mind and say stop. I am struggling with symptoms because I took a vitamin B supplement to try and help with fatigue but over time this gave me B6 toxicity. I am working to heal the toxicity but I am unsure what symptoms are from CFS and what are from toxicity.
I get like that too, trying to figure out which caused what. I'm hoping that all the side things will settle enough to not have to worry about that soon. Hope you get past it soon.
Thanks for another informative video Miguel. In my experience I hardly ever was bored and always thought it was a sign of energy returning. I was more house bound than bed bound though and could do some things like read so that could have made a difference? Visualising ,as you mentioned is a problem for about five percent of people like me who can't see images in their mind. Since watching a video on Heal with Liz on the subject I speak the visualisation which makes it a lot clearer in my mind. Your concept of leaning into some discomfort and an adjustment period afterward is something I wish I had heard of years ago. Reframing a setback as an adjustment seems so simple but is surprisingly effective. It is a good counter to the more passive mindset that can develop with the booms and busts of CFS over a long time.
Absolutely, I'm glad you're able to take away some valuable things for my videos, especially reframing the setbacks as adjustment periods, because that's really what they are! Being more board is definitely a sign of energy returning because your brain actually has a space to process more things versus just focusing on surviving through symptom flareups. With this extra boredom, just make sure you're not overdoing activities and you're using whatever extra energy you do have to do things that are truly enjoyable for you. Try to do things because you actually enjoy them, not because you feel like you have to do them. This approach of doing things, you truly enjoy, will help stimulate the errors in your brain that will bring you back to normal and out of "survival mode".
Love that learning cognitive level is higher with own thoughts than a stimulus that takes the brain off thinking . Interesting. So with POTS symptoms, the longer I'm up, the harder it gets. Are you saying that 10-15 min it might get better if I'm responding well to it?
I have some videos that may help your situation and dealing with those pots symptoms, check them out. Hopefully these help! Heart Rate Issues: ua-cam.com/video/k67xEsLe11M/v-deo.html Internal Vibrations and Tremors: ua-cam.com/video/4wxdebRbbZA/v-deo.html
QUESTION I'm.newbie whose lost whose trying to rest and pace Due to being disturbed by sudden noise in my living environment (not my home) when im sleeping does having white noise playing in room ( block sudden noisd waking) and also earphones with relaxing music on.. is This resting my brain too. Sometimes i use Yoga Nidra or healing frequencies 433hz Am.i doing harm I'm currently bedbound
This is my story too…a year of staring at the walls and even though improving am still unable to be active and busy, the boredom and lonliness is too much to bear ❤️🩹❤️🩹
WANT TO SPEED UP RECOVERY? APPLY FOR OUR RECOVERY JUMPSTART PROGRAM ⬇
www.cfsrecovery.co/apply
I'm glad and a bit surprised that you recommend podcasts and online things to pass the time. We have to have something. I engage w/ comments quite a bit too. It gets me out of my negative headspace for a little while. There is a channel that tells people to get off all screen time to recover, and that's just bleak. We don't have the energy to do much, to get out much, or to do many house or cooking activities. To deny all screen time is to just exist and suffer and try not to let our minds just eat us alive.
Absolutely, finding ways to pass the time and engage in activities that can uplift your spirits is important during the recovery process. While it's true that excessive screen time can have negative effects, it's also important to find a balance that works for you. Engaging with online communities, listening to podcasts, and reading articles or watching videos that are positive and inspiring can be beneficial for your mental well-being. The key is to avoid excessive screen time that may lead to overstimulation and fatigue. Everyone's recovery journey is unique, so finding what activities help you stay engaged and hopeful is crucial. Keep doing what works best for you! 😊👍
@@cfsrecoverythe Problem is when everything is causing fatigue
Some really important points that you address here. I've had issues staying off screens and especially UA-cam even before CFS. However, back then, my fix was just to go outside for a run, to meet friends, or something of the like so I couldn't be on the screen. Those options are severely limited when you have CFS, so falling into the screen trap is so much easier. Lately, since I've been doing much better, I just go outside to sit on a bench and read and consciously decide not to take my phone with me. To me, that's also part of becoming more accustomed to being outside and in public again, be it just in a park.
This video was fantastic! You just spoke what I was intuitively doing. Im housebound not so much because of symptoms but my husbands work schedule. I listen to audiobooks, inspirational UA-cam videos, podcast ect. Everywhere there’s people telling you to get off the screens but I find it helps a lot. I can cook and clean (with pacing) while listening.
I tend to watch your videos on the “adjustment” days to pass the time to make sure I’m putting positive and hopeful things in my mind along with coloring Bible verse coloring books. I know it keeps me focused on the illness but it is a hopeful side and it makes me feel like I’m not alone. My mind definitely tries to make me feel isolated but I’m not in reality!
It's wonderful to hear that the videos bring positivity to your days! 🌟 Combining them with creative activities like coloring Bible verse books is a beautiful way to stay focused on hope and connection. 🎨📖🌈
Your videos have helped me understand being a workaholic got me to where I am. When I was exhausted, I listened to DIY videos and made 200+ loop woven potholders. 😂. Quilting is what I do for distraction, it helps me cope with perfectionism. There are no perfect scrap quilts. 😂
Lol, good to know 😂
I'm glad to hear that the videos have helped you gain understanding. Finding healthy outlets and hobbies, like quilting, can be a great way to cope with perfectionism and channel your energy into something enjoyable and creative. I'm happy that you found your 'thing'
Mmh, relatable!!
It is scart when you get too much in your head and it is hard to even keep you occupied with something else because you are so completely full with stress, fear and thoughts
So true!
Exactly what I needed to hear now, since I'm noticing my brain is way too active with worry and selfcritic thoughts about the recovery process and what is possible for me to do to distract my mind which is not too much. And I know I'm doing my best and that it is a process, but confirmation is reassurance is always nice when it's a bit tough. I also really love it that you choose to not see any 'setback' as a setback, I also do that now! So that also strengthen my choice, BCS if you recovered, I can (from LC) 🍀🍀Gracias Miguel 😘💪🏽🙏🏽
I find doing art and crochet really helps me. It's mildly physical. It gets my mind off things and gives me something to look back at or even wear like a hat or earwarmers. Then I can learn more about it and grow my skill. If I'm up to it I'll paint which requires getting up and down to rinse brushes and stuff. When im stuck in bed I can listen to podcasts about it. Or watch videos about painting. Giving your mind somethig else to engage with.
Thank you for sharing! 😊
Thank you for your videos. I have cfs for over a year, and I can now walk around the house, though I'm dizzy half the time. But I'm too afraid to walk up the stairs 2 floors and go outside by myself. So I'm pretty much stuck at home. I do go out once in one or two weeks, but it's only when I have to. Most of the time it's not that bad to go out and I return home with more energy. But sometimes after going out I feel sick, and because of this I'm still afraid to go out of my house, and I'm mostly staying at my bedroom, even though I know I'm capable of going out for a few minutes. The fear of having physical symptoms afterwards is too strong.
One of the most important things I've learnt from all of your videos is to not worry about symptoms. I try and apply this whenever I can, and if I feel myself worrying I just have to just put a halt on my mind and say stop. I am struggling with symptoms because I took a vitamin B supplement to try and help with fatigue but over time this gave me B6 toxicity. I am working to heal the toxicity but I am unsure what symptoms are from CFS and what are from toxicity.
I get like that too, trying to figure out which caused what. I'm hoping that all the side things will settle enough to not have to worry about that soon. Hope you get past it soon.
Thanks for another informative video Miguel. In my experience I hardly ever was bored and always thought it was a sign of energy returning. I was more house bound than bed bound though and could do some things like read so that could have made a difference?
Visualising ,as you mentioned is a problem for about five percent of people like me who can't see images in their mind. Since watching a video on Heal with Liz on the subject I speak the visualisation which makes it a lot clearer in my mind.
Your concept of leaning into some discomfort and an adjustment period afterward is something I wish I had heard of years ago. Reframing a setback as an adjustment seems so simple but is surprisingly effective.
It is a good counter to the more passive mindset that can develop with the booms and busts of CFS over a long time.
Absolutely, I'm glad you're able to take away some valuable things for my videos, especially reframing the setbacks as adjustment periods, because that's really what they are!
Being more board is definitely a sign of energy returning because your brain actually has a space to process more things versus just focusing on surviving through symptom flareups.
With this extra boredom, just make sure you're not overdoing activities and you're using whatever extra energy you do have to do things that are truly enjoyable for you. Try to do things because you actually enjoy them, not because you feel like you have to do them.
This approach of doing things, you truly enjoy, will help stimulate the errors in your brain that will bring you back to normal and out of "survival mode".
Screen time is my biggest enemy right now :D I got a lot new ideas and i will try listening to audiobooks or podcast for sure!
Samee
Another great video, I feel even clearer about my path back to health. Really cant say thank you enough.
You're so Welcome ❤️
Thanks Miguel...Good positive advice, as always..
My pleasure! You're so Welcome ❤️
Miquel ❤thank you to the moon 🌙 and back 🙏💞🥰
You're so Welcome ❤️ to the moon 🌙 and back 🙏
awesome video as always my friend.:) thank you:)
You're so Welcome ❤️
Have you had a CFS diagnosis? Your description/experience of its seems rather different from others...
OK I will try audio books. I definitely need to cut down screen time. Thanks Miguel
Yes, please try that.
You're most welcome!
I could be wrong on this but I think when the 'hypersensitve nervous system' is switched off the boredom etc kind of go naturally
The joy to actually do things increases
Do you have any ways of coping with seasonal affected depression? As in when there’s only 6 hours of daylight in winter
The Truth About Anxiety and Depression with CFS: ua-cam.com/video/drfaohkSVuk/v-deo.html
Bright light in the morning if you can tolerate it.
@@alicequayle4625 shame the sky has only been grey here for the past week
hi great video, for me it was important to learn to use less screen time. Thanks.
You're welcome! 🙌🏻
Love that learning cognitive level is higher with own thoughts than a stimulus that takes the brain off thinking . Interesting. So with POTS symptoms, the longer I'm up, the harder it gets. Are you saying that 10-15 min it might get better if I'm responding well to it?
I have some videos that may help your situation and dealing with those pots symptoms, check them out. Hopefully these help!
Heart Rate Issues: ua-cam.com/video/k67xEsLe11M/v-deo.html
Internal Vibrations and Tremors: ua-cam.com/video/4wxdebRbbZA/v-deo.html
@@cfsrecovery Hmmm I watched but they didn't really answer the question
QUESTION I'm.newbie whose lost whose trying to rest and pace
Due to being disturbed by sudden noise in my living environment (not my home) when im sleeping does having white noise playing in room ( block sudden noisd waking) and also earphones with relaxing music on.. is This resting my brain too. Sometimes i use Yoga Nidra or healing frequencies 433hz
Am.i doing harm I'm currently bedbound
ua-cam.com/video/deYPKBYfNpo/v-deo.html
Omg yessssssss 🙏🏼🙏🏼
🙌🏻
Sometimes it feels like my whole brain swells up and then i cant think of anything, any tips? With negative thoughts
How did you talk to people with so much fatigue? I can barely talk.
Please check this link. I hope it helps! ua-cam.com/video/NkmKxxAn9ss/v-deo.htmlsi=P4OtwH-dwllgdNuR
❣❣❣ Miguel
Thank you so much! 😊❤️
2023 & 2024 be like
👍😅
This is GOLD! Thank you Miguel from the bottom of my heart 🫶🏼🫶🏼🫶🏼
You're so Welcome ❤️
This is my story too…a year of staring at the walls and even though improving am still unable to be active and busy, the boredom and lonliness is too much to bear ❤️🩹❤️🩹