I just want to make sure Katie’s story is fully detailed so here is some more information. In addition to megalencephaly and mutated protein, she also had a part of her frontal lobe removed in order to reduce frequent seizures. She also has a genetic disorder which doctors have not been able to pinpoint just yet, but they know there is an additional unknown condition. Thank you for always listening to these stories to learn more about the many diverse families in this world.
@@theexplodedguys264 : Mom said that she wants the exposure, she wants people to ask questions, she wants us to learn more about Katie. No more hiding. No more shame! Please be kind, loving and considerate to Katie, her mom, and the entire family.
These videos are so important, because naturally you’d be perplexed seeing someone with this condition, so it’s important to bring awareness, so there’s less negativity
@@celinapowell6687 Yes this is due to the fact she has too many responsibilities. This will negatively affect all of her children "depending on what her mother forces them to do" behind the cameras. My oldest had to go live with his father for the sake of my 5 younger children. This story is very different though. ☹️
@@SpiritsAndDemons you are making assumptions and that's not fair to this family. The sister could have just uncomfortable around a camera and crew. Could be she is somewhat shy or weary with strangers. My daughter was special needs and her cousins & brother matured at young ages. They all stayed with grandmother instead of daycare and they adored her. They learned that playing, communicating & interaction with her was different than with other kids. Also too, their maturity came about because of the rude remarks made by people when we went on outings. Not other children mind you but adults. They became very protective of her. It wasn't because of "what they were made to do" to help it was because they wanted to help.
We need more Chris's in this world. he's brilliant with everyone and normalises which is what matters most! As someone with disabilities I appreciate what he does( and Alyssa by his side)
I want to give this incredible mother the biggest hug. I’m so sorry you’ve faced so much insensitivity from others about your wonderful daughter but glad you can find joy with your wonderful kids. Your faith is definitely strong enough, so glad you know that Katie is not a punishment but a gift.
This channel is the kindest one on youtube. You make me cry, but for all the right reasons. I hope you all the luck in the world. Such wonderful people.
Truly wonderful people. You never know who someone is until you get to know them as a person. It may make you sad to see they have disorders and how they have to live life differently but they are truly amazing people!
A little girl who is taught to keep her true feelings to herself and do not say anything negative. She will soon if not already bare a lot of the burden in the care of her older sister. It will carry on through out her life. SHE ALSO needs TLC, direction and guidance, it will be hard on her in her teen years. We all have compassion but I hope she one day goes away to college.
When Katie’s wonderful Mum said she wished people understood her daughter had feelings that really got me. My younger sister has various mental and physical disabilities. When I was a kid and saw the bullying, mockery and hatred my sister endured from sadly not only other kids but adults. As humans we need to be kinder to our fellow travellers. I wish Katie and her family the very best. Thank you for getting the opportunity to meet Katie.
I really hope that future generations will be much kinder to each other and I really do think that current kids are less awful than when I was young. It's channels like Chris and a more progressive society that will hopefully result in less bullying in the future.
Wow I'm so sorry to hear this. It's appalling that any child or adult!?!? would consider being intentionally rude or unkind to a disabled child. I never did when I was young and of course I never would now. Some people are just rotten. It's sad. It's not anything you should have to be taught - it's natural. You see a disabled or a special Ed child and you understand they were simply born different! And you leave them alone, unless you want to talk to them in a friendly manner. I understand that as a child in the '80s. I don't remember anyone telling me either. Well I'm really sorry your sister had to deal with that and I'm thankful she has you as a sister!
If only every child had a mother like Katie’s mom, the world would be a much more beautiful place. From 7:29 - 8:46 listening to this mom talk about telling her child she is beautiful and smart, and how she will take care of her the best she can. I’m glad I met Katie through this video.
People who are overanalyzing the sister need to stop. I was a shy chubby kid with anxiety who got bullied and I probably would have come across the same way she did. Don’t make assumptions about their family dynamic making her act the way she does when this channel is literally meant to showcase the diversity of human beings- her being different than you think she should be does not mean there’s something wrong with her or her family life
Me too. I saw a sister who was just maybe a little bit embarrassed (I have a little sister with special needs, too, and I used to get embarrassed at times as well), but she still loves her sister. Most of the time, at least in my experience, they're not really even "different" in your eyes. They're just...your sibling.
When he sat by Katie I don't think she was feeling it at first lol. She's so full of personality!! Another angel sent to teach us a lesson. Sending lots of loveee to that SWEET baby ❤❤❤❤❤
@@icturner23 - I, too, know that is true, but this mother has found great solace in religion, clearly her choice, so to yank that from her would undermine her equilibrium. We must agree to disagree with her and not use this forum to foment an argument. There are plenty of religion-based channels on UA-cam and other socials where you can do that to your heart's content.
It’s so beautiful that this channel is about getting to personally know children who are often treated harshly by society. No one should be made to feel like they’re less-than because of how they’re born.
Mama is doing an amazing job raising Katie. I love mom's attitude and how her faith is keeping her strong for Katie. God bless you! And, I'm very pleased to meet you Katie!
@Jack Feldman - I am happy to see that Katie has an even greater support network of family to love her. Thanks for being a wonderful cousin. All my best virtual hugs and kisses to your whole family.
Thank you Jack for being an awesome cousin to your dear Katie. I'm sure it isn't easy for her not to get to play with you all and it is probably hard for all of you to see that for her but it sounds like you all have a great family. Keep helping out your auntie and being good to her....it's very difficult to be a parent and to be a parent, struggling financially, and having to hear all the mean things people say about your baby is very very difficult.🥰💗
My wife and I have fostered 9 special needs kids since 06'. There's lots of work involved caring for them, and opening up our home and lives to them. But before long we accepted them as part of our family. Each child is unique, and despite their disabilities, they are often smarter than people may think. Many are non-verbal but believe me, they can get their point across!! They are very intuitive, maybe even empathic. I get the feeling they can see spirits, or Angels who seem to keep watch over them?! It's been challenging fostering special needs children, but also our pleasure. We have learned a lot from them, mostly about ourselves.
As a social worker, I have so much respect for the medical foster parents. Thank you so much for taking those children into your home. May God bless you! 💗
There's nothing more beautiful than a parent who loves their child/ children unconditionally. Katie indeed is one of God's special rare flowers n her giggling has my soul smiling. Enjoyed this interview 🌻
While Katie's mom was talking, a few things she mentioned I was like "yep, she's a teenager!" As a mom of a teen I could so relate. I'd love to go shopping with you Katie!
At 10:00 minutes they're talking and her mom goes "she likes to splash me in the bathtub" Katie literally cracks up and signs that she's an angel. The mom is right, Katie understands a lot more that what people assume.
Mom: “She’s constantly splashing water in my face… while I’m trying to get her hair done.” Chris: “And she’s laughing.” Mom: “Yeah, cause it’s fun. She’s throwing water in mommy’s face, it’s fun.” Katie, cracking up, signs that she’s an angel. Beautiful.
After being absolutely obsessed with this channel for about 8 years, I've got a job with adults with learning disabilities and they all love me at the job because I treat everyone as a individual and never doubt them! I'm so grateful sbsk came up on my feed all those years ago
You know, some people have been trained to ignore the disabled individuals around them- and they think that’s being polite. But it’s not polite, it’s isolating, rude, and further allows ignorance of disabilities to exist. I dearly hope future generations will be more inclusive!
People are trained to ignore individuals, period. Disabled person it's just even more visible, but the real reason is that they think these type of person can't give them anything back. So it's the same with people who have anxiety, shyness and so on. Globally, we need to make a society that cares more about its people than what they provide to them. This is the problem that causes wonderful people like that to be lonely, poor and often times (unfortunately) depressed.
I'm glad SBSK exists to tear down those boundaries. I grew up thinking people didn't want to be stared at, plus I'm shy, so the solution is to ignore everyone. Especially people who look odd. One time I was walking my dog in a tourist area and saw a young disabled woman looking at him. I only had time to look her in the eye and say "Hi there!". Her whole face lit up like a sunrise. It was both heartwarming but also a little sad that such a small gesture would affect her that deeply. I would love to see a day when people saying "Hi!" to people with disabilities and differences in public would be normal.
We believe everyone is no higher than an animal, so no one deserves respect unless they do something. Until we start teaching kids that we are made in God's image and are made for God's glory, nothing will change.
@Carley - Also, the child speaks so unclearly. I hope it's due to camera nerves. However, if not, perhaps she should have a speech evaluation, just to be safe?
Quality of life is what matters. If Katie isn't in pain and overall enjoys life, that's what's important. From an outsider perspective, it looks like an uncomfortable condition. It looks incredibly uncomfortable, but if her doctor doesn't think it's causing problems, then props to the family
Katie's good people. You can feel the energy coming off of her. She has a personal mission here on earth, like everyone has theirs, and boy is she fulfilling it!
@3g0st this is so well put! I have come to believe that being authentic and finding peace in our honesty and truth is our "mission" because it is exactly what we are here to be and to communicate. And when I observe someone who presents limited to no inhibitions I am inspired and drawn in. There is something to learn from those of us who may not feel the weight of a mission but who without effort live with weightless souls and lead us all into a space of love. The energy I dream of curating in my own life. ❤ no matter the societal "set backs" the soul sings. We don't all expect the same performance from other humans. Sometimes there are people who appreciate the beauty in the "mission" of another traveler here on this plane. 🤗
@@clement9782 Nowhere did I state that her mission is to inspire others with her struggles in life. I don't know her mission, yoú don't know her mission. Stop knocking other people's comments and read thoroughly for a change.
I have to admit Katie is shocking to look at at first. I could never say anything cruel about another person. This is teaching me to say hi if I see someone with a disability.
I appreciate your honesty. I could seen that it's probably hard on Katie's younger sister when they go out in public. When my daughter was a little girl, she used to run screaming when she saw, for instance, a child with cerebral palsy in a wheelchair. If she had seen this poor little girl, I'm sure she would have freaked. It's hard but people have to teach their kids that we're all children of God, some perfect and some not so perfect. ❤️
I respectfully disagree with both of you. I don't think "some people are perfect and some not so perfect". I believe that everyone is perfect, because we're all made exactly the way we're supposed to be. Things happen for a reason that we cannot always understand. Some people are total pieces of crap and others are wonderful kind caring people. So if you are talking about personalities, then yes, there's all kinds. But as far as appearances and abilities, I believe we're all a certain way for a reason.
@@Heather_Morgan The Bible doesn't teach that we are perfect, which is why I said that no child of God is perfect. I won't tell you that you're wrong in your logic as you don't seem to base it on the Bible. But also, as a disabled person with serious health issues I do personally reject the idea you put forth. I wasn't born in a sick body because I'm perfect the way I am. Having my sickness/disability is objectively not good, and it's part of why I don't believe I'm perfect-- and that's okay! My favorite people are flawed, both physically and otherwise.
Out of all of the interviews you've done Chris, this one hit me. Everyone deserves love and Katie has has the most loving family. Keep spreading your positivity and calmness, our world needs people like you.
I love this channel, but it also makes me cry, but brings a lot of awareness to the world. I worked with Special Need children for 34 yrs and it was a joy . Loved it
Oh my goodness, the look that Katie gave Chris when you first sat with her was so funny! She gave you a look like she just wasn’t so sure about you, but she decided you were ok after a while. That was a teenage move too.
My son was born with hydrocephalus, due to a sub arachnoid cyst in the central ventric system in his brain. He has epilepsy, and then contracted ventriculitis and streptococcus in his brain due to a case of malpractice, at only 2 months old. He is doing well now ❤ but at age 2 was also diagnosed with nonverbal autism. And he is the most loved little boy in the world. Nothing is more pure than the love of a special needs child ❤ he is 7 years old now . And is so very loved.
@@IlaughedIcried kind of reminds me of my church friend's daughter Sherie that passed away 5 years ago. she was nonverbal but you could always tell she was happy cause she was always smiling and vocalizing
The mother is like a fierce lioness. Katie is very blessed to have such a caring and compassionate mom who will defend this precious child of God against this cruel world.
I'm so glad to see that Katie has a caring and supportive family. Its obvious in her overall health & happiness. Great Job to her mom for providing the environment for Katie to thrive in! Thanks for sharing Katie's story with SBSK. Wishing you continued success & happiness.
Im studying to be a special ed teacher and I love watching these videos so much. I really love how you connect with all the kids no matter what their abilities are. I hope one day I will be as good with kids as you are :)
When I see videos like this I realize how blessed I am for my daughter to only have hearing loss, she could have something much worse. I wish I could be as half as strong as this girls mom is
I can't watch these interviews without crying but I'm particularly touched by this amazing mother. She's a gem of gems and I'm greatly inspired by her. I pray that God blesses her richly for her sound wisdom and for the care and love she has for her precious Katie. All the best to this special family ❤
What a great mother. The challenge for us is to be kind, loving. Differences bring out our humanity. This is a special child. I believe there is a very special place in heaven for this little girl.
When Katie brushed her mum aside when she stroked her hair, I just thought this amazing girl knows how to convey just how she feels and so many ways she's saying things without words...who needs words? Katie must bring so much joy to many people ❤️
What an awesome mom!! I love when she said "God created Katie as a rare, rare flower and she's mine!" Misquoted, but thank you for introducing them to the world! My daughter shushes her kids when they ask questions...I think most people would be happy to chat it up!
This man is amazing. He ALWAYS tries to say a nice comment everytime he meets people. He’s so heart warming and he’s so patient around people with disabilities like this 💞 Even though I can’t tell it, I know that he makes everyone’s day just by smiling normally and trying. 🥰 and I hope this man is never forgotten!
Please never stop doing these videos. They bring me so much joy, and are immensely thought-provoking. I’m so glad you give us the opportunity to listen to their stories and hear about their conditions, it is truely invaluable information! Thank you❤️
The one on one full attention and compassion that Chris shows every single person he interviews is so rare and inspiring. I love that he never talks down to them or baby talks regardless of their condition!
And Chris tries to maximize every interaction by asking questions. He doesn't judge, either, but allows everyone their feelings and beliefs. He's an exceptional man.
Thank you, Chris. My embryos have been tested with abnormality, I still hope and pray I will not have a disabled child, but I know that if I do, I can go through it with love, grace and strength like this woman and the mother and sis. The mother is so strong.
I don't mean any harm, but why isn't adoption an option? Why bring a child that will highly likely be disabled and have a compromised quality of life to this world, when there are a lot of children in need of parents?
Society fears what it considers odd-looking or generally peculiar. I have an ASD and yet I admit even I'm guilty of recoiling upon seeing people like Katie. But those people all deserve a face and a voice. That's why I love and respect this channel. You seek to give all the world's Katies both those blessings, and you feature them in a very honest but tactful manner. Thank you.
I can’t believe the younger sister is only ten! She seems so wise and well worded! I would have thought her a teenager. They are both blessed to grow up in what looks like such a loving household!
I think when you grow up with a sibling who needs extra care and consideration, and are exposed to the way society can misunderstand and mistreat that sibling, and feel responsibility and desire to want to protect and care for that sibling even more as a result, you can't help but grow mature ahead of your time. As someone else mentioned, I just hope that she hasn't missed out on a childhood of her own too, as no kid should miss out on their carefree years before the responsibility of adulthood drags you down.
@@bendover-bz4bcwe don’t know how old is she and why but if you imply her age was a reason for the disorder, it may or may not be. Her younger daughter is perfectly normal and as you can guess she was born even later in life
You could definitely see her trying to figure out what your motives were by sitting with her, she seems like she just wanted to be alone for a bit like any 14 year old would 😭 Thank you to Katie and her mom for sharing this story and having a conversation with the world.
Just wanted to send a “Hello!” to Katie and her Mom and Sister. I enjoyed meeting her, and to see her ways of expressing and communicating. So sweet!!! Love that she picks out her clothes, too! I wish Katie and her family much love and all good things! ❤️
Katie's Mom nailed it! Katie is a blessing and God did pick a special flower to teach us. I loved the look Katie's gave her Mom when you started making music with your hands and making noise along with.... Mom, do you see this?! LOVE THIS VIDEO
Bless Chris for allowing parents of special children to have a platform to express themselves, tell their stories and see how amazing their children are. Katie is an angel sweetheart with a wonderful mother and sister! They’re all lucky to have each other.
Katie is beautiful. She is important. She matters. She is special. Katie is here for a reason. I am sending her and her family love hugs peace comfort balance and sunshine and more hugs.
I just want to hug Katie, her sister and her mama. And tell them all 'You got this' !! Your strength and love shed much needed light in this ever darkening world. 💯♥️ God bless you all. 🙏🫶♥️🇦🇽
I can relate to the mom a lot. My brother has a severe disability called CdLS, and his behavior is very similar to this girl. Some people say some really horrible things about him, and it hurts a lot, especially when people don’t live in the same scenario. I hope that the sister is doing well. She seemed a little burnt out. I hope the family gets all the support they need with her. It would be awesome if Chris could do a video about CdLS! It’s as rare as ALS but there is little to no awareness about it
What a brilliant and honest mum. I also love the attitude that she welcomes questions because it increases understanding and that example that maybe one day a little curious child may grow to be a doctor
Thanks for bringing the daily joy or daily struggle of those beautiful persons and their family to us. You are doing really something very special. You de-alienate the way people see those people and their personalities.Sometimes, more different to what we know and are accustomed to.
Katie is indeed a beautiful little girl ❤️ You can tell she has an amazing mummy who will protect her and make her feel loved in this life which is exactly why God choose her 💝 Lots of love from Ireland 🇮🇪🥰
I’ve always taught my kids to treat EVERYONE the way they want people to treat them know matter what !! I believe it all starts with the parents !! Please teach your children to be kind and respectful know matter how someone sounds or looks like !!
Wow, This mom is incredible and so is Katie! I just love and honor her perspective. When she said “God could heal Katie but he chooses not to” I thought to myself “It’s because she is already perfect!” Humans have trouble seeing past the exterior, but Katie is an angel here for a purpose obviously, since she told us over and over through out the interview
I love that you can tell Katie understood when her mother said "When she's happy it makes me happy", because Katie immediately started giggling and vocalizing to tell her mom that she was happy. She deeply cares about her mother and she wants her mother to be happy just as her mother wants her to be happy. It's very sweet to see.
I realize Katie doesn’t have Autism, but the clapping when excited is exactly what my son who has Autism does when he’s excited. I think there are a lot of overlapping medical diagnoses with a lot of conditions. Thank you for sharing Katie’s amazing story, her mom is really so special. I pray Katie is around for many many years.
Way to go mama! Keeping her loved and taken care of, so much love. I hope sister finds her people, some supportive, non judgemental, fun loving friends. People will be ignorant but no excuse for mean, hope videos like this help the ignorance. Many blessings to your family💗
It must be so difficult for her sister dealing with the ignorance that surrounds her…always know that there are people who aren’t ignorant too. Katie is appreciated…
More difficult would be just being ignored because your parents don't have time for you because of her sisters severe medical needs. The healthy girl seems unsecure and sad.
@@cynthiadavid5282 God is so great to give Kathie this blessing of a disease! It will sure teach here something that probably only god knows! He works in mysterious ways after all! Praise the lord for megalencephaly!
I love that you as a family don't worry or fret about negativity of others. I raise my son to know that everyone is an individual person not made to be anything alike. Give your sweet girl hug from our family including our 3 bunnies.
I learn so much about patience and compassion and humanity from this channel. Thank you to Katie & Family for sharing your one of a kind story. May you be blessed!
I just want to make sure Katie’s story is fully detailed so here is some more information. In addition to megalencephaly and mutated protein, she also had a part of her frontal lobe removed in order to reduce frequent seizures. She also has a genetic disorder which doctors have not been able to pinpoint just yet, but they know there is an additional unknown condition. Thank you for always listening to these stories to learn more about the many diverse families in this world.
❤Well Said Thanks for the health Insights& Kind Approaches Of Awareness & Special loving Knowledgeable Stories,Prayers for Families &Individuals 💕🌿🌺
Precious child. She reminds me of my disabled daughter. I would like to meet Katie someday. Blessings to her, and her family.
Well make sure you are accepting their privacy by adding this comment
@@theexplodedguys264 I’m sure Chris is aware of that and has precautions put in place.
@@theexplodedguys264 : Mom said that she wants the exposure, she wants people to ask questions, she wants us to learn more about Katie. No more hiding. No more shame! Please be kind, loving and considerate to Katie, her mom, and the entire family.
These videos are so important, because naturally you’d be perplexed seeing someone with this condition, so it’s important to bring awareness, so there’s less negativity
Well said 👏🏼
True ey.
@JCB - Perhaps you can contact him through those social links in the description area.
@@Casualbystander you're cute. I subscribed to your channel😏
The amount of accuracy in this comment is actually legendary.
I see a lot of solemn responsibility in that little sisters eyes, I hope she gets time to be a kid too
Love this❤️
I'm sure she does, I bet when the mother is looking after Katie, that the sister might get a few hours to herself. I dunno, just a guess.
Yeah she's just 10 years old, but seems much more mature
@@celinapowell6687 Yes this is due to the fact she has too many responsibilities. This will negatively affect all of her children "depending on what her mother forces them to do" behind the cameras. My oldest had to go live with his father for the sake of my 5 younger children. This story is very different though. ☹️
@@SpiritsAndDemons you are making assumptions and that's not fair to this family. The sister could have just uncomfortable around a camera and crew. Could be she is somewhat shy or weary with strangers. My daughter was special needs and her cousins & brother matured at young ages. They all stayed with grandmother instead of daycare and they adored her. They learned that playing, communicating & interaction with her was different than with other kids. Also too, their maturity came about because of the rude remarks made by people when we went on outings. Not other children mind you but adults. They became very protective of her. It wasn't because of "what they were made to do" to help it was because they wanted to help.
I can tell that sister defends Katie a lot more than we probably realize. Also mom is such an inspiration! Katie is a strong little girl.
shes really a teenager
I noticed this too. I grew up in a home with a sibling with severe disabilities, and it wasn’t a happy childhood. I saw me in her.
She's a strong little teenage girl.
Yess
@@kalielik SHE IS 10 YEARS OF AGE.
This mother is the definition of unconditional mother love 💕
Какое горе ! Господи !! Почему и за что ..... 😥
She is a beautiful little girl. Forget what you think is normal!
Honestly this guy should be declared a saint after he dies, The patience and care he puts in to every conversation is very heartwarming
Amen to that.
He’s so incredibly beautiful
We need more Chris's in this world. he's brilliant with everyone and normalises which is what matters most! As someone with disabilities I appreciate what he does( and Alyssa by his side)
He is, in my serious and honest opinion, a reincarnated boddhisattva. ❤️👍🤝
@@siegfriedo that’s a really nice compliment to him
I want to give this incredible mother the biggest hug. I’m so sorry you’ve faced so much insensitivity from others about your wonderful daughter but glad you can find joy with your wonderful kids. Your faith is definitely strong enough, so glad you know that Katie is not a punishment but a gift.
Amen to that!!!!🧡🧡🧡
(((🤗)))
@@linak7155 hello 👋🏻
So true! Amen!
Well said!!!!!!
This channel is the kindest one on youtube. You make me cry, but for all the right reasons. I hope you all the luck in the world. Such wonderful people.
This and soft white underbelly are top
So true!!!
Truly wonderful people. You never know who someone is until you get to know them as a person. It may make you sad to see they have disorders and how they have to live life differently but they are truly amazing people!
@@TheM165 Agreed!
You are an amazing soul…thank you for helping all of us the way you do ❤
Geez some people are just evil. I can't imagine somebody saying such an awful thing. This is a really heartbreaking case.
Sis seems so solemn for a little girl. This can’t be easy on her. She’s fantastic ❤
These experiences will make her more compassionate as she gets older.
she isnt a little girl. she's a teenager
@@KrystalHarwood-z1bshes 10
A little girl who is taught to keep her true feelings to herself and do not say anything negative. She will soon if not already bare a lot of the burden in the care of her older sister. It will carry on through out her life. SHE ALSO needs TLC, direction and guidance, it will be hard on her in her teen years. We all have compassion but I hope she one day goes away to college.
When Katie’s wonderful Mum said she wished people understood her daughter had feelings that really got me. My younger sister has various mental and physical disabilities. When I was a kid and saw the bullying, mockery and hatred my sister endured from sadly not only other kids but adults. As humans we need to be kinder to our fellow travellers. I wish Katie and her family the very best. Thank you for getting the opportunity to meet Katie.
I saw that with my late younger brother, too. 🙏🙏❤️
I really hope that future generations will be much kinder to each other and I really do think that current kids are less awful than when I was young. It's channels like Chris and a more progressive society that will hopefully result in less bullying in the future.
Wow I'm so sorry to hear this. It's appalling that any child or adult!?!? would consider being intentionally rude or unkind to a disabled child. I never did when I was young and of course I never would now.
Some people are just rotten. It's sad. It's not anything you should have to be taught - it's natural. You see a disabled or a special Ed child and you understand they were simply born different! And you leave them alone, unless you want to talk to them in a friendly manner. I understand that as a child in the '80s. I don't remember anyone telling me either.
Well I'm really sorry your sister had to deal with that and I'm thankful she has you as a sister!
Katie's mom sure does have a loving and kind heart. God bless everyone in that family. They are all very lucky to have one another.
Katie's mother had some really beautiful things to say about her faith. That's some amazing wisdom.
If only every child had a mother like Katie’s mom, the world would be a much more beautiful place. From 7:29 - 8:46 listening to this mom talk about telling her child she is beautiful and smart, and how she will take care of her the best she can. I’m glad I met Katie through this video.
People who are overanalyzing the sister need to stop. I was a shy chubby kid with anxiety who got bullied and I probably would have come across the same way she did. Don’t make assumptions about their family dynamic making her act the way she does when this channel is literally meant to showcase the diversity of human beings- her being different than you think she should be does not mean there’s something wrong with her or her family life
She seems very mature. Her mother did something right ❤
Yeah! SHE’s only Ten! You try being young and being asked about things you’re not sure how to articulate. She’s a kid! At least she spoke
She reacts completely normal for her age. It’s not always easy to reply to these kinds of questions
Me too. I saw a sister who was just maybe a little bit embarrassed (I have a little sister with special needs, too, and I used to get embarrassed at times as well), but she still loves her sister. Most of the time, at least in my experience, they're not really even "different" in your eyes. They're just...your sibling.
“not every day you can see someone new” is so true, gonna keep that one in mind myself! love that this channel gives us all the chance to do that ❤️
Yeah, that was genuinely a pretty deep thing of her to say. I liked that line a lot too!
Same here that one stuck with me
Funny how so much of society wants to just look the same! What a waste of our unique differences
When he sat by Katie I don't think she was feeling it at first lol. She's so full of personality!! Another angel sent to teach us a lesson. Sending lots of loveee to that SWEET baby ❤❤❤❤❤
Haha she was definitely giving him the side eye. “Who’s this interloper?”
@@caerathornton RIGHT 😂😂😂. Like.... NO sir .. Stranger danger LOL ❤❤❤
Not used to such a loving reaction from a stranger or she thinks he is mighty cute, which he is.
@@caerathornton definitely! That was the vibe I got - weighing Chris up til she figured he was a good guy and she had found a new friend 😊💕
@@icturner23 - I, too, know that is true, but this mother has found great solace in religion, clearly her choice, so to yank that from her would undermine her equilibrium. We must agree to disagree with her and not use this forum to foment an argument. There are plenty of religion-based channels on UA-cam and other socials where you can do that to your heart's content.
Katie's mother is a truly strong and loving woman. Salt of the earth.
Her momma said it all, when she said " I like to think she is one of Gods special Flowers." I loved that. Unconditional love! Love this mom!
Bruhh
Yes! That is comment that grabbed me the most. "God's special flowers"...tears all over that. And, Amen! 🙂
....God's special flowers get rare brain diseases? What a crap god.
It’s so beautiful that this channel is about getting to personally know children who are often treated harshly by society. No one should be made to feel like they’re less-than because of how they’re born.
Absolutely agree.❤
“Katie is worth knowing” Seems like a simple comment but such a beautiful and powerful statement. Took me in for a minute.
What does “took me in” mean?
@@rosejr2614 nothing.
Mama is doing an amazing job raising Katie. I love mom's attitude and how her faith is keeping her strong for Katie. God bless you!
And, I'm very pleased to meet you Katie!
Amen
May the Lord truly bless this mother and children. I will be praying for them.
Thank you for doing this for my cousin Katie she is very friendly and loves everyone like Emma and my aunt Angie is saying we absolutely adore her ❤️
@Jack Feldman - I am happy to see that Katie has an even greater support network of family to love her. Thanks for being a wonderful cousin. All my best virtual hugs and kisses to your whole family.
They are a wonderful gift to us all and so are you.
Thank you Jack for being an awesome cousin to your dear Katie. I'm sure it isn't easy for her not to get to play with you all and it is probably hard for all of you to see that for her but it sounds like you all have a great family. Keep helping out your auntie and being good to her....it's very difficult to be a parent and to be a parent, struggling financially, and having to hear all the mean things people say about your baby is very very difficult.🥰💗
Sending all my love to you, your wonderful cousin Katie, and your family ❤️
Thank you for sharing Katie's story. She's precious, sweet & very loving. Blessings to katie & the whole family!@♥️💜💛💙
My wife and I have fostered 9 special needs kids since 06'. There's lots of work involved caring for them, and opening up our home and lives to them. But before long we accepted them as part of our family. Each child is unique, and despite their disabilities, they are often smarter than people may think. Many are non-verbal but believe me, they can get their point across!! They are very intuitive, maybe even empathic. I get the feeling they can see spirits, or Angels who seem to keep watch over them?! It's been challenging fostering special needs children, but also our pleasure. We have learned a lot from them, mostly about ourselves.
As a social worker, I have so much respect for the medical foster parents. Thank you so much for taking those children into your home. May God bless you! 💗
There's nothing more beautiful than a parent who loves their child/ children unconditionally. Katie indeed is one of God's special rare flowers n her giggling has my soul smiling. Enjoyed this interview 🌻
People saying horrible things to a mother about her child is so awful. Wishing all the best to this family 💜
my parents went through that too, i have HYDRO cephalus and they told mom i would never have a full quality of life. yet here i am at 39 still kickin
While Katie's mom was talking, a few things she mentioned I was like "yep, she's a teenager!" As a mom of a teen I could so relate. I'd love to go shopping with you Katie!
I am so Thankful for this channel, it has taught me so many new ways of communication and to respect all people unconditionally
At 10:00 minutes they're talking and her mom goes "she likes to splash me in the bathtub" Katie literally cracks up and signs that she's an angel. The mom is right, Katie understands a lot more that what people assume.
Katie is sarcastic too and that’s the best part!
Mom: “She’s constantly splashing water in my face… while I’m trying to get her hair done.”
Chris: “And she’s laughing.”
Mom: “Yeah, cause it’s fun. She’s throwing water in mommy’s face, it’s fun.”
Katie, cracking up, signs that she’s an angel.
Beautiful.
Для чего показывать таких. У на и моральных уродов полро,а тут еще эти.
Сумасшедший дом 🏡
Which is all these people you talking about? Or you just assume there is people who are assuming?
After being absolutely obsessed with this channel for about 8 years, I've got a job with adults with learning disabilities and they all love me at the job because I treat everyone as a individual and never doubt them! I'm so grateful sbsk came up on my feed all those years ago
Chris has to be one of the nicest guys in the world. The dedication, time, and patience with everyone he meets is so rare.
- "What's the most important thing for others to know about Katie?"
- "That she's loved..."
💖
You know, some people have been trained to ignore the disabled individuals around them- and they think that’s being polite. But it’s not polite, it’s isolating, rude, and further allows ignorance of disabilities to exist. I dearly hope future generations will be more inclusive!
People are trained to ignore individuals, period. Disabled person it's just even more visible, but the real reason is that they think these type of person can't give them anything back. So it's the same with people who have anxiety, shyness and so on.
Globally, we need to make a society that cares more about its people than what they provide to them. This is the problem that causes wonderful people like that to be lonely, poor and often times (unfortunately) depressed.
@@winterbeast6326 absolutely!
I'm glad SBSK exists to tear down those boundaries. I grew up thinking people didn't want to be stared at, plus I'm shy, so the solution is to ignore everyone. Especially people who look odd.
One time I was walking my dog in a tourist area and saw a young disabled woman looking at him. I only had time to look her in the eye and say "Hi there!". Her whole face lit up like a sunrise. It was both heartwarming but also a little sad that such a small gesture would affect her that deeply. I would love to see a day when people saying "Hi!" to people with disabilities and differences in public would be normal.
We believe everyone is no higher than an animal, so no one deserves respect unless they do something. Until we start teaching kids that we are made in God's image and are made for God's glory, nothing will change.
I hope the sister gets just as good treatment. She looks like she needs a day out with mom alone.
That’s what happens. The well child tends to get the last of everything. It’s not easy for the siblings. They oftentimes feel forgotten.
Agree. She looks sad.
@Carley - Also, the child speaks so unclearly. I hope it's due to camera nerves. However, if not, perhaps she should have a speech evaluation, just to be safe?
@@MossyMozart I don’t think there’s anything wrong with how she talks, she just kind of has a quiet tone. I’m not sure what you think seems wrong
@Tiny Princess Yeah. So she definitely isn't getting the attention she deserves.
Quality of life is what matters. If Katie isn't in pain and overall enjoys life, that's what's important. From an outsider perspective, it looks like an uncomfortable condition. It looks incredibly uncomfortable, but if her doctor doesn't think it's causing problems, then props to the family
That's what I was thinking. She doesn't seem comfortable poor thing
If her doctors did think it was causing problems though what would they do? I think that if they could do something they would.
I really hope the sister is okay too, Katie and the mom aside she probably doesnt have an easy life either, wishing the best to everyone
Katie's good people. You can feel the energy coming off of her. She has a personal mission here on earth, like everyone has theirs, and boy is she fulfilling it!
Yes! Her light is super bright, man! 💛
@3g0st this is so well put! I have come to believe that being authentic and finding peace in our honesty and truth is our "mission" because it is exactly what we are here to be and to communicate. And when I observe someone who presents limited to no inhibitions I am inspired and drawn in. There is something to learn from those of us who may not feel the weight of a mission but who without effort live with weightless souls and lead us all into a space of love. The energy I dream of curating in my own life. ❤ no matter the societal "set backs" the soul sings. We don't all expect the same performance from other humans. Sometimes there are people who appreciate the beauty in the "mission" of another traveler here on this plane. 🤗
@@clement9782 Nowhere did I state that her mission is to inspire others with her struggles in life. I don't know her mission, yoú don't know her mission. Stop knocking other people's comments and read thoroughly for a change.
@@clement9782 Selective reading.
I have to admit Katie is shocking to look at at first. I could never say anything cruel about another person. This is teaching me to say hi if I see someone with a disability.
I appreciate your honesty. I could seen that it's probably hard on Katie's younger sister when they go out in public. When my daughter was a little girl, she used to run screaming when she saw, for instance, a child with cerebral palsy in a wheelchair. If she had seen this poor little girl, I'm sure she would have freaked. It's hard but people have to teach their kids that we're all children of God, some perfect and some not so perfect. ❤️
No child of God is perfect.
I respectfully disagree with both of you. I don't think "some people are perfect and some not so perfect". I believe that everyone is perfect, because we're all made exactly the way we're supposed to be. Things happen for a reason that we cannot always understand.
Some people are total pieces of crap and others are wonderful kind caring people. So if you are talking about personalities, then yes, there's all kinds. But as far as appearances and abilities, I believe we're all a certain way for a reason.
@@Heather_Morgan The Bible doesn't teach that we are perfect, which is why I said that no child of God is perfect. I won't tell you that you're wrong in your logic as you don't seem to base it on the Bible.
But also, as a disabled person with serious health issues I do personally reject the idea you put forth. I wasn't born in a sick body because I'm perfect the way I am. Having my sickness/disability is objectively not good, and it's part of why I don't believe I'm perfect-- and that's okay! My favorite people are flawed, both physically and otherwise.
@@courtr1588 that's your religion not ours
Out of all of the interviews you've done Chris, this one hit me. Everyone deserves love and Katie has has the most loving family. Keep spreading your positivity and calmness, our world needs people like you.
I love this channel, but it also makes me cry, but brings a lot of awareness to the world. I worked with Special Need children for 34 yrs and it was a joy . Loved it
GOD BLESS THIS LITTLE GIRL. and her family, as i'm sure they are, to me she is beautiful. And one of God's children, love the family support !!!
Oh my goodness, the look that Katie gave Chris when you first sat with her was so funny! She gave you a look like she just wasn’t so sure about you, but she decided you were ok after a while. That was a teenage move too.
Noticed that also!
Forreal that part was hilarious🤣 side eyin' him
I thought that was funny too. She was so spunky by her sister then she froze and clammed up by Chris.
i know she is 14 but i wonder if other people think shes younger cause she carries toys and dresses like a child
@@krystalharwood6359 I mean 14 is a child
My son was born with hydrocephalus, due to a sub arachnoid cyst in the central ventric system in his brain. He has epilepsy, and then contracted ventriculitis and streptococcus in his brain due to a case of malpractice, at only 2 months old. He is doing well now ❤ but at age 2 was also diagnosed with nonverbal autism. And he is the most loved little boy in the world. Nothing is more pure than the love of a special needs child ❤ he is 7 years old now . And is so very loved.
I'm so happy to hear that your son is doing well and feeling the love that every child deserves! Thanks for sharing! ♥️
i pray that your family is compensated for the malpractice that affected your son 💜
S2.
God bless you and your family especially your special son. 🙏❤️
I was born with hydrocaupulous and I have aspergers syndrome.
She has a great giggle. I dont know about everyone else. She sure made my heart smile
I thought so too! When she laughed, I couldn't help but laugh!!
@@IlaughedIcried kind of reminds me of my church friend's daughter Sherie that passed away 5 years ago. she was nonverbal but you could always tell she was happy cause she was always smiling and vocalizing
The mother is like a fierce lioness. Katie is very blessed to have such a caring and compassionate mom who will defend this precious child of God against this cruel world.
She so quiet with him , taking it all in , very sweet ❤
I'm so glad to see that Katie has a caring and supportive family. Its obvious in her overall health & happiness. Great Job to her mom for providing the environment for Katie to thrive in! Thanks for sharing Katie's story with SBSK. Wishing you continued success & happiness.
For a long time I've truly believed yours is one of the most important channels on UA-cam. Please never stop :)
Im studying to be a special ed teacher and I love watching these videos so much. I really love how you connect with all the kids no matter what their abilities are. I hope one day I will be as good with kids as you are :)
When I see videos like this I realize how blessed I am for my daughter to only have hearing loss, she could have something much worse. I wish I could be as half as strong as this girls mom is
I can't watch these interviews without crying but I'm particularly touched by this amazing mother. She's a gem of gems and I'm greatly inspired by her. I pray that God blesses her richly for her sound wisdom and for the care and love she has for her precious Katie. All the best to this special family ❤
Cool to see comments are back. Love this channel. This channel is the face of people who are just different but not in a bad way.
What a great mother for not giving up on her, GOD bless them!
What a great mother. The challenge for us is to be kind, loving. Differences bring out our humanity. This is a special child. I believe there is a very special place in heaven for this little girl.
I absolutely loves mom's rare flower analogy! Perfect!!!!
"Differences bring out our humanity."
What a beautiful sentiment, phrased so perfectly.
Amen!!🌻🌷🌹🌻⚘️🌼🌷🌺🌻
Thank you for showing us your beautiful family. Im so sorry about all the abuse you have recived. God bless all of you.
When Katie brushed her mum aside when she stroked her hair, I just thought this amazing girl knows how to convey just how she feels and so many ways she's saying things without words...who needs words? Katie must bring so much joy to many people ❤️
So nice to see Katie again. I remember seeing a video about her and her family a few years ago I believe now. Glad to see she’s happy and growing up
What an awesome mom!! I love when she said "God created Katie as a rare, rare flower and she's mine!" Misquoted, but thank you for introducing them to the world! My daughter shushes her kids when they ask questions...I think most people would be happy to chat it up!
This man is amazing. He ALWAYS tries to say a nice comment everytime he meets people. He’s so heart warming and he’s so patient around people with disabilities like this 💞 Even though I can’t tell it, I know that he makes everyone’s day just by smiling normally and trying. 🥰 and I hope this man is never forgotten!
How wonderful is this mum Katie is her child and has feelings and get hurt by what ignorant people say love to Katie ❤❤❤❤
Please never stop doing these videos. They bring me so much joy, and are immensely thought-provoking. I’m so glad you give us the opportunity to listen to their stories and hear about their conditions, it is truely invaluable information! Thank you❤️
The one on one full attention and compassion that Chris shows every single person he interviews is so rare and inspiring. I love that he never talks down to them or baby talks regardless of their condition!
And Chris tries to maximize every interaction by asking questions. He doesn't judge, either, but allows everyone their feelings and beliefs. He's an exceptional man.
Thank you, Chris. My embryos have been tested with abnormality, I still hope and pray I will not have a disabled child, but I know that if I do, I can go through it with love, grace and strength like this woman and the mother and sis. The mother is so strong.
Blessings to you. Please know you are loved & everything will work out for you & your beautiful child. ♥️💜💛💙🌈
I have 2 disabled children. I can tell you they are worth it and are amazing.
I don't mean any harm, but why isn't adoption an option? Why bring a child that will highly likely be disabled and have a compromised quality of life to this world, when there are a lot of children in need of parents?
@@teppopierune5520 that’s what I’m wondering. Why would you willingly have a child knowing you are highly likely going to cause them grief?
@@nopentireiii2147 Exactly
Thank you for sharing Katie’s story with the world. This story makes me more understanding, more passion, more loving person
Wow. The mother really impresses me! Awesome attitude❤
Katie IS a sweet little angel. Welcome to our huge group of friends, have a nice stay🥰
She's such a loving mother! God knew to trust her with Katie
Society fears what it considers odd-looking or generally peculiar. I have an ASD and yet I admit even I'm guilty of recoiling upon seeing people like Katie. But those people all deserve a face and a voice. That's why I love and respect this channel. You seek to give all the world's Katies both those blessings, and you feature them in a very honest but tactful manner. Thank you.
Its such a sad pathetic world. When people think looks is all there is.God bless you Katie!
I know, modern women stink :(
@@foxwithagun2540 you stink
I can’t believe the younger sister is only ten! She seems so wise and well worded! I would have thought her a teenager. They are both blessed to grow up in what looks like such a loving household!
I think when you grow up with a sibling who needs extra care and consideration, and are exposed to the way society can misunderstand and mistreat that sibling, and feel responsibility and desire to want to protect and care for that sibling even more as a result, you can't help but grow mature ahead of your time. As someone else mentioned, I just hope that she hasn't missed out on a childhood of her own too, as no kid should miss out on their carefree years before the responsibility of adulthood drags you down.
Why the mom is so old ? Why did she decided to get the child at such old age ?
@@bendover-bz4bcwe don’t know how old is she and why but if you imply her age was a reason for the disorder, it may or may not be. Her younger daughter is perfectly normal and as you can guess she was born even later in life
Indeed! Wise beyond her years. The Mom, younger Sister and Katie are truly unified by love and genuine human compassion. ❤️❤️❤️
@@bendover-bz4bccomo você consegue ser tão imensamente rude em um comentário tão pequeno?
You could definitely see her trying to figure out what your motives were by sitting with her, she seems like she just wanted to be alone for a bit like any 14 year old would 😭 Thank you to Katie and her mom for sharing this story and having a conversation with the world.
Just wanted to send a “Hello!” to Katie and her Mom and Sister. I enjoyed meeting her, and to see her ways of expressing and communicating. So sweet!!! Love that she picks out her clothes, too! I wish Katie and her family much love and all good things! ❤️
Katie's Mom nailed it! Katie is a blessing and God did pick a special flower to teach us. I loved the look Katie's gave her Mom when you started making music with your hands and making noise along with.... Mom, do you see this?! LOVE THIS VIDEO
Never stop doing what you do Chris. Just know that so many people appreciate and admire what you do, you're a living saint my guy!
She's so so precious ❤❤❤ God Loves His Little Children, All His Children❤❤❤. Thank You for sharing her story and bringing awareness to her disorder.
Bless Chris for allowing parents of special children to have a platform to express themselves, tell their stories and see how amazing their children are. Katie is an angel sweetheart with a wonderful mother and sister! They’re all lucky to have each other.
I love Katie's clothes honestly! She seems so sweet! Nice to meet you Katie!
Katie is beautiful. She is important. She matters. She is special. Katie is here for a reason. I am sending her and her family love hugs peace comfort balance and sunshine and more hugs.
This mama is a very special woman. This is what real love and value means to the human soul. Katie has a sweet spirit and is blessed to have her!
I just want to hug Katie, her sister and her mama. And tell them all 'You got this' !! Your strength and love shed much needed light in this ever darkening world. 💯♥️ God bless you all. 🙏🫶♥️🇦🇽
I can relate to the mom a lot. My brother has a severe disability called CdLS, and his behavior is very similar to this girl. Some people say some really horrible things about him, and it hurts a lot, especially when people don’t live in the same scenario. I hope that the sister is doing well. She seemed a little burnt out. I hope the family gets all the support they need with her. It would be awesome if Chris could do a video about CdLS! It’s as rare as ALS but there is little to no awareness about it
What a brilliant and honest mum. I also love the attitude that she welcomes questions because it increases understanding and that example that maybe one day a little curious child may grow to be a doctor
I loved when she said that. And she's 100% right.
When people chose be Dr, they are already adult, with undertanding.
Thanks for bringing the daily joy or daily struggle of those beautiful persons and their family to us. You are doing really something very special. You de-alienate the way people see those people and their personalities.Sometimes, more different to what we know and are accustomed to.
Thank you for sharing this. I would consider it an honour to be Katies friend. And Mom, you are the best!!!
This guy brings so much joy to these children. He is a great man doing such great things for these families.
Katie is indeed a beautiful little girl ❤️ You can tell she has an amazing mummy who will protect her and make her feel loved in this life which is exactly why God choose her 💝 Lots of love from Ireland 🇮🇪🥰
And just like that, Katie has now educated us all on megalencephaly (enlarged brain) and a mutated protein. Thank you sweet angel 😇
Thanks to Katie and her family for sharing their story and wisdom. It makes the world better informed and as a result a kind
I’ve always taught my kids to treat EVERYONE the way they want people to treat them know matter what !! I believe it all starts with the parents !! Please teach your children to be kind and respectful know matter how someone sounds or looks like !!
She seems like such a wonderful mother. The level of care and consideration on her part is phenomenal. Katie is in good hands for sure.
Thanks!
Wow, This mom is incredible and so is Katie! I just love and honor her perspective. When she said “God could heal Katie but he chooses not to” I thought to myself “It’s because she is already perfect!” Humans have trouble seeing past the exterior, but Katie is an angel here for a purpose obviously, since she told us over and over through out the interview
More like making an excuse. It's clearly an issue, can't pretend like it's not. God heals some but not others I guess.
I love that you can tell Katie understood when her mother said "When she's happy it makes me happy", because Katie immediately started giggling and vocalizing to tell her mom that she was happy. She deeply cares about her mother and she wants her mother to be happy just as her mother wants her to be happy. It's very sweet to see.
I realize Katie doesn’t have Autism, but the clapping when excited is exactly what my son who has Autism does when he’s excited. I think there are a lot of overlapping medical diagnoses with a lot of conditions. Thank you for sharing Katie’s amazing story, her mom is really so special. I pray Katie is around for many many years.
She could be imitating the clapping of severely autistic classmates in her special day class, maybe?
I think clapping is a universal way to verbalize for people who can't use their mouth and voice to communicate.
Way to go mama! Keeping her loved and taken care of, so much love. I hope sister finds her people, some supportive, non judgemental, fun loving friends. People will be ignorant but no excuse for mean, hope videos like this help the ignorance. Many blessings to your family💗
It must be so difficult for her sister dealing with the ignorance that surrounds her…always know that there are people who aren’t ignorant too. Katie is appreciated…
More difficult would be just being ignored because your parents don't have time for you because of her sisters severe medical needs. The healthy girl seems unsecure and sad.
Hello beautiful Katie! Wishing this family lots of happiness ❤
Yup
My prayers to the family and katie she deseeves the love and support she gods child
@@cynthiadavid5282 God is so great to give Kathie this blessing of a disease! It will sure teach here something that probably only god knows! He works in mysterious ways after all! Praise the lord for megalencephaly!
I love that you as a family don't worry or fret about negativity of others. I raise my son to know that everyone is an individual person not made to be anything alike. Give your sweet girl hug from our family including our 3 bunnies.
Your work is incredible Chris, thank you.
I respect you as a person Katie
I learn so much about patience and compassion and humanity from this channel. Thank you to Katie & Family for sharing your one of a kind story. May you be blessed!
Incredible Mother. Katie is so very lucky to have you as much as you are to have her.
Katie seems to be an awesome person
@@meganc2065 what's so funny?
What is funny?
@@miss_michelle I'm asking the person above who's saying lmao
@@danaelee2000 i know me too
@@miss_michelle ah alright 😅👍