WOW.... I get OCEVUS infusions twice a year. Each infusion takes about 5 hours. Your infusion day sounds exactly like mine. Lots of water ✔ Comfortable clothes ✔ Mints or hard candy ✔ Food ✔ Music and things to pass the time if I don't fall asleep. ✔ When my infusion is done I go home and eat a big meal and do absolutely nothing but rest or sleep well into the next day... Great video Laura. Im sure this video and your tips will help greatly for those who may be reciving there first infusion...👍
Hello again 👋😊, yes I was reading up about OCEVUS (or ocrelizumab) it is a very similar treatment in the fact it target's the body's B Cells, the immune cells. I hope this is working well for you? Thank you so much for your kind words I really appreciate it. I really hope these videos will help people, and possibly help them to know that treatment isn't as scary as it may sound. Take care
Dr. Terry Wahls was dependent on a tilt-recline wheelchair for four years until she reclaimed her health using a diet and lifestyle program she designed specifically to -she now pedals her bike to work each day
Thank you so much for sharing I have Lyme, M.S. adn some new mass cell Hystamine, auto Imune also, thinking of Lemtrada doing tons of research this really helped hearing someone who went through it and not just Drs adn studies, Thank you soo much for sharing I'm in New Jersey in the U.S. your sharing helped someone that far the net is good for allot ;) Renn is a musician from Brighton near you his music speaks allot to diagnosis lie ours though he had Lyme like me first then autoimune, it's a crazy cycle
You're so welcome, Lemtrada was the best thing I ever did, keep researching because you need to make sure it's right for you. Thank you for watching, your watch contributed to helping out MS research as this is where the channels money goes to. I'll check out the musician 👌🎶
Hi Laura, how are you doing? I was on Kesimpta which failed, now I am on Ocrevus, which failed. So there will be a discussion about next steps soon. Tysabri or Lemtrada. Just checked common side effects, especially other autoimmune deseases and liver/kitney issues. Do you or someone you know from the trial expierienced something like that? BR, Chris
Hi Chris, sorry to hear that the treatments have failed for you. In terms of side effects, yes they did pick up a kidney problem with me but it was picked up so early that it didn't cause a problem. I'm guessing that if you went into the treatment that you would be closely monitored by your MS team?
I would expect that but of course there are uncertainties since this is not often done by my current go to clinic. But let's see what they suggest and if they are able to raise confident level. I am tires of DMT hopping and also switching other medications back and forth. Thank you for your brilliant content. Stay strong and healthy as possible. Chris
Hi Adrian, after 10 years I feel better than I was 12 years ago that's for sure. I've been relapse free for the past 11 years since the treatment, I've had symptoms but I have dealt with them as they have not been debilitating physically. I have bad days and good days, but in the past 11 years I've never had a day like I did since 2009. Can I ask, do you have MS, and what is your story?
My 8 Tips to make your Lemtrada treatment a little bit easier 😊
WOW.... I get OCEVUS infusions twice a year. Each infusion takes about 5 hours. Your infusion day sounds exactly like mine.
Lots of water ✔
Comfortable clothes ✔
Mints or hard candy ✔
Food ✔
Music and things to pass the time if I don't fall asleep. ✔
When my infusion is done I go home and eat a big meal and do absolutely nothing but rest or sleep well into the next day...
Great video Laura. Im sure this video and your tips will help greatly for those who may be reciving there first infusion...👍
Hello again 👋😊, yes I was reading up about OCEVUS (or ocrelizumab) it is a very similar treatment in the fact it target's the body's B Cells, the immune cells. I hope this is working well for you? Thank you so much for your kind words I really appreciate it. I really hope these videos will help people, and possibly help them to know that treatment isn't as scary as it may sound. Take care
Dr. Terry Wahls was dependent on a tilt-recline wheelchair for four
years until she reclaimed her health using a diet and lifestyle program
she designed specifically to -she now pedals her bike to work each day
Thank you, yes I am very aware of diet and MS and how important it is. Thank you for sharing this
Thank you so much for sharing I have Lyme, M.S. adn some new mass cell Hystamine, auto Imune also, thinking of Lemtrada doing tons of research this really helped hearing someone who went through it and not just Drs adn studies, Thank you soo much for sharing I'm in New Jersey in the U.S. your sharing helped someone that far the net is good for allot ;) Renn is a musician from Brighton near you his music speaks allot to diagnosis lie ours though he had Lyme like me first then autoimune, it's a crazy cycle
You're so welcome, Lemtrada was the best thing I ever did, keep researching because you need to make sure it's right for you. Thank you for watching, your watch contributed to helping out MS research as this is where the channels money goes to. I'll check out the musician 👌🎶
Great advice Laura
Thank you 😊🙏
Hi Laura, how are you doing? I was on Kesimpta which failed, now I am on Ocrevus, which failed. So there will be a discussion about next steps soon. Tysabri or Lemtrada. Just checked common side effects, especially other autoimmune deseases and liver/kitney issues. Do you or someone you know from the trial expierienced something like that? BR, Chris
Hi Chris, sorry to hear that the treatments have failed for you. In terms of side effects, yes they did pick up a kidney problem with me but it was picked up so early that it didn't cause a problem. I'm guessing that if you went into the treatment that you would be closely monitored by your MS team?
I would expect that but of course there are uncertainties since this is not often done by my current go to clinic. But let's see what they suggest and if they are able to raise confident level. I am tires of DMT hopping and also switching other medications back and forth. Thank you for your brilliant content. Stay strong and healthy as possible. Chris
Good luck with everything, I know I wouldn't be where I am without Lemtrada. Keep me posted on what you decide 🤞
Keep you posted 🙏
How do you feel after 10 years
Hi Adrian, after 10 years I feel better than I was 12 years ago that's for sure. I've been relapse free for the past 11 years since the treatment, I've had symptoms but I have dealt with them as they have not been debilitating physically. I have bad days and good days, but in the past 11 years I've never had a day like I did since 2009. Can I ask, do you have MS, and what is your story?