I wanted to say thanks to Azeal for letting me speak put about Huntington's disease and of course thanks for all the nice comments! I really appreciate it! :) Remember go out there and create memories and see the world! Use your aces while you got them :)
"Everything is going to be okay". Those were my granddads last words. That was 14 years ago and I've never told anyone that until now. I'm very cynic about life in general but I just wanted to share that with you, because those words are something I actually believe in.
My grandfather at the dinner table, at a loss for words said "life is.... sucks. Life is sucks" Truer words have never been spoken in my opinion and he still gets flak for it hehe.
You are nothing short of amazing, Thank you for sharing your story, you brought me to tears. You are a wonderful person, just listening to you talk makes that very clear. I wish you and your loved ones the best, and I hope the time you have is filled with nothing love and joy!
is cerebrolysin available in your country? It's a medication that may help with memory retention and so forth. It may be something worth talking to your doctor to. I had very bad memory loss from years of stimulant abuse, I used cerebrolysin for a few months and it permanently improved my memory and cognition to the point where I feel like it's far better than it was even before my addiction.
I think that to but it’s just sad. Because I had a friend that had it... he sadly died in September this year, I miss him every day his kids are now with the mom.
staying calm is a way to prevent yourself from suddenly going crazy. but... dont be too calm during something that might cost your life though. (ex: house fire)
There's no point in panic, when you're dealt a shit one panicking will only make it worse. He knows his cards, he knows how it's gonna play out, there's no point in not being calm about it.
@@layslayer yeah, eventually you kinda just forget how it feels not having a chronic disease, and I assume that to be even truer when that chronic disease actively makes you forget
static. I have needed these words for a long time. I also have Huntington's disease myself. I've been struggling with... well a lot of things. its a blank. my life has been snippets, a compilation of short moments. the last couple of years... I have let it kick me down without thinking about what I was doing to myself. I feel like I'm waking up, listening to you. I'm shoving this video into several of my playlists. even unrelated ones. I may forget you come tomorrow. but I'm going to have to forget you a lot. I'm going to keep replaying this until it sticks, and joins my few long term memories i have. because your right. I cant let this hold me down. while the memory issues have been a problem, I at least still have my body, so I should use it while I still can. i was crying by the end of this. I still am as I'm typing this. your so goddamn brave, and I think this video is probably saving the mental health, the LIVES of many of us. you are a good man, static. or, deer, at least, haha. (I've duplicated this from my reply to static. even if he isn't checking the replies, I'm hoping this will make it high enough on the list that he sees this looking at generic comments. I want him to know how much I appreciate what he's put up here. these are powerful words he has spoken.)
"Death is saying I'm going to win nonetheless, but also what are you going to do before I drop all the cards?" This guy and his disease is heartbreaking, but his bravery, determination, and just overall his will to strive to enjoy life to the fullest is more inspiring than anything else.
When he said "You're losing yourself... more and more." I cried, that's my greatest fear, it's what my hell would be like. I hope his heaven is one where he can always remember everything he wants.
@@hollywoodguy70 depends on what you mean by expressive: gestures, sure, but they're not always the most expressive. eye and face tracking, very expressive
I feel like someone should start a fundraiser for this guy so that he can experience some of life's biggest fun and or adventures. This made me cry cause life is so fucking unfair and the ones that get it worse deserve to explore life while they can . I hope he can live his life to the fullest and enjoy every moment.
Thank you for sharing. As another with a genetic disease (type 1 juvenile onset diabetic), it really meant a lot to hear someone else talk about that anxiety that comes whenever someone talks about having kids, and to hear that there are others dealing with neurological issues. as i've hit my 30's, my diabetic neuropathy is starting to become far more noticeable and its kind of setting in that things aren't going to get any easier.
I also have a few genetic diseases (panhypopetuitaryism and dwarfism caused by my panhypo(Not good at spelling it even after 18 years)) I have lived a normal life because i dont let the fact that i have to take artificial hormones and shi control me. I have a father with alzheimers that puts himself down for forgetting but it isnt his fault. I love this guys attitude with his disease and that he is really winning in life and he will get the most out of his life when some people wont.
Oh hey, a fellow type one, it doesn't sound too good with the kidneys there, is it maybe a reversible damage kind of deal, I'm gonna be honest, I probably haven't looked into all the stuff as much as I should, I really hope it's reversible. Edit: so sorry, I read nephropathy, now I see it's neuropathy, jeez man that's awful, where is it hitting ya?
Damn man. This guy is brave. You can hear the fear in his voice, but he powers through it all like a champ. I wish you the best rest of your life that you can have
This is my greatest fear, Forgetting everyone and everything until you eventually die confused and alone... Thank you for bringing attention to this disease.
My gf's grandmother has Huntington's, and seeing her watch her grandmother deteriorate was just, unspeakable. I couldn't imagine actually having it. Thank you for sharing your story dude
I really feel for people with this disease. My cousin had Juvenal Huntington's disease and passed at the age 14. I never got to meet him though. From what I heard from family members, he never became able to talk and stopped walking at the age of 5.
Everything about this disease is horrifying. Why do people deserve this? All of your cherished memories, gone within an instant. Every happy memory is fleeting. You have to enjoy everything as much as you can before the abyss in your head takes it all away. It’s one of my worst fears, I’m so lucky that I have all of my memories with me and that I can cherish those forever, seeing this video, every happy moment is going to feel so much more special knowing there are people suffering from things like this...
@@ensvenskgrabb2834 stuff like dementia doesn't even kill you quickly, nobody deserves to have all memory taken away, a cure would not affect population because dementia is only lethal after months or years of suffering.
Stuff like this is absolutely terrifying to me. I can't imagine quite literally losing a peice of myself every waking day, and I hope I never have to. I wouldn't wish that on anyone. Death to me is one thing... losing memories is totally different. Eventually everyone faces death, but not everyone gets to take their memories with them, there's no guarantee. Life can be brutal, but I admire anyone who tries to make the most of it despite their dire situation. I wish all the best for you, Static. I hope you're still doing well and being strong. I wish all the best for anyone facing this disease.
@@Azeal how do I share my stories? I only have a phone, and it can't run VRChat, but I have a lot of stories to tell. Some good, some bad, some just random Aesop kind of tales.
I just want to give him a hug. Let him know that although one day he will forget who he is, we will remember this part of him. The strong and brave wolfie.
as somebody who also lives with a dramatically shortened life span this one hits a little close, its a wild thing being told you will die by X age, and it really makes you re-evaluate how you live your life, and the thing where negative comments and people just glance off is a big part of it honestly, I just don't have the time to spend stewing over something nasty somebody said to me. its a hauntingly beautiful thing being given a time limit, and it really makes all the small moments much more special to you, you value those little conversations and interactions with your friends so much more.
My grandfather was diagnosed with Parkingson's shortly after I was born. All my memories of him are of a man who was bedridden and pretty much unable to talk. I have no idea whether or not my grandfather was aware of his situation or of how much suffering he endured for pretty much 10 years. All my father's memories of him are the opposite, my grandfather was a massive traveler and motorcycled all over the world so much so he met my grandmother on a trip in Germany. He really did live his life to the fullest without ever knowing of his fate. I can appreciate static's message here.
this person made me think nearly 17 minutes straight about my lifes choices and everything i did so far and how i have to spend it all i can say is have strengh and make the most of your time and hopefully there's gonna be a cure
This dude speaks so ellegantly, I feel like if he wrote a book, even if (sadly, maybe especially if) he didnt remember what he was writing as he wrote it, it could be a groundbreaking book. It would be an amazing case study, sorry if this comes off as rude but i can imagine a book written by him, maybe an autobiography, and it goes an entire chapter or five or so paragraphs them suddenly switches to a completely different story or roughly the same thing all over again. But just because of how he speaks and how the book would be like, and knowing how his disease affects him or reading as he talks about it, it could create this enthralling book, sad and terrifying, almost like if alice in wonderland was darker, but it would be amazing Also sorry if that was horrible grammar wise i was just spitballing as i was writing and I dont wanna look back to check because i feel like people will understand what im saying better even if it doesnt make sense grammatically or technically.
I don't have much time left either, I was in a dark place for a few years an recently my brother got me into VR chat an its been unexpectingly therapeutic. I went from being an out-doors-y nature child to being chronically ill an weak an near fully house bound by medical machines an medications. The first thing that I learned very quickly is the majority of people don't want to be around the sick/dyeing, its just the sad truth about it. But the silver lining is I know who my true RL friends an family are. Even thought I can count them all on one hand it dose makes Christmas shopping so easier now though, lol. I cant thank my little brother enough my getting me up out of bed awaiting death, an I cant thank my fiancée enough for sticking with me when most would have left. If it wasn't for him I don't think Id see the sun- even though its bad for me. He knows my limitations but also how much I can take an I cant thank him enough. My D&D friend group an VR have given me something to look forward to that I can do that wont incapacitate me after doing it, an where yes it can be so awful at times it also can be so freeing. I don't have a lot of time left, so fuck it might as well have fun.
I like how his pronunciation of "thorough" sounds like "pharaoh" TH (being [θ] or [ð]) is such an uncommon sound, globally, even though we use it so much in English
Thank you for sharing your story Wolfy. Losing my memories is one of my greatest fears and listening to you talk about living your life to the fullest makes me want to do the same.
as someone who deals with dissociation that causes me to have memory loose, I absolutely sympathies with the wanting to remember but just not being able to. It's painful and it's scary, we rely so much on our memory that when it doesn't work it's scary
I have family who has this disease and who have died from complications from this disease. These are people I never got to meet, to hear someone who has it explain what it is like to have it, is soul wrenching. I knew it was bad, but I didn't know how truly terrible it was.
Dude I'm sitting on the toilet with tears running down my face and this was definitely not how I expected my night to go. But I'm glad this video exists; and I hope it'll help shine a little light on what degenerative brain diseases are like for people that have never been exposed to the topic in a real way. There's a lot that people don't understand, and unfortunately a lot of the people that suffer from Huntington's, Alzheimer's, etc, aren't in a good position to explain it to large numbers of people. Hell, even I didn't have a great way to explain the frustration that comes along with my flawed memory until I saw this video! By their very nature, these diseases are almost like a self-keeping secret that we've gotta try to work out. And that's kinda scary. But medical technology is progressing at a rate that we could never have dreamed of just a couple of decades ago! With any luck there will come a day where these diseases can be cured or treated in a meaningful way. I mean, we've done that with HIV, haven't we? Thank you, Wolfy. And thank you, Azeal. For putting this together in a way that normal folks can understand and appreciate. Hell, even I learned a good deal as well!
I have a friend who has muscular distrophy, and its hard knowing that eventually he will die early. He was "supposed" to die by 10, but now hes 13 or 14 (i forgor) and still going strong. I think his love for sports has helped him keep his muscle that he has. Its difficult for me to know there is a decent chance he still wont make it to adulthood.
This video reminded me of one of my best friends who passed away at 20. He had sickle cell anemia, since birth. His passing really made me understand that in this life, we can’t choose the cards we are dealt, but we can damn sure play them the best we can. Death will always be waiting to cash out, but we should play the game and give it our best regardless, while we still have the chance.
My heart goes out to people like this, you're a hero for pushing through and are blessed to have people there who care so deeply for you. I'm not religious, but I pray for many many years of positivity for you and your loved ones, and that more attention and breakthroughs are made known. Stay strong friend.
He's absolutely accurate that sometimes life just fucks you over. My friend's mom was getting ready to retire then oops, had some test that showed she had stage 4 bladder cancer and died within 2 years. Never actually got to enjoy anything because she went from working full-time to doctor visits full-time.
Hopefully a cure can possibly be developed one day. I'm saying possibly because these kinds of diseases are complex and we don't fully understand the human brain. But i have hope in science and technology.
Early-onset dementia runs in my family. But this? This is so far beyond terrifying. I’ll forget things. Leave my glasses in the bathroom, forget my phone in the kitchen, forget my coffee cup next to the percolater. But forgetting whole parts of myself starting in my childhood? I’m almost 40, & having my doctors tell me “Yeah, by the way, you’ll have forgotten every part of yourself before you’re 45, GG hope you had a good ride”? I cannot even begin to imagine.
Huntington's is a brutal disease. I feel there's always an internal war living with it, and knowing the inevitable is going to happen is horrifying. Yesterday was a scary day for my grandfather because he's began to change moods frequently and stop acting like the person he once was. Once a patient man- now an irritated one. We not only have had to deal with that recently on top of that, but we had found out that something he's always been so careful of,, his firearms, has become incredibly careless to where he just leaves rounds chambered in all his weapons without the safety's on. My pop had to take him on a drive to get him out of the house while every chambered round for every gun was dechambered and all safeties had to be re-engaged. I'm hoping dementia one day, finds itself a cure. I love donating and supporting any alzheimers foundations that work on neurology research and looking to better victims of this problem because I believe mental disease and illness is becoming a problem next to cancer.
You can hear his heart slowly breaking apart. This is so so horrible. He knows he is..."doomed" and he tries to stay calm but you can hear him breaking inside
I listened to everywhere at the end of time and I just want to say, after revisiting this video, dear god this person has accepted what's coming for them despite the absolute terrors that this brings... Just wow. My heart goes out to you.
Thank you, Static, for telling your story and for educating people about this disease. You've made an impact. Certainly taught me things about it, and I appreciate that. I wish you all the best, genuinely. :) Also, off-topic, but I LOVE that avatar holy shit. The way it looks and expresses itself matches so well and just looks so damn good.
Diseases like this are some of the worst diseases. My grandfather had Alzheimer’s and seeing him slowly degrade until he barely knew how we where was sad. Luckily he had it good and didn’t suffer for to long.
I had blood cancer when I was around 3 years old and although it's cured now, I have to give blood samples to a lab every 2 years, so they can check if it doesn't come back. But THAT is being eye in eye with death on a whole new level!
It's good to watch videos like this every once in a while, cause it made me cry. It shows me I still have empathy. I have a very cynical outlook on life, I never had a thing that I really wanted to do, until I met a guy through playing ps4 that kinda took me into his friend group, one of the guys in there especially. I've instantly connected with him, mainly because we were both furrys, and it ended up with me having a crush. We've talked a bunch about one day meeting up, only Problem is that we live pretty far apart, but I now know what I want to do. I want to travel to him, make that memory with him, cause even though I have the luxury to say "one day we'll meet" I shouldn't say it. This video was really inspirational and emotional for me.
I sincerely hope you can meet your crush in this short lifetime, dude. I think what you said is true. Unless we love, regardless of our circumstances, our lives will flash by.
My stepdad had a friend suffering from this disease, I heard it was bad.. but did not expected to be so extreme.. This dear has a big heart, wishing him all the best !
What a hell of a gambling analogy. Amazing channel and amazing guests you have here. Keep up the good work and I hope everyone out there can play their hand to the fullest and live like you will be gone tomorrow, in a good way... I hope if you are reading this you have an amazing day and stay strong.
Even when this person dies or can’t remember, he’ll still last forever on the cloud, even if it can’t be found he’ll still be existent online from here and any trace
I have some memory issues and some other crap and I'm really scared that I can even slightly feel some of the symptoms, of something that horrid. I hope that you live your best life possible, and just know that no matter what, you got this.
Disturbing but true perspective: an analogy of this disease is a ticking time bomb on your back, if you think about it, we all have this time bomb it’s just that people with Huntington’s disease makes it more obvious when the time expires. If u are out there StaticWolfy I hope you stay strong and are still alive to reply to this comment. This is just to put to perspective that we all aren’t very different to you and to make this feel better on u.
my parents told me to be greatful for what i have. and i did, but it was mostly materialistic things like having a car or a warm place to stay. recently, it's grown to where i'm just greatful i can hear, i can speak, or even just walk correctly. i hope this man grows to do great things. just telling his story to us is great to me. i've never heard of this before. i'm thankful for him educating me.
He was such a nice person to meet I hope he can live a happy and fulfilling life, I hate to see his happen to someone because they can’t control when these things happen them.
The guy being interviewed is incredibly brave. Having to go through something like that while remaining as positive and hopeful as he is... Nothing short of superhuman.'
I wonder if he tried to make it a metaphor by being a deer with a Hunting-ton's decease you're respectable. To not pass on the decease, to give doctors all this data. I know the decease and even natural mortality will be solved inevitably (it's possible under physics), but until then, the more people work for the greater good, the less will be dealt a bad hand in the meantime
The second I heard Huntingtons, it hit me kinda hard. My cousin had it. He's kinda fallen off the face of the earth now, so nobody knows anything about him past like 2015 or so. He became such an angry, vengeful person. I havent listened past the 0:51, but I really hope this person is in a better place than my cousin was last time I saw him.
Man, I wish you could beat Huntigton's.😒 I admire the fact that you accepted and gave yourself a mindset of being you until the end. I wish you the best memories and thank you for being an example. Hope you do everything on your bucket list.
the fact that its uncurable is just... i dont even know. scary. like for all i know, this could happen to my best friend. i really hope static makes the best of his life
Hearing this. I started to tear up. I don't cry as much as I want to. But hearing the voice of someone who knows they're slowly going to lose themselves tell their story, it warmed my heart. Seeing that things like this bring people to live life to the fullest. At times I feel as if i lost who i am, but hearing the story of someone who knows they're going to one day forget everything and lose sight of who they are, gives myself hope that I'll find my way again. I'm glad this appeared in my recommended. It was a story I'll likely remember for a long time.
I remember seeing a video of someone with Parkinsons take Marijuana tincture, take a nap, and then get up like nothing was wrong. There's also research into psilocybin being used to help treat memory loss and seizures in people with certain neurological disorders. Could this help? I'm unfamiliar with this condition.
Hello I might be able to tell you. So unfortunately there haven't been done enough scientific research on that subject, yes I know there are videos but it's impossible to tell whether they have actually improved overall. The things that we see in the videos might actually be the placebo effect in action. I hope that gave some light on the subject. :)
My aunt has Huntington’s… over the years we saw her deteriorate from an average woman to a shaking mess with the mind of a toddler. Absolutely horrifying, wouldn’t wish it on my worst enemy.
Listening to someone talk about it, is a whole lot more impacting than reading an article, or doing a quick Google Search. You can feel the emotion in their voice, understand how it affects their life.
I don’t have Huntington’s disease, but i have a major medical issue, idk what but ik it’s bad, it’s getting worse by the day and it’s absolutely terrifying, I have amps, ibs, (probably, we have a couple things to check but the doctor thinks) pots, the issue is, idk what else I have, I’ve been bed ridden for almost three years, I’m 13, almost 14 and it’s terrifying, losing basic things, like my sight, my hearing, my senses, my words, my basic skills, it’s terrifying, I keep temporarily forgetting basic things, idk if it will become permanent, I hope not, I don’t want to forget how to write, or walk, or speak, I don’t want to forget how to paint, or sculpt, I don’t want to someday just not see, or hear, or feel my hands, or wake up and not be able to move, and it’s absolutely terrifying, because nobody knows, and idk what’ll happen, because, it looks like I’m having seizures and strokes, but I’m not, it looks like I have so many things I don’t and we don’t know why, I’m just absolutely terrified, and this made me feel less alone, idk why, I just did, ik that it’s probably nothing that’ll permanently affect me (in the way of terminal, or permanent regression) but it’s still scary and I under stand a lot of what he’s saying
This man is cursed with the knowledge of how he will most likely die and suffer very very slowly. Bless your soul and please have the greatest times that you can manage to get.
This video needs to reach more people, i was half way through the vid when i saw that the video has less than 100k views, i literally had the feeling it has like a couple million views
what a champion. he makes the best out of his situation and dedicates himself and his body to science so that progress in research on this disease can be made. truly a hero.
This is so sad but at least the guy is living his life like hes free as an eagle and not locked in a cage like a stray dog the dude sounds really nice and i hope he has the best life he can possibly have
I- f**king hell i Just Wish him and His GF a very wounderful Life and that they have a good Future ahead of them both while yk He still has some time . . . .
Even though this guy is probably gone, I wish him the best, wherever the may be. I wish life was kinder to people like this. Farewell bro, your an Ace.
As highly unlikely as it is, I match way too close to these symptoms. Trouble remembering things even if they happened just the day before the getting a panic attack from it, high anxiety, and depression, and when he showed the jerking movement that is what scares me the most, that exact same thing happens to me all the time, it also happens to my sister. Now it is almost impossible that I have that because it passes down through genetics and from what I know no one in my family has had it.
Umm I'm not sure if you mention this but could you get in the habit of writing stuff down in a notebook beside your bed and leaving it open so if you forget what it is it will remind you, as you said one day it could be terrible but I think a journal could at least help organize the chaos
Hi! A very good idea that I do as much as possible! The issue is that I cannot write everything down and at some point I will not be able to write or read at all, but I helps I the small things like shopping and other things :)
i keep coming back to this video even though its scares the hell out of me, I just hope I can keep the same amount of dignity in my stride if me or my brother get diagnosed.
This is such a horrible disease, like, there are diseases which "just" make you die, but this first erases you as a being. Videos like this make me feel very down, cause I feel empathy for people like StaticWolfy, who suffer from things like that, but I know there is nothing I can do to help them or anything like that. I also have insane respect for how camly he manages to talk about that.
My older brother, unfortunately, has this disease. He's fairly young by most standards, with it showing up in his mid twenties, and it's progressed so fast and so aggressively that... at this point, we only have a few years left with him. He has huge gaps in memory, but what he can remember is that he doesn't want me or my brother to see him crumbling away. You're so brave to be this okay with it. I hope my brother has the strength you do. Thank you.
There's a saying, "wise beyond your years." Usually I've heard it used in good ways. I've learned that this isn't always the case. This guy is not even 30 and he knows he doesn't have a lot of time and he is giving such a profound message. I teared up because I can feel his fear. The fear of the unknown is a scary thing. While I in no way relate to what he's going through, I think we all know what it's like to fear something in the near future.
My mother has this disease. I spent about 5 years wondering if I had it or not... I tested negative at the beginning of this year! I have a totally different outlook on life now that I know I'm safe from this terrible disease... I've seen firsthand what Huntington's Disease does to a person and it's absolutely brutal... To anyone struggling with this disease, or any other illnesses I wish you all the best. Don't stop fighting it, and live your life to the fullest...
I was dealt a somewhat shitty hand in life, both of my parents were addicted to drugs, my mother died suddenly when I was 15 while I was homeless and my father struggles with his health. Seeing this guy talk about his experience is moving, I hope for nothing but the best for him. It’s awful he has to live this life but he made me appreciate mine much more.
I too relate to this video, just with the memory loss part. Due to stress and other issues growing up i have a really bad memory now. So bad that ive taken to making notes about daily activities, thoughts, ideas, everything. Even made myself a little discord for myself where i write notes and can categorize them. Just for myself. Adapt and overcome right? Take care of yourself Static! Thanks for the chat.
I wanted to say thanks to Azeal for letting me speak put about Huntington's disease and of course thanks for all the nice comments! I really appreciate it! :)
Remember go out there and create memories and see the world! Use your aces while you got them :)
"Everything is going to be okay". Those were my granddads last words. That was 14 years ago and I've never told anyone that until now. I'm very cynic about life in general but I just wanted to share that with you, because those words are something I actually believe in.
My grandfather at the dinner table, at a loss for words said "life is.... sucks. Life is sucks" Truer words have never been spoken in my opinion and he still gets flak for it hehe.
Much love ❤️❤️❤️❤️
You are nothing short of amazing, Thank you for sharing your story, you brought me to tears. You are a wonderful person, just listening to you talk makes that very clear. I wish you and your loved ones the best, and I hope the time you have is filled with nothing love and joy!
is cerebrolysin available in your country? It's a medication that may help with memory retention and so forth. It may be something worth talking to your doctor to. I had very bad memory loss from years of stimulant abuse, I used cerebrolysin for a few months and it permanently improved my memory and cognition to the point where I feel like it's far better than it was even before my addiction.
I love that he doesn’t let his situation control him, just living life to the fullest and I respect that.
I want to hug you man and wish you well.
I think that to but it’s just sad. Because I had a friend that had it... he sadly died in September this year, I miss him every day his kids are now with the mom.
This has inspired me I'm living life to my fullest
I wish the best for this guy, he needs a journal or something
If this were to happen to me too, I would follow in this man’s footsteps.
This man is a great narrator......
He could have been a great voice artist
May god have mercy on his soul
God showed mercy by giving him one of the most cruel deadly diseases
@@korpakukac what?
damn god is the guy giving him that disease, so why the hell would you want god to have mercy on his soul??
thats a really sweet comment but holy fuck i couldnt read it with a straight face cus of your picture i read it in his voice
Well if there IS a god then he gave him the worst disease that’s incurable. And honestly he can be a great voice artist now while he still has time..
Dude, this is literally my biggest fear. How the hell is he so calm?
Calm is what you have to be when people look to you. And it's all you can be when things are out of your hands
staying calm is a way to prevent yourself from suddenly going crazy. but... dont be too calm during something that might cost your life though. (ex: house fire)
Because he’s lived with this for so long that he’s probably accepted his situation, and he focuses on the positive things.
There's no point in panic, when you're dealt a shit one panicking will only make it worse. He knows his cards, he knows how it's gonna play out, there's no point in not being calm about it.
@@layslayer yeah, eventually you kinda just forget how it feels not having a chronic disease, and I assume that to be even truer when that chronic disease actively makes you forget
static. I have needed these words for a long time. I also have Huntington's disease myself.
I've been struggling with... well a lot of things. its a blank. my life has been snippets, a compilation of short moments. the last couple of years... I have let it kick me down without thinking about what I was doing to myself. I feel like I'm waking up, listening to you.
I'm shoving this video into several of my playlists. even unrelated ones. I may forget you come tomorrow. but I'm going to have to forget you a lot. I'm going to keep replaying this until it sticks, and joins my few long term memories i have. because your right. I cant let this hold me down. while the memory issues have been a problem, I at least still have my body, so I should use it while I still can.
i was crying by the end of this. I still am as I'm typing this. your so goddamn brave, and I think this video is probably saving the mental health, the LIVES of many of us. you are a good man, static. or, deer, at least, haha.
(I've duplicated this from my reply to static. even if he isn't checking the replies, I'm hoping this will make it high enough on the list that he sees this looking at generic comments. I want him to know how much I appreciate what he's put up here. these are powerful words he has spoken.)
I hope you're still okay
Heyyyyyy I hope u get a notification cause I commented, if you don’t remember, watch this, you won’t regret it
Here's a comment to remind you about this video!
Do what you can. Make friends and get a wife and child. May god have mercy on your soul.
im not sure this will help but have a notepad on you and write stuff in it
"Death is saying I'm going to win nonetheless, but also what are you going to do before I drop all the cards?" This guy and his disease is heartbreaking, but his bravery, determination, and just overall his will to strive to enjoy life to the fullest is more inspiring than anything else.
this quote when he said hit the hardest for me, and i have no chronic ailment or nothing. It’s just we need to apply it.. all of us
When he said "You're losing yourself... more and more." I cried, that's my greatest fear, it's what my hell would be like. I hope his heaven is one where he can always remember everything he wants.
It sounds like something really terrifying to experience, he's very brave being able to talk about this and I hope he lives a long life.
my father was diagnosed with huntington's 4-8 years ago, and I only found out 2yrs ago
and... I have no words to describe the situation
I wish him and yourself the best.
Whatever you’re going through right now, you just gotta accept it. I know its tough, but stay strong and be yourself. Just keep going.
I'm sorry to hear that. Why didn't he tell you about it?
His avatar really helps with telling the story. How it moves...
rexouiums always make the best avatars
I can feel the emotion
You can't not be expressive in vr, but yeah, the deer is a cute avatar.
@@hollywoodguy70 depends on what you mean by expressive: gestures, sure, but they're not always the most expressive. eye and face tracking, very expressive
12:52 really shows that
I feel like someone should start a fundraiser for this guy so that he can experience some of life's biggest fun and or adventures. This made me cry cause life is so fucking unfair and the ones that get it worse deserve to explore life while they can . I hope he can live his life to the fullest and enjoy every moment.
Yes please
I'd probably give at least 50 dollars to it if it was there
Thank you for sharing. As another with a genetic disease (type 1 juvenile onset diabetic), it really meant a lot to hear someone else talk about that anxiety that comes whenever someone talks about having kids, and to hear that there are others dealing with neurological issues. as i've hit my 30's, my diabetic neuropathy is starting to become far more noticeable and its kind of setting in that things aren't going to get any easier.
I also have a few genetic diseases (panhypopetuitaryism and dwarfism caused by my panhypo(Not good at spelling it even after 18 years)) I have lived a normal life because i dont let the fact that i have to take artificial hormones and shi control me. I have a father with alzheimers that puts himself down for forgetting but it isnt his fault. I love this guys attitude with his disease and that he is really winning in life and he will get the most out of his life when some people wont.
Oh hey, a fellow type one, it doesn't sound too good with the kidneys there, is it maybe a reversible damage kind of deal, I'm gonna be honest, I probably haven't looked into all the stuff as much as I should, I really hope it's reversible.
Edit: so sorry, I read nephropathy, now I see it's neuropathy, jeez man that's awful, where is it hitting ya?
I’m type one diabetic so I feel you
Damn man. This guy is brave. You can hear the fear in his voice, but he powers through it all like a champ. I wish you the best rest of your life that you can have
This is my greatest fear, Forgetting everyone and everything until you eventually die confused and alone... Thank you for bringing attention to this disease.
My gf's grandmother has Huntington's, and seeing her watch her grandmother deteriorate was just, unspeakable. I couldn't imagine actually having it. Thank you for sharing your story dude
Never have i felt so bad and scared for an individual, may you live a lovely and happy life.
I really feel for people with this disease. My cousin had Juvenal Huntington's disease and passed at the age 14. I never got to meet him though. From what I heard from family members, he never became able to talk and stopped walking at the age of 5.
Everything about this disease is horrifying.
Why do people deserve this?
All of your cherished memories, gone within an instant.
Every happy memory is fleeting.
You have to enjoy everything as much as you can before the abyss in your head takes it all away.
It’s one of my worst fears, I’m so lucky that I have all of my memories with me and that I can cherish those forever, seeing this video, every happy moment is going to feel so much more special knowing there are people suffering from things like this...
That's why science exists, so we can cure quite literally (almost) and hopefully everything.
@@tammiestait5465 I wish we don't. We are already overpopulated, we don't need to cure everything
@@ensvenskgrabb2834 did you know the wourlds population could fit in texas at the density of new york
@@ensvenskgrabb2834 stuff like dementia doesn't even kill you quickly, nobody deserves to have all memory taken away, a cure would not affect population because dementia is only lethal after months or years of suffering.
@@ensvenskgrabb2834 Japan has show that the population is stabilizing itself
For everyone wondering, Static last uploaded onto their channel 12 days ago, they are still alive and well.
Thanks, i wondered if he's still alive when I saw the thumbnail.
Good.. I wish he could start a fundraiser so he can experience the best things in life before he has to go
He has such a beautiful avatar. It conveys the emotions so well and definitely shows his personality.
I can't imagine having a time limit like this on my life, I have so much hope that he lives the life he wants and deserves.
Stuff like this is absolutely terrifying to me.
I can't imagine quite literally losing a peice of myself every waking day, and I hope I never have to. I wouldn't wish that on anyone.
Death to me is one thing... losing memories is totally different. Eventually everyone faces death, but not everyone gets to take their memories with them, there's no guarantee.
Life can be brutal, but I admire anyone who tries to make the most of it despite their dire situation.
I wish all the best for you, Static. I hope you're still doing well and being strong. I wish all the best for anyone facing this disease.
🙏
@@Azeal how do I share my stories?
I only have a phone, and it can't run VRChat, but I have a lot of stories to tell. Some good, some bad, some just random Aesop kind of tales.
@@ShwappaJ you will kinda need VR for it :p
I just want to give him a hug.
Let him know that although one day he will forget who he is, we will remember this part of him.
The strong and brave wolfie.
as somebody who also lives with a dramatically shortened life span this one hits a little close, its a wild thing being told you will die by X age, and it really makes you re-evaluate how you live your life, and the thing where negative comments and people just glance off is a big part of it honestly, I just don't have the time to spend stewing over something nasty somebody said to me.
its a hauntingly beautiful thing being given a time limit, and it really makes all the small moments much more special to you, you value those little conversations and interactions with your friends so much more.
My grandfather was diagnosed with Parkingson's shortly after I was born. All my memories of him are of a man who was bedridden and pretty much unable to talk. I have no idea whether or not my grandfather was aware of his situation or of how much suffering he endured for pretty much 10 years. All my father's memories of him are the opposite, my grandfather was a massive traveler and motorcycled all over the world so much so he met my grandmother on a trip in Germany. He really did live his life to the fullest without ever knowing of his fate. I can appreciate static's message here.
this person made me think nearly 17 minutes straight about my lifes choices and everything i did so far and how i have to spend it
all i can say is have strengh and make the most of your time and hopefully there's gonna be a cure
This dude speaks so ellegantly,
I feel like if he wrote a book, even if (sadly, maybe especially if) he didnt remember what he was writing as he wrote it, it could be a groundbreaking book.
It would be an amazing case study, sorry if this comes off as rude but i can imagine a book written by him, maybe an autobiography, and it goes an entire chapter or five or so paragraphs them suddenly switches to a completely different story or roughly the same thing all over again.
But just because of how he speaks and how the book would be like, and knowing how his disease affects him or reading as he talks about it, it could create this enthralling book, sad and terrifying, almost like if alice in wonderland was darker, but it would be amazing
Also sorry if that was horrible grammar wise i was just spitballing as i was writing and I dont wanna look back to check because i feel like people will understand what im saying better even if it doesnt make sense grammatically or technically.
Also the alice in wonderland thing i didnt mean that literally, but like it would envoke a feeling of madness and an encroaching darkness
I don't have much time left either, I was in a dark place for a few years an recently my brother got me into VR chat an its been unexpectingly therapeutic. I went from being an out-doors-y nature child to being chronically ill an weak an near fully house bound by medical machines an medications. The first thing that I learned very quickly is the majority of people don't want to be around the sick/dyeing, its just the sad truth about it. But the silver lining is I know who my true RL friends an family are. Even thought I can count them all on one hand it dose makes Christmas shopping so easier now though, lol. I cant thank my little brother enough my getting me up out of bed awaiting death, an I cant thank my fiancée enough for sticking with me when most would have left. If it wasn't for him I don't think Id see the sun- even though its bad for me. He knows my limitations but also how much I can take an I cant thank him enough. My D&D friend group an VR have given me something to look forward to that I can do that wont incapacitate me after doing it, an where yes it can be so awful at times it also can be so freeing. I don't have a lot of time left, so fuck it might as well have fun.
I like how his pronunciation of "thorough" sounds like "pharaoh"
TH (being [θ] or [ð]) is such an uncommon sound, globally, even though we use it so much in English
Thank you for sharing your story Wolfy. Losing my memories is one of my greatest fears and listening to you talk about living your life to the fullest makes me want to do the same.
as someone who deals with dissociation that causes me to have memory loose, I absolutely sympathies with the wanting to remember but just not being able to. It's painful and it's scary, we rely so much on our memory that when it doesn't work it's scary
I love that he isn't letting the situation control him. He's just wanting to live life to the fullest, enjoy the ride, and make good memories.
I have family who has this disease and who have died from complications from this disease. These are people I never got to meet, to hear someone who has it explain what it is like to have it, is soul wrenching. I knew it was bad, but I didn't know how truly terrible it was.
Dude I'm sitting on the toilet with tears running down my face and this was definitely not how I expected my night to go.
But I'm glad this video exists; and I hope it'll help shine a little light on what degenerative brain diseases are like for people that have never been exposed to the topic in a real way. There's a lot that people don't understand, and unfortunately a lot of the people that suffer from Huntington's, Alzheimer's, etc, aren't in a good position to explain it to large numbers of people. Hell, even I didn't have a great way to explain the frustration that comes along with my flawed memory until I saw this video! By their very nature, these diseases are almost like a self-keeping secret that we've gotta try to work out. And that's kinda scary. But medical technology is progressing at a rate that we could never have dreamed of just a couple of decades ago! With any luck there will come a day where these diseases can be cured or treated in a meaningful way. I mean, we've done that with HIV, haven't we?
Thank you, Wolfy. And thank you, Azeal. For putting this together in a way that normal folks can understand and appreciate. Hell, even I learned a good deal as well!
I have a friend who has muscular distrophy, and its hard knowing that eventually he will die early. He was "supposed" to die by 10, but now hes 13 or 14 (i forgor) and still going strong. I think his love for sports has helped him keep his muscle that he has. Its difficult for me to know there is a decent chance he still wont make it to adulthood.
This video reminded me of one of my best friends who passed away at 20. He had sickle cell anemia, since birth. His passing really made me understand that in this life, we can’t choose the cards we are dealt, but we can damn sure play them the best we can. Death will always be waiting to cash out, but we should play the game and give it our best regardless, while we still have the chance.
My heart goes out to people like this, you're a hero for pushing through and are blessed to have people there who care so deeply for you.
I'm not religious, but I pray for many many years of positivity for you and your loved ones, and that more attention and breakthroughs are made known. Stay strong friend.
He's absolutely accurate that sometimes life just fucks you over. My friend's mom was getting ready to retire then oops, had some test that showed she had stage 4 bladder cancer and died within 2 years. Never actually got to enjoy anything because she went from working full-time to doctor visits full-time.
Hopefully a cure can possibly be developed one day. I'm saying possibly because these kinds of diseases are complex and we don't fully understand the human brain. But i have hope in science and technology.
i can hear the anxiety in his voice- i hope he lives well, and i wish the best for him
God this guy is a legend. I wish him nothing but the best. This must be absolutely fucking terrifying to go through.
Really need to use God’s name like that?
@@Saint_Branden yes
@@progfox no he doesn’t Blasphemy
@@Saint_Branden cope and seethe jesus freak
Early-onset dementia runs in my family. But this? This is so far beyond terrifying. I’ll forget things. Leave my glasses in the bathroom, forget my phone in the kitchen, forget my coffee cup next to the percolater. But forgetting whole parts of myself starting in my childhood? I’m almost 40, & having my doctors tell me “Yeah, by the way, you’ll have forgotten every part of yourself before you’re 45, GG hope you had a good ride”? I cannot even begin to imagine.
Huntington's is a brutal disease. I feel there's always an internal war living with it, and knowing the inevitable is going to happen is horrifying.
Yesterday was a scary day for my grandfather because he's began to change moods frequently and stop acting like the person he once was. Once a patient man- now an irritated one. We not only have had to deal with that recently on top of that, but we had found out that something he's always been so careful of,, his firearms, has become incredibly careless to where he just leaves rounds chambered in all his weapons without the safety's on. My pop had to take him on a drive to get him out of the house while every chambered round for every gun was dechambered and all safeties had to be re-engaged.
I'm hoping dementia one day, finds itself a cure. I love donating and supporting any alzheimers foundations that work on neurology research and looking to better victims of this problem because I believe mental disease and illness is becoming a problem next to cancer.
Everyone is their own main character in their own story and dont you forget that
Very good way to think about it :)
You can hear his heart slowly breaking apart. This is so so horrible. He knows he is..."doomed" and he tries to stay calm but you can hear him breaking inside
No matter what he's going through, i hope he's having the best time of his life
I listened to everywhere at the end of time and I just want to say, after revisiting this video, dear god this person has accepted what's coming for them despite the absolute terrors that this brings... Just wow. My heart goes out to you.
Thank you, Static, for telling your story and for educating people about this disease. You've made an impact. Certainly taught me things about it, and I appreciate that. I wish you all the best, genuinely. :)
Also, off-topic, but I LOVE that avatar holy shit. The way it looks and expresses itself matches so well and just looks so damn good.
Diseases like this are some of the worst diseases. My grandfather had Alzheimer’s and seeing him slowly degrade until he barely knew how we where was sad. Luckily he had it good and didn’t suffer for to long.
I had blood cancer when I was around 3 years old and although it's cured now, I have to give blood samples to a lab every 2 years, so they can check if it doesn't come back. But THAT is being eye in eye with death on a whole new level!
as someone with adhd I really relate to the whole "afraid of forgetting" thing
It's good to watch videos like this every once in a while, cause it made me cry. It shows me I still have empathy. I have a very cynical outlook on life, I never had a thing that I really wanted to do, until I met a guy through playing ps4 that kinda took me into his friend group, one of the guys in there especially. I've instantly connected with him, mainly because we were both furrys, and it ended up with me having a crush. We've talked a bunch about one day meeting up, only Problem is that we live pretty far apart, but I now know what I want to do. I want to travel to him, make that memory with him, cause even though I have the luxury to say "one day we'll meet" I shouldn't say it. This video was really inspirational and emotional for me.
I sincerely hope you can meet your crush in this short lifetime, dude. I think what you said is true. Unless we love, regardless of our circumstances, our lives will flash by.
My stepdad had a friend suffering from this disease, I heard it was bad.. but did not expected to be so extreme..
This dear has a big heart, wishing him all the best !
What a hell of a gambling analogy. Amazing channel and amazing guests you have here. Keep up the good work and I hope everyone out there can play their hand to the fullest and live like you will be gone tomorrow, in a good way... I hope if you are reading this you have an amazing day and stay strong.
Even when this person dies or can’t remember, he’ll still last forever on the cloud, even if it can’t be found he’ll still be existent online from here and any trace
I have some memory issues and some other crap and I'm really scared that I can even slightly feel some of the symptoms, of something that horrid. I hope that you live your best life possible, and just know that no matter what, you got this.
Disturbing but true perspective: an analogy of this disease is a ticking time bomb on your back, if you think about it, we all have this time bomb it’s just that people with Huntington’s disease makes it more obvious when the time expires. If u are out there StaticWolfy I hope you stay strong and are still alive to reply to this comment. This is just to put to perspective that we all aren’t very different to you and to make this feel better on u.
my parents told me to be greatful for what i have. and i did, but it was mostly materialistic things like having a car or a warm place to stay. recently, it's grown to where i'm just greatful i can hear, i can speak, or even just walk correctly. i hope this man grows to do great things. just telling his story to us is great to me. i've never heard of this before. i'm thankful for him educating me.
He was such a nice person to meet I hope he can live a happy and fulfilling life, I hate to see his happen to someone because they can’t control when these things happen them.
The guy being interviewed is incredibly brave. Having to go through something like that while remaining as positive and hopeful as he is... Nothing short of superhuman.'
I wonder if he tried to make it a metaphor by being a deer with a Hunting-ton's decease
you're respectable. To not pass on the decease, to give doctors all this data. I know the decease and even natural mortality will be solved inevitably (it's possible under physics), but until then, the more people work for the greater good, the less will be dealt a bad hand in the meantime
The second I heard Huntingtons, it hit me kinda hard. My cousin had it. He's kinda fallen off the face of the earth now, so nobody knows anything about him past like 2015 or so. He became such an angry, vengeful person. I havent listened past the 0:51, but I really hope this person is in a better place than my cousin was last time I saw him.
Man, I wish you could beat Huntigton's.😒 I admire the fact that you accepted and gave yourself a mindset of being you until the end.
I wish you the best memories and thank you for being an example. Hope you do everything on your bucket list.
I really just want to compliment this avatar. Really expressive and cute. The eye movement was really amplifying the effect of his speech.
This really got deep in my heart i hope he will have the best life possible before he passes😞
A braver man than I. I could not live with a deadline on my mind like that. The fact that he can continue going is proof of his strength.
Bro this sounds horrifying I’m so sorry mate
the fact that its uncurable is just... i dont even know. scary. like for all i know, this could happen to my best friend. i really hope static makes the best of his life
“Her brain was simply ripping itself apart”
That right there got me, it scared me even more than hearing that this exits
Hearing this. I started to tear up. I don't cry as much as I want to. But hearing the voice of someone who knows they're slowly going to lose themselves tell their story, it warmed my heart. Seeing that things like this bring people to live life to the fullest. At times I feel as if i lost who i am, but hearing the story of someone who knows they're going to one day forget everything and lose sight of who they are, gives myself hope that I'll find my way again. I'm glad this appeared in my recommended. It was a story I'll likely remember for a long time.
I remember seeing a video of someone with Parkinsons take Marijuana tincture, take a nap, and then get up like nothing was wrong. There's also research into psilocybin being used to help treat memory loss and seizures in people with certain neurological disorders. Could this help? I'm unfamiliar with this condition.
These are good questions! You should look into it more and get back to me in this thread :D
Hello I might be able to tell you. So unfortunately there haven't been done enough scientific research on that subject, yes I know there are videos but it's impossible to tell whether they have actually improved overall. The things that we see in the videos might actually be the placebo effect in action.
I hope that gave some light on the subject. :)
My aunt has Huntington’s… over the years we saw her deteriorate from an average woman to a shaking mess with the mind of a toddler. Absolutely horrifying, wouldn’t wish it on my worst enemy.
Sire, you have the best philosophy and morality; thank you.
Be safe.
My aunt passed about a month ago from Huntington’s Disease. She always lived her life to the fullest and I’m glad to see that you are as well.
I wonder how he's doing now, two years later
Look at the pinned comment and there you will see his channel
This could be a whole TED talk man. Seriously
Listening to someone talk about it, is a whole lot more impacting than reading an article, or doing a quick Google Search. You can feel the emotion in their voice, understand how it affects their life.
I don’t have Huntington’s disease, but i have a major medical issue, idk what but ik it’s bad, it’s getting worse by the day and it’s absolutely terrifying, I have amps, ibs, (probably, we have a couple things to check but the doctor thinks) pots, the issue is, idk what else I have, I’ve been bed ridden for almost three years, I’m 13, almost 14 and it’s terrifying, losing basic things, like my sight, my hearing, my senses, my words, my basic skills, it’s terrifying, I keep temporarily forgetting basic things, idk if it will become permanent, I hope not, I don’t want to forget how to write, or walk, or speak, I don’t want to forget how to paint, or sculpt, I don’t want to someday just not see, or hear, or feel my hands, or wake up and not be able to move, and it’s absolutely terrifying, because nobody knows, and idk what’ll happen, because, it looks like I’m having seizures and strokes, but I’m not, it looks like I have so many things I don’t and we don’t know why, I’m just absolutely terrified, and this made me feel less alone, idk why, I just did, ik that it’s probably nothing that’ll permanently affect me (in the way of terminal, or permanent regression) but it’s still scary and I under stand a lot of what he’s saying
It’s kinda sad knowing he’s probably dead by now…☹️
still kicking, last comment was a month ago
He still kicking
Letsgo
This man is cursed with the knowledge of how he will most likely die and suffer very very slowly.
Bless your soul and please have the greatest times that you can manage to get.
This video needs to reach more people, i was half way through the vid when i saw that the video has less than 100k views, i literally had the feeling it has like a couple million views
Ik this is serious and in all honesty I'm sorry for him... but I love how he makes memories by chatting with people on Vr chat... but I'm sorry
what a champion. he makes the best out of his situation and dedicates himself and his body to science so that progress in research on this disease can be made. truly a hero.
This is so sad but at least the guy is living his life like hes free as an eagle and not locked in a cage like a stray dog the dude sounds really nice and i hope he has the best life he can possibly have
I- f**king hell i Just Wish him and His GF a very wounderful Life and that they have a good Future ahead of them both while yk He still has some time . . . .
Even though this guy is probably gone, I wish him the best, wherever the may be. I wish life was kinder to people like this. Farewell bro, your an Ace.
he's still around thankfully :)
As highly unlikely as it is, I match way too close to these symptoms. Trouble remembering things even if they happened just the day before the getting a panic attack from it, high anxiety, and depression, and when he showed the jerking movement that is what scares me the most, that exact same thing happens to me all the time, it also happens to my sister. Now it is almost impossible that I have that because it passes down through genetics and from what I know no one in my family has had it.
Umm I'm not sure if you mention this but could you get in the habit of writing stuff down in a notebook beside your bed and leaving it open so if you forget what it is it will remind you, as you said one day it could be terrible but I think a journal could at least help organize the chaos
Hi! A very good idea that I do as much as possible! The issue is that I cannot write everything down and at some point I will not be able to write or read at all, but I helps I the small things like shopping and other things :)
@@StaticWolfy well worth a shot I hope you lead as happy and fulfilling life as you can buddy all the love and respect to you
i keep coming back to this video even though its scares the hell out of me, I just hope I can keep the same amount of dignity in my stride if me or my brother get diagnosed.
This is such a horrible disease, like, there are diseases which "just" make you die, but this first erases you as a being. Videos like this make me feel very down, cause I feel empathy for people like StaticWolfy, who suffer from things like that, but I know there is nothing I can do to help them or anything like that. I also have insane respect for how camly he manages to talk about that.
My older brother, unfortunately, has this disease. He's fairly young by most standards, with it showing up in his mid twenties, and it's progressed so fast and so aggressively that... at this point, we only have a few years left with him. He has huge gaps in memory, but what he can remember is that he doesn't want me or my brother to see him crumbling away. You're so brave to be this okay with it. I hope my brother has the strength you do. Thank you.
There's a saying, "wise beyond your years." Usually I've heard it used in good ways. I've learned that this isn't always the case. This guy is not even 30 and he knows he doesn't have a lot of time and he is giving such a profound message. I teared up because I can feel his fear. The fear of the unknown is a scary thing. While I in no way relate to what he's going through, I think we all know what it's like to fear something in the near future.
I feel bad for the guy
man of all the recent ones ive watched this was rough. im happy the guys come to terms with it but i still. theres no words.
I'm being accused of it. I never did that.
You're my heart. I don't want anyone else.
My mother has this disease. I spent about 5 years wondering if I had it or not... I tested negative at the beginning of this year! I have a totally different outlook on life now that I know I'm safe from this terrible disease... I've seen firsthand what Huntington's Disease does to a person and it's absolutely brutal... To anyone struggling with this disease, or any other illnesses I wish you all the best. Don't stop fighting it, and live your life to the fullest...
Azeal's narration and accent makes this so good and dramatic. You can really feel his fear and pain. It draws you in.
I was dealt a somewhat shitty hand in life, both of my parents were addicted to drugs, my mother died suddenly when I was 15 while I was homeless and my father struggles with his health. Seeing this guy talk about his experience is moving, I hope for nothing but the best for him. It’s awful he has to live this life but he made me appreciate mine much more.
I hope this young man writes a book.
I too relate to this video, just with the memory loss part. Due to stress and other issues growing up i have a really bad memory now. So bad that ive taken to making notes about daily activities, thoughts, ideas, everything. Even made myself a little discord for myself where i write notes and can categorize them. Just for myself. Adapt and overcome right?
Take care of yourself Static! Thanks for the chat.
I hope ur ok rn I really do tears are falling from my eyes rn and I just wish ur doing good I'm so sorry