Iris, a young woman from Austria talks about the everyday challenges living with the rare disease NF1. Support NF Patients United here: www.nf-patients.eu/donation/
Thank you for sharing this. Dankeschoen, mein Deutsch ist nicht so gut, my daughter is 8 Mos and she has the Cafe au lait spots and she has NF Type 1. I’ve been going down a rabbit hole with thoughts and fears; googling information and just praying that I can help her and provide her as a parent. I just came across your video and it made me smile, and your interpretation of the experience, I truly appreciate you for sharing. 🙏🏿.
You are a very strong and beautiful woman! I have never heard of this condition before now; I am intrigued to learn more about it. I’m sorry that the other students in your school were mean to you. I like how you said the the brown spots are a part of you and that you like them! Keep staying strong and keep being you!! Much love from the US.
Danke für deinen Mut über dein Leben mit NF zu sprechen. Da ist ein wichtiger Schritt um das Thema zu enttabuisieren und Verständnis und Akzeptanz in der Gesellschaft zu erreichen.
Thank you for sharing this. Dankeschoen, mein Deutsch ist nicht so gut,
my daughter is 8 Mos and she has the Cafe au lait spots and she has NF Type 1. I’ve been going down a rabbit hole with thoughts and fears; googling information and just praying that I can help her and provide her as a parent. I just came across your video and it made me smile, and your interpretation of the experience, I truly appreciate you for sharing. 🙏🏿.
You are a very strong and beautiful woman! I have never heard of this condition before now; I am intrigued to learn more about it. I’m sorry that the other students in your school were mean to you. I like how you said the the brown spots are a part of you and that you like them! Keep staying strong and keep being you!! Much love from the US.
Ánimos !! Serás una gran actriz !!! Saludos desde España
I pray to God people who have this condition get the help they need.
Good health to you.
Danke für deinen Mut über dein Leben mit NF zu sprechen. Da ist ein wichtiger Schritt um das Thema zu enttabuisieren und Verständnis und Akzeptanz in der Gesellschaft zu erreichen.
May I know if there is any medicine being tried in the world to control or cure this disease? Can I hope for a cure?
My Newrofribama problem titmant please help me please help