- 20
- 120 598
Endometriosis: Shared Perspectives
Australia
Приєднався 23 лют 2020
Whether you’re a health professional or a person living with Endometriosis, you’ll benefit from these evidence-based resources featuring presentations by experienced specialists and interviews with people living with Endo.
Endometriosis is a chronic painful disease but it can be effectively managed with varied interventions. What is the gold standard surgery? How should pain be treated? Can diet, physiotherapy or counselling help? What about fertility? How to relieve painful intercourse?
All these topics and more are covered in this suite of award winning videos - Prime Awards 'Best Public Health Initiative' and 'Sustained Excellence in Bettering Patient Outcomes'.
Supported by a grant from the Australian Government Department of Health.
EndoActive was founded in 2014 by Lesley Freedman and her daughter Sylvia. EndoActive represents the interests of women and girls with Endometriosis through Advocacy, Information and Awareness.
Endometriosis is a chronic painful disease but it can be effectively managed with varied interventions. What is the gold standard surgery? How should pain be treated? Can diet, physiotherapy or counselling help? What about fertility? How to relieve painful intercourse?
All these topics and more are covered in this suite of award winning videos - Prime Awards 'Best Public Health Initiative' and 'Sustained Excellence in Bettering Patient Outcomes'.
Supported by a grant from the Australian Government Department of Health.
EndoActive was founded in 2014 by Lesley Freedman and her daughter Sylvia. EndoActive represents the interests of women and girls with Endometriosis through Advocacy, Information and Awareness.
EndoActive Shared Perspectives
Endometriosis, a chronic painful disease, can be effectively managed but requires varied interventions. These videos feature experienced specialists and a wide range of patient interviews. Whether you’re a health professional or a person living with Endo, you’ll benefit from this evidence-based information.
What is the gold standard surgery? How should pain be treated? Can diet, physiotherapy or counselling help? What about fertility? How to relieve painful intercourse? All these topics and more are addressed by these high quality videos.
These resources are supported by a grant from the Australian Government Department of Health.
What is the gold standard surgery? How should pain be treated? Can diet, physiotherapy or counselling help? What about fertility? How to relieve painful intercourse? All these topics and more are addressed by these high quality videos.
These resources are supported by a grant from the Australian Government Department of Health.
Переглядів: 246
Відео
Endometriosis and pelvic pain
Переглядів 1,9 тис.4 роки тому
The 'big picture' of endometriosis. Pain and Endometriosis don’t always go together, but so often do - and it’s not just period pain. Dr Susan Evans is a gynaecologist, laparoscopic surgeon and author of 'Endometriosis and Pelvic Pain'. She illustrates how 'lesions' can be seen in the pelvis and removed in laparoscopic surgery. What if pain is severe, yet only a small amount of endometriosis is...
Physiotherapy and pelvic pain
Переглядів 8674 роки тому
How can physiotherapy relieve the pain of endometriosis? Pelvic pain can result in reactive muscle contraction. The management of overactivity of the pelvic floor and external pelvic muscles aims to help patients with persistent pelvic pain. Addressing the sensitivity of the nervous system explains the persistent pain experience and provides opportunity to reconceptualise pain for both the clin...
Early diagnosis of menstrual disturbance
Переглядів 3244 роки тому
When is period pain not normal? Melissa Parker RN addresses two main topics. Identifying and diagnosing endometriosis and other causes of pelvic pain - and the early treatment and long term management of endometriosis in teenagers. Early treatment is a stepped pathway to identify and treat various causes and known contributors to pelvic pain, including endometriosis. Most important is that wome...
Ultrasound and MRI for endometriosis
Переглядів 4,9 тис.4 роки тому
Can MRIs and ultrasounds detect Endometriosis? Do you need a scan before a laparoscopy? Dr Kate Stone is an obstetrician gynaecologist with speciality qualifications in ultrasound imaging. Dr Natalie Yang is a consultant radiologist with sub-specialty interests in women’s imaging and MRI.
Psychology, mindfulness and living with endo
Переглядів 8364 роки тому
Dr. Paula Watkins, a clinical psychologist and Syl Freedman, co-founder of EndoActive, outline a holistic psychological treatment programme for managing endometriosis. Dr Watkins describes how she worked with Syl, using cognitive-behavioural and positive psychology and mindfulness to help her cope with endometriosis. Syl explains how that treatment has benefited her in many aspects of her life....
The immune system, inflammation and endometriosis
Переглядів 10 тис.4 роки тому
Endometriosis is considered to be an inflammatory condition and autoimmune condition. Dr Alison Hey-Cunningham outlines immune aspects of endometriosis which can be harnessed to inform lifestyle and diet choices and reduce inflammation. Dr Alison Hey-Cunningham is a research scientist at the University of Sydney with a PhD on the role of the pelvic lymphatic system in endometriosis. Her researc...
Endometriosis in primary care
Переглядів 3334 роки тому
What should you expect when being cared for by your GP? What are realistic expectations? What is a 'patient centred medical home' and what does this mean for 'me', my family and my doctors? Can we improve the timely diagnosis of endometriosis and access to evidence based care? Dr Charlotte Hespe is a GP at the Glebe Family Medical Centre. She is Chair of Inner West Sydney Medicare Local and GP ...
Endometriosis and the bowel
Переглядів 27 тис.4 роки тому
An overview of the risk factors, symptoms , diagnosis and treatment of endometriosis. Dr. Cherry Koh is a Colorectal Surgeon and one of the clinical leads for colorectal research at Royal Prince Alfred Hospital.
Fertility fitness
Переглядів 5784 роки тому
Is endometriosis always to blame for infertility? Are women always responsible if there are problems? There are simple ways to improve your pregnancy odds. Dr Anne Clark is an obstetrician and gynaecologist specialising in fertility and reproductive medicine. She is also Director of Fertility First.
Medical management of endometriosis
Переглядів 1,9 тис.4 роки тому
Dr Kim Matthews discusses the medical management of endometriosis, a mainstay of treatment when used in conjunction with appropriate surgical treatment. The aim is for optimum quality of life whilst minimising the effect of the disease and the side effects of treatment. Progestins (oral, depot, subdermal and intrauterine preparations), oral contraceptive pills (combined oestrogen and progestero...
Central sensitisation, pain and the brain
Переглядів 2 тис.4 роки тому
The neuroscience of pain and central sensitisation. How does chronic pain develop? Do opioids help? Dr Meredith Craigie is a specialist pain medicine physician and a foundation member of the Pelvic Pain Foundation of Australia.
Laparoscopy and beyond
Переглядів 2974 роки тому
Dr Susan Evans, gynaecologist, laparoscopic surgeon and author of 'Endometriosis and Pelvic Pain' explains laparoscopic surgery. What happens during a laparoscopy? Is surgery the only answer to Endo? What should you do afterwards? Dr Susan Evans is a director of the Pelvic Pain Foundation of Australia (www.pelvicpain.org.au), a not-for-profit health promotion charity supprting education and res...
Medicinal cannabis
Переглядів 1,2 тис.4 роки тому
What is medical cannabis? Could it provide alternative effective pain relief for Endo? Justin Sinclair is a Research Fellow at the National Institute of Complementary Medicine at Western Sydney University and Head of the Australian Medicinal Cannabis Research & Education Collaboration.
Endo and the workplace
Переглядів 9904 роки тому
How well is endometriosis understood in the workplace by employers and colleagues? Reluctance to discuss women's health issues at work can cause stigma and misperceptions for people living with endo. Mia Freedman, founder, publisher and editorial director of Mamamia, offers a personal perspective on Endometriosis, speaking as an employer, a champion of women's rights and cousin of EndoActive co...
Hormonal contraception and endometriosis
Переглядів 16 тис.4 роки тому
Hormonal contraception and endometriosis
I've been married to a woman with endometriosis for over 50 years. Sexless marriage for decades. No hugs, no kisses, no cuddling, no communication. She sleeps in another bedroom. Just a roommate.
8:30 near the cervix can cause pain 8:42 near the bowel can cause pain
4:11 warning ⚠️ you are about to see a very graphic photo of flesh and blood 🫣
For arousal: I do not agree with the mental part, because responsive libido seems to work a lot more consistently: schedule time for intimacy and spend time enjoying the whole body of your partner ua-cam.com/video/l6KGx7op-A8/v-deo.html ; look up holistic sex videos by Alexey Welsh. Starting from being in pelvic pain and bleeding for 2 days after intercourse, we gradually achieved no pain even at deep penetration and no bleeding with sex. For positions: for us the woman on top position combined with ample amount of water based lubs has been most helpful, because this way you are in control about how deep you want to or not want to go on each occasion. I was 47 when I finally learned that penetration for women is not about having a plateau orgasm; instead it is about getting into a deep body & soul connection with your partner, through the closeness of your bodies and through those other sort of orgasmic waves through the vagina which feel nice and do not plateau. Now, when you pressure yourself to have a plateau orgasm at penetration, you will loose all this connection with your partner and you will feel as if you have a defect, not achieving an orgasm through penetration, too. So the solution to have a plateau orgasm could be to stimulate the clitoris separately: before or after penetration, and when you are having penetrative sex, concentrate on the deep connection with your partner. Good luck to you all!
I have done multiple ultrasounds and an abdominal MRI prior to my surgery for endometriosis, and no one detect my endometriosis..blood tests were good too...I suspect myself to have endometriosis since my family had one around my age and based on the symptoms. Im lucky as I do have ovarian cyst at the time when I scanned, and I wanted to remove the cyst. Hence, i done the surgery for both removal of the cyst and to confirm my endometriosis. For years back I was diagnosed with IBS, had unexplained pelvic pain (which during that time I havent figure it out why I had such terrible pain all over my 'tummy' area, and for that reason, I have difficulty to explain my symptoms to the doctors, had been diagnosed with sciatica, sudden leg cramps or pain. Headaches and many more, which I thought it could be just food poisoning or just gastric or could my ibs flared up, or migraine...only to found out later on its endometriosis all the way. I said, its definitely not easy to get right diagnosis especially the symptoms can be vague. I'm a doctor myself, trying to be more conscious about the disease and hopefully people can get it check as early as possible. It's always okay to have ur doubt or second thoughts about ur diagnosis and get check. 💛p/s: the pain u're feeling is real, it's okay if no one gets u.
Doctors tell us it's in our heads. When will this stop?
Wow... What a video... Finally
hello, would it be possible to access the research that Dr. Craigie used to make this outstanding presentation? thank you very much !
So helpful, this what I need right now, thank you dearly ❤️
and the toraxic endometriosis? Hapens the same thing?
Thank you for sharing these videos.
Glad you like them!
Seriously I can put into words how this has been driving me insane, lost two jobs because of missing work because these “episodes” as I call them occur at random immediately after having a bowel movement literally while on the toilet excruciating pain so intense I vomit almost projectile vomit style and my doctors have said it’s IBS but what happens to me when I get this episode is unbelievable. Thank you uso much sorry for ranting but my life has been in shambles for the last 3 years and knowing the name of the demon will help me stand a chance at surviving ❤
Than you SO much for the videos
@@TrollBaby14 Good luck - so pleased we could assist.
Struggling so bad right now For a long time and it took me longer to put two and two together but I’ve been having a horrible time with bowel movements near my period monthly, on any given day I could go to the restroom have a bowel movement and immediately it results in a horrible 24 hr episode of being bed ridden vomiting and in excruciating pain that causes me to be continuously drenched in sweat and with cold chills curled up in a bawl miserable totally useless in a bed. I can’t take it anymore
Nuvaring has been amazing for me and my endo pain! Literally has been rhe only birth control ive been on that doesn't make me feel miserable. Its the opposite it makes me feel more balanced and helps with my endo pain. My periods are so much lighter. I can even skip them if i want to!
Endometriosis can be effectively managed through Planet Ayurveda's formulation of Female Health Support, Pradarantak Choorna, Boswellia Curcumin. These herbal remedies are free of any chemicals or preservatives, hence, they restore hormonal imbalance.
Let alone what the recent vaccines did to so many woman's cycles which were specifically targeted in those jabs. Get out of the allopathic system of not understanding nutrition and what the human body needs in the way of living foods that are not tainted with chemical toxins and totally denatured first of all. I am glad she realizes that surgery should always be a last resort.
This is a great example that endometriosis affects every woman’s body differently and every woman will have different dietary triggers, restrictions, and needs
I think that GI involvement continues into menopause. Everyone seems to think that menopause ends endo, but endo is more than misplaced uterine tissue. Also it may be that having one or two genes for hemochromatosis encourages the uterine tissue to migrate in the first place. If you have a gene for hemochromatosis, having a period would prevent over accumulation of iron, but that protection will be lost at menopause. No reason that endo isn’t also more common in women with one or two copies of the genes for celiac disease as well.
Thankyou for your insights.
My body haveing burning sensation now happens every night .
I feel better when I am not in so much pain the pain is burning sensation all over your body it most horrible feeling I hate it .
Hi Arianna mom miss you and love you if you have bleeding in your bowl go see Dr right away ok I had bleeding in my bowl and private area and my stomach ok this why I been in so much pain and explains why I was throwing up blood and coffee grinds blood the Gonzalez family should be concerned I am dieing ok and they are not concerned I am a mockery to all Gonzalez family members why I been developing anger and a lot of anger because I am dieing and I am ill ok and critically ill I am glad my sister in law watch what I am going through thank you
I am in pain now I hate it no pain with sex
Yes pelvic pain and back pain omg I have all these symptoms yes bleeding in both areas spotting yes I have all these symptoms no wonder I been so much pain it is unbearable burning sensation pain feels like body on fire 🔥.Javier dose not understand that this why I can't sleep well at night the pain comes at night
No wonder I been in so much pain every night
Omg I have adhesions gross
Picture of my inside my body here Encinas family members watch why I been very very sick this my medical records pulled showed pictures of my body ex dose not want this picture to show she can go to hell
Encinas family members look at picture of my medical records on this video my medical records pulled here on this video.
Yes I had rectal bleeding and period spotting
I pray my daughter Arianna sees what's wrong with me and Encinas family members this my medical records what this women showed of my medical records showed this me totally all the way .
Omg this is me and my digestive system sucks I feel so sick I can't even digest my food properly I do get pain in my abdomin pain and I get constipated this why I been crying in pain every night and can't sleep buring pain all over my body I feel like I want to scream the pain so horrible feels like burning pain all over my body every night I can't sleep well cause pain so painful wow this my medical records thanks no wonder I am in so much pain .
Hi,this is happening to me now. Do you check it to see what the cause?
Wow, lady congrats!!! That could not have been more fxkng BORING!!!! Excruciating, I can’t even listen…..
Hey, frustrates me the doctors never listen to us women the patients their job is to listen to their patients it’s not like we go in there for free we pay them we are paying customers and for them to dismisses like crazy people is absolutely and forgiving if they don’t know how to treat us for Endometriosis they should just say they don’t know how to help us and recommend this to someone else or just say they don’t know and for us to look for help elsewhere and not see that it’s old and I hit😡
Please add more videos to this channel. ❤
How do I find someone who can read my pelvic MRI results? I don’t trust whatever random radiologist was rostered on when I had mine done.
MRI for DIE is now covered by Medicare number 63563 section B.
So I’m being punished for not having a baby?
in fact Dr Aluda on UA-cam is a good herbalist and a trusted Dr. my wife shrunk her multiple fibroids with his herbal medicine::
It was challenging and unbearable because of how critical my health situation was. but I am grateful and happy to have ordered Dr Aluda herbal supplements on UA-cam which I used and it shrunk my multiple fibroids..
Excelente. Gratidão imensa
Dr said i have chocolate cyst and i am trying for baby 😢 i had these symptoms for years only after going to private clinic I have been diagnosed. I have severe bloating, dark blood before and after period, also discharge through bellybutton 😣
I healed my endometriosis with diet, stopping pain meds, dealing with digestion issues.
hi...could you tell us more what is your diet..thanks
@@lindang8673 anti inflammatory
@@saffronsl thanks
It is sooooo much about our tainted diet that targets our womb. Thank you for posting your true cure for something that is avoidable if we get back to earing a natural intended diet for our species.
May i know what was your diet ?
I was told this!
It was all around the lower part of my bowels, so for years I thought it was IBS triggered by my period. Brutal. I would collapse. Also had ovarian cysts and peritoneal lesions.
After eliminating sugar, alcohol and gluten, my endometriosis gets better. And vice versa
My Dr just told me to stop using it. Smh she hasn't came across any research for it to help with any of my issues. Lolz altho she told me to choose edibles if I do choose cannabis for medicine lolz
a very informative video
Why so much inflammation in our bodies n pain.nhow to get rid of dr.??😲
I had high hopes about mini pill Visanne, I start taking them after laparoscopy, my doctor thought they have less side effects then Diperheline. But it just made bleeding constant for a month and formed new cysts after the surgery so I was urgently put on Dipehreline and it helped enormously and even shrinked two small cysts that prolonged bleeding on Vissianne formed in just 40 days. From other side effect mini pill caused headache, nausea and mood swings. Dipherline on the other side was a perfect choice for me for 6 months I was pain free and beside hot flushes and skin dryness I did not have more serious side effects.
What to eat then?
Such a horrible disease and few specialist, so much ignorance over the matter in the medical group and affects many young girls and women. Endiometriosis affects not just your body but the quality of life. And is so ignored not much research interests to help people affected by it. Should be recognised as disability because yes many times the pains the stomach problems the tiredness makes you feel in what is the bloody point to be alive!
I want Dr Cherry to do my extensive endo surgery 💔