Interview With A Renal Medullary Carcinoma Survivor

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  • Опубліковано 25 лис 2024

КОМЕНТАРІ • 386

  • @paulkami
    @paulkami 3 роки тому +835

    HC, is a 26 year old man, presenting (pointing up) to the interview room, looking great.

  • @ballboys607
    @ballboys607 3 роки тому +1026

    I can't imagine the frustration of having to deal with hubris from a dismissive doctor while on death's door. Adding a broken healthcare system on top makes this infuriating to listen to.

    • @faanzeonlam3219
      @faanzeonlam3219 3 роки тому +12

      Can't agree more

    • @TheNasaDude
      @TheNasaDude 3 роки тому +18

      Isn't the doctor accountable if he downplays a patient illness?

    • @benjaminmcintosh857
      @benjaminmcintosh857 3 роки тому +6

      @@TheNasaDude also if they up-play it though, any misdiagnosis can be bad so when they're "downplaying" it they're usually just assuming something more common/likely

    • @ballboys607
      @ballboys607 3 роки тому +36

      @@benjaminmcintosh857 The problem is that urology should have had enough of the information they needed from the CT, so there wasn't any real excuse for them brushing off his symptoms. Not only that, he didn't even get to take a HIV test, the urologist just assumed he had it and left it at that.

    • @benjaminmcintosh857
      @benjaminmcintosh857 3 роки тому +4

      @@ballboys607 all true. I was commenting more generally, however.

  • @Mirandajoyceee
    @Mirandajoyceee 3 роки тому +403

    Dr. Tannir remembering the day he got the email 🥺.. that’s a quality doctor who takes his patients health personally. Respect to everyone especially Herman for speaking out

  • @musab.k.9870
    @musab.k.9870 3 роки тому +514

    Can't put my words to my feelings, seeing this interview with the patient himself telling his story instead of knowing him as yet another two-letter named patient in a case report.
    Bravo zulu, doctor.

  • @neo.3
    @neo.3 3 роки тому +505

    salute to herman and ofc to tannir

    • @OHOE1
      @OHOE1 3 роки тому +3

      Yes

  • @kaylaeichholz
    @kaylaeichholz 3 роки тому +498

    What a shit show. No person should have to deal with this crap. My heart goes out to Herman. Thank you for sharing his story. So happy to hear his story in his own words today

    • @RameshKumar-mv3jd
      @RameshKumar-mv3jd 3 роки тому +14

      "Shit show" was my first thought as well. The whole story about the urology department was infuriating. I'm glad HC had the other doctors, his sister, and Dr Tannir and his team on his side.

  • @Master_Petes_Theater
    @Master_Petes_Theater 3 роки тому +665

    I watched both your Chubbyemu and Heme Review reports and I'm astonished how perilously close this gentleman came to succumbing to this disease. How fortunate it was that he found the most knowledgeable physicians. Kudos to those docs who responded so quickly!
    Wishing him a bright and healthy future! 😊👍🏻👍🏻
    Thanks, Dr. Bernard! Stay well! 😊💕

  • @Carmen_Tatis
    @Carmen_Tatis 3 роки тому +312

    Goodness. This entire story is so frustrating. The doctors who dismissed him should be ashamed. And punished for dragging their feet. I’m glad HC was able to get the help he needed and is here to tell the story!

    • @Jitterbuck
      @Jitterbuck 3 роки тому +8

      And this is very much the norm and not the exception too sadly

    • @TheTooBig
      @TheTooBig 3 роки тому +1

      Well, to be honest, i am sure the doctors did not dismiss him out of spite. They work with what they got. Your anger is misplaced.

    • @HummingbirdCyborg
      @HummingbirdCyborg 3 роки тому +18

      ​@@TheTooBig, I mean, yes, there are systemic problems, but the urologists in this story absolutely dismissed his diagnosis. Even if they have a flawed system, they ignored obvious signs of metastasis.
      That he was taken more seriously by the internal medicine physicians at the same institution doesn't speak well to that urology department.

    • @Carmen_Tatis
      @Carmen_Tatis 3 роки тому +17

      @@TheTooBig HC did not indicate that the doctor even took a good look at his records and results and went straight to a STD diagnosis. how is this not frustrating? The ER staff gave hard evidence to support further evaluation and the doctor, on numerous occasions, didnt do their due diligence (as his cancer was progressing). did you even watch the video???

    • @linaash7424
      @linaash7424 3 роки тому +4

      @@TheTooBig That is a rather dumb assertion to make.

  • @acgm046
    @acgm046 3 роки тому +139

    This really makes me terrified of how many patients everywhere have been in the hands of negligent doctors. How literally a person's life is on the line because a medical specialist is unwilling to go further caring for their patients even if there's clear evidence that something is really wrong. And that is without considering bureaucracy and the hassles of begging to get health care.
    I'm glad he was able to get help and find someone to save his life. Dr Tannir was amazing.

    • @JaneDoe-ql7sc
      @JaneDoe-ql7sc 3 роки тому +5

      and especially, their lack of knowledge and expertise. they should be continuing their studies with the top medical journals/magazines, to keep up with new knowledge.

    • @adabillleon8749
      @adabillleon8749 3 роки тому

      @@JaneDoe-ql7sc ikr 😞

  • @sams8502
    @sams8502 3 роки тому +92

    Dr. Tannir is a true hero

  • @Meomeo-uv6fn
    @Meomeo-uv6fn 3 роки тому +188

    I'm happy for Herman but my heart breaks for the struggles to get proper care. My mom has undiagnosed pain and had 2 exploratory surgeries done but we still have no answers. I work in the medical field I understand the struggles for doctors but I'm still frustrated at the lack of proper care when they judge that you're not a priority. This is definitely a life threatening problem.

    • @tommys6596
      @tommys6596 3 роки тому +2

      where is the pain located? Wish your mom the best

    • @TheTooBig
      @TheTooBig 3 роки тому +4

      I appreciate that you understand the struggles. The doctors work with what resources they have. I get frustrated with people in the comments just straight out bashing the doctors.
      With that said, I sincerely hope your mother gets the treatment needed, much love towards her.

  • @whos_laurel
    @whos_laurel 3 роки тому +154

    The debt this man must have accumulated during all of this…so close to such a heartbreaking situation and I hope his life is better now. Thanks for covering the story

    • @tommys6596
      @tommys6596 3 роки тому +4

      i’d file bankruptcy and start fresh

    • @pawanyr360
      @pawanyr360 3 роки тому +5

      @@tommys6596 You can't get rid of student loans through bankruptcy.

    • @tommys6596
      @tommys6596 3 роки тому +5

      @@pawanyr360 yeah but he would have that debt regardless. I’m saying if the treatment was super expensive i’ll take the hit and be lucky to be alive

    • @SunnyWu
      @SunnyWu 3 роки тому +13

      A malpractice lawsuit to that super dismissive doctor, probably cover a lot of the debt. It seems there is very strong evidence to sue that doc for malpractice.

  • @k-isfor-kristina
    @k-isfor-kristina 3 роки тому +51

    I think that urologist was legit trying to kill him. Like scheduling all of these tests months out, probably hoping Herman would croak before the test would happen. Insane. I wonder if it's possible to sue someone who provides such bad "care"

  • @AlexSantos-ph4ew
    @AlexSantos-ph4ew 3 роки тому +37

    “I remember the day: April 22, 2012”. It gave me chills… after being so frustrated with the poor treatment Hermann received from his previous doctors, this was a breath of fresh air. Standing ovation to Dr Tannir, a true professional who cares for his patient wellbeing and his life!! And huge respect for Hermann who fought bravely and tirelessly and ended up becoming a “beacon of hope to RMC patients”. It’s so great we get to hear it from him!

  • @ianwhite4821
    @ianwhite4821 3 роки тому +98

    I sometimes get frustrated with the nhs but if it means avoid being treated like this young man I am glad we have it
    Big well done to dr tannir. Unlike the urology doctor this guys seems professional and interested in the patient

    • @anthroxu
      @anthroxu 3 роки тому +6

      Sometimes it also feels like where you live in the UK matters too. My friend in Cambridge has cancer and gets excellent care... But where I am, I fear I might be passed around.
      But at least we don't have to be indebted just to get treatment... Because without insurance HC is most undoubtedly still paying medical debts for his cutting edge treatment.

    • @ianwhite4821
      @ianwhite4821 3 роки тому +1

      @@anthroxu too true. I had a utheral stricture and received wildly different care depending on where I was.

    • @NunontheRun
      @NunontheRun 3 роки тому +6

      @Ian White: I feel the same way about the NHS and the Canadian Health system.. sometimes frustrated.. but boy.. when my dentist in the UK wanted me checked for oral cancer, I had a biopsy the very next week (it was fine..phew!) And when my mum in Canada was referred to a specialist after some blood work results - she was getting a bone marrow biopsy 2 days later, and was diagnosed with leukemia. When she opted for palliative chemo treatment - the treatment started that day. With socialized health care, the not so important stuff may warrant a wait - but if it matters - it gets done..

    • @FrenchLightningJohn
      @FrenchLightningJohn 3 роки тому +1

      here in canada we have a socialised healthcare and those thing still happens here, doctor give little care especially since they are overburden with work and are underpaid for their job, the governement don't care about your healthcare and will use anything to get money from you to get it in their pockets, at least dentist here are not socialised and we have good results with them, the worse is the governement always ''throw'' money at our healthcare and its never enough and always need more and thus always find a reason to tax us more to have more money for our ''healthcare''

    • @lanaberrington319
      @lanaberrington319 3 роки тому +3

      @@FrenchLightningJohn well... 53 year old canadian here, and that's not ever been my experience. Except that I've had terrible dental issues in the past because I couldn't afford the dentist.

  • @kfli06
    @kfli06 3 роки тому +156

    We need more stories like Herman to combat cancer. Truly inspiring !

    • @rdizzy1
      @rdizzy1 3 роки тому +8

      It didn't even need to be such a battle either, the insurance and healthcare system we have here in the US is utter bull shit. This happens to people all the time, people always mention how they need to wait forever to get appointments in countries with socialized medicine, but we already have to wait, especially for specialists here in the US with PRIVATE healthcare. (For an example, I had to wait 9 months for an initial appointment with a rheumatologist because I have rheumatoid arthritis, and that was only for an initial consult appointment)

  • @wendyamsterdam8482
    @wendyamsterdam8482 3 роки тому +81

    That urologist is the lowest of the low. Only interested when he could move this person to a different department
    He’s probably the one down vote.

  • @lunchbox1341
    @lunchbox1341 3 роки тому +60

    Wow, I gained so much more respect for Dr Tannir after this video, it clearly shows he cared about the future of this man a lot. True hero of this story.

  • @sanaishere18
    @sanaishere18 3 роки тому +88

    Your channel is how I plan to spend my little free time of my last year of university for my chemical engineering/mathematics program (and also applying for PhD programs) this year! I love these videos so much!

    • @pieTone
      @pieTone 2 роки тому

      Yeah the videos are very entertaining

  • @summerdais325
    @summerdais325 3 роки тому +146

    The fact that we don't have nationalized healthcare like other developed countries and most of our young adults have to choose not to go to college/uni or accumulate massive student debt speaks volumes about our priorities as a society.

    • @vloguidice3932
      @vloguidice3932 3 роки тому +40

      And one of the most common arguments against it is that nationalised healthcare would cause long wait times! As if we don't already have those.

    • @8lec_R
      @8lec_R 3 роки тому +36

      @@vloguidice3932 that is bullshit TBH. I live in a developing country, unless it's a serious health issue, public healthcare is very fast.
      Most people don't get very sick, the little problems form the majority of people who come to hospitals, and all those people receive care very quickly

    • @supra107
      @supra107 3 роки тому +14

      That's true capitalism for ya.

    • @candisham1978
      @candisham1978 3 роки тому +13

      Some people are still talking smack about the Affordable Care Act. I don’t see why, stories like these are proof of how broken our health care system was at the time he initially fell ill. While things are still not perfect, we have come a long way. I too became deathly ill due to a neglected tooth ache that developed into a systemic infection, which also caused my lymph node to grow so large, it was cutting off my breathing. Days prior, I was practically kicked out of the Emergency Room because I had no insurance. They refused to even give me antibiotics or pain meds before being discharged the first time. I was lucky I gave it another shot and traveled far to visit a different hospital, but by that time, I barely made it to the door before collapsing. Stories like these make me very angry, and bring back horrible memories. Happy things are changing.

    • @vloguidice3932
      @vloguidice3932 3 роки тому +7

      @@8lec_R I know it's bullshit:). I'm covered by the NHS as well as an American provider and while I'm lucky enough to have never had MAJOR health issues/injuries in either country, the wait times for the few appointments I've had in the US have exceeded 2 months.

  • @supra107
    @supra107 3 роки тому +41

    I love how Dr. Tannir is dressed like a true Texan. All he's missing is a white cowboy hat.

  • @MomemtumMori
    @MomemtumMori 3 роки тому +37

    You were asking recently in a poll what format the videos should be in. This set is perfect, high quality yt on the main channel, traditional interviews here is a win win.

  • @Sacredsnow2
    @Sacredsnow2 3 роки тому +18

    That urologist should be fired. If it was anyone else who wasn’t as persistent or as knowledgeable as he is, they would be dead.

  • @warmsteamingpile
    @warmsteamingpile 3 роки тому +13

    So glad that you survived America's wonderful health care system.

    • @warmsteamingpile
      @warmsteamingpile 3 роки тому +4

      @sneksnekitsasnek clearly we don't have the best health care system in the world.

    • @JM-hm6wn
      @JM-hm6wn 3 роки тому

      @sneksnekitsasnek They paying you to reply to every critic of the US?

  • @theJade
    @theJade 3 роки тому +33

    Dr Nizar, a true hero!

  • @tb1945
    @tb1945 3 роки тому +27

    I am a black female, 24. This has me terrified because the same thing happened to me about the back pain, possible kidney stones, and blood in urine. I’m actually terrified. My doctor told me it’s just because I’m on my feet. But it has not explained the blood in my urine. I think I’m gonna get a second opinion.

    • @HemeReview
      @HemeReview  3 роки тому +31

      yes please definitely get it checked out asap you're not supposed to have blood in your urine

    • @tb1945
      @tb1945 3 роки тому +8

      @@HemeReview he kept writing it off as my menstrual cycle when I was already off it two weeks prior to the appointment. I had blood in my urine for a good month. Its been awful

    • @mikebrigandi_
      @mikebrigandi_ 3 роки тому +1

      @@tb1945 Avoid all meat and dairy and eggs. eat fruits and veggies, grains and beans with antioxidants and fiber. Detox your body.

    • @craftygal4494
      @craftygal4494 3 роки тому +3

      Yes, please please do!

    • @JaneDoe-ql7sc
      @JaneDoe-ql7sc 3 роки тому

      @@mikebrigandi_ low protein, no yogurt, not too much beans, not too much grains. lactose free ice cream & half-n-half, cheddar cheese is ok, and glasses of apple cider or apple juice daily

  • @jonathonwilcoxson7778
    @jonathonwilcoxson7778 3 місяці тому +1

    I love watching this story, i am in almost the same boat LITERALLY...same symptoms before diagnosis. I am being treated at MD ANDERSON cancer center for this exaxt cancer (RMC) and have been for almost 16 months. My doctor's are very optimistic that i am on the outskirts of the disease. Seeing someone else surviving this is incredibly motivating and inspirational to my own journey. No one but other cancer patients can even imagine the mental treachery you go through when you understand this disease and its statistics. I am a fighter just like this man!

  • @mayureshpatilindia7594
    @mayureshpatilindia7594 3 роки тому +21

    am glad he found a way to win his battle

  • @imveryhungry112
    @imveryhungry112 Рік тому +1

    Its crazy because this guy looks healthy and fit as an athlete. And he still got sick. Life is so unpredictable and can be very scary.

  • @TheInstigatorZM
    @TheInstigatorZM 2 роки тому +4

    I pray that more doctors are as passionate for their profession as Dr. Tannir.

  • @miask
    @miask 3 роки тому +16

    I was shocked at the way Mr Connor was treated. Thank goodness he emailed Dr Tannir. Whatever happened to “first do no harm”?Blessings to Mr Connor; May you have many, many more happy and healthy years.

    • @HummingbirdCyborg
      @HummingbirdCyborg 3 роки тому +5

      @sneksnekitsasnek, he's lucky to have been such an educated man that he was able to question their care plan and realized how deadly the delays were. Had he been less educated and not found a physician that could help him, he would have died.
      The sad part is that for a case like him, there are others who died because they didn't know how to advocate for themselves. And even with his zealous advocacy and knowledgeability, he still had a hard time getting the help he needed.

    • @JaneDoe-ql7sc
      @JaneDoe-ql7sc 3 роки тому +3

      @@HummingbirdCyborg Right on

  • @iknowyouarebutwhatami1181
    @iknowyouarebutwhatami1181 3 роки тому +43

    Well done Herman. Glad it all worked out for you. And to Dr. Tannir, I doff my cap.
    What a great story. Gives people hope knowing things like this can still happen in these tough time.

  • @kazuesohma2425
    @kazuesohma2425 3 роки тому +28

    This story is such an indictment of the failure of the US healthcare system. I am really happy that he was able to make a turnaround, but I hate to think about all of those people who weren't able to do the same.

    • @domiro8156
      @domiro8156 3 роки тому

      SHAME ON YOU, MURIKA.... for having so little respect for your citizens!!!!

    • @youngchop7
      @youngchop7 2 роки тому

      seems like just a bad urologist to me

  • @jalanawheeler6720
    @jalanawheeler6720 2 роки тому +7

    I loss my 12 year old son Caleb to this horrible cancer.. Thank you for sharing your story ❤️

    • @catc8927
      @catc8927 2 роки тому +1

      I’m so sorry for your loss.

    • @kabo0m
      @kabo0m 2 роки тому

      @@catc8927 How did you get the Ukraine flag in your name?? When I tried Google Account said "Some characters aren't allowed." :(

  • @ТимурЯруллин-к5и
    @ТимурЯруллин-к5и 2 роки тому +4

    My mother 57yo was diagnosed with 4 stage sigmoid colon carcinoma, she have metastases in liver and lungs. At the time of this comment she at the hospital bed 1 day after the carcinoma was removed. I am really afraid that i will lose her, she is the only person i love more than anything. This video gave me hope, but deep down i know that she probibly will not survive it, coz it extremely rare to have such respond on chemo plus she is old. This comment is just my scream of despair. At least i want her not to suffer.
    Sorry everyone.

    • @kabo0m
      @kabo0m 2 роки тому

      *hugs* All you can do is be there by her side as much as possible and keep an eye and see how she is progressing -- if she is improving or not. My mother is only 13 years older than yours and even though I am the one with health issues, she started having health issues in the last few years and I know I would be devastated without her too. She is the one I am closest to. I do not know if you are religious at all but at Church just 2 days ago I heard something about knowing when it is time to let go and let her be in pain no more in heaven and not think about ourselves. I realized I was being selfish as I was only thinking how I would not know how to go on without her. She is my rock and my inspiration and my mentor and teacher and consoler. But I am hoping your mom will be okay and be in total remission. Anything can happen. I will pray for her and also for you for strength. Thank you.

    • @nadiner889
      @nadiner889 Рік тому

      My mother was diagnosed at age 55 with stage 4 colon cancer in 2020. She passed a year later. It has upended my entire life, and I feel so lost without her. I pray your mom is doing well.

  • @penguinwithwifi5569
    @penguinwithwifi5569 3 роки тому +20

    Thank you Dr.Bernard

  • @jenniferbannerman2986
    @jenniferbannerman2986 2 роки тому +4

    I lost my beautiful 10 year old boy to this horrible disease in 2010. It does my heart good to know there is hope.God bless you Herman.Thank you so much for sharing your story.

  • @nyanbinary1717
    @nyanbinary1717 3 роки тому +78

    Five months to schedule an MRI. I’m shocked but not surprised. When I needed scans, it was maximum a couple of weeks…because I had insurance and a doctor who advocated for me. I’m so very sorry it took so long for you to find someone who cared. I don’t think we can discount the role institutional racism played in this, too. American medicine is like, “A person of color without insurance? Meh, we have better things to do.” Disgusting.

    • @brokenneck
      @brokenneck 3 роки тому +14

      Agreed. I know they probably didn't want to mention any of this in the video, but it was extremely obvious how much racism played a part in almost killing a man.

    • @ahoam
      @ahoam 3 роки тому +10

      That one doctor's insistence that HC had HIV was giving off racist vibes too

    • @nyanbinary1717
      @nyanbinary1717 3 роки тому +5

      @@ahoam Hooooly shit yes.

    • @youngchop7
      @youngchop7 2 роки тому

      it didn’t play a role tho lmaoo

  • @rosehipowl
    @rosehipowl 3 роки тому +32

    I am disabled and have various uncommon conditions, so I have had my fair share of bad doctors. I have never had any doctors not take other doctors' notes/tests seriously, though. This is beyond just bad mistakes into willful ignorance and I hope that they at least learnt from this. I am so glad that you survived and you are able to talk about this, and I really hope that you (and Dr. Bernard) help to bring more attention to RMC so these preventable deaths can be prevented. There are a lot of doctors who seem to think of themselves as islands, like they're lone wolves and they are the only correct person because they know best. I have never found these doctors to be as good as the ones who spend time with me and correspond with other doctors from other departments/my GP. When doctors pool their knowledge together and you as the patient are part of that, it is so much easier to get the proper treatment. I think the old way of the doctor being the be all end all is going, which is good. Likewise, I would like to believe that the more "uncommon" diseases are being looked for more and recorded more. If there was more awareness, we'd probably realise that these things aren't as rare as previously thought.

  • @karankewat1.10
    @karankewat1.10 3 роки тому +40

    I was waiting for this 🌟 thanks doc! Amazing how things turned out, even more amazing to hear it from Herman and Dr. Tannir. God bless all.

  • @jesse_cantcook
    @jesse_cantcook 3 роки тому +4

    I hope he lives cancer free and I hope he lives a long and healthy life.

  • @KyleInOklahoma
    @KyleInOklahoma 3 роки тому +22

    *_This guy is my new hero. I could not have kept fighting as he did. God sure is good._* 🙏📿💙

  • @shellapoo7380
    @shellapoo7380 2 роки тому +2

    Thank God for this doctor and for the hospital that let his treatment begin with no insurance. It is so wrong that our medical system's default plan would be to push an uninsured patient to the side and potentially let them die without treatment because of money. LIFE is what matters, not money! I'm overjoyed for this man and his family, and so grateful for this doctor.

  • @smoupnhoize
    @smoupnhoize 3 роки тому +34

    Doctors have problems admitting they don't know, or aren't trained in something. It's horrible. Being uninsured, with a "rare" cancer, and being African American made things much harder I am sure. Glad you're still among us!

  • @MaltaMcMurchy
    @MaltaMcMurchy 3 роки тому +39

    Thank you Dr. B, you make learning fun! 👨‍⚕️

    • @jossieliu7997
      @jossieliu7997 2 роки тому

      @@andersonbrown3871 what do you get from saying this? Pleasure? You may be right but he still brings interesting cases for us, common folk, to learn about. I believe he's a pharmacist, so I'm sure he has more medical knowledge than you and I.

    • @jossieliu7997
      @jossieliu7997 2 роки тому

      @@andersonbrown3871 Med student but not a doctor.

  • @mariowiradjaja6583
    @mariowiradjaja6583 3 роки тому +5

    Herman, I guess it's blessing in disguise, because of your difficulty you finally met the good doctor

  • @ookamichigire123
    @ookamichigire123 3 роки тому +8

    When I first started the video in the main channel I was getting upset because I kept remembering the other video about the woman with the breast cancer. The sigh of relief i let out when he reach out to this doctor... and then the doctor responding and seeing he's made such a spectacular recovery!

  • @donaldmcronald2331
    @donaldmcronald2331 Рік тому +2

    It's insane that Herman's concerns were not taken seriously by professionals and that he wouldn't have been treated in time if it wasn't for Dr. Tannir. It's a shame that access to healthcare isn't a fundamental right in the US. I've seen cancer within my family and it's not too uncommon to mistake cancer symptons like cough for something like an allergy. We need more people like Dr. Tannir who actually care about patients, especially when the prognosis is typically death within just months.

  • @bc2647
    @bc2647 3 роки тому +28

    Dude...this is Awesome Content...thanks 🙏 for sharing ...you went Above and Beyond for this one

  • @kiyukikinjo
    @kiyukikinjo 3 роки тому +5

    This kind of treatment towards patients is actually something that Im taking a class over as a pre-med, and there is a BIG difference between doctors who lead with empathy and those who don’t. There is definitely a strange hierarchy between patient and practitioners in today’s medical care, and we need more doctor’s who listen and read medical narratives like this. I’m so grateful that doctors like Dr. Tannir are in practice, and I hope future generations close the gap in medical care between patients and doctors.

  • @mattmatthews1398
    @mattmatthews1398 3 роки тому +5

    My mom passed from cancer when I was only 19. For years doctors told her that it was always this or that or even psychosomatic but never put the pieces together. Add to that her inability to pay for outrageous medical costs for even simple tests. By the time she was finally diagnosed it was too late for her. The healthcare in this country is fundamentally broken and unfortunately it feels like some medical professionals have a total lack of empathy.

    • @pooplenepe59
      @pooplenepe59 2 місяці тому

      not only is health care bad, but too many doctors are sexist morons, even the women doctors

  • @tamlovr7624
    @tamlovr7624 3 роки тому +8

    So glad he recovered so well. Thanks to Dr. Tannir. There are still people with a big heart❤️

  • @MoussaHess
    @MoussaHess 3 роки тому +15

    Thank you so much Dr Bernard.

  • @davebellamy4867
    @davebellamy4867 3 роки тому +6

    So glad to see this man alive and well.

  • @lvteachme973
    @lvteachme973 3 роки тому +12

    Amen. Glory to God. Blessed Herman with loved ones and the best doctor to provide treatment. I am so happy for Herman.

    • @JaneDoe-ql7sc
      @JaneDoe-ql7sc 3 роки тому

      me too! happy for him and for his mom too! and for dr. tannir! :-)

    • @domiro8156
      @domiro8156 3 роки тому +2

      Your ridiculous god did NOT help Herman..... HUMAN BEINGS, working in the medical field DID cure him, thanks to their scientific knowledge, their efforts and their good will.... NOT your imaginary clown in the sky!!!!!!!

  • @Rosalies_
    @Rosalies_ Рік тому +1

    His despair is contagious-what an incredible case to make it through.

  • @kcnl2522
    @kcnl2522 3 роки тому +12

    I like this kind of interview with the patient video format. Keep up!

  • @karifredrikson8492
    @karifredrikson8492 2 роки тому +5

    I’m happy for you, Herman. You went through so much but your Dr was on your side all the way. And your Strength of Character sustained you!

  • @eonni94
    @eonni94 3 роки тому +14

    This is an amazing video! Big props to Connor for telling his story and helping educate clinicians on renal medullary carcinoma. Also as clinicians we need to model ourselves on Dr Tannir, he is truly an inspiration.

  • @maryprantephd6736
    @maryprantephd6736 3 роки тому +13

    Yes!!! Thx, Dr Bernard! So very cool!💖

    • @maryprantephd6736
      @maryprantephd6736 3 роки тому +3

      A cautionary tale: Knowledge is powerful, yet strong advocacy/self-advocacy may be required. So glad for the positive outcome!💖

  • @adisop1
    @adisop1 3 роки тому +9

    2.3 cm mass in my neck ( lymph node under my jaw) - ultrasound in 4 months and ENT follow up in 7. The American Medical System with all of it's gaps ( not the doctors, nurses and staff that DO care ) is absolutely terrible.
    Happy to hear you were able to make it though this presumably incredibly difficult time in your life.

    • @rdizzy1
      @rdizzy1 3 роки тому +1

      Makes no sense too because many specialist doctors have ultrasound machines IN THEIR OFFICE, they can literally do one with the initial appointment right then and there.

    • @adisop1
      @adisop1 3 роки тому

      @@rdizzy1 agreed. Well, when I was with Keiser P in CA I never had any of the issues like I do here in Vegas. Most people I know have horror stories about the medical facilities and systems here. Another example is that my wife who has lupus had to see a new rheumatologist when her insurance changed, It wasn't by choice, and it took 8 months just to have the first visit. I don't know if it's lack of doctors or just a lack of adequate care.

    • @adisop1
      @adisop1 3 роки тому

      @@rdizzy1 also getting into see a specialist is often what takes so long. It took me 4 months just to get in to see my ENT the first go round.

    • @nono-fb8tr
      @nono-fb8tr 2 роки тому +1

      4.8CM mass on the left lobe of my liver. "Presents as non cancerous" despite my insistence that it does indeed cause pain, anything under 5cm that presents as non cancerous gets "monitored" rather than treated or biopsied even. terrifying because if it develops and is cancerous then I had 6+ months of knowing its there and doctors not doing anything.

  • @JaneDoe-ql7sc
    @JaneDoe-ql7sc 3 роки тому +3

    What a brilliant and eloquent young man, and his mother and sister, too :-) their family's intelligence in the midst of all the Urology incompetence made me mad & sad! Many of us have been there. I was impressed by how the young man visited a message board and noticed the good expert doctor's name 3 times, and wrote to him. I was also impressed that the doctor is such a good person and helped the young man, and they accomplished the miraculous. I'm so very happy for the mother, to have her beautiful son after all her nurturing and work to raise such a great kid!

  • @redhawkmillenium
    @redhawkmillenium 3 роки тому +20

    Fantastic content for the heme review channel, very informative and enlightening.

  • @lolgalit
    @lolgalit 3 роки тому +11

    To think he had to wait for so long for a doctor with cancer that spread and then be denided by the doctor?! That is horrible! And he survived it all! Also - it is foolish to think that you cannot get cancer because young and healthy - babies get cancer as well so no one safe. Best think is to go to doctor to get checked out and not wait

  • @xxxstalked4divorcerecovery224
    @xxxstalked4divorcerecovery224 3 роки тому +3

    Yes! He is so brave! Right now we have so many people suffering because physicians are overwhelmed and unable to focus. Thank you for your example of courage.

  • @kabo0m
    @kabo0m 2 роки тому +4

    I am so glad to have learned about Herman Connor's story even though I have never had cancer. I had looked up kidney-related stories on ChubbyEmu's UA-cam channel since I am a 3-time kidney recipient (since they don't last forever) and have heard that some kidney patients could get misdiagnosed when it comes to cancer. I know I had gotten misdiagnosed locally for multiple abscesses and when another hospital did emergency surgery on me when they correctly diagnosed me they said I would have died. Things are different in Canada. I was just lucky that I could leave my local hospital and travel a couple hours to my transplant hospital which is a teaching hospital and that in Canada I have coverage as it is not like in the USA. But it upsets me when anyone is misdiagnosed or disregarded and could die from the doctor or medical team shrugging the patient off. So this story of Herman Connor's really interested me. Thank you ChubbyEmu for talking about this on both your channels.

  • @RWAsur
    @RWAsur 3 роки тому +4

    Thank you for speaking out, gentlemen, and Mom.

  • @TheNewMissyJ
    @TheNewMissyJ 3 роки тому +7

    I’m so glad you are sharing a story like this. Many people have a similar story, including myself, where they are neglected in the healthcare system. Whether it is because the patient is uninsured or if it’s the patient’s background (race, etc.) this is a real issue. Herman is a great example of self-advocacy but we need these stories for people who don’t know their options. You can seek a second opinion, you can research beyond what your provider tells you if it doesn’t feel right. I also thank you as someone with sickle cell trait who had no idea of these risks.

  • @HappyBlite
    @HappyBlite 3 роки тому +8

    Awesome idea for content and a beautiful way to portray it, usually these interviews are dramatic and way over-edited for entertainment.
    This way of interviewing let's someone tell their story clearly and allow us to understand different illnesses and how they actually affect you as a person
    Can't wait for more!

  • @DerangedMerger
    @DerangedMerger 3 роки тому +4

    This is such a moving, thrilling and inspirational story. I can't stop myself from crying.
    Herman, I admire your exceptional bravery and persistence. I'm so happy, you have such a wonderful sister, who did everything she could, to help you. I'm so glad, you found such a wonderful and dedicated doctor, like dr. Tannir, who was able and willing to help you.
    This all gives me a bit more hope and strength to keep fighting my own illnesses.
    Thank you 💖

  • @dinadossym3098
    @dinadossym3098 3 роки тому +11

    Thank you Chubbyemu!! Always great videos

  • @leddmask
    @leddmask 2 роки тому +2

    If I’ve learned anything during my journey these last two years fighting with my own health problems and having a major surgery (successful surgery) it’s that you have to fight and be your own advocate or most doctors will slap a common diagnosis on you and send you out the door. I was told over a dozen times I had anxiety and needed to control my stress after going to the ER as well as my primary over and over complaining about difficulty breathing. Turned out I was having repeat pneumothorax on my left lung due to blebs (ballooned tissue) that had formed tearing when I was doing manual labor at work. Very grateful I raised hell and basically demanded they X-ray or ct my chest or else I fear something much worse than lung surgery could have happened to me. Your body will tell you when something is wrong, listen to it.

  • @jnorward
    @jnorward 3 роки тому +2

    If only more doctors were like Dr Tannir. Unfortunately, there are a lot of doctors that care more about money than they do their patients. That's why I found a provider that is certified in Functional Medicine. We should all have a provider that listens to us and cares about our well-being. I'm so glad that Herman and his sister never gave up!

  • @yazinuwa0123
    @yazinuwa0123 3 роки тому +11

    Thank you ❤️

  • @nathanielsmith2926
    @nathanielsmith2926 Рік тому +1

    The way he describes it it sounds like profit was more important than human life...oh wait. Living vs dying really does come down to poor vs rich. It's really sickening and horrible.

  • @OneSongCloser
    @OneSongCloser 3 роки тому +4

    It sickens me to think we have such dismissive/uncaring people in our healthcare system. They took an oath to do NO harm, when inaction can also be a death sentence, how can one stand by like that original urologist? Even worse off, it's extremely believable that this could be racially motivated, uncaring due to this patient's lack of insurance, or simply didn't care about his case/didn't want to admit he was unable to treat it properly. Absolutely despicable, and this is happening still in healthcare all the time. May Herman have a fulfilling life, and may this horrid behavior of healthcare workers be waned in the years to come.

  • @domm6812
    @domm6812 3 роки тому +3

    Same thing happened to my dad who was in his mid 60s. It was prostate cancer, but an apathetic doctor told him it was an STD ...without any investigation. A man in his mid 60s ...not sexually active ...assuming it was an STD. My dad was too trusting, and went along with it, and the cancer spread. Prostate cancer is very treatable and he could have been saved, but this doctor strung it out so long (over a year with no tests) that it had spread everywhere by the time the cancer diagnosis came through. DO NOT ASSUME ALL DOCTORS ARE COMPETENT. If the diagnosis sounds odd, ask questions and get a second opinion. I have a debilitating chronic illness myself and have lost count of the number of doctors who brushed me off as well, or have no clue what they're doing. Good doctors are around, but they take effort to find.

  • @mhurst5593
    @mhurst5593 3 роки тому +2

    Good you are here to tell your story Herman. Thank you Dr. Tannir.

  • @kslayurgf
    @kslayurgf 3 роки тому +2

    I'm thankful for this video and how it shows what kind of hoops people need to jump through to get proper medical care, and this is also why we need medical care for all in the United States

  • @MegaWheeler11
    @MegaWheeler11 3 роки тому +3

    God bless you and so happy to hear you got through it all. Gods Speed

  • @alperensengun6832
    @alperensengun6832 3 роки тому +5

    We need more medical professionals like Tannir

  • @Heather4238
    @Heather4238 2 роки тому +1

    This is such good news! So glad he lived!

  • @evaliu7181
    @evaliu7181 3 роки тому +1

    Bon courage, Herman! Thank you Dr Bernard for this interview--straight from the horse's mouth, as they say. Bravo! 👍👍👍👏👏👏💯💯💯🌹🌹🌹

  • @kim5754
    @kim5754 3 роки тому +1

    Omg I'm so sorry you had so much trouble with the urologist office. I know how frustrating it can be trying to get answers and you feel like you are getting nowhere. I'm glad you got the help you needed!!

  • @MaxPower-js1sk
    @MaxPower-js1sk 3 роки тому +2

    Herman and the Dr are amazing people. Outstanding! 👍

  • @user-pp6kd7ut4k
    @user-pp6kd7ut4k 3 роки тому +12

    Love these interview videos!!

  • @noroamingfees
    @noroamingfees 3 роки тому +2

    Omg the level of production is fantastic. I loved watching this and the story, unbelievable. Great job

  • @kungfucandy
    @kungfucandy 3 роки тому +1

    Who the hell gave this a thumbs down? Anyway, I am glad HC overcame this horrifying experience. This is just a bright, glaring, spotlight, one of MANY, on how badly we need to fix our healthcare system. Someone shouldn't have to move mountains to not only get a proper diagnosis but treatment as well. GOOD health insurance should be easily attainable and affordable for everyone, someone shouldn't have to wait months on end to see a specialist because they don't have insurance, as if they matter less somehow. Money is NOT more important than human life.

  • @MsEsquire83
    @MsEsquire83 3 роки тому +5

    This is inspiring, infuriating, terrifying, and everything in between. Especially because I have a similar flank pain that flares up on occasion.
    I get renal u/s every 6 mo. so I'd hope it'd be caught early if I ever developed it), as I have a litany of medical issues, including medullary sponge kidney disease, Nephrocalcinosis, renal tubular acidosis, and too many other conditions that effect my kidneys and everything else throughout my body.

  • @anxiousfoodperson8116
    @anxiousfoodperson8116 3 роки тому +3

    If I ever have an atypical condition, I hope to god I get a doctor like Nizar Tannir.

  • @Lillith8810
    @Lillith8810 3 роки тому +1

    It is so maddening the way uninsured people are treated in Healthcare situations. Healthcare shouldn't be a privilege for only those who can afford it.

  • @Tomi-qh5pv
    @Tomi-qh5pv 3 роки тому +5

    Came here to say --- chummyemu/Bernard your video quality is so good! Its so professional and clean im really impressed. And is that your own office your are interviewing them in????
    Damn you put so much work into these videos. 💜 ! Been here a long time, and its very cool to see your channel/s evolve and become better in every way. Seriously thank you for the amazing quality videos.

  • @TanathipSin
    @TanathipSin Рік тому

    Hats off to Dr.Tannir and congrats on surviving Herman. You guys are testimonies of human hope and what it means to not give up

  • @austinjanes2708
    @austinjanes2708 3 роки тому +9

    thnks chubbyemu for the great stuff

  • @samvimes117
    @samvimes117 3 роки тому +7

    I have no shame Saying that I almost started crying at the last line

  • @user-robitussin
    @user-robitussin 3 роки тому

    I'm just so glad to see him survived and looked absolutely healthy in this record.

  • @jackxiao9702
    @jackxiao9702 3 роки тому +2

    A single sociopath can make an entire health department terrible.

  • @thesaj1110
    @thesaj1110 3 роки тому +3

    That Dr is God sent!

  • @squarepotatoes
    @squarepotatoes 3 роки тому +1

    Gosh I don't get emotional but man
    What a crazy amount of things happen
    He could (cliche) but write a book on his thoughts and hope and journey

  • @iitool
    @iitool 3 роки тому

    I feel so blessed having access to free healthcare and capped price pharmaceuticals. Plus what an awesome Dr!