Outliving and Outsmarting ALS

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  • Опубліковано 1 гру 2024

КОМЕНТАРІ • 16

  • @lidyalu5371
    @lidyalu5371 6 років тому +1

    My dad had als n passed in 85, he passed in one year!!
    We haven't come far!!
    Much love to you and respect from Philadelphia
    You are a hero

  • @sarvgrover
    @sarvgrover 5 років тому

    Power of Love

  • @maguiviera6530
    @maguiviera6530 6 років тому +2

    Today I just made 27yrs with ALS, Im so happy and thankful to God to be alive and enjoying my life, and I would like to know how I can get some technology equipment to make my life more easy and independent , I live on virginia beach, for you attention thank you *:-h saludando

  • @bettyh3747
    @bettyh3747 7 років тому +2

    I pray for a cure. My daughter died from ALS 5 years ago... She was 25 years old. She died just 6 months after finally being diagnosed.

  • @elypohl4318
    @elypohl4318 6 років тому

    Please look into my video on ALS TRUTH. Spiders and ALS. No one seems to consider this but I think it's worth considering

  • @dxmxo9427
    @dxmxo9427 7 років тому +1

    So Brave So Brave, May the Universe bless these people with Als and let's find a Cure Now

  • @JerseyAccent653
    @JerseyAccent653 7 років тому +4

    WOW $60 mil! 110 mil! insane! but crying too

  • @alenas514
    @alenas514 7 років тому +9

    I would love to see this documentary my grandma suffered 1 yr until she died. Always in pain nothing works buy her brain and she couldn't communicate. My mom went into a deep depression and this was over 10 + years ago. Let me just tell you this disease is brutal and will kill you and will affect all your family members and friends. I hope one day we can find help for it. I watched my grandma die right In front of my mom. It was almost a relief. She wanted to die. I hope the future will bring even more technologies to help als patients

  • @ashleyashleym2969
    @ashleyashleym2969 7 років тому

    I gave a presentation on this disease for my genetic class. Really scary disease.

  • @alonben-noon1486
    @alonben-noon1486 7 років тому

    We, at NeuroSense Therapeutics are doing all efforts to bring an effective treatment to the patients soon.
    If you know an ALS patients who wish to participate in a clinical study, please refer them to us. We are expecting to initiate a trial during 2018.

    • @sarawadams
      @sarawadams 7 років тому

      How will this trial interfere with the use of Edaravone? My 56 year old nephew has just been diagnosed with ALS and is about to start Edaravone.

    • @alonben-noon1486
      @alonben-noon1486 7 років тому

      Sara Adams Hi Sara,
      Please contact via NeuroSense Therapeutics Website.

  • @shadowghostgirl4601
    @shadowghostgirl4601 7 років тому +3

    Steve Gleason also has ALS

  • @RB-st9nr
    @RB-st9nr 7 років тому +1

    This reminds me of a horror movie of Amityville house lol I hope its right,,, communicating through technology but him is more advance...so nice
    God bless this couple 😃