Have I Gained More Function?! | SCI Q&A

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  • Опубліковано 10 січ 2025

КОМЕНТАРІ • 575

  • @jerusalemariseministries4017
    @jerusalemariseministries4017 Рік тому +60

    Sometimes I think I know why Charisma loved and still loves this man. Cole is the most lovely person. He was brought up well. He is very considerate and you can tell he never take Charisma for granted 🎉you can tell he deeply cares for and appreciate the care she gives

    • @ninaappelt9001
      @ninaappelt9001 11 місяців тому +3

      They were truly made for each other.

  • @Drbethturtlewoman
    @Drbethturtlewoman Рік тому +33

    I know I am being weird but I love you guys. I am an ER doctor and I have learned so much about Spinal Injuries from you guys than I did in medical school. Thank you

  • @katishagrooms4652
    @katishagrooms4652 Рік тому +25

    The way Cole looks at charisma is Soo beautiful you can see the love. They are one of my favorite social media couples and I can't wait till they share their love with a little one

  • @savannahewing7189
    @savannahewing7189 Рік тому +42

    I know you guys must help a lot of people. I got in an accident last week and I knew my spine was injured. While I wad lying in the ground the first thing I thought of was cole and I was super comforted and kept reminding myself if my toes don't move I can still do so much. Thankfully when I then tried to move my toes they did move and I just fractured my spine but I love the thought that Ina situation as serious as that you guys can bring comfort and knowledge to anyone who actually does become disabled. Keep doing what your doing!

    • @sandraatkins2539
      @sandraatkins2539 Рік тому +1

      My prayer is that God will grant you a full recovery. Blessings

  • @jennifercaldwell-jeans4569
    @jennifercaldwell-jeans4569 Рік тому +5

    I had a stroke that left me with complete right side hemiplegia. Through years of intense physical and occupational therapy, I'm back on my feet again. But my right arm/hand and right foot are always cold to the touch. The blood pools in my right foot so at the end of the day my foot is purple. I have always been an active, healthy person (the stroke was cryptogenic) so am incredibly in tune with my body.
    The temperature differentiation was explained as a circulation issue. My right side will likely always be compromised but I'm so grateful to be breathing, swallowing and talking normally again! Like a spinal cord injury, people don't realize how complex it is to lose function of half your body through an acquired or traumatic brain injury. It is not "just" arms and legs. I've been following your channel for what feels like years and I appreciate your open and easy way of explaining things. You are both so amazing and I'm grateful to have found you both!

  • @Infrawgnito
    @Infrawgnito Рік тому +28

    Oh my gosh! How can you make such serious conversations so easy and FUNNY?!?!! What a breath of fresh air!!! You two are so refreshing to listen to. You should be doing motivational speaking conferences.

    • @coleandcharisma
      @coleandcharisma  Рік тому +5

      Awww thank you so much for this kind message!! Thank you for watching 🥰💙

    • @juliadegouvea
      @juliadegouvea Рік тому +1

      Although nobody would wish to have serious disabilities, I see that people who have to deal with them, like Cole and Charisma, know how to cherish simple and precious moments like few people do. We see people arguing and being unhappy because of unimportant things. Cole and Charisma are great examples for me of how to be happy, being loyal, simple and realistic. That is so great! Thanks

    • @florencenaluwagga6945
      @florencenaluwagga6945 Рік тому

      ​@@juliadegouvea❤

    • @florencenaluwagga6945
      @florencenaluwagga6945 Рік тому

      ​@@juliadegouvea19:06

  • @mazyellow28
    @mazyellow28 Рік тому +23

    Third year nursing student here so I'm just guessing but one theory why one leg is warm and the other is cold could be due to impaired thermal regulation (which has to do with poor circulation as you mentioned). Basically when you're cold your body sends more blood to your body's core so that your vital organs remain at a good temperature. One leg staying warm means the signal is broken or the mechanics for getting your blood from your peripheries to your core is impaired. I actually work as an assistant nurse in a Spinal Cord Injury unit so I will try and find out the answer to this! xx

  • @trishatempler8410
    @trishatempler8410 Рік тому +12

    My dad used to get UTIs often. I suggested a probiotic to his Dr & he agreed. We bought Reuteri from Amazon. They are very tiny pearl shaped. He never got another UTI again. Hopefully this will work for you.

  • @runettemccrea5392
    @runettemccrea5392 Рік тому +59

    “I’m being a T3 paraplegic for 33 years. When I am in pain. My blood pressure will usually go up, and this is how I know I am experiencing pain, when I had broken my foot.”

    • @hot_wheelz
      @hot_wheelz Рік тому +4

      In situations like that you're likely experiencing Autonomic Dysreflexia.

    • @frostydinosaur8187
      @frostydinosaur8187 Рік тому +5

      Interesting that I’ve never really though about it, but im the same way. Im also a paraplegic and anytime I hurt my foot from banging it or something I only know it’s in pain because I can feel my blood pulsing through it.

    • @hot_wheelz
      @hot_wheelz Рік тому +3

      @@frostydinosaur8187 if your injury is T6 or above you have a high likelihood of experiencing Autonomic Dysreflexia although some people with injuries as low as T12 experience Autonomic Dysreflexia it's just less common.

    • @qutie1999
      @qutie1999 Рік тому +5

      I've been a quad for over 34 years and AD is no joke!!! It can mean many things are wrong. Watch your blood pressure. If it goes on too long you can have a stroke. They make me sweat profusely. I'm a c5-7 incomplete and don't sweat on a regular basis. During AD I am miserable!
      Also it can be a bladder needing to be emptied type thing

    • @runettemccrea5392
      @runettemccrea5392 Рік тому

      “Thanks!”

  • @michaelgutierrez-iz3ej
    @michaelgutierrez-iz3ej Рік тому +4

    Simply put, THANK YOU! I had a SCI four years ago (at the age of 59) and it changed my world. Every time I hear you two talking about your SCI I learn something, so keep it up, because knowledge is the key!!!

  • @ninaappelt9001
    @ninaappelt9001 11 місяців тому +1

    The thing I love most about Cole is he never stops trying new things. He had come so far since his injury happened. He's had lots of support along the way, of course, but he has worked his butt and learned tricks of the trade, so to speak to enable him to do almost everything.

  • @daniellebarry4593
    @daniellebarry4593 Рік тому +56

    I have cerebral palsy and if a child asks me why I walk or talk differently. I tell them I was sick as a baby. In the past when I have told people that my lungs didn’t open up at birth people flip out, so I tone it down for children.

  • @rusty9092
    @rusty9092 Рік тому +7

    I find this amazing that anyone has the gall to question what Cole can and cannot do. This channel has been very informative and appreciate how open and honest the both of you are.

  • @shoppingaddixx
    @shoppingaddixx Рік тому +3

    I was in a boating accident and had to have 3 back surgeries. L5-S1, L1-4, T7-10, C2-5 was injured but only surgery on L5-S1.. I was fortunate enough to still be able to walk but I did loose bladder function. And I did therapy for 15 years on my back but now I have SPS and I’m bed bound. But I. Oh lent imagine what cole goes through. God bless you and what you go through. All situations are different and no one should try and compare or try and say thing about someone else’s injury without living in their shoes! Thanks for being so open. My drs always wanted me to write a book or UA-cam channel on my 17 year story but if I don’t remember it all bc I have over 32 autoimmune, autonomic, neuromuscular and gut diseases and I don’t think anyone would be interested in see a girl talk about my rare sps while stuck in bed

  • @martysinq4831
    @martysinq4831 Рік тому +46

    You’re hilarious Cole!

  • @bettydonahue3961
    @bettydonahue3961 Рік тому +79

    Cole just try to ignore the negative comments Ya'll are doing a great VIDEO with each other

    • @stelanie28
      @stelanie28 Рік тому +1

      As someone with a disability, telling someone to just ignore negative comments is annoying. If people told you to " just go to the hospital and get fixed" or "you're too beautiful to walk that way," or, God made a mistake on you, or Noone will ever marry you walking like that or when people in the parking lot tell me I'm faking just so I can park in that space. I have so many more, but one thing is don't tell that to people. That whole sticks and stones crap is lies, and mental health for many is crumbling.

    • @bettydonahue3961
      @bettydonahue3961 Рік тому

      @@stelanie28 You sound like that you have more than just being a handicapped person you feel like the whole world ose you pittie party. You see I also have a disability but I don't have a negative attitude towards everyone Sounds to me like maybe you should grow up some

  • @alittlebitofeverything2310
    @alittlebitofeverything2310 Рік тому +2

    Love you guys! following you for years, since Coles accident. I can't wait to see the children that you will both have. Wishing you both many blessings.

  • @SuperFoodParents
    @SuperFoodParents Рік тому +52

    AZO is a cranberry supplement I used to stop my 2nd UTI from progressing and I don't need antibiotics with that AZO 👍🏼

    • @Drbethturtlewoman
      @Drbethturtlewoman Рік тому +7

      yes, it works by changing the Ph and it makes it harder for some bacteria to hang onto the bladder wall.

    • @TweetyPAK7
      @TweetyPAK7 Рік тому +2

      I have used Azo as a preventative ever since my mother's urologist suggested she take it. I had to stop when I couldn't have "extra" vitamin C.

    • @SuperFoodParents
      @SuperFoodParents Рік тому +3

      @@TweetyPAK7 Same thing here, the 1st UTI doctor told me to get AZO, just the plain one with no extra ingredients & get lots of water so my kidneys could heal with hydration

    • @davidaogbar7348
      @davidaogbar7348 Рік тому +1

      I second this - I have a sister with disabilities (and a catheter) who struggled with UTI's for years and AZO was helpful with us getting her urine cleared up

  • @ednanelson1897
    @ednanelson1897 Рік тому +123

    My sister in law was in a coma for 12 years before she passed away. I would never let my family do that to me. She had a brain embolism and put on a ventilator. When they decided to take her off, she started breathing on her own but never came out if the coma. It was hell on the family. 😢 So trust me, Charisma is real. I don't think you could dream such a sweet and gorgeous wife.😊

    • @lobbiebroussard336
      @lobbiebroussard336 Рік тому +3

      ❤❤❤😊

    • @chrissyfoley7361
      @chrissyfoley7361 Рік тому +6

      I’m sorry this happened. This is why having a living will is so important. I have all my ducks in a row with my will and living will.

    • @missLeamon2023
      @missLeamon2023 Рік тому +4

      Thank you for sharing. Its intresting.

    • @denisewebb5073
      @denisewebb5073 Рік тому +4

      12 years? OMG. 😢

    • @karenodom2420
      @karenodom2420 Рік тому +3

      Very informative, thank you

  • @jerrylaninolan923
    @jerrylaninolan923 Рік тому +2

    You two can be hilarious! I’m just an old able bodied person, but I enjoy being educated by your lessons on spinal cord injuries. You’re good teachers. Thank you, Professors Cole and Charisma!

  • @Justherehanginout1
    @Justherehanginout1 Рік тому +2

    Can i just say.. out of all the influencers.. and u tubers.. yall are so genuine. I love you both soooo much . . And your relationship.

  • @nic2387
    @nic2387 Рік тому +10

    I am a final year physio student in Aus and this video was so helpful! I often watch your videos to help me get a better grasp of what life is like for someone living with a SCI. Framing your function/ability as still being able to learn new skills with the function you have is such a great point! 🙏

  • @dianesembly9606
    @dianesembly9606 Рік тому +32

    Cole is incredible 😊

    • @briggsbriggs7954
      @briggsbriggs7954 Рік тому +1

      Awesome

    • @Tamira17676
      @Tamira17676 Рік тому

      Hope you have a good caretaker as Christmas doing to cole or wish to be one from Kenya

  • @sarahchuma1772
    @sarahchuma1772 Рік тому +208

    C'mon Cole....lotion is a language of love for a blackwoman. We need to talk on this... Charismas reaction to lotion made my day 😂😂😂😂

    • @coleandcharisma
      @coleandcharisma  Рік тому +24

      🤣🤣🤣

    • @lettiegrant9447
      @lettiegrant9447 Рік тому +6

      All women use lotion.

    • @Bellz972
      @Bellz972 Рік тому +14

      😂 Has anyone seen the stand up with Bill Burr about using lotion? He said that he didn't use lotion for over 30 years of his life 🤣🤣🤣

    • @SasaSasa-wy9wu
      @SasaSasa-wy9wu Рік тому +7

      Charisma u killed me when u said “ as a BLACK WOMAN “ lol cuz I know that’s right

    • @usmc_sunscreenqueen
      @usmc_sunscreenqueen Рік тому

      ​@@lettiegrant9447I slather it on EVERY SINGLE NIGHT! Love Palmers cocoa butter & all that. ❤

  • @rhondawilson1206
    @rhondawilson1206 Рік тому +9

    "...snorting without noticing..." made me laugh and spit out my drink!😂😂

  • @marynamurray9385
    @marynamurray9385 Рік тому +3

    Cole and Charisma explaining his functions so well!

  • @ChildofObatala
    @ChildofObatala Рік тому +5

    I have a disease called Charcot Marie Tooth. It effects my hands and wrists as well. My fingers, on my right hand, no longer straighten out and I hold the phone just like you. The reason I started watching the two of you is because I issues have quite a few things in common. I can walk, but nowhere near how I use to and I’m using a chair most of the time now.
    I wish all the best, especially when it comes to those who think all disabilities are alike and don’t give us room to be unique.

  • @dagimgebre1821
    @dagimgebre1821 Рік тому +14

    Love you guys from Ethiopia ❤

  • @mariondiemert430
    @mariondiemert430 Рік тому +8

    My son Chris was a c6/c7 quad injured in 2002. About six years later, we met a former neighbor and he asked 'Is Chris walking again?' It is very difficult to educate people about the severity of a spinal cord injury. I must admit, I was ignorant before my sons accident. Ten years into his life as a quad, he made all of us in the family promise to not ever 'let him exist as a vegetable'. After his stroke late January 2021, the hardest thing I have ever had to do, was pull that plug. Love you guys, Charisma, you are a gem; and you Cole, are amazing.

  • @donnaross9530
    @donnaross9530 Рік тому +3

    Absolutely beautiful spirits and loved the discussion about being in comas! Laughed out and made my morning! Keep on with the lovely videos and awareness of SCI ❤

  • @angieanderson2161
    @angieanderson2161 Рік тому +39

    I was born with a disability, called spina bifida, my legs don’t work real well, so I don’t walk I’m confined to a wheelchair, but my arms worked just fine, but I do know how it feels to be asked, or judged about my disability

    • @mejusthot
      @mejusthot Рік тому

      SB here too ❤

    • @amycollins5502
      @amycollins5502 Рік тому +1

      Same here

    • @runettemccrea5392
      @runettemccrea5392 Рік тому

      “Yes!
      After 33 years and as the new year approaches, because my injury will be 34 years. People are still asking questions that doesn’t relate to you what I personally am experiencing as Runett as a T3 paraplegic spinal cord injury, because as Cole stated. There may be certain level of spinal cord injuries, but there’s no two people will experience the same problem.”

    • @meliosorio105
      @meliosorio105 Рік тому

      SB here too. Relating to a lot of what Cole experiences

  • @idacooper625
    @idacooper625 Рік тому +5

    You have some crazy people in the world keep doing you Cole I was a nursing assistant for over 35 years

  • @evanosek562
    @evanosek562 Рік тому +1

    love you guys! Been following your story for a long time and was always more inclined towards Cole , the inner strength and determination, healthy insight and intelligence , etc.. etc .. is purely amazing, to overcome such nightmares and remain positive and collected.. wow.. The last video I watched of answers 5yrs ago vs now.. it really shined Carismas personality and perspective in more detail , and clearly this girl loves Cole , she is very intelligent, determined etc..etc .. and Coles present condition shines , he seems to be doing so well ... all in all I wish you both infinite happiness and those triplets asap !!! xoxox

  • @rufflufsen
    @rufflufsen Рік тому +1

    I think Cole’s hush comment was very respectful. It’s short and to the point! 👍

  • @sandrakindles9456
    @sandrakindles9456 Рік тому

    You two are so easy going with each other. Loving and understanding with each.

  • @elizabethsmith-rs3gh
    @elizabethsmith-rs3gh 8 місяців тому

    Hello Charisma and Cole. I really love you both. You both are really great together. Thanks for the information. I am 70 yrs. Just love watching you both.

  • @euniceolawoyin1041
    @euniceolawoyin1041 Рік тому +2

    Cole and Charisma are amazing, honestly responding to everyone's questions and opinions even the negative ones.God has been with you,giving you needed strength and capabilities exceptionally. Continue to enjoy divine grace and mercy 🙏God bless and bond you more divinely 🙏❤️❤️🔥🔥🌹🌹

  • @lisaasher3147
    @lisaasher3147 Рік тому +1

    You two are amazing!! Don’t let people put you down. They don’t know.

  • @glorialowe5881
    @glorialowe5881 Рік тому +1

    You do look really good Cole much better and has improved . Just great handling yourself. You guys are great together.💕 Love your hair Charisma❤

  • @PhilMcKraken05
    @PhilMcKraken05 Рік тому

    Hush is the polite way of saying what Cole really wanted to say. He rightfully could have said harsher words for the subject

  • @alyssa7464
    @alyssa7464 Рік тому +3

    I wanted to make a comment on what you were saying about people comparing themselves to your injury. I want to say this with the most respect but I feel like a lot of times what people are trying to do when they compare themselves with your injury is relate to you. Some people aren’t really good at relating to other people And I agree I’ve been through some stuff that has nothing to do with the physical injury more emotional and I felt very similar to the way you feel it only you know but that’s what I wanted to say is that sometimes people want to be able to relate, and “some people just are really disrespectful and rude “ and there’s no excuse for that .
    I love you guys I love your contact and I’m glad you share all the stuff that you share you guys always put a smile on my face. Thank you.🙏🏻🤗🙏🏻🤗🙏🏻

  • @sandrakindles9456
    @sandrakindles9456 Рік тому

    These two are so at ease with each other.

  • @eskye4393
    @eskye4393 4 місяці тому

    Hush is just fine. // I’m praying so much for you., all of you 🙏🏽💖🙏🏽💖

  • @junbh2
    @junbh2 Рік тому +6

    As a child I basically believed that people always either broke their back right at the waist, or broke their neck right above their shoulders. I didn't really think about the fact that of course you could also injure your spine anywhere between those two exact locations as well. So I was really confused the first time I saw someone who had partial function in their arms, and even more confused when they described themselves as quadriplegic.

  • @yaphehhairskin-shiphrah4498
    @yaphehhairskin-shiphrah4498 Рік тому +3

    I sooooo miss Christopher Reeves, I watch all his movies all the time. Coles does almost everything and be everywhere so he’s good 💪🏾🙌🏽❤️

  • @herstorylives7405
    @herstorylives7405 Рік тому +1

    You two are soooooo good together!!! I pray that God will continue to bless your love and union.

  • @beverlydust5381
    @beverlydust5381 Рік тому +6

    I enjoy watching your channel because you are so open and optimistic about your life experiences, my life motto is I'm upright and moving forward with my life. I was born with spina bifida and hydrocephalus,and have had several surgeries, including :three brain surgeries for hydrocephalus ,and two back surgeries, the first one was at five days old ,and the second one was spinal cord release because of scar tissue, I also had an injury to my neck ,my discs collapsed C 3,4,5 .I use a walker or a cane for mobility. I don't mind if a child asks me questions about why I walk funny or why do you use that I don't discourage them asking questions I give simple short answers like I hurt my back, I had an operation. If an adult asks questions about my situation how much information I give depends upon what they ask me and why they are asking. This video and previous videos about your injury have been very informative and understandable and helpful to people who are new to the spinal cord injury community.

  • @mgtv5482
    @mgtv5482 Рік тому +1

    Thanks for the education. This is such a different world for me so I appreciate the knowledge that could give me greater empathy for people with that different experience.

  • @natashawalker7934
    @natashawalker7934 Рік тому +6

    That is so me and my husband. I am black and he is white. His elbows and knees are so rough. He says he doesn’t like the feel of it on his hands.

  • @berthagreen1620
    @berthagreen1620 Рік тому

    You’re so honest. I’m impressed with both of you. Kids are curious and if they ask , it’s good to answer.

  • @heatherryans3960
    @heatherryans3960 Рік тому +1

    Thanks!

  • @scottstone978
    @scottstone978 Рік тому +26

    Regarding one foot or leg being cold to the touch, have you ever had any issues with blood clots in your legs or deep vein thrombosis ?

    • @robynallen894
      @robynallen894 Рік тому +3

      That is what I was going to tell him

    • @coleandcharisma
      @coleandcharisma  Рік тому +18

      Not that we’re aware of! Cole doesn’t have a lot of swelling which made us think that may not be the issue. It would be good to get checked out though!

    • @qutie1999
      @qutie1999 Рік тому +1

      At around my 26th year of being a c5-7 incomplete quad I woke up one morning and my leg was swollen. Not hot or cold. Dr saw me and sent me to have a doppler. 4 clots in 4 veins. Now on coumadin.

  • @hot_wheelz
    @hot_wheelz Рік тому +1

    Hi Cole, the natural tightening of your grip when your wrist is in extension is called tenodesis grip.

  • @danieljleslie
    @danieljleslie Рік тому +38

    I'm a C3/C3 quad, and I'm easily startled. (Other people sneezing even startles me.) I think it's a quad thing. I have no solution for you.

    • @epiclexi1234
      @epiclexi1234 Рік тому +6

      being easily startled is one of the main symptoms of PTSD!

    • @PrincessChibi21
      @PrincessChibi21 Рік тому +4

      Saaaame. I'm a C5 quadriplegic. So many different things startle me to the point where I tremble now... 😢

    • @shrimpie69
      @shrimpie69 Рік тому +4

      ​@@epiclexi1234Came here to agree. I've got CPTSD, and one side effect is being easily startled. Idk if it's hypervigilance or what. The single biggest trigger, embarrassingly enough, is the doorbell.

    • @darleneburns8906
      @darleneburns8906 Рік тому

      Yes! Compression sock

    • @taiwoshaw5971
      @taiwoshaw5971 Рік тому

      I’m smiling 😀

  • @AnnetteDennis-m6m
    @AnnetteDennis-m6m 8 місяців тому

    You two care for each other deeply! Two really great people❤️💕

  • @OsbornIOW
    @OsbornIOW Рік тому +2

    Always a pleasure to spend time with you two. Thanks 😍

  • @rickjennen1760
    @rickjennen1760 Рік тому +15

    i am a para. have been since birth, i have been very much enjoying your channel, keep it up

    • @mejusthot
      @mejusthot Рік тому

      Para since birth here too 🙂

  • @amor797
    @amor797 Рік тому

    Nuts oils are great for skin, heals burns (like with hairstraightener) and some wounds (will not recommand on deep oned unless healed then on the scar).
    Always clean the skin before and put disinfectant before, apply with gause

  • @Jasapan-u4s
    @Jasapan-u4s 11 місяців тому

    I appreciate your candid willingness to share. Very educational. Thanks guys.

  • @noxolomatshaka2257
    @noxolomatshaka2257 Рік тому +4

    Thank you so much always educating us... You are so amazing. Cole God loves you so much and He knew you would be of great help in the entire world. UA-cam really plays a major role in allowing such info to reach so many people who used to lack such incredible knowledge. Thank you Charisma for your amazing love and eagerness to equip yourself with so much knowledge and see how confident you present to us... I love you family... Stay positive❤️❤️❤️🙏🙏🙏💐💐💐🇿🇦🇿🇦🇿🇦

    • @sonyaposton5497
      @sonyaposton5497 Рік тому

      I just watched this today and I truly can spend my whole day with the two of you. I love your personalities and info. My mom broke her neck and the doctors told her she would never walk again - she proved them wrong by the Grace of God. She's gone now but she had an attitude like Cole and she made things happen. Cole if you use cortisone on your elbows and knees that is fast healing and soothing. Keep doing you and know that I consider Charisma and you family...you're both a Godsend to us all. Much love and God bless.

  • @roxiesimon5353
    @roxiesimon5353 Рік тому +1

    I really think you have Cole it's amazing you got this, next chapter is the baby so happy for you guys ❤❤❤ strong caring loving couple

  • @rondysiv
    @rondysiv Рік тому

    Love the MATRIX graphic!!
    Good info - normalizes differences in people.
    I read some COMMENTS too - y’all are making an impact. POSITIVE impact!!

  • @clboymom9467
    @clboymom9467 Рік тому +2

    Lol 😂 Loved the very ending Cole when you realized you were still recording!

  • @Liberty-p8z
    @Liberty-p8z Рік тому +88

    Cole maybe you could use elbow pads to take pressure off your elbow.

    • @joro241
      @joro241 Рік тому +4

      I was going to recommend the same thing but as I was I'm listening to wifey say he won't use lotion so... I'd say the elbow pads aren't going to be worn as often either 😂😂

    • @ninaappelt9001
      @ninaappelt9001 10 місяців тому

      Pads might might cause pressure points.

  • @patriciablagrove206
    @patriciablagrove206 Рік тому

    You both spoke about these topics already. These people are new followers I guess. I am happy to see you both.

  • @IgnoranceAverse
    @IgnoranceAverse Рік тому +3

    This video was so funny to me. 😆 Cole has a wonderful sense of humor.

  • @randijaccelerationsquad
    @randijaccelerationsquad Рік тому

    So much of what you talk about is the same with a lot of disability groups! Thanks for sharing your perspective!

  • @ValerieArchibald-e5y
    @ValerieArchibald-e5y Рік тому

    I love that Charisma is a NATURAL beauty......

  • @oceanpoet1
    @oceanpoet1 Рік тому

    wow. your last question and answer was very important. I don't think many people know that. you both are so natural and comfortable in front of the camera. great content. God bless you both

  • @stelanie28
    @stelanie28 Рік тому +1

    Happy Anniversary! I hope your first official anniversary year was amazing and congratulations on the new house. So much more to come and keeping my prayers for a baby.

  • @carlagat1075
    @carlagat1075 Рік тому +10

    Lol loved the early outro 😂. Would using your stander more often help with circulation? Loved the very end Cole. 😂

  • @TheMrTDrain
    @TheMrTDrain Рік тому

    As a OTA student its great to watch these videos.

  • @epiclexi1234
    @epiclexi1234 Рік тому +6

    being "jumpy" or easily scared is one of the main symptoms of PTSD so that's most likely the reason

    • @lindav1189
      @lindav1189 Рік тому

      Correct. I've been diagnosed with PTSD and I am very easily startled.

    • @anonnona6433
      @anonnona6433 Рік тому

      I can imagine. And knowing that in a crisis he would need a lot of help to say, escape, it must be a survival mechanism of some sort. His senses are heightened. I am not an expert in that field. I am just thinking about it. Charisma could talk as she walks towards him to make it easier on him. 🤷🏽‍♀️

  • @barbarahagofsky1191
    @barbarahagofsky1191 Рік тому

    I love the way both of you have shared your lives with us. Thank you for all of your honesty.

  • @keishagardner1318
    @keishagardner1318 Рік тому +3

    Love you both ❤❤❤❤❤ watching from Jamaica 🇯🇲

  • @susanaporto454
    @susanaporto454 Рік тому +1

    On minute 20:58, you ask "is this real life?" and I immediately started singing Bohemian Rapsody!! "Is this the real life, is this just fantasy..." 🤣🤣🤣🤣

  • @naomivantonder1161
    @naomivantonder1161 Рік тому

    It is also very important how quickly you get help. The longer it takes to get medical attention more swelling occurs and more damage is caused.

  • @mattbarker7739
    @mattbarker7739 Рік тому

    Am also a disabled person in a wheelchair an I totally agree with ya about the kids coming up an asking questions, it helps them learn about ppl in wheelchairs I think an keeps them from just wondering why we have to be in a wheelchair

  • @sharonlockett3098
    @sharonlockett3098 Рік тому +3

    And he also use it like a lotion because his healing and plus it gives you shine

  • @crohniequeenab
    @crohniequeenab Рік тому +1

    Y’all are so cute. Love the new hair color I’m really loving the braids. Cole looks handsome too with his haircut. It drives me nuts when ppl tell me what my disability is like and how to fix it. It’s ridiculous glad you addressed that for sure.

    • @kdcbattlecreek
      @kdcbattlecreek Рік тому

      Agree. A church member (!) who believes she has some sort of gift advised me to drink cranberry juice. Told me she doesn't need to know what I have...

  • @twizack22
    @twizack22 Рік тому

    6:45 I'm so immature. Oh Charisma finds it funny too. You guys are so great. 🥰

  • @sharoncampbell3726
    @sharoncampbell3726 Рік тому +3

    I have a feeling Cole will be able to do at least 40% in the next 3 to 4 years. I know things will be better. Good luck guys, you are both terrafic. ❤❤

  • @shirleyhardnett6067
    @shirleyhardnett6067 Рік тому +6

    Beautiful lovely couple. I love watching your video

  • @pamelaferebee3648
    @pamelaferebee3648 Рік тому +2

    The information was very informative. Blessings to you both 🙏🏾

  • @lillyboldlyshewhispers7145
    @lillyboldlyshewhispers7145 Рік тому +1

    You two are adorable..
    Informative insight too.
    Double comma. 🤭💕
    My cousin years ago.
    She had a spinal Injury,
    And she had broken her leg.
    She kept trying to tell her caregivers at the rehab center.
    But they didn't take her seriously.
    Of course infection set in and she had to have her leg ambutated.

  • @Jah_LEASE_yah
    @Jah_LEASE_yah Рік тому +4

    "But I'm in my head, I'm have my own head!" Carisma is like, "I have complex thoughts. I'm not a figment of someone else's coma dream!" LOL

  • @meanmattworld
    @meanmattworld Рік тому +2

    i take sulfitrim or macrobid for my bladder, also made it a habit to drink more water, I get catherized 4 times a day, infection can be unavoidable, i wish i had them once a year, unfortunatly maybe one every other month or so

  • @ellenhuls5458
    @ellenhuls5458 Рік тому +1

    I hope you'll get invitations to talk about this. It's really important to educate people to have more knowledge and awareness about spinal injury . The more information they get the better. You can share your experiences to other people and to children as well , in school for example . You're both incredible. God bless 🙏 ❤

  • @adriee85
    @adriee85 Рік тому +2

    You guys are amazing! Keep the information coming. We could all be one accident away from a serious injury. Your take on things, the way you live your life showing everyone a life without limits. Thank you so much. Ignore the haters and those who think they know you. Keep going, keep growing, keep sharing and keep loving each other purely and completely. Your truth, the truth is all that matters‼️

    • @LuziaSilvaMagalhaesOrest-pe2yx
      @LuziaSilvaMagalhaesOrest-pe2yx 10 місяців тому

      Deus sabe o que faz Deu Charisma a. Vc e coll a Charisma dupla dinâmica amor ligitimo. Amor ao proximo estava escrito amo vcs

    • @LuziaSilvaMagalhaesOrest-pe2yx
      @LuziaSilvaMagalhaesOrest-pe2yx 7 місяців тому

      As pessoas rudes nunca conhecerão. O verdadeiro amor na sua exencia porisso fazem perguntas tosca e Deus lhe propoe respostas amaveis elas que devem sair do seus vlogs econtinuar com a turma deles na escuridaoque alhas si jesus na causa tenho tolerancia. Zero com estes seres acho que sao abominaves invejosos causao o mau

  • @valoriehedrick4329
    @valoriehedrick4329 Рік тому

    Y’all are so funny together! It’s obvious how you communicate, with humor and light ribbing. You guys would be fun dinner guests. “Your parents would have pulled the plug by now” I laughed out loud at the whole coma conversation. 😂

  • @janicecscott8978
    @janicecscott8978 Рік тому

    Cole and Charisma I just love you guys. You guys have such a bond. God bless and I am waiting for your little ones. 😊🌺

  • @EternalLoveAnkh
    @EternalLoveAnkh Рік тому +12

    Modifying the first question, do you get annoyed when you meet a therapist or someone in the medical field in public (a stranger) who tries to suggest exercises you "need" to do to improve your body because of your disability? That always annoys me because that person doesn't know me, the severity of my disability, or what I do on a daily basis to stay healthy.
    RJ

    • @dat1ndnguy
      @dat1ndnguy Рік тому +2

      I can't speak for Cole, obviously, but I definitely get irked by that. They tell me how things "should" be and I'm all 🙄 do YOU have spasticity, weight gain, tired wrists & elbows to worry about? If you fall on the floor are you just stuck there? NO. Your able-bodied and I just know most of these methods were not invented by folks who've struggled with SCI.

    • @qutie1999
      @qutie1999 Рік тому

      If someone, even a medical professional wants to tell me to take better care of myself, I'd seriously laugh at them. Noone has the euchre to talk to you about that unless they are taking care of you and your weight is a problem for them to move you

    • @runettemccrea5392
      @runettemccrea5392 Рік тому

      “I second that question!
      Some healthcare folks are the worse at telling you things, because they know what they have learned from education on spinal cord injuries. But I find doctors are more in the field to ask me, what I am experiencing from the level of the injury personally.

  • @imscanon
    @imscanon Рік тому +3

    Usually when one foot is cold and the other warm it's a sign of peripheral vascular disease (PVD) that you def. should see a doctor for, however, I don't know if it's also something that just happens with spinal cord injury. Worth asking the doc about though.

  • @sharonhilliard3780
    @sharonhilliard3780 Рік тому

    Thank you for answering all the good questions ...many of them I didn't know . Especially one on fundraising .Cole and Charisma you are such a inspirational couple .
    Love you guys ❤

  • @srichey444
    @srichey444 Рік тому +12

    Thanks to WebMD and Google, everyone thinks they're Honorary Doctors now. 😂 It doesn't matter if 5 Quads are in a room.... each person will be at a different level of the Mechanics of their Individual bodies. Love you guys! 🙏🏽✝️

  • @colleencomeau-edison7625
    @colleencomeau-edison7625 Рік тому +3

    Thank you for answering all the questions and thank you also for including me in your coma. 😅

  • @beckyhines3814
    @beckyhines3814 Рік тому +4

    I have Spina Bifida and I have found growing up that Adults are the worst. They stare and ask more questions than the kids do. That's what really got me. Adults should know not to do those things. If a child ask me what's wrong with me I try to explain things to where I think they understand more than what their parents might try and explain that know nothing about me.

  • @texasoutlook60
    @texasoutlook60 Рік тому +1

    I learned a lot from this video and y'all did an excellent job explaining things. Thanks and hope to see more of this type of content!

  • @Christy-og6kz
    @Christy-og6kz Рік тому +2

    Omg! Swelling in Florida is sooo true! T-4 para…

  • @thebestestoneever
    @thebestestoneever Рік тому +1

    I love the, 'with all due respect, hush' :)
    And I'm glad to be in this 'coma' with you both :)