Post Herpetic Neuralgia: A Review and Journal Club

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  • Опубліковано 27 січ 2025

КОМЕНТАРІ • 116

  • @Nightowl1947
    @Nightowl1947 4 місяці тому +5

    I'm 77, I got Shingles three weeks ago, was diagnosed with a Bowel and Bladder prolapse just before that. Now I have PHN. My zest for life is gone, and well you know the rest.

    • @barbaradw9969
      @barbaradw9969 4 місяці тому

      I will be 66 in about 3 weeks. 3 weeks ago, I started with pain on my right hip. I had no clue what it could be from ? I don’t usually take anything for pain. I didn’t take anything until the third night when I had trouble sleeping. I already have trouble sleeping, so I will guess, it finally caught up to me. At my 3rd week, started to itch on my right buttocks. A few days later the lesions appeared, I already had an appointment with my Doctor that week, so I addressed it with her at that point. I had no clue what it was. Today I finished my MethylPrednisolone Pack. 6 day pack. I still have pain, burnin & itching. I can say, I have been extra careful to not scratch. Today, while driving, I didn’t go far, but I didn’t feel well. Also as I climbed bleachers at a Sports match I went to, I really got light headed. After listening to many of these Doctors on here, I had no clue on how long I could have pain. I can’t take Gabapentin. I do have a high tolerance for pain so hopefully I won’t need something to Strong. Can my husband get it from me ?

  • @christinaparkerbrown
    @christinaparkerbrown 2 роки тому +17

    I’m on year 3. Horrible constant sunburn pain. Also shooting pain at times
    - just awful.

    • @princessmariam7366
      @princessmariam7366 2 роки тому +3

      I must appreciate Doctor Ani John on UA-cam for helping me and my husband in getting rid of Shingles virus permanently after so many years in pain God sent you to save my family with your natural herbs and roots all thanks to you doctor you are a God sent keep saving lives sir I really appreciate all you have done for me and my family my God bless you richly sir🙏❤️

    • @SuperFacecloth
      @SuperFacecloth 8 місяців тому

      Me too. You are not alone.

  • @Kuulei265
    @Kuulei265 3 місяці тому +2

    I have had the Shingles TWICE. From what I was told because mine was along the Trigeminal Nerve it was very dangerous. All I know is I have the burning in my body sometimes so severe, I just want to jump out of my body. Nothing my Doctor has done helps. This has been at least ten years with him but a total of twenty plus years in increasing pain. I am going to give him this information.

  • @peowski1
    @peowski1 Рік тому +5

    Thank you for bringing attention to this very important subject. I visited the ER on 10/4/23 and all my tests came back negative. I was in terrible pain and the ER doctor said it could be Shingles, but I had no rash. It took 8 days for the rash to appear and by then the pain was off the charts. I could not get in to see a doctor right away, so I saw a PA who prescribed Valtrex and 600 mg per day of Neurontin. No relief was in sight. I was up nights crying and pacing for weeks. When I finally spoke with the doctor, she put me on Prednisone. Even though it been 3 weeks since the rash had appeared, I feel the doctors and PA did all the right things. I still have intermittent pain and constant allodynia from PHN, along my waist to my back. The Neurontin was making me sleep all day and I had a hard time waking up. I went off of it gradually on my own because my former doctor told me to stay on it. I have since changed doctors and she put me on a small does of Nortriptyline. Again, it was not well-tolerated, so she told me it was okay to stop. I can function to a certain point, but I become fatigued with physical activity, stress, and prolonged concentration. Still, I feel lucky. I am on a PHN community called Stuff That Works and people are still suffering greatly after many years.

    • @graceliljeblom1436
      @graceliljeblom1436 Рік тому +3

      OMG, I had the pain before the breakout as well. The pain is horrendous! I started Gaba pentin and just finish the prednisone. Today was so painful that it just stops your world.I pray my journey will not include continued PHN once the rash clears.

    • @saraf9081
      @saraf9081 4 місяці тому +1

      So sorry, hope you are better. I have shingles now. Pain is 6/10 neurotin just makes me sleep I don't feel relief. Wish I could get tramadol that works wonders. I am taking Valtrex. I am 50. Gd willing we should all get better. Unfortunately have to work. It's hard because covering the blisters makes pain feel worse but I try keep mind occupied

  • @JK-bu1gk
    @JK-bu1gk 2 роки тому +3

    Thank you Dr Karvelas and Dr Joves for making this video! I appreciate hearing all the information and timelines. I'm not out of the woods, yet, but what seems to have helped me the most are the Lidoderm patches you mentioned. I believe a key is starting the patches as soon as the scabs flake off. Also vitamins D3 and K2 that was on a video Dr Berg did on shingles seems to have helped a bit.

  • @suzannesarah9628
    @suzannesarah9628 7 місяців тому

    Thank you for the in depth discussion on both shingles and post herpetic neuralgia and differentiating the two. You touched on a few things I would’ve have known from a regular online search. Please post more on any new findings and treatments…you guys are great 👍 👍

  • @angelwingstn3392
    @angelwingstn3392 3 роки тому +11

    I have PHN now. This is a horribly painful condition. I am on a ton of medications. Have had three unsuccessful nerve blocks.

    • @SuperFacecloth
      @SuperFacecloth 8 місяців тому +2

      Three years for me. The meds made my life worse but everyone is different. Tried meds for three years and now I'm medication free. There are ways to mentally deal with certain levels of the pain but that doesn't mean it goes away, you can just learn to live with it. I couldn't learn to live with the medication and the pain.

  • @Ken-tu2sv
    @Ken-tu2sv Рік тому +2

    More about the after effects of the pain from shingles virus needs to be explained to the public. The adds on TV and the doctor's are not giving the total after effects of this virus.

  • @charlessmith263
    @charlessmith263 Рік тому +5

    So in Post Herpetic Neuralgia - the Zoster viral cells seem to have a long half-life (like radioactive materials like U-235 that have this half-life) which can cause the virus to be active and replicate nearly endlessly for up to 3 years after diagnosis.
    This pain is not your normal type of flank pain that comes from kidney stone problems. The pain of PHN itself can be very, very debilitating.

  • @xaviertaylor759
    @xaviertaylor759 2 роки тому +4

    Thanks for sharing - lots of useful information and promising research. I have recently started with PHN, and its a concern that it can last so long. I hope mine clears up sooner, rather than later.

  • @carolguthrie1792
    @carolguthrie1792 2 роки тому +3

    My mom is 93. She’s been experiencing extreme PHN due to shingles for 3 months now. She’s taking 600 mg gabapentin 3 x’s per day. It does help with the pain somewhat

    • @princessmariam7366
      @princessmariam7366 2 роки тому +1

      I must appreciate Doctor Ani John on UA-cam for helping me and my husband in getting rid of Shingles virus permanently after so many years in pain God sent you to save my family with your natural herbs and roots all thanks to you doctor you are a God sent keep saving lives sir I really appreciate all you have done for me and my family my God bless you richly sir🙏❤️

  • @lilianaordonez5474
    @lilianaordonez5474 2 роки тому +7

    I am going through shingles, and nhp but I refuse to take neurontin ( gabapantin) I read a lot of stories about it.

    • @joseflores38
      @joseflores38 8 місяців тому

      Use Pregabalin, dosage from 75mg to 150mg. It works. Tolerance is always a factor, up the dosage as medically recommended.

    • @SueRipley-f5m
      @SueRipley-f5m 5 місяців тому +1

      what have you read about the gabapentin? My husband is suffering form PHN since having shingles and now been about 10 weeks . Most advice seems to be about those who have the rash around their abdomen or back, He had it over his forehead eyebrow and behind his ear. Rash gone but still getting dreadful pain in his head and over his eye brow, top eyelid still dont look right and the gabapentin isn't helping much. Thankfully his 75 so no worries about trying to work. Must be dreadful for younger ones who cant work and have mortgages and or high rents to find.

  • @aliciaturnour5491
    @aliciaturnour5491 Рік тому +6

    I would like to hear about facial PHN in the left eye, scalp, ears with severe pain and itching burning nothing helps

    • @stevegcq
      @stevegcq Рік тому

      You probably have a

    • @stevegcq
      @stevegcq Рік тому

      disease called, 'Topical

    • @stevegcq
      @stevegcq Рік тому

      steroid withdrawal'.

    • @stevegcq
      @stevegcq Рік тому

      Look up some vids on it.

    • @stevegcq
      @stevegcq Рік тому

      I have to split the comment to get around the censorship algorithms.

  • @yvonnesheehan9079
    @yvonnesheehan9079 Рік тому +5

    My Father is 93 and is suffering with shingles pain 18 months now with no pain relief. He was never given a vaccine. He has had several neuro blocks but nothing has helped. Can anybody recommend something for this pain and sensitive skin please ? Ireland 🇮🇪

  • @sonergunalp4886
    @sonergunalp4886 2 роки тому +3

    please write drug names for pain treatment.

    • @princessmariam7366
      @princessmariam7366 2 роки тому

      I must appreciate Doctor Ani John on UA-cam for helping me and my husband in getting rid of Shingles virus permanently after so many years in pain God sent you to save my family with your natural herbs and roots all thanks to you doctor you are a God sent keep saving lives sir I really appreciate all you have done for me and my family my God bless you richly sir🙏❤️

  • @sylviagraham6183
    @sylviagraham6183 2 роки тому +4

    I’m 3 months in with PHN & desperate.

  • @energyworker2012
    @energyworker2012 Рік тому +1

    great info if i were a medical person - have had nerve pain from shingles I had over 3 years ago - where can i go to get info to get some releif

  • @robbrien8506
    @robbrien8506 9 місяців тому +1

    The earlier interventional spinal nerve block you mention, does that involve the trigeminal nerve, or for people with shingles on their upper regions such as neck or head? If not, is there a similar early interventional nerve block higher up the spine which replicates the success of the study you quote? Either way, I would be willing to take various nerve blocks asap because my preexisting, not awful trigeminal neuralgia was slammed into the pain and intractable itching stratosphere by getting a full blanketing of shingles, of course, in my neck, scalp and ear area, prime trigeminal nerve territory aggravated by some pinched nerves in the c2-c4 areas. So basically a tripling effect of 1. the pinched nerve, 2. preexisting trigeminal neuralgia amplified by 3. an incredibly severe case of ear, neck and head shingles with non stop zapping and scratch until you bleed pain.
    So far massive doses of pregabalin, carbomezapine, dilaudid, as well as lidocaine, cbd oil, even ketamine topicals have done nothing. A sub cutaneous nerve block was given in the upper c level spine, but nowhere near the nerve root. It helped a bit with the scratching the scalp to the bone bit, but didn't address the excruciating neck, ear and lower scalp pain that makes night time a sleepless nightmare. Still hoping for another block to address this area, but our major city has only one pain clinic that you have to wait 4 months to get into to get a pain block that takes 2 minutes to administer in an ER.
    I do keep 2 VERY graphic photos on my phone of my neck and ear and part of my face in full shingles lesions bloom, because when doctors are looking at you writhing in pain and your face, ear, and neck look pleasantly pink, post-lesion healing, and now appear barely touched by shingles, they need that jolt to see just HOW extensive and severe the shingles actually presented to appreciate the potential and likely severity of the current nerve damage. The irony is, that when I was in full grotesque lesions bloom a month ago for only a week, my pain was 1/100th of what it is now when my skin looks normal. I had no idea what lay ahead for me, and am now DESPERATELY trying to get the intervention I need before it's TOO late.

    • @EzeyimPascal
      @EzeyimPascal 9 місяців тому

      I understand how you feel believe me, I have been through this same pain before and finding the best cure for Herpes, Shingles (HSV1&2 ) contact Dr.Ani John via UA-cam channel he saved my life from this same virus I will always recommend him because he is the best herbal doctor in the world..

  • @tinahead8205
    @tinahead8205 2 роки тому +2

    I have horrible nerve pain from shingles.

    • @princessmariam7366
      @princessmariam7366 2 роки тому +1

      I must appreciate Doctor Ani John on UA-cam for helping me and my husband in getting rid of Shingles virus permanently after so many years in pain God sent you to save my family with your natural herbs and roots all thanks to you doctor you are a God sent keep saving lives sir I really appreciate all you have done for me and my family my God bless you richly sir🙏❤️

  • @teresacrispim8415
    @teresacrispim8415 2 роки тому +2

    My husband is having this now . Help

    • @princessmariam7366
      @princessmariam7366 2 роки тому +1

      I must appreciate Doctor Ani John on UA-cam for helping me and my husband in getting rid of Shingles virus permanently after so many years in pain God sent you to save my family with your natural herbs and roots all thanks to you doctor you are a God sent keep saving lives sir I really appreciate all you have done for me and my family my God bless you richly sir🙏❤️

    • @tsunduesouvenir6659
      @tsunduesouvenir6659 2 роки тому

      Dr ani John add please

    • @times461
      @times461 10 місяців тому +1

      How is he today,?

  • @joseflores38
    @joseflores38 8 місяців тому

    Use Pregabalin, dosage from 75mg to 150mg. It works. Tolerance is always a factor, up the dosage as medically recommended.

  • @adreanatolliver6082
    @adreanatolliver6082 Місяць тому

    I need help! It has been 13 years that I’ve suffered. I haven’t had 3 full bouts of shingles. I’m now on SSI, disability because of the severity of the nerve damage. I just had a small bout started last week. I’m popping Percocet every 5 to 6 hours because of the pain.
    I’ve been on Gabapentin as well as Lyrica. But both affected me badly with severe mental confusion.
    I’ve done hot treatments, cold treatment. Upper and lower epidurals. All to no avail.
    I’m so tired of living with this extreme pain. I haven’t been able to wear a bra in years. Somedays wearing shirts is barely doable. I’m stuck in bed most days. Can you guys help me? Take me on as a test dummy. Anything. I’m just so tired of being alive and not being able to live.😢

  • @sylviagraham6183
    @sylviagraham6183 2 роки тому +2

    I’ve been on about everything & so far no help.

    • @princessmariam7366
      @princessmariam7366 2 роки тому

      I must appreciate Doctor Ani John on UA-cam for helping me and my husband in getting rid of Shingles virus permanently after so many years in pain God sent you to save my family with your natural herbs and roots all thanks to you doctor you are a God sent keep saving lives sir I really appreciate all you have done for me and my family my God bless you richly sir🙏❤️

    • @SuperFacecloth
      @SuperFacecloth 8 місяців тому

      Same. I got off all the meds. "there was an old lady that swallowed a fly"...

    • @joseflores38
      @joseflores38 8 місяців тому

      Use Pregabalin, dosage from 75mg to 150mg. It works. Tolerance is always a factor, up the dosage as medically recommended.

  • @vasia8487
    @vasia8487 Рік тому

    A question I had shingles in my knee but the 3 months now is it in the opposite side of the body near my waist. Is it possible?

  • @TinaVaughn007
    @TinaVaughn007 2 роки тому +5

    My Dad is still suffering PHN after 4 years from the shingles rash. He has never worn a vest due to it touching his skin and only wears a shirt if he needs to go out. Is there any cure for the damaged tissue, would a back massage help at all?

    • @mohdshakir4613
      @mohdshakir4613 2 роки тому

      Hows father now

    • @TinaVaughn007
      @TinaVaughn007 2 роки тому

      @@mohdshakir4613 Still suffering phn using lidocaine patches to help. He got a serious attack.

    • @christinediecidue9741
      @christinediecidue9741 2 роки тому +1

      Hi friend dr Berg on u tube has a video on shingles. Rub the opposite side of the shingle area to relieve pain . I have shingles myself it does stop the pain for a little while but the pain comes back later on . Watch the video see what you think . God bless.i pray for him

    • @JK-bu1gk
      @JK-bu1gk 2 роки тому +2

      @@christinediecidue9741 I agree, massaging the mirror side did help short term. What seems to have helped me besides the Lidoderm patches is vitamins D3 and K2 that dr Berg suggested. God Bless.

    • @yvonnesheehan9079
      @yvonnesheehan9079 Рік тому +1

      My 93 old Dad is in the same pain and cannot take a shower as the spray of water is too sensitive on his skin. He cannot wear a vest either. I wish I could help him.

  • @123Goldhunter11
    @123Goldhunter11 Рік тому

    How about nerve burning?

    • @janicepaul9957
      @janicepaul9957 9 місяців тому

      B complex vitamin supplements Are good for the nervous system so I thought that would work to make sure we get enough the B complex vitamins to calm our nerves. The vitamins are for calming the body study. It don’t do it cause I tell you do it cause you agree what they’re saying and you want to try it Might help

  • @s.a.g.8131
    @s.a.g.8131 Рік тому +1

    I'm 36 and currently getting over shingles. I was diagnosed the first week of October and the pain is just getting worse and worse even after the blisters have sabbed over and the scabs have fallen off, there's still pain. I was wondering if it normal for the pain to still be present at this stage of recovery. My doctor just tells me to use topical lidocaine and ibuprofen but it doesn't do much to take pain away. Any thoughts?

    • @Raspberrycooki1
      @Raspberrycooki1 10 місяців тому

      You might have nerve pain and you need prescribed pain killers

    • @SuperFacecloth
      @SuperFacecloth 8 місяців тому

      Sounds exactly like me 3 years ago. Sounds like PHN. Has anything changed for you?

    • @s.a.g.8131
      @s.a.g.8131 8 місяців тому

      @SuperFacecloth I have since been diagnosed with PHN. The pain is still present and I take gabapentin and ibuprofen with topical lidocaine twice, every day. It's a bitch TBH.

    • @missrabbit777
      @missrabbit777 3 місяці тому

      I'm the same age going through the same thing I found traditional acupuncture really made a difference for the pain for me

  • @saraf9081
    @saraf9081 4 місяці тому

    Luckily 2 handsome Doctors to help us with neuralgia

  • @JacquelineMoore-u2f
    @JacquelineMoore-u2f 10 місяців тому

    I am to have spine surgery. Had shingles at age 13. Will the surgery reactivate the shingles?

    • @EzeyimPascal
      @EzeyimPascal 9 місяців тому

      I understand how you feel believe me, I have been through this same pain before and finding the best cure for Herpes, Shingles (HSV1&2 ) contact Dr.Ani John via UA-cam channel he saved my life from this same virus I will always recommend him because he is the best herbal doctor in the world..

  • @rachaelstewart3497
    @rachaelstewart3497 2 роки тому +2

    So it is hard I am 46, Covid in January 2021. Woke up end of May with horrible pain in back wrapping around my to my abdomen. After 6 CTs, 5 ultrasounds, 3 MRIs, 1 transvaginal ultrasound, I think 12 X-rays, 1 HIDA scan, 1 small bowel follow through, and colonoscopy. Oh no an upper GI. Over 11 months my ortho doc finally landed in this. Next week cortisone in T7-T9 (well between) I am hopeful. Still no one will give me he vaccine.

    • @rachaelstewart3497
      @rachaelstewart3497 2 роки тому +3

      Also it started in May I never had a n eruption of blisters or any skin irritations. The pain is positional, but also like a constant “stitch” at ALL TIMES! then 6 weeks late in July I developed the typical burning pain but in the opposite side and on the front with a very small eruption. But it was shingles. Lasted about 3 weeks then gone.

    • @emiliocabanisas94
      @emiliocabanisas94 2 роки тому

      @@rachaelstewart3497 my grandmother have this now. ang the burning pain attacks 20+ times e/in the 24hr. The duration of her pain attacks almost a minute

    • @chilidillo
      @chilidillo 2 роки тому +1

      @@rachaelstewart3497I am so sorry, I know the stitch well. Shingles CAN and DOES occasionally occur in adjacent dermatomes. I have PHN in T1 Dorsal left from the root to my armpit, but I am now developing the sores and numbness on T1 Right. My first outbreak was on L1; I have had 5 total outbreaks on 3 different dermatomes

    • @rhondarowe6447
      @rhondarowe6447 2 роки тому

      @Rachael Stewart me almost the same 47 multiple tests finally had emg test and sports medicine Doc diagnosed me. Countless tests U/S x 3 CT chest meds Cervical mri, xray, stat mammogram 3 times blood draws

    • @rachaelstewart3497
      @rachaelstewart3497 2 роки тому

      @@rhondarowe6447 how are you now? I turned 47 in August and am still struggling with the pain. The steroid shot didn’t work. It was actually done on my birthday. Doc set me up for a Ganglion root stimulator implant that was scheduled for last Monday, but insurance denied it. I have another appointment with him on Wednesday to discuss other things. Now on lyrica after being on gaba for months and having all kinds of memory issues. Memory is getting a little better but pain isn’t nearly as controlled. Gabapentin didn’t take it away completely but better than lyrica.

  • @chilidillo
    @chilidillo 2 роки тому +1

    I have a question, I have had 5 outbreaks over 8 years on 4 different dermatomes. My ignorance during the outbreaks led me to scratch and massage where the pain was. T1 back was the worst and I massaged it a lot. 2 months after the last time the sores healed, the PHN started, now 3 months after the PHN started, the pain has slowly moved from the root to the shoulder blade. Did I cause this?

  • @Pazymaspaz
    @Pazymaspaz 10 місяців тому +3

    OMG! This is so long winded especially for elderly people. So much unnecessary stuff.

    • @EzeyimPascal
      @EzeyimPascal 9 місяців тому

      I understand how you feel believe me, I have been through this same pain before and finding the best cure for Herpes, Shingles (HSV1&2 ) contact Dr.Ani John via UA-cam channel he saved my life from this same virus I will always recommend him because he is the best herbal doctor in the world..

  • @offorcosmas5713
    @offorcosmas5713 Рік тому

    Thank you Dr Aigboh , you did all the good work, your sincerity that brought me the trust and belief of getting cured, I'll be so happy to watch your business expand just as it has helped a lot of people with different sickness and viruses.~~~~~

  • @donmcdougall522
    @donmcdougall522 Рік тому +2

    I’m 84 nearly a year on Shingles …I had both the shots a year before… with all us old people getting it ,is there something wrong with the Med and Big Pharma System? Hope the Meds are enjoying the Billions. Too many uneducated people.Hope this is not a real conspiracy.

  • @donnapolk3528
    @donnapolk3528 11 місяців тому

    Would you please use words non medical professionals can understand

  • @jaenokhiria6693
    @jaenokhiria6693 2 роки тому

    I thank #Dr Ofenmu on UA-cam for your perfect and honest work. You were able to restore my health and sex life with the help of your Roots Herbs. I pray that God will give you more wisdom to continue your perfect works to help others as you have helped me.

  • @imasuenosaro9839
    @imasuenosaro9839 2 роки тому

    WOW😊, Doctor Ani John turned my life around with his supernatural Herbs cure remedies, I have been filled overwhelming joy😊🙏❤️

    • @noluthandonyandeni7882
      @noluthandonyandeni7882 Рік тому

      Name please.

    • @josphatmwale2952
      @josphatmwale2952 Рік тому

      What kind of herbs did you use, please help am in pain right now in bed because of the pain after shingles,may you help me please

    • @salvekirstenharesco
      @salvekirstenharesco Рік тому

      Hi ! Can you please give me the name of herbs are you using? It would be a big help for my Abba your medication. Thank you for the help

  • @elvinapetrashko1696
    @elvinapetrashko1696 Рік тому +1

    It would be nice if doctor did not read but use just regular speech

  • @offorcosmas5713
    @offorcosmas5713 Рік тому

    Thank you Dr Aigboh , you did all the good work, your sincerity that brought me the trust and belief of getting cured, I'll be so happy to watch your business expand just as it has helped a lot of people with different sickness and viruses.~~~~~