A patient's perspective of IBD pain
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- Опубліковано 10 вер 2024
- Lucy Youdale presents a brief account of what it feels like to live with persistent pain as a consequence of IBD, both during flares and in remission. Lucy shares how traumatising and anxiety-provoking pain can be, leading to a life of saying no and the impact that this has on quality of life.
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I also have IBD, or ulcerative colitis, and I'm currently watching this curled in a ball feeling nauseous and in pain with no idea how to manage it.... Well done on this lady speaking out on the subject 👏👏
Been there mate sending love and strength. You aren’t alone
Crohn's problem is blood. I treated him with blood. I took herbs from Egypt. I bought it. It was called a solvent for cholesterol and a solvent for liver fat. I am cured of Crohn's disease. This simply means that neither the colon nor the immune system is the actual problem. The whole story is blood and arteries, because it is the food of the body, without which it will not recover from any disease...
I was gifted IBD functionality after an emergency bowel resection surgery and have spent most of the last 10 years when not a work curled in a fetal ball of excruciating pain, wishing for my final days. Then 3 years ago-developed colorectal cancer and under went treatment by chemo and radiation- yes indeed that made my ibd worse.🤦🏼♀️🇺🇸👎🏾…pain doesn’t build character or gratitude.
@@BeegirlsHoneyHouse how are you now , plz tell please
Hi Lucy That was a very insightful talk. The trauma of living with IBD is real and you are right the anxiety that we have is based on reality so much more difficult to tackle. I have had a couple of years with almost no symptoms while on vedolizumab but now symptoms have come back and the anxiety has increased again
Crohn's problem is blood. I treated him with blood. I took herbs from Egypt. I bought it. It was called a solvent for cholesterol and a solvent for liver fat. I am cured of Crohn's disease. This simply means that neither the colon nor the immune system is the actual problem. The whole story is blood and arteries, because it is the food of the body, without which it will not recover from any disease...
This is so refreshing to hear, just knowing what is happening in your body is relief, but at the same time it’s so scary because you never know when it’s going to happen
Everything she says makes sense.
A lot of people want to say why are you taking pain medication? Because they don’t see you on the toilet every day, the pain is inside in the form of inflammation
I have been told I have Sjogren’s disease, I have been told I’ve had severe food poisoning, all kinds of false diagnosis
Now I’m sitting in the hospital after a week, after I could not move from the bathroom for two days even to call the paramedics ... with no answers from them, but I know exactly what’s going on, I relate to all of these video
Crohn's problem is blood. I treated him with blood. I took herbs from Egypt. I bought it. It was called a solvent for cholesterol and a solvent for liver fat. I am cured of Crohn's disease. This simply means that neither the colon nor the immune system is the actual problem. The whole story is blood and arteries, because it is the food of the body, without which it will not recover from any disease....
I truly believe I might be suffering the same thing this story feels like my own
Crohn's problem is blood. I treated him with blood. I took herbs from Egypt. I bought it. It was called a solvent for cholesterol and a solvent for liver fat. I am cured of Crohn's disease. This simply means that neither the colon nor the immune system is the actual problem. The whole story is blood and arteries, because it is the food of the body, without which it will not recover from any disease...
This helped me a lot, thank you 🙇♂️
My pain has been unbearable! I'm terrified!! Just diagnosed with UC yesterday. I recognized symptoms 3 weeks ago. Hospitol 3 times, EMS about 5. I learn more with each onslaught. So strange- out of nowhere my ears start ringing, my heart starts racing, BP shoots up to 200+/120, then my stomach cramps to unbearable pain. Pain so intense I scream. Then, half hour later it subsides. This has happened times. Anyone ever experience this?
Crohn's problem is blood. I treated him with blood. I took herbs from Egypt. I bought it. It was called a solvent for cholesterol and a solvent for liver fat. I am cured of Crohn's disease. This simply means that neither the colon nor the immune system is the actual problem. The whole story is blood and arteries, because it is the food of the body, without which it will not recover from any disease....
How are you now pleased tell
@@gauravbhatt5541 Doing much better. Haven't had a similar attack since April 2022. Still recovering from a brain bleed, Sept 2021, and slowly things are getting better. Absolutely blessed to have family take me in. Can only imagine the struggle for those without loved ones. Godbless.
@@pontificaterebal677 sir actually I am suffering from past 2 months by gas and bloating, sometime diarrhea sometime constipation. My all blood reports are normal except I have low hemoglobin and low iron ( anemia ) . My doctors say may be it is ibd . Sir I want to know can ibd pain and gas stay for 2 months , plz help me , sorry for my English My English is too weak
Unbelievably this is exactly what has happened to me; went to uni at 19, I studied adult nursing, half way through had terrible symptoms of what was then undiagnosed Crohn’s disease. Two years later I got a diagnosis but by then it had developed into severe acute. I also developed shingles too! I think this was connected to taking anti tnf therapy for 10 years. I’ve never been offered pain relief as an out patient either. Maybe I need some further CBT, as I’m too anxious to adhere and make plans due to symptoms. But this video has left with some inspiration. Especially the part about revisiting your goals, hopes and dreams. The ones you had before chronic disease.
Thank u.
Biggles Go and get your head checked out as well as your bowel. Your comment is completely irrelevant much like your existence. Bitter, twisted loser.
@@baybeegalkk they do say you gut health effect your mental health so figures why I'm such a nasty person :(
I use cannabis to cope with my constant pain in my torso I would rather be illegally alive than legally dead
Rebel Wargaming Interesting. Can I ask how you intake it? As we know tobacco is trigger for IBD.
@@baybeegalkk I use just cannabis in a chillum pipe or vape it in a dry herb vaporiser
God bless her
God bless you
agree with everything
what you need the most is doctors that had the same problem as y ..soo they will understandeble
My daughter finally got diagnosed after two years of tests and dismissals. Her third attempt at a colonoscopy finally happens and confirmed crohns. The whole process has been one trauma after another. She’s only 16 and being given his many meds with ridiculous side effects that the drs dismiss are not to do with the meds. They say they’re there but when you ring up in urgency it’s two days later and then dismissed. She’s in constant pain currently bed bound as her joints hurt so much. No support. I’m exhausted with it all and I’m not the one with crohns. She constantly tells me I can’t live like this! How am I supposed to give her hope in this situation??
It really is so painful I got crohns at 15 and I had surgery when I was 16. It is some of the worst pain that I have ever felt and I can’t assure you it will get better. The only thing you can do is find the foods that trigger her pain and I would recommend using Metamucil fiber; which can help food digest if that is what she is struggling with now. I was 94 pounds at 15 and now I am 18 and 132 pounds, and I would just encourage you to help find trigger foods.
@@FrstdzI’m so sorry you’ve had to suffer that pain. I don’t suffer with it but through my daughter I can only imagine it and I don’t think I will even be close to the true reality of the pain you all go through and suffer. I hope your operation was successful!! Thank you for taking the time to reply to me. It’s funny you say about trigger foods when the dr said there was no dietary recommendations just try your stick to home made foods and less processed stuff. And that was that. She definitely reacts to dairy, tomatoes and many acidic fruits. Which makes it quite restrictive.
Thank you again for responding. I hope you are in remission and doing well. Take care
What keeps me from IBpain is taking the fiber product citrucel every day.
Crohn's problem is blood. I treated him with blood. I took herbs from Egypt. I bought it. It was called a solvent for cholesterol and a solvent for liver fat. I am cured of Crohn's disease. This simply means that neither the colon nor the immune system is the actual problem. The whole story is blood and arteries, because it is the food of the body, without which it will not recover from any disease...
Having Crohm's myself since I was ten (7 years ago) I know this all too well. Though I have a higeer percentage of remission,I do ocassionally experience gut pain and cramping which indeed canbe intense. Mostly it is frequent bouts of diarrhoea (which has bben inclusive of very wmbarrassing public and private bowel accidents. I only recently joind CCUK though due to this pandemic of COVID have not been able to meet other people in our situation, however as I am across the Pond, when this pandemic finally subsides, I am planning to return back to the UK proper as soon as possible.
Glad ur suffering 🙂
Elliot Bigland what?
Crohn's problem is blood. I treated him with blood. I took herbs from Egypt. I bought it. It was called a solvent for cholesterol and a solvent for liver fat. I am cured of Crohn's disease. This simply means that neither the colon nor the immune system is the actual problem. The whole story is blood and arteries, because it is the food of the body, without which it will not recover from any disease....
Cannabis is now available for IBD patients in the UK who have pain.
basically me i lost my life from my 22 untill 27 now
Healthcare professionals rarely think of diet to help IBD either. They like to give out the prescriptions but not much else.
I’ve basically lost hope, pain from colitis is all consuming.
This is me currently. How are you now man?
@@nathanielpatterson6963 This is just completely a fucked disease! U?!