Interview With A Renal Medullary Carcinoma Survivor
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- Опубліковано 20 сер 2021
- @chubbyemu video: • A Man Found Blood In H...
A Brief Discussion On Renal Medullary Carcinoma: • A Drepanocyte Caused V...
Audio version of this video: anchor.fm/chubbyemu/episodes/...
Sickle Cell means Sickle Hemoglobinopathy, including Sickle Cell Disease, Sickle Cell Trait, Beta Thalassemia, Sickle Cell Hemoglobin-C
Contact Cora: / rmcawareness
Cora Facebook: / rmcsupport
A Man Felt Pain In His Back. This Is What Happened To His Kidneys.
IG me: / hemereview
Tweet me: / hemereview
Thank you Dr Nizar Tannir, Dr Pavlos Msaouel, Cora and Herman Connor, and Dr Loren Stagg
Production Assistant: Nick Brown
Renal Medullary Carcinoma is a sickle cell related kidney malignancy that is usually diagnosed in young patients (median age at diagnosis 28 years old). It is considered a rare malignancy but likely afflicts more people than prior literature suggests given that review of that literature shows patients more in line with Renal Medullary Carcinoma rather than Collecting Duct Carcinoma. 3 year overall survival of RMC is 3%. Upfront chemotherapy then surgery is the suggested treatment. Response rate to platinum based chemotherapies, gemcitabine, doxorubicin is 29%. - Наука та технологія
HC, is a 26 year old man, presenting (pointing up) to the interview room, looking great.
😂
Top Comment! 💖 A+++
Dr. Tannir remembering the day he got the email 🥺.. that’s a quality doctor who takes his patients health personally. Respect to everyone especially Herman for speaking out
Right on
I can't imagine the frustration of having to deal with hubris from a dismissive doctor while on death's door. Adding a broken healthcare system on top makes this infuriating to listen to.
Can't agree more
Isn't the doctor accountable if he downplays a patient illness?
@@thenasadude6878 also if they up-play it though, any misdiagnosis can be bad so when they're "downplaying" it they're usually just assuming something more common/likely
@@benjaminmcintosh857 The problem is that urology should have had enough of the information they needed from the CT, so there wasn't any real excuse for them brushing off his symptoms. Not only that, he didn't even get to take a HIV test, the urologist just assumed he had it and left it at that.
@@ballboys607 all true. I was commenting more generally, however.
Can't put my words to my feelings, seeing this interview with the patient himself telling his story instead of knowing him as yet another two-letter named patient in a case report.
Bravo zulu, doctor.
What a shit show. No person should have to deal with this crap. My heart goes out to Herman. Thank you for sharing his story. So happy to hear his story in his own words today
"Shit show" was my first thought as well. The whole story about the urology department was infuriating. I'm glad HC had the other doctors, his sister, and Dr Tannir and his team on his side.
salute to herman and ofc to tannir
Yes
I watched both your Chubbyemu and Heme Review reports and I'm astonished how perilously close this gentleman came to succumbing to this disease. How fortunate it was that he found the most knowledgeable physicians. Kudos to those docs who responded so quickly!
Wishing him a bright and healthy future! 😊👍🏻👍🏻
Thanks, Dr. Bernard! Stay well! 😊💕
yes
yes
yes
yes
Yes
Goodness. This entire story is so frustrating. The doctors who dismissed him should be ashamed. And punished for dragging their feet. I’m glad HC was able to get the help he needed and is here to tell the story!
And this is very much the norm and not the exception too sadly
Well, to be honest, i am sure the doctors did not dismiss him out of spite. They work with what they got. Your anger is misplaced.
@@TheTooBig, I mean, yes, there are systemic problems, but the urologists in this story absolutely dismissed his diagnosis. Even if they have a flawed system, they ignored obvious signs of metastasis.
That he was taken more seriously by the internal medicine physicians at the same institution doesn't speak well to that urology department.
@@TheTooBig HC did not indicate that the doctor even took a good look at his records and results and went straight to a STD diagnosis. how is this not frustrating? The ER staff gave hard evidence to support further evaluation and the doctor, on numerous occasions, didnt do their due diligence (as his cancer was progressing). did you even watch the video???
@@TheTooBig That is a rather dumb assertion to make.
This really makes me terrified of how many patients everywhere have been in the hands of negligent doctors. How literally a person's life is on the line because a medical specialist is unwilling to go further caring for their patients even if there's clear evidence that something is really wrong. And that is without considering bureaucracy and the hassles of begging to get health care.
I'm glad he was able to get help and find someone to save his life. Dr Tannir was amazing.
and especially, their lack of knowledge and expertise. they should be continuing their studies with the top medical journals/magazines, to keep up with new knowledge.
@@JaneDoe-ql7sc ikr 😞
Dr. Tannir is a true hero
Right on
I'm happy for Herman but my heart breaks for the struggles to get proper care. My mom has undiagnosed pain and had 2 exploratory surgeries done but we still have no answers. I work in the medical field I understand the struggles for doctors but I'm still frustrated at the lack of proper care when they judge that you're not a priority. This is definitely a life threatening problem.
where is the pain located? Wish your mom the best
I appreciate that you understand the struggles. The doctors work with what resources they have. I get frustrated with people in the comments just straight out bashing the doctors.
With that said, I sincerely hope your mother gets the treatment needed, much love towards her.
“I remember the day: April 22, 2012”. It gave me chills… after being so frustrated with the poor treatment Hermann received from his previous doctors, this was a breath of fresh air. Standing ovation to Dr Tannir, a true professional who cares for his patient wellbeing and his life!! And huge respect for Hermann who fought bravely and tirelessly and ended up becoming a “beacon of hope to RMC patients”. It’s so great we get to hear it from him!
The debt this man must have accumulated during all of this…so close to such a heartbreaking situation and I hope his life is better now. Thanks for covering the story
i’d file bankruptcy and start fresh
@@tommys6596 You can't get rid of student loans through bankruptcy.
@@pawanyr360 yeah but he would have that debt regardless. I’m saying if the treatment was super expensive i’ll take the hit and be lucky to be alive
A malpractice lawsuit to that super dismissive doctor, probably cover a lot of the debt. It seems there is very strong evidence to sue that doc for malpractice.
I think that urologist was legit trying to kill him. Like scheduling all of these tests months out, probably hoping Herman would croak before the test would happen. Insane. I wonder if it's possible to sue someone who provides such bad "care"
We need more stories like Herman to combat cancer. Truly inspiring !
It didn't even need to be such a battle either, the insurance and healthcare system we have here in the US is utter bull shit. This happens to people all the time, people always mention how they need to wait forever to get appointments in countries with socialized medicine, but we already have to wait, especially for specialists here in the US with PRIVATE healthcare. (For an example, I had to wait 9 months for an initial appointment with a rheumatologist because I have rheumatoid arthritis, and that was only for an initial consult appointment)
I sometimes get frustrated with the nhs but if it means avoid being treated like this young man I am glad we have it
Big well done to dr tannir. Unlike the urology doctor this guys seems professional and interested in the patient
Sometimes it also feels like where you live in the UK matters too. My friend in Cambridge has cancer and gets excellent care... But where I am, I fear I might be passed around.
But at least we don't have to be indebted just to get treatment... Because without insurance HC is most undoubtedly still paying medical debts for his cutting edge treatment.
@@anthroxu too true. I had a utheral stricture and received wildly different care depending on where I was.
@Ian White: I feel the same way about the NHS and the Canadian Health system.. sometimes frustrated.. but boy.. when my dentist in the UK wanted me checked for oral cancer, I had a biopsy the very next week (it was fine..phew!) And when my mum in Canada was referred to a specialist after some blood work results - she was getting a bone marrow biopsy 2 days later, and was diagnosed with leukemia. When she opted for palliative chemo treatment - the treatment started that day. With socialized health care, the not so important stuff may warrant a wait - but if it matters - it gets done..
here in canada we have a socialised healthcare and those thing still happens here, doctor give little care especially since they are overburden with work and are underpaid for their job, the governement don't care about your healthcare and will use anything to get money from you to get it in their pockets, at least dentist here are not socialised and we have good results with them, the worse is the governement always ''throw'' money at our healthcare and its never enough and always need more and thus always find a reason to tax us more to have more money for our ''healthcare''
@@FrenchLightningJohn well... 53 year old canadian here, and that's not ever been my experience. Except that I've had terrible dental issues in the past because I couldn't afford the dentist.
I love how Dr. Tannir is dressed like a true Texan. All he's missing is a white cowboy hat.
The fact that we don't have nationalized healthcare like other developed countries and most of our young adults have to choose not to go to college/uni or accumulate massive student debt speaks volumes about our priorities as a society.
And one of the most common arguments against it is that nationalised healthcare would cause long wait times! As if we don't already have those.
@@vloguidice3932 that is bullshit TBH. I live in a developing country, unless it's a serious health issue, public healthcare is very fast.
Most people don't get very sick, the little problems form the majority of people who come to hospitals, and all those people receive care very quickly
That's true capitalism for ya.
Some people are still talking smack about the Affordable Care Act. I don’t see why, stories like these are proof of how broken our health care system was at the time he initially fell ill. While things are still not perfect, we have come a long way. I too became deathly ill due to a neglected tooth ache that developed into a systemic infection, which also caused my lymph node to grow so large, it was cutting off my breathing. Days prior, I was practically kicked out of the Emergency Room because I had no insurance. They refused to even give me antibiotics or pain meds before being discharged the first time. I was lucky I gave it another shot and traveled far to visit a different hospital, but by that time, I barely made it to the door before collapsing. Stories like these make me very angry, and bring back horrible memories. Happy things are changing.
@@8lec_R I know it's bullshit:). I'm covered by the NHS as well as an American provider and while I'm lucky enough to have never had MAJOR health issues/injuries in either country, the wait times for the few appointments I've had in the US have exceeded 2 months.
That urologist should be fired. If it was anyone else who wasn’t as persistent or as knowledgeable as he is, they would be dead.
Wow, I gained so much more respect for Dr Tannir after this video, it clearly shows he cared about the future of this man a lot. True hero of this story.
So glad that you survived America's wonderful health care system.
@sneksnekitsasnek clearly we don't have the best health care system in the world.
@sneksnekitsasnek They paying you to reply to every critic of the US?
That urologist is the lowest of the low. Only interested when he could move this person to a different department
He’s probably the one down vote.
Right on
Your channel is how I plan to spend my little free time of my last year of university for my chemical engineering/mathematics program (and also applying for PhD programs) this year! I love these videos so much!
Yeah the videos are very entertaining
This story is such an indictment of the failure of the US healthcare system. I am really happy that he was able to make a turnaround, but I hate to think about all of those people who weren't able to do the same.
SHAME ON YOU, MURIKA.... for having so little respect for your citizens!!!!
seems like just a bad urologist to me
You were asking recently in a poll what format the videos should be in. This set is perfect, high quality yt on the main channel, traditional interviews here is a win win.
I pray that more doctors are as passionate for their profession as Dr. Tannir.
Dr Nizar, a true hero!
I am a black female, 24. This has me terrified because the same thing happened to me about the back pain, possible kidney stones, and blood in urine. I’m actually terrified. My doctor told me it’s just because I’m on my feet. But it has not explained the blood in my urine. I think I’m gonna get a second opinion.
yes please definitely get it checked out asap you're not supposed to have blood in your urine
@@HemeReview he kept writing it off as my menstrual cycle when I was already off it two weeks prior to the appointment. I had blood in my urine for a good month. Its been awful
@@tb1945 Avoid all meat and dairy and eggs. eat fruits and veggies, grains and beans with antioxidants and fiber. Detox your body.
Yes, please please do!
@@mikebrigandi_ low protein, no yogurt, not too much beans, not too much grains. lactose free ice cream & half-n-half, cheddar cheese is ok, and glasses of apple cider or apple juice daily
I was shocked at the way Mr Connor was treated. Thank goodness he emailed Dr Tannir. Whatever happened to “first do no harm”?Blessings to Mr Connor; May you have many, many more happy and healthy years.
@sneksnekitsasnek, he's lucky to have been such an educated man that he was able to question their care plan and realized how deadly the delays were. Had he been less educated and not found a physician that could help him, he would have died.
The sad part is that for a case like him, there are others who died because they didn't know how to advocate for themselves. And even with his zealous advocacy and knowledgeability, he still had a hard time getting the help he needed.
@@HummingbirdCyborg Right on
*_This guy is my new hero. I could not have kept fighting as he did. God sure is good._* 🙏📿💙
am glad he found a way to win his battle
I hope he lives cancer free and I hope he lives a long and healthy life.
I am disabled and have various uncommon conditions, so I have had my fair share of bad doctors. I have never had any doctors not take other doctors' notes/tests seriously, though. This is beyond just bad mistakes into willful ignorance and I hope that they at least learnt from this. I am so glad that you survived and you are able to talk about this, and I really hope that you (and Dr. Bernard) help to bring more attention to RMC so these preventable deaths can be prevented. There are a lot of doctors who seem to think of themselves as islands, like they're lone wolves and they are the only correct person because they know best. I have never found these doctors to be as good as the ones who spend time with me and correspond with other doctors from other departments/my GP. When doctors pool their knowledge together and you as the patient are part of that, it is so much easier to get the proper treatment. I think the old way of the doctor being the be all end all is going, which is good. Likewise, I would like to believe that the more "uncommon" diseases are being looked for more and recorded more. If there was more awareness, we'd probably realise that these things aren't as rare as previously thought.
Right on
Well done Herman. Glad it all worked out for you. And to Dr. Tannir, I doff my cap.
What a great story. Gives people hope knowing things like this can still happen in these tough time.
My mother 57yo was diagnosed with 4 stage sigmoid colon carcinoma, she have metastases in liver and lungs. At the time of this comment she at the hospital bed 1 day after the carcinoma was removed. I am really afraid that i will lose her, she is the only person i love more than anything. This video gave me hope, but deep down i know that she probibly will not survive it, coz it extremely rare to have such respond on chemo plus she is old. This comment is just my scream of despair. At least i want her not to suffer.
Sorry everyone.
*hugs* All you can do is be there by her side as much as possible and keep an eye and see how she is progressing -- if she is improving or not. My mother is only 13 years older than yours and even though I am the one with health issues, she started having health issues in the last few years and I know I would be devastated without her too. She is the one I am closest to. I do not know if you are religious at all but at Church just 2 days ago I heard something about knowing when it is time to let go and let her be in pain no more in heaven and not think about ourselves. I realized I was being selfish as I was only thinking how I would not know how to go on without her. She is my rock and my inspiration and my mentor and teacher and consoler. But I am hoping your mom will be okay and be in total remission. Anything can happen. I will pray for her and also for you for strength. Thank you.
My mother was diagnosed at age 55 with stage 4 colon cancer in 2020. She passed a year later. It has upended my entire life, and I feel so lost without her. I pray your mom is doing well.
Thank you Dr.Bernard
Thank God for this doctor and for the hospital that let his treatment begin with no insurance. It is so wrong that our medical system's default plan would be to push an uninsured patient to the side and potentially let them die without treatment because of money. LIFE is what matters, not money! I'm overjoyed for this man and his family, and so grateful for this doctor.
Five months to schedule an MRI. I’m shocked but not surprised. When I needed scans, it was maximum a couple of weeks…because I had insurance and a doctor who advocated for me. I’m so very sorry it took so long for you to find someone who cared. I don’t think we can discount the role institutional racism played in this, too. American medicine is like, “A person of color without insurance? Meh, we have better things to do.” Disgusting.
Agreed. I know they probably didn't want to mention any of this in the video, but it was extremely obvious how much racism played a part in almost killing a man.
That one doctor's insistence that HC had HIV was giving off racist vibes too
@@ahoam Hooooly shit yes.
it didn’t play a role tho lmaoo
My mom passed from cancer when I was only 19. For years doctors told her that it was always this or that or even psychosomatic but never put the pieces together. Add to that her inability to pay for outrageous medical costs for even simple tests. By the time she was finally diagnosed it was too late for her. The healthcare in this country is fundamentally broken and unfortunately it feels like some medical professionals have a total lack of empathy.
Herman, I guess it's blessing in disguise, because of your difficulty you finally met the good doctor
I was waiting for this 🌟 thanks doc! Amazing how things turned out, even more amazing to hear it from Herman and Dr. Tannir. God bless all.
To think he had to wait for so long for a doctor with cancer that spread and then be denided by the doctor?! That is horrible! And he survived it all! Also - it is foolish to think that you cannot get cancer because young and healthy - babies get cancer as well so no one safe. Best think is to go to doctor to get checked out and not wait
Thank you Dr. B, you make learning fun! 👨⚕️
@@andersonbrown3871 what do you get from saying this? Pleasure? You may be right but he still brings interesting cases for us, common folk, to learn about. I believe he's a pharmacist, so I'm sure he has more medical knowledge than you and I.
@@andersonbrown3871 Med student but not a doctor.
Doctors have problems admitting they don't know, or aren't trained in something. It's horrible. Being uninsured, with a "rare" cancer, and being African American made things much harder I am sure. Glad you're still among us!
It's insane that Herman's concerns were not taken seriously by professionals and that he wouldn't have been treated in time if it wasn't for Dr. Tannir. It's a shame that access to healthcare isn't a fundamental right in the US. I've seen cancer within my family and it's not too uncommon to mistake cancer symptons like cough for something like an allergy. We need more people like Dr. Tannir who actually care about patients, especially when the prognosis is typically death within just months.
It sickens me to think we have such dismissive/uncaring people in our healthcare system. They took an oath to do NO harm, when inaction can also be a death sentence, how can one stand by like that original urologist? Even worse off, it's extremely believable that this could be racially motivated, uncaring due to this patient's lack of insurance, or simply didn't care about his case/didn't want to admit he was unable to treat it properly. Absolutely despicable, and this is happening still in healthcare all the time. May Herman have a fulfilling life, and may this horrid behavior of healthcare workers be waned in the years to come.
I loss my 12 year old son Caleb to this horrible cancer.. Thank you for sharing your story ❤️
I’m so sorry for your loss.
@@catc8927 How did you get the Ukraine flag in your name?? When I tried Google Account said "Some characters aren't allowed." :(
I lost my beautiful 10 year old boy to this horrible disease in 2010. It does my heart good to know there is hope.God bless you Herman.Thank you so much for sharing your story.
When I first started the video in the main channel I was getting upset because I kept remembering the other video about the woman with the breast cancer. The sigh of relief i let out when he reach out to this doctor... and then the doctor responding and seeing he's made such a spectacular recovery!
We need more medical professionals like Tannir
Right on
I would be really interested to see a discussion of how racial bias in medicine may play a role in RMC cases and other areas of medicine. In the Chubbyemu video you mentioned that RMC is highly associated with sickle cell trait, which is most common in people of African descent. I wonder if the rarity of the disease combined with the ethnic makeup of most patients has contributed to it being under studied and under diagnosed. It seems that Herman was repeatedly dismissed by doctors which could have also been racial bias and bias against uninsured and unemployed people.
I agree, this would be an interesting topic.
Yep, colored dude, must be racism alright. No other explanation. Being a customer, black, white, blue, green, purple or otherwise, and simply not being able to pay the bill to the business you'd like to receive service from can't possibly be the main point in this day and age.
@@Noodles.FreeUkraine you missed the ‘it must be a STD’
@@Noodles.FreeUkraine Medical racism is definitely a genuine thing, and it could potentially have been a factor in why this man wasn’t able to initially get adequate treatment. It could also be a factor in why this type of kidney cancer is underresearched. Being dismissive like you are is not helpful. Why do you get angry when people bring up the ways in which race can potentially influence our systems? I feel like you didn’t even read the whole comment. You just saw the mention of race and freaked out.
@@nikolasscheeks Funnily enough, all you needed to see was black > not being treated in order to freak out. It seems to work both ways.
How ignoring the most obvious reason, not being able to pay, makes it past your filter and the rather remote one, racism, hits dead center will forever remain your secret.
Of course I'm quite sick of people pushing FOTM agendas. They're always overboard and seldom helpful.
How about directing the critique at the elephant in the room, being the one country in the West without universal health care? Would changing _that_ potentially help? I'd think so.
So glad to see this man alive and well.
Dude...this is Awesome Content...thanks 🙏 for sharing ...you went Above and Beyond for this one
This kind of treatment towards patients is actually something that Im taking a class over as a pre-med, and there is a BIG difference between doctors who lead with empathy and those who don’t. There is definitely a strange hierarchy between patient and practitioners in today’s medical care, and we need more doctor’s who listen and read medical narratives like this. I’m so grateful that doctors like Dr. Tannir are in practice, and I hope future generations close the gap in medical care between patients and doctors.
If only more doctors were like Dr Tannir. Unfortunately, there are a lot of doctors that care more about money than they do their patients. That's why I found a provider that is certified in Functional Medicine. We should all have a provider that listens to us and cares about our well-being. I'm so glad that Herman and his sister never gave up!
His despair is contagious-what an incredible case to make it through.
Amen. Glory to God. Blessed Herman with loved ones and the best doctor to provide treatment. I am so happy for Herman.
me too! happy for him and for his mom too! and for dr. tannir! :-)
Your ridiculous god did NOT help Herman..... HUMAN BEINGS, working in the medical field DID cure him, thanks to their scientific knowledge, their efforts and their good will.... NOT your imaginary clown in the sky!!!!!!!
2.3 cm mass in my neck ( lymph node under my jaw) - ultrasound in 4 months and ENT follow up in 7. The American Medical System with all of it's gaps ( not the doctors, nurses and staff that DO care ) is absolutely terrible.
Happy to hear you were able to make it though this presumably incredibly difficult time in your life.
Makes no sense too because many specialist doctors have ultrasound machines IN THEIR OFFICE, they can literally do one with the initial appointment right then and there.
@@rdizzy1 agreed. Well, when I was with Keiser P in CA I never had any of the issues like I do here in Vegas. Most people I know have horror stories about the medical facilities and systems here. Another example is that my wife who has lupus had to see a new rheumatologist when her insurance changed, It wasn't by choice, and it took 8 months just to have the first visit. I don't know if it's lack of doctors or just a lack of adequate care.
@@rdizzy1 also getting into see a specialist is often what takes so long. It took me 4 months just to get in to see my ENT the first go round.
4.8CM mass on the left lobe of my liver. "Presents as non cancerous" despite my insistence that it does indeed cause pain, anything under 5cm that presents as non cancerous gets "monitored" rather than treated or biopsied even. terrifying because if it develops and is cancerous then I had 6+ months of knowing its there and doctors not doing anything.
So glad he recovered so well. Thanks to Dr. Tannir. There are still people with a big heart❤️
I’m happy for you, Herman. You went through so much but your Dr was on your side all the way. And your Strength of Character sustained you!
I am so glad to have learned about Herman Connor's story even though I have never had cancer. I had looked up kidney-related stories on ChubbyEmu's UA-cam channel since I am a 3-time kidney recipient (since they don't last forever) and have heard that some kidney patients could get misdiagnosed when it comes to cancer. I know I had gotten misdiagnosed locally for multiple abscesses and when another hospital did emergency surgery on me when they correctly diagnosed me they said I would have died. Things are different in Canada. I was just lucky that I could leave my local hospital and travel a couple hours to my transplant hospital which is a teaching hospital and that in Canada I have coverage as it is not like in the USA. But it upsets me when anyone is misdiagnosed or disregarded and could die from the doctor or medical team shrugging the patient off. So this story of Herman Connor's really interested me. Thank you ChubbyEmu for talking about this on both your channels.
This is an amazing video! Big props to Connor for telling his story and helping educate clinicians on renal medullary carcinoma. Also as clinicians we need to model ourselves on Dr Tannir, he is truly an inspiration.
Thank you so much Dr Bernard.
What a brilliant and eloquent young man, and his mother and sister, too :-) their family's intelligence in the midst of all the Urology incompetence made me mad & sad! Many of us have been there. I was impressed by how the young man visited a message board and noticed the good expert doctor's name 3 times, and wrote to him. I was also impressed that the doctor is such a good person and helped the young man, and they accomplished the miraculous. I'm so very happy for the mother, to have her beautiful son after all her nurturing and work to raise such a great kid!
If I ever have an atypical condition, I hope to god I get a doctor like Nizar Tannir.
I like this kind of interview with the patient video format. Keep up!
Fantastic content for the heme review channel, very informative and enlightening.
Yes!!! Thx, Dr Bernard! So very cool!💖
A cautionary tale: Knowledge is powerful, yet strong advocacy/self-advocacy may be required. So glad for the positive outcome!💖
Thank you ❤️
A single sociopath can make an entire health department terrible.
It is so maddening the way uninsured people are treated in Healthcare situations. Healthcare shouldn't be a privilege for only those who can afford it.
Thank you for speaking out, gentlemen, and Mom.
Same thing happened to my dad who was in his mid 60s. It was prostate cancer, but an apathetic doctor told him it was an STD ...without any investigation. A man in his mid 60s ...not sexually active ...assuming it was an STD. My dad was too trusting, and went along with it, and the cancer spread. Prostate cancer is very treatable and he could have been saved, but this doctor strung it out so long (over a year with no tests) that it had spread everywhere by the time the cancer diagnosis came through. DO NOT ASSUME ALL DOCTORS ARE COMPETENT. If the diagnosis sounds odd, ask questions and get a second opinion. I have a debilitating chronic illness myself and have lost count of the number of doctors who brushed me off as well, or have no clue what they're doing. Good doctors are around, but they take effort to find.
Yes! He is so brave! Right now we have so many people suffering because physicians are overwhelmed and unable to focus. Thank you for your example of courage.
This is such a moving, thrilling and inspirational story. I can't stop myself from crying.
Herman, I admire your exceptional bravery and persistence. I'm so happy, you have such a wonderful sister, who did everything she could, to help you. I'm so glad, you found such a wonderful and dedicated doctor, like dr. Tannir, who was able and willing to help you.
This all gives me a bit more hope and strength to keep fighting my own illnesses.
Thank you 💖
Who the hell gave this a thumbs down? Anyway, I am glad HC overcame this horrifying experience. This is just a bright, glaring, spotlight, one of MANY, on how badly we need to fix our healthcare system. Someone shouldn't have to move mountains to not only get a proper diagnosis but treatment as well. GOOD health insurance should be easily attainable and affordable for everyone, someone shouldn't have to wait months on end to see a specialist because they don't have insurance, as if they matter less somehow. Money is NOT more important than human life.
Awesome idea for content and a beautiful way to portray it, usually these interviews are dramatic and way over-edited for entertainment.
This way of interviewing let's someone tell their story clearly and allow us to understand different illnesses and how they actually affect you as a person
Can't wait for more!
If I’ve learned anything during my journey these last two years fighting with my own health problems and having a major surgery (successful surgery) it’s that you have to fight and be your own advocate or most doctors will slap a common diagnosis on you and send you out the door. I was told over a dozen times I had anxiety and needed to control my stress after going to the ER as well as my primary over and over complaining about difficulty breathing. Turned out I was having repeat pneumothorax on my left lung due to blebs (ballooned tissue) that had formed tearing when I was doing manual labor at work. Very grateful I raised hell and basically demanded they X-ray or ct my chest or else I fear something much worse than lung surgery could have happened to me. Your body will tell you when something is wrong, listen to it.
I’m so glad you are sharing a story like this. Many people have a similar story, including myself, where they are neglected in the healthcare system. Whether it is because the patient is uninsured or if it’s the patient’s background (race, etc.) this is a real issue. Herman is a great example of self-advocacy but we need these stories for people who don’t know their options. You can seek a second opinion, you can research beyond what your provider tells you if it doesn’t feel right. I also thank you as someone with sickle cell trait who had no idea of these risks.
Thank god for people like Dr. Tannir. He’s a great man
The way he describes it it sounds like profit was more important than human life...oh wait. Living vs dying really does come down to poor vs rich. It's really sickening and horrible.
This is such good news! So glad he lived!
Hats off to Dr.Tannir and congrats on surviving Herman. You guys are testimonies of human hope and what it means to not give up
The medical system in America is fucked. They just let poor people die if they don't have insurance. Thank God he found that doctor willing to help
Thank you Chubbyemu!! Always great videos
Love these interview videos!!
Herman and the Dr are amazing people. Outstanding! 👍
That Dr is God sent!
This is why we need universal health care
God bless you and so happy to hear you got through it all. Gods Speed
Good you are here to tell your story Herman. Thank you Dr. Tannir.
Omg I'm so sorry you had so much trouble with the urologist office. I know how frustrating it can be trying to get answers and you feel like you are getting nowhere. I'm glad you got the help you needed!!
Omg the level of production is fantastic. I loved watching this and the story, unbelievable. Great job
This is inspiring, infuriating, terrifying, and everything in between. Especially because I have a similar flank pain that flares up on occasion.
I get renal u/s every 6 mo. so I'd hope it'd be caught early if I ever developed it), as I have a litany of medical issues, including medullary sponge kidney disease, Nephrocalcinosis, renal tubular acidosis, and too many other conditions that effect my kidneys and everything else throughout my body.
Yoo chubby, you're doing amazing work with these videos! I subbed to both channels
thnks chubbyemu for the great stuff
Came here to say --- chummyemu/Bernard your video quality is so good! Its so professional and clean im really impressed. And is that your own office your are interviewing them in????
Damn you put so much work into these videos. 💜 ! Been here a long time, and its very cool to see your channel/s evolve and become better in every way. Seriously thank you for the amazing quality videos.
Bon courage, Herman! Thank you Dr Bernard for this interview--straight from the horse's mouth, as they say. Bravo! 👍👍👍👏👏👏💯💯💯🌹🌹🌹
I'm thankful for this video and how it shows what kind of hoops people need to jump through to get proper medical care, and this is also why we need medical care for all in the United States
I have no shame Saying that I almost started crying at the last line