Minimal Change Disease destroyed my kidneys!
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- Опубліковано 22 сер 2024
- This is part 1 of a series coming up about my experiences through my last couple of hospital visits due to my kidney disease, Minimal Change Disease. I became deathly ill due to this and had a lot of experiences and trying times that I will outline in this series.
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What are your experiences with MCD or Kidney Disease?
hey i’m 18 and i’ll have had MCD for 2 years soon. I’m also steroid dependent , currently on prednisolone, Ramipril and Tacrolimus. I understand your frustrations- these steroids seriously mess with you physically and mentally. I find your post really inspiring and I think it’s important more people speak up about their illnesses. Next year I hope to be going to medical school depending on my exam results. My aspiration is to become a consultant nephrologist and make something positive of this shitty disease.
Great post mate, love from the UK😎😎😎
I have the same disease brother. I’m 49 and am finishing my 6 months of prednisone and tacrolimus on October 1st. And praying that it works, this is my second flare up. My symptoms and side effects are very similar to yours. I completely changed my diet , I cut out dairy and all meat accept for fish , and fruits and vegetables, and special k cereal w/ almond milk. I’m counting on that to keep me in remission, oh yeah cut out salt completely!
Anyway thank you for making these videos, they have been really helpful, and I wish you the best of luck, and God bless you!
Hi Ronnie! Good to connect with somebody else who has this rare disease! Thank you for watching and for the kind words! I hope and pray that you stay in remission and that the disease does not further progress for you. Keep in touch and thanks again!
I also have MCD. I went to Cleveland Clinic in Ohio, they gave me prednisone and chemo. Once I’m off the meds the disease flairs up and I’m back on the meds. At this point I’m on prednisone and chemo infusions. This is a rough disease. Stay strong.
My 6 year old was diagnosed this summer. It is terrifying!
I have MCD since 2017 still taking steroids
Steroids are rough. I hope they are helping you though.
Steroid depended...