If you want to learn about the disease I have it's called 'Dermatomyositis MDA5'. Thanks to me being young and healthy when I got it, I didn't suffer as much as others did. The mortality percentage is really high with this disease, and some people get really bad symptoms like not being able to eat, more painful muscle inflammation and worse skin damage. So I'm just grateful my case isn't as bad as with others.
Thank God you’re not suffering much as others do, you said, dear Alex. I like the way you’re not taking it so seriously… accepting everything about it, doing all what you can to help yourself. I admire your courage and positivity my boy. Please do trust all those aiding you. I firmly hope that helps will continue to pour so you can get all the medical treatments needed for your not very easy /rare sickness journey. I care dear, even if i just learn about you here. Yes, we will wait for BTS comeback this fast coming 2025. I can’t personally watch them but there are mediums/ platforms which will take care of it and would suffice. Ok, please continue taking good care of yourself, medicating as necessary and i wish all our prayers will be heard and make some miracle for you to get healed. Be happy despite your condition because many love you brave young boy, i do. ❤️❤️❤️ God loves you.
Alhamdulillah, slowly, slowly you will be okay,,do some little exercise on your lower limbs so that it will not stiff,you need really physical therapy,and do breathing exercises (spirometry)
You are truly a fighter! Just by hearing how mentally frustrated, stressful, and physically painful you are going through, you are so strong! How I wish all this suffering could be taken away. Hope you are well!
Your mom loves you so dearly, we love you too. It's okay to complain and be sad, if you ever need someone to talk to, we're always here to listen. If you need help financially, army is here for you.
I really admire your mentality Alex. You've gone through so much and the fact you are still fighting is really inspiring and motivating for many people who may be going through any other disease or is going through a hard time in their lives 💜 I truly hope the symptoms don't get worse in the future since you've seen progress with your lungs and hopefully all the recommendations you didn't know before help you now with your recovery. You are so strong! Also, I'm happy the government accepted you disability and is helping you!
Dear Alex, I'm so sorry that your journey is a painful one. You have a fighter's mental fortitude that will help you in this battle. Remember, this journey is a marathon. You have the courage to face this battle. Thank you for sharing your journey 💜
We BTS Army are with you 💜 😊 stay strong jackpot Army we have our prayers to see you on the road to your recovery you're just a purely Purple heart Army who is devoted to BTS members just lije all of us on the other side of the world keep smiling 😃 and stay strong please do take great care out there with our Purples Hearts Army who send their heart-warming love to you 💜
You are a strong man and a fighter. I am glad that you are getting some help with your meds. Thank you for keeping the updates going. I am sure we all want you as healthy as you can be! Keep going!
Hey Alex! The fact that your lungs have improved so much is amazing, good job on the exercises! The other symptoms you have sound so incredibly frustrating, but you can tackle them one thing at a time. The fact that the government only provides $70 a month just seems outrageous, what do they expect people to do? I know you had plans for other business ventures though, how are they going if you don’t mind my asking? Also pass on our love to your mum and family. Im sure this is tough on everyone, but know that that’s not on you. If I was her I’d be so proud to have you as my son, I’m sure she is. You’re doing so well 💜
Right now, I'm selling healthy chips in my sister's healthy food place. And I have 2 gumball machines in some small stores. I liked the coin business, so when I can work, I'll save up for better coin machines like arcade machines, claw machines, and stuff like that.
You're a literally an Army right now fighting this disease i hope they can give something to ease the pain just take one step at at time I'm sure you'll improve i can't imagine how you are optimistic about it and the bts concert is the motivation that's the spirit yow
I'm glad you can have this documented atleast it eases the stress and you can feel fine afterwards even a little bit.. I'm glad you're family has been supportive of you throughout this journey
Thank you for sharing with us, Alex. How fantastic that your lungs have improved, and you're getting govt. assistance with some of the costs. I'm sorry to hear about the painfulness of your condition. I think maybe the word you were looking for is acceptance. You have accepted your situation, and you're doing the best you can with it. I hope your sores will heal and your leg will improve. Your struggles remind me to be grateful for the health I have. I have had some minor problems lately, but they could be so much worse. May you find encouragement and joy in little things, and know you are loved. Borahae. 💜
My heart breaks for you. I suffer from severe eczema to the point of can't move because the skin just rips. So I hear you about the emotional toll. Thank goodness you have health care. I'm gonna go binge your videos now because you're awesome and deserve all the views. 💜💜💜💜💜💜💜✌️
Alex, I can't imagine what you have to endure. I am so sorry you have to fight this. I admire you so much. I admire your attitude. Sharing your struggles and frustration helps me deal with mine. If you want to cry and rage about the unfairness of it all, go for it. Just don't wallow too long. I'm glad your lungs have improved, and I'm happy to hear that the government is able to help you out, especially with the medicines. You are one hell of a fighter, Alex. Keep fighting! You have so many people in your corner, rooting and praying for you. 💜🫂
Alex, You are amazingly strong. I can't even begin to imagine how difficult it must be for you going through all that, and yet mentally your positivity remains. I pray that you continue to get better Alex. 🫂
Alex pls just focus on yourself,take medicines, be relaxed and u don't need to upload videos, we can do videos anytime but health needs to our first priority so just rest, eat good , meditate pls don't stress everything will be fine ❤️ I'm sry my eng is bad😅
Thanks for sharing such personal and painful experience of yours! You are truly admirable and your story will inspire a lot of peope regardless they are sick or not!
I just found your channel,bro. I hope things get better for you. I can't imagine what you're going through right now. But I pray all the best for you. You're a fighter bro. Stay strong.
Oh dear just makes me cry listening to you and wish I had a magic wand that could make you heal. Thank you for your strength and your articulate explanation of this annoying disease. I'm sure if BTS knew they would secretly help you ❤❤
Alex my heart breaks to hear you In pain. You are truly an inspiration of strength. Your positive attitude is to be admired. Prayers for healing so you are no longer in pain. His Bless you and praying that the healing begins. Sending love and Hugs Mijo! ❤
Alex, feeling annoyed and depressed is understandable in your situation. I also understand you don’t want to worry your family. If government provides the help or you have time and money for it, I suggest talking to psychologist. It will help a lot. If not, you can always talk to us or other people online. Everything will be alright! You are strong for battling all these things.
You are amazing alex! I’m so proud of how strong and a great fighter you are. I pray for your complete healing. Sending love for you and you family. 💜💜💜
We are praying for you! Borahae 💜💜💜💜🙏🙏🙏🙏! Thank you for updating us! You’re so courageous. Please God heal and protect you 🙏🙏! Thank you for the medicine and physical therapy he needs. Please keep your spirits up!! We are here for you!
I am so glad that, with your hard work exercising them, your lungs have improved. Excellent work, Alex. Be proud of what you have done. As you say, this disease is a killer, but you have fought back. You will get through this. Know that. Keep remembering that you will get to a place where this is all behind you, and you will treasure your life more than you ever have. Please know that there are fans of you out here like me who are cheering for you. Thank you for sharing this difficult journey with us. I know that it is difficult to do that. It takes a lot of energy. But it helps you-to know you are not alone, and it helps others-to stay compassionate, and to exercise their heart muscle. We purple you. We are with you all the way through.💜💜💜💜💜💜💜💜💜💜💜💜
Alex, you are so strong and I admire you for staying positive despite what you’re going through. I think you need to reach out to some people who are going through the same thing and perhaps counseling to help you talk about your situation. Sometimes a professional can help with processing with emotions and deal with difficult situation. However, It seems posting on YT provides some relief. I also appreciate the update. May the Lord touch you with His healing hands.
Thank you for giving us a update..i pray you feel better very soon.please try to stay positive..im so happy to hear the meds are free thank god!!..sending you love..hugs..and prayers ❤❤❤❤
I’m definitely in tears 😭 because of all your tough struggles daily for almost a year Alex,however you are right my dear keep it up God will be there,always remember that you are included in my prayers🙏 Mother’s love are no limits and no boundaries💜Fighting 💪Our 7 Bangtan Boys will be back soon my dear💜🙏Much Love and God Bless You Even More🍀
Are you ok ? Thank you for let me know I wish I had a magic wand with which I can call you up from your sick bed; but I don’t, so I pray for you everyday to get well soon
I'm doing alright, I just didn't know that the recovery phase was still going to be painful and annoying, I thought it was going to get easier since I started taking medicine.
Alex, we all love ya buddy. We want to let you know we the BTS army are standing with you and walking with you in every step of the way. Each day we are with you and always. 💜💕💜
Hi Alex Thank you so much for the update I’m really praying for your health to improve. You are a true fighter never stop don’t give up. We love you (BTS ARMY) and wish you all the best 🙂💜💜💜💜💜💜💜
Stay positive. It's hard with the pain and symptoms but you are doing so well. Each day give God thanks for life, that you have the medication you need, and with each passing day, I pray you will see progress and feel better.
This all sounds like your autoimmune system. Butterfly rash is a classic lupus symptom. Sounds like you could have more than one diagnosis. I am praying for you, the doctors caring for you, your parents and for your complete recovery. I pray your pain continues to ease and any side effects will be cured in Jesus name. Please stay encouraged and know this season will pass. Trust and Believe Alex. 💜✨
Dude, anytime you need to vent come on here, we will try to distract you! I’m wondering if any scaring from your previous neck surgeries are making themselves known in your throat because your disease is just making everything more tender. The mental part is rough. It sucks being sick and tired about being sick and tired. But like I said, even if you can’t do reactions, chat us up on the hard days, and we’ll try to put a smile on ya, okay? On a totally unrelated note: if a mermaid got bit by a vampire, do you think it would be able to turn into a bat or would it turn into some kind of sea creature? One of our trick-or-treater kids was half mermaid half vampire, and I’ve been fairly distracted by the logistics of that one ever since.
Thanks for the update Alex. Your such a handsome guy and strong to be going through this. Hope you get well soon. Take your time if you can't upload as much. We will be here waiting for you. Borahae 🫶💜
If you want to learn about the disease I have it's called 'Dermatomyositis MDA5'. Thanks to me being young and healthy when I got it, I didn't suffer as much as others did. The mortality percentage is really high with this disease, and some people get really bad symptoms like not being able to eat, more painful muscle inflammation and worse skin damage. So I'm just grateful my case isn't as bad as with others.
Hey Alex I have a muscle condition so I know about not being able to open water bottles take care of yourself
u will get well alex soonest..
Thank God you’re not suffering much as others do, you said, dear Alex. I like the way you’re not taking it so seriously… accepting everything about it, doing all what you can to help yourself. I admire your courage and positivity my boy. Please do trust all those aiding you. I firmly hope that helps will continue to pour so you can get all the medical treatments needed for your not very easy /rare sickness journey. I care dear, even if i just learn about you here. Yes, we will wait for BTS comeback this fast coming 2025. I can’t personally watch them but there are mediums/ platforms which will take care of it and would suffice. Ok, please continue taking good care of yourself, medicating as necessary and i wish all our prayers will be heard and make some miracle for you to get healed. Be happy despite your condition because many love you brave young boy, i do. ❤️❤️❤️ God loves you.
Alhamdulillah, slowly, slowly you will be okay,,do some little exercise on your lower limbs so that it will not stiff,you need really physical therapy,and do breathing exercises (spirometry)
You are truly a fighter! Just by hearing how mentally frustrated, stressful, and physically painful you are going through, you are so strong! How I wish all this suffering could be taken away. Hope you are well!
I'm waiting for the day you upload a video and say the symptoms are completely gone and you feel very good💜Stay strong and positive till that day
Your mom loves you so dearly, we love you too. It's okay to complain and be sad, if you ever need someone to talk to, we're always here to listen. If you need help financially, army is here for you.
Praying for your fast recovery Alex!!!
God this sounds AWFUL i'm so sorry. You're such a strong trooper. 💜
I really admire your mentality Alex. You've gone through so much and the fact you are still fighting is really inspiring and motivating for many people who may be going through any other disease or is going through a hard time in their lives 💜 I truly hope the symptoms don't get worse in the future since you've seen progress with your lungs and hopefully all the recommendations you didn't know before help you now with your recovery. You are so strong!
Also, I'm happy the government accepted you disability and is helping you!
That sounds so hard and you have such a good attitude. Keep fighting! So glad that your lungs are getting better! Thanks for keeping us updated.
Love and support ❤🙏
Praying for your full recovery Alex 🩷🌷💐🫂🙏
Dear Alex, I'm so sorry that your journey is a painful one. You have a fighter's mental fortitude that will help you in this battle. Remember, this journey is a marathon. You have the courage to face this battle. Thank you for sharing your journey 💜
We BTS Army are with you 💜 😊 stay strong jackpot Army we have our prayers to see you on the road to your recovery you're just a purely Purple heart Army who is devoted to BTS members just lije all of us on the other side of the world keep smiling 😃 and stay strong please do take great care out there with our Purples Hearts Army who send their heart-warming love to you 💜
You are a strong man and a fighter. I am glad that you are getting some help with your meds. Thank you for keeping the updates going. I am sure we all want you as healthy as you can be! Keep going!
Hey Alex! The fact that your lungs have improved so much is amazing, good job on the exercises! The other symptoms you have sound so incredibly frustrating, but you can tackle them one thing at a time.
The fact that the government only provides $70 a month just seems outrageous, what do they expect people to do? I know you had plans for other business ventures though, how are they going if you don’t mind my asking?
Also pass on our love to your mum and family. Im sure this is tough on everyone, but know that that’s not on you. If I was her I’d be so proud to have you as my son, I’m sure she is. You’re doing so well 💜
Right now, I'm selling healthy chips in my sister's healthy food place. And I have 2 gumball machines in some small stores. I liked the coin business, so when I can work, I'll save up for better coin machines like arcade machines, claw machines, and stuff like that.
You're a literally an Army right now fighting this disease i hope they can give something to ease the pain just take one step at at time I'm sure you'll improve i can't imagine how you are optimistic about it and the bts concert is the motivation that's the spirit yow
I'm glad you can have this documented atleast it eases the stress and you can feel fine afterwards even a little bit.. I'm glad you're family has been supportive of you throughout this journey
Thank you for sharing with us, Alex. How fantastic that your lungs have improved, and you're getting govt. assistance with some of the costs. I'm sorry to hear about the painfulness of your condition. I think maybe the word you were looking for is acceptance. You have accepted your situation, and you're doing the best you can with it. I hope your sores will heal and your leg will improve. Your struggles remind me to be grateful for the health I have. I have had some minor problems lately, but they could be so much worse. May you find encouragement and joy in little things, and know you are loved. Borahae. 💜
My heart breaks for you. I suffer from severe eczema to the point of can't move because the skin just rips. So I hear you about the emotional toll.
Thank goodness you have health care.
I'm gonna go binge your videos now because you're awesome and deserve all the views.
💜💜💜💜💜💜💜✌️
Oh Alex I really wish it’s going to get somehow easier and you’re getting stronger from now on. We’re always here with you 💜
Alex, I can't imagine what you have to endure. I am so sorry you have to fight this. I admire you so much. I admire your attitude. Sharing your struggles and frustration helps me deal with mine. If you want to cry and rage about the unfairness of it all, go for it. Just don't wallow too long. I'm glad your lungs have improved, and I'm happy to hear that the government is able to help you out, especially with the medicines. You are one hell of a fighter, Alex. Keep fighting! You have so many people in your corner, rooting and praying for you. 💜🫂
Alex, You are amazingly strong. I can't even begin to imagine how difficult it must be for you going through all that, and yet mentally your positivity remains. I pray that you continue to get better Alex. 🫂
You’re a bulletproof! Can’t wait to see your reaction on the new BTS stuff ! Get better ❤️🩹💪🏻💜
Alex pls just focus on yourself,take medicines, be relaxed and u don't need to upload videos, we can do videos anytime but health needs to our first priority so just rest, eat good , meditate pls don't stress everything will be fine ❤️ I'm sry my eng is bad😅
So sorry to hear that your suffering. Please stay positive and believe in your recovery
Thanks for sharing such personal and painful experience of yours! You are truly admirable and your story will inspire a lot of peope regardless they are sick or not!
pray for your quick recoverly. you are a hero fighting for your own life back.
Alex,it’s sure sucks. I hope everything will work out the best for you
Thank you for the update. You are a fighter and you'll get passed this. Much love light to you.
I believe in you. Keep being strong and everything will be fine 💜
I just found your channel,bro. I hope things get better for you. I can't imagine what you're going through right now. But I pray all the best for you. You're a fighter bro. Stay strong.
I'm glad the government helps you out even if it's not much. Free physical therapy is good.
I can't wait for your reactions to the bts comeback 💜
Oh Honey I just want to give you a big hug 🫂🥺🥹 Thank you for the update and know that we love and care for you so much! 💜💜💜🫶🫶🫶
I can't imagine how hard its for you, sent my pray for you💜 pls b healthy.
Oh dear just makes me cry listening to you and wish I had a magic wand that could make you heal. Thank you for your strength and your articulate explanation of this annoying disease. I'm sure if BTS knew they would secretly help you ❤❤
Alex my heart breaks to hear you In pain. You are truly an inspiration of strength. Your positive attitude is to be admired. Prayers for healing so you are no longer in pain. His Bless you and praying that the healing begins. Sending love and Hugs Mijo! ❤
U are so strong!!! I hope everything will go really really fast!!! I'm praying for your recovery ❤
Alex, feeling annoyed and depressed is understandable in your situation. I also understand you don’t want to worry your family. If government provides the help or you have time and money for it, I suggest talking to psychologist. It will help a lot. If not, you can always talk to us or other people online. Everything will be alright! You are strong for battling all these things.
Keep going strong and will include you in my prayers for your healing
Praying for you always..❤
Get well soon and thank you for the update.
I really hope you get well soon. You are such a fighter. Fighting💜💜💜
Thanks for the update. Keeping you in my prayers.
Thanks!
You are amazing alex! I’m so proud of how strong and a great fighter you are. I pray for your complete healing. Sending love for you and you family. 💜💜💜
Sending you prayers, love and hugs Alex. I hope your symptoms improve soon. You are in my thoughts. 🙏🏻💜
빨리 건강 회복하시길 바랍니다 항상 응원합니다🙏
We are praying for you! Borahae 💜💜💜💜🙏🙏🙏🙏!
Thank you for updating us! You’re so courageous. Please God heal and protect you 🙏🙏! Thank you for the medicine and physical therapy he needs. Please keep your spirits up!! We are here for you!
Get well soon alex, hopefully getting better now seeing
I am so glad that, with your hard work exercising them, your lungs have improved. Excellent work, Alex. Be proud of what you have done. As you say, this disease is a killer, but you have fought back. You will get through this. Know that. Keep remembering that you will get to a place where this is all behind you, and you will treasure your life more than you ever have. Please know that there are fans of you out here like me who are cheering for you.
Thank you for sharing this difficult journey with us. I know that it is difficult to do that. It takes a lot of energy. But it helps you-to know you are not alone, and it helps others-to stay compassionate, and to exercise their heart muscle. We purple you. We are with you all the way through.💜💜💜💜💜💜💜💜💜💜💜💜
Alex, you are so strong and I admire you for staying positive despite what you’re going through. I think you need to reach out to some people who are going through the same thing and perhaps counseling to help you talk about your situation. Sometimes a professional can help with processing with emotions and deal with difficult situation. However, It seems posting on YT provides some relief. I also appreciate the update. May the Lord touch you with His healing hands.
This disease is so rare that the global facebook page for it only has like 300 people 😅 But they are active and do provide support
Thanks for the update you are a strong man and a fighter. I will keep praying for you. 💜💜💜💜
God bless sir, and get well soon 🙏🙏🙏
Thank you for giving us a update..i pray you feel better very soon.please try to stay positive..im so happy to hear the meds are free thank god!!..sending you love..hugs..and prayers ❤❤❤❤
Thank you for the update. Stay strong - stay positive. You are not alone🙏♥️
We are praying for you🤲 ARMY loves you💜
I’m definitely in tears 😭 because of all your tough struggles daily for almost a year Alex,however you are right my dear keep it up God will be there,always remember that you are included in my prayers🙏
Mother’s love are no limits and no boundaries💜Fighting 💪Our 7 Bangtan Boys will be back soon my dear💜🙏Much Love and God Bless You Even More🍀
Oh Alex i hope they find better medication for you.
Please let us know if we can do anything.
🥹💜💜💜💜💜💜
I wish you a lot of strenght Alex!
Strong man❤
You have the right attitude Alex. We are here for You! I know this is a true roller coaster ride of emotions. We are here for you!!! Big Hug. 💜🙏🏾🦋
Orar por ti y esperar tu pronta recuperacion!! Esto hara un corazón y una mente fuerte!! Dios te bendiga con mucha salud!!🙏💜🙏💜
Always fight Jack, never give up. I believe you will be fine❤ PTARMY 🇵🇹🇵🇹🇵🇹🇵🇹🇵🇹🥰💞
🙏🏼 for you
Are you ok ? Thank you for let me know I wish I had a magic wand with which I can call you up from your sick bed; but I don’t, so I pray for you everyday to get well soon
I'm doing alright, I just didn't know that the recovery phase was still going to be painful and annoying, I thought it was going to get easier since I started taking medicine.
i hope u recover and i wish you all the best you are so strong
Alex, we all love ya buddy. We want to let you know
we the BTS army are standing with you
and walking with you in every step of the way.
Each day we are with you and always.
💜💕💜
Hi Alex
Thank you so much for the update I’m really praying for your health to improve.
You are a true fighter never stop don’t give up.
We love you (BTS ARMY) and wish you all the best 🙂💜💜💜💜💜💜💜
💜💜💜💜💜💜💜💜💜💜🙏🏽🙏🏽🙏🏽🙏🏽
You are strong Alex. Fighting!!
Please stay posative
Stay positive. It's hard with the pain and symptoms but you are doing so well. Each day give God thanks for life, that you have the medication you need, and with each passing day, I pray you will see progress and feel better.
Yes! You will see BTS! 🫶💜
Keep fighting Alex!!🥰💜
I hope you getting better soon take care 😮😍
This all sounds like your autoimmune system. Butterfly rash is a classic lupus symptom. Sounds like you could have more than one diagnosis. I am praying for you, the doctors caring for you, your parents and for your complete recovery. I pray your pain continues to ease and any side effects will be cured in Jesus name. Please stay encouraged and know this season will pass. Trust and Believe Alex. 💜✨
You will be alright in Jesus Name. Amen
Te quiero mucho mi niño! Y sé que con la ayuda de Dios estarás bien!
Siempre estamos y estaremos para ti!
🙏🏼🥰🤗
Dude, anytime you need to vent come on here, we will try to distract you! I’m wondering if any scaring from your previous neck surgeries are making themselves known in your throat because your disease is just making everything more tender. The mental part is rough. It sucks being sick and tired about being sick and tired. But like I said, even if you can’t do reactions, chat us up on the hard days, and we’ll try to put a smile on ya, okay?
On a totally unrelated note: if a mermaid got bit by a vampire, do you think it would be able to turn into a bat or would it turn into some kind of sea creature? One of our trick-or-treater kids was half mermaid half vampire, and I’ve been fairly distracted by the logistics of that one ever since.
Prayers for your recovery 🤗🤩💚
name Jesus amen it will get better and be healthy 🥲💜💜🫂🫂🫂
Get well soon Army 💜
I pray for you Jesus healed.
In Jesus name amen
Thanks for the update Alex. Your such a handsome guy and strong to be going through this. Hope you get well soon. Take your time if you can't upload as much. We will be here waiting for you. Borahae 🫶💜
Thanks!
Thanks!