I have had LS for years after menopause and I really suffered. Browsed the internet for months and tried everything that was recommended. Nothing helped. Then I stumbled across Terry Wahls, MD and her book on autoimmune disease treatment. I followed her diet for four months only and the LS was gone completely. It has given me my life back, no itching, no lesions, nothing. Even my gyn could not believe it. For those who do not have the time to read the comprehensive book (I myself never finished it ): no gluten, no sugar, no dairy products. Meat yes, fruit yes, veggies yes, lentils, chickpeas, beans allowed, quite easy, but tough for a yoghurt and cheese addict like I was. If I managed you can do it as well.
I have had this condition for many years. It’s controlled with topical steroid medication. I can’t tell you how worried I was before I went to my doctor. It is so uncomfortable & something you don’t talk about. Thanks for bringing this information to the forefront & encouraging people to get it checked out!!
My daughter had this and I controlled it well with Jason’s tree oil cream and hydrogen peroxide. The doctors prescribed a steroid, but I would’ve had to use it on her for years and I didn’t want to do that. It went away after puberty.
I have had LS since I was 10 years old. It wasn’t until my early 30’s that I was diagnosed. I’m 60 years old now. Had vulva cancer 3 times. Back in 2020 I had to have pelvic exoneration surgery to save my life. I life know with a colostomy and urostomy bags. The journey over the last 50 years hasn’t been easy, I am extremely grateful that I am still alive.
I’m sorry you have had to endure this. My mom unfortunately passed away from squamous cell carcinoma of the vulva after having a radical vulvectomy and the cancer spreading. She fought a very hard fight, I know your journey and wish you the absolute best in your life going forward
I have this. The worst part for me is having a bowel movement. My skin tears and bleeds everytime. Too much information, I know. It's a miserable condition to have.
As a Gynecologic Oncologist, I see the worst of the worst cases of lichen sclerosis. Very frustrating for patients So very important to see a proper doctor to biopsy the lesions.
I just found out last week I will be seeing someone like you. The sheer panic and crying the last 5 days is something you are most familiar with and so sorry you see us but very grateful. I have 8 days till I can see my new Dr. 8 days is short in general but when you may only have so little time left it’s so hard to hold myself together. No words can express my appreciation and gratitude I have for you!! I wish my Dr. had understood this condition better so I would have understood it at all.
The timing of this video is insane. I was just diagnosed with this. I had NEVER heard of it. I was feeling terrified, but your video helped to ease my mind so much. I've been on the steroid cream for a couple weeks and it's about 90% healed so that is a good thing. Have a biopsy scheduled for 8/28. So happy you posted this Dr Dray.
Same here. I couldn’t believe when I saw this video pop up. I was recently told I might have it but have to wait till the end of September to get a biopsy. I’m wondering how long it’s gone undiagnosed.
I don't believe I have ever heard of this and pretty sure I haven't seen it either and I took note of the need for a biopsy. Hope all that have been diagnosed and have scheduled biopsy all the best.
I’m in the same boat. After menopause this has become an issue. I just wipe just a bit too much and the skin will bleed but it’s quite embarrassing. And the itch is unbelievable. Thanks for sharing.
I was diagnosed with this condition 15 years ago and it was too late to manage it with topicals. I have lichen planus in my mouth and psoriasis. I had to go to a specialist at a university hospital to have surgery to remove the adhesions but they continued to develop. I had the steroid injections to that area a few times and now use steroids daily to control this condition. It is awful, the worst pain and suffering I've experienced. It changed my anatomy and my sex life. I am very fortunate to have an amazing and understanding spouse. Had I known more about this disease when I was younger, I am sure the outcome would've been much different. Thank you for educating women of this disease so they don't have to go through what I did.
Thank you so much for this video. When my mom was still alive, she dealt with this. She experienced sexual assault twice in her life, and she strongly believed that's how the condition manifested itself for her. She was meticulous about describing to subsequent doctors the condition, that she'd already had a confirmed diagnosis by a dermatologist, so that she would receive proper treatment. I was there with her when a couple male doctors insisted they needed to diagnose it (even though it was already diagnosed) and they were adamant it was lichen planus, even though that looks NOTHING like lichen sclerosus 🤦♀️ needless to say, a formal complaint went in for that one! I cannot imagine the level of advocacy that has to go into maintaining the condition if you move and have to establish with new doctors.
I was asymptomatic. I was diagnosed after an exam where vulvar discoloration was noted and biopsies confirmed it. I am post menopausal. Thank you, Dr. Dray.
Thank you! I was diagnosed with this last year and I’m glad you are talking about it. As you say early on in the video it is a common problem and I believe it needs to be talked about more. I personally never heard of it until being diagnosed.
Dr, I've had lichen sclerosis for almost 25 years & suffered greatly before my diagnosis. It wasn't a firm diagnosis after the biopsy, but it made sense for my doctor to prescribe clobestol. My rash develops in the high edge of my vulva. Torturous itch. I switched from the cream version to the gel version, which had better adherence to the wet area. I purchased a hand spray for my shower to help thoroughly rinse my genital area. I've been in remission for about 3 years, with only a mild flare up usually removed with petroleum jelly. It's a miserable problem.
I can not thank you enough for this video. 15 years of Hashimoto, 3 years of problems with irrigation and nobody have seen for it told me about it, not GP, not Gynecologists, not Endocrinologists. Thank you, thank you, thank you.
Thank you for posting this video! I had never heard of this condition, and I am in my sixties. Apparently, few people talk about it, and I’ve never read anything about it, despite reading a lot. I’m fortunate to not be afflicted, but before viewing this video, I would have not known the importance of seeking treatment if experiencing symptoms. This information needs to be widely disseminated beyond the nearly two million of us who subscribe to your channel!
I am so very glad that you created this video. I was diagnosed with this condition about 10 years ago, and have had mixed success treating it with topical steroid medications. I incorporated the use of barriers such as diaper rash ointment and Vaseline on my own. I was glad to hear you mentioning these. Two OB-GYNs that I've been referred to in the past did not mention these at all. Last year when I complained that my sexual function was 100% obliterated and that penetration was pretty much impossible, I specifically asked for a surgical option to deal with the scarring and reduced vaginal opening. The gynecologist (older gentleman) told me that wasn't an option basically blamed me for never birthing a child so that I could have a stretched vagina! Needless to say I was mortified and furious. You mentioned an injectable, a surgical option, and a vaginal dilator - all options which were never presented to me. Needless to say, I am requesting another referral to a younger, more recently trained OB-GYN preferrably at a hospital specializing in women's health. (for reference I am in Alberta, Canada). Thank you thank you thank you Dr. Dray!
Thank you for covering this topic! I have lichen sclerosis and have been very fortunate to be able to manage it well with the help of my excellent doctor.
I was diagnosed with LS last year after having some itching “ down there “. One day, I took a mirror to see if I could see how irritated it was and I was shocked at how my labia and surrounding area was covered with white patches! It really freaked me out as they were not bumps or puss patches, but just a white camouflaged look. My GP sent me to a GYN to have it looked at and she performed a horrific biopsy. I couldn’t wear pants for about 10 days. I used the steroid cream a few weeks, but now I assume it’s in remission as I haven’t had any issues. I’m so glad to of found this video as this topic is not talked about much. Thank you Dr. Dray.
@@kota3117 You are giving a numbing agent first (in US), not sedation. That needle actually hurts quite a bit, so ask for a topical numbing agent so your skin is already numb BEFORE the shot (does that make sense?). Then, once they wait a bit for what's in the shot to work, they will take a "hole punch" biopsy. You may be given pain meds to take home. Once the shot wears off, it will hurt, so don't plan on doing much for a few days, and definitely don't wear pants. Try skirts or dresses w/ no undies as they can hurt too. I hope this helps. I wish I'd been more prepared for my biopsy. If you need extra pain meds, do ask!
The local didn’t work for me so I had the trauma of the hole punch without any numbing. I still cry thinking about that. Didn’t know I had the Red Hair gene which means 3-4x the normal amount of numbing agent is needed. Now I’m too scared to go back to the doc and seeking a new one.
You’re a Godsend! After 2 years of vulvar vaginal itchiness, a Surgeon Obgyn that I went to have an ablation with, saw me and immediately pointed this out to me, she did a particular vulvar biopsy. I was diagnosed with this condition. This has affected my quality of life, relationships, etc. It’s debilitating and horrendous. All creams irritate me, she just started with some lubricants and might perform surgery due to the severe scaring. I am also taking amytriptyline to help with sleep and avoid scratching at night. I’ve seeing multiple specialists and had numerous biopsies, like you pointed out. I also have RA. Thank you for bringing hope and knowledge to take control of our health !
I have been suffering for the last two, almost three years while being treated for yeast infections or told it’s in my head until today. LS is excruciating and debilitating for me and I am only hoping that it’s not too late to treat. I’m experiencing quite a few other symptoms and skin issues but my routine bloodwork came back normal and I’m scheduled for a CT scan and MRI next week. I see the dermatologist in April, 6 months since making the appointment. I have felt misunderstood, ignored and dismissed by at least 4 different doctors in the last 3 years but the obgyn I saw today gave a name to the monster I have been dealing with all that time. Thanks for the informative video and the testimonials in the comments, now I don’t feel so alone.
Got my diagnosis today, I went probably over 5/6 gyne, only one prescribed me steroids early on but others they dismissed as yeast or dry skin, went this time to a dermatologist specialised in gyne issue and she caught it immediately
Wow, thank you so much for making this video. I was diagnosed with LS around 4-5 years ago around age 29 after struggling with endless irritation from the time I was 19. I went to many providers during that time that were either unaware of the condition or didn’t catch it. I had a surgery for something unrelated and it was my surgeon who recommended a specialist who finally was able to diagnose me. The steroid therapy gave me so much relief so quickly I wish it had been caught sooner. I felt so alone during that time. I’ve been in a support group and learned as much as I can since but honestly this video taught me new things! Should be required watching after diagnosis. As well meaning as our providers are, they just don’t have the time to be this thorough with every patient. Thank you so much again for making this and- thank you even more for putting it on an accessible platform.
Dr. Dray has knowledge to spare and share to improve our lives and erase stigmas around our bodily functions. Way to go, Queen. Many thanks to you, Dr. Dray.
For the ladies who have it genitally, stop wearing underwear and don't use menstrual pads! I go commando & use tampons (per the advice of my OBGYN believe it or not lol) and now I have virtually no issues with this after having suffered with it for years. I hope this helps someone :)
I've never heard of this and I appreciate the information. You never know when you may develop a skin condition and having your videos to refer to are so helpful. This sounds like a miserable condition. Thank you, Dr Dray. Happy Friday! I hope you, your sweet momma and little Tybee have a fabulous weekend!! 💞
Thank you! I have had lichen sclerosus for three years. It commenced after I had a virus (not Covid) that wreaked absolute havoc on my health. I'd just moved to a new area, no PCP yet and so I couldn't consult with my usual providers. I'm an RN, so I researched and was pretty sure that I had lichen sclerosus and once I got a new PCP, I saw a dermatologist and it was confirmed. Luckily, it hadn't progressed too far and I avoided using any of the prescribed medications (Clobetasol and Tacrolimus.) I have found a couple of things this last year that really helped me, and I'm 90% healed. I use two topical products from Garden of Wisdom (not affiliated!): Oat Enriched Facial Serum and Calming Moisture Serum which both contain oat beta glucans. YMMV! Diaper cream and occlusives didn't work for me, and I really wanted something topical for the dryness, itching and scabbing. I also make sure to hydrate so my urine is dilute, wash the area with plain water only, and include pre- and probiotics in my daily diet. I continue to see my derm and PCP who are both amazed at how much I have healed in such a short period of time. If you have this condition, my heart goes out to you. I consider myself very lucky, and I wanted to offer you some hope that healing is possible.
I do not have this condition although I have hashimoto thyroid issues, I am surprised that no one is mentioning how important vitamin D and vitamin B3 are in relation to skin health especially when the autoimmune disease is involved. Evening Primrose is also a great support to skin health.I take all three plus vitamin A supplements as we age we need these supplements to support skin health.
how did you heal? Which products do you use? I'm from the Netherlands and I'm trying to understand what you use. I'm very grateful! here is the order you used these creams that cured you? and are you still using them or have you stopped now because you are cured of lichen scelerous? Thank you su much❤
Hello. I have been using a cream for one week that is for candidyasis and It seemed It has got better but i still feel like my parts are not the same anymore 😅 everyone tells me im crazy.. can It be licheb ir only cándidas? They di not want to do the biopsia. I feel It unwet😅
Clicked on this out of curiosity because l'd never heard of it. Stayed listening because of how informative and straightforward you are. I love that you gave such good advice about treatment options, possible side effects and what to discuss with ones Doctor.
Omg thank you Dr Dray! So many people have this condition and yet there’s not a lot of info out there on it. Could you do a video on lichen planus and lichen simplex chronicus next?
Yes, PLEASE do a video on lichen simplex chronicus!!!! I was diagnosed 2 years ago by my dermatologist b/c my former gyno (of 20 yrs) kept telling me I just need estrogen cream. I was at my annual skin check and figured I had had enough of the scratching and pain, so he did a biopsy and prescribed me with Clobetasol ointment....which is way better than the cream!! I just use water to clean with because soap irritates it. I can't shave, but keeping the hair short is better than long. It's a battle for sure because I always feel like my skin is so dry on the outside and it will just split easily. I just turned 40 the other day and I must say I'm a little down about what's to come. So please do another video!!! You are always so helpful and full of information!!! Love ❤ your vidoes!!!! ❤
Dr Dray you are just wonderful. you share SO MUCH USEFUL information. where I live you can't get an appointment with a dermatologist for months, having you as a resource for real medical information is PRICELESS. Thank you so much for what you do, I appreciate you so much.
I have had this since I was about 21. Now 52. Took 8 years for diagnosis because I finally became my own advocate and asked for a biopsy. During those 8 years, I actually would shave and pour alcohol down there. I was told many times that it was "in my mind" and given many referrals to psychologist. Since finally being diagnosed I found GELMICIN, a topical steroid cream in Mexico. I have not been able to have relations for the past 12 years with my husband. Also have Dyshidrotic Eczema and when both conditions flare up together, I just want to crawl in a corner and cry.
I am glad you found a man that stays with you even without sexual intimacy. I have never met a man that is understanding enough or that want to stay if there is not constant intimacy, they dont even consider it a possibility. I am 30 yrs old and I am pretty sure I have this. Intimacy is uncomfortable but besides that I dont have much of a libido anyway. I am affraid I will never be in a relationship
Interesting that you mention dyshidrotic eczema, because I have both conditions, also, and both have flared at the same time, leading me to wonder if there was a connection.
Thanks for doing this video, not everyone has heard about it. I was diagnosed after having cystocele repair. I can see now some of the symptoms that I thought were normal, and just lived with it.
My gynecologist misdiagnosed me with a yeast infection after giving birth to my daughter. After a year and a half and my own research I found that dermatologists are often better at diagnosing LS. I now have treatment and can live my life much more comfortably.
Just got diagnosed with this. I've had this since i was 18 years old, got a biopsy at 21 years old. It's nice to know what it is as the first time I saw it I was pretty freaked out. Went to a doctor but they didn't know what it was. Finally went to a gynecologist and they were able to diagnose it. I now have some peace of mind knowing that I'm not gonna die from it lol.
Just found out I have this today and I’m bummed 😭 I’m 29 yrs old, and really scared about getting cancer. My mom had uterine cancer so I’m always freaked out by reproductive health.
I want to thank you for making this video. I was diagnosed with this a few years ago and it's under control with the steroid cream and luckily hasn't caused me too much discomfort however, the lack of information on it I have found to be very isolating. This video was validating and I so appreciate the details of how to apply the ointment..I was never even told by my gyno... Also, Thanks to everyone that shared below so helpful to hear everyone's experiences.
I can’t thank you enough 🙏🏼👍. Your knowledge is unmeasurable, your service, knowledge is so helpful to so many of your viewers, including me. Always a great day with Dr. Dray❤😊 Thank you.
Thank you. I have been treated for this for nearly 8 years. It took a while to be diagnosed. My genital area has been much better, but I have recently had a flare up in my left armpit & under my left breast. I recently purchased a red light machine as I have been experiencing hair loss & thought I would try this before taking more medication. The armpit & under boob skin itching eased from the first session. I will discuss with my GP & dermatologist but I thought I would share. It wasn't something I expected.
Thank you so much for this, Dr. Dray. I could cry - no one talks about this. It's horrible; I was diagnosed a few years ago after menopause. A lot of trouble getting it under control. I see a vulva specialist now. I also have Hashimoto's. This condition has thoroughly changed my quality of life. Thank you again for all the great information. A good, knowledgeable doctor is so important.
I do have hypothyroidism not sure if it's hashimoto's but I went untreated for about 2 years during COVID but I have a nasty rash underneath my belly fold which is where I had my C-section it started in the folds of my skin crease of leg near my vagina now it's moved up to my belly and underneath my bra I don't know if this is what she's talking about and I'm just going through menopause I haven't had a period and about a year or so I don't know and it smells really bad does this condition smell bad like musky anything will help me I've never experienced things like this in my life Thank you I also have a hand rash before all this begun which the dermatologist told me it was dyshidrotic hand eczema I am just baffled this on my hands has been here literally 5 years and now the different symptoms of the rash under my belly now it's under my bra it's between my legs but not on my private part just in the creases and folds of my legs where my panties would go if this makes sense My hair is falling out of my head I don't have no bumps or sores on my head that I know of but it's just my life is not normal it's debilitated me to the core
This is very helpful and very timely. Although I was not diagnosed with biopsy, but the treatment my dermatologist prescribed is what you mentioned, and I am feeling much better. Thanks for your informative and educational videos. Best!
An association between lichen sclerosus (LS) and trauma is mentioned by Dr Dray, before she later states that biopsy is "essential" for diagnosis. Yet the gentlest biopsy causes trauma. I had a clumsy and very traumatic biopsy performed by scalpel a few years ago (I am a British male). Guess what? Burning, itching, pain, and awful inflammation all concentrated at the biopsy / injury site, to the point where a condition that before the biopsy was slightly distressing, is now crippling and life-changing. And I now have an additional diagnosis of nerve damage resulting from the biopsy (not from the LS). Moreover, whereas prior to the biopsy, intimate relationships were largely unaffected, they now seem all but imposible. Speaking to senior consultants (not to the idiot who biopsied me), several have told me that biopsy is unnecessary, as LS (at least in males) is visually identifiable without it. In my case, the biopsy was not even definitive for LS; I do have LS, but visual diagnosis by a specialist doctor provided the certainty. Also, as far as I'm aware, squamous cell carcinioma (SCC) becomes a significant risk only when you have suffered with LS for a decade or more. I was biopsied 4 years after my symptoms emerged, so there was a negligible risk of SCC at that time. I firmly believe that, ironically, my SCC risk has been increased by undergoing such a brutal procedure, which continues to cause me horrendous problems where it still can't heal properly. As far as biospy being "essential", in the UK, I know that there are a few hospitals with access to confocal microscopy, which can illuminate living skin under magnification to perform what to all intents and purposes is a non-invasive biopsy which can reveal changes to living skin microstructure characteristic of various conditions including LS and SCC. Unfortunately, few clinicians are trained to use this type of equipment and its deployment in the NHS remains very limited. However, it is available at some private clinics too. So in the UK there might be an alternative both to the scaplel (please don't let them do that to you) and to the biopsy needle. I have no idea about the availability of confocal microscopy in the US, but based on what I've been through following excisional biopsy, I'd advise anyone to pursue the alternatives first. If you don't have easy access to confocal microscopy, get a visual examination by an expert, i.e., a dermatologist who has real experience with this disease, and who should examine you thoroughly with the aid of a hand lens.
Wow thank you for this. I have all of the symptoms and scaref what would be the diagnosis again. Doctors keep on saying its just normal itch or yeast but it doesnt heal on antifungals.which kind of doctor did you had it check?
Very glad to finally see a video on LS. I was diagnosed by sight (blood blisters and a pale figure 8) during a routine yearly GYN checkup (my biopsy was negative). I was treated with a weak steroid cream (Synalar) that didn't seem to do much. I had never heard of LS though I had heard of lichen planus, which my brother had as a young adult. Later I developed extreme itching and a pearl-like spot which my doctor removed and which turned out to be VIN (forget which stage). The itching never really went away though I stopped using strong soaps or shower gel. Now at age 67 post-stroke I have to wear pull-ups for incontinence and the itching can be FIERCE.
My GYN seems to only want to do pre-natal and deliver babies (although to her credit, she did do a bx which came back positive for L.S.) and pretty much told me I should go to a dermatologist for treatment. However, it is quite difficult to find a dermatologist who is prepared to work on this area of the body. It seems truly a no man's land with this condition, which is bad enough on its own.
I was given a provisional diagnosis of LS yesterday. I am awaiting a biopsy. Thankfully my LS isn't itchy or painful yet. I'm hoping that I've caught it in time to avoid complications. The most difficult thing will be applying ointments or creams to the affected area, as it's SO inaccessible, even with a mirror!
I was diagnosed with a punch biopsy in the late 00's in my mid-50's. I got the steroid ointment and it didn't help me. I started putting Desitin on it for relief and you're right- it does help a lot. But the thing that has helped relieve the itching (it never itches now) is keeping it shaved for cleanliness and intermittent fasting. I have been using autophagy after 16 hour fasts to help my body heal itself. Delay Don't Deny is the book I read. It really has helped.
I'm sorry to be a Debbie Downer but if it arises again consider a second biopsy. I have a friend who is dying from vulvar cancer caused by lichen sclerosis (planus?). Her ordeal has been terrible.
Dr Dray, thank you for this video. I was diagnosed with LS at age 31 and currently I’m 34. I have heard from a lot of younger women getting it now. I have heard conflicting info about the medication application. Doctors I follow (Dr. Jill Krapf and Dr. Andrew Goldstein who are both leading researchers in LS) have said to apply the topical medication on the entire vulva/anal region, regardless of where there are white spots. This is done in order to prevent future flairs. I’ve been doing this since being diagnosed. Also I wanted to ask if you have any information regarding gluten intolerance/sensitivity with LS. I find after eating gluten my LS affected skin becomes more itchy. I really appreciate this video and more doctors should be spreading info about this disease.
I have it too! I am 31 but my mum had this condition in her 30s also. I have just tried PRP therapy for it and it was very expensive I am yet to see any improvement.
Thank you! In my experience is more common with people with hyperthyroidism and pernicious anemia, also with women with previous PCOS diagnosis. Trauma is also involved either physical or Adverse childhood events a big emotional components. Excellent review!!
I have just been diagnosed with this and I am so delighted to find your video. Thank you for your cleat description of both the condition and the way to look after it 🙏
It is interesting you mentioned circumcision. My father was not circumcised, and this condition gave him lots of problems, but he did have his cortisone cream. For me, I first had symptoms at about age 27, and it took forever to get it diagnosed. It is maddening! Waking up every morning with blood under my fingernails, having to find a place to hide to scratch, oh my God it was awful. When I have to change doctors I tell them that Clobetasol cream is non-negotiable! I only need to use it occasionally, but I never, ever want to not be able to manage it again!
I had a biopsy and came back as hyperkeratosis in the vulva and part of clitoris i was given Clobetasol Propionate ointment 0.05% today is 8 days since i started using it and finally feel some relief. Thank you so much for this video you have educated me and many others on this subject. I am a 68y female that started symptoms 2019 and my primary had no clue and gave me weird looks as if i enjoy it. At present time i figured it was a flare up of some sort but finally got a biopsy...thanks again
After suffering with this for years a doctor finally diagnosed my condition as LS. I wanted to cry. Not even a gynecologist could help me! This condition is so painful. And I had never heard of it before.
Dr Dray: thank you for recommending the colloidal patches for insect bites! I was stung by a wasp and, of course, it became super itchy to distraction. I decided to try the patches this morning and they worked like a charm! Thank you for your guidance on this!
I was diagnosed at a few years ago at 28 years old . It's so refreshing to hear this condition explained so well, I feel like I have a much better understanding from you. I'm so happy I stumbled upon this!
Thank you for giving a wonderful coverage of this problem. It’s horrible. I also have an alpha one antitrypson defiency, and my itching started about 18, before I had intercourse. Then, about 55, I had a positive skin biopsy for LS, and treated it for months. Thank you for giving excellent information, that does not seem to be available on the internet.
My mother and grandmother both had it. Unfortunately in both instances it turned into squamous cell carcinoma of the vulva. Please please please don’t ignore it
Thank you SO much for this video! People seldom talk about this particular condition, how it starts, how it's managed after symptoms arise, etc. I actually have extragenital Lichen Sclerosus ON MY FACE, so that was really fun, especially since it presented itself super early. We're talking 7 years old with the left side of my face growing thinning + whiteish patches. Didn't know what was going on till I was a teen and got a biopsy done. Started telling my friends I have Lycanthropy. 😂
Thank you for speaking about this condition!! I was diagnosed two years ago and as a scientist myself, I appreciate you doing outreach on this condition.
Thank you Dr Drsy for addressing this. My mom had this and she also had hashimotos thyroid condition. Unfortunately she was not treated early and it turned into squamous carcinoma on her vulva. This cancer was not diagnosed and she unfortunately died of this cancer. I wish we had known if you have this condition it’s extremely important to be monitored for cancer. Please do as Dr Dray says and seek multiple diagnosis if you have any concerns.
My condolences to you on the passing of your mother. A female family member had something similar happen to her with thyroid disease, lichen sclerosus and vulvar cancer. Despite treatment the cancer invaded her abdomen and she passed away within a year.
Thank you for sharing. I have it in my genital area, and it's pure torture. I loathe going to the gyno because they rotate in and out of the facility- and I appreciate seeing a woman - and there are certainly more men than women in the biz! I guess I need to bite the bullet and go back.
I also developed a squamous cell carcinoma in the perineum area and as a result they also discovered the lichen sclerosis. The cancer was removed and I have been on the cortisone cream and Premarin combination for 10 years now. My specialist said the 2 conditions can be linked which is a scary prospect but I am on a maintenance dose of the creams twice a week now for the rest of my life I am 75.
I have found drs don’t take it seriously enough. My dr only had one look and did t tell me how to properly use steroid. Went to derm same, she gave me something to help moisturize an a antibiotic to help with inflammation. Next I see gyno, prob will be biopsy next. I have come down with two autoimmune skin diseases the last year months apart. Rosacea now LS. Maybe stress has been a factor also? Thanks Dr. Dray, I honestly didn’t even knew this existed until I simply got itchy in the area and it didn’t go away:(
I'm 48 and almost menopausal. Haven't experienced this yet but it's good to know. I do have hidradenitis suppurativa. I'd never heard of that until my diagnosis, either! But knowledge is power so I'm glad to know about this.
0:18: 🔍 Lichen sclerosis is a chronic inflammatory skin condition that primarily affects the genitalia, but can also involve other areas of the body. 3:06: 😣 Lichen sclerosis is a condition that commonly affects post-menopausal women, involving thinning and fragile skin, inflammation, itching, and potential scarring. 6:18: ⚠ Lichen sclerosis in the genitals can lead to various complications including infections, painful ulcers, and an increased risk of squamous cell carcinoma. 9:38: 🩺 Treatment options for lichen sclerosus include barrier creams, ultra potent steroid ointments, calcineurin inhibitors, and oral retinoids. 12:42: 🔬 Treatment options for lichen sclerosis include topical steroids, oral retinoids, Methotrexate, and cyclosporin; surgical interventions may be necessary for severe scarring and adhesions. 15:44: 💡 The video discusses a condition called lichen sclerosus and provides information on its symptoms, complications, and the importance of seeking multiple medical opinions. Recap by Tammy AI
I got diagnosed with this about 7-8 years ago. I was 51 at the time and just became post menopausal. Ugh! What a horrible condition! I’ve been battling with this ever since. It’s so frustrating and affects my daily life.
I came back to listen to this again & I did pick up some things I didn't catch the first go round. I must admit I sometimes apply the steroid cream in a hap hazard way and I need to be more accurate. A barrier cream like Vaseline does help some. LC can certainly be debilitating when combined with lymphocytic colitis, which I have. It actually makes me glad that I'm single now. I also need to see my gyno much more often. It's been years. Thank you so my Dr. Dray for all of the information that you share with us and hoping that it will encourage more people to have it checked out.
I was diagnosed with this about 12-13 years ago and had a very painful biopsy down there. Then I forgot about it and didn’t want to believe it would be with me for the rest of my life. I just saw a new NP and she was doing the normal annual exam and asked me if I was diagnosed with this since she saw the white patches. I felt so horrible and then I realized this was treatable and I was just going to have to deal with it. Thanks for discussing this. I think this was triggered from being on the pill.
I was diagnosed (mis-diagnosed) after yeast infections left me super itchy and with bleeding skin fissures. I was in my 30's. The gyno was happily explaining to the med student how she'd seen an older lady with this condition whose labia were completely deformed and stuck together. Erm, thanks for giving me something to look forward to. Plus for the last 25 years I've been using the steroid cream. over the whole skin. I was never told to take a mirror and look for any white areas.
Thank you so very much for covering this topic. I have oral lichen planus and genital lichen sclerosis. Unfortunately, I have scarring and intercourse has been off the table for years. It has gotten better in regards to the flare ups, but I am working towards being able to use the dilators to see if it will help. Last visit, a pediatric speculum couldn’t even being used. So, it’s been rough. The labia minora has disappeared entirely and there is tissue that has fused above the urethra so my urine stream is not in the direction it should be. But, we are making progress so hopefully this won’t be my story for the long haul. It was interesting to hear also that it could possibly be related to autoimmune disorders if the thyroid. I did have Graves’ disease many years ago and underwent the radioactive iodine therapy twice. Things that make you go hmmmmm… Thank you as always for being a wealth of knowledge…I found you in 2017 while I was waiting to find out some biopsy results, which turned out to be melanoma. Thankfully, we caught it early and no reoccurrences at this time 😊
Thank you so much for this information. Recently I was diagnosed by an oral surgeon with Lichen Planus in my mouth affecting my tongue and gums. It appears intermittently and I was prescribed a gel (betamethasone) to use when it appears. I would appreciate a video regarding Lichen Planus and compare and contrast with Lichen Sclerosus.
Dr. Dray, thank you so much for this video. I have suffered from this disease for many years, but with patience and medical treatment , you can persevere.
Thanks for the education. My Family struggles with this and their Father had really bad psoriasis. I was turned onto it by a client. This client did not inform me before her Brazilian sugaring appt. She told me after the service. This is a serious issue that is so hard to speak about. Thank you!
Thank you doc! Very helpful video. I've had this condition since my early twenties and for me it's absolutely essential that I use some kind of oil, usually peanut oil, every time I shower.
I know it is really frustrating when something hits our mental health or our overall way of life. So when it comes to our health we should be brave and seek someone of the medical field who can address and take the symptoms seriously and scrutinize the individual very well leaving nothing unchecked. As pimecrolimus aka Elidel i used it for my atopic dermatitis on my face topically i had no issues with irritation whatsoever 😊❤ and it worked extraordinary well ❤. Thank so much for the precious info Doctor Andrea and taking time to explain the whole issue with simple to understand words and examples.
I have this condition and live in the UK it is mostly under control but i have not been having regular exams so will chase that up. I am allergic to most creams including most of the barrier creams but have found one emollient called zerobase which i can tolerate which has been a revelation. I use it instead of soap for my whole body and regularly apply it and that has really helped. I find I can’t wear most jeans anymore due to the really stiff seam at the crotch. I think mine was triggered by a thrush infection during pregnancy which I struggled to get under control at the time.
My GP didn’t catch this and I suffered for much longer than necessary. Got a 2nd opinion from my gyno and confirmed with a biopsy. Very painful procedure but glad to get the diagnosis and treatment.
😮 I'm 26 I didn't know this had a name 😳 literally everything you described the hsv the infections ,urinary problems, the skin lesions , the painful intercourse I thought due to nerve damage from hsv which was what they assumed they wanted me to under go internal shock therapy 😅 or severe the nerve but the infections are literally constant and chronic with no other diagnosed reason I'm glad I watched this I will bring this up in my next visit as a conversation with a new gyn doctor my previous one doesn't take me seriously when we know our body's best when we don't feel right ❤
You have given a most thorough explanation of this. I have it but have not had a biopsy but in visual exam it was “yup”. Kidney doc won’t let me use clobetasol but I have been experimenting and researching other things and now have it better managed.
I have this, on my labia... I'm 45. I do have an Autoimmune disease called Ankolosing Spondylitis. If anyone wants to ask anything... go for it. We are all adult women... ask away. ❤
I have Rheumatoid arthritis and developed this while I was taking medication for my Arthritis. I quit taking that particular medication and it cleared up.
@@eileenfh7834 , methotrexate, then they tried Sulfasalazine, then fluconazole all disagreed with me. Then I went on Enbrel that works pretty good without side effects.
From a very young age, my son has had a skin condition on his legs that we were told was Lichen Planus. He was given cremes and steriods which never helped. He only got any relief when he was about 13 and got very sick, extremely high temperature, and was given a very strong antibiotic. The condition on his skin was gone in 48 hours, completely gone, and stayed away for around 3 years. Unfortunately, it came back and after seeing doctor after doctor with no relief, he finally just gave up and lives with the discomfort. I read once that red light therapy would help but he is reluctant to try it, I guess he doesn't want to go through another disappointment. I really wish there was a real treatment for this condition.
These videos are not fun, but I make myself watch them. I appreciate learning about these things in small doses, and I have definitely gone searching for some of your medical videos when I have had an issue I remember hearing you talk about before. Thank you for this service.
Thank you for this very informative video. i was misdiagnosed for years before it was finally diagnosed properly. I wish I could have seen this video 10 years ago. Very helpful information.
Please, Dr. Dray, do a vid on the difference between LS and "downstairs" Lichen Planus. I went undiagnosed with LP for 33 yrs! Symptoms started in at 17. I don't know anyone with genital LP, but I have met many with LP of the mouth. Please emphasize the importance of a punch biopsy. My derm was able to rule out LS because of her punch bx, and able to assure me my LP would not worsen after menopause. Also, I had had 2 biopsies over the years from 2 caring gynes, but neither did punch bxs. Had they, I might not have advanced to "end-stage" disease. I had LP as well of the fingernails. Also, my derm diagnosed alopecia areata (diffuse pattern) which she said may or may not be related to my LP - not enough research at the time to provide an evidence-based opinion. So much to cover, no? Thx for all your work.
Had this for over a decade. Clobetasol isn’t an option because it comes back the moment I stop using it. My skin is like tissue paper so I found a Chinese cream called sumifun eczema cream. It has menthol so it’s hot at first but in 5 min the itching is gone and the torn skin heals. I get a recurring tear above my clitoris. Sumifun works so good but I believe it’s an autoimmune skin issue. I’m starting dermatrophin pmg to see if it will help. Will check back in a few. God bless all us ladies that have this horror. ❤
I was diagnosed with this condition I was petrified but my doctor told me no perfumed shower gels or soaps...I'm on clobetasol steroid cream...thanks for this video
My holistic practicioner believes that LS heralds in a slew of other autoimmune diseases. So far I've got LS, SS, RA, and thyroid. It's only been 5 or 6 years since LS was diagnosed, and about a year since finding out about the other autoimmune diseases. It doesn't just affect skin. I actually have it on the soft palate in my mouth too.
I have had LS for years after menopause and I really suffered. Browsed the internet for months and tried everything that was recommended. Nothing helped. Then I stumbled across Terry Wahls, MD and her book on autoimmune disease treatment. I followed her diet for four months only and the LS was gone completely. It has given me my life back, no itching, no lesions, nothing. Even my gyn could not believe it. For those who do not have the time to read the comprehensive book (I myself never finished it ): no gluten, no sugar, no dairy products. Meat yes, fruit yes, veggies yes, lentils, chickpeas, beans allowed, quite easy, but tough for a yoghurt and cheese addict like I was. If I managed you can do it as well.
I have had this condition for many years. It’s controlled with topical steroid medication. I can’t tell you how worried I was before I went to my doctor. It is so uncomfortable & something you don’t talk about. Thanks for bringing this information to the forefront & encouraging people to get it checked out!!
thanks for watching
Do they recommend you switch to tacrolimus or pimecrolis?
Wow. This is so helpful!! Thank you so much for making this video!!
My daughter had this and I controlled it well with Jason’s tree oil cream and hydrogen peroxide. The doctors prescribed a steroid, but I would’ve had to use it on her for years and I didn’t want to do that. It went away after puberty.
I also have had it for years ..,finally got a diagnosis and I’m feeling so much better😊
I have had LS since I was 10 years old. It wasn’t until my early 30’s that I was diagnosed. I’m 60 years old now. Had vulva cancer 3 times. Back in 2020 I had to have pelvic exoneration surgery to save my life. I life know with a colostomy and urostomy bags. The journey over the last 50 years hasn’t been easy, I am extremely grateful that I am still alive.
Did you not treat the LS all time?
That’s an unreal journey! Beyond a thriver and I’m sure there’s a lot you can share along the way. Happy you’re still kicking 🦵 ass!
I’m sorry you have had to endure this. My mom unfortunately passed away from squamous cell carcinoma of the vulva after having a radical vulvectomy and the cancer spreading. She fought a very hard fight, I know your journey and wish you the absolute best in your life going forward
@@user-qh7uh7sz8n did our mum have LS before cancer?
@@маринасергеева-л3э yes. My mom and my ban both had LS before they treated it more seriously. In both instances it turned to cancer
I have this. The worst part for me is having a bowel movement. My skin tears and bleeds everytime. Too much information, I know. It's a miserable condition to have.
Using a sitz bath helped me. Sometimes the BM happens outside your control but no pain and helps healing.
I have that too. You aren’t alone.
@@TameraEdwards Thank you for your kind words.
I understand, me too.
I just got diagnosed😢having bowel movements puts pressure in the area. It hurts to sit- feels like I’m sitting on a small balloon
As a Gynecologic Oncologist, I see the worst of the worst cases of lichen sclerosis. Very frustrating for patients So very important to see a proper doctor to biopsy the lesions.
I just found out last week I will be seeing someone like you. The sheer panic and crying the last 5 days is something you are most familiar with and so sorry you see us but very grateful. I have 8 days till I can see my new Dr. 8 days is short in general but when you may only have so little time left it’s so hard to hold myself together. No words can express my appreciation and gratitude I have for you!! I wish my Dr. had understood this condition better so I would have understood it at all.
@@TheSliverleaf my biopsy was the worst part. A numbing shot didn’t work, and sample removal.
The timing of this video is insane. I was just diagnosed with this. I had NEVER heard of it. I was feeling terrified, but your video helped to ease my mind so much. I've been on the steroid cream for a couple weeks and it's about 90% healed so that is a good thing. Have a biopsy scheduled for 8/28. So happy you posted this Dr Dray.
glad this was helpful
Hope you feel better :)
Same here. I couldn’t believe when I saw this video pop up. I was recently told I might have it but have to wait till the end of September to get a biopsy. I’m wondering how long it’s gone undiagnosed.
I don't believe I have ever heard of this and pretty sure I haven't seen it either and I took note of the need for a biopsy. Hope all that have been diagnosed and have scheduled biopsy all the best.
I’m in the same boat. After menopause this has become an issue. I just wipe just a bit too much and the skin will bleed but it’s quite embarrassing. And the itch is unbelievable. Thanks for sharing.
I was diagnosed with this condition 15 years ago and it was too late to manage it with topicals. I have lichen planus in my mouth and psoriasis. I had to go to a specialist at a university hospital to have surgery to remove the adhesions but they continued to develop. I had the steroid injections to that area a few times and now use steroids daily to control this condition. It is awful, the worst pain and suffering I've experienced. It changed my anatomy and my sex life. I am very fortunate to have an amazing and understanding spouse. Had I known more about this disease when I was younger, I am sure the outcome would've been much different. Thank you for educating women of this disease so they don't have to go through what I did.
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Thank you so much for this video. When my mom was still alive, she dealt with this. She experienced sexual assault twice in her life, and she strongly believed that's how the condition manifested itself for her. She was meticulous about describing to subsequent doctors the condition, that she'd already had a confirmed diagnosis by a dermatologist, so that she would receive proper treatment. I was there with her when a couple male doctors insisted they needed to diagnose it (even though it was already diagnosed) and they were adamant it was lichen planus, even though that looks NOTHING like lichen sclerosus 🤦♀️ needless to say, a formal complaint went in for that one! I cannot imagine the level of advocacy that has to go into maintaining the condition if you move and have to establish with new doctors.
I was asymptomatic. I was diagnosed after an exam where vulvar discoloration was noted and biopsies confirmed it. I am post menopausal. Thank you, Dr. Dray.
Same and shocked! Haven’t taken the steroid cream yet…only the estradiol 2x weekly.
I've had this most of my life but wasnt diagnosed until my early 20s. Ive never had it explained so well. Thanks for doing this video.
Thank you! I was diagnosed with this last year and I’m glad you are talking about it. As you say early on in the video it is a common problem and I believe it needs to be talked about more. I personally never heard of it until being diagnosed.
Likewise
Dr, I've had lichen sclerosis for almost 25 years & suffered greatly before my diagnosis. It wasn't a firm diagnosis after the biopsy, but it made sense for my doctor to prescribe clobestol.
My rash develops in the high edge of my vulva. Torturous itch. I switched from the cream version to the gel version, which had better adherence to the wet area.
I purchased a hand spray for my shower to help thoroughly rinse my genital area.
I've been in remission for about 3 years, with only a mild flare up usually removed with petroleum jelly. It's a miserable problem.
You are such a bright star in our collapsing healthcare system! Thank
Ready for it to collapse. It needs to be rebuilt
I can not thank you enough for this video. 15 years of Hashimoto, 3 years of problems with irrigation and nobody have seen for it told me about it, not GP, not Gynecologists, not Endocrinologists. Thank you, thank you, thank you.
I love your passion to educate us about the skin and skin conditions. You helped with the improvement of my own skin ❤
Thank you for posting this video! I had never heard of this condition, and I am in my sixties. Apparently, few people talk about it, and I’ve never read anything about it, despite reading a lot. I’m fortunate to not be afflicted, but before viewing this video, I would have not known the importance of seeking treatment if experiencing symptoms. This information needs to be widely disseminated beyond the nearly two million of us who subscribe to your channel!
As a sufferer of this condition, I appreciate this video and the information shared.
I am so very glad that you created this video. I was diagnosed with this condition about 10 years ago, and have had mixed success treating it with topical steroid medications. I incorporated the use of barriers such as diaper rash ointment and Vaseline on my own. I was glad to hear you mentioning these. Two OB-GYNs that I've been referred to in the past did not mention these at all. Last year when I complained that my sexual function was 100% obliterated and that penetration was pretty much impossible, I specifically asked for a surgical option to deal with the scarring and reduced vaginal opening. The gynecologist (older gentleman) told me that wasn't an option basically blamed me for never birthing a child so that I could have a stretched vagina! Needless to say I was mortified and furious. You mentioned an injectable, a surgical option, and a vaginal dilator - all options which were never presented to me. Needless to say, I am requesting another referral to a younger, more recently trained OB-GYN preferrably at a hospital specializing in women's health. (for reference I am in Alberta, Canada). Thank you thank you thank you Dr. Dray!
I'm sorry you went through un professional doctor whi said a complete bs!! Hang in girl we'll feel better❤
Thank you for covering this topic! I have lichen sclerosis and have been very fortunate to be able to manage it well with the help of my excellent doctor.
Me too.
How do you manage it ?
Other than topicsl steroids what can you do?
Thanks for this video. I was diagnosed at 37, seven years ago. Hate this condition. So, so much. Painful, isolating, relationship breaking.
I am with you and have the same experience, I am 72 and have had it for prob. 30 yrs. it is debilitating.
@@Karenkaza1❤
@@Karenkaza1please reply me what happen to labia minora ...does it vanish
I was diagnosed with LS last year after having some itching “ down there “. One day, I took a mirror to see if I could see how irritated it was and I was shocked at how my labia and surrounding area was covered with white patches! It really freaked me out as they were not bumps or puss patches, but just a white camouflaged look. My GP sent me to a GYN to have it looked at and she performed a horrific biopsy. I couldn’t wear pants for about 10 days. I used the steroid cream a few weeks, but now I assume it’s in remission as I haven’t had any issues. I’m so glad to of found this video as this topic is not talked about much. Thank you Dr. Dray.
How is the biopsy performed? Do they numb you or sedate you or anything? I may have to have this done and I have a low pain tolerance
@@kota3117 You are giving a numbing agent first (in US), not sedation. That needle actually hurts quite a bit, so ask for a topical numbing agent so your skin is already numb BEFORE the shot (does that make sense?). Then, once they wait a bit for what's in the shot to work, they will take a "hole punch" biopsy. You may be given pain meds to take home. Once the shot wears off, it will hurt, so don't plan on doing much for a few days, and definitely don't wear pants. Try skirts or dresses w/ no undies as they can hurt too. I hope this helps. I wish I'd been more prepared for my biopsy. If you need extra pain meds, do ask!
The local didn’t work for me so I had the trauma of the hole punch without any numbing. I still cry thinking about that. Didn’t know I had the Red Hair gene which means 3-4x the normal amount of numbing agent is needed. Now I’m too scared to go back to the doc and seeking a new one.
Kelly, did the cream reverse the spots and fusion for you?
You’re a Godsend! After 2 years of vulvar vaginal itchiness, a Surgeon Obgyn that I went to have an ablation with, saw me and immediately pointed this out to me, she did a particular vulvar biopsy. I was diagnosed with this condition. This has affected my quality of life, relationships, etc. It’s debilitating and horrendous. All creams irritate me, she just started with some lubricants and might perform surgery due to the severe scaring. I am also taking amytriptyline to help with sleep and avoid scratching at night. I’ve seeing multiple specialists and had numerous biopsies, like you pointed out. I also have RA. Thank you for bringing hope and knowledge to take control of our health !
Have you tryed Berberine and Oregano oil soft gels and try Garlic
Good Luck
Emu oil healed the whole area for me
I just read about this, which brand you used? Thanks!
@@lynnmcintyre8116 Just ordered Berberine as I saw it on a Dr. Berg video, will check the oregano oil gels, thanks:)
@@bettyanne3057 you say you were healed by emu oil? you don't have anything left lately, this gives hope! which emu oil do you use?
Thank you for addressing this with such factual scientific information. Skin care is more than just on our face.
I have been suffering for the last two, almost three years while being treated for yeast infections or told it’s in my head until today. LS is excruciating and debilitating for me and I am only hoping that it’s not too late to treat. I’m experiencing quite a few other symptoms and skin issues but my routine bloodwork came back normal and I’m scheduled for a CT scan and MRI next week. I see the dermatologist in April, 6 months since making the appointment. I have felt misunderstood, ignored and dismissed by at least 4 different doctors in the last 3 years but the obgyn I saw today gave a name to the monster I have been dealing with all that time. Thanks for the informative video and the testimonials in the comments, now I don’t feel so alone.
Got my diagnosis today, I went probably over 5/6 gyne, only one prescribed me steroids early on but others they dismissed as yeast or dry skin, went this time to a dermatologist specialised in gyne issue and she caught it immediately
Wow, thank you so much for making this video. I was diagnosed with LS around 4-5 years ago around age 29 after struggling with endless irritation from the time I was 19. I went to many providers during that time that were either unaware of the condition or didn’t catch it. I had a surgery for something unrelated and it was my surgeon who recommended a specialist who finally was able to diagnose me. The steroid therapy gave me so much relief so quickly I wish it had been caught sooner. I felt so alone during that time. I’ve been in a support group and learned as much as I can since but honestly this video taught me new things! Should be required watching after diagnosis. As well meaning as our providers are, they just don’t have the time to be this thorough with every patient. Thank you so much again for making this and- thank you even more for putting it on an accessible platform.
Did you visit a gynecologist or a dermatologist
OBGYN an who specialized in womens pain@@naenaeseharuka9253
Dr. Dray has knowledge to spare and share to improve our lives and erase stigmas around our bodily functions. Way to go, Queen. Many thanks to you, Dr. Dray.
For the ladies who have it genitally, stop wearing underwear and don't use menstrual pads! I go commando & use tampons (per the advice of my OBGYN believe it or not lol) and now I have virtually no issues with this after having suffered with it for years. I hope this helps someone :)
Every time I wear undies, I get a LS flare! Good advice.
what about when u wear pants?
@@eugenierunner7988 Well I wear pants quite a lot and I still dont wear underwear underneath them. In my experience nothing is worth a flare up
I've never heard of this and I appreciate the information. You never know when you may develop a skin condition and having your videos to refer to are so helpful. This sounds like a miserable condition. Thank you, Dr Dray. Happy Friday! I hope you, your sweet momma and little Tybee have a fabulous weekend!! 💞
Thank you! I have had lichen sclerosus for three years. It commenced after I had a virus (not Covid) that wreaked absolute havoc on my health. I'd just moved to a new area, no PCP yet and so I couldn't consult with my usual providers. I'm an RN, so I researched and was pretty sure that I had lichen sclerosus and once I got a new PCP, I saw a dermatologist and it was confirmed. Luckily, it hadn't progressed too far and I avoided using any of the prescribed medications (Clobetasol and Tacrolimus.) I have found a couple of things this last year that really helped me, and I'm 90% healed. I use two topical products from Garden of Wisdom (not affiliated!): Oat Enriched Facial Serum and Calming Moisture Serum which both contain oat beta glucans. YMMV! Diaper cream and occlusives didn't work for me, and I really wanted something topical for the dryness, itching and scabbing. I also make sure to hydrate so my urine is dilute, wash the area with plain water only, and include pre- and probiotics in my daily diet. I continue to see my derm and PCP who are both amazed at how much I have healed in such a short period of time. If you have this condition, my heart goes out to you. I consider myself very lucky, and I wanted to offer you some hope that healing is possible.
I do not have this condition although I have hashimoto thyroid issues, I am surprised that no one is mentioning how important vitamin D and vitamin B3 are in relation to skin health especially when the autoimmune disease is involved. Evening Primrose is also a great support to skin health.I take all three plus vitamin A supplements as we age we need these supplements to support skin health.
how did you heal? Which products do you use? I'm from the Netherlands and I'm trying to understand what you use. I'm very grateful! here is the order you used these creams that cured you?
and are you still using them or have you stopped now because you are cured of lichen scelerous? Thank you su much❤
Thank you for the information!
@@julesf4911 You're welcome!
Hello. I have been using a cream for one week that is for candidyasis and It seemed It has got better but i still feel like my parts are not the same anymore 😅 everyone tells me im crazy.. can It be licheb ir only cándidas? They di not want to do the biopsia. I feel It unwet😅
Dr Dray is a walking encyclopaedia!! So much knowledge and you graciously share this with us, for free. Bless you 💐 💖
Show me another derm doc or someone's on YT like Dr. Dray
She's literally the BEST! So knowledgeable and no bs
Clicked on this out of curiosity because l'd never heard of it. Stayed listening because of how informative and straightforward you are. I love that you gave such good advice about treatment options, possible side effects and what to discuss with ones Doctor.
Omg thank you Dr Dray! So many people have this condition and yet there’s not a lot of info out there on it. Could you do a video on lichen planus and lichen simplex chronicus next?
Yes, PLEASE do a video on lichen simplex chronicus!!!!
I was diagnosed 2 years ago by my dermatologist b/c my former gyno (of 20 yrs) kept telling me I just need estrogen cream. I was at my annual skin check and figured I had had enough of the scratching and pain, so he did a biopsy and prescribed me with Clobetasol ointment....which is way better than the cream!!
I just use water to clean with because soap irritates it. I can't shave, but keeping the hair short is better than long. It's a battle for sure because I always feel like my skin is so dry on the outside and it will just split easily. I just turned 40 the other day and I must say I'm a little down about what's to come. So please do another video!!! You are always so helpful and full of information!!! Love ❤ your vidoes!!!! ❤
Dr Dray you are just wonderful. you share SO MUCH USEFUL information. where I live you can't get an appointment with a dermatologist for months, having you as a resource for real medical information is PRICELESS. Thank you so much for what you do, I appreciate you so much.
I have had this since I was about 21. Now 52. Took 8 years for diagnosis because I finally became my own advocate and asked for a biopsy. During those 8 years, I actually would shave and pour alcohol down there. I was told many times that it was "in my mind" and given many referrals to psychologist. Since finally being diagnosed I found GELMICIN, a topical steroid cream in Mexico. I have not been able to have relations for the past 12 years with my husband. Also have Dyshidrotic Eczema and when both conditions flare up together, I just want to crawl in a corner and cry.
I am glad you found a man that stays with you even without sexual intimacy. I have never met a man that is understanding enough or that want to stay if there is not constant intimacy, they dont even consider it a possibility. I am 30 yrs old and I am pretty sure I have this. Intimacy is uncomfortable but besides that I dont have much of a libido anyway. I am affraid I will never be in a relationship
@@penka2954 do you treate LS by clob?
Interesting that you mention dyshidrotic eczema, because I have both conditions, also, and both have flared at the same time, leading me to wonder if there was a connection.
Thanks for doing this video, not everyone has heard about it. I was diagnosed after having cystocele repair. I can see now some of the symptoms that I thought were normal, and just lived with it.
My gynecologist misdiagnosed me with a yeast infection after giving birth to my daughter. After a year and a half and my own research I found that dermatologists are often better at diagnosing LS. I now have treatment and can live my life much more comfortably.
Just got diagnosed with this. I've had this since i was 18 years old, got a biopsy at 21 years old. It's nice to know what it is as the first time I saw it I was pretty freaked out. Went to a doctor but they didn't know what it was. Finally went to a gynecologist and they were able to diagnose it. I now have some peace of mind knowing that I'm not gonna die from it lol.
Just found out I have this today and I’m bummed 😭 I’m 29 yrs old, and really scared about getting cancer. My mom had uterine cancer so I’m always freaked out by reproductive health.
I want to thank you for making this video. I was diagnosed with this a few years ago and it's under control with the steroid cream and luckily hasn't caused me too much discomfort however, the lack of information on it I have found to be very isolating. This video was validating and I so appreciate the details of how to apply the ointment..I was never even told by my gyno... Also, Thanks to everyone that shared below so helpful to hear everyone's experiences.
I can’t thank you enough 🙏🏼👍. Your knowledge is unmeasurable, your service, knowledge is so helpful to so many of your viewers, including me. Always a great day with Dr. Dray❤😊 Thank you.
You are very welcome
Thank you. I have been treated for this for nearly 8 years. It took a while to be diagnosed. My genital area has been much better, but I have recently had a flare up in my left armpit & under my left breast. I recently purchased a red light machine as I have been experiencing hair loss & thought I would try this before taking more medication. The armpit & under boob skin itching eased from the first session. I will discuss with my GP & dermatologist but I thought I would share. It wasn't something I expected.
Thank you so much for this, Dr. Dray. I could cry - no one talks about this. It's horrible; I was diagnosed a few years ago after menopause. A lot of trouble getting it under control. I see a vulva specialist now. I also have Hashimoto's. This condition has thoroughly changed my quality of life. Thank you again for all the great information. A good, knowledgeable doctor is so important.
I too have this condition and Hasimotos and developed it after menopause. I feel it's may be part of the autoimmune disease.
I do have hypothyroidism not sure if it's hashimoto's but I went untreated for about 2 years during COVID but I have a nasty rash underneath my belly fold which is where I had my C-section it started in the folds of my skin crease of leg near my vagina now it's moved up to my belly and underneath my bra I don't know if this is what she's talking about and I'm just going through menopause I haven't had a period and about a year or so I don't know and it smells really bad does this condition smell bad like musky anything will help me I've never experienced things like this in my life Thank you I also have a hand rash before all this begun which the dermatologist told me it was dyshidrotic hand eczema I am just baffled this on my hands has been here literally 5 years and now the different symptoms of the rash under my belly now it's under my bra it's between my legs but not on my private part just in the creases and folds of my legs where my panties would go if this makes sense My hair is falling out of my head I don't have no bumps or sores on my head that I know of but it's just my life is not normal it's debilitated me to the core
@@wendy8561Try zee-sorb powder It works under bra area and belly and leg. Expensive but I get the cvs brand
This is very helpful and very timely. Although I was not diagnosed with biopsy, but the treatment my dermatologist prescribed is what you mentioned, and I am feeling much better. Thanks for your informative and educational videos. Best!
What treatment were u given,,help a sister
An association between lichen sclerosus (LS) and trauma is mentioned by Dr Dray, before she later states that biopsy is "essential" for diagnosis. Yet the gentlest biopsy causes trauma. I had a clumsy and very traumatic biopsy performed by scalpel a few years ago (I am a British male). Guess what? Burning, itching, pain, and awful inflammation all concentrated at the biopsy / injury site, to the point where a condition that before the biopsy was slightly distressing, is now crippling and life-changing. And I now have an additional diagnosis of nerve damage resulting from the biopsy (not from the LS). Moreover, whereas prior to the biopsy, intimate relationships were largely unaffected, they now seem all but imposible. Speaking to senior consultants (not to the idiot who biopsied me), several have told me that biopsy is unnecessary, as LS (at least in males) is visually identifiable without it. In my case, the biopsy was not even definitive for LS; I do have LS, but visual diagnosis by a specialist doctor provided the certainty. Also, as far as I'm aware, squamous cell carcinioma (SCC) becomes a significant risk only when you have suffered with LS for a decade or more. I was biopsied 4 years after my symptoms emerged, so there was a negligible risk of SCC at that time. I firmly believe that, ironically, my SCC risk has been increased by undergoing such a brutal procedure, which continues to cause me horrendous problems where it still can't heal properly. As far as biospy being "essential", in the UK, I know that there are a few hospitals with access to confocal microscopy, which can illuminate living skin under magnification to perform what to all intents and purposes is a non-invasive biopsy which can reveal changes to living skin microstructure characteristic of various conditions including LS and SCC. Unfortunately, few clinicians are trained to use this type of equipment and its deployment in the NHS remains very limited. However, it is available at some private clinics too. So in the UK there might be an alternative both to the scaplel (please don't let them do that to you) and to the biopsy needle. I have no idea about the availability of confocal microscopy in the US, but based on what I've been through following excisional biopsy, I'd advise anyone to pursue the alternatives first. If you don't have easy access to confocal microscopy, get a visual examination by an expert, i.e., a dermatologist who has real experience with this disease, and who should examine you thoroughly with the aid of a hand lens.
Wow thank you for this. I have all of the symptoms and scaref what would be the diagnosis again. Doctors keep on saying its just normal itch or yeast but it doesnt heal on antifungals.which kind of doctor did you had it check?
I have this condition too. Sometimes, it's unbearable. Thank you for sharing this informative video. 🌺
Very glad to finally see a video on LS. I was diagnosed by sight (blood blisters and a pale figure 8) during a routine yearly GYN checkup (my biopsy was negative). I was treated with a weak steroid cream (Synalar) that didn't seem to do much. I had never heard of LS though I had heard of lichen planus, which my brother had as a young adult. Later I developed extreme itching and a pearl-like spot which my doctor removed and which turned out to be VIN (forget which stage). The itching never really went away though I stopped using strong soaps or shower gel. Now at age 67 post-stroke I have to wear pull-ups for incontinence and the itching can be FIERCE.
Use only cotton Pull ups, a bit more $ but very worth the price.😊
How long do you have LS?
Did vin appeare of LS?
@@маринасергеева-л3э about 15 years
@@маринасергеева-л3э don't understand the question
My GYN seems to only want to do pre-natal and deliver babies (although to her credit, she did do a bx which came back positive for L.S.) and pretty much told me I should go to a dermatologist for treatment. However, it is quite difficult to find a dermatologist who is prepared to work on this area of the body. It seems truly a no man's land with this condition, which is bad enough on its own.
I am sure there are people here who will be helped so much by this and get the treatment they need. Thank you for sharing this important information
I was given a provisional diagnosis of LS yesterday. I am awaiting a biopsy. Thankfully my LS isn't itchy or painful yet. I'm hoping that I've caught it in time to avoid complications. The most difficult thing will be applying ointments or creams to the affected area, as it's SO inaccessible, even with a mirror!
I was diagnosed with a punch biopsy in the late 00's in my mid-50's. I got the steroid ointment and it didn't help me. I started putting Desitin on it for relief and you're right- it does help a lot. But the thing that has helped relieve the itching (it never itches now) is keeping it shaved for cleanliness and intermittent fasting. I have been using autophagy after 16 hour fasts to help my body heal itself. Delay Don't Deny is the book I read. It really has helped.
Awesome! I'm a faster as well.
I'm sorry to be a Debbie Downer but if it arises again consider a second biopsy. I have a friend who is dying from vulvar cancer caused by lichen sclerosis (planus?). Her ordeal has been terrible.
What is "autophagy" ?
Dr Dray, thank you for this video. I was diagnosed with LS at age 31 and currently I’m 34. I have heard from a lot of younger women getting it now. I have heard conflicting info about the medication application. Doctors I follow (Dr. Jill Krapf and Dr. Andrew Goldstein who are both leading researchers in LS) have said to apply the topical medication on the entire vulva/anal region, regardless of where there are white spots. This is done in order to prevent future flairs. I’ve been doing this since being diagnosed. Also I wanted to ask if you have any information regarding gluten intolerance/sensitivity with LS. I find after eating gluten my LS affected skin becomes more itchy. I really appreciate this video and more doctors should be spreading info about this disease.
Best to avoid gluten and dairy plus night shades.
I have it too! I am 31 but my mum had this condition in her 30s also. I have just tried PRP therapy for it and it was very expensive I am yet to see any improvement.
Thank you! In my experience is more common with people with hyperthyroidism and pernicious anemia, also with women with previous PCOS diagnosis. Trauma is also involved either physical or Adverse childhood events a big emotional components. Excellent review!!
I have just been diagnosed with this and I am so delighted to find your video. Thank you for your cleat description of both the condition and the way to look after it 🙏
It is interesting you mentioned circumcision. My father was not circumcised, and this condition gave him lots of problems, but he did have his cortisone cream. For me, I first had symptoms at about age 27, and it took forever to get it diagnosed. It is maddening! Waking up every morning with blood under my fingernails, having to find a place to hide to scratch, oh my God it was awful. When I have to change doctors I tell them that Clobetasol cream is non-negotiable! I only need to use it occasionally, but I never, ever want to not be able to manage it again!
I had a biopsy and came back as hyperkeratosis in the vulva and part of clitoris i was given Clobetasol Propionate ointment 0.05% today is 8 days since i started using it and finally feel some relief. Thank you so much for this video you have educated me and many others on this subject. I am a 68y female that started symptoms 2019 and my primary had no clue and gave me weird looks as if i enjoy it. At present time i figured it was a flare up of some sort but finally got a biopsy...thanks again
After suffering with this for years a doctor finally diagnosed my condition as LS. I wanted to cry. Not even a gynecologist could help me! This condition is so painful. And I had never heard of it before.
Dr Dray: thank you for recommending the colloidal patches for insect bites! I was stung by a wasp and, of course, it became super itchy to distraction. I decided to try the patches this morning and they worked like a charm! Thank you for your guidance on this!
I was diagnosed at a few years ago at 28 years old . It's so refreshing to hear this condition explained so well, I feel like I have a much better understanding from you. I'm so happy I stumbled upon this!
Thank you for giving a wonderful coverage of this problem. It’s horrible. I also have an alpha one antitrypson defiency, and my itching started about 18, before I had intercourse. Then, about 55, I had a positive skin biopsy for LS, and treated it for months. Thank you for giving excellent information, that does not seem to be available on the internet.
My mother and grandmother both had it. Unfortunately in both instances it turned into squamous cell carcinoma of the vulva. Please please please don’t ignore it
Were they being treated with the cream & still developed the cancer?
@@carolreeves1949 unfortunately this was prior to creams etc. the LS was untreated and changed the cells causing the cancer.
Thank you SO much for this video! People seldom talk about this particular condition, how it starts, how it's managed after symptoms arise, etc. I actually have extragenital Lichen Sclerosus ON MY FACE, so that was really fun, especially since it presented itself super early. We're talking 7 years old with the left side of my face growing thinning + whiteish patches. Didn't know what was going on till I was a teen and got a biopsy done. Started telling my friends I have Lycanthropy. 😂
Thank you for speaking about this condition!! I was diagnosed two years ago and as a scientist myself, I appreciate you doing outreach on this condition.
I was diagnosed five years ago 😢
Thank you Dr Drsy for addressing this. My mom had this and she also had hashimotos thyroid condition. Unfortunately she was not treated early and it turned into squamous carcinoma on her vulva. This cancer was not diagnosed and she unfortunately died of this cancer. I wish we had known if you have this condition it’s extremely important to be monitored for cancer. Please do as Dr Dray says and seek multiple diagnosis if you have any concerns.
My condolences to you on the passing of your mother. A female family member had something similar happen to her with thyroid disease, lichen sclerosus and vulvar cancer. Despite treatment the cancer invaded her abdomen and she passed away within a year.
Thank you for sharing. I have it in my genital area, and it's pure torture. I loathe going to the gyno because they rotate in and out of the facility- and I appreciate seeing a woman - and there are certainly more men than women in the biz! I guess I need to bite the bullet and go back.
I also developed a squamous cell carcinoma in the perineum area and as a result they also discovered the lichen sclerosis. The cancer was removed and I have been on the cortisone cream and Premarin combination for 10 years now. My specialist said the 2 conditions can be linked which is a scary prospect but I am on a maintenance dose of the creams twice a week now for the rest of my life I am 75.
I have found drs don’t take it seriously enough. My dr only had one look and did t tell me how to properly use steroid. Went to derm same, she gave me something to help moisturize an a antibiotic to help with inflammation. Next I see gyno, prob will be biopsy next. I have come down with two autoimmune skin diseases the last year months apart. Rosacea now LS. Maybe stress has been a factor also? Thanks Dr. Dray, I honestly didn’t even knew this existed until I simply got itchy in the area and it didn’t go away:(
I'm 48 and almost menopausal. Haven't experienced this yet but it's good to know. I do have hidradenitis suppurativa. I'd never heard of that until my diagnosis, either! But knowledge is power so I'm glad to know about this.
0:18: 🔍 Lichen sclerosis is a chronic inflammatory skin condition that primarily affects the genitalia, but can also involve other areas of the body.
3:06: 😣 Lichen sclerosis is a condition that commonly affects post-menopausal women, involving thinning and fragile skin, inflammation, itching, and potential scarring.
6:18: ⚠ Lichen sclerosis in the genitals can lead to various complications including infections, painful ulcers, and an increased risk of squamous cell carcinoma.
9:38: 🩺 Treatment options for lichen sclerosus include barrier creams, ultra potent steroid ointments, calcineurin inhibitors, and oral retinoids.
12:42: 🔬 Treatment options for lichen sclerosis include topical steroids, oral retinoids, Methotrexate, and cyclosporin; surgical interventions may be necessary for severe scarring and adhesions.
15:44: 💡 The video discusses a condition called lichen sclerosus and provides information on its symptoms, complications, and the importance of seeking multiple medical opinions.
Recap by Tammy AI
I got diagnosed with this about 7-8 years ago. I was 51 at the time and just became post menopausal. Ugh! What a horrible condition! I’ve been battling with this ever since. It’s so frustrating and affects my daily life.
I came back to listen to this again & I did pick up some things I didn't catch the first go round. I must admit I sometimes apply the steroid cream in a hap hazard way and I need to be more accurate. A barrier cream like Vaseline does help some. LC can certainly be debilitating when combined with lymphocytic colitis, which I have. It actually makes me glad that I'm single now. I also need to see my gyno much more often. It's been years. Thank you so my Dr. Dray for all of the information that you share with us and hoping that it will encourage more people to have it checked out.
I was diagnosed with this about 12-13 years ago and had a very painful biopsy down there. Then I forgot about it and didn’t want to believe it would be with me for the rest of my life. I just saw a new NP and she was doing the normal annual exam and asked me if I was diagnosed with this since she saw the white patches. I felt so horrible and then I realized this was treatable and I was just going to have to deal with it. Thanks for discussing this. I think this was triggered from being on the pill.
Thank you soo much for making this video! I have had this for 20 years and no one ever told how to properly apply the steroid cream.
I was diagnosed (mis-diagnosed) after yeast infections left me super itchy and with bleeding skin fissures. I was in my 30's. The gyno was happily explaining to the med student how she'd seen an older lady with this condition whose labia were completely deformed and stuck together. Erm, thanks for giving me something to look forward to. Plus for the last 25 years I've been using the steroid cream. over the whole skin. I was never told to take a mirror and look for any white areas.
Thank you so very much for covering this topic. I have oral lichen planus and genital lichen sclerosis. Unfortunately, I have scarring and intercourse has been off the table for years. It has gotten better in regards to the flare ups, but I am working towards being able to use the dilators to see if it will help. Last visit, a pediatric speculum couldn’t even being used. So, it’s been rough. The labia minora has disappeared entirely and there is tissue that has fused above the urethra so my urine stream is not in the direction it should be. But, we are making progress so hopefully this won’t be my story for the long haul. It was interesting to hear also that it could possibly be related to autoimmune disorders if the thyroid. I did have Graves’ disease many years ago and underwent the radioactive iodine therapy twice. Things that make you go hmmmmm…
Thank you as always for being a wealth of knowledge…I found you in 2017 while I was waiting to find out some biopsy results, which turned out to be melanoma. Thankfully, we caught it early and no reoccurrences at this time 😊
Happy Friday Dr Dray!. Would love to hear about options for lichen planus.
Wow, never heard of this - and so many commenters have it. It would be so scary to have and then trying to find a good doc.
Thank you so much for this information. Recently I was diagnosed by an oral surgeon with Lichen Planus in my mouth affecting my tongue and gums. It appears intermittently and I was prescribed a gel (betamethasone) to use when it appears. I would appreciate a video regarding Lichen Planus and compare and contrast with Lichen Sclerosus.
I would love to know the symptoms!
Me too.
Dr. Dray, thank you so much for this video. I have suffered from this disease for many years, but with patience and medical treatment , you can persevere.
What about labia minora...does it disapear
I was just diagnosed with this as well. Thank you Dr. Dray for a very helpful overview of this condition. It is very helpful.
Thanks for the education. My Family struggles with this and their Father had really bad psoriasis. I was turned onto it by a client. This client did not inform me before her Brazilian sugaring appt. She told me after the service. This is a serious issue that is so hard to speak about. Thank you!
Oh and the Family member might have Extra Genital LC it in between the shoulder blades, super hard area to itch.
Thank you doc! Very helpful video. I've had this condition since my early twenties and for me it's absolutely essential that I use some kind of oil, usually peanut oil, every time I shower.
I know it is really frustrating when something hits our mental health or our overall way of life. So when it comes to our health we should be brave and seek someone of the medical field who can address and take the symptoms seriously and scrutinize the individual very well leaving nothing unchecked. As pimecrolimus aka Elidel i used it for my atopic dermatitis on my face topically i had no issues with irritation whatsoever 😊❤ and it worked extraordinary well ❤. Thank so much for the precious info Doctor Andrea and taking time to explain the whole issue with simple to understand words and examples.
I have this condition and live in the UK it is mostly under control but i have not been having regular exams so will chase that up. I am allergic to most creams including most of the barrier creams but have found one emollient called zerobase which i can tolerate which has been a revelation. I use it instead of soap for my whole body and regularly apply it and that has really helped. I find I can’t wear most jeans anymore due to the really stiff seam at the crotch. I think mine was triggered by a thrush infection during pregnancy which I struggled to get under control at the time.
Wow! I have just been diagnosed with this. Thank you so much for the information. I just love your channel.
My GP didn’t catch this and I suffered for much longer than necessary. Got a 2nd opinion from my gyno and confirmed with a biopsy. Very painful procedure but glad to get the diagnosis and treatment.
Yeah, the biopsy was super painful. I hope we don't have to have any other invasive procedures for this!
Extremely painful😢
Absolutely amazing you covered this topic! ❤ it can be hard to find support and info on this. Thank you!!
😮 I'm 26 I didn't know this had a name 😳 literally everything you described the hsv the infections ,urinary problems, the skin lesions , the painful intercourse I thought due to nerve damage from hsv which was what they assumed they wanted me to under go internal shock therapy 😅 or severe the nerve but the infections are literally constant and chronic with no other diagnosed reason I'm glad I watched this I will bring this up in my next visit as a conversation with a new gyn doctor my previous one doesn't take me seriously when we know our body's best when we don't feel right ❤
We need more videos like this…so useful and helpful to so many.
A huge thanks for covering this topic, Dr. Dray.
You have given a most thorough explanation of this. I have it but have not had a biopsy but in visual exam it was “yup”. Kidney doc won’t let me use clobetasol but I have been experimenting and researching other things and now have it better managed.
Diagnosed earlier this year. Thank you so much for talking about this!
I have this, on my labia... I'm 45. I do have an Autoimmune disease called Ankolosing Spondylitis. If anyone wants to ask anything... go for it. We are all adult women... ask away. ❤
I have Rheumatoid arthritis and developed this while I was taking medication for my Arthritis.
I quit taking that particular medication and it cleared up.
@@sandracox4341 That's awesome!!! Thank you for sharing!!
I have RA also. What medication were you taking? Thx
@@eileenfh7834 , methotrexate, then they tried Sulfasalazine, then fluconazole all disagreed with me.
Then I went on Enbrel that works pretty good without side effects.
From a very young age, my son has had a skin condition on his legs that we were told was Lichen Planus. He was given cremes and steriods which never helped. He only got any relief when he was about 13 and got very sick, extremely high temperature, and was given a very strong antibiotic. The condition on his skin was gone in 48 hours, completely gone, and stayed away for around 3 years. Unfortunately, it came back and after seeing doctor after doctor with no relief, he finally just gave up and lives with the discomfort. I read once that red light therapy would help but he is reluctant to try it, I guess he doesn't want to go through another disappointment. I really wish there was a real treatment for this condition.
These videos are not fun, but I make myself watch them. I appreciate learning about these things in small doses, and I have definitely gone searching for some of your medical videos when I have had an issue I remember hearing you talk about before. Thank you for this service.
Thank you for this very informative video. i was misdiagnosed for years before it was finally diagnosed properly. I wish I could have seen this video 10 years ago. Very helpful information.
Please, Dr. Dray, do a vid on the difference between LS and "downstairs" Lichen Planus. I went undiagnosed with LP for 33 yrs! Symptoms started in at 17. I don't know anyone with genital LP, but I have met many with LP of the mouth. Please emphasize the importance of a punch biopsy. My derm was able to rule out LS because of her punch bx, and able to assure me my LP would not worsen after menopause. Also, I had had 2 biopsies over the years from 2 caring gynes, but neither did punch bxs. Had they, I might not have advanced to "end-stage" disease. I had LP as well of the fingernails. Also, my derm diagnosed alopecia areata (diffuse pattern) which she said may or may not be related to my LP - not enough research at the time to provide an evidence-based opinion. So much to cover, no? Thx for all your work.
Is this condition better managed by a dermatologist or a gynecologist? Or primary care? Thank you!!
Had this for over a decade. Clobetasol isn’t an option because it comes back the moment I stop using it. My skin is like tissue paper so I found a Chinese cream called sumifun eczema cream. It has menthol so it’s hot at first but in 5 min the itching is gone and the torn skin heals. I get a recurring tear above my clitoris. Sumifun works so good but I believe it’s an autoimmune skin issue. I’m starting dermatrophin pmg to see if it will help. Will check back in a few. God bless all us ladies that have this horror. ❤
I was diagnosed with this condition I was petrified but my doctor told me no perfumed shower gels or soaps...I'm on clobetasol steroid cream...thanks for this video
My holistic practicioner believes that LS heralds in a slew of other autoimmune diseases. So far I've got LS, SS, RA, and thyroid. It's only been 5 or 6 years since LS was diagnosed, and about a year since finding out about the other autoimmune diseases. It doesn't just affect skin. I actually have it on the soft palate in my mouth too.
Thank you so much for this. I've had the condition for a few years and haven't had it check in 18 mos. Making an appointment on Monday!!