Endometriosis and the bowel

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  • Опубліковано 10 січ 2025

КОМЕНТАРІ • 103

  • @galainak4195
    @galainak4195 Рік тому +12

    One of the best videos on Endometriosis! Looking forward to see more videos from DR Cherry Koh. Thank You.

  • @dianafernandez5226
    @dianafernandez5226 4 роки тому +67

    Most Drs. are incompetent or they simply dont care because they are not the ones suffering.

    • @Paulgray172
      @Paulgray172 2 роки тому +5

      I know it’s insanely frustrating. I’ve told doctors for more than 20 years that I’m in a incredible amount of pain, and only now that I’ve raised issues about infertility is anyone taking me seriously. I think they’ve just been trained that hormonal therapy is the best treatment. I’ve met some wonderful doctors who are really trying their best, but their education system has failed them. I think if there is any blame to be placed it’s 1. On the educators, and 2. Women’s health and obstetrics should really probably be different fields/specialties.

    • @idk.what.to.write.anymore2520
      @idk.what.to.write.anymore2520 Місяць тому

      Being a dr myself, (junior Doctor) and recently had my surgery for my endometriosis..would say it is very frustrating that I need to understand my own body and yeah cant expect whoever not experienced the pain to fully understand us. I have to read up and make it into discussion with my doctor.

  • @vanessayodog
    @vanessayodog Рік тому +7

    Best explanation and theory I’ve heard so far. Thank you

  • @wmd40
    @wmd40 2 роки тому +15

    I wish she was my doctor. We don't have anything like this in the US. It's horrifying

  • @gabbyh5304
    @gabbyh5304 3 роки тому +26

    My endo pain at points has made me do some crazy things before, like sitting in really hot baths mid summer or having heat packs so hot that I burnt myself to deal with my endo pain. My teachers haven’t really ever believed me and it sucks because it’s a medical diagnosis I’ve had and now I’m stress how life will be when I enter the work force if I still have to deal with endo cause horrid flare ups where I can’t do anything but cry and bleed
    Edit: I’ve just broken my wrist and waited 2 days to go to the hospital because it hurt way less then my cramps

    • @evilemoji420
      @evilemoji420 2 роки тому

      today i unintentionally told a customer to fuck themselves because i couldn’t bend any more to hand them something

    • @brietta
      @brietta 2 роки тому +1

      thats me right now😔

    • @Evettecord
      @Evettecord 2 роки тому +3

      Clean up your diet. No sugar, dairy, wheat, coffee and also go light on meat because there’s a lot of hormones in it. But really lay off the sugar and dairy. My pain went down a lot just doing that. Also, develop a business because maintaining a 40+/ hr a week job will be very challenging

    • @gabbyh5304
      @gabbyh5304 2 роки тому +2

      @@Evettecord hey I’ve been both dairy and gluten-free for two years due to my stomach issues, but due to how bad my endo is cleaning up my diet won’t do anything (plus I don’t drink coffee). And sadly I won’t be able to make my own business because the field I study requires to work for business

    • @PatientVoicesMatter
      @PatientVoicesMatter Рік тому +3

      @@Evettecord I have been on that diet for over 12 years. Unfortunately, it does not help or even minimize the pain in some people. I am so glad it helped you!

  • @meeganbarnes7240
    @meeganbarnes7240 4 місяці тому +2

    Thank you for sharing these videos.

    • @endometriosissharedperspec4049
      @endometriosissharedperspec4049  4 місяці тому +1

      Glad you like them!

    • @TrollBaby14
      @TrollBaby14 Місяць тому +1

      Seriously I can put into words how this has been driving me insane, lost two jobs because of missing work because these “episodes” as I call them occur at random immediately after having a bowel movement literally while on the toilet excruciating pain so intense I vomit almost projectile vomit style and my doctors have said it’s IBS but what happens to me when I get this episode is unbelievable. Thank you uso much sorry for ranting but my life has been in shambles for the last 3 years and knowing the name of the demon will help me stand a chance at surviving ❤

    • @TrollBaby14
      @TrollBaby14 Місяць тому +1

      Than you SO much for the videos

    • @endometriosissharedperspec4049
      @endometriosissharedperspec4049  Місяць тому +1

      @@TrollBaby14 Good luck - so pleased we could assist.

  • @andalond.s.foundation3172
    @andalond.s.foundation3172 3 роки тому +20

    So for me I use ginger and saffron water and I never have pain any more. I also avoid gluten, fried meat, milk , and cheese. Works wonders.

    • @muskarlaamanita6478
      @muskarlaamanita6478 3 роки тому

      Please how is it done?

    • @odessasingh5335
      @odessasingh5335 3 роки тому +2

      @@muskarlaamanita6478 Hi. You simply grate the ginger and add it to water and allow to rest for an hour or two. Then add the saffron, a tiny bit. Drink every day for two weeks then twice a week. Last you can also have grated tumeric in water. Same process. The tumeric cannot be taken for long periods. You must take it one or two days then skip a week. The gluten and sweets avoidence is the last key. And that is it

    • @muskarlaamanita6478
      @muskarlaamanita6478 3 роки тому

      @@odessasingh5335 thank you! ❤

  • @miranda_winkler2135
    @miranda_winkler2135 3 роки тому +13

    I wish doctors would help! I take unhealthy amounts of ibuprofen (1600 mg) and super primrose (about 2,600 mg) in a day just to be able to walk when the pain is too much and the pain goes from my uterus, bladder, bowl, lungs and honestly my entire stomach. My “endo belly” is present more than it’s not. It’s super frustrating anything I eat or drink and my stomach swells 😩🤦🏽‍♀️ I started adding sea moss gel to my daily routine and that helped with the pain some!

    • @yeseniaenriquez7714
      @yeseniaenriquez7714 Рік тому +2

      Try turmeric pills or liquid form for inflammation

    • @miranda_winkler2135
      @miranda_winkler2135 Рік тому +1

      @@yeseniaenriquez7714 turmeric didn’t help me the only thing that completely took the pain away was taking sea moss gel and moringa powder everyday. Life saver 🛟

    • @JJ-GG2050
      @JJ-GG2050 Рік тому

      Me too Miranda.

    • @miranda_winkler2135
      @miranda_winkler2135 Рік тому

      @@JJ-GG2050 ever since I consistently took the sea moss gel and moringa daily I stopped having any pain in about 1-2 weeks I fell off taking it after 2 months and now the pain isn’t nearly what it was before I started I barely ever have to take ibuprofen or primrose!

    • @JJ-GG2050
      @JJ-GG2050 Рік тому +1

      @@miranda_winkler2135 I'll have to try it!

  • @ZussieMakesit
    @ZussieMakesit 3 роки тому +9

    Whoa! Great knowledge and I wish all OBGYN doctors would have this knowledge or want to have it.

  • @stacyannbowen6493
    @stacyannbowen6493 2 роки тому +18

    My pain radiates down my legs and the pelvic pain is like no pain in his world. It makes me feel like confuse, upset stomach, fatigue etc . My pain starts a week before my period and hen when the period comes I have extreme clotting, severe cramps and heavy period.

    • @saireygamp62
      @saireygamp62 Рік тому

      This often indicates inflammation of nerves that travel thru the pelvis from endo on ligaments, bowel, pelvic floor, pelvic sidewalls, sometimes the nerve itself, an expert in the field can alleviate that

    • @Filthycoffin
      @Filthycoffin 10 місяців тому

      I’ve got this also. Feels like fish hooks all in my vagina and rectum being pulled out

  • @100orjinalsarklar8
    @100orjinalsarklar8 2 роки тому

    Come to think of it I haven't felt the sudden movement on the lower part of my abdomen these past few months. I just want to thank you Dr Iyhere for all you do. Ever since the day I met you on youtube my life has been some worth different.

  • @idk.what.to.write.anymore2520
    @idk.what.to.write.anymore2520 Місяць тому

    I have done multiple ultrasounds and an abdominal MRI prior to my surgery for endometriosis, and no one detect my endometriosis..blood tests were good too...I suspect myself to have endometriosis since my family had one around my age and based on the symptoms. Im lucky as I do have ovarian cyst at the time when I scanned, and I wanted to remove the cyst. Hence, i done the surgery for both removal of the cyst and to confirm my endometriosis.
    For years back I was diagnosed with IBS, had unexplained pelvic pain (which during that time I havent figure it out why I had such terrible pain all over my 'tummy' area, and for that reason, I have difficulty to explain my symptoms to the doctors, had been diagnosed with sciatica, sudden leg cramps or pain. Headaches and many more, which I thought it could be just food poisoning or just gastric or could my ibs flared up, or migraine...only to found out later on its endometriosis all the way. I said, its definitely not easy to get right diagnosis especially the symptoms can be vague. I'm a doctor myself, trying to be more conscious about the disease and hopefully people can get it check as early as possible. It's always okay to have ur doubt or second thoughts about ur diagnosis and get check.
    💛p/s: the pain u're feeling is real, it's okay if no one gets u.

  • @saffronsl
    @saffronsl Рік тому +8

    I healed my endometriosis with diet, stopping pain meds, dealing with digestion issues.

    • @lindang8673
      @lindang8673 Рік тому

      hi...could you tell us more what is your diet..thanks

    • @saffronsl
      @saffronsl Рік тому

      @@lindang8673 anti inflammatory

    • @lindang8673
      @lindang8673 Рік тому

      @@saffronsl thanks

    • @cindymagnuson2453
      @cindymagnuson2453 7 місяців тому

      It is sooooo much about our tainted diet that targets our womb. Thank you for posting your true cure for something that is avoidable if we get back to earing a natural intended diet for our species.

    • @sarahbahy
      @sarahbahy 4 місяці тому

      May i know what was your diet ?

  • @nettwench
    @nettwench Рік тому +2

    It was all around the lower part of my bowels, so for years I thought it was IBS triggered by my period. Brutal. I would collapse.
    Also had ovarian cysts and peritoneal lesions.

  • @tavinahubbard6997
    @tavinahubbard6997 3 роки тому +10

    I have been diagnosed with endometriosis in my bowel it has grown all the way through my bowel I have blood in my bowel when I'm on my menstral. I have severe pain and bloating sometime experience vomiting. I have been misdiagnosed since I was a teen it was always its just bad cramps. Wasn't until the bleeding in my bowel that I was diagnosed. I actually did the research and told my doctor what I thought it was. I recently Had a biopsy and was correct. What can I do please help?.

    • @carolmutua5266
      @carolmutua5266 3 роки тому +1

      Get the laparoscopy surgery done. Make sure they use the excision method and not ablation as it tends to come back. You need a really good endometriosis specialised gynae.

    • @janet2905
      @janet2905 2 роки тому +1

      Hi did you have yellow stools with this?

    • @Pepsigurl-o3w
      @Pepsigurl-o3w 2 роки тому +1

      @@janet2905 I do… and mucous… constant rumbling of the belly and gas… constant diarrhea and nausea with vomiting. It’s hell!!!!

    • @janet2905
      @janet2905 2 роки тому

      @@Pepsigurl-o3w hi there, I've had some mucus too and PLENTY of digestive issues but no diarrhea. Do you know what causes the yellow? Do you know exactly where in your body you have endo?

  • @BloodNote
    @BloodNote Місяць тому +1

    Doctors tell us it's in our heads. When will this stop?

  • @nadaghazawy7068
    @nadaghazawy7068 3 роки тому +9

    Can having endometriosis on the bowel with an adhesion cause leg weakness and problems walking?

    • @endometriosissharedperspec4049
      @endometriosissharedperspec4049  3 роки тому +2

      Nada this can be caused by tight internal muscles - related to endo - but could be relieved by a pelvic physio. Please watch the other videos in our series , particularly Dr Susan Evans and Sherin Jervis.

    • @haileennevsmom09
      @haileennevsmom09 3 роки тому +1

      its horrible .. i think im having bowel endometriosis .. im 41 and just started having symptoms really bad past 8 months.. :( i get such bad gas .. its horrific

    • @nadaghazawy7068
      @nadaghazawy7068 3 роки тому

      @@haileennevsmom09 I think you should voice your concerns to your GP and get a referral to a gyno , i was lucky that a recent surgery for a stubborn ovarian cyst removal revealed i had endometriosis that has also spread to my bowels and i will need surgery to remove it i have a large EN nodule and bowel Adhesions it explains my really bad back and leg pain im also experiencing gas and some constipation my concern which i should of brought up after my follow up appointment is it spreading to my spine and nerves as i also having been experiencing leg weakness and problems walking as well as my legs involuntary shaking i thought maybe it was neurological because i've also been getting seizures with no clear medical reason except having a arachnoid cyst at the back of my head which isn't a concern apparently.
      i don't know if endometriosis can cause seizures my health is a real mystery these days.

    • @odessasingh5335
      @odessasingh5335 3 роки тому +1

      @@haileennevsmom09 please remove gluten and sweet thing from your diet

    • @carris2scents57
      @carris2scents57 2 роки тому +1

      My main pain is in my right hip and back that runs down my leg when I’m on my period. My husband has to pick me up to get me in the tub. And when I’m trying to poop that leg pain is even worse. I can hardly stand it!!
      It’s like I just want to knock myself out.
      I’m 40 and this all just started a year ago after a miscarriage. It takes a week out of my like every month

  • @pg9467
    @pg9467 Рік тому +2

    Dr said i have chocolate cyst and i am trying for baby 😢 i had these symptoms for years only after going to private clinic I have been diagnosed. I have severe bloating, dark blood before and after period, also discharge through bellybutton 😣

  • @artisticagi
    @artisticagi Місяць тому

    8:30 near the cervix can cause pain
    8:42 near the bowel can cause pain

  • @madyali5463
    @madyali5463 2 місяці тому

    Wow... What a video... Finally

  • @JJ-GG2050
    @JJ-GG2050 Рік тому +2

    I want Dr Cherry to do my extensive endo surgery 💔

  • @FeliciaEncinas
    @FeliciaEncinas 11 місяців тому

    Yes I had rectal bleeding and period spotting

  • @marjoriehendrix5353
    @marjoriehendrix5353 3 роки тому +6

    Retrograde menstruation is NOT the cause. That is an outdated theory. Most research recently indicates a genetic component. It has been found to be present in fetuses. Also the video of interviewed people at the beginning of this presentation appears to be content from EndoWhat? Just noting since this is not cited.

    • @endometriosissharedperspec4049
      @endometriosissharedperspec4049  3 роки тому +1

      Hi Marjorie - I am the Producer and Director of these videos - I interviewed all the patients. with Endo and convened 2 conferences on endometriosis where we videoed the presentations. All the footage you see prior to the presentations is mine. We know the producer of EndoWhat and admire her work.

  • @jomassey4207
    @jomassey4207 3 роки тому +6

    Incorrect cause of endometriosis. We are born with a gene as an embryo and the endometriosis cells grow wherever they begin as an embryo. Orlitz theory. Check out Dr Redwines video of the origination. They have a number of the chromosome. I've studied this for over 28 yrs.
    The vaginal ultrasound that shows a rigid, unmoving uterus....or endometriosis causing adhesions at the cul de sac is probably one of the less invasive and most helpful tool in addressing possible endometriosis....but a laparoscopy is the best...with a colorectal surgeon working beside a endometriosis expert.

    • @nettwench
      @nettwench Рік тому

      I agree with that. Because how could it be hereditary otherwise. It was in my culture de sac too. Excruciating.

  • @AmGabrielle
    @AmGabrielle Рік тому

    Can I get info link about the hormone suppression eluded to re the differences of the brain level vs. the ovary level? I've been on period suppression for almost 20 years. I've been on the "mini-pill" single hormone for maybe 2 years (I started having issued with period suppression maybe 7 years ago, but no complete period, only some breakthrough type stuff on the mini pill. But after gaslighting from doctors that I was just having "IBS" it's not obvious this is endo again and probably only resolving with laparoscopy.
    Re this great presentation, if I have the laparoscopy procedure, I may as well have the best combination of care since I'm in my forties now and won't be having bio children. My husband has fertility issues on his end, and my medical situation can't tolerate everything they do if we use medical intervention to get pregnant, so not worth it. We've been married ~12 years and explored possible surgical solutions and medical "menopause", and thank goodness the mini-pill worked. I have active PTSD and other issues like what is now long-term undiagnosed B12 pernicious anemia. The idea of drug based or surgical based menopause with those symptoms active in diagnosed less than a year ago was terrifying.
    Thank you,

  • @Zisjejk
    @Zisjejk 4 роки тому +2

    I believe My endometriosis has grown
    Back
    Because I have all my horrible symptoms
    Prior to my partial hysterectomy surgery

    • @endometriosissharedperspec4049
      @endometriosissharedperspec4049  3 роки тому

      I'm very sorry to hear this but not completely surprised. There is as yet no "cure" for endo - only treatments. I recommend previewing other of our videos for a more complete understanding of endo and management. In particular preview Dr Susan Evans.

  • @purplegirl8036
    @purplegirl8036 Рік тому +1

    So I’m being punished for not having a baby?

  • @artisticagi
    @artisticagi Місяць тому

    4:11 warning ⚠️ you are about to see a very graphic photo of flesh and blood 🫣

  • @haileennevsmom09
    @haileennevsmom09 3 роки тому +3

    so i just started having symptoms since January 2021 .. it started with my left side in the pelvis up to where my bowel is with pain / gassiness .. and up to my chest and neck and my whole left arm was tingly and numb and weak. i ended up having major heavy menstruation and big clots and every time i have my period and only then , i have rectal bleeding also... and went to emergency. they ran ecg for my heart , and some other tests .. my u.s . showed that i have fibroids, and possible endometriosis.. however im still undergoing tests with my ob gyn ( endometrial biopsy , mri ( possible pinched nerve ) but i think my arm is connected to this bowel thing. :(( every month when i get my period , its wayyy worse.. everything .. ive never been so bloated and gassy IN MY LIFE. I hope i find out whats wrong!@

    • @bezayeshitla7719
      @bezayeshitla7719 Рік тому +1

      Please watch your diet and see no meat, dairy and some vegetables

    • @aimes9273
      @aimes9273 Рік тому

      Hello…do you eat fish? What vegetables should one avoid? Is it safe to take calcium supplements since dairy should be cut out? Also how many years have you had this and do you have any kids? Sorry I’m asking too many questions …I’m in my late 20s and worry about issues with conception as a result of endometriosis. P.s none of my siblings has endometriosis and they all got married pretty early.

    • @florinabn4669
      @florinabn4669 Рік тому

      @@aimes9273 28 yrs endo girl as well, super worried about my fertility...basically veggies and fruit are good in general, eggs, fish and rarely chicken but avoid sugar, dairy, lactose and red meat. I read a book by dr Aviva Romm about all kinds of hormonal illnesses and it talks about endo too. I recommend

    • @lystrasamuel5183
      @lystrasamuel5183 22 дні тому

      Hi, do find out what was the cause for your symptoms?

  • @FeliciaEncinas
    @FeliciaEncinas 11 місяців тому

    Yes pelvic pain and back pain omg I have all these symptoms yes bleeding in both areas spotting yes I have all these symptoms no wonder I been so much pain it is unbearable burning sensation pain feels like body on fire 🔥.Javier dose not understand that this why I can't sleep well at night the pain comes at night

  • @cindymagnuson2453
    @cindymagnuson2453 7 місяців тому +1

    Let alone what the recent vaccines did to so many woman's cycles which were specifically targeted in those jabs. Get out of the allopathic system of not understanding nutrition and what the human body needs in the way of living foods that are not tainted with chemical toxins and totally denatured first of all. I am glad she realizes that surgery should always be a last resort.

  • @rachaelclarke3737
    @rachaelclarke3737 2 роки тому +1

    The GPS are incompetent they refuse to refare me to a gynecologist and I am suffering

  • @FeliciaEncinas
    @FeliciaEncinas 11 місяців тому

    Omg this is me and my digestive system sucks I feel so sick I can't even digest my food properly I do get pain in my abdomin pain and I get constipated this why I been crying in pain every night and can't sleep buring pain all over my body I feel like I want to scream the pain so horrible feels like burning pain all over my body every night I can't sleep well cause pain so painful wow this my medical records thanks no wonder I am in so much pain .

    • @lystrasamuel5183
      @lystrasamuel5183 22 дні тому

      Hi,this is happening to me now. Do you check it to see what the cause?

  • @FeliciaEncinas
    @FeliciaEncinas 11 місяців тому

    I feel better when I am not in so much pain the pain is burning sensation all over your body it most horrible feeling I hate it .

  • @durunisss
    @durunisss 2 роки тому

    My younger daughter was experiencing this pain at her lower abdomen few weeks back and we have taken her to different hospitals only to discover that it was pelvic pain, the doctors said they had to operate on it, I couldn't allow them tear her open so I prayed to God to show me the way for the right solution when I came across Dr Iyhere page on youtube. I knew my prayers had been answered.

  • @FeliciaEncinas
    @FeliciaEncinas 11 місяців тому

    I pray my daughter Arianna sees what's wrong with me and Encinas family members this my medical records what this women showed of my medical records showed this me totally all the way .

  • @FeliciaEncinas
    @FeliciaEncinas 11 місяців тому +1

    I am in pain now I hate it no pain with sex

  • @saireygamp62
    @saireygamp62 Рік тому +1

    Endometriosis is different than the endometrium, and will not respond reliably

  • @hanzodiyari1833
    @hanzodiyari1833 2 роки тому +2

    Being in the state made me remember the woman with the issue of blood in the bible, the unnecessary bleeding doesn't ever cease to stop. When I was told about Dr Iyhere. I booked an appointment with him online, he made the herbs available to me as soon as possible. The bleeding ceased since that very day.

  • @FeliciaEncinas
    @FeliciaEncinas 11 місяців тому

    My body haveing burning sensation now happens every night .

  • @sussiemejia8594
    @sussiemejia8594 Рік тому +1

    Hey, frustrates me the doctors never listen to us women the patients their job is to listen to their patients it’s not like we go in there for free we pay them we are paying customers and for them to dismisses like crazy people is absolutely and forgiving if they don’t know how to treat us for Endometriosis they should just say they don’t know how to help us and recommend this to someone else or just say they don’t know and for us to look for help elsewhere and not see that it’s old and I hit😡

  • @FeliciaEncinas
    @FeliciaEncinas 11 місяців тому

    No wonder I been in so much pain every night

  • @FeliciaEncinas
    @FeliciaEncinas 11 місяців тому

    Hi Arianna mom miss you and love you if you have bleeding in your bowl go see Dr right away ok I had bleeding in my bowl and private area and my stomach ok this why I been in so much pain and explains why I was throwing up blood and coffee grinds blood the Gonzalez family should be concerned I am dieing ok and they are not concerned I am a mockery to all Gonzalez family members why I been developing anger and a lot of anger because I am dieing and I am ill ok and critically ill I am glad my sister in law watch what I am going through thank you

  • @FeliciaEncinas
    @FeliciaEncinas 11 місяців тому

    Omg I have adhesions gross

  • @FeliciaEncinas
    @FeliciaEncinas 11 місяців тому

    Encinas family members look at picture of my medical records on this video my medical records pulled here on this video.