Epilepsy -- my personal experience | Daniel Pruce | TEDxGranVia
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- Опубліковано 6 чер 2024
- This talk was given at a local TEDx event, produced independently of the TED Conferences. TEDxGranVia 2014
Sense · Feel · Know · Act!
12 de junio de 2014 - Madrid
June 12, 2014 - Madrid (Spain)
Daniel Pruce's life changed when epilepsy appeared. In a diplomatic environment, authencity is a must and, as such, acceptance of this new condition is a journey that must be made.
As Deputy Head of Mission at the British Embassy Madrid, Daniel is responsible for the effective operation of the Embassy and deputising for the Ambassador in his absence. The Embassy and Network has a total of 233 staff. It includes the busiest consular operation in the world, a UKBA visa section and very active UKTI commercial section.
Previously he was Deputy Head of Mission at the British Embassy in Bangkok since August 2008.
Before that he worked in the Europe Directorate of the Foreign and Commonwealth Office (FCO) in London, heading the department that dealt with internal EU issues, including economic reform and the EU's institutions. He was also responsible for strategic communications on the EU, including the Lisbon Treaty.
From 2004 until 2005 Daniel was the Programme Director of the FCO's change programme (the "Organisation Project"). This included restructuring the FCO in London and overseas.
Daniel was seconded to the Prime Minister's Press Office in 10 Downing Street from 2002 to 2004, responsible for briefing journalists on foreign, defence and development issues and accompanying the then Prime Minister Tony Blair on his visits overseas.
He has twice worked in the UK's Permanent Representation to the EU in Brussels. First dealing with the closing stages of the GATT Uruguay Round negotiations (1993-1996), then as British Spokesman on EU issues from 1999 to 2001.
Daniel was seconded to NATO HQ during the Kosovo crisis in 1999. During this period Daniel also spent time in Macedonia, working with the NATO communications team.
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I hate my epilepsy 😟 Im not having seizures anymore but the ever lasting effects never ever go away... If any one reading this has a loved one with epilepsy please for the love of God don't give up on that person....
Thank you for writing this. I feel for you. I had 4 seizures and I have been diagnosed with Eplilectic Seizures at age 37 0f 2021. 😢😢😢😢
@@Amber-vb9he just had my first seizure today and now diagnosed with epilepsy at age 28, year 2022
Thank you for expressing yourself.. I am having this condition for close to 50 years, medication still going on and no sign of getting rid of it. All in all it has ruined my life . I am left alone in life. A bright student, had dreamt of a successful life which sadly never happened thanks to Epilepsy
Yo lo vivo en carne propia es duro es dificil a vces solo quisiera dejar este mundo
Hi there, my husband is epileptic and diasnosed with MDD. I am struggling to maintain a relationship with him as a result due to extreme erratic behavior and anger. Is this characteristic ?
I was 22.. had just found out what I wanted to do with my life.. then everything changed.. now I’m 27 1/2 finally coming with terms that I can’t get back what I missed.. don’t let epilepsy change your life you still can live a regular life
Yeah. I have had epilepsy since I was 8 due to brain damage. I am 13 and still have quiet a lot of seizure like 1 time a week but I am getting better. But I am still doing well and doing lots of stuff with my life.
It is not something that you can choose to do anything about.
Genuinely and honestly, I envy those epileptics that can live with a job, and have made something for themselves. Unfortunately epilepsy isn’t as kind to us all. Both shoulders and back have severe injuries that will last. Memory has been difficult. I’ve been in this battle for 20 years. But the hardest part is that it never gave me that level of “normalcy” to have things like a job. I still can’t drive (more comfortable not having seizures on the road) and have had 2 doctors leave their clinics during my care under them at different times, last one was 6 months ago. I’ve had people on both ends of the spectrum tell me the seizures aren’t too bad or that I’m just not epileptic. I’ve accepted my epilepsy, and it affects the whole of my life. My seizures do not care if someone thinks they are just “panic attacks” and still occur.
I’ve adjusted to life with epilepsy, but how the American health care system treats epilepsy is appalling. My seizures have gotten less frequent over time, but much more violent. Last real bad one broke an arm (9 screws) and put 2 fractures in my back.
To those with epilepsy who can work, I applaud you and your efforts.
I pray things improve over time.
But currently, the times are challenging.
Best wishes brothers and sisters. Keep living.
same feeling here. a former banker without job for 20 yrs now. I really long to work again.
I developed epilepsy 4 years ago but fortunately quickly got it completely controlled with medication. What has resulted is I take my pills every morning then go out and have a normal day. The only difference now is that I have a different perspective. I can’t tell you how much normal can be appreciated!
I was diagnosed with epilepsy in 1993. I have been seizure free since 2001 but I haven't let it stop me. I'm currently in college.
Donnie Anderson is it curable entirely?
Aviator 777 please tell me. ..is it curable entirely for the rest of life?
I need your number so that we can chat on WhatsApp
Very proud of you to continue your education! When controlled by Medication, you can do anything you want to do to have a better idea of Life!
Hi, how did u cure yourself? Are u still under medication?
As someone who had had epilepsy (Juvenile Myoclonic Epilepsy since I was 16) - this speech is so authentic. Freedom is through acceptance.
Lesleigh Hart often we don't accept that we are epileptic it's the only way to freedom is acceptance.
Lesleigh Hart I think you are right. I've got the same condition (for over 12 years now). The first couple of years I refused to accept it, never talked about it, never told anyone about it and struggled so much. The moment I accepted it and started telling people, it made it easier to live with. Now I don't let it control my life!
@@beccag3797 that's great but dont get the not excepting it bit. Were you or are you religious. I have had it since Birth so that probably helped me not ever think of excepting it.
@@andrewboff5682 I was diagnosed at 16, so my new normal I fought against for many years. I didn't want to accept I couldn't do things that my siblings could do or had done. I am not religious. I mean acceptance of my new reality.
im an epileptic but buddys girls n guys - remember we as epileptics are more ambitious in spirit mind and more romantic by nature. live life in happiness and love for all shall love u too friends. my achievements are 4 diplomas and worked in corporates in night and day and faught a vatiety of temperatures in water and extreme sport. riding a bike and car. u are amazing just remember to be positive dont stress...
well that's good! I am still working towards my dream degree in college. I failed in undergrad as a result of epilepsy but thankfully I was double major and was able to graduate with one of my majors. I am in grad school working towards the major that I failed in undergrad. I am again experiencing myoclonic jerks and as a result I am missing my internship some days. This may make me fail one again. I could never work nights, although I wanted to work in a hospital as a medical social worker when I graduate but medical social workers can get called in at like 2am or have to stay later than they are scheduled and I know my epilepsy can't take that. So, I guess there are limits when it comes to epilepsy and it varies person to person but I still try to stay positive. I have new goals and try to educate people about epilepsy.
Sarathy Arcot Thank you I’ve been recently diagnosed and I’m still on my journey and thank you for taking the time to write that.
@@anarose8315 I am also a sufferer of this,i.e. CPS temporal, still I drive my two wheeler, hoping for a survival, let us be positive ,,,let us unite, and exchange our experiences among us, my humble suggestion is, why don't we make a social platform on this,I am Indian, make this platform global, expecting those who are suffers and Eagers,with regards !!!!
Hey Sarathy
I'm an epileptic too,
But it would never stop us for sure....
True epilepsy doesn't stop us follow and make our dreams come true..
"The second seizure, though the physical injuries were less, was much more significant for me." I felt *exactly* the same way. The implications of that second seizure are devastating. They represent a new chapter of your life. And not the good kind of chapter.
Like your mind feel different is what you mean
It is the moment when you realize this isn't just a one-off. I have epilepsy which isn't going away.
Epilepsy makes you stronger. It made me stronger. Don’t forget to where purple on the 26th 💜
What does purple represent?
@@mt-fh9yd epilepsy awareness day
@@matthewfourie3702 💜
Agreed fully! Epilepsy has made me vastly stronger as well!
Of what? Do we have a seizure awareness day?
I am so glad that I watched this I don't feel alone anymore. Thank you for posting this video. 💖💖💖💖💖
I love your testimonials about your journey with epilepsy and seizures. Continue thanking God for him being with as your strength as well as motivational support
Great speech. Shows we are not alone.
Thank you for sharing. Let me tell you my story. I grew up in Florida. Join USAF in 1993. 1997 I sustained a concussion while in Saudi Arabia. Got out in 1998. Moved to New Jersey in 2006. Got divorced in 2013. Bottom line: I'm 48 years old and living in New Jersey with no family to call on in the event of an emergency. I'm still epileptic. I've had four kidney stone operations over the past two years. I've done it alone. I rent an apartment, hold down a steady civil service job, and support my children. (Two girls. 15 and almost 14.)
Watching your video makes me happy to know that epilepsy can be overcome. I'm proof of that. Thanks again for sharing!
This is what I needed to hear thank you so much for sharing You’ve made a lasting impression
I had just finished my construction management degree. It was the next step in my career in construction that I had been in for 20 years. I started losing moments in time and eventually had a clonic-tonic seizure at work. Within the next few months, I was fired from my construction job. Having to move on and find a new career in midlife was a bit anxiety creating at first. Just after I turned 41 and took a job as a substitute teaching assistant at the local school system. A few years later and post brain surgery, I'm a teacher now, and I love this career. It's quite a wake-up call, but it's ok to start over in midlife. I love this Ted-talk.
I agree. The best way for me to cope with the traumas of epilepsy Is to appreciate what is positive in my life.
Took me 5-6 years to get to this point
"...Feel vulnerable, not in control". This has probably been the biggest issue for me. I've been recently diagnosed with Temporal Lobe Epilepsy but have had it for years not knowing what it was. Not knowing when seizures are coming and not having any specific triggers is a pain. At the moment they still aren't under control and as I have anywhere from 2 -20 partial seizures a day, not to mention a stupid amount of absence seizures which I can hide better. It makes it a worry to even go outside.
I also have TLE left side
Hope you doing better now. I have atonic seizures all the flipping time and tonic clonic 1-2 times a month. Epilepsy sucks but I am still having fun with my life.
I wish I could give this more upvotes. Thank you so so much for giving this talk!
I am 18 .I am not epileptic but I am always with you all. 👍👍to all your courage and struggle. I know you all can live a very happy life even with your epilepsy. Let ur happiness rule over epilepsy and ❤❤💕
Whoever you are, whatever it is that you set out to do by posting... congratulations it worked!!! People like you are truly a dime in a dozen
Incredible!
You are such an inspiration!
I'm an epileptic patient since I was 25 yrs old, now I'm 54 but still experiencing seizures twice or once a year I felt that my memory is decreased
I started having seizures at the age 35 and I have since noticed that ever since I started those seizures my memory has become sooooo bad.
I am so sorry that you lost your memories. I pray that everything gets better for you. I can relate to you a lot because I am 38 years old and I've had 4 seizures. I completely changed my diet for my diabetes type 2 and to help me from getting seizures again. I also got a better seizure specialist that changed my seizure meds that is actually helping me.
Started at 16, I’m 36. Memory is, bad. I feel you man. Still have them, just less frequent.
This is a truly commendable speech. I have been epileptic since 10, I am now 18. Only recently have I started being open, and honest as Mr Pruce mentions. The issues which he mentions are particularly personal to myself, and ones which I think apply to many with the conditions. I wholeheartedly wish him the best.
Wow that was amazing u have given me confidence to be more open and talk abt it.its so hard it eats u up inside u feel useless worthless 😢. Thank u.
Thank you very much for sharing your story!
Thank you for sharing your story.
My partner has been diagnosed epileptic at 27 years old and had his degree with distinction. He inspires me everyday with his strive to achieve
Ten years or so seizure free but I still take meds everyday to ensure i remain that way as much as possible. I learned the the same lessons, however over time it is very easy to lose sight. I needed to hear this today. Thank you and God bless. Hope you are well.
Very powerful speech thank you for sharing your story ❤️
Thank you so much this was brilliant and a stair-step in transformation.
Hello Daniel,
I have Generalized Epilepsy and you are right: it makes a huge difference when we work for someone who is supportive with our condition, especially as it manifests itself.
Unfortunately, I had a seizure in late January and this happened in the workplace. The company was very supportive during the seizure but also while getting back to work. It was a very positive surprise.
Surrounding ourselves with supportive people is very important and being honest about ourselves with others is part of that. That will not, on itself, prevent seizures (you need to follow your therapy 💊 for that) but it will make the after-seizure much more pleasant.
Hi
I suffer from Generalized Epilepsy
wonderful never loosing hope in my life
Daniel, this is such an amazing speech. Thank you for sharing from a fellow epileptic.
Brilliant film inspirational
I had medication as a child but no longer but I do Still feel seizures...this is a positive video of understanding..A wonderful Gentleman..Thank you
I love that you shared your personal experience! I shared my experience with epilepsy on my channel as well. Best wishes to you!
Nice presentation!
I have had photosensitive epilepsy for years now and it does feel like a very constant and negative part of my life. Because there's no cure, just medications that help temporarily but make you miserable also in the process, I have been stuck feeling nervous whenever I have to go outside because the sun is always there. The sun is what triggers my seizures and I'm 18. Haven't driven, yet, honestly don't know how I will because you drive outdoors, can't play sports, can't swim, I I have to wear sunglasses every time I go into the sunlight, and I hate leaving my house because it just puts me right under the sun again. I also have trouble with P.E. at my school whenever we have it outdoors. But if I get 9 hours of sleep, I'm not seizure-y but I will always have a bad connection with the sun and I've learned accepting your epilepsy is the only thing you really can do.
Hi!
I have epilepsy too, and yes i can feel your pain, my advice is try to change the medications, most of them has a lot of "hiden"sides-changing moods, depresion..
Hi! I just wanna say i have had a very similar experience! My first seizure was outdoors, because of the sunlight through the trees causing an almost strobe light. I was 11, and it has been the most terrifying experience for me. Now, I am 16, and I'm struggling to deal with the fact that I may never drive in my life. I don't want to feel dependent on anybody to drive me places for when I live on my own. I have had a total of 3 grand mal seizures, but I have small ones everyday whenever I leave my house where I roll my eyes back.
Why must you have to take P.E. Classes? Not that important if Sun is a major factor to your Health?! I would go to Principal Office and explain to him/her, I get very hot when I'm in Sun. I just can't do it. If there's any indoor activities, I can follow up with this idea! I understand that you can faint in very Hot Sun! It happened to me!
I have myoclonic and absences (now also tonic-clonics) that are caused by the sunlight. Not many people understand or know how this can be. It’s difficult with day to day living, no matter how you try to avoid the sun... you cannot completely escape from it. I’m 21, I don’t drive, I’m almost always in hospital, I’m constantly tired and no medication has completely helped me.
The point is, I understand your struggle, you probably won’t see this... but I’ve been there.
I was diagnosed at 17. About to go through surgery for the VNS implant since my seizures are uncontrolled by medication. I have felt so helpless since the first seizure that was diagnosed. This video helped me. Thank you.
Best wishes! I also have the VNS since meds n resective brain surgery did not work out as hoped. The VNS has definitely given me more energy n reduced the number of seizures I have n the severity of them.
hey your video started with flashing photos,some of us trigger that way,not cool.
Troll alert.
Not at all. I have Temporal Lobe Epilepsy and even though stuff like that doesn't necessarily trigger a seizure, it's extremely fucking uncomfortable to watch.
Agreed. I have temporal lobe epilepsy as well and I can barely sit through flashing pictures like that, it triggers the headaches that end up turning into a seizure.
Agreed as well. I'm epileptic (not photosensitive, no discovered explanation so far.) And it even bothered me and made me think of how it could effect another person with epilepsy. The only trolling is that comment.
Jeff L, you seriously need to work harder on your trolling skills, man.
I can truly relate with you. .
I can relate to this ted talk I struggle with epilepsy on daily basis but if o don't vet enough sleep is a serious concern. I thought I couldn't get past it I had to accept that I had epilepsy. I felt defeated often. Thank you for this ted talk epilepsy in nz is not known enough.
I’ve dislocated my shoulder out the back over 50 times and now have a screw holding my shoulder in place. It was nice to hear that I am not alone. Thanks
You’re definitely not alone, I Had a Cauda Equina Syndrome (6 months therapy), fractures, core muscles ruptures, compressions. Yet I accept it and I’m not letting it interfere with my life.
Cheers tat was a motivational talk for acceptance and moving forward
I am diagnosed with the same having tonic clonic and complex partial seizure since last 8 years and 3-4 times a year and recently gone through its surgery and removal of left hippocampus and amygdala 6 months ago after which i am not getting any of its symptoms but a little loss of memory and recalling words and facts........seizures and medicine damaged me alot like lenses , constipation, haemmoroids, cough , problem in breathing, being more talkative ,etc. ..........my education got distroyed......... no one can understand what i am going through and i bless to god for a new life.......its just enough in this competitive situation.
Epilepsy is a word. I have had it from childhood. About me on my linked in Sarathy AJ and I would like to say always keep an optimistic flow. In most cases, I've stood 1st or 2nd. Einsteins and the Nobel (Alfred Nobel) and some people also have had it but when we leave all to god and let him bless there is more that can be done. Like you even I've been through the drill of the hospital but always kept cool. Today I'm a BA in Psychology and carry on in my work and study for Masters in Pub Admin. I want to do a double PhD at least.
sarathy arcot I have JME and wish to do PHD too! Are your seizures controlled well?
Daniel , I'm whatching your talk and one thing you have said is you were watching TV both times . Myself , had many seisures in front of TV in the 90's , I found out many years later the TV Called a K9 in New Zealand was trigging the seisures. Its to do with the number of pixels the TV fires . Expensive TV's use more pixels . Samsung Tv's are good. My epylpepsy started after a car accident in 1968. I have had epilpsy and struggled with peoples aitude towards my ability to do or judge anything. Like you I became reclusive and in small town NZ employment was hard as everyone soon got to know. I could tell many stories about peoples miss understanding of epylepsy , one lady rushed of to the bathroom to wash her hands , girlfiend suddenly leaving after finding out I was epyleptic , people whispering " there is somthing wrong with Fred ". I stared a small Temp hire bussiness under much dought from family and friends. I struggled with Banks as they were very cautious of my dealings. Any how I'm 65 years old now and have had three small trade bussines's and have married, have a daughter , mortgae free. What changed everthing was a drug called tegretol , I have had two sezures in 15years . I accept my condition but are very guarded who I tell about my epylepsy. Fred
Fred & Carolyn Cassin wao thank you for sharing your story.tell me one thing is it curable entirely for the rest of life?
@@atreyeeghosh7851 epilepsy is unfortunately not curable, only controllable with medication to various degrees of success.
Jenny Carter thank you dear for giving ur time to reply me back
Excellent!!
thank you sir
well shared and said 🙂
Thanks for sharing your story. I live with it too. Depression comes with it as well. I can’t live a normal life like drive, swim, live by myself. Luckily I get like an aura little bit before. Kinda like dejavu
My daughter has had a horrific experience with school. The school nurse called us liars , and called my daughter’s pediatric neurologist. This was after me taking the diagnosis from the dr. The nurse claimed they were panic attacks. Now my daughter,a college student, and has been diagnosed with bipolar, which goes hand and hand with epilepsy. She can’t drive , she’s fatigued beyond belief. Her mental health now teeters between mania and depression. It’s affected every part of her life. She takes multiple meds for both diseases. It seems like ppl can’t understand what she’s going thru , because they can’t see it , like a gash in your head. Some days she’s barely functioning and occasionally not functioning. My heart goes out to anyone suffering this disease. Please take care of your mental health as well. ❤
I relate strongly to your daughter.
I had such horrific experiences in school (getting sick all the time because of seizures, teachers not understanding, school administration not understanding, etc) that it took me 20 years just to receive my bachelors degree. I was in and out of college for decades, sick with both epilepsy and severe depression.
I send love to you and your daughter. Neither of you are alone. ❤️
@@Kate09090 ❤️❤️❤️
just great
Kind, can you tell me what help is provided in states with a diagnosis of disability epilepsy without disability?
I've recently been diagnosed with epilepsy. Tonic clonic seizures. 3 months in now only had one seizure due to changing meds and stopping meds. Mine come on via stress, which meant in the past alcohol and lack of sleep etc. Removing stress for me is good, I now take medication and made my own oral canabis tablets 2mg once or twice a day.
Thank you my seizures also break my vertebrae. God bless.
my first seizure ever was when i was 15, just had gone into the shower, sister passes by my bathroom and hears me choking. i should have been dead if it wasn’t for god and her. im 24 now, living the day with memory issues and cognitive impairments.. it sucks that we never get to be the same once again.
I'm watching this because my ferret has epilepsy. He suffered a bad CNS infection at 9mo and has had hundreds of tonic-clonic and occasional minor mal seizures. I want so much to understand his experiences better.
I was so sad after my second seizure.... it's funny how the first one everyone is just like "Well glad that's over.... good thing I don't have epilepsy...."
You had two but not epilepsy ? Curious for myself
Never ever say “good thing I don’t have epilepsy” when you have your first seizure. Then a little while later you have another seizure. Get a diagnosis with epilepsy. NEVER SAY THAT!! You always seem to end up having with epilepsy when you say you don’t have epilepsy.
Just got diagnosed , however, I've been having these issues for many years... I live alone, and just didnt know I was having seizures
No one really matters
You’ll be in my prayers, please take care of yourself, I have a dog companion, he helps a lot. If there are programs where you live that let you have a companion then I highly suggest this. They’re very loving and helpful and can alert you before it happens (mine does) and you can get the help you need before the attack (ambulance, medical attention, etc)
Someone who finally gets it
that intro could triggered a seizure...
So in the video about epilepsy, you keep flashing images 0:02
Great talk! If you have epilepsy and are willing to share your story, please check out the website I made. You can send it via the website; there are already a few stories for you to read if you're interested in that.
The website has two goals: empower people with epilepsy that they are still able to do whatever they want & that they should not feel different (make them reach the point of acceptance sooner in order to live their lives like anyone else) AND hopefully providing a bigger understanding to people who might have loved ones that have epilepsy.
Check it out if you're interested. You can find the link on my profile.
I would love to share my story!
Jennifer Lahey That's great!! You can email me at lets.talk.now.community@gmail.com
it would be cool to share my story
Hi Bren, you can email me your story at lets.talk.now.community@gmail.com
I look forward to read it and put it on the website!
I am autistic and epileptic. In 2019 I had a psychogenic attack on a testimony (victim of stalking). Since the judge knew my diagnosis, I was not portrayed as a liar. But I think it was a rare stroke of luck
I have had epilepsy 9 years ago. Till now I have it. I take anti-epileptic drugs but I still get it sometimes. The struggle is real. I am always afraid when I'm around with people because I might embarass myself. The saddest part is I am not in complete control of my body. I just hope I am able to fully control it after this
It'll get better, stay strong. You're amazing!
I feel bad for those who don’t have it under control or have the types that can’t be easily “hidden” allowing them freedom to pursue any career or education.
bravo
I've been an Epileptic for 30 yrs now and everything your taught helps You but when you explain it to others it doesn't work as many don't believe you. That's the experiences I've had. Even with that bracelet! I got mocked at by a bus driver! Staying in sarcasm "Anyone can buy that thing" when I had an argument with her to lower the bus do to my leg as it was reconnected after a seizure. But to her she only saw my outside appearance of a pretty little youth Assuming nothing is wrong, I'm lying. Girl! I snapped. Do I have to show you my f in leg!!!! No!!!! Don't make jokes about my condition! I've had brain and other surgeries from them and side effects of communication afterwards that MANY IGNORE. It's freaking sad and I'm treated like someone in a coma 😞
I suffer of epilepsy but I still fighting
I wonder if year was a factor,I was told they found me choking and gurgling in my sleep underneath the sheet ,I was underneath it because of the mosquitoes in my room also o would like to know why the majority of my seizures happens in my sleep?
I got diagnosed at 35. Nocturnal Frontal
Sounds similar 2 what I experience
I have seizures too they came back I never even knew I had then as a baby. Now I'm on meds but honestly I don't like these seizures I keep falling on my head... the seizures are painful I had two this past Sunday and three on Father's Day...
I have absence seizures. I was diagnosed at the age of 5 but have been seizure free since the age of thirteen and so was taken of meds which caused massive weight gain a hand tremor and memory loss. The point is meds are good up until a point an then it becomes a pill no pun intended. my triggers are flashing lights, specifically the transition from the out doors to inside a classroom getting too hot and recently sleep deprivation.
The effects of my epileptic seizures is that i have aspie like tendencies due to my epilepsy which i know is difficult to understand to put it in simple terms as a result of my seizures my brain compensated and rewired itself and so i have all of the symptoms of Aspergers but lack any sort of understanding math which for most Aspergers people they are gifted with math abilities.
After my father died, it seems I have had a relapse if that is possible. i still have my absence seizure but it is not enough to put me on meds . i have been getting driving lesson and have my usual 10 seizures in the drivers seat. i take omega 3 cod liver oil liquid form as i can not swallow pills.which helps decrease the too -small -to -medicate -seizures i think i said that my seizures came back i wanted to clarify the EEG showed misfiring not seizure activity per say.
Sophie Palmer-Doran try diet it has helped a number of people.
I developed absence seizures at age 4 started depakote at around 15 and gained weight and numerous other side effects that were almost as bad as the seizures themselves. I am 44 now still have absence and my epileptoligest referred me to a nutritionist to try the ketogenic diet which has helped and most insurance will pay for. But Drs won’t bring it up you have to ask for the referral.
Thank you for sharing your story and I hope you are seizure free today.
Sophie Palmer-Doran , 👍
I have epilepsy but my fear from people if. I get down what they are doing with me may be. As to should be me or don't Help. Me r my god help us we need u..
my epilepsy is really different than your's guys. so this is so normal. ı was diagnosed with epilepsy in 2020. its short yes but not for me :( my seizure is parsiyel seizure. İt takes 8-9 seconds. this is interesting type of epılepsy. ıf your doctor is really good, you can get out this situtaion. it is temporary situation. I'am using 2 different medicines. one of them epılepsy medication but the other one is psychiatric medication. because at the same time ı had panıc attack. but now ı am better than at the 2020 sema. take care
WTH? I am very annoyed that your video did not have a seizure warning on the title.
좋아요~
I have epilepsy. My seazures are not controlled. I take a cocktail of meds. My quality of life is not good. Does anyone recomend me a useful solution.
I come here because i'm epilepsy guy 22 yers, and need to see new life for me ,a changging life
I am autistic and epileptic. In 2019 I had a psychogenic attack on a testimony (victim of stalking). Since the judge knew my diagnosis, I was not portrayed as a liar. But I think it was a rare stroke of luck
I have temporal lobe epilepsy, I have them mostly in my sleep
Id love to share my story. Its very different to
I live with epilepsy my whole life I TLE focal seizures complex partial. I haven't had a TC in 5 yrs my meds are NOT controlled 🙉
i have TLE DVA my neurologist suggests me to have some DSA but i an to scared to do it. and they just gave me Clobazam for 2 years. it's been 4 month i dont have dejavu or seizure anymore luckily.
Unfortunately this has not been my experience. The people in my life have been extremely judgmental and non supportive of my condition.
i also facing seizures since 17 years , now in few years i am facing spine issue , pain and my left leg always stiff and in pain i cant able to stand on both legs at the same time. :(
I had my first seizure in 1986 and the next in 1991 and many after
I've been having seizures for 8 years this year at the age of 42 years old and I'm 49 years old and have been diagnosed as being epileptic last year and I've been in hospital 3 times for this year my
Latest attack/s was last week on Wednesday the 17th I bit my tongue and bottom ljp
I was diagnosed with Epilepsy 50 years ago.... The seizures are just the tip of the iceberg when it comes to epilepsy..
U R very correct. My seizures are less after brain surgery but going thru many side effects from the all the medication.
1:43 this is what happens when I have seizures and when I have the house to myself.
Nothing works for me
Why is he acting like people won't judge you differently if you have epilepsy lol
Hi I have chosen not to watch this add ,because of all the flashing before it even started.
Great job/vid & hope to get @ your stage being 'seizure free' (touch wood). Mine are 99.9% Nocturnal or Absent, but that wandering about without any recollection is disturbing tbh
YES THERE IS CURE. There are very effective HOMEOPHATIC remedies for epilepsy.. But, you have to find a Classical Homeophat with experience. An appropiate diet should also be prescribed. Alcohol is totally forbidden.
I have epilepsy and I hate it
I always feel like I'm lacking vitamins and nutrition in my whole body I am left where I can't even move even a finger or even get up And the hospital puts me in pampers and have to bathe me
And end up sore af for the next few days😞
I have the seizure what he has. I not had a seizure sine 2015 😊
Do you take your medicine?
@@jenniferjoaquin2899 i dont , do u!
@@ahmadelshbasy3222 not anymore. I haven't taken a medicine since 2020 and I'm so glad that I'm Seizure free.
@@ahmadelshbasy3222 But I don't have a seizure since 2015. And stop taking a medicine sinco 2020. And I'm fully Recovered now.
@@jenniferjoaquin2899 so happy to hear this from u , i wanna get in contact i need more info
my brother is also epileptic patient he is now 12 years old , he couldn't pretend his classes in the school . he taking 3types of anti-epileptic medications since he had been diagnosed when he was 6 years old but no improvement, we seek for consultations of many good prof. doctors here in Iraq and we went to India and Lebanon .it disaster for me and my family to see him has seizure attacks every day and several times per day 💔
It can take a long time to work out the best combination of medications that works and keep someone stable, but it isn't uncommon for epileptics to still have auras now and then (feeling like you are going to have a seizure) or even mini seizures (brief losses of conciousness). His seizures may calm down as he gets older and he adapts to the right combination of medication. Some people may be offered brain surgery if the seizures can be linked to a specific area of the brain through an MRI scan. Some people use a vns device which is similar to a pacemaker to reduce the strength of seizures, and other forms of therapy
Media: watching tv causes seizures
Really?
I was 25 yr
Someone turns the lights on and off rapidly