Aphasia: A loss of words, not thoughts
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- Опубліковано 27 вер 2024
- Language and the ability to communicate are essential aspects of our lives that we often take for granted. This video examines what it is like to live with "aphasia," a communication disorder that can occur after brain injury, most commonly stroke. Aphasia can affect a person's ability to speak, understand spoken words, read, and write. Through interviews with Maria, Peter, and Robert, three survivors of various brain injuries that have been kind enough to share their experiences living with aphasia, we hope to give you new insights into this common but not well-known disorder. Most importantly, aphasia does not affect intelligence, only communication.
Resources - For Canada and Ontario:
Senior Activation Maintenance Program - www.samprogram.ca
Hamilton, King Street East, Location: 905-544-4550
Hamilton, Good Shepherd, Location: 905-525-1181
Flamborough Location: 905-689-5244
Halton Aphasia Centre - www.haltonaphasiacentre.com Call: 1-905-877-8805
Joseph Brant Wellness Centre - www.jbmh.com Call: 905-832-5358
Seniors Support Services Building - Caledonia - www.artc.ca and www.seniorssupport.ca Call: 519-758-4630
Adult Recreation Therapy Centre - Brantford - www.artc.ca Call: 519-753-1882
The Willet Hospital - Paris - www.artc.ca Call: 519- 753-1882
Private speech-language pathology services:
www.osla.com (find a speech-language pathologist)
www.casipo.com (find a speech-language pathologist)
Waterloo Wellington Regional Aphasia Program (WWRAP): Therapeutic conversation groups in Guelph, Waterloo, Kitchener, Fergus, Elmira, Erin, and Cambridge. WWRAP aims to develop a person's communication skills.
Phone: (519) 824-6000 Ext. 4357
West GTA Stroke Network - Community Resources: Downloadable community resource book with a listing of stroke resources available for residents of the West GTA.
March of Dimes - Aphasia and Communication Disabilities Program (ACDP): Services and mutual aid groups for people living with aphasia and other communication disabilities. Currently serving York and Simcoe Region, Durham Region, Peterborough area and the GTA.
The Healthline: Enter your community name or postal code to find health and community services in Ontario.
York-Durham Aphasia Centre: Find services and programs for people affected by aphasia, apraxia, dysarthria and other social communication disabilities.
Aphasia Institute: Find services and programs for people affected by aphasia.
Halton-Peel Community Aphasia Programs: This program focuses on effective communication. For information about the locations and referral process to programs offered in the Halton and Peel regions click on the link or call (905) 875-8474.
You can find more information about resources in your own country through your doctor or online.
This video is made by McMaster Demystifying Medicine students Shreya Singh, Gurleen Bhogal, Abishna Jayasundararaja, and Alexandra Lengyel.
Copyright McMaster University 2019.
#DemystifyingMedicine
References:
American Speech-Language-Hearing Association. (2019). Aphasia. Retrieved from www.asha.org/P...
National Aphasia Association. (n.d.) Aphasia Definition [PDF file]. Retrieved from www.aphasia.or...
National Institute on Deafness and Other Communications Disorders. (2017). Aphasia. Retrieved from www.nidcd.nih....
National Health Services. (2018). Treatment - Aphasia. Retrieved from www.nhs.uk/con...
Tippett, D. C., Niparko, J. K., & Hillis, A. E. (2014). Aphasia: Current Concepts in Theory and Practice. Journal of neurology & translational neuroscience, 2(1), 1042.
Robert seems like such a kind, gentle man. Those who choose not be friends with him are missing out!
Robert should be very proud of himself to be able to have gotten through that Q&A with such poise!
Explained with an example: let's say I want to say "the keys are on the table". But I can't remember the word table. I know what a table is, what it's used for and how it looks like. I can describe it, but the word "table" is just not there. Which is often frustrating, especially when people don't understand what I'm describing. Because I know I've got to say what I need to say quickly, before I get distracted and forget that I wanted the keys! When I'm talking about "that square furniture, where you seat and eat, has chairs around it..." etc, and you don't understand what I'm talking about, then you are the idiot, not me! 😛 so, when I get frustrated, I get frustrated with myself. Because I know I'm still in there, inside my mind, I'm still just as smart, but you can't see it. And I start mixing up my words, stuttering, not making sense. Then I pause, lose faith in humanity, and decide not to speak unless I find the right word. And then I forget what I wanted to say! 😂 And when you finally understand what word I'm looking for and you say the word "table", it's like the best thing that's happened to me all day! Table! Yes! I can now die happy! 😂
@Paul Nazarovitch constant deja vu? I got something similar. I say something and one moment later it feels like I've said it before a long time ago. it's hard to explain but it's as if the new memory got stored in the wrong place.
the brain is a magnificent very complex thing. the only thing I can advice you is to find coping mechanisms that work for you. right now I'm very happy with the fact I am able to exist around people and they won't know my flaws unless I tell them. take care. 💚
@Paul Nazarovitch sadly, one thing I've learned is that, besides family, no-one else around you is going to be helpful with such a matter. it sounds harsh but people don't care enough, and you don't really have to care about their opinion on you. I do not interact much with people anymore, but when I do, I don't allow them to see there's sth wrong with me. when I forget a word, I usually pretend that I suddenly remembered sth important. I might say "sh.t I got to make a call". I get out, take some deep breaths, relax and try to remember. it actually works 'cause people do not care much. take care. I'm here if you ever meed to talk. 🤗
This was great, been searching for "how do i remember peoples names better than bad" for a while now, and I think this has helped. Have you heard people talk about - Piyoren Incredible Prepotence - (just google it ) ? It is a great one of a kind guide for discovering how to boost your memory power without the headache. Ive heard some pretty good things about it and my partner got amazing results with it.
#what is the most common cause of aphasia?
@elliana m. Is texting easier than talking in Aphasia?Is it associating the correct word to the image u had in my mind the difficulty u face?I'm just trying to understand and curious,i dont want to be rude.Forgive me if i appear rude,that's not my intention
I have always suffered from this as well and i am only 21! Is it recommended for me to see a neurologist or see a doctor?
This lady is an amazing listener and empath. I had a 5th concussion in 2019, I'm 43 now and that head injury messed me up for a while. I am saying sentences backwards and hard to get words or sentences out. Hard to write out thought even though I minors in English and excelled in writing. It's OK I still have lots to offer, but it is a struggle
I have exactly the same problems as the guy in red. I'm in my early 20s and don't remember any traumatic head injury. I have been diagnosed with dyslexia though
M E I teach a child who I am sure has a mild form of this but she has been diagnosed as dyslexic or dyspraxic. But it's as if she is just forgetting how to say words when she sees them on paper. Would you identify with that?
Sarah Potts no, but I can see how something I do may be confused with this. When reading something, it is difficult to make sense of/process the words and so I will slow down my reading speed. Text with more sophisticated vocabulary takes me a lot longer to comprehend.
I can give you an analogy: connecting dots in a line. Words are dots and a line is the sentence. I know 'this and that' are dots but I’m not seeing how they match up together in the line.
Can this alexia cured?
I wish you fast recovery. Stay strong dear.
Scary stuff. Aphasia has been creeping up on me for years, gradually getting worse. There was no traumatic event that caused it. It's come on me slowly. It's just in the last three years that it's become a big issue. I can barely get through sentences sometimes, and it's becoming more normal for me to get stuck in the middle of a sentence because I can't think of a word. Sometimes I'll use the wrong word without even realizing I did it until I hear a recording of myself later.
Very sorry to hear this. X
I have been experiencing this too. On my phone I have predicted text, and a speaking app. But when I talk my pronunciation and word remembering is really bad.
It seemed to start after I had Covid symptoms in spring 2020. Don’t know if that’s related?
B12 shots helped for a while, but now it’s getting slowly worse again.
You sound like me. I’m 51 and have been unknowingly dealing with this for several years now. My vision is bad as well. I’ve been to a dozen different places to check out my eyes and everything comes back that my eye health is great but yet every pair of glasses I’ve worn in the last 8 years have given me headaches. A nurse at work suggested to get an MRI done. I did and it came back clean but something in the results made the doctor think I may have had a mild stroke at one time. The nurse is hell bent on me seeing a neurologist, which I am next month. My strange, slurred speech and loss of words (or wrong words) has been happening for at least 4 years now. It’s not all the time or even every day and I never know when it’s going to happen. It’s exhausting and I’ve shied away from friends and family for quite some time now and it sucks. Sometimes I’ll speak to my girlfriend in my living room while watching TV and the words that come out of my mouth are not anything that I meant to say. It doesn’t go on all evening, just now and then. When it happens, I usually just say I cannot talk right now and keep to myself.
Apparently PTSD or hella anxiety make it worse
Waiting for that SS gravy train paycheck, huh. I want to cash out and stop paying for nonworking people, like you. That means that I couldn't receive the benefits that I paid for for half of a life. I am OK with this. I make it or die. I wouldn't ever want to be a COMPLETE DREG UPON SOCIETY.
I actually find listening to the third guy quite calming and relaxing, because of the silences in between words. Quite the opposite of listening to people who sound like machine guns. Heartbreaking to hear that he lost all social life apart from family. Makes you think how we, as a species, focus entirely on verbal communication although, if you pause and think for a second, you realise that more often than not it is not words that make us bond with other human beings.
No! There is no word loss in aphasia! It's all about *retrieval!* It's rather like if you need a certain document for the IRS. You know you have it - but where is it?
That’s an awesome way to explain it!
@@nevaehwilliams2453 Well, it's part of my job to inform people about the myths around the topic of aphasia ...
This is so sad! I'm praying for people with this illness!! Holy father in the name of Jesus please heal from this horrible medical condition 🙏
Karma
Very helpful. Super nakatulong para lalo ko pang maintindihan ang kasalukuyang sakit ng tatay ko. Maraming salamat po What I can do now is to do my best to understand him in anyway. I love my dad so much
Are you having stroke or paralysis as a result of having stroke then WhatsApp +79260044771 me and I will tell you how to cure stoke and body paralysis
God bless po🙏
Hi po..any tips po how to help aphasia patient?.my father has this now due to hi bp stroke 😢
Bruce Willis' condition brought me here 🥺
Me too
Me three😞
Idk if I have Aphasia but the term tends to crop up a lot when I search on why I can't express myself properly. I tend to say the wrong things at times. I've asked "can I refurnish your water?" Meaning can I refill your water. Or "is your rig healthy?" As in does your rig work well?
I also tend to lose words in a sentence or speak slowly with long pauses.
I know I hit my head a few times as kid but I only started speaking strange when I was in high school.
I tend to forget a lot of what people say to me as well. If it's with my boss I'd repeat back what he asked from me to make sure we're on the same pages since I also get confused with instructions.
I know I have other mental health issues that could be contributing to it but it does concern me if I messed something up a long time ago and it's biting me in the butt now
Life is tough with this! I can’t remember or hold on to conversations, words don’t mean anything to me! I use the wrong words in the wrong sentences. I can remember I fell off my bike and I blacked out but even prior to that I believe I had this.
Can you please help me, I have trouble speaking to my friends in class and I never know what to speak about and when I have something in my mind that I want to say it’s hard to say it for me and I don’t know if it’s aphasia
Is this something that has developed - such as following illness or injury - or is it a challenge you have faced life-long? If the latter, it probably is not aphasia. Even if not, however, this does not mean no one can help - I still would suggest sharing your concerns with a doctor.
Good luck.
Hello there,i found certain difficult to understand what ppl are trying to say and some time i can’t able to remember a spelling of an word, and can’t able to speak words in conversation, like in my mind ik what to speak but when it’s come to speak i forgot all the thing I don't having any stoke nor any Brain disease, should i need to consult with doctor if yes then which doctor u suggest?
the guy in red is so relatable.
i came here from a lecture and this shit fucking suscks, i didnt knew this actually was something but iwas exactly the guy in red this when on antipsychotic medications and i still have a soft version after going nuclear from diagnosed adhd and trauma, so this was cool to watch and see it is real
Good work!!!!
Thank you Ma'am!
HERE FOR MY MAN BRUCE WILLIS!
Hi, I just found this. I've been wondering if I had aphasia but I could not find a good description or explanation of it. You mention several physical causes of aphasia, but could it be caused by mental trauma, like childhood abuse / C-PTSD?
I'm on the same search.
I had a stroke with covid when I was on the Ventilator and I have Aphasia. I have come a long way but I can't complete a lot of sentences. Any suggestions on how to improve?
As the years have gone by I've been finding it's hard for me to carry on multiple sentences and putting the right words together, sometimes I'll loose my train of thought, it's progressively gotten worse, I'm 32... never had a stroke etc or brain trauma, however as a baby I had to have head surgery, I'm starting to think this has had side effects. I was sharp and quick with remarks and debates, now I find I'm loosing my words.
What about loss of thoughts,what is the definition of it?
Beautiful bravo
I earned this after a car wreck. It sucks being trapped inside your own mind sometimes.
Hello,
I have been a fluent speaker all through till the past 2 months. I am finding it hard to pronounce words correctly, especially if they have related consonant like in the case of r and l or s and sh. Many at times I have to slow my speech to try and get them right but still fail at it. It is something I used to do with so much ease but now am struggling so much. Could this be aphasia
Best to speak to a doctor. It’s possible.
I mostly relate to the guy in the red shirt, but I'm not even an adult yet, very scary stuff.
How can God let this cruel disease happen to anyone ?? 😢
I am 25 year old i have words loss unable to understand words i do hearing test they said u can listen very well but didnt understand words ...i have issue since 5 year...pleasr guide any treatement for speedy recovery🙏🏻🙏🏻
If i have a lot of these issues and theyre debilitating but it also affects thoughts as well as speech then what could i have?
Thank u. Can aphasia show up years later after an old head injury? 🇨🇦
Ty ❤
❤❤❤❤❤
Can having many low blood sugars cause aphasia ?
Can aphasia affect the ability to write?
I have a hard time with doctors myself !
Can it be corrected over time?
Please what if the person is just mumbling incoherent words constantly. He can reply and answer questions directed at him but he often strays off and continues saying those few words over again. Please if you have any ideas please let me know..
Sounds like a stim(self stimulating behavior) that an autistic person might have. Everyone has a stim of some kind(pen clicking, leg jiggling, humming, etc), but autistic people's tend to be less subdued, and repeating a sound over and over is often used as an example of that type of behavior.
Will it cause a person to replace missing words with profanity?
Tourettes?
Am i the only one wondering what the hell this is after bruce willis' diagnosis?
do i have this? cause i forget alot of words that even everyone uses/remembers it and I make bad sentences and when I listen to someone whos talking fast i very often mix the words and forget is this a sign of that i have aphasia? please answer
Hi, can I ask. My son was a survivor of viral Meningitis do you think he can again?
YES! My nephew was too, when he was born, and he is totally fine now (he’s 20) and very intelligent.
But is it hereditary?
I don't know. I had a stroke and was told I have aphasia afterwards. Some people don't get very well but I am 70% better but that's been November 2019. I don't think I'll get any better.
@@tracyh7657 I wish you the best. I’m here with you.
I had a stroke.......2019
Please could you send me your email
Thank so much
Yes exactly! She describes it perfectly! I went through it for the past 2 years from covid, inflammation in the brain!
Omggg it’s always hard for me to express what I am trying to say !
I tend to forget things DAILY
My brain feels tight when ever I attempt to get my thoughts out …
I’m always frustrated
Why this happened to you ? I am currently thinking I might have asphasia from a concussion but my speech and understanding is not as bad as this people shown in the video I am doing pretty good thank god I believe I could completely recover
Bruce Willis sharing his diagnosis with the world is a blessing to so many of us.
I have experienced rare occurrences of aphasia lasting usually not more than 30 minutes or so as a symtom of migraine headaches. It is VERY troubling when it happens. The mind is working but you can't make words.
Have you seen a doctor?
Me too
-It's hard.
-Whats hard? Are you thinking of communicating?
-Yes, thats one way of putting it.
The old man got me good i cracked there
If I ever suffer an episode of aphasia, I choose my next learned language to be PURE MATHEMATICS. The least desired language is Woke American English. It's stupid and changes too fast.
My husband suffered a stroke 3 months ago. He is recovering well but has severe aphasia and cannot use right arm. He is severely depressed and no one will help him to talk with him since he can't communicate. He is 81 and feels hopeless to go on. I have called all over and get no answers to help. Can you help me? He is currently in speech therapy at a rehab center twice a week with homework of me going over words with him. Thank you.
Thank you very interesting. Much respect to those who took part. X
I am learning in my memory because I have aphasia
Came here bc I heard Bruce Willis is retiring from acting BC he was diagnosed with this
I thought this video was very informative. My husband has FTD and PPAphasia. It is given our communication verbally is limited, frustrating, sometimes misunderstood, sometimes understood and appreciated. Sometimes I question myself. I am particularly interested if there are videos I could show him to help him find a new way to express himself. I want to learn as well to give him the best journey he can have. Its my understanding there are no speech therapists specific to Aphasia in my area. Love him dearly. He says he just wants to have fun and be happy. God Bless Him.
What happens when they wanr to sing a song they already know by heart
@bigpink pencil memorized lyrics with melody,
But for words that are just memorized there is no memorized melody for a sentence we speak, there is no algorythm to what we say. we know what we want to say, but when i speak, A word i was about to say can change faster than light.
When speaking we only know the word that we are saying atm
but cannot "predict" the next so we dont know it until we "think of" or have already thought of it, which is not predicting but picking options (words) 1 after the other produced in the brain involunteraly and faster than organic hardware (the physical body) but equal or almost equal to someone else's software (thought) and that synapse is electrical and magnetic (ever felt someone staring at u only to look up and see someone doing exactly that?) That itself is a synapse a power we ignore because of chaotic languages "hail thoth!"
What if there were a type of language where people remember to speak on a note or notes making that more the focus but also explaing themselves while doing it, its like "singing" what u have to say to a looping melody that have been memorized, its like freestyling accapella on the same old beat in ur head over and over when trying to speak.
Thanks!