My father was suspected of having Marfan syndrome. He was very tall - 6 feet for a man born in 1912 - and thin with long hands, and he lost all his teeth by the time he was 30. I have both the hand signs shown in this video and my span is 6 feet compared with height of 5 feet 9. I have had my aorta scanned with no abnormalities. I also have a high narrow palate and have had teeth removed for crowding. I don't have a formal diagnosis of Marfan and in general I'm not particularly flexible.
No-one with Marfan Syndrome should get married, it is a death sentence. Be careful babies, you are stronger than you could ever imagine, look after your hearts and protect them. I know you, I know your suffering and I know why. Self love❤ is all you need and I will love all of you always because you all take on so much, I feel it. I have Marfan syndrome, I am 34 years old and I have overcome my disability and I'm only getting stronger and I believe you all have the power to do the same. Increase your energy, be fearless, be strong. You are loved more than you know. Whatever happens you are protected and you will learn in time how powerful you really are. Understanding duality is essential, we have both light and dark aspects of our subconscious and our thoughts change the world. Be the change you want to see. Be the miracle❤
@randomstuffglobal I don't, I use DMT and medicinal cannabis as preventative medication to prevent my aorta widening in the first place + it keeps my joints and organs healthy as well 😁
How long have they been doing blood test for this because my son saw different specialist and they all said he had soft features 14 years ago and none of them did a blood test he is over 7 ft tall he has the dip in his chest can wrap one hand around his wrist and actually overlaps quite a bit he has flat feet size 16 feet he has problems with his blood pressure as it’s very low and he has a very slow resting heart rate he is very flexible as well and he has problems with his eyes
Your son would be easily, clinically diagnosed with Marfan, based on how I was firstly, in 2004. Just recently, I was genetically diagnosed. What you should do is get in touch with the Marfan Foundation. They can refer you to a doctor or specialist in your area. Good luck.
@@janinemaxwell4297 Yes, there is. I found many friends over time and for over 7 years we have shared differences and likes; whereby we are better able to understand Marfan on a wide scale, since we are all different. They say no two persons are alike, not even in the same family. You can ask me any questions no matter what.
Excellent effort
Thank you for your information.
Do you know there are any medicines for Marfan syndrome ?
Same question
Short is yes. There a number of factors that carry varying degrees person to person.
Each area of problem, is addressed by the doctor. Example, heart patients see the cardiologist who will prescribe medication base on the problem. Etc.
My father was suspected of having Marfan syndrome. He was very tall - 6 feet for a man born in 1912 - and thin with long hands, and he lost all his teeth by the time he was 30. I have both the hand signs shown in this video and my span is 6 feet compared with height of 5 feet 9. I have had my aorta scanned with no abnormalities. I also have a high narrow palate and have had teeth removed for crowding. I don't have a formal diagnosis of Marfan and in general I'm not particularly flexible.
No-one with Marfan Syndrome should get married, it is a death sentence.
Be careful babies, you are stronger than you could ever imagine, look after your hearts and protect them.
I know you, I know your suffering and I know why.
Self love❤ is all you need and I will love all of you always because you all take on so much, I feel it.
I have Marfan syndrome, I am 34 years old and I have overcome my disability and I'm only getting stronger and I believe you all have the power to do the same.
Increase your energy, be fearless, be strong.
You are loved more than you know.
Whatever happens you are protected and you will learn in time how powerful you really are.
Understanding duality is essential, we have both light and dark aspects of our subconscious and our thoughts change the world.
Be the change you want to see.
Be the miracle❤
You are here too 😂😂😂
Do you have swollen aorta? If yes, did you go through the surgery? How did it go?
@randomstuffglobal I don't, I use DMT and medicinal cannabis as preventative medication to prevent my aorta widening in the first place + it keeps my joints and organs healthy as well 😁
It can affects all parts of the body. It doesn’t affect everyone the same way.
Saliva is being used in these days.
How long have they been doing blood test for this because my son saw different specialist and they all said he had soft features 14 years ago and none of them did a blood test he is over 7 ft tall he has the dip in his chest can wrap one hand around his wrist and actually overlaps quite a bit he has flat feet size 16 feet he has problems with his blood pressure as it’s very low and he has a very slow resting heart rate he is very flexible as well and he has problems with his eyes
Your son would be easily, clinically diagnosed with Marfan, based on how I was firstly, in 2004. Just recently, I was genetically diagnosed.
What you should do is get in touch with the Marfan Foundation. They can refer you to a doctor or specialist in your area. Good luck.
@@MH-hw4uh oh thank you so much I didn’t even know there was a foundation.
@@janinemaxwell4297 Yes, there is. I found many friends over time and for over 7 years we have shared differences and likes; whereby we are better able to understand Marfan on a wide scale, since we are all different. They say no two persons are alike, not even in the same family.
You can ask me any questions no matter what.
I am sick of marfan sayndrme
Me too 😢. Hang in there.
I have a doubt
I as I play to much basket ball my finger and my palm grown a little. Is this considered as marfan sydr5
Is that your only problem? Do you have other family members with any of the signs too?