Thank you very much for the words of encouragement. It helps when people understand what it's like to go through seizures. Thank you for the support , I really do appreciate it . You are right,my boyfriend is very helpful and loving and without him I would be lost and alone during my seizures , and maybe not here today if it wasn't for him.
Thank you friend. It means lot to have people who actually understand what it's like to have a seizure. I still very sick after a seizure. How is your daughter doing
Once a month during the times of my menstrual cycle. Only in my sleep. One day out of the month, but I have tonic clonic cluster seizures and have had up to 15 seizures in one day. I don’t just get one I get back to back ones.
Dear Astrid, being on twitter with you, should know me, I Am so sorry for this, I root for you, wish you all the best Astrid !!
Sweet baby girl.
You have a very loving husband or boyfriend You are beautiful and strong and brave and fierce
Thank you very much for the words of encouragement. It helps when people understand what it's like to go through seizures. Thank you for the support , I really do appreciate it . You are right,my boyfriend is very helpful and loving and without him I would be lost and alone during my seizures , and maybe not here today if it wasn't for him.
@@Epilepsywarrior000 thank you your boyfriend is your hero
Hope you find the right meds. So many crap ones out there. Keppra was an absolute NO for our daughter. Vigabatrin 1000mg & Zonisamide 0.9mg currently
Prayers
Hope you're doing ok 🙏
Thank you friend. It means lot to have people who actually understand what it's like to have a seizure. I still very sick after a seizure. How is your daughter doing
@@Epilepsywarrior000 She's doing well. Still in some pain from hip surgery, but having far fewer tonic clonic seizures lately! ❤️
@@HopeAndSunshine I'm so happy for her. That is great news .
How often does this happen to you im sorry you struggle with this
Once a month during the times of my menstrual cycle. Only in my sleep. One day out of the month, but I have tonic clonic cluster seizures and have had up to 15 seizures in one day. I don’t just get one I get back to back ones.
@@Epilepsywarrior000 im so sorry i hope u find something that helps with it hun