Hello there mister. I don't think you are aware how inspiring and comforting your videos are. Thank you for sharing your journey. Im happy you are alive and well and i hope you will be alive and well for long time to come. Definitely make an update video every now and then maybe 2 or 3 times a year
I have Barrett’s a Soffa Gille pre-cancer but I’m having a lot of problems now and polyps removed. I have to sleep at a 45° angle. I feel like I’m in a recliner all the time they removed nine polyps out of the bottom of my stomach. Everyone was pre-cancerous. I can’t keep food in. I understand what you’re going through and I know eventually I’ll be going through the same thing.
i underwent total gastrectomy in december (of 2022). i was diagnosed with stomach adenocarcinoma. surgeons also removed my spleen, gallbladder, small part of pancreas, and about 40 lymph nodes…. i am currently going through chemotherapy and hopefully will be cancer free. i am 39 years old, non smoker, don’t drink, eat healthy (i do indulge in junk food occasionally), no family history in similar health conditions, and yet i’ve got it (the cancer)… stay healthy everyone 🤞💛
Hi, I am from India, 36/M Diagnosed with stomach cancer, because of Gastric Outlet Obstruction my doctor advised surgery before Chemotherapy. Now I recovering from the surgery after that I'll take session for chemo. Love you God bless you
I just got diagnosed with esophageal cancer. I'm sure I will need this surgery and your video has helped me immensely. It has given me more courage to forge ahead. Especially the part where you talk about physical activity. For me that is important because my job depends on my voice and physical activity.Thank you so much for this video!!!
How are you doing? I’m waiting for my pathology back but on the preliminary it show strong positively for K19 on the esophageal biopsy which is usually not a good thing… the waiting is killing me
@@bobbirice4420 I hope you have caught it early on and your body adapts to the esophagectomy well. If you have to go through chemotherapy and radiation treatment, I hope you get it early after your surgery and go on to live a long healthy life. I didn't get so lucky. Where I live I was diagnosed within a week. I didn't have to wait. I had many complications after surgery. The weird thing about esophageal cancer is that everyone is affected a bit differently. I wish you the best and I will keep you in my prayers. Good luck!
@@simaaiwen thank you so much for replying and I’m sending you hugs with good vibes and prayers as well. Unfortunately, I’m still waiting for the final report as it was sent for a second opinion to USC in Los Angeles, but I’m praying it comes back somehow negative if not as you said in an early stage.
You are such an inspiration and you covered this issue so well ! I have a friend who had this same operation and we have been so worried about him but you certainly helped calm those fears ! Thanks for this video !
Hi Terry I’m going thru the same thing now. You easy going personality and your presentation made this enjoyable to watch. Best one I’ve seen with choc full of the information I needed to hear,,, your the man...
I'm so glad you did an update. My husband was diagnosed 3 weeks ago, met with the radiation Dr. today. His tumor is the size of a pear but has not spread (thank God), he's only 45. Not looking forward to what is ahead for our family. Glad to see you looking well!
Hey Jami, the good news is he's 45 and even though life is going to change a bit for him, he will still be able to enjoy it. I'm wishing the best for him and your family, please update me when you can.
@@leebeex8 my husband also was disganosed with this. he is 37 non smoker and doesnt drink. He is doing FLOT chemo without radiation before and after surgery. what does treatment look like for your husband?
@@natimarivelez Hi Natasha, my husband did radiation & carbo/taxol then surgery the more chemo oxyliplatin/5fu. He unfortunately lost his battle in March 💔
@@leebeex8 I AM so sorry to hear this. My mom passed in April from breast cancer and now my husband is going through this. I am just hoping he gets through and it seems like the doctors are so confident he will be able to fight it. He is also doing the 5fu..flot but no chemo. I am so sorry to pry but did your husband do treatments before and after surgery? did it come back after all of that? or was the chemo/radiation just not successful? I am sorry for your loss. Again I am sorry for your loss!
Hi , I'm Jeanett and I was diagnosed with stomach cancer in September of 2022 . I went through 4 rounds of chemo and Imunno therapy. I had a complete stomach removal January 18th I'm still on a feeding tube and struggling to eat by mouth. I'm also struggling with the emotional aspects of the entire cancer and the eating issues. I'm 75, and my passion was cooking and eating gourmet foods. I guess I'm afraid I'll never be able to eat my favorite foods again. I really appreciate your video and you sharing your story . Thank you
Hey Jay, sounds like you really got your ass kicked. It will take about a year to be able to eat everything you ate before. Hang in there, you will just have to eat smaller quantities.
Hi it is very useful For me as my husband got esophagectomy surgery 2 months back i am from india.he is entire life style of eating had been changed he is finding difficult but no other way.your videos is very clear and also useful for others. Pls keep on post your videos
What a good information and message of hope for those who are going through the same problems you had. How are you doing today! Hope we hear that you are doing well according to the situation.
Thank u so much for the information. My esophagus was removed about a year ago and I’ve had a lot of problems eating afterward because I ended up with gastroparesis. Now I have a feeding tube going straight to my small intestine due to the amount of weight I lost and so I can get the nutrients I need. If I keep loosing weight they may have to remove my stomach. Watching you look so healthy after everything you have gone through gives me some hope. So once again thank u so much
Hi Gerry, I'm still alive. issues keeping me from asphyxiating while I sleep. I sleep on my stomach and it has been tough. I'll post a video soon on what my bed is like know. How are you doing ? did you do the surgery?
Hey Pixotee, Sorry for the long delay in getting back to you. how are you doing now? Life for me is back to normal, with the exception of slowing down on my food and sweets intake, taking a break right after eating, and sleeping on an incline. Other than that I feel like a normal person. I see you posted this 2 Months ago? How are you now?
I had my surgery about 8 1/2 months ago. I have an adjustable bed I sleep on. Really helps with food coming back up. I really appreciate you making this video. It really helps people. No one called to check on me after the first week home from the hospital. I use fiber also. I also have to stay away from milk. I don't even like the taste for it now. They took 1/3 of my stomach and 2/3 of my esophagus. I have some stomach left but not much. God bless you for making these videos.
I’m so sorry that you went through such a traumatic ordeal and I’m so happy to see that you’re doing so well now sir and that you’ve continued to live a normal life afterwards. Having a positive attitude makes all the difference in the world and either you can just give up and feel sorry for yourself or like you carry on with your life. I’m so proud to hear of your accomplishments and you’ll have my full support. I’m surprised to learn that you’re capable of eating normally just as you did before. Are you not on any kind of TPN therapy or other feeding tubes and how are you able to swallow without a stomach? Oh and what about taking meds? At least you don’t have to worry about feeling nauseous or vomiting either. I appreciate you being brave enough to share your story with everyone as to give people, hope that they too can live a normal life. I live with a chronic incurable intestinal illness called Crohns Disease and have underwent numerous major abdominal surgeries so I know how it feels to go under the knife my friend. Do you have a strong family support and that too goes a long way for sure. I have been living with an ileostomy since I was 18 years old. I have underwent many intestinal surgeries since then because of the Crohns and I have no large intestine,so I potty that way and I Have no rectum nor gallbladder and am missing two feet of my terminal ileum. I too live a perfectly normal life in every way . That surgery saved my life otherwise I wouldn’t have survived because of the severity of my symptoms. That’s why I’m alive today to tell my story. My heart goes out to you sir and again,thank you for sharing your story. There are times I flare up with the Crohns and have to be hospitalized. Your story has given me so much hope that just because you have a Crohnic illness doesn’t mean that you can’t live normally. Well wishing you all the best fora happy healthy life and hope and pray you continue to do so well and I’d really love to be friends with you sir so my name’s Carla Head and if you’d send me an FB friend request that’d be wonderful. I apologize for making such a lengthy comment,but I have a tendency to get long winded. Oh how long since you underwent your stomach removal surgery and how long were you hospitalized after? When you swallow,how does the food reach your intestines without an esophagus to help guide it into the stomach and into the small bowel ? Do you have problems with malnourishment? Well take care and be well and GOD BLESS!!! Many thumbs up on your video !! 🙂🙂🙂🙂🙂❤️❤️❤️❤️❤️❤️🙏🙏🙏🙏🙏🙏🙏🙏👍👍👍👍👍👍👍👍👍👍
i have the cdh1 gene mutation and i most likely will get my stomach removed to prevent stomach cancer from developing. this video has helped me a lot. and trust me, the bathroom situation was my biggest question that no one else has seemed to touch on on other videos ive watched. i hope you're doing well. thanks.
Good to see you are doing well. I had my surgery done 4 weeks ago and recovery at home is going okay. I still have a j- tube for my overnight liquid feeding to supplement my regular oral feeding until i am able to meet my caloric requirement by mouth. Still getting used to eating more frequently but smaller amounts...i miss food
Thank you for telling us what doctors don't, and the amazing advice you learned through trial and error. The work on the house is brilliant, what an indomitable spirit you have. Can't keep a good man down! Like everyone else, though, would appreciate some reassurance that you're okay.
Thank you very much for the video update and all the information. Its nice to see that you can laugh again after all that. My operation is in a few days and thinking about it scares the hell out of me. Hope they don‘t screw me up and can get rid of the cancer. I wish you all the best and a happy new year 2019.
@SkyWater Haven, thank you for asking. I had my 10 hour oesophagus operation last friday. Planed was to perform my operation with the DaVinci operation robot, where the operator controlling the robot arms via a 3D stereoscopic computer console somewhere in the op-room but at the end of the day one highly educated professor performed my OP via the old school, manualy way. I was laying in the operating room from 6:40am till 5pm. The reaction of my girlfriend was exactly the same as yours. She saw me on the intensive care station with all the tubes, cables, catheters and shit and startet crying. My operation was a bit more complicated because the professor not only removed the tumorous parts of my stomach and oesophagus with all the surrounding lympf nodes, he also removed a visually suspect (in size only, not in shape) lymph node between my heart and the left lung and also all surrounding lympf nodes for safety while my right lung was collapsed and out of order to offer more ‚working space’ for all the medical instruments inside of my chest. Well, after 3 days on intensive care i changed to normal care station and recover without any problems. Today is just the wound drainage left, which is hanging out of my back. I also don’t need pain medication anymore. The only little problem i have at the moment is the diarrhea from the sweet semolina porridge. Hope they change my food to something different asap. So for now i am happy that i survived the operation and looking forward for the results of the ‚mystical lympf node‘ histology. Feel free to add me on facebook: facebook.com/christian.nitzsche
this is the best video Ive watched so far Thank you for that... Im a photographer and I am getting my stomach removed Dec 15th. when like in your case would I expect to get back to work or how long after your surgery were you able to get on your feet and do what needs done day by day Thank you again.
I AM POSTING THIS IN CAPS BECAUSE I WANT PEOPLE WITH THIS PROBLEM TO BE AWARE OF THIS: I KNEW AN ADJUSTABLE BASE (aka POWER OR MOVEABLE BASE) WOULD BE THE ANSWER. I WAS A PROFESSIONAL SO I KNOW WHAT I AM TALKING AVOUT. YOU DON’T HAVE TO DEAL WITH BOTH ENDS COMING UP AT THE SAME TIME. THERE ARE PLENTY OF BASES THAT ADJUST HEAD-TOE SEPERATELY. I SLEEP ON ONE EVERY NIGHT. MINE HAPPENS TO BE A LEGGETT & PLATT WHICH I HAVE HAD FOR YEARS. I RETIRED 6 YEARS AGO BUT I DOUBT THE INDUSTRY HAS CHANGED THAT MUCH. BOTTOM LINE: GET A BASE WHOSE HEAD AND TOE FUNCTIONS WORK SEPARATELY!
Hey there Terry... I'm not sure if you remember me or not but we talked a little more than a year ago shortly after I had my surgery. I'm so glad to see and hear that you're doing great that's so awesome. Adapting is kind of funny isn't it I mean as far as the sleeping situations.... I ended up learning the hard way jumping on a trampoline is a no no lol
Hi Bambi! Sorry its taken me so long to reply to you. I was really glad to hear from you... sounds like to are getting thru it ok. What is your biggest issue you are dealing with? Mine is sleeping and not choking to death in my sleep.
@@Esophagectomy greeting Terry ... Yeah having to sleep in a "lazyboy" position has been pretty hard getting used to...pillows piled under your head and then the problem of sliding off them through the night..i have to put a few under my legs to "anchor" myself into a position. So my husband and I have quite the pillow collection now. I'm still on tubefeeds because of motility malabsorption issues.. Gastroparesis sucks! Been hospitalized a number of times due to dehydration/ Hepatomegaly ( enlarged liver) and malnutrition ... I suffer chronic pancreatitis..and bloat symptoms but other than that things are great😄👍... Holidays and family events are still kind of hard because of the inability to eat situation but I'm learning to get through it little by little I'm glad as hell to still be here after everything that's happened. Stay well my friend I'm so glad that you didn't have horrible complications and that you're thriving well today❤
Where does the food go without a stomach and esophagus? Could you explain that? Does the food you eat go straight into your intestines without the esophagus and stomach? I’m so sorry that you went through that tragic experience? Wishing you the best of luck for a long happy prosperous life !! GOD BLESS YOU . I live with a chronic incurable intestinal illness called Crohn’s Disease so i’m no stranger to intestinal illnesses . Diagnosed when i was 17 in 1993. Have undergone several intestinal surgeries and have been living with a permanent ileostomy when i was 18 i’ve learned to live with my condition. Thank you so much for sharing your story !!! Do you have problems absorbing food ? and is malnutrition a problem for you?
Thanks for sharing your experience I’m about to find out next week, what they are about to do, hopefully chemotherapy first, one question did you have chemotherapy before they decided to remove your stomach. 👍👏👏
Hi Lenny, No I did not have Chemo, the type of cancer I had would not have responded well to it, so there was no use. I was in stage two of the cancer. I wish you luck and a speedy recovery.
@@griffinsheba1963 I have a feeling I’m the same as they did say it had spread outside the stomach, all the best and enjoy a happy new year! It was still good to watch your video Well done for sharing,and thank you ! 👍
Thank you so much for the update. I had surgery a month ago and I’m longing for a full plate of food. One question I have, how long did it take before you can swallow without everything feeling stuck? Did you have any scar tissue around the neck area?
Wow this post said it was from 3 years ago, sorry for missing it. I hope you are doing ok. I stopped having trouble swallowing right after surgery. its weird how a small spot of cancer in your throat can keep you from swallowing ....but it did.
Thank you for your videos. I had my surgery 3 weeks ago and it’s been rough. Had to go back because the doctor didn’t take care of the chest tube site infection I had before I left the hospital the first time so that’s been a set back. My stomach is still really bloated and cramps near my rib cage quite a bit. Did you experience that as well? I guess I can’t say my stomach but my gut area. This whole ordeal has been really rough.
Hi Tania, So sorry you had to go thru all this. it really seams everyone goes thru this procedure a bit differently. I was very lucky and did not have any bloating or any infections. One of my biggest pains was spasms in my back/spine during recovery. Just try and remember that things should get better and going thru all this is much better that letting the cancer itself. I wish you a speedy recovery. Please keep me post on how you are doing. You can reach me directly at carriganterryatgmaildotcom
I enjoyed and really appreciate your video! Is it ok to ask where you had your surgery and who did it, since you felt it was the best place and you've had a good outcome?
I had my surgery in Washington State medical center with Dr. Oslager.... I don't think thats the correct spelling. He is a specialist in this procedure and have nothing but good things to say about him.
There are 22 feet of small intestine. Why is eliminating the stomach the go to procedure? Question I have got to get an answer to before this surgery. Thank you for helping the community by sharing your story.
So, my cancer was in my esophagus just on the other side of the valve that keeps the food down. they went in and tried to remove the cancer three times, they could not remove any more without damaging the walls of my throat. so they needed to replace that section of my esophagus, the only way right now to do that is to use your stomach, they pull it out, cut it up and sew it into a tube, they then remove the bad section of your throat and replace it with this stomach tube. hope that makes some kind of sense.
@@Esophagectomy I understand exactly what you mean and the information I have on this is very limited. That’s why I’m exploring now trying to gather information because I know that they have been doing this operation using a portion of the small intestine for over 10 years and it seems like the results are much better because you get to keep your stomach. I’ll get more information when I speak with my thoracic surgeon on the 30th and I’m planning on posting a video about it. my tumor is also at the bottom of my esophagus in the junction. It’s not as large as yours was, but the data that I have now shows that our surgeries will be similar in the removal of the esophagus. using the small intestine is a type of skin grafting form of plastic surgery so maybe that plays into why they don’t do it as often.
This is important. Since you don’t have a stomach, you may develop vitamin & mineral deficiencies. Stomach is the place where breakdown of protein happens and vitamin B12 binds with other elements. Long story short, absorption of vitamin B12 is affected. You should do test to measure levels of vitamins, especially vitamin B12. We get this vitamin from animal foods only (red meat & eggs). This vitamin is essential for our functioning. If your levels are low. You will have to take B12 supplements.
When you found out you had the cancer how long do you think had it prior to knowing? Did you have difficulty breathing and lots of burping? Also did they say the cause of why it happened. Thanks hope you're doing well bro
I had the same procedure. So far if I sleep elevated and on my right side or back I am ok. still trying to figure out how to stay up without sliding down.
Have substituted lactaid for milk? If so does it allow you to drink milk? Can you eat other dairy products like cottage cheeses, cheese, cream cheese, etc? Thank you
For me, the one think that bothered me is milk and ice cream. a little bit wont bother me, but a bowl of cereal and ice cream will turn my stomach (dumping Syndrome). Yea anything that says its good for lactose intorerant people does help.
@@skywaterhaven hi skywater how is your life going without stomach my sergion is going to remove my stomach in coming month my age is 23 yr plz let me share your experince
Hi Terry, your blogs are fantastic for those going through the Same or similar. I’m 3.5 months post TG due to oesophageal cancer. My one question for you is how long did it take you to be able to eat enough orally ( without a feeding tube) and still maintain your weight?
Hi there! It took me about 4 long weeks to get off that feeding tube. I hated that thing. Good news is I can eat like a regular person now. but have to be careful, not to eat too much or anything too sweet or heavy. Two pieces of chocolate is my limit. I wish you a speedy recovery!
My dad has oesophagus cancer liver and bone mets plus a brain tumour! It’s a tumor on his spine aswel ! He been going doctors for 7 months they said it’s siatic and he went to hospital last Thursday and they found all the cancers
Esophagectomy- My Journey so you have beating cancer that is fucking amazing man I didn’t even no you could beat oesophagus cancer tbh my dad passed away 2 days ago
I have removed my stomach 2 years ago I just feel almost all the time stomach sick I start drinking 2-3 times a day baking Soda water that have help me very much
I, too, had this done. Esophagectomy January 2020. I still have problems at times swallowing. But, I am alive, for they gave me a year to live if I didn't have the surgery. I have lost over 60 pounds and gave up smoking cigarettes. I have been given a second chance to live from my lord and savior, in Jesus's name, AMEN!
No not yet. I do still have problems swallowing at times. depends on the food I'm trying to eat or my old bad habits of stuff my face with food.@@abhishekroy8646
Beer no problem, wine no problem, but heavy drinks like whiskey, bourbon or other similar and more then a shot class can take you down if you're not careful. I don't mean drunk, I mean bent over in pain not able to function for a couple hours.
@@griffinsheba1963 Thank you for your reply ! I had surgery (total stomach removal) on September 8th. How long after surgery did you wait before having a beer or so? (I read that carbonated drunks are worse than vodka for example… Though I am happy to hear you do drink beer.).
I am 34 years old and was diagnosed with stage 4 stomach cancer. Do not qualify for the surgery thank goodness. No more treatment for me. 12 rounds of chemo is more than enough.
Having the surgery in May 2021 love the frank and facts you gave, would like to talk and get an update after 4 yr, slewey@colbert.k12.al.us email me please
Watched the whole series tonight. This has given me hope for someone. Thanks for sharing this.
Glad to hear it!
It was gracious of you to make and post this video. I wish you well. Hope medical technology in this area improves.
Hello there mister.
I don't think you are aware how inspiring and comforting your videos are. Thank you for sharing your journey. Im happy you are alive and well and i hope you will be alive and well for long time to come. Definitely make an update video every now and then maybe 2 or 3 times a year
Glad you're doing well. I might have to get my stomach removed after my treatment ends! Glad we can survive without.
I have Barrett’s a Soffa Gille pre-cancer but I’m having a lot of problems now and polyps removed. I have to sleep at a 45° angle. I feel like I’m in a recliner all the time they removed nine polyps out of the bottom of my stomach. Everyone was pre-cancerous. I can’t keep food in. I understand what you’re going through and I know eventually I’ll be going through the same thing.
Thanks for helping me understand how lm gonna be feeling soon. I wish I could talk to you more
i underwent total gastrectomy in december (of 2022). i was diagnosed with stomach adenocarcinoma. surgeons also removed my spleen, gallbladder, small part of pancreas, and about 40 lymph nodes…. i am currently going through chemotherapy and hopefully will be cancer free. i am 39 years old, non smoker, don’t drink, eat healthy (i do indulge in junk food occasionally), no family history in similar health conditions, and yet i’ve got it (the cancer)…
stay healthy everyone 🤞💛
Wow! Thats a lot to go thru, but at 39, hopefully this will be a small blip on your life. Wishing you a full recovery
How r u now
Hi, I am from India, 36/M
Diagnosed with stomach cancer, because of Gastric Outlet Obstruction my doctor advised surgery before Chemotherapy.
Now I recovering from the surgery after that I'll take session for chemo.
Love you God bless you
I just got diagnosed with esophageal cancer. I'm sure I will need this surgery and your video has helped me immensely. It has given me more courage to forge ahead. Especially the part where you talk about physical activity. For me that is important because my job depends on my voice and physical activity.Thank you so much for this video!!!
How are you doing? I’m waiting for my pathology back but on the preliminary it show strong positively for K19 on the esophageal biopsy which is usually not a good thing… the waiting is killing me
@@bobbirice4420 I hope you have caught it early on and your body adapts to the esophagectomy well. If you have to go through chemotherapy and radiation treatment, I hope you get it early after your surgery and go on to live a long healthy life. I didn't get so lucky. Where I live I was diagnosed within a week. I didn't have to wait. I had many complications after surgery. The weird thing about esophageal cancer is that everyone is affected a bit differently. I wish you the best and I will keep you in my prayers. Good luck!
@@simaaiwen thank you so much for replying and I’m sending you hugs with good vibes and prayers as well. Unfortunately, I’m still waiting for the final report as it was sent for a second opinion to USC in Los Angeles, but I’m praying it comes back somehow negative if not as you said in an early stage.
@@bobbirice4420 hello bobbi how are you? I hope the results came out negative?
My Dad just got diagnosed with esophagus cancer i am devastated and scared he is 74 and he only can have the surgery 😢 💔
You are such an inspiration and you covered this issue so well ! I have a friend who had this same operation and we have been so worried about him but you certainly helped calm those fears ! Thanks for this video !
I've had same procedure. Get all same issues. These videos are very informative.
Hi Terry
I’m going thru the same thing now. You easy going personality and your presentation made this enjoyable to watch. Best one I’ve seen with choc full of the information I needed to hear,,, your the man...
I'm so glad you did an update. My husband was diagnosed 3 weeks ago, met with the radiation Dr. today. His tumor is the size of a pear but has not spread (thank God), he's only 45. Not looking forward to what is ahead for our family. Glad to see you looking well!
Hey Jami, the good news is he's 45 and even though life is going to change a bit for him, he will still be able to enjoy it. I'm wishing the best for him and your family, please update me when you can.
Jami Lizak hi how is your husband going? My husband was diagnosed yesterday and it hasn’t spread also. He’s 47.. I’m trying so hard to be positive
@@leebeex8 my husband also was disganosed with this. he is 37 non smoker and doesnt drink. He is doing FLOT chemo without radiation before and after surgery. what does treatment look like for your husband?
@@natimarivelez Hi Natasha, my husband did radiation & carbo/taxol then surgery the more chemo oxyliplatin/5fu. He unfortunately lost his battle in March 💔
@@leebeex8 I AM so sorry to hear this. My mom passed in April from breast cancer and now my husband is going through this. I am just hoping he gets through and it seems like the doctors are so confident he will be able to fight it. He is also doing the 5fu..flot but no chemo. I am so sorry to pry but did your husband do treatments before and after surgery? did it come back after all of that? or was the chemo/radiation just not successful? I am sorry for your loss. Again I am sorry for your loss!
Hi , I'm Jeanett and I was diagnosed with stomach cancer in September of 2022 . I went through 4 rounds of chemo and Imunno therapy. I had a complete stomach removal January 18th I'm still on a feeding tube and struggling to eat by mouth. I'm also struggling with the emotional aspects of the entire cancer and the eating issues. I'm 75, and my passion was cooking and eating gourmet foods. I guess I'm afraid I'll never be able to eat my favorite foods again. I really appreciate your video and you sharing your story . Thank you
Hey Jay, sounds like you really got your ass kicked. It will take about a year to be able to eat everything you ate before. Hang in there, you will just have to eat smaller quantities.
I have been asking for patients who have been in remission from Esophagectomy, but have not gotten any help. Your videos have been an answered prayer.
Thank you for posting about your journey, iam facing total gastrectomy because of cancer. This is very helpful.
Thanks for this video. It helps us understand what our five-year-old son is going through after total gastrectomy.
Hi it is very useful For me as my husband got esophagectomy surgery 2 months back i am from india.he is entire life style of eating had been changed he is finding difficult but no other way.your videos is very clear and also useful for others. Pls keep on post your videos
This is great to hear. I have stomach cancer and not sure this is an option for me but will definitely find out. Hope you continue to do good.
What a good information and message of hope for those who are going through the same problems you had. How are you doing today! Hope we hear that you are doing well according to the situation.
Thank u so much for the information. My esophagus was removed about a year ago and I’ve had a lot of problems eating afterward because I ended up with gastroparesis. Now I have a feeding tube going straight to my small intestine due to the amount of weight I lost and so I can get the nutrients I need. If I keep loosing weight they may have to remove my stomach. Watching you look so healthy after everything you have gone through gives me some hope. So once again thank u so much
Can you let us know how you are doing my son has esophageal he is 32. And may need the esophagectomy
Thank you so much for this update. 33 years old with stage 2 esophageal cancer- Going to have the esophagectomy soon..
Gerry Khoo
How are you doing?
Hi Gerry, I'm still alive. issues keeping me from asphyxiating while I sleep. I sleep on my stomach and it has been tough. I'll post a video soon on what my bed is like know. How are you doing ? did you do the surgery?
Esophagectomy- My Journey
I hope he’s doing well. Glad you’re doing well also.
Terry man are you still alright? Are you doing good?;
Thank you for sharing. I just had my surgery and I am miserable. Glad to see things can get better, gives me hope.
pixotee2007
i just wanted to know lol 😏you’re be fine
Hey Pixotee, Sorry for the long delay in getting back to you. how are you doing now? Life for me is back to normal, with the exception of slowing down on my food and sweets intake, taking a break right after eating, and sleeping on an incline. Other than that I feel like a normal person. I see you posted this 2 Months ago? How are you now?
I had my surgery about 8 1/2 months ago. I have an adjustable bed I sleep on. Really helps with food coming back up. I really appreciate you making this video. It really helps people. No one called to check on me after the first week home from the hospital. I use fiber also. I also have to stay away from milk. I don't even like the taste for it now. They took 1/3 of my stomach and 2/3 of my esophagus. I have some stomach left but not much. God bless you for making these videos.
I’m so sorry that you went through such a traumatic ordeal and I’m so happy to see that you’re doing so well now sir and that you’ve continued to live a normal life afterwards. Having a positive attitude makes all the difference in the world and either you can just give up and feel sorry for yourself or like you carry on with your life. I’m so proud to hear of your accomplishments and you’ll have my full support. I’m surprised to learn that you’re capable of eating normally just as you did before. Are you not on any kind of TPN therapy or other feeding tubes and how are you able to swallow without a stomach? Oh and what about taking meds? At least you don’t have to worry about feeling nauseous or vomiting either. I appreciate you being brave enough to share your story with everyone as to give people, hope that they too can live a normal life. I live with a chronic incurable intestinal illness called Crohns Disease and have underwent numerous major abdominal surgeries so I know how it feels to go under the knife my friend. Do you have a strong family support and that too goes a long way for sure. I have been living with an ileostomy since I was 18 years old. I have underwent many intestinal surgeries since then because of the Crohns and I have no large intestine,so I potty that way and I Have no rectum nor gallbladder and am missing two feet of my terminal ileum. I too live a perfectly normal life in every way . That surgery saved my life otherwise I wouldn’t have survived because of the severity of my symptoms. That’s why I’m alive today to tell my story. My heart goes out to you sir and again,thank you for sharing your story. There are times I flare up with the Crohns and have to be hospitalized. Your story has given me so much hope that just because you have a Crohnic illness doesn’t mean that you can’t live normally. Well wishing you all the best fora happy healthy life and hope and pray you continue to do so well and I’d really love to be friends with you sir so my name’s Carla Head and if you’d send me an FB friend request that’d be wonderful. I apologize for making such a lengthy comment,but I have a tendency to get long winded. Oh how long since you underwent your stomach removal surgery and how long were you hospitalized after? When you swallow,how does the food reach your intestines without an esophagus to help guide it into the stomach and into the small bowel ? Do you have problems with malnourishment? Well take care and be well and GOD BLESS!!! Many thumbs up on your video !! 🙂🙂🙂🙂🙂❤️❤️❤️❤️❤️❤️🙏🙏🙏🙏🙏🙏🙏🙏👍👍👍👍👍👍👍👍👍👍
i have the cdh1 gene mutation and i most likely will get my stomach removed to prevent stomach cancer from developing. this video has helped me a lot. and trust me, the bathroom situation was my biggest question that no one else has seemed to touch on on other videos ive watched. i hope you're doing well. thanks.
Thank you for being so positive
Good to see you are doing well. I had my surgery done 4 weeks ago and recovery at home is going okay. I still have a j- tube for my overnight liquid feeding to supplement my regular oral feeding until i am able to meet my caloric requirement by mouth. Still getting used to eating more frequently but smaller amounts...i miss food
Having mine in a couple months. How's your diet now?
Me too.
@@dustinnorton7968 Good luck!
Glad to see your doing well on your recovery Miguel! You have gone thru the worst part.
Thanks For The Heads Up Im About To Deal With This Situation.
Thank you for sharing this video , its very informative and inspiring for those who have the same health issue.
Do you have cancer of esophagus. I’d love to hear what you are going through. So my son can make a good decision.
Thank you for telling us what doctors don't, and the amazing advice you learned through trial and error. The work on the house is brilliant, what an indomitable spirit you have. Can't keep a good man down! Like everyone else, though, would appreciate some reassurance that you're okay.
Hi Olivia, Thank you and yes I'm still doing good. I will make an updated video here soon that discusses some of my challenges,
@@Esophagectomy Best news I've heard all week on both counts. I appreciate it 😊
Described my current situation to a T! Great video and very informative!
Thank you very much for the video update and all the information. Its nice to see that you can laugh again after all that. My operation is in a few days and thinking about it scares the hell out of me. Hope they don‘t screw me up and can get rid of the cancer. I wish you all the best and a happy new year 2019.
Christian? How ya holding up?
@SkyWater Haven, thank you for asking. I had my 10 hour oesophagus operation last friday. Planed was to perform my operation with the DaVinci operation robot, where the operator controlling the robot arms via a 3D stereoscopic computer console somewhere in the op-room but at the end of the day one highly educated professor performed my OP via the old school, manualy way. I was laying in the operating room from 6:40am till 5pm. The reaction of my girlfriend was exactly the same as yours. She saw me on the intensive care station with all the tubes, cables, catheters and shit and startet crying. My operation was a bit more complicated because the professor not only removed the tumorous parts of my stomach and oesophagus with all the surrounding lympf nodes, he also removed a visually suspect (in size only, not in shape) lymph node between my heart and the left lung and also all surrounding lympf nodes for safety while my right lung was collapsed and out of order to offer more ‚working space’ for all the medical instruments inside of my chest. Well, after 3 days on intensive care i changed to normal care station and recover without any problems. Today is just the wound drainage left, which is hanging out of my back. I also don’t need pain medication anymore. The only little problem i have at the moment is the diarrhea from the sweet semolina porridge. Hope they change my food to something different asap. So for now i am happy that i survived the operation and looking forward for the results of the ‚mystical lympf node‘ histology. Feel free to add me on facebook: facebook.com/christian.nitzsche
Good job sir..
God bless you ❤️🙏
Thank you for doing this video. God bless you abundantly.
this is the best video Ive watched so far Thank you for that... Im a photographer and I am getting my stomach removed Dec 15th. when like in your case would I expect to get back to work or how long after your surgery were you able to get on your feet and do what needs done day by day
Thank you again.
Than you for this information 🏴🇬🇧
25 years old, just been told I need this surgery urgently and I’m very worried. Any tips? Videos helped a lot but I’m still very worried
I deal with the exact same symptoms even though I still have my stomach. I think I have defuse gastric cancer. dealt with it for years.
I AM POSTING THIS IN CAPS BECAUSE I WANT PEOPLE WITH THIS PROBLEM TO BE AWARE OF THIS:
I KNEW AN ADJUSTABLE BASE (aka POWER OR MOVEABLE BASE) WOULD BE THE ANSWER. I WAS A PROFESSIONAL SO I KNOW WHAT I AM TALKING AVOUT. YOU DON’T HAVE TO DEAL WITH BOTH ENDS COMING UP AT THE SAME TIME.
THERE ARE PLENTY OF BASES THAT ADJUST HEAD-TOE SEPERATELY. I SLEEP ON ONE EVERY NIGHT. MINE HAPPENS TO BE A LEGGETT & PLATT WHICH I HAVE HAD FOR YEARS. I RETIRED 6 YEARS AGO BUT I DOUBT THE INDUSTRY HAS CHANGED THAT MUCH.
BOTTOM LINE: GET A BASE WHOSE HEAD AND TOE FUNCTIONS WORK SEPARATELY!
I had an esphodectomy as well, not cancer but complications from a surgery, are you doing the zoom meetings I know I’m late to the game
Hey there Terry... I'm not sure if you remember me or not but we talked a little more than a year ago shortly after I had my surgery. I'm so glad to see and hear that you're doing great that's so awesome. Adapting is kind of funny isn't it I mean as far as the sleeping situations.... I ended up learning the hard way jumping on a trampoline is a no no lol
Hi Bambi! Sorry its taken me so long to reply to you. I was really glad to hear from you... sounds like to are getting thru it ok. What is your biggest issue you are dealing with? Mine is sleeping and not choking to death in my sleep.
@@Esophagectomy greeting Terry ... Yeah having to sleep in a "lazyboy" position has been pretty hard getting used to...pillows piled under your head and then the problem of sliding off them through the night..i have to put a few under my legs to "anchor" myself into a position. So my husband and I have quite the pillow collection now. I'm still on tubefeeds because of motility malabsorption issues.. Gastroparesis sucks! Been hospitalized a number of times due to dehydration/ Hepatomegaly ( enlarged liver) and malnutrition ... I suffer chronic pancreatitis..and bloat symptoms but other than that things are great😄👍... Holidays and family events are still kind of hard because of the inability to eat situation but I'm learning to get through it little by little I'm glad as hell to still be here after everything that's happened. Stay well my friend I'm so glad that you didn't have horrible complications and that you're thriving well today❤
Hi is there a way we can chat. My son has to go through this and I want to know how you are. My son has esophagus cancer stage two like Terry
Where does the food go without a stomach and esophagus? Could you explain that? Does the food you eat go straight into your intestines without the esophagus and stomach? I’m so sorry that you went through that tragic experience? Wishing you the best of luck for a long happy prosperous life !! GOD BLESS YOU . I live with a chronic incurable intestinal illness called Crohn’s Disease so i’m no stranger to intestinal illnesses . Diagnosed when i was 17 in 1993. Have undergone several intestinal surgeries and have been living with a permanent ileostomy when i was 18 i’ve learned to live with my condition. Thank you so much for sharing your story !!! Do you have problems absorbing food ? and is malnutrition a problem for you?
They remove my daddy stomach I was worried thank for the message
Good help me lot to decide rather I go for surgery or not take care brother
Thanks for sharing your experience I’m about to find out next week, what they are about to do, hopefully chemotherapy first, one question did you have chemotherapy before they decided to remove your stomach. 👍👏👏
Hi Lenny, No I did not have Chemo, the type of cancer I had would not have responded well to it, so there was no use. I was in stage two of the cancer. I wish you luck and a speedy recovery.
@@griffinsheba1963 I have a feeling I’m the same as they did say it had spread outside the stomach, all the best and enjoy a happy new year!
It was still good to watch your video
Well done for sharing,and thank you ! 👍
My doctors suggested not to eat dairy products because they have lactose. There are several free lactose in the market you can eat with no problems
Thank you so much for the update. I had surgery a month ago and I’m longing for a full plate of food. One question I have, how long did it take before you can swallow without everything feeling stuck? Did you have any scar tissue around the neck area?
Wow this post said it was from 3 years ago, sorry for missing it. I hope you are doing ok. I stopped having trouble swallowing right after surgery. its weird how a small spot of cancer in your throat can keep you from swallowing ....but it did.
Can you do a video on what your symptoms were you having that sent you to the doctor in the beginning?
Thank you for your videos. I had my surgery 3 weeks ago and it’s been rough. Had to go back because the doctor didn’t take care of the chest tube site infection I had before I left the hospital the first time so that’s been a set back. My stomach is still really bloated and cramps near my rib cage quite a bit. Did you experience that as well? I guess I can’t say my stomach but my gut area. This whole ordeal has been really rough.
Hi Tania, So sorry you had to go thru all this. it really seams everyone goes thru this procedure a bit differently. I was very lucky and did not have any bloating or any infections. One of my biggest pains was spasms in my back/spine during recovery. Just try and remember that things should get better and going thru all this is much better that letting the cancer itself. I wish you a speedy recovery. Please keep me post on how you are doing. You can reach me directly at carriganterryatgmaildotcom
I enjoyed and really appreciate your video! Is it ok to ask where you had your surgery and who did it, since you felt it was the best place and you've had a good outcome?
I had my surgery in Washington State medical center with Dr. Oslager.... I don't think thats the correct spelling. He is a specialist in this procedure and have nothing but good things to say about him.
@@Esophagectomy , Thank you so much. Best to you!
Hi is there any way you could call us. We live in New York and my son Craig has esophageal cancer stage 2. He is 32.
My father is living without a stomach....can you tell me what are the food regulations he have to maintain?
Are you alive i m also going to do surgery so thanks for this video
There are 22 feet of small intestine. Why is eliminating the stomach the go to procedure? Question I have got to get an answer to before this surgery. Thank you for helping the community by sharing your story.
So, my cancer was in my esophagus just on the other side of the valve that keeps the food down. they went in and tried to remove the cancer three times, they could not remove any more without damaging the walls of my throat. so they needed to replace that section of my esophagus, the only way right now to do that is to use your stomach, they pull it out, cut it up and sew it into a tube, they then remove the bad section of your throat and replace it with this stomach tube. hope that makes some kind of sense.
@@Esophagectomy I understand exactly what you mean and the information I have on this is very limited. That’s why I’m exploring now trying to gather information because I know that they have been doing this operation using a portion of the small intestine for over 10 years and it seems like the results are much better because you get to keep your stomach. I’ll get more information when I speak with my thoracic surgeon on the 30th and I’m planning on posting a video about it. my tumor is also at the bottom of my esophagus in the junction. It’s not as large as yours was, but the data that I have now shows that our surgeries will be similar in the removal of the esophagus. using the small intestine is a type of skin grafting form of plastic surgery so maybe that plays into why they don’t do it as often.
I am really curious. Can you eat steak ?
How much of it, in one sitting and how long after surgery ?
I have a question do you go to the bathroom bathroom alright or is it hard to come out just asking because I’m having some trouble as well
This is important. Since you don’t have a stomach, you may develop vitamin & mineral deficiencies. Stomach is the place where breakdown of protein happens and vitamin B12 binds with other elements. Long story short, absorption of vitamin B12 is affected. You should do test to measure levels of vitamins, especially vitamin B12. We get this vitamin from animal foods only (red meat & eggs). This vitamin is essential for our functioning. If your levels are low. You will have to take B12 supplements.
When you found out you had the cancer how long do you think had it prior to knowing? Did you have difficulty breathing and lots of burping? Also did they say the cause of why it happened. Thanks hope you're doing well bro
I had the same procedure. So far if I sleep elevated and on my right side or back I am ok. still trying to figure out how to stay up without sliding down.
Forgot to say...I love the view from your yard!
Have substituted lactaid for milk? If so does it allow you to drink milk? Can you eat other dairy products like cottage cheeses, cheese, cream cheese, etc? Thank you
For me, the one think that bothered me is milk and ice cream. a little bit wont bother me, but a bowl of cereal and ice cream will turn my stomach (dumping Syndrome). Yea anything that says its good for lactose intorerant people does help.
Had you gain or lose weight after esophagectomy?
Hi Terry, Are you technically " in remission" ? Are you still on meds or how does that work ? Thank you so much for your video and hope you are ok.
May i ask how much is TOO MUCH SUGARY FOOD?
Hi how long ago your stomach haved been removed and how are you now thanks
Thu Nguyen I’m now going on 17 months and doing good!
@@skywaterhaven hi skywater how is your life going without stomach my sergion is going to remove my stomach in coming month my age is 23 yr plz let me share your experince
Curious of how long you had your feeding tube?
I had the horrible feeding tube in for about 6 weeks Jami
2 week in our case
Saikat chakraborty sir plz tell me some tips because six months ago I had removed stomach
do you have any new updates? now in 2020? hope your well
Thank you man. I have a question, does medicine still works without a stomach??
No it doesn't medicine is thrown out from the body from through excretory system
Hello, it's good to see your actively doing things around the house! Good for you!
May I ask what stage cancer were you diagnosed with by the OG?
Hi Terry, your blogs are fantastic for those going through the Same or similar. I’m 3.5 months post TG due to oesophageal cancer. My one question for you is how long did it take you to be able to eat enough orally ( without a feeding tube) and still maintain your weight?
Hi there! It took me about 4 long weeks to get off that feeding tube. I hated that thing. Good news is I can eat like a regular person now. but have to be careful, not to eat too much or anything too sweet or heavy. Two pieces of chocolate is my limit. I wish you a speedy recovery!
My dad has oesophagus cancer liver and bone mets plus a brain tumour! It’s a tumor on his spine aswel ! He been going doctors for 7 months they said it’s siatic and he went to hospital last Thursday and they found all the cancers
He is stage 4 aswel and has 12 months to live at most but he’s really well right now does not look sick atall
So sorry to hear about your Dad Jamie. Life is strange sometimes. I wish you and your family the best. Stay strong and upbeat.
Esophagectomy- My Journey so you have beating cancer that is fucking amazing man I didn’t even no you could beat oesophagus cancer tbh my dad passed away 2 days ago
Esophagectomy- My Journey my dad always drank his cups of coffee boiling hot !! For years and years
I have removed my stomach 2 years ago I just feel almost all the time stomach sick I start drinking 2-3 times a day baking Soda water that have help me very much
Thanks im struggling
Is this similar to your experience?
Tips: put a hard pillow under, between your thigh and bottom. It will prevent you from sliding down
❤❤❤❤❤❤
Lumpy porridge is the best way I found to explain the 💩 form.
I, too, had this done. Esophagectomy January 2020.
I still have problems at times swallowing. But, I am alive, for they gave me a year to live if I didn't have the surgery.
I have lost over 60 pounds and gave up smoking cigarettes.
I have been given a second chance to live from my lord and savior, in Jesus's name, AMEN!
No not yet. I do still have problems swallowing at times. depends on the food I'm trying to eat or my old bad habits of stuff my face with food.@@abhishekroy8646
If they do not keep in contact with you, you need to change doctors
What about drinking alcohol ?
Beer no problem, wine no problem, but heavy drinks like whiskey, bourbon or other similar and more then a shot class can take you down if you're not careful. I don't mean drunk, I mean bent over in pain not able to function for a couple hours.
@@griffinsheba1963 Thank you for your reply ! I had surgery (total stomach removal) on September 8th. How long after surgery did you wait before having a beer or so?
(I read that carbonated drunks are worse than vodka for example… Though I am happy to hear you do drink beer.).
@@corradodeluca1320 I think I waited till about 3 Months
@@griffinsheba1963 I forgot to ask you an important (to me) question.
When you started eating, did it hurt swallowing etc ?
If so, how long for ?
I am 34 years old and was diagnosed with stage 4 stomach cancer. Do not qualify for the surgery thank goodness. No more treatment for me. 12 rounds of chemo is more than enough.
I am from india
All Might is like
Hi how are you in 2020
Having the surgery in May 2021 love the frank and facts you gave, would like to talk and get an update after 4 yr, slewey@colbert.k12.al.us email me please
I’m pretty sure that if you don’t have a stomach your body can’t break down food