How To Get A Dementia Diagnosis: 4 things

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  • Опубліковано 1 жов 2024
  • Hey there Careblazer! Welcome back to Careblazers TV, the place where we talk about everything dementia. If you are caring for a loved one with any type of dementia, such as Alzheimer’s disease, Lewy Body Dementia, or vascular dementia, then this is the place for you! I post a video every Sunday on the topic of dementia caregiving.
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    In case you haven’t met me, my name is Natali Edmonds and I am a board certified geropsychologist. That means that I am a clinical psychologist who specializes in working with older adults. In my job, I help people with dementia, and their caregivers, by visiting them in their own homes and helping them cope through the many struggles of caring for someone with dementia. I have always wanted to help more people than is possible for me in a work day. One day, while hiking a trail, I came up with the idea for Careblazers and I decided to see if posting videos online could provide help to the many other Careblazers in the world who don’t get to have help come directly to them in their homes. I do this in my spare time. I hope that this work helps you in some way on your caregiving journey.
    #careblazer #dementia #dementiacaregiver

КОМЕНТАРІ • 402

  • @karlac7378
    @karlac7378 2 роки тому +46

    This is such valuable information. I learned a lot and think more videos like this would be so helpful. My dad had issues with all six cognitive domains long before his diagnosis at age 86. We had no idea he had dementia. We just thought the problems were due to aging, his "normal quirks" and some medications he was taking. My dad passed away in June, almost 6 years after his diagnosis, but I still follow your channel and watch your videos because I have made it my mission to try to help others, because we had no help at all when it came to his dementia. I found your channel in my desperate search for information and guidance and it was such a huge help, and a comfort to not feel quite so alone in the journey.

  • @petuniasevan
    @petuniasevan Місяць тому +5

    I attended my mother's dementia diagnosis. Our family doctor (who she'd seen for years and years) talked to her, asked her what her home address and phone number were, and her response was to look at me and hope I'd fill in. I did not.
    He asked a few other questions which my mother was excellent at evading, while repeating things she'd already said 3 or 4 times that session. I had already described in detail her getting lost in familiar places, and losing her ability to use common technology that she had been competent with for years if not decades.
    Doc pointed out to me that her high intelligence had allowed her to cover up her growing deficits with obfuscation, distraction, and repeating herself.
    Her personality definitely was changing, and she was losing her hearing as well. Her behavior around others seemed off, but she had nearly stopped associating with others, claiming that they ignored her when it likely was she was saying things that made little sense. Now I realize that she'd been in ongoing development of dementia for as much as 20 years, from what I saw and experienced since the year 2000. But only after the damage is done does a diagnosis become possible in most cases IMHO.

  • @tarakeels1631
    @tarakeels1631 8 місяців тому +5

    Good info. Thank you. Seeing this in other people-friends, distant relatives, etc is one thing…seeing this in a person you’ve been married to for nearly 50 years is a WHOLE OTHER THING -VERY difficult to deal w/. Thank you for your videos-they’re helping me a lot to deal w/ my loved one.

  • @bonniebuchanan4391
    @bonniebuchanan4391 2 роки тому +24

    This is very helpful, thank you. Please share more, especially about specific types of dementia.

    • @DementiaCareblazers
      @DementiaCareblazers  2 роки тому +7

      Will work on putting that together.

    • @gogi682
      @gogi682 7 місяців тому

      Yes, my 68 yr old brother in law has good memory for the most part, and passed the memory test quite well. (the clock test was very bad). But most others were "OK" The real problem is, he will refuse pills, can't help make a bed, stares into space, doesn't understand he needs to drink/eat what is healthy. Has no interests, just TV. A bit of wandering in the night. No changing clothes or showering unless told too. We have to do his talking for him with doctors, cannot make simple food, just get a yogurt, a simple thing. Will wander off to bed early without telling us.... Knows his 3 wives names, his kids, his jobs, us, can even at times appear almost "normal" but anyone talking to him talks like he is 6 years old, it's just what people do....like I say, that memory test, he passed, knowing the date, month, mostly remembering words, math I'd have trouble with under stress....those tests seem all wrong for his type of dementia...he did not know his town, as he lives with us on an island, but did not know to say the name of it.... The clock test kinda was the only thing that proved dementia.

  • @lorraineknickle8860
    @lorraineknickle8860 2 роки тому +32

    Great information. I would be interested in more videos like this . Thank you . You have been so helpful understanding my husband's Alzheimer's struggle .

  • @kayokolindenberger3754
    @kayokolindenberger3754 2 роки тому +19

    Yes, more please! I found this to be very helpful in understanding my mom's vascular dementia. And most likely this has been going on for some time, but my dad and I didn't recognize what was going on as a part of dementia. Thank you!

    • @DementiaCareblazers
      @DementiaCareblazers  2 роки тому +3

      You're welcome, it's normal not to recognize sometimes, especially in early symptoms.

    • @Fieldsherbert
      @Fieldsherbert 9 місяців тому

      after my mom goes into a delirium state for 24 to 48 hours she crashes real hard as if she has run a marathon.....these delirium episodes seems like they were triggered a year and a half ago after each dental visit......but now the delirium is popping up without the dental visits....is there a medicine she can take to stop this from happening?@@DementiaCareblazers

  • @maypalmer
    @maypalmer 2 роки тому +11

    Wow! The timing of this particular video is UNREAL!! My husband has his brainscan tomorrow and I was asking myself what criteria would they be basing their diagnosis on. I know the technician/doctor won't see on the brainscan what you just cited but, at least I know now what to look for. Thanks be to God for your great, informative videos!! They have enabled me to learn and prepare for what is ahead. The Lord Bless you!!

    • @DementiaCareblazers
      @DementiaCareblazers  2 роки тому +1

      The scan will be a nice addition, but it's not the only thing 💖

  • @rainbows_trees_clouds_dais1766
    @rainbows_trees_clouds_dais1766 10 місяців тому +50

    My father and I have ADHD (me, diagnosed; him, undiagnosed but textbook/definitely has it). We tick so many boxes for dementia through ADHD symptoms. In fact my father had a reaction to his Covid shot, affecting his mental health due to severe insomnia. I had to take him to a psychologist to help him work on anxiety and sleep hygiene/help him understand what was going on as he was freaking out. Everyone kept saying "ooh, sounds like dementia"... and i had ro point out, those symptoms were his baseline/totally normal (his whole life... including stories as far back from when he was a toddler), just exaggerated with the lack of sleep that started after his Covid shots. I now wonder if dementia is really hard to pick up in people with ADHD?? Our executive functioning is terrible, we lose things all of the time, we get lost/completely forget were we parked the car if in acrush, use "thingo" and "what's its name" all of the time, blurt out really inappropriate stuff if we're stressed or multi tasking etc.... im covered in bruises that i have no idea where i got them (constantly running into table corners and doors etc)... my Dad knocked off two car doors in two days when he was rushing to prepare for a long outback trip (reversed out of the garage with door open... yes, twice!).... we both drive off with stuff on the roof of the car etc. I was working from home to meet a deadline/really busy and stressed + couldnt find my document hole punch anywhere (absolutely needed as was doing hardcopy records for the Accountants)... i found it about a month late in my fridge 😂. How on earth with either of us ever get picked up early for dementia (touch wood we dont get!)/early intervention?? Or is there a chance we'd get misdiagnosed with dementia (when it's regular ADHD with natural cognitive decline of aging)? Are people with ADHD more prone to dementia? This is a topic that might be helpful to discuss further? Thanks!

    • @marywiggins7411
      @marywiggins7411 9 місяців тому +4

      My husband is ADHD for sure, but dementia on both sides of his family - so for me it's going to be harder. But I do see it.
      He is firstly brilliant, so for him to use a word as similar in structure to the word he wants to use but completely unrelated is one, two is picking up an object that is simple and not recognizing it (a detangler comb), or hearing a word in conversation and saying I don't know what that is (mascara).
      So it is a bit harder to discern.
      He can't have any, and I mean ANY distractions now when doing bills, thank God he was/is a geek and it's in spreadsheets. Though the future on this is going to be a shitty battle I fear.
      I have inattentive ADD, but there is no dementia in my family other than normal aging forgetfulness.

    • @rainbows_trees_clouds_dais1766
      @rainbows_trees_clouds_dais1766 9 місяців тому +4

      @@marywiggins7411 oh, ok. That sounds tough but very obvious signs then. That's very helpful to identify quickly and seek medical support. My friend's father got diagnosed very late - purely because he refused to go to the Dr/was in denial (and quite scared, which is understandable). Since going on medication he's improved immensely, but still very tough. It's a shame he didn't get help earlier. Thank you for the examples with your husband. Hope you're all doing ok. Glad to hear you dont have dementia in your side of the family x

    • @martinasikk6162
      @martinasikk6162 9 місяців тому

      Answer father and son with ADHD: My daughter and I have ADHD. You both should try medication and se if get better. Take med 4-6 weeks and evaluate. It’s not sure it does. You could probably evaluate your father also. 🌹

    • @martinasikk6162
      @martinasikk6162 9 місяців тому +1

      It’s very important you sleep well and regular. Also plan your activities and try stay focused

    • @Ninsidhe
      @Ninsidhe 9 місяців тому +4

      @@martinasikk6162 not everyone wants to go on meds, so perhaps lay off on the ‘should’? My offspring and I all have ADHD, both inattentive and hyperactive, and NONE of us have any desire to go on medication because the long term side effects can be horrendous. We’re also Autistic and have a bunch of other diagnoses and guess what? We still aren’t interested in medications. Not everyone who is neurodiverse wants to live like a neurotypical, with all the toxicity that NT culture creates.

  • @lyric8006
    @lyric8006 2 роки тому +12

    This video is very informative. I have a relative with early dementia and I want to understand as much as I can.

  • @forrestscott9275
    @forrestscott9275 2 роки тому +35

    This was the best description of diagnosis criteria I have heard. I have struggled with getting the right and accurate information regarding my wife for so long. This video helped me retract a lot of things in the years past and pug issues in. For a long time I felt there were problems but could not get her to pursue getting help and have never had any help so time and life progressed and about one and a half years ago overnight she exhibited such things that it was evident. Although it doesn’t change her condition it helps me to be able to connect the dots. I’m like that, I’m a HVAC technician so I always want to fix things. It’s killing me that I can’t fix her. Thanks for your passion and knowledge.

    • @DementiaCareblazers
      @DementiaCareblazers  2 роки тому +2

      Thankyou glad it helped! 💖 💖 💖

    • @c.kainoabugado7935
      @c.kainoabugado7935 Рік тому +4

      That's what it is...I can't help n it's frustrating. Ty for giving me words to understand myself.

    • @dtraveler3080
      @dtraveler3080 9 місяців тому

      I realize this is outside the topic, What about those texting inappropriate things to your SO and you’re so livid you can’t be civil.😅 Tell me that’s not mind numbing.😂 Should I tell her to go label herself?

  • @juddie6703
    @juddie6703 2 роки тому +6

    👏Thank you, I learned from this! More videos like these would be very helpful in my journey💪❤️

  • @elainegoad9777
    @elainegoad9777 10 місяців тому +1

    It's not that cut and dry. Older people today didn't grow up with all the technology and distractions that exist today. Kindergarteners and 1st graders use computers and cell phones while a lot of us seniors have problems with these new technologies !!!!!

  • @advocateagainstantisemitism
    @advocateagainstantisemitism 9 місяців тому +12

    I've recently been diagnosed with dementia and going thru the process of trying to figure out which one, but due to hallucinations think it's lewy body.....sigh. Your videos are very helpful, I've watched several but really liked this one where you break down the different areas and how each one affects a person's behavior differently.

    • @bookmaid1
      @bookmaid1 Місяць тому +1

      My mother in law was diagnosed with Lewy Body Dementia 2 years ago. The best thing we did was take her to a neurologist. The medications brought her back to us. Not 100 percent but the improvements have been amazing. Her GP did not recommened or refer her to a neurologist, it seemed so hopeless and frustrating, we did the research and found a local neurologist on our own. Best thing we could have done. Wishing you healing and health.❤

  • @birdhood2577
    @birdhood2577 2 роки тому +5

    Great video. I’m so glad I found your channel. Can you do a video on the differences between dementia and Alzheimer’s?

  • @3962_
    @3962_ 2 роки тому +5

    I'm grateful for your channel, thank you for this great info.

  • @jancoleman84
    @jancoleman84 2 роки тому +12

    Hindsight is 20/20 and this explains so much about my mom’s early symptoms. Wish I’d known more then but live and learn! And this is so helpful going forward. PS Mom is scheduled to have a geropsychiatric evaluation on August 30.

    • @DementiaCareblazers
      @DementiaCareblazers  2 роки тому +5

      I hope the eval goes well and she is able to go through with the evaluation. 🤞

  • @hannaleigh6975
    @hannaleigh6975 2 роки тому +7

    Great information in this video

  • @JenniferPearsonJP7
    @JenniferPearsonJP7 2 роки тому +5

    This was very helpful. I would love for you to further break down the different types of impairment.

  • @chrismcgatha3094
    @chrismcgatha3094 2 роки тому +6

    Really great information. Although I am a retired OR RN Clinician with some 5 years of psych thrown in, much of this is new to me. My younger sister has dementia and early onset Alzheimer's. I've recommended your page to her son as well as my brother. We're all learning...

    • @DementiaCareblazers
      @DementiaCareblazers  2 роки тому +1

      Thank you so much 💖 I hope your sister is okay.

    • @mircat28
      @mircat28 14 днів тому

      None of your nursing had anything to do with dementia so you have to learn like everyone else!

  • @victoriamatthewson8523
    @victoriamatthewson8523 2 роки тому +2

    Thank you, this is so helpful. Is Stroke classed as an exclusion or a cause? My Mum had a massive stroke a year ago and now has confabulations (she thinks her Mum is alive and that she has been married multiple times which she hasn’t) and troubles finding words. But I don’t know if this is dementia or a result of brain damage from the stroke.

  • @marygood906
    @marygood906 2 роки тому +6

    Yes, I would like more info like this

  • @AlbertD711
    @AlbertD711 2 роки тому +7

    This was a very informative video. I can now see how my wife's behaviors relate to her dementia. It has been way more difficult to distract her lately and carry on a conversation. She will drift off into a completely different subject mid-sentence. Yesterday I showed her a cute video of a friend's new dog. She said, "he's cute, that's why I need more blue pens". She can't hold a subject for more than a few seconds it seems.

    • @DementiaCareblazers
      @DementiaCareblazers  2 роки тому +3

      Glad it helped!

    • @markpang8847
      @markpang8847 Рік тому +3

      Somewhat like Joe Biden does during his speeches? How he just changes his topic that he was talking about? If this is similar, that's what someone i know does. Please Help. thank you.

  • @ya472
    @ya472 8 місяців тому +3

    I probably could not pass a cognitive test. I have a good memory, I can learn new things and I remember important stuff like schedules and numbers, but I can't learn verses and often the need to recall is impaired, but later I remember. This has been a life-time issue. (age-68)

    • @kathybrem880
      @kathybrem880 29 днів тому

      My young son had something called word retrieval problems. I have always had that as well so I developed a vast vocabulary to make up for it

    • @ya472
      @ya472 29 днів тому

      @kathybrem880 I have a decent vocabulary, but immediate word or memory retrieval is hit and miss. My mom recently had a stroke, and she could not retrieve short words, two and three letters long, but is fully cognizant and functional of her personal and financial responsibilities. Brains are weird.

  • @orthodudeness
    @orthodudeness 2 роки тому +2

    Great explanation. More would be great as well.
    So, I seem to have social cognition since I was about 2 or 3. HHHmmmmmm. :)

    • @DementiaCareblazers
      @DementiaCareblazers  2 роки тому +2

      haha. well since it's been from the age of 2 or 3 it wouldn't count toward the dementia diagnosis. ;)

  • @kassimatthews6601
    @kassimatthews6601 2 роки тому +3

    I was wondering what the benefits of a dementia diagnosis would be. I think my mom has it and I’ve recently become her live in caregiver, but I’m afraid she would get angry if I suggested she check with her doctor. She doesn’t think there is anything wrong with her. She gets angry even if I point out that she forgot something, including a doc appt I reminded her about everyday for a week before her appt.

    • @buelan.6525
      @buelan.6525 Рік тому +1

      My ❤goes out to you. I have a long time dear friend definitely in what I would call early stage dementia. Very frustrating for anyone close to that individual. I believe their anger stems from the absolute terror they must feel when someone suggests this might be an issue for them. If there’s any way you can let her doctor know, she might be less frightened and have the doctor tell her how important it is to deal with it now and, hopefully, will recommend some neuro-cognitive testing to determine exactly where she stands. Also, you or another cognitively aware person could accompany her so you have two sets of eyes and ears. I finally convinced my friend to go to her doctor but I suspect she’s too frightened to be forthcoming and does not want to talk about it. However, she did come home with a prescription for an antidepressant. Good luck to you and do whatever you can to reassure her that your intentions are honest and for her well-being. What could be the harm in getting tested??

    • @evelynwaugh4053
      @evelynwaugh4053 9 місяців тому

      I think there is newish medication for dementia that can slow the cognitive decline which would potentially give her a bit more time before the inevitable decline? That would be an advantage.

  • @jordanvlogs6348
    @jordanvlogs6348 2 роки тому +6

    Great insight! This video has helped me understand that dementia is more than just memory loss. My great-grandma has shown impairment in other areas, so a lot of the information you provided is relatable. I'm so glad I watched this video!

  • @gwinnyb
    @gwinnyb 2 роки тому +4

    I would love more of this type of information! thank you

  • @barbdeweese4046
    @barbdeweese4046 2 роки тому +5

    Yes, please make more videos like this. I’m also interested in memory loss as a side effect of long-term saturated oxygen deprivation (while sleeping). The visual aid was truly helpful. I would appreciate it if you could talk more slowly. Thank you for all you do!

    • @ActionTakersPublishing
      @ActionTakersPublishing 2 роки тому +6

      If you're watching her videos on your computer, you are able to slow down the speed of the video. While watching the video, on the bottom right-hand side you will see an icon that looks like a wheel. That's the settings. Click on that wheel and then select PLAYBACK SPEED. You'll see options to slow down the video or speed it up.
      On your phone, tap the video one time and you'll see the same wheel on the top right-hand side of your screen. Click on that wheel and then select PLAYBACK SPEED. You'll see options to slow down the video or speed it up.
      It's easier for us to slow down the video than it is for someone to speak slower than their normal speed.

    • @DementiaCareblazers
      @DementiaCareblazers  2 роки тому +1

      Great suggestion!

  • @Cayuse2009
    @Cayuse2009 Рік тому +1

    Do these different things apply to all types of dementia? Or does it help diagnose which type of dementia?

  • @kathygill1923
    @kathygill1923 10 місяців тому +2

    Thank you for sorting out the many ways to observe and define the differences in dementias. My MIL received a vascular dementia diagnosis about three years ago after we observed behaviors that were extremely concerning and impacting her ability to safely live independently. She was a very heavy smoker most of her life and there is no family history of dementia. As in most cases, there were clues we did not pick up on until well along the progression. My husband seems to be exhibiting some of the earlier symptoms we noticed in my MIL and has an appt with a neurologist in January to discuss incidental findings on a recent MRI. I am trying to remain calm and optimistic. Are some dementias more likely to be inherited vs caused by lifestyle or head injury/stroke?

  • @lauralowery9303
    @lauralowery9303 9 місяців тому +1

    All of these categories can also be demonstrated in a person with ADHD.
    Unfortunately, no one seems able to recognize that fact. At some point, people forget that their cousin is still the same goofy person they have always been, but now they are in their late 60's. Ohh ohh- must be dementia! 🤷🏼‍♀️
    This is particularly true when a relative wants your money or property.
    Stay aware people!

    • @MBT372
      @MBT372 6 місяців тому +1

      Lol so true

  • @lizwilson2898
    @lizwilson2898 10 місяців тому +2

    You always explain dementia related things where I can actually understand. Yes I would be interested in more topics on this. I do not know (Dr never has said) what type of dementia Mom has. I am a CAREBLAZER member and working through the course.

  • @catbee1452
    @catbee1452 Рік тому +2

    Yes. I learned much. Thank you so much for your videos. I've been researching how to get my husband help. He has deficits in every cognitive domain but his doctors are ignoring my concerns. They say his mini cogs are ok although neuro doc gave him a dx of MCI 2 years ago.
    I've been seeing changes in my husband for the past 8 years so it started in his 60s. He's now 72. Just can't get anyone to listen and take my concerns seriously. They don't see what I've been seeing for years. It's getting worst quickly, this past year especially.
    And it doesn't help that my husband truly believes there are no real issues since he doesn't 'see' what the problem is.

    • @dorisxavier1571
      @dorisxavier1571 11 місяців тому +1

      I understand your frustration. Going through the same thing. Drs. don’t want to call it anything yet. My husband thinks I am imagining it to be a problem. I have to keep looking to the Lord. Hugs.

  • @cindyloppnow1621
    @cindyloppnow1621 2 роки тому +4

    Would love to see a video on frontal temporal lobe dementia. It’s a nightmare and little current info available.

    • @rhondasingley7211
      @rhondasingley7211 2 роки тому +2

      I was Told I have FTLD in 2019 I'm just starting to show some changes to the outside World 🌎 We need much more information on the progression.

    • @cindyloppnow1621
      @cindyloppnow1621 2 роки тому +2

      @@rhondasingley7211 so sorry to hear that Rhonda. Praying for you in this journey.

  • @jesusisGod1434
    @jesusisGod1434 2 роки тому +4

    This is awesome! Thank you for this video! Very technical and we need more!

  • @lauriewooderson7563
    @lauriewooderson7563 11 місяців тому +2

    This is very helpful! My husband had a boating accident early Aug. followed by a broken tibia, surgery, plates pins and so much confusion. Fast forward 3 months and he is diagnosed with Cerebral Amyloid Antipathy CAA. His symptoms emulate Dementia with memory, complex tasks, talking about things that have not happened. He is only in his 60s💔 I’m learning a lot from your channel and am taking it a day at a time. Thank you!

  • @pattyp2270
    @pattyp2270 Рік тому +2

    This is very helpful. It has helped me understand what is happening on so many different levels beyond memory issues.

  • @lindagraham8884
    @lindagraham8884 2 роки тому +3

    Thank you for educating me about the different phases of dementia. Yes I would love more videos on those phases. My mom's doctor gives almost no feedback.

  • @rosaliefunk1629
    @rosaliefunk1629 10 місяців тому +1

    Thank you. I’d like more information.

  • @pamengland7863
    @pamengland7863 9 місяців тому +1

    This is incredible. Thank you so much. I’m curious about Fibromyalgia “fog” & differentiating a type of Dementia as opposed to what happens with Fibro.

    • @jphwife
      @jphwife 9 місяців тому

      Agreed. I have chronic fatigue and an impaired immune system, so I am sick a LOT. I am foggy and slow when I am sick, and magically back to normal when I am well. Worries me!

  • @vikkicsaszar2123
    @vikkicsaszar2123 2 роки тому +2

    Thank you very much. The most informative on the breakdown diagnosis that I've been looking for.

  • @susanmeredith5456
    @susanmeredith5456 Рік тому +1

    So informative! Thank you. Please do more videos tike this one?

  • @sledge297
    @sledge297 2 роки тому +3

    Yes I'm learning every day how to deal with my wife. It's a whole new world for me

  • @winterwunderland
    @winterwunderland 9 днів тому

    WOW. Dr. Nat with this video you took a super complicated subject and reduced it down into smaller bites thaat's easier to swallow. Thanks so much.

  • @annehamlin3241
    @annehamlin3241 Місяць тому

    Thanks for this video, very helpful indeed. My husband was diagnosed with Alzheimers, about 5 years ago now, after a full neuro-psych evaluation, Since then he just has had a brief MOCA assessment every 6 months, which so far has shown continuing mild cognitive impairment - although I see him declining steadily in several of the domains you described. Is there any need, or point, in doing a further fuller evaluation at this point, in your view? Also - how do brain scans of any kind play in to diagnoses?

  • @susannerobbins
    @susannerobbins 2 роки тому +1

    What are the advantages and disadvantages of getting dementia diagnosis? Do you have a video about that?

  • @annefitz7346
    @annefitz7346 10 місяців тому

    Seems like they’re not valuing young women either. I love Alicia Menendez! Yasmin had a lousy time slot. But who want 3 hours of Alex Witt??? Looks like they’re cutting minorities too. Bad look
    You make too many assumptions about us older viewers. I’m on UA-cam daily several times and follow Meidas media politics girl Democracy Now etc. Ageusm is a real thing but WE VOTE!!! I’m glad there are more older people in msnbc than Fayx! Could help DEMS.

  • @victoryamartin9773
    @victoryamartin9773 Місяць тому

    I found myself relating to all the issues except social cognition. I was never able to discern social cues being autistic, so social rejection has been my norm. I also don't have delirium. I could add another to the list, but I don't know how you could test it for a dementia dx. I'm also suffering from a deepening sense of a loss of self. I can perhaps avoid a dementia dx by contributing my cognitive and ADL decline to ongoing Narcissistic abuse, which I have not been able to escape from. My question is if I am stuck with the Narcs indefinitely, will the decline worsen with time and age to the eventual end of life experience of a demented person? I am 68 and being financially drained by a couple who have latched onto me and punish me with financial and legal retaliation for trying to extricate myself from them.

  • @kathyjohnston950
    @kathyjohnston950 2 місяці тому

    My husband has all six and ask. I know he has dementia but what would be the difference between Alzheimer’s and vascular? I know you said but it wasn’t clear. He knows me (wife) and adult children but beyon that (his new aide, houscleaning lady and all others he doesn’t remember. He doesn’t know our dogs names.

  • @cherylcraver160
    @cherylcraver160 2 роки тому +3

    Yes I would like more like this

  • @j.h.d.2153
    @j.h.d.2153 Рік тому

    Please would u address if u can...HOARDING SITUATIONS?
    THX much 🙏🕊🐾🐣

  • @mmchelle6541
    @mmchelle6541 5 місяців тому

    Yes! ty! Wish I would’ve known this six years ago maybe could’ve gotten my mom some help. Please, can you talk about how to get someone with blatant disruptive and dangerous dementia symptoms who does not believe they have them or is refusing to acknowledge them to A doctor who will
    Accurately diagnosed and make recommendations, particularly to protect another elder not being properly taken care of because of the caretakers dementia? Thank you!!!

  • @bradart7289
    @bradart7289 9 місяців тому +1

    I understood everything you said in video! When it was over , I couldn't recall anything you said !

  • @donnaallgaier-lamberti3933
    @donnaallgaier-lamberti3933 9 місяців тому

    We are dealing with this issue now....I've been told we have to have a psychologist's evaluation and testing and that this is going to costs us $3,000 not covered by Medicare or our insurance. What actual benefit is there for an actual diagnosis? My husband is age 78, already retired and on Medicare so no work disability is involved for him. PLEASE discuss in a video for the reasons why a formal diagnosis is important?

  • @susie6825
    @susie6825 2 роки тому +2

    Love the video would love to see more about how dementia is diagnosed and how each type of dimensions diagnosed. Learn so much from your videos any topic is great keep them coming

    • @DementiaCareblazers
      @DementiaCareblazers  2 роки тому

      HI Susie, This is Trisha. Dr. Natali's social media manager. I'm sorry to hear about your situation;. Here is a UA-cam video she made that I hope can help you with your situation. 💖 ua-cam.com/video/lZgmH5kuvdE/v-deo.html

  • @j.h.d.2153
    @j.h.d.2153 Рік тому +1

    Incredibly helpful!!
    Your awesome at explaining and breaking down all these sub categories that I wasn't even aware of....I'm very late to this clip but I still have a q please:
    Someone who was just diagnosed with beginning of dementia...how does ( or could it affect) that affect say... buying a car? Meaning is it fair to label someone ...who again was only just diagnosed with beginning dimentia..(that is all they were told)....that they couldn't possibly be able to carry out buying a car?
    Please I would greatly appreciate if u could answer...I thx u in advance...new sub here!!

    • @j.h.d.2153
      @j.h.d.2153 Рік тому +1

      Also....please can you address HOARDING!!! SUCH A COMPLEX SITUATION...I'm finding it impossible to get any help with this very serious hoarding situation....I'd appreciate any thoughts/ information u would be able to share....Also this is my 1st clip to watch ...may I ask are you a doctor?....or a nurse perhaps?
      Thx so much...I'm going to look for more of yr clips to watch...thx.🙏🕊🐾🐣

  • @elgringoec
    @elgringoec Рік тому

    Decline in cognitive function, senses, and motor skills is a slow and steady process, I've observed. You can have criteria and you can have tests but it's still subjective. And a doctor may be less able to determine a patient's degree of decline than the patient's child. I'm not sure what the point of a medical diagnosis would be. But maybe one needs a doctor's diagnosis for legal purposes? Otherwise it just is what it is.
    I feel like I've suffered a decline in each of the areas you've listed. I'm still functionable though, and I'm not relying on anybody for my basic functions.
    After my mom was in serious decline, we'd meet people out in public who she'd talk to, rather incessantly usually, and when I'd make excuses for her they'd retort that they didn't see anything wrong with her. And she would say something like "he always says my mind's going". But she was clearly suffering dementia. So we have her denial at the same time she could appear to be somewhere normal, maybe on the lower tier than average, but fine enough for average people. What they couldn't know is how she used to be. Like make a meal with several dishes and have it all come together hot at designated mealtime. Graduated valedictorian in HS, finish RN in two years, work as an analyst for the NSA... It's not easy for a stranger to discern whether she's speaking factually or from hallucinations. She could tell a convincing story but we knew who was where when, and that what she was telling us appeared to be perhaps a combination of reality and a dream she may have had.
    But eventually she became unable to control her basic functions and it was sadder and sadder.

  • @camprisenson8341
    @camprisenson8341 7 місяців тому

    Watching this makes me more certain than ever that my mother in law has dementia. But her primary care doctor says she just has a little cognitive decline and it isn't actually dementia. (She didn't do any testing--just came to the conclusion after hearing me describe some of the things she's been doing). What should we do at this point? Is a diagnosis important? If so, how do we go about getting one if her primary doctor doesn't agree. (If it's helpful, I can describe specific situations, but seeing this video it's clear that she has decline in a few areas.)

  • @karajalbert6074
    @karajalbert6074 2 роки тому +1

    I am also concerned that with dad dying from Alzheimer's and mom having vascular dementia am I next?????

    • @DementiaCareblazers
      @DementiaCareblazers  2 роки тому +1

      No, not necessarily. lifestyle factors play a huge role. good sleep, nutrition, exercise, no tobacco, and social connections to name a few of the big ones.

    • @Corinna_Schuett_GER
      @Corinna_Schuett_GER Рік тому

      Dementia in all forms have a huge environmental intoxication factor today (e.g. geoengineering aerosols spraying worldwide since the 1950s) so if you detox your body regularly e.g. with mykotherapy medicinal mushrooms this will help altogether.

  • @shellymarstall176
    @shellymarstall176 Рік тому +1

    It is mentioned in the video that to get a diagnosis, the person only needs significant decline from a previous level of functioning. If the patient wasn't tested before with the current provider (but may have with a former), how do we assess that decline? Does the new provider trust family members' feedback since the patient presents with anosognosia or lack of insight about their health?

  • @minniegibson8722
    @minniegibson8722 9 днів тому

    More videos on this subject please. Thank you.

  • @marij3219
    @marij3219 Рік тому +1

    Yes I want to learn everything you have to teach. My husband is having issues and I'm trying to get a handle on it. You are a God send.

  • @markaprill6501
    @markaprill6501 2 місяці тому

    Relative has massive decline in ability and my other relatives are in denial. I would love to show them this video but my relatives are incredibly hostile. Because of the progressive nature of this problem they will eventually figure it out. This is a complex problem that doctors may not notice at first. Please do more content.

  • @lorrainewaddell1048
    @lorrainewaddell1048 10 місяців тому +1

    Thank you for all your help in explaining dementia for us. My husband has Posterior Cortical Atrophy, and i have a hard time finding information on it. He seems so different than the typical Alzheimer patients I've seen.

  • @williamlulay7982
    @williamlulay7982 2 роки тому +2

    I've been watching you off and on for some time now. I'm involved with a woman who has some kind of dementia, the immediate cause which appears to be her falling, and smashing her head really badly against a concrete sidewalk. Her personality and behavior changed drastically after that, according to her family. What I've been able to determine, observing and getting to know her, is that she seems to have mild to moderate dementia symptoms, but her short-term memory is classed as severe - she forgets within less than two minutes what was just said or happened. I start wondering if she may have suffered a stroke, or frontal-lobe brain damage from her fall, or even if she suffering from brain damage, overall, rather than "normal"(whatever that is) dementia.

    • @rebeccabaxterbard8073
      @rebeccabaxterbard8073 2 роки тому

      This does not sound at all like Dementia - it is a traumatic brain injury! Post concussion syndrome...or worse...She should be treated for a brain injury!!

  • @stephenpowstinger733
    @stephenpowstinger733 9 місяців тому

    Interesting. It’s got some confusing jargon though, like what is ADL?

  • @CricketGirrl
    @CricketGirrl 11 місяців тому

    How do you handle comorbidities during diagnosis when the patient has a history of depression? Surely people with depression aren't automatically immune to dementia.

  • @EricTemple
    @EricTemple 9 місяців тому

    My wife has elements of all categories of dementia. My question is what good does it do us to have a diagnosis? It doesn't change anything as there's nothing they can do for her.

  • @AnnettMcDavid
    @AnnettMcDavid Рік тому +1

    Thank you, great explanation of how a dementia diagnoses works. My husband just got diagnosed a few weeks ago and I was always wondering how the diagnoses actually was made. He was diagnosed with BvFTD.

  • @rhondasingley7211
    @rhondasingley7211 10 місяців тому

    I need more information on FTLD I was told in 2019 that I may have IT but I'm not sure about that 😕

  • @annemariepedersen5616
    @annemariepedersen5616 10 місяців тому +1

    This was very good- thank you. And yes a few more videos on the different types as well as how this is all different from Alzheimer’s would be great!

  • @poetmaggie1
    @poetmaggie1 9 місяців тому

    My brain all my life, all though my daughter thinks I more timid when I drive.

  • @carolbiggs2564
    @carolbiggs2564 2 роки тому +2

    I also would like more

  • @alisonhardy9941
    @alisonhardy9941 10 місяців тому +1

    Incredibly helpful. Your video's are helping me navigate what is going to be a very difficult conversation that needs to be held. Both my parents live with me and I am terribly worried about both of them. Thank you!

  • @lucygentry1176
    @lucygentry1176 Рік тому +1

    Is it necessary to get a dementia diagnosis and why?

    • @Corinna_Schuett_GER
      @Corinna_Schuett_GER Рік тому

      To many, this is necessary to have the costs partially covered for caring and early retirement (if people lost their job and income).

  • @johnacker3983
    @johnacker3983 Рік тому

    We are trying to get a referral for a neuropsychological test and are having trouble. We identified a provider but we suspect insurance is an obstacle. Any idea how to deal with this?

  • @EmmaSmith-nn1ui
    @EmmaSmith-nn1ui 9 місяців тому

    Really interesting. I do find it odd, though, that brain scans don't seem to feature in diagnosis. Maybe it's hard to see changes early on and being able to see it in scans is preceeded by behavioural changes, so not visible in early stages?

  • @iamunce
    @iamunce 9 місяців тому

    Why is this woman dressed for a cocktail party instead of a lecture? Americans, how are ye.

  • @TheFeatheredCottageWithDee
    @TheFeatheredCottageWithDee 6 місяців тому

    I would like more information on vascular dementia please.

  • @225rip
    @225rip 2 роки тому +1

    Are these people aware this is happening to them?

    • @DementiaCareblazers
      @DementiaCareblazers  2 роки тому +1

      Sometimes, Try a genetic test to find out what type of diagnosis.

  • @brendadickenson3547
    @brendadickenson3547 9 місяців тому

    How would this affect people with epilepsy as they get oler, even if their seizures are under control?

  • @stevenblack3092
    @stevenblack3092 2 роки тому +1

    As my loved one is rapidly declining is it possible to have more than one form of dementia she was diagnosed with Alzheimer’s but has hallucinations and mood swings as well and aggressive behaviour

    • @DementiaCareblazers
      @DementiaCareblazers  2 роки тому

      Yes, you can have more than one type and all of those symptoms could also be a part of Alzheimer’s.

    • @Corinna_Schuett_GER
      @Corinna_Schuett_GER Рік тому

      Try mykotherapy medicinal mushrooms to detox and slow down the process and symptoms, strengthen her immune system naturally. Hericium Ericaneus and tinder polypore will help.

  • @singingirl1118
    @singingirl1118 2 роки тому +1

    Will talk about Lewy Body Dementia itself including life expectancy.

    • @DementiaCareblazers
      @DementiaCareblazers  2 роки тому +1

      Sure thing. In the meantime, you may want to check out this video I did: ua-cam.com/video/jhgKhiWB8_8/v-deo.html

    • @singingirl1118
      @singingirl1118 2 роки тому +1

      @@DementiaCareblazers Thank you. Spot on!

  • @kathybrem880
    @kathybrem880 29 днів тому

    I can see where my now deceased husband was developing dementia toward the end. He died before it got too bad

  • @angelinalanzillotti2773
    @angelinalanzillotti2773 2 роки тому +1

    Huckleberry Howdy Niko, (spelling?)
    More on Lewy Body dementia would be wonderful, please and thank you.

    • @DementiaCareblazers
      @DementiaCareblazers  2 роки тому +1

      Will work on more LBD videos. And yes, you spelled Niko correctly. Here is an older video I did on LBD: ua-cam.com/video/jhgKhiWB8_8/v-deo.html

    • @angelinalanzillotti2773
      @angelinalanzillotti2773 2 роки тому

      @@DementiaCareblazers
      Thank you for the link very helpful.
      I am wondering if there are general stages with Lewy Body as My Person has difficulty in all 3 areas?

  • @lowland1
    @lowland1 9 місяців тому

    There are lots of thing to do to stop Alzheimer's - better to concentrate on that than trying to make a diagnosis

  • @elizabethboyte6380
    @elizabethboyte6380 Рік тому

    Are there any videos or information available about someone with dementia and blindness?

  • @susanmcmichael5607
    @susanmcmichael5607 8 місяців тому

    Please, your videos are a bit chaotic. It was hard here to see the board. I would have liked to look at it a bit longer.

  • @Matlacha_Painter
    @Matlacha_Painter 9 місяців тому

    Too bad that you didn’t mention that other medical conditions can have the same effects.

  • @thundergod97
    @thundergod97 2 роки тому +1

    I was going through this confirming all the things I've seen and experienced with my dad....and I was like "yep yep yep nope yep yep....". He ticks impairment in about 5 out of 6 (language hasn't really been affected too much) of the cognitive domains and only recently got the "with behavioral disturbance" diagnosis.

  • @carcamper815
    @carcamper815 2 роки тому +1

    Awesome and Thank you. Please do more presentations that are educational.
    Love the use of the board in the background felt like I was in school again😍

  • @susanmorris6882
    @susanmorris6882 2 роки тому +1

    Thank you. This was very informative. I would definitely like to hear more occasionally.

  • @holdonC
    @holdonC 10 місяців тому +2

    I am 46 and have noticed a decline in almost all 6. To the point this topic has popped up in my feed. Recent audio hallucination. Didn’t know that was even a thing. It has happened 3 times while I was home alone. Heard my child say “mom”, my spouse say my name and woman’s voice coming from next room. My child sounded like calling mom from their room, spouse right behind me and woman from next room. So absolutely freaky! Next I am starting to struggle with speaking and train of thought, then searching for the right word. I am freezing cold all of the time. Watched a few videos and this one has me bit concerned. Married with children and a full time teaching job. I can’t. I can not.

    • @oursublimealabamalife9689
      @oursublimealabamalife9689 10 місяців тому

      48 here and just diagnosed with dementia. Make sure your blood sugar is normal. Then I would find the best Neurologist you can find.

    • @olivetteheslop8798
      @olivetteheslop8798 10 місяців тому

      Thank, you for the information which is the four stages of dementia. My husband was diagnosed three years ago,he is now 88yrs old,end op in hospital a month ago with COVID. And now his walking is slow holding food in his mouth problem swallowing , don't want to take his med, and it seems to be getting worse where his health is concern, thank you for your information,

    • @evelynwaugh4053
      @evelynwaugh4053 9 місяців тому +1

      There might be some other explanation such as a medication's side effects, or a UTI, or even hearing loss. Time for a complete physical?

    • @MBT372
      @MBT372 6 місяців тому

      How are you now?

  • @rudylampas2279
    @rudylampas2279 8 місяців тому

    How about an update on the new drug on Dimentia. Thanks 👍

  • @mistyobarr6467
    @mistyobarr6467 2 роки тому +1

    Thanks so much for having Careblazers! It is so supportive and helpful!

  • @rbdb8953
    @rbdb8953 9 місяців тому

    Yes, please give mire info. Thank you

  • @4everyoung24
    @4everyoung24 2 місяці тому

    Is seeing colors on the wall when they first wake up one?

  • @carolbenson6524
    @carolbenson6524 2 роки тому +1

    Very informative...learned a lot!! Thank you again.

  • @o.z.p.
    @o.z.p. 2 роки тому

    Alot of this sounds like 1/2 america

  • @larrypyle5685
    @larrypyle5685 2 роки тому +1

    I am a care giver and I am noticing my cognition is declining. I also think my resident should get more help from the state with her copays and prescriptions. Thanks for all you have taught me in caring for her.

    • @DementiaCareblazers
      @DementiaCareblazers  2 роки тому +1

      Hi Larry, We are so glad you are here as part of this community. Wishing you all the best on your caregiving journey. 💖