I was recently diagnosed with coeliac disease. I am 30, my symptoms started about 15 years ago but there was no gut symptoms or weight loss, just anemia/fatigue/headaches/depression. SO no one ever thought to check for coeliac BECAUSE I didn’t think I had any gut symptoms. I think it’s important to highlight that you don’t have to be bloated and pooping constantly to have this disease so if you have any unexplained anemia or tiredness or low mood - get checked!!
Very good advice, this disease has many different symptoms. The longer I’ve had it the more symptoms I have. I’ve noticed it more in females than males.
@@williamkreth after the first month gluten free I felt incredible. Brain fog gone! At last! However I’ve developed more than this autoimmune condition haha. My thyroid is on the way out due to Hashimoto’s disease but testing thyroid levels has been inconsistent so they won’t give me the drugs I’m pretty sure I need - I was told to wait till I got sicker 🤣 Still have the exhaustion/fatigue to the point it’s affecting my ability to get up in the mornings and be on time for work. I just need to be persistent and force my docs to listen!
@@wendyhannan2454 I agree, it gets into all aspects of your body that you have no clue about… This is a touch of tmi maybe, but periods. I used to get the most awful cramps, super heavy period every month, I’d be out of commission for at least a day if not two. Since going gluten free, I barely even notice it. Gone is the excruciating pain I was going through ever since I started menstruating as a kid, that I was told was normal and to get over it - it bloody well (excuse the pun) was not normal!! This lack of awareness and lack of listening to kids when they’re telling you something isn’t right is so horrible and has me feeling so cheated out of a happy childhood y’know? Anyway. At least I don’t have that physical symptom anymore either :)
Took me ten years to finally get a diagnosis of Celiac disease. Thank goodness there’s a lot of GF options out there now. Yes , I have osteoporosis. Yes, I have IBS. Yes, I have diarrhea. Yes, I experience stomach and back pain. I try very hard to watch what a I eat. If I do consume gluten, I suffer nasty reactions. I avoid milk, drinking Lactaid or Almond milk instead. I take Calcium, Vit D, B12, Potassium and Magnesium. I try to eat plenty of vegetables, avocados, fruit, and GF Oatmeal with flaxseeds. Now my BP is going up, so I am adding in foods to try and bring it down naturally. Good luck to all of you who have been diagnosed with this disease. It does take diligence, but you can do it!
Why do I get an itching red spots between my eyebrows and on jaw by chin? Eventually it becomes flakey and comes off. Never used to have this type 💩started around 4 years ago. My roommate always had it. It may not be communicable but hell of a coincidence. What you think?
My mom has had migraines since age 9. She's now in her 70s. About 20yrs ago she was dx with celiac. It took 10yrs to get a diagnosis. She had various symptoms but was seeing different drs for them (neuro, derm, blood, ortho etc) so no one had put them all together. When she got the skin rash I told her that was a celiac symptom (had read about it) and along with the other S/S she had, celiac seemed very likely. She asked for testing and the rest is history. She later had to have a foot of bowel removed because of all the damage that occurred before diagnosis. She's doing great now!
I'm really sorry to hear that. I was Celiac for around two years before getting the correct diagnosis. And I was so devastated during that period of time. Now after following strict diet. I'm feeling way better. But still suffering from now and then. I lose weight so easily and suffer to regain that lost weight. Mouth sores are the moat disturbing thing ever.
Self-diagnosed Celiac here. I had bloating, diarrhea, constipation, Dermatitis herpetiformis, low energy and it all disappeared after going on a gluten-free diet. The symptoms come back if I eat or drink anything containing gluten. I went to a lot of doctors as a kid but they could never figure it out...
Even I have bloating and sometimes constipation There is malabsorption of nutrients in my body and I have weight loss Did you have any of these symptoms as well?? If yes then did a gluten free diet complety cured it? Please help me
@@nikhilagarwal3059 I had rapid weight loss and fatigue due to malabsorption caused by Celiac, bloating was a daily occurrence when eating or drinking anything containing gluten. It took a few months to see results as my body started to noticeable heal but no more bloating and I'm gaining weight normally. I would say try it and observe what happens for a few months or go see a doctor.
I've had ulcerative colitis since I was 15. I would get flares so bad I would lose 20 lbs in a week from vomiting and diarrhea. I've been severely anemic since 1999. I don't know if I have celiac; I've not been tested. A few years ago I decided to go gluten-free and the change was amazing. Now I've also gone grain-free as I noticed supposed GF foods were still making me sick. My intestinal issues have completely disappeared, my skin is healing, and my iron levels are slowly improving.
Hi tara I've been really suffering with my stomach did any if your symptoms last weeks or affect your breathing . I've lost alot 1st in 11 days and feel so I'll with my stomach . I'd benreally grateful if you could reccomend some foods as I'll also be looking at foods I can try in the gluten free diet
@@tomdobbo6121 So sorry you're sick with this too. I basically eat a keto diet for the most part, no grains at all and on days when I do have carbs I'll eat fruit or sweet potatoes. I used to get colitis flares that would last weeks and I'd end up in the hospital because of dehydration. I never had the breathing problems; you should get checked out by a doctor if it continues.
There is a blood test for celiac now. After losing my gallbladder in 2017 being in the hospital 7xs, ICU 2xs, diagnosed with pancreatitis. I'm carnivore. I'm basically allergic to everything. I eat grass fed & finished beef and duck eggs that are free range making sure they haven't been fed grain or soy. No sugar no dairy. It isn't fancy but it doesn't hurt.
Gluten gave me such brain fog that I couldn't function, ruined relationships, lost jobs due to confusion and frustration, after eliminating gluten for a little over a month, my mind completely cleared. I thought I was going crazy... shits wild
This is exactly my position right now. I don't know what has suddenly caused confusion. I have gone through everything you have stated, including quitting my job and school because of too much confusion. Thanks alot for sharing!
Haha, shits wild… sure is! 🤣 I’m excited for the brain fog to lift. I honestly thought I was going insane, or having some weird ass early menopause (even though I still have my period??!) because the brain fog is so bad. I’m only 30!!! Got my diagnosis a week ago so I can’t WAIT to start feeling the results ☺️
OMG I literally have like +80% of these symptoms! I've been suffering for the last 15 years not having a clue. Ty for this very informative video. I will definitely get tested for this now and STOP eating wheat and gluten FOREVER!
Don’t stop eating gluten until a doctor tells you to!! You need to have been eating gluten in a balanced diet for 6+ weeks before you get your blood tests and biopsy so that they can confirm the diagnosis. If you stop before your tests, your gut might heal and they will think there’s nothing wrong with you. But I guess if you do go gluten free and it works for you and your quality of life improves, diagnosis isn’t the most important thing ever. However if you live in certain parts of the UK a diagnosis will help you get gluten free food on prescription so it is worth pursuing :)
@@elmondo-s1e I’m in the U.S., and a gastroenterologist told me what it would take to get tested for gluten sensitivity. When she saw the horrified look on my face, she said that if I’m getting good results just avoiding gluten, to keep doing that. I’d been eating gluten-free for several months by that point (maybe 13 years ago). In the U.S. we don’t have that option to get gluten-free food by prescription. We’re on our own.
@@noglu106 I think you meant your reply for someone else, not me. As I said, I’m in the U.S., and there’s no such thing here as any kind of food by prescription. I just go to a store and buy what I want. Maybe Elizmo?
@@noglu106 huh?? Like a doctor’s prescription, that a medical doctor writes, that you have to go to a pharmacy to fill. That’s what I mean by a prescription. I don’t understand why you seem to be confused by what I wrote here.
In first part you talked about gastrointestinal symptoms, and talked "we're going to see". When in reality one could have no gastrointestinal symptoms at all, and instead get damaged silently. A very important point.
So true , it was neurological problems for me that led to diagnosis . However during my first consultation a lot of other symptoms were present but I’d put them down to hypothyroidism and menopause and ibs
@@bethanhamer.8669 Indeed. And they can be very severe, too. In general, malabsorption, for years/decades can be just devastating (and no intestinal symptoms whatsoever)...
I had been small and very skinny my entire life, when I was 9 they discovered that I had celiac. When I started eating gluten free I got more energy, gained a lot of weight and grew a lot. So you don’t always know if you have celiac bc the symptoms are very diverse. I had no stomach issues or anything.
@@φαρμακεία-πρωταρχικός You will need to arrange to get a blood test, called a ttG test. If that comes back positive your doctor will arrange for you to have a biopsy done on your small intestine to confirm the result.
After 15 years of suffering, along with many visits to the doctors. Eventually, I was given a blood test and then an endoscopy. Which confirmed I have celiac disease. My villi was completely flattened. Have also been diagnosed with osteoporosis and low B12.
NB: some of this does not always apply and doctors need to be aware!!!! I had many signs for decades but no diarrhoea, no flatulence, no sounds, pain specifically over my appendix which caused frequent misunderstandings (no you do not have appendicitis!) I could go up to 3 weeks without passing stools, I could pass white stools or very dark pellets. I was eventually diagnosed because of weight loss and meals passing through in a couple of hours but by then it was extreme. The deficiencies all applied but I did not feel fatigued, just cold from weight loss.
I do recall passing hard pellets in the beginning. I was and felt constipated all the time. Doctors told me to take fiber supplements and Gas X. Finally, after ten years of symptoms and pains, a DIFFERENT doctor suggested an endoscopy, and she diagnosed me because of the shortened villi. I already had two colonoscopies by that time. It has been 20 years now, and I have had diarrhea for a year now, every day.
I had so very many of these symptoms in every category. I had anemia, I once missed my period for 11 months, my stomach used to make terrible rumbling noises, I was always small, I suffered with depression but it was alleviated when I was diagnosed with thyroid disease.I still get migraines and my forehead is always itchy on the left side with a few of those white bumps. I have been gluten and dairy free for 9 years now. I wish my migraines would go away.
I'd like to share that I use a product called Prebiothrive from Gundry MD and taking one small scoop every morning completely eliminates the diarrhea. This along with a sugar free/grain free diet allows me to have my life back. Note that rice flour does have a form of gluten called orzenin and corn has a gluten protein called zein, so avoiding the purchase of "g/f foods" using these grains would help . An excellent book called "Against all Grain" by Danielle Walker is a HUGE HELP.
😮 I am so glad I saw this video because it seems as if none of the doctors I’ve had have questioned if I have this disease. I must be sure to mention it to them since I have most of the symptoms. Maybe all the symptoms! Wow! Thank You so much for this video.
After finally being diagnosed as a coeliac and not a hypochondriac, the migraines ceased. Then I realised all dairy products were causing GI issues. Then the sinusitis stopped. Dieticians I have been referred to, have been totally useless. I have been taking vit B complex and vit D with fish oils on my own initiative without being guided to do so. Turns out to be more important than I realised. Menu planning would be so much easier if brassicas, tomatoes and vine fruits are now an allergy issue. Not sure that calcium supplements are a good idea, better to have it inorganic form, i.e. in vegetables. Works better in livestock grazing limed pastue.
Celiac disease can have so many strange symptoms. I have noticed that my intolerance to heat is has now disappeared on the gluten free diet. I personally take a multi vitamin and vitamin D. As far as calcium supplements go, you won't need them if you're taking vitamin D. D and calcium work together in the body. In fact, most of the time people who take a lot of vitamin D need to lower the dosage not because of having too high of a vitamin D level, but because calcium levels can get too high. In reality osteoporosis is 100% because of a vitamin D deficiency. Glad you are feeling better
@@lotsoftorque3632 I have weight loss(muscle loss), malabsorption of nutrients and bloating. I feel like a have celiac. Can a gluten free diet complety cure it?? What changes did you experience? Please help me
@@nikhilagarwal3059 Which vitamin deficiencies specifically do you have? Unfortunately your symptoms are general and can be a few different things. But first test for celiac disease is to get a celiac blood panel done. That will check for elevated tTG levels (gluten antibodies). If your level is elevated then the next step would be to get an endoscopy so they can take a look at your small bowel and see if it contains lymphocytes, and see if the villi have been damaged. The technical term for damaged villi is crypt hyperplasia.
Great video. I get a headache often the following day after eating wheat, like bread, and also fatigue. Problem is I avoid gluten and have no issues for a while, then think it will be ok for some small amounts of gluten. Occasionally get away with it, but sometimes not.
I tried that one ☝️ I’ll be ok, just a little gluten won’t hurt, It hits like a ton of bricks. Not worth the un-comfort and pain, plus it can take weeks to get over it. GF for me only.
I was recently diagnosed with celiac and i always wondered why my stomach made weird noises, like it wasn’t my stomach growling but it definitely sounded like it but felt really different, like it was in a different part of my abdomen, i always got embarrassed and if anyone heard it I would blame it on me being hungry
When my belly is making the noises & I lay on my back, you can SEE my intestines moving. It's disturbing to even watch, I've made my husband watch it happening. I had gastric bypass surgery (2003) & blame everything on that. In addition I have to admit that I do not take care of my health as I should. My vitamin levels were so low at one point it felt like a heart attack, the ER doctors said everything they tested required a monthly Rx to increase my levels. I do get very sick if I consume dairy, at times too much sugar or simply eating too much will cause me to throw up. I have every symptom this video for celiac disease discussed. The moving of my stomach was the reason I posted, I tend to get off track. Has anyone else experienced this?
Lmao i was sick recently with a bad case od food poisoning so my gluten problems were exasperated. Never have i been so humiliated with gurgling sounds coming from my lower abdomen /butt lol at work everyday. I had to quit drinking water during this time even though i was having massive diarrhea so i could limit the gurgling noises at work. My face lost all of its fullness cause i wasnt drinking enough water and super sick. I prob could have ended in the hospital honestly but i was having tons of hydration packets at home. Anyway, i absolutely know the embarassment and would reach for the food to mask my noises in the office. But i mean how much can i mask when i was thattt sick for 2 months and only took 1 day off acting like im normal but being 5 min late everyday expecting to yelled at for my tardyness!!! 😬🤦♀️. The pepto and limiting water intake and not eating at work was the only thing to minimize that embarrasement but was still super embarrased! It was /still is a vicious cycle cause now i have post infectious IBS on top of my regular IBS problems so its now on another level lol! If i dont eat, then im making hunger noises for all to hear!! If i eat then im making other digestive and gurling noises and stirring on the IBS-D in the quiet office lol!!! It sucks lol. Im glad im over the worst of it(2 months of that) but 4 months later still suffering and healing lol just from that... its a constant battle still with not eating but hunger noises and then having to eat and having to poop 😒. At least i dont have the gurgling so much now... but i still reach for the food on rare occasion at this point to mask the other noises i cant control 👀😬😞. Im sure i wasnt fooling anyone honestly..
My daughter was diagnosed at 5 years old. Her symptoms? Chronic constipation that caused urinary tract infections. The pediatricians PA scolded me that I needed to get the constipation under control. I responded… I have tried natural remedies, medication, and done everything you have told me to do. It works for 2 weeks and stops. Do you think it could be something in her diet?! …. And that’s when she was tested and her panels came back off the charts per the PA. Only afterwards did we realize her fatigue, dark circles under her eyes, and behavioral issues were part of it also.
Thank you so much you have answered all my questions about what is going on with my body. This is new to me, and I have diarrhea and it happens without me even knowing it is happening. So embarrassing and uncontrollable. I am at the beginning of testing for Celiac disease and all that you teach about this I am experiencing now. This has been going on since April 2022 and getting worth. Do you recommend keeping a food journal to see what triggers the disease?
If you have coeliac disease you don’t need a food diary - it’s triggered by gluten found in wheat, barley, rye and potentially any product that is processed in an environment that also processes wheat/barley/rye. Also if you’ve had this for a while, the damage to your gut means that it doesn’t really matter what you eat. Your villi will be so damaged you’ll have diarrhoea no matter what you eat, until you stop eating gluten and your gut gets a chance to heal and start absorbing nutrients again. You should follow the advice of the doctor testing you - don’t add or remove anything from your diet based on internet advice. Hope you get on well and your health improves :)
I have chronic asthma and had an almost constant hacking cough. I went pretty much gluten-free ( I still have products in breadcrumbs and can get away with a few crackers or a thin pizza base) and I no longer cough until I vomit/sound like I am bringing up a lung. Before going gluten-free, I went lactose/milk free. Did not get on with the milk replacement products ( oat, soy, almond…) but now have lactose-free milk but normal yoghurt and cheese. I feel much better, get less severely ill less frequently and my skin has improved too!
Glad to see something about celiac. I was born wth IT. I was told I spent first two yrs of my life in hospital. Back in 61. Then I was given enzymes to get a spoon of water down. Ate a lot of bananas. As I grew older, I didn’t have any issues. It wasn’t until I was 27. Corse I don’t remember much before I was 10. That I was celiac, didn’t understand why I kept getting sick. No one said anything to about it. I finally found out in my 40’s. Why didn’t my mother tell me. I know now about everything what I went through when I was born. I felt robbed of soo many years of eating great food, then loosing in. Couldn’t keep weight on. Geez, some people parents.
how would parents know if even doctors don't know? I was given baby food tiktok was LOADED with wheat because doctors back they said it was good for a baby who was constantly sick on their stomach and couldn't digest very well., and that it was very "nutritious". I probably got my intolerance triggered or worsened back then and it probably affected my development a lot. But my doctors and parents were doing what they thought was better for me, because they were taught that by someone else.
@@roseannagross5094 we’re not all born with it. It can develop at any age, but you’re right in so far as you do need to be born with the genetic predisposition but not everyone born with the genes needed will develop it. I didn’t start getting symptoms until I was a teenager!
That’s really sad that they knew and didn’t tell you. Maybe it says more about how bad the education is for parents - sounds like your folks didn’t realise how serious it was and didn’t think you would continue to be sick all your life. I think a lot of parents struggle with accepting that there might be something wrong with their kids too. My mum is really dismissive of my diagnosis and makes weird comments like “yes I suppose it is serious for some people” as if my coeliac isn’t as serious as other people’s haha. Humans are weird. But I am sorry for your loss. I hope you’ve considered getting therapy to help you cope with the feelings of being let down, it really helped me to talk to a professional. I hope your health is good nowadays :)
No one knew what was wrong with me until I took the '23& me' ancestry test. I have both variants that cause CD. I can finally get the help that I need to thrive from my Dr. I thought I was dying but it's just Celiac.
I just got a result from bloodwork that I tested positively for signs of celiac. I was diagnosed (without any tests) with IBS like 15 years ago and was just told to eat more regularly. So many of these symptoms also match. Fatigue, regular headaches, horrible cramps that come in waves, very irregular periods and have had an extremely itchy rash on my hands for the past month or so
I was self diagnosed in August 2007 after participating in an elimination diet (The UltraSimple Diet) Since then 2 of my children and 1 of my siblings have been diagnosed. I am so hypersensitive that I have to feed my pets gluten free food so that I don't get "glutened" I have dermatitis herpetiformis, and fall in the small percentage of Celiacs that gain weight instead of loosing weight. Gluten cannot touch my skin without developing welts, so asking people to wash their hands has become a must. I also changed out all of my personal care products to gluten free products. Talk about being a unique individual. I must say that keeping my home gluten free is less stressful by far.
I'm glad you have taken the necessary steps to feel better. I self diagnosed also. Airbourne gluten bothers me a lot. I cannot go inside many places. I take quercitin, benadryl, benadryl cream, zyrtec, and pepcid ac to control hives. On the flip side being celiac forced me to be extremely health conscious so that is a good thing. I cook my own food. I only eat omega 3 eggs as far as animal products is concerned.
@@TheConscienceOne It sounds like you are adapting well to a healthier lifestyle. That's awesome. I have found that the further along in your journey, it gets easier and the body heals more quickly. I also cannot visit many restaurants or stores that sell bulk grain. I cook most of my own food as well. In the beginning I could not eat dairy, eggs, or even beef due to not being able to digest the proteins. Now I have no issues. I also take a multivitamin made for people with celiac its Freeda Quintab-M they are free of many allergens and are vegan. Also using coconut oil and eating okra is great for gut health.
I'm the same, extremely sensitive to gluten. It's just as you say - I have to make sure that even pet food and personal care products are glutenfree. I cannot got to places like bakeries or restaurants or the supermarket aisle where the wheat products are kept. I have all the other symptoms that are typical of Celiac as well, such as alopecia, infertility, hormone problems, malnutrition etc - though strangely enough, I'm also one of the very few Celiacs who put on weight rather than loose it. If I were to eat a normal diet, I'd be morbidly obese in no time. Before I switched to a glutenfree diet I suffered from severe diarrhea, extreme stomach pain and abdominal pain, abdominal swelling, severe bloating and severe fatigue. I had absolutely no help from my doctors who have throughout my life insisted I was lying, imagining everything, too stupid to know how to consume a healthy diet, attention seeking, stuffing myself with sugary foods and very spicy food all day long, anorexic, bulimic, alcoholic, ripping my own hair out etc etc etc. None of these things are true. It often resulted in very upsetting scenes such as me being forced to bring witnesses along to the doctors to confirm that I do eat and don't make myself sick on purpose to avoid getting falsely diagnosed with a mental illness - very difficult when one lives only with pets which I did at the time. Most doctors shouted at me insisting that they were right and when I didn't agree, I got kicked out the office and the doctors wrote on my medical records that I was allegedly "difficult, argumentative and a trouble maker". Despite being on a glutenfree diet for nearly twenty years now, my bowels still react to everything I eat, though nowhere near as badly as before I changed diet.
Took 13 years of hell from weaning to get my daughter diagnosed with dermatitus hepetiformus, itchy boil like spots on MOST of her body..3 skin specalists later we self diagnosed even though I was a celiac for years before it was never mentioned there were some who had skin problems. Since found lactose is bad ,and my grandaughter has severe dairy allergies also. Also I suffer from weight issues,though eating nothing.
If you have this disease the best thing you can do is quit eating wheat and start taking lutein supplements. Indeed I have discovered this lutein deficiency connection by chance and by never giving up on getting better. It is probably the reason you have so much inflammation. It totally relieved my irritated ,dry and burning eyes and my chronic neck and shoulder pain in one week . I believe it will help with just about every type of inflammation from our head to your toes even hemorrhoids. God is great 👍
Great video thank you. ✅ I’ve had an itchy scalp and hair loss, I don’t have a raised rash. I believe it to be DH does any one else have the itch, without the raised blisters ? So grateful for all this info on CD
Earlier I did a blood test for wheat allergy, spice allergy, dairy allergy, and celiac disease. For like more than 5 years, when I eat foods that has gluten I would end up vomiting in few minutes. Since April, I would have 3-4 times a week diarrhea. Plus since last year I would have dizziness and lightheadedness along with headache and itching
Could be celiac or gluten intolerance. The best way to test for celiac is get a celiac blood panel done. The tTG antibody test is the most accurate indicator of the disease.
Broke my fibula when I was 25 years old, in the military. Got diagnosed with Celiac when I was 36 and it all made sense. I was having headaches, cramps, diarrhea.....
@Jeannetta Joy I have been allergic to gluten and dairy for over 40 years, suddenly I couldn't tolerate any grain or soy. No corn oil, cornstarch, cornmeal, oatmeal, rice etc. Almost every health and beauty aid sources vitamin e from soy.
Have never had Celiac diagnosis or any intestinal disorders. I do have psoriasis and psoriatic arthritis and wow, when I changed my diet. Both went into full remission. I wish it was just gluten but I have to avoid many other foods too. Gluten affects my psoriasis way more than my joint pain whereas other foods affect my joint more than gluten. I don't care if I irritate people because of my extreme diet. I am so happy to be pain and discomfort free. No more blood monitoring because of the meds I was on because I no longer have to be on them either.
@@moniquefacey5760 psa symptoms were pitted fingernails, swollen knee, mortons neuroma in feet, back pain, swelling in fingers and toes, moving arthritis and of course, psoriasis. I am pretty sure I had chronic inflamed lymph nodes too because those also went away with diet change.
@@inshaparveen8003 I am now doing carnivore, it's just easier, with some fruit here and there. Initally, I did a hardcore elimination diet which can be found online. Eliminate dairy, gluten, high carb, citrus, nightshades, reduce sugar a lot, alcohol. Keep a food diary and watch for reaction. I still feel effects within 1/2-1 hr after eating so I am aware. I had plums last week and my heart rate sky rocketed and then my joints flared., for example. Follow beef, butter, bacon, eggs for a bit it's also pretty amazing.
I came here because I was interested in learning more about the mechanisms of action behind this disorder, and the video definitely delivered however these comments make me sad for humanity.
Wonderful video, thank you for sharing in details! Please do a video for type1diabetic in kids, please share your thoughts as well. In additional, pls also do a video on hyperthyroidism in kids who got diagnosed with type1diabetic. Thank u
I have almost all these symptoms except weight loss & lack of menstrual cycle, I actually developed excessive menstruation due to Adenomyosis. I was told that I was gluten-intolerant but I think I do have Celiac Disease.
I've not been diagnosed officially yet but I have self diagnosed celiac disease. My sister homemade gluten-free pasta the other night but the sauce was not gluten free and now I've been sick for a few days. Sucks.
I was dealing with diarrhea, now constipation. My blood test showed celiac disease, and now they want to do an endoscopy, but I’ve been off gluten for two months and I don’t want that poison back in me for the test. I’m hoping they can do the genetic testing.
So my vitamin D plummeted and i also gained weight with this. Because like the video said compensation by over eating. I also became anemic and my fatigue and body pain is intense. I wish it was easier to not eat gluten. Sometimes i just mess up and eating meals with the family is hard. . I eat gluten by mistake one time, Im messed up for the whole week. It takes so long to see results from being gluten free for extended periods of time.
same here. i dont have diarrhea, but have constipation, but also bloating, tingling cold hands and feet, heart palpitations. Google search says constipation is a symtom, so possible.
Please don't self diagnose! Make sure you get diagnosed by your Doctor so that they do the proper tests and screenings! By not being checked you could risk having other health complications go undetected!
@@melaniedrinkwater8310 Thank you for your concern. Firstly, I am poor, and can't afford a doctor. Secondly, I don't trust western medicine. Lastly, I know my body better than a doctor who reserves five minutes of his time to diagnose a person he knows nothing about. I have observed a host of health problems that immediately get worse, for example foot inflammation, the moment I eat gluten. When I avoid gluten, these symptoms decrease.
@@melaniedrinkwater8310 I had to self diagnose over 30 years ago. I still haven't been able to find a dr that takes my health issues seriously as I fail the blood test because of my gf diet. Drs are a great resource but not infallible.
I recently had a blood test which had candida and raised white blood cells ,I was feeling really unwell at this time and had pain in lower left abdomen, I thought i had a urine infection but that was clear, ths doc had me do a stool sample to test for cancer which was clear had a ct scan that was clear had a Ecg that showed slight abnormality but havent had proper results yet, went for endoscopy today and the found Diverticulosis a d removed polyps. I do wonder if I have this as I have constant bloating, constant gurgling, constant stomach cramps ,occasional headaches , constipation, sometimes I suddenly need the loo,I have sores and boils constantly,no hunger or appetite ,feel ill no matter what I seem to eat. I also have fibromyalgia so in constant pain all over and constantly fatigued.
Do you know of any cases where canker sores were biopsied? I am newly diagnosed celiac and had a biopsy of a sore in my mouth - diagnosis was lichen planus.
I have lichen planus too and it started about 2 years ago. I noticed that foods containing wheat caused painful sores so I cut it from my diet and I rarely have any problems with my mouth now. I haven't been diagnosed with gluten intolerance but there must be a link.
This is good, but maybe a disclaimer that only approximately 79% percent of suffers of this have actually reported diarrhea before treatments. The video makes is sound like everyone has that symptom. Clearly you care about such things because you elaborated on something else later on that not everyone has the h. dermatitis.
Hi Charles. Thanks for your comment! Definitely not everyone has all of the signs and symptoms discussed in this lesson, but I did want to mention many *possible* signs and symptoms of Celiac disease. JJ
I went to the dr asking for a gluten test and was given a regular blood test and basically labeled as depressed cause i was heavier (but the dr was obese id say.. so look at that ignorance and double standard😒) so i was gaslighted, ignored, probably didnt believe people are celiac, and never even given a gluten allergy test which was the whole purpose of me going to the dr in the first place. So i just self diagnosed myself by going gluten free and noticing how it helped me for 4 years. Even the dermatologist in 2022 gave me the "okayyyyy" face response that my eczema is caused by my gluten diet which i clearly acknowledge. Like diet causes lots of problems that are seen as woo woo to drs 😒. Whatever, i know what triggers my eczema even though their response was "maybe the shampoos" even though it really is the gluten and now I'd say SUGAR too. Cause it went away when i was keto for 2 weeks lol. I was off last 2 years and managing (fairly well) with herbal acid pills and gluten digestives.. besides the IBS-D and anxiety before big jobs.. I have to get back on the gluten diet now though cause i had a terrible case of food poisoning from fast food which lasted 2 months and now almost 4 months later, my gut is still terribly destoryed and no pills are managing it so yeah i literally must go gluten free again 😬😬😬 My pet peeve though, is that even though i diagnosed myself as celiac 7 years ago, there STILL is not gluten free food availability. But yet the vegan availability is much more!! Its not that difficult to offer gluten free bread, even prepackaged at restaurants. But there are no options near my workplace when i go out with coworkers. And im certainly not going to spend $10 on some cooked eggs, no bread or bacon lol. Im not spending $20 on a GF pizza at work either when the wheated option is $5. Im not paying $14 for a bowl at subway when i can get a 6in sub for $6 lol. I'll prob stick to those 200 calorie protein bars as a meal replacement so i can go out with my coworkers. Not eat anything but just enjoy their company :/ :(. Its upsetting that gluten free has been more publicly known compared to years ago and this ignorance and lack of options still is going on for people who really need to opt gluten free... and yes i did mention it to the restaurants but will they offer GF bread for $2 more? No. I did think about bringing my own bread but like nah i dont want to deal with any of that and any way. How ridiculous. So the protein bars seem like the solution at this point.... so i can still participate in going out and dining at work.. I know im rambling on but its shocking!!! I even went to a BREAD shop in Greece, people who should definitely offer gluten free cause its their profession and industry!!!! Nope no GF option. Shocking. Absolutely shocking!!! Thats quite normal actually. Even in the states, not all bakerys and bread shops even have gluten free!!! But they will have vegan more likely lol!
endomysial abs iga was positive Tissue transglutaminase IgA positive with value of 1.0 only above the standard range. I had Brucellosis at the time these tests were taken. Doctors ordered these tests because of my severe belching.. some said it was anxiety, others stated it was celiac based on the results I have NONE of these symptoms. None. Just recent weight loss ( but I am doing intermittent fasting and calorie watching) and a mild but annoying, and discomforting tingling headache in one spot in my head that occasionally occurs ..mostly at night after spending a long time on the phone/laptop.
There’s such a thing called “silent coeliac disease” where an individual presents with zero symptoms but the damage to the gut is present. Happens more than you think and there’s probably tons of people running about with coeliac disease without knowing a thing about it!!
I was having chest pains and a hard time breathing, breaking out into cold sweat here and there for a couple months about 3 yrs ago. Drs could not figure out why. A friend said she had the same symptoms and took Papaya enzymes and it went away. Just before I spoke with her I was sent to get a test for acid reflux and that's when they found I had Celiac. I didn't have any symptoms u less the chest pain etc was part of it but it came first when I woke up and sometimes it happened when driving. I dont eat much gluten to begin with but I did take the Papaya enzymes and never had those chest pai , breathing problems and cold sweat again as long as I have taken it. I did one time before the test eat pizza and some break stick and had diarrhea for that day and night. I have tried to stay away from gluten and working on being gluten free which shouldnt be rhat hard because most things i eat are gluten free but sometimes..... I do get cramps a bit if I do eat a certain amount. The only other thing I noticed so far is my hair has become very brittle. It grows fast but it also breaks at the end and I am worried it will keep breaking until I have none. I take vitamins, E, biotin, iron, multi, B12, calcium, magnesium , D3, zinc, C and couple others. Back when I was diagnosed they did a vitamin test and I was fine in everything but defefficient in D3 and was told to up to 2000. I will be fifty in a couple months and I have a hard time losing weight. I dont know if that's because of something with the Celiac or hormones. I spoke with a nutritionist, she mentioned a gluten free protein powder with 50 superfoods. I drink one shaker a fay with L-Glutamine powder which she mentioned is suppose to help lower and heal the VILLI. Anyone have any problems like the brittle hair and breakage? and did something work for you?
I wonder if I have celiac disease .I have severe ibs now for about 30 years with primary constipation. Spring of 2020 I had eaten a lots of pasta as usual , bread and things with flour ect as I always have. I had a bad reaction to the pasta and cake I made I haven't eaten in years. Now I'm wondering.
A blood test will confirm Coeliac disease. I had to have a biobsy. I almost died of pernicious anaemia, I would only have survived another day. Coeliac disease was causing the problem. So get your bloods checked. I was in my late thirties when I got diagnosed after a lifetime of pain and suffering, was thin as a rake too. At 65 I was finally diagnosed with Crohn's disease. I believe I was born with both conditions, but doctors then knew next to nothing about food and disease. I'm 80 now, no longer thin.I have many food intolerances but stick to a very strict diet so I'm now asymptomatic, have very few flare ups and I can control them myself. Just occasionally I need to take steroids, which work brilliantly at getting me back to normal. You can live a normal life if you are very care about what you eat.
I have weakness, issues with my balance, double vision, dizziness, I have been having stomach issues, bloating and pain in the right side of abdomen, pain in the back. Bloating and gas pain and abdomen pain comes and goes, leaves for a month and then returns. Just when I think I am okay, it comes back. Even when I don't eat bread, I still have these symptoms. I have chills and nauseous feeling. When I use the restroom, I do have that foul smell when I go number two and farts also smell. I have headaches in the back of my head and on the left and right side of my head. If I don't eat, I get really dizzy. And on top of that I have my mom yelling at me and saying that I don't have anything wrong with me and that I just want sympathy, let me tell my stomach it isn't real while I'm bent over, and the gas pain is causing me to feel like I want to throw up.
I have everything you mentioned. My biggest problem is if I don’t eat in 5-7hrs, I get dizzy, sweating like I took a shower, blurry vision. I have to eat or else I will faint. Another thing is I get random bruises and spider like rash.
def get tested, not eating bread doesnt mean you dont have gluten in other foods, a lot of foods have gluten in them, even some meat products, for example in form of preservatives, good luck in your healing journey
Try digestive enzymes when you eat. When you done eating make a Thea with fresh ginger. Your energy level will boost and allot symptoms will go away. There is still allot to learn even doctors don't know everything. Educate your self about your body especially your guthealth. I hope this will help for you🙏
On iron tablets and being treated for gluten ataxia ,after two positive blood tests I’m seeing the one professor in uk who specialises in condition . Lucky I live In Sheffield where it is based . I cannot go to loo without laxatives for years , be passed off till now . Presented with numbness in legs , fatigue , iron levels were seven . Also had high platelets , felt ill for ten years and all they kept saying was I was hypothyroid , I couldn’t get up one flight of stairs couldn’t breath , can breath now I’m on iron 400 mg a day , crap nails and hair . Spent mort of last ten years asleep just so I could go to work . So glad I was seen by a neurologist and finally going to get sorted 👍🥰 had migraines since I was five as well ,I’m 54 and finally I am hopeful instead of being told I’m depressed and it’s in my head which actually happened with rheumatology consultant when I was 45. Had infertility treatment at 25 , I think this has being going on for years. Had ischaemic colitis and bowel issues and just told it’s depression / ibs Thank you for presentation , glad it is becoming more recognised
Hi Bethan, Have you've tested for Celiac Disease yet? It's a simple, inexpensive blood test. A lot of the symptoms you've mentioned are the symptoms I too suffered through, mostly starting in my early 40's, I am now 61 years old. I had the reverse of what you had - I had diarrhea several times a day for YEARS - I was so exhausted all the time because I was not absorbing any nutrients from what I was eating. The doctors were no help, they would just throw pills at the problem and the pills made it so much worse! Finally, I was so frustrated with the last doctor's pitiful assessment that I went on the internet and typed in my symptoms - "Celiac Disease" kept coming up as an answer. When I read the description lots of the symptoms were my symptoms. I wasn't until I REQUESTED from my doctor that I wanted a Celiac Disease blood test, that I knew for sure that I tested positive for Celiac Disease. Once I stopped eating gluten, within 3 days it was MAGICAL how much better I felt. I lost 15 pounds within 3 weeks because I did not have extreme INFLAMMATION going on in my gut as much. Of course, I wasn't completely healthy right off the bat BUT I was FEELING so much better. Then I started my health journey to get better as I still had other MAJOR symptoms, such as Chronic Fatigue, hair loss, crappy nails, body and joint pains all over my body, memory/cognitive issues, Rheumatoid Arthritis, etc. When the doctor suggested another blood test to check my Vitamin D3 levels - I had severely low levels - this explained a LOT of the symptoms I was suffering with. I started taking 15,000 IU's of Vitamin D3 daily and within days my body and joint pains were disappearing, my hair and nails started to improve, it improved my chronic fatigue a little, etc. I STILL take this amount daily as it is so beneficial for my daily health. In my health journey research, I was finding out that if you are deficient in Vitamin D3 you are MOST likely to be deficient in Magnesium too. And once I started to take Magnesium - it was like night and day the results! I, personally, take 15,000 IU's of Vitamin D3 daily, (1) Magnesium Malate 425mg daily and (1) Vitamin K2/MK-7 90 mcg daily. These are my main supplements, I do take four more supplements, but these I just mentioned will IMPROVE your health right off the bat. I hope this information helps you in YOUR health journey. 😊💖
@@tillygirl7450 hi ! Thanks for sharing your journey . I’m glad you are doing better and finally got sorted . I have had four blood tests now ,three from neuro and one from gastro that all indicate I have gluten sensitivity . Unfortunately I have to keep eating it until I have had a brain scan and a gastroscope and biopsy .brain scan in February bu not heard about scope yet . Just want to get them out way then I can start eliminating gluten from my diet . They want a scan of my cerebellum now so they can use it as a marker for any future deterioration. Just want to start diet I’m sick of feeling crap 😉😉 I will take your advice on the vitamins too ! Thanks again ❤️
I have all of these malabsorption issues, my teeth would break off when I was pregnant. I have been getting infusions and Im still struggling with absorption. Im on adhd and anti depressants for both brain fog, fatigue, that leads to depression. Wow!
Have the simptoms, but B12 was god range,folate good range ,iron it's ok,but vitamin C was low,zinc was good, but feeling very tired all the time,shortness of breath, constipation, brain fog, short term memory problems
i’ve been noticing that after i eat gluten i get light headed heart palpitations and then trigger in to panic attacks, tingling in arms and face can this be celiac as well?
I'm in the UK my friend has celiac desease last year had to take a few months off work due to having very high calcium levels which made her very tired
Omg 😱 thank you for this info, now it makes much more sense. I am a celiac, but lately I have problems with kidney stones. I'll go check my calcium levels.
Being tested finally now that Im having most symptoms of celiac , plus symptoms of ulcerative colitis right now . I was diagnosed in 1991 with Dermatomyositis . But never tested for Celiac ?! WtH ? Also I have fibromyalgia and Thyroid disease .
Does anyone get a pain under their left rib like right at the bottom feels like it’s underneath the rib? Had it for 6 months now I’m guessing it’s from eating gluten? Any help would be appreciated!
@@keithperry1641 I’ve had an endoscopy and blood tests and have been told there’s nothing wrong with me started eating gluten again and I haven’t been too bad but the pain is still there everyday feels like it’s the tube leading to the stomach just an annoying stabbing sensation
Allot of people have this problem. Try digestive enzymes when eating. After eating make a tea with fresh ginger. Try to fast a couple day ones in the month it will kill allot of the bad bacteria causing this pain. Good luck
If there is a malabsorption issue in the digestive systems of celiacs in the vitamins such as iron, vitamin k, vitamin d, calcium etcetera, we could utiliz3 the technology of glycerin and vitamin blends to inhale through vaporizers to introduce the needed vitamins to the blood system via the lungs.
I have real Coeliac Disease/ Celiac disease and Morbhus Durhing its very rare and only can be tested by a biopsy, this is the real way. I am also allergic to grass, pollen etc but INTOLERANT for GLUTEN and WHEAT. This is called intolerancy not allergies. Offcourse we as rare disease auto immune sufferers can only get better if we stop gluten and wheat. The rest you have to do allergy test. Lactose is also an intolerancy not an allergy. I follow a vegan/vegetarian diet and let it be known its dangerous as im plantbased and a gluten free wheat free human being thats almost impossible. SO DONT TRY THIS AT HOME WITHOUT A DOCTOR OR YOUR DIETIST please. Most people can eat gluten with being plantbased but i cannot its medical. I wish their was a pill but there wont be. Otherwise i was a vegan without any trouble. So i am still cruelty free xxxxxxx
a lot of us have "real" coeliac disease having been diagnosed by our doctor ... I don't know if I had Morbus Duhring as my rash was diagnosed as excema and that was never questioned
You will become short of Vitamin B12 on your diet. If you can't eat meat take a supplement or you will end up with pernicious anaemia, which is fatal if left untreated.
I feel like finally will know why since my 20s started i had have issue with bloating, extreme farting at night, I always feel this cramp in the upper part of my stomach, i feel fatigued every single day If u could sleep all day I would, I had extreme depression to the point i has to by hospitalized, I have blisters in my gums. And this last month I had SEVERE diarrhea like for 2 weeks straight I couldn’t even sit properly because my butt hurt so bad because i had to go to the bathroom so much, i had to go to the hospital 2 times this last moth with severe pain I had to get intravenous fluids because i was severely dehydrated (both time) thats when they told me to check If i has celiac disease. I am going on monday to get my tests done, part of me wants the test to be positive and finally know what I have wrong with me and part of me doesn’t…
Did you go on a strict gluten free diet ? Once you go off anything with wheat barley and rye, your symptoms should disappear. If you go back on gluten and the symptoms return, it’s a pretty safe bet you have CD. I did this, and that’s how I knew gluten was the problem. I went to the Drs and he confirmed it. I believe there’s now a blood test. Good luck .
Wow, well I guess this is why I've always been severely underweight. I don't know if I can go without pasta, but eating gluten is very painful for me and I am extremely malnourished! Does anyone have suggestions on good substitutions?
Try Chickpea pasta - it's tasty and has a lot of protein too. Banza is a good brand - I use it. There's lots of different options out there now in trying out "different" gluten-free & grain-free pastas.
All supermarkets in the UK have large sections of gluten free foods. Even ready meals, pizza and pasta. A wonderful variety of cakes and biscuits. Also lots of dairy free foods including cheese and ice-cream. Chocolate too. A large choice of bread and cereal. Shopping is easy nowadays with this disease. I have Coeliac and Crohn's disease but shopping is no longer a problem.
I recently had a blood test which had candida and raised white blood cells ,I was feeling really unwell at this time and had pain in lower left abdomen, I thought i had a urine infection but that was clear, the doc had me do a stool sample to test for cancer which was clear had a ct scan that was clear had a Ecg that showed slight abnormality but havent had proper results yet, went for endoscopy today and the found Diverticulosis and removed polyps. I do wonder if I have this as I have constant bloating, constant gurgling, constant stomach cramps ,occasional headaches , constipation, sometimes I suddenly need the loo,I have sores and boils constantly,no hunger or appetite ,feel ill no matter what I seem to eat. I also have fibromyalgia so in constant pain all over and constantly fatigued.
I had a biopsy on my arm and celiac was found in my skin. The Dr sent me for a blood test and it did not show up in my blood. Does this mean I have it?
When i was little i remember hating bread,pasta etc everything that has heavy flour-y thingy, but mom always force me to eat these or i won't have anything else to eat. Today i found out why i was sick everyday while other kids seems to be happy and active everyday.. Idk how much destroyed my inner organs are but my skin is 80% destroyed, idk what to do 😭
I can't burp, never have, I had 1 donut and im sick, no diagnosis yet but I'm sure.... I have diarrhea so bad. I have been losing weight. I have CFS after extremely high EBS test. I have high calcium.... low everything else. Low D2 especially. I have been bruising badly.
Celiac is not diagnosed when i tested from laboratory. But i can not drink and eat properly. There is lot of stomach pain and pain is relieved when i eat something, then motion start. The pain is worse between meals and night. When i eat rice i feel relaxed but lot of rice leads to asthma at night. Plz help
It's the environment we keep destroying that is not giving the best nutritions to the food that humans need to consume. We end up being less and less capable to regenerate for our bodies.
@nancybender5389 More like wheat, rye and barley are the offending grains. Regular oats are contaminated with these grains which makes them toxic as well
Because grains taste so good. Anything with Gluten tastes good , gluten free bread is ordinary to say the least. Pasta pastries, that are GF free are just not that good. But you adjust, you don’t have much choice 😉 Being celiac, going off the diet and eating gluten is not worth the pain.
I had a colonoscopy done then 5 weeks later my Docter tested me for celiac could that have been wrong since he did so close after cleaning me out and not really eating Gulten after?
Iberogast from the chemist 20 drops in a little water, helps with pain and bloating. It’s natural herbs,😉 and you can take it several times. It’s saved me many times I wouldn’t be without it
I have literally every single symptom in this that can be detected without testing. This seriously sucks and I don’t want to live with this for the rest of my life.
I was recently diagnosed with coeliac disease. I am 30, my symptoms started about 15 years ago but there was no gut symptoms or weight loss, just anemia/fatigue/headaches/depression. SO no one ever thought to check for coeliac BECAUSE I didn’t think I had any gut symptoms. I think it’s important to highlight that you don’t have to be bloated and pooping constantly to have this disease so if you have any unexplained anemia or tiredness or low mood - get checked!!
How you feeling ?
Very good advice, this disease has many different symptoms. The longer I’ve had it the more symptoms I have. I’ve noticed it more in females than males.
@@williamkreth after the first month gluten free I felt incredible. Brain fog gone! At last! However I’ve developed more than this autoimmune condition haha. My thyroid is on the way out due to Hashimoto’s disease but testing thyroid levels has been inconsistent so they won’t give me the drugs I’m pretty sure I need - I was told to wait till I got sicker 🤣 Still have the exhaustion/fatigue to the point it’s affecting my ability to get up in the mornings and be on time for work. I just need to be persistent and force my docs to listen!
@@wendyhannan2454 I agree, it gets into all aspects of your body that you have no clue about… This is a touch of tmi maybe, but periods. I used to get the most awful cramps, super heavy period every month, I’d be out of commission for at least a day if not two. Since going gluten free, I barely even notice it. Gone is the excruciating pain I was going through ever since I started menstruating as a kid, that I was told was normal and to get over it - it bloody well (excuse the pun) was not normal!! This lack of awareness and lack of listening to kids when they’re telling you something isn’t right is so horrible and has me feeling so cheated out of a happy childhood y’know? Anyway. At least I don’t have that physical symptom anymore either :)
Are you recovered now??
Took me ten years to finally get a diagnosis of Celiac disease. Thank goodness there’s a lot of GF options out there now. Yes , I have osteoporosis. Yes, I have IBS. Yes, I have diarrhea. Yes, I experience stomach and back pain. I try very hard to watch what a I eat. If I do consume gluten, I suffer nasty reactions. I avoid milk, drinking Lactaid or Almond milk instead. I take Calcium, Vit D, B12, Potassium and Magnesium. I try to eat plenty of vegetables, avocados, fruit, and GF Oatmeal with flaxseeds. Now my BP is going up, so I am adding in foods to try and bring it down naturally. Good luck to all of you who have been diagnosed with this disease. It does take diligence, but you can do it!
Why do I get an itching red spots between my eyebrows and on jaw by chin? Eventually it becomes flakey and comes off. Never used to have this type 💩started around 4 years ago. My roommate always had it. It may not be communicable but hell of a coincidence. What you think?
I found out I had it almost 4 years ago, Im 50 now and suffered since I was 12. Sure caused a lot of other health problems over the years not knowing.
Add oat bran to your porridge - it lowers BP. Also, eat beets before bed...google for more -
thanks
It took 10yrs for my mom too. I wrote about her experience in this thread.
My mom has had migraines since age 9. She's now in her 70s. About 20yrs ago she was dx with celiac. It took 10yrs to get a diagnosis. She had various symptoms but was seeing different drs for them (neuro, derm, blood, ortho etc) so no one had put them all together. When she got the skin rash I told her that was a celiac symptom (had read about it) and along with the other S/S she had, celiac seemed very likely. She asked for testing and the rest is history. She later had to have a foot of bowel removed because of all the damage that occurred before diagnosis. She's doing great now!
I'm really sorry to hear that. I was Celiac for around two years before getting the correct diagnosis. And I was so devastated during that period of time. Now after following strict diet. I'm feeling way better. But still suffering from now and then. I lose weight so easily and suffer to regain that lost weight. Mouth sores are the moat disturbing thing ever.
I believe I may be reading this a year late but I hope she's feeling better.
By which test confirm that she has celiac blood or endoscopy biopsy
Self-diagnosed Celiac here. I had bloating, diarrhea, constipation, Dermatitis herpetiformis, low energy and it all disappeared after going on a gluten-free diet. The symptoms come back if I eat or drink anything containing gluten. I went to a lot of doctors as a kid but they could never figure it out...
Even I have bloating and sometimes constipation
There is malabsorption of nutrients in my body and I have weight loss
Did you have any of these symptoms as well?? If yes then did a gluten free diet complety cured it?
Please help me
@@nikhilagarwal3059 I had rapid weight loss and fatigue due to malabsorption caused by Celiac, bloating was a daily occurrence when eating or drinking anything containing gluten. It took a few months to see results as my body started to noticeable heal but no more bloating and I'm gaining weight normally. I would say try it and observe what happens for a few months or go see a doctor.
@@quaestus7818 Thank you so much bro❤️
same I’ve found several doctors but they couldn’t figure out what is happening to me
Same with me...till one smart Dr gave me the right blood test in 10 yrs...coeliac finally not a life style choice. I mean really who would choose it.
I've had ulcerative colitis since I was 15. I would get flares so bad I would lose 20 lbs in a week from vomiting and diarrhea. I've been severely anemic since 1999. I don't know if I have celiac; I've not been tested. A few years ago I decided to go gluten-free and the change was amazing. Now I've also gone grain-free as I noticed supposed GF foods were still making me sick. My intestinal issues have completely disappeared, my skin is healing, and my iron levels are slowly improving.
Hi tara I've been really suffering with my stomach did any if your symptoms last weeks or affect your breathing . I've lost alot 1st in 11 days and feel so I'll with my stomach . I'd benreally grateful if you could reccomend some foods as I'll also be looking at foods I can try in the gluten free diet
I did not realize I had it until I had my dna tested. Thought it was just IBS
@@kimberlytaylor1302 Oh I didn't know they could test your DNA for it??!! I'll have to check that out, thanks!
@@tomdobbo6121 So sorry you're sick with this too. I basically eat a keto diet for the most part, no grains at all and on days when I do have carbs I'll eat fruit or sweet potatoes. I used to get colitis flares that would last weeks and I'd end up in the hospital because of dehydration. I never had the breathing problems; you should get checked out by a doctor if it continues.
There is a blood test for celiac now. After losing my gallbladder in 2017 being in the hospital 7xs, ICU 2xs, diagnosed with pancreatitis. I'm carnivore. I'm basically allergic to everything. I eat grass fed & finished beef and duck eggs that are free range making sure they haven't been fed grain or soy. No sugar no dairy. It isn't fancy but it doesn't hurt.
Gluten gave me such brain fog that I couldn't function, ruined relationships, lost jobs due to confusion and frustration, after eliminating gluten for a little over a month, my mind completely cleared. I thought I was going crazy... shits wild
This is exactly my position right now. I don't know what has suddenly caused confusion. I have gone through everything you have stated, including quitting my job and school because of too much confusion. Thanks alot for sharing!
Same with sugar
Haha, shits wild… sure is! 🤣 I’m excited for the brain fog to lift. I honestly thought I was going insane, or having some weird ass early menopause (even though I still have my period??!) because the brain fog is so bad. I’m only 30!!! Got my diagnosis a week ago so I can’t WAIT to start feeling the results ☺️
OMG I literally have like +80% of these symptoms! I've been suffering for the last 15 years not having a clue. Ty for this very informative video. I will definitely get tested for this now and STOP eating wheat and gluten FOREVER!
Do you have issues with balance?
Don’t stop eating gluten until a doctor tells you to!! You need to have been eating gluten in a balanced diet for 6+ weeks before you get your blood tests and biopsy so that they can confirm the diagnosis. If you stop before your tests, your gut might heal and they will think there’s nothing wrong with you. But I guess if you do go gluten free and it works for you and your quality of life improves, diagnosis isn’t the most important thing ever. However if you live in certain parts of the UK a diagnosis will help you get gluten free food on prescription so it is worth pursuing :)
@@elmondo-s1e I’m in the U.S., and a gastroenterologist told me what it would take to get tested for gluten sensitivity. When she saw the horrified look on my face, she said that if I’m getting good results just avoiding gluten, to keep doing that. I’d been eating gluten-free for several months by that point (maybe 13 years ago). In the U.S. we don’t have that option to get gluten-free food by prescription. We’re on our own.
@@noglu106 I think you meant your reply for someone else, not me. As I said, I’m in the U.S., and there’s no such thing here as any kind of food by prescription. I just go to a store and buy what I want. Maybe Elizmo?
@@noglu106 huh?? Like a doctor’s prescription, that a medical doctor writes, that you have to go to a pharmacy to fill. That’s what I mean by a prescription. I don’t understand why you seem to be confused by what I wrote here.
In first part you talked about gastrointestinal symptoms, and talked "we're going to see". When in reality one could have no gastrointestinal symptoms at all, and instead get damaged silently. A very important point.
So true , it was neurological problems for me that led to diagnosis . However during my first consultation a lot of other symptoms were present but I’d put them down to hypothyroidism and menopause and ibs
@@bethanhamer.8669
Indeed. And they can be very severe, too. In general, malabsorption, for years/decades can be just devastating (and no intestinal symptoms whatsoever)...
I had been small and very skinny my entire life, when I was 9 they discovered that I had celiac. When I started eating gluten free I got more energy, gained a lot of weight and grew a lot. So you don’t always know if you have celiac bc the symptoms are very diverse. I had no stomach issues or anything.
I believe I’m suffering from this disease. How did you address this with your Dr. if you don’t mind me asking?
@@φαρμακεία-πρωταρχικός You will need to arrange to get a blood test, called a ttG test. If that comes back positive your doctor will arrange for you to have a biopsy done on your small intestine to confirm the result.
@@SeanFication thank you so much! Hopefully I will can find time to get in to see a physician.
After 15 years of suffering, along with many visits to the doctors. Eventually, I was given a blood test and then an endoscopy. Which confirmed I have celiac disease. My villi was completely flattened. Have also been diagnosed with osteoporosis and low B12.
How does this common help anyone? didn't even even explain if you
NB: some of this does not always apply and doctors need to be aware!!!! I had many signs for decades but no diarrhoea, no flatulence, no sounds, pain specifically over my appendix which caused frequent misunderstandings (no you do not have appendicitis!) I could go up to 3 weeks without passing stools, I could pass white stools or very dark pellets. I was eventually diagnosed because of weight loss and meals passing through in a couple of hours but by then it was extreme. The deficiencies all applied but I did not feel fatigued, just cold from weight loss.
I do recall passing hard pellets in the beginning. I was and felt constipated all the time. Doctors told me to take fiber supplements and Gas X. Finally, after ten years of symptoms and pains, a DIFFERENT doctor suggested an endoscopy, and she diagnosed me because of the shortened villi. I already had two colonoscopies by that time. It has been 20 years now, and I have had diarrhea for a year now, every day.
I had so very many of these symptoms in every category. I had anemia, I once missed my period for 11 months, my stomach used to make terrible rumbling noises, I was always small, I suffered with depression but it was alleviated when I was diagnosed with thyroid disease.I still get migraines and my forehead is always itchy on the left side with a few of those white bumps. I have been gluten and dairy free for 9 years now. I wish my migraines would go away.
I'd like to share that I use a product called Prebiothrive from Gundry MD and taking one small scoop every morning completely eliminates the diarrhea. This along with a sugar free/grain free diet allows me to have my life back. Note that rice flour does have a form of gluten called orzenin and corn has a gluten protein called zein, so avoiding the purchase of "g/f foods" using these grains would help . An excellent book called "Against all Grain" by Danielle Walker is a HUGE HELP.
Thank you I shall try this. Xxx
😮 I am so glad I saw this video because it seems as if none of the doctors I’ve had have questioned if I have this disease. I must be sure to mention it to them since I have most of the symptoms. Maybe all the symptoms! Wow! Thank You so much for this video.
After finally being diagnosed as a coeliac and not a hypochondriac, the migraines ceased. Then I realised all dairy products were causing GI issues. Then the sinusitis stopped. Dieticians I have been referred to, have been totally useless. I have been taking vit B complex and vit D with fish oils on my own initiative without being guided to do so. Turns out to be more important than I realised. Menu planning would be so much easier if brassicas, tomatoes and vine fruits are now an allergy issue. Not sure that calcium supplements are a good idea, better to have it inorganic form, i.e. in vegetables. Works better in livestock grazing limed pastue.
@Abi Brown cannot get it in our local pharmacy, UK. It used to be available as a chilblain cure. Well at least it is available in most green veg.
Celiac disease can have so many strange symptoms. I have noticed that my intolerance to heat is has now disappeared on the gluten free diet. I personally take a multi vitamin and vitamin D. As far as calcium supplements go, you won't need them if you're taking vitamin D. D and calcium work together in the body. In fact, most of the time people who take a lot of vitamin D need to lower the dosage not because of having too high of a vitamin D level, but because calcium levels can get too high. In reality osteoporosis is 100% because of a vitamin D deficiency. Glad you are feeling better
@@lotsoftorque3632 I have weight loss(muscle loss), malabsorption of nutrients and bloating. I feel like a have celiac. Can a gluten free diet complety cure it?? What changes did you experience? Please help me
@@nikhilagarwal3059 Which vitamin deficiencies specifically do you have? Unfortunately your symptoms are general and can be a few different things. But first test for celiac disease is to get a celiac blood panel done. That will check for elevated tTG levels (gluten antibodies). If your level is elevated then the next step would be to get an endoscopy so they can take a look at your small bowel and see if it contains lymphocytes, and see if the villi have been damaged. The technical term for damaged villi is crypt hyperplasia.
@@lotsoftorque3632 Greatt!
Thank you so much bro ❤️
Great video. I get a headache often the following day after eating wheat, like bread, and also fatigue. Problem is I avoid gluten and have no issues for a while, then think it will be ok for some small amounts of gluten. Occasionally get away with it, but sometimes not.
I tried that one ☝️ I’ll be ok, just a little gluten won’t hurt, It hits like a ton of bricks. Not worth the un-comfort and pain, plus it can take weeks to get over it. GF for me only.
I was recently diagnosed with celiac and i always wondered why my stomach made weird noises, like it wasn’t my stomach growling but it definitely sounded like it but felt really different, like it was in a different part of my abdomen, i always got embarrassed and if anyone heard it I would blame it on me being hungry
Yeah same!!! Especially in class it’s so embarrassing. But finding someone like you is amazing
When my belly is making the noises & I lay on my back, you can SEE my intestines moving.
It's disturbing to even watch, I've made my husband watch it happening. I had gastric bypass surgery (2003) & blame everything on that. In addition I have to admit that I do not take care of my health as I should. My vitamin levels were so low at one point it felt like a heart attack, the ER doctors said everything they tested required a monthly Rx to increase my levels. I do get very sick if I consume dairy, at times too much sugar or simply eating too much will cause me to throw up. I have every symptom this video for celiac disease discussed. The moving of my stomach was the reason I posted, I tend to get off track. Has anyone else experienced this?
Lmao i was sick recently with a bad case od food poisoning so my gluten problems were exasperated. Never have i been so humiliated with gurgling sounds coming from my lower abdomen /butt lol at work everyday. I had to quit drinking water during this time even though i was having massive diarrhea so i could limit the gurgling noises at work. My face lost all of its fullness cause i wasnt drinking enough water and super sick. I prob could have ended in the hospital honestly but i was having tons of hydration packets at home.
Anyway, i absolutely know the embarassment and would reach for the food to mask my noises in the office. But i mean how much can i mask when i was thattt sick for 2 months and only took 1 day off acting like im normal but being 5 min late everyday expecting to yelled at for my tardyness!!! 😬🤦♀️. The pepto and limiting water intake and not eating at work was the only thing to minimize that embarrasement but was still super embarrased! It was /still is a vicious cycle cause now i have post infectious IBS on top of my regular IBS problems so its now on another level lol! If i dont eat, then im making hunger noises for all to hear!! If i eat then im making other digestive and gurling noises and stirring on the IBS-D in the quiet office lol!!! It sucks lol. Im glad im over the worst of it(2 months of that) but 4 months later still suffering and healing lol just from that... its a constant battle still with not eating but hunger noises and then having to eat and having to poop 😒. At least i dont have the gurgling so much now... but i still reach for the food on rare occasion at this point to mask the other noises i cant control 👀😬😞. Im sure i wasnt fooling anyone honestly..
This is a good point, i had a crazy sounding stomach that would almost sound like an internal fart noise, it was embarrassing.
My daughter was diagnosed at 5 years old. Her symptoms? Chronic constipation that caused urinary tract infections. The pediatricians PA scolded me that I needed to get the constipation under control. I responded… I have tried natural remedies, medication, and done everything you have told me to do. It works for 2 weeks and stops. Do you think it could be something in her diet?! …. And that’s when she was tested and her panels came back off the charts per the PA. Only afterwards did we realize her fatigue, dark circles under her eyes, and behavioral issues were part of it also.
What type of behavioral issues
Thank you so much you have answered all my questions about what is going on with my body. This is new to me, and I have diarrhea and it happens without me even knowing it is happening. So embarrassing and uncontrollable. I am at the beginning of testing for Celiac disease and all that you teach about this I am experiencing now. This has been going on since April 2022 and getting worth. Do you recommend keeping a food journal to see what triggers the disease?
If you have coeliac disease you don’t need a food diary - it’s triggered by gluten found in wheat, barley, rye and potentially any product that is processed in an environment that also processes wheat/barley/rye. Also if you’ve had this for a while, the damage to your gut means that it doesn’t really matter what you eat. Your villi will be so damaged you’ll have diarrhoea no matter what you eat, until you stop eating gluten and your gut gets a chance to heal and start absorbing nutrients again.
You should follow the advice of the doctor testing you - don’t add or remove anything from your diet based on internet advice. Hope you get on well and your health improves :)
I have chronic asthma and had an almost constant hacking cough. I went pretty much gluten-free ( I still have products in breadcrumbs and can get away with a few crackers or a thin pizza base) and I no longer cough until I vomit/sound like I am bringing up a lung. Before going gluten-free, I went lactose/milk free. Did not get on with the milk replacement products ( oat, soy, almond…) but now have lactose-free milk but normal yoghurt and cheese. I feel much better, get less severely ill less frequently and my skin has improved too!
Glad to see something about celiac. I was born wth IT. I was told I spent first two yrs of my life in hospital. Back in 61. Then I was given enzymes to get a spoon of water down. Ate a lot of bananas. As I grew older, I didn’t have any issues. It wasn’t until I was 27. Corse I don’t remember much before I was 10. That I was celiac, didn’t understand why I kept getting sick. No one said anything to about it. I finally found out in my 40’s. Why didn’t my mother tell me. I know now about everything what I went through when I was born. I felt robbed of soo many years of eating great food, then loosing in. Couldn’t keep weight on. Geez, some people parents.
Exactly the same with me. Plenty of bananas
how would parents know if even doctors don't know? I was given baby food tiktok was
LOADED with wheat because doctors back they said it was good for a baby who was constantly sick on their stomach and couldn't digest very well., and that it was very "nutritious". I probably got my intolerance triggered or worsened back then and it probably affected my development a lot. But my doctors and parents were doing what they thought was better for me, because they were taught that by someone else.
My folks didn't pay attention to me either
@@roseannagross5094 we’re not all born with it. It can develop at any age, but you’re right in so far as you do need to be born with the genetic predisposition but not everyone born with the genes needed will develop it. I didn’t start getting symptoms until I was a teenager!
That’s really sad that they knew and didn’t tell you. Maybe it says more about how bad the education is for parents - sounds like your folks didn’t realise how serious it was and didn’t think you would continue to be sick all your life. I think a lot of parents struggle with accepting that there might be something wrong with their kids too. My mum is really dismissive of my diagnosis and makes weird comments like “yes I suppose it is serious for some people” as if my coeliac isn’t as serious as other people’s haha. Humans are weird. But I am sorry for your loss. I hope you’ve considered getting therapy to help you cope with the feelings of being let down, it really helped me to talk to a professional. I hope your health is good nowadays :)
No one knew what was wrong with me until I took the '23& me' ancestry test. I have both variants that cause CD. I can finally get the help that I need to thrive from my Dr. I thought I was dying but it's just Celiac.
You didn't even mention if you got better?
I just got a result from bloodwork that I tested positively for signs of celiac. I was diagnosed (without any tests) with IBS like 15 years ago and was just told to eat more regularly. So many of these symptoms also match. Fatigue, regular headaches, horrible cramps that come in waves, very irregular periods and have had an extremely itchy rash on my hands for the past month or so
What was the point of writing this comment?
I was self diagnosed in August 2007 after participating in an elimination diet (The UltraSimple Diet) Since then 2 of my children and 1 of my siblings have been diagnosed. I am so hypersensitive that I have to feed my pets gluten free food so that I don't get "glutened" I have dermatitis herpetiformis, and fall in the small percentage of Celiacs that gain weight instead of loosing weight. Gluten cannot touch my skin without developing welts, so asking people to wash their hands has become a must. I also changed out all of my personal care products to gluten free products. Talk about being a unique individual. I must say that keeping my home gluten free is less stressful by far.
I'm glad you have taken the necessary steps to feel better. I self diagnosed also. Airbourne gluten bothers me a lot. I cannot go inside many places. I take quercitin, benadryl, benadryl cream, zyrtec, and pepcid ac to control hives. On the flip side being celiac forced me to be extremely health conscious so that is a good thing. I cook my own food. I only eat omega 3 eggs as far as animal products is concerned.
@@TheConscienceOne It sounds like you are adapting well to a healthier lifestyle. That's awesome. I have found that the further along in your journey, it gets easier and the body heals more quickly. I also cannot visit many restaurants or stores that sell bulk grain. I cook most of my own food as well. In the beginning I could not eat dairy, eggs, or even beef due to not being able to digest the proteins. Now I have no issues. I also take a multivitamin made for people with celiac its Freeda Quintab-M they are free of many allergens and are vegan. Also using coconut oil and eating okra is great for gut health.
I'm the same, extremely sensitive to gluten. It's just as you say - I have to make sure that even pet food and personal care products are glutenfree. I cannot got to places like bakeries or restaurants or the supermarket aisle where the wheat products are kept.
I have all the other symptoms that are typical of Celiac as well, such as alopecia, infertility, hormone problems, malnutrition etc - though strangely enough, I'm also one of the very few Celiacs who put on weight rather than loose it. If I were to eat a normal diet, I'd be morbidly obese in no time. Before I switched to a glutenfree diet I suffered from severe diarrhea, extreme stomach pain and abdominal pain, abdominal swelling, severe bloating and severe fatigue.
I had absolutely no help from my doctors who have throughout my life insisted I was lying, imagining everything, too stupid to know how to consume a healthy diet, attention seeking, stuffing myself with sugary foods and very spicy food all day long, anorexic, bulimic, alcoholic, ripping my own hair out etc etc etc. None of these things are true. It often resulted in very upsetting scenes such as me being forced to bring witnesses along to the doctors to confirm that I do eat and don't make myself sick on purpose to avoid getting falsely diagnosed with a mental illness - very difficult when one lives only with pets which I did at the time. Most doctors shouted at me insisting that they were right and when I didn't agree, I got kicked out the office and the doctors wrote on my medical records that I was allegedly "difficult, argumentative and a trouble maker".
Despite being on a glutenfree diet for nearly twenty years now, my bowels still react to everything I eat, though nowhere near as badly as before I changed diet.
Took 13 years of hell from weaning to get my daughter diagnosed with dermatitus hepetiformus, itchy boil like spots on MOST of her body..3 skin specalists later we self diagnosed even though I was a celiac for years before it was never mentioned there were some who had skin problems. Since found lactose is bad ,and my grandaughter has severe dairy allergies also. Also I suffer from weight issues,though eating nothing.
Ohmygosh yes to all of it!! And Weight gain = inflammation!! So painful.
🙏✌❤ to You ❤
If you have this disease the best thing you can do is quit eating wheat and start taking lutein supplements.
Indeed I have discovered this lutein deficiency connection by chance and by never giving up on getting better.
It is probably the reason you have so much inflammation. It totally relieved my irritated ,dry and burning eyes and my chronic neck and shoulder pain in one week .
I believe it will help with just about every type of inflammation from our head to your toes even hemorrhoids.
God is great 👍
What brand lutein?
Great video thank you. ✅ I’ve had an itchy scalp and hair loss, I don’t have a raised rash. I believe it to be DH does any one else have the itch, without the raised blisters ?
So grateful for all this info on CD
Earlier I did a blood test for wheat allergy, spice allergy, dairy allergy, and celiac disease. For like more than 5 years, when I eat foods that has gluten I would end up vomiting in few minutes. Since April, I would have 3-4 times a week diarrhea. Plus since last year I would have dizziness and lightheadedness along with headache and itching
Could be celiac or gluten intolerance. The best way to test for celiac is get a celiac blood panel done. The tTG antibody test is the most accurate indicator of the disease.
@@lotsoftorque3632 well my allergist officially diagnosed me with milk allergy. Celiac test panel all normal
@@jasonatabay8242 still could be gluten . Had all normal also . Only a biopsy will tell for sure
It's negative as well. I have tested for true milk allergy and I have to carry epi-pen with me at all times
@@jasonatabay8242 Glad you found the issue. If you do still have problems tho it may be worth it to cut out the gluten.
Broke my fibula when I was 25 years old, in the military. Got diagnosed with Celiac when I was 36 and it all made sense. I was having headaches, cramps, diarrhea.....
I just recently started having diarrhea past few days. Diagnosis for wheat allergies 5 years ago and I’m severely anemic.
@Jeannetta Joy I have been allergic to gluten and dairy for over 40 years, suddenly I couldn't tolerate any grain or soy. No corn oil, cornstarch, cornmeal, oatmeal, rice etc. Almost every health and beauty aid sources vitamin e from soy.
Have never had Celiac diagnosis or any intestinal disorders. I do have psoriasis and psoriatic arthritis and wow, when I changed my diet. Both went into full remission. I wish it was just gluten but I have to avoid many other foods too. Gluten affects my psoriasis way more than my joint pain whereas other foods affect my joint more than gluten. I don't care if I irritate people because of my extreme diet. I am so happy to be pain and discomfort free. No more blood monitoring because of the meds I was on because I no longer have to be on them either.
Hi can i email you to get more info? What were your symptoms of PSA?
@@moniquefacey5760 psa symptoms were pitted fingernails, swollen knee, mortons neuroma in feet, back pain, swelling in fingers and toes, moving arthritis and of course, psoriasis. I am pretty sure I had chronic inflamed lymph nodes too because those also went away with diet change.
@@janetpelletier1238 same
What diet are u following and wat u eat??? If u could plz share
@@inshaparveen8003 I am now doing carnivore, it's just easier, with some fruit here and there. Initally, I did a hardcore elimination diet which can be found online. Eliminate dairy, gluten, high carb, citrus, nightshades, reduce sugar a lot, alcohol. Keep a food diary and watch for reaction. I still feel effects within 1/2-1 hr after eating so I am aware. I had plums last week and my heart rate sky rocketed and then my joints flared., for example. Follow beef, butter, bacon, eggs for a bit it's also pretty amazing.
I came here because I was interested in learning more about the mechanisms of action behind this disorder, and the video definitely delivered however these comments make me sad for humanity.
Ever since I got diagnosed abd started my diet I have felt so much better
Whats your diet like now?
How long did it take to feel better?
Extremely educational. Thank you so much for sharing your expertise ❤ This explains a lot.
Wonderful video, thank you for sharing in details! Please do a video for type1diabetic in kids, please share your thoughts as well. In additional, pls also do a video on hyperthyroidism in kids who got diagnosed with type1diabetic. Thank u
Ll) uh
I have almost all these symptoms except weight loss & lack of menstrual cycle, I actually developed excessive menstruation due to Adenomyosis. I was told that I was gluten-intolerant but I think I do have Celiac Disease.
I’m drinking bone broth and aloe Vera juice to HEAL my gut … praying that it helps because I’m miserable!!!
I've not been diagnosed officially yet but I have self diagnosed celiac disease. My sister homemade gluten-free pasta the other night but the sauce was not gluten free and now I've been sick for a few days. Sucks.
I was dealing with diarrhea, now constipation. My blood test showed celiac disease, and now they want to do an endoscopy, but I’ve been off gluten for two months and I don’t want that poison back in me for the test. I’m hoping they can do the genetic testing.
So my vitamin D plummeted and i also gained weight with this. Because like the video said compensation by over eating. I also became anemic and my fatigue and body pain is intense. I wish it was easier to not eat gluten. Sometimes i just mess up and eating meals with the family is hard. . I eat gluten by mistake one time, Im messed up for the whole week. It takes so long to see results from being gluten free for extended periods of time.
Me too...unbelievably exhausted
You must avoid gluten at all costs. You will feel much better
I agree. It takes like a week to recover, and its so easy to eat a meal and immediately feel the pain and stomach issues
I have never dealt with diarrhea, so makes me wonder. I have constipation, gas, malabsorption & bloating.
same here. i dont have diarrhea, but have constipation, but also bloating, tingling cold hands and feet, heart palpitations. Google search says constipation is a symtom, so possible.
@@serfinusa9532same symptoms have u checked for celiac disease or IBD?
Hives is what got me to stop and find out that gluten is , if not all, then at least some of thenreason behind my itchy skin and hives
Celiac and rheumatoid arthritis go hand in hand....
Celiac deases makes allways hungry ? Increase appetite ?
You did a great job with this video. The illustrations were very good, too. Thanks for uploading this video. I am using this video to self-diagnose.
Please don't self diagnose! Make sure you get diagnosed by your Doctor so that they do the proper tests and screenings! By not being checked you could risk having other health complications go undetected!
@@melaniedrinkwater8310 Thank you for your concern. Firstly, I am poor, and can't afford a doctor. Secondly, I don't trust western medicine. Lastly, I know my body better than a doctor who reserves five minutes of his time to diagnose a person he knows nothing about.
I have observed a host of health problems that immediately get worse, for example foot inflammation, the moment I eat gluten. When I avoid gluten, these symptoms decrease.
@@melaniedrinkwater8310 I had to self diagnose over 30 years ago. I still haven't been able to find a dr that takes my health issues seriously as I fail the blood test because of my gf diet. Drs are a great resource but not infallible.
Thank you for your video on coeliac disease. I now realise I need more supplements. Xxx
I’m starting to think I have this disease after a year of nausea, abd cramping , anxiety and years of canker sores
Get a doc
ASAP, doctor, insist on test for Coeliac.
Candida...and Celiac deseas...goes hand in hand.....candida plays a very big role in Celiac....
I recently had a blood test which had candida and raised white blood cells ,I was feeling really unwell at this time and had pain in lower left abdomen, I thought i had a urine infection but that was clear, ths doc had me do a stool sample to test for cancer which was clear had a ct scan that was clear had a Ecg that showed slight abnormality but havent had proper results yet, went for endoscopy today and the found Diverticulosis a d removed polyps. I do wonder if I have this as I have constant bloating, constant gurgling, constant stomach cramps ,occasional headaches , constipation, sometimes I suddenly need the loo,I have sores and boils constantly,no hunger or appetite ,feel ill no matter what I seem to eat. I also have fibromyalgia so in constant pain all over and constantly fatigued.
Do you know of any cases where canker sores were biopsied? I am newly diagnosed celiac and had a biopsy of a sore in my mouth - diagnosis was lichen planus.
I have lichen planus too and it started about 2 years ago. I noticed that foods containing wheat caused painful sores so I cut it from my diet and I rarely have any problems with my mouth now. I haven't been diagnosed with gluten intolerance but there must be a link.
@@clairelouise335 thanks for your response! I noticed the white patches started going away after about 6 months of no gluten. Crazy.
This is good, but maybe a disclaimer that only approximately 79% percent of suffers of this have actually reported diarrhea before treatments. The video makes is sound like everyone has that symptom. Clearly you care about such things because you elaborated on something else later on that not everyone has the h. dermatitis.
Hi Charles. Thanks for your comment! Definitely not everyone has all of the signs and symptoms discussed in this lesson, but I did want to mention many *possible* signs and symptoms of Celiac disease. JJ
true i didnt have diareah it was really bad pain and constipation i had to do a gastroscopy to actually get diagnosed because blood was negative
Incredibly informative video 🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻
Thanks this was a helpful video!
Very interesting.thank you
I went to the dr asking for a gluten test and was given a regular blood test and basically labeled as depressed cause i was heavier (but the dr was obese id say.. so look at that ignorance and double standard😒) so i was gaslighted, ignored, probably didnt believe people are celiac, and never even given a gluten allergy test which was the whole purpose of me going to the dr in the first place. So i just self diagnosed myself by going gluten free and noticing how it helped me for 4 years.
Even the dermatologist in 2022 gave me the "okayyyyy" face response that my eczema is caused by my gluten diet which i clearly acknowledge. Like diet causes lots of problems that are seen as woo woo to drs 😒. Whatever, i know what triggers my eczema even though their response was "maybe the shampoos" even though it really is the gluten and now I'd say SUGAR too. Cause it went away when i was keto for 2 weeks lol.
I was off last 2 years and managing (fairly well) with herbal acid pills and gluten digestives.. besides the IBS-D and anxiety before big jobs..
I have to get back on the gluten diet now though cause i had a terrible case of food poisoning from fast food which lasted 2 months and now almost 4 months later, my gut is still terribly destoryed and no pills are managing it so yeah i literally must go gluten free again 😬😬😬
My pet peeve though, is that even though i diagnosed myself as celiac 7 years ago, there STILL is not gluten free food availability. But yet the vegan availability is much more!! Its not that difficult to offer gluten free bread, even prepackaged at restaurants. But there are no options near my workplace when i go out with coworkers. And im certainly not going to spend $10 on some cooked eggs, no bread or bacon lol. Im not spending $20 on a GF pizza at work either when the wheated option is $5. Im not paying $14 for a bowl at subway when i can get a 6in sub for $6 lol. I'll prob stick to those 200 calorie protein bars as a meal replacement so i can go out with my coworkers. Not eat anything but just enjoy their company :/ :(. Its upsetting that gluten free has been more publicly known compared to years ago and this ignorance and lack of options still is going on for people who really need to opt gluten free... and yes i did mention it to the restaurants but will they offer GF bread for $2 more? No. I did think about bringing my own bread but like nah i dont want to deal with any of that and any way. How ridiculous. So the protein bars seem like the solution at this point.... so i can still participate in going out and dining at work..
I know im rambling on but its shocking!!! I even went to a BREAD shop in Greece, people who should definitely offer gluten free cause its their profession and industry!!!! Nope no GF option. Shocking. Absolutely shocking!!! Thats quite normal actually. Even in the states, not all bakerys and bread shops even have gluten free!!! But they will have vegan more likely lol!
endomysial abs iga was positive
Tissue transglutaminase IgA positive with value of 1.0 only above the standard range.
I had Brucellosis at the time these tests were taken. Doctors ordered these tests because of my severe belching.. some said it was anxiety, others stated it was celiac based on the results
I have NONE of these symptoms. None. Just recent weight loss ( but I am doing intermittent fasting and calorie watching) and a mild but annoying, and discomforting tingling headache in one spot in my head that occasionally occurs ..mostly at night after spending a long time on the phone/laptop.
There’s such a thing called “silent coeliac disease” where an individual presents with zero symptoms but the damage to the gut is present. Happens more than you think and there’s probably tons of people running about with coeliac disease without knowing a thing about it!!
I was having chest pains and a hard time breathing, breaking out into cold sweat here and there for a couple months about 3 yrs ago. Drs could not figure out why. A friend said she had the same symptoms and took Papaya enzymes and it went away. Just before I spoke with her I was sent to get a test for acid reflux and that's when they found I had Celiac. I didn't have any symptoms u less the chest pain etc was part of it but it came first when I woke up and sometimes it happened when driving. I dont eat much gluten to begin with but I did take the Papaya enzymes and never had those chest pai , breathing problems and cold sweat again as long as I have taken it. I did one time before the test eat pizza and some break stick and had diarrhea for that day and night. I have tried to stay away from gluten and working on being gluten free which shouldnt be rhat hard because most things i eat are gluten free but sometimes..... I do get cramps a bit if I do eat a certain amount. The only other thing I noticed so far is my hair has become very brittle. It grows fast but it also breaks at the end and I am worried it will keep breaking until I have none. I take vitamins, E, biotin, iron, multi, B12, calcium, magnesium , D3, zinc, C and couple others. Back when I was diagnosed they did a vitamin test and I was fine in everything but defefficient in D3 and was told to up to 2000. I will be fifty in a couple months and I have a hard time losing weight. I dont know if that's because of something with the Celiac or hormones. I spoke with a nutritionist, she mentioned a gluten free protein powder with 50 superfoods. I drink one shaker a fay with L-Glutamine powder which she mentioned is suppose to help lower and heal the VILLI. Anyone have any problems like the brittle hair and breakage? and did something work for you?
I wonder if I have celiac disease .I have severe ibs now for about 30 years with primary constipation. Spring of 2020 I had eaten a lots of pasta as usual , bread and things with flour ect as I always have. I had a bad reaction to the pasta and cake I made I haven't eaten in years. Now I'm wondering.
Celiac deases makes allways hungry ? Increase appetite ?
A blood test will confirm Coeliac disease. I had to have a biobsy. I almost died of pernicious anaemia, I would only have survived another day. Coeliac disease was causing the problem. So get your bloods checked. I was in my late thirties when I got diagnosed after a lifetime of pain and suffering, was thin as a rake too. At 65 I was finally diagnosed with Crohn's disease. I believe I was born with both conditions, but doctors then knew next to nothing about food and disease. I'm 80 now, no longer thin.I have many food intolerances but stick to a very strict diet so I'm now asymptomatic, have very few flare ups and I can control them myself. Just occasionally I need to take steroids, which work brilliantly at getting me back to normal. You can live a normal life if you are very care about what you eat.
I have weakness, issues with my balance, double vision, dizziness, I have been having stomach issues, bloating and pain in the right side of abdomen, pain in the back. Bloating and gas pain and abdomen pain comes and goes, leaves for a month and then returns. Just when I think I am okay, it comes back. Even when I don't eat bread, I still have these symptoms. I have chills and nauseous feeling. When I use the restroom, I do have that foul smell when I go number two and farts also smell. I have headaches in the back of my head and on the left and right side of my head. If I don't eat, I get really dizzy. And on top of that I have my mom yelling at me and saying that I don't have anything wrong with me and that I just want sympathy, let me tell my stomach it isn't real while I'm bent over, and the gas pain is causing me to feel like I want to throw up.
I have everything you mentioned. My biggest problem is if I don’t eat in 5-7hrs, I get dizzy, sweating like I took a shower, blurry vision. I have to eat or else I will faint. Another thing is I get random bruises and spider like rash.
def get tested, not eating bread doesnt mean you dont have gluten in other foods, a lot of foods have gluten in them, even some meat products, for example in form of preservatives, good luck in your healing journey
Try digestive enzymes when you eat. When you done eating make a Thea with fresh ginger. Your energy level will boost and allot symptoms will go away. There is still allot to learn even doctors don't know everything. Educate your self about your body especially your guthealth. I hope this will help for you🙏
On iron tablets and being treated for gluten ataxia ,after two positive blood tests I’m seeing the one professor in uk who specialises in condition . Lucky I live In Sheffield where it is based . I cannot go to loo without laxatives for years , be passed off till now . Presented with numbness in legs , fatigue , iron levels were seven . Also had high platelets , felt ill for ten years and all they kept saying was I was hypothyroid , I couldn’t get up one flight of stairs couldn’t breath , can breath now I’m on iron 400 mg a day , crap nails and hair . Spent mort of last ten years asleep just so I could go to work . So glad I was seen by a neurologist and finally going to get sorted 👍🥰 had migraines since I was five as well ,I’m 54 and finally I am hopeful instead of being told I’m depressed and it’s in my head which actually happened with rheumatology consultant when I was 45. Had infertility treatment at 25 , I think this has being going on for years. Had ischaemic colitis and bowel issues and just told it’s depression / ibs
Thank you for presentation , glad it is becoming more recognised
Hi Bethan, Have you've tested for Celiac Disease yet? It's a simple, inexpensive blood test. A lot of the symptoms you've mentioned are the symptoms I too suffered through, mostly starting in my early 40's, I am now 61 years old. I had the reverse of what you had - I had diarrhea several times a day for YEARS - I was so exhausted all the time because I was not absorbing any nutrients from what I was eating.
The doctors were no help, they would just throw pills at the problem and the pills made it so much worse!
Finally, I was so frustrated with the last doctor's pitiful assessment that I went on the internet and typed in my symptoms - "Celiac Disease" kept coming up as an answer. When I read the description lots of the symptoms were my symptoms. I wasn't until I REQUESTED from my doctor that I wanted a Celiac Disease blood test, that I knew for sure that I tested positive for Celiac Disease.
Once I stopped eating gluten, within 3 days it was MAGICAL how much better I felt. I lost 15 pounds within 3 weeks because I did not have extreme INFLAMMATION going on in my gut as much. Of course, I wasn't completely healthy right off the bat BUT I was FEELING so much better.
Then I started my health journey to get better as I still had other MAJOR symptoms, such as Chronic Fatigue, hair loss, crappy nails, body and joint pains all over my body, memory/cognitive issues, Rheumatoid Arthritis, etc. When the doctor suggested another blood test to check my Vitamin D3 levels - I had severely low levels - this explained a LOT of the symptoms I was suffering with.
I started taking 15,000 IU's of Vitamin D3 daily and within days my body and joint pains were disappearing, my hair and nails started to improve, it improved my chronic fatigue a little, etc. I STILL take this amount daily as it is so beneficial for my daily health. In my health journey research, I was finding out that if you are deficient in Vitamin D3 you are MOST likely to be deficient in Magnesium too. And once I started to take Magnesium - it was like night and day the results!
I, personally, take 15,000 IU's of Vitamin D3 daily, (1) Magnesium Malate 425mg daily and (1) Vitamin K2/MK-7 90 mcg daily. These are my main supplements, I do take four more supplements, but these I just mentioned will IMPROVE your health right off the bat.
I hope this information helps you in YOUR health journey. 😊💖
@@tillygirl7450 hi ! Thanks for sharing your journey . I’m glad you are doing better and finally got sorted .
I have had four blood tests now ,three from neuro and one from gastro that all indicate I have gluten sensitivity . Unfortunately I have to keep eating it until I have had a brain scan and a gastroscope and biopsy .brain scan in February bu not heard about scope yet . Just want to get them out way then I can start eliminating gluten from my diet . They want a scan of my cerebellum now so they can use it as a marker for any future deterioration. Just want to start diet I’m sick of feeling crap 😉😉 I will take your advice on the vitamins too ! Thanks again ❤️
Thank you
I have all of these malabsorption issues, my teeth would break off when I was pregnant. I have been getting infusions and Im still struggling with absorption. Im on adhd and anti depressants for both brain fog, fatigue, that leads to depression. Wow!
Your comment means nothing you might as well delete it
Have the simptoms, but B12 was god range,folate good range ,iron it's ok,but vitamin C was low,zinc was good, but feeling very tired all the time,shortness of breath, constipation, brain fog, short term memory problems
Also, a blood test showed low copper levels. Any comment there or references?
i’ve been noticing that after i eat gluten i get light headed heart palpitations and then trigger in to panic attacks, tingling in arms and face can this be celiac as well?
Yes
This is me! Especially the tingling but I get mine in my feet, stomach and up and down my spine.
Good information
I'm in the UK my friend has celiac desease last year had to take a few months off work due to having very high calcium levels which made her very tired
Omg 😱 thank you for this info, now it makes much more sense. I am a celiac, but lately I have problems with kidney stones. I'll go check my calcium levels.
Forgot to mention that I'm very tired lately.
High calcium- hypercalcemia, is mainly a problem with the parathyroids.
@@catjohnson8367 I just don't get it what is triggering it? I've had one stone 20 years ago, but in the last 5 years it's comming every year. 😭
Being tested finally now that Im having most symptoms of celiac , plus symptoms of ulcerative colitis right now . I was diagnosed in 1991 with Dermatomyositis . But never tested for Celiac ?! WtH ? Also I have fibromyalgia and Thyroid disease .
Does anyone get a pain under their left rib like right at the bottom feels like it’s underneath the rib? Had it for 6 months now I’m guessing it’s from eating gluten? Any help would be appreciated!
Same..... idk what's the cause... I have 90% of these symptoms
I get that pain…..don’t know what causes it
@@keithperry1641 I’ve had an endoscopy and blood tests and have been told there’s nothing wrong with me started eating gluten again and I haven’t been too bad but the pain is still there everyday feels like it’s the tube leading to the stomach just an annoying stabbing sensation
Allot of people have this problem. Try digestive enzymes when eating. After eating make a tea with fresh ginger. Try to fast a couple day ones in the month it will kill allot of the bad bacteria causing this pain. Good luck
Yes i do - i get that afraid thinking its a cardiac issue.
If there is a malabsorption issue in the digestive systems of celiacs in the vitamins such as iron, vitamin k, vitamin d, calcium etcetera, we could utiliz3 the technology of glycerin and vitamin blends to inhale through vaporizers to introduce the needed vitamins to the blood system via the lungs.
My Dr. Said I could have this. I am getting tested. I hope I don’t. However it would make sense
I enjoy your videos ,, Thank You 💯👍💥
I have real Coeliac Disease/ Celiac disease and Morbhus Durhing its very rare and only can be tested by a biopsy, this is the real way. I am also allergic to grass, pollen etc but INTOLERANT for GLUTEN and WHEAT. This is called intolerancy not allergies. Offcourse we as rare disease auto immune sufferers can only get better if we stop gluten and wheat. The rest you have to do allergy test. Lactose is also an intolerancy not an allergy. I follow a vegan/vegetarian diet and let it be known its dangerous as im plantbased and a gluten free wheat free human being thats almost impossible. SO DONT TRY THIS AT HOME WITHOUT A DOCTOR OR YOUR DIETIST please. Most people can eat gluten with being plantbased but i cannot its medical. I wish their was a pill but there wont be. Otherwise i was a vegan without any trouble. So i am still cruelty free xxxxxxx
a lot of us have "real" coeliac disease having been diagnosed by our doctor ... I don't know if I had Morbus Duhring as my rash was diagnosed as excema and that was never questioned
You will become short of Vitamin B12 on your diet. If you can't eat meat take a supplement or you will end up with pernicious anaemia, which is fatal if left untreated.
@@careerscoop5241 yes of course
I had celiac disease for 10 years but I am fine today
@@abdirahmanabdi403 yes
Celiac deases makes allways hungry ? Increase appetite ?
Does that mean your off your GF diet, and you eat normally, like gluten. I thought celiac disease was for life ?
Tysm!! 👏👏👏
Thanks
Celiac deases makes allways hungry ? Increase appetite ?
Yup..!
I feel like finally will know why since my 20s started i had have issue with bloating, extreme farting at night, I always feel this cramp in the upper part of my stomach, i feel fatigued every single day If u could sleep all day I would, I had extreme depression to the point i has to by hospitalized, I have blisters in my gums. And this last month I had SEVERE diarrhea like for 2 weeks straight I couldn’t even sit properly because my butt hurt so bad because i had to go to the bathroom so much, i had to go to the hospital 2 times this last moth with severe pain I had to get intravenous fluids because i was severely dehydrated (both time) thats when they told me to check If i has celiac disease. I am going on monday to get my tests done, part of me wants the test to be positive and finally know what I have wrong with me and part of me doesn’t…
Did you go on a strict gluten free diet ? Once you go off anything with wheat barley and rye, your symptoms should disappear. If you go back on gluten and the symptoms return, it’s a pretty safe bet you have CD. I did this, and that’s how I knew gluten was the problem. I went to the Drs and he confirmed it. I believe there’s now a blood test. Good luck .
It's funny when these people leave these silly open ended comments that help no one
Wow, well I guess this is why I've always been severely underweight. I don't know if I can go without pasta, but eating gluten is very painful for me and I am extremely malnourished! Does anyone have suggestions on good substitutions?
There are gluten free pastas
@Molly Taylor be careful you maybe allergic to more than one grain. Some rice us gluten free but I'm still allergic to it as well as oats and corn.
Try Chickpea pasta - it's tasty and has a lot of protein too. Banza is a good brand - I use it.
There's lots of different options out there now in trying out "different" gluten-free & grain-free pastas.
Omg thanks everyone for your advice! ❤
All supermarkets in the UK have large sections of gluten free foods. Even ready meals, pizza and pasta. A wonderful variety of cakes and biscuits. Also lots of dairy free foods including cheese and ice-cream. Chocolate too. A large choice of bread and cereal. Shopping is easy nowadays with this disease. I have Coeliac and Crohn's disease but shopping is no longer a problem.
What is the test for it
Nowadays a simple blood test. They used to do a biobsy of the duodenum. Which I had done many years ago.
Thank you so much
Can you have celiac without weight loss or diarrhoea
Yes
I recently had a blood test which had candida and raised white blood cells ,I was feeling really unwell at this time and had pain in lower left abdomen, I thought i had a urine infection but that was clear, the doc had me do a stool sample to test for cancer which was clear had a ct scan that was clear had a Ecg that showed slight abnormality but havent had proper results yet, went for endoscopy today and the found Diverticulosis and removed polyps. I do wonder if I have this as I have constant bloating, constant gurgling, constant stomach cramps ,occasional headaches , constipation, sometimes I suddenly need the loo,I have sores and boils constantly,no hunger or appetite ,feel ill no matter what I seem to eat. I also have fibromyalgia so in constant pain all over and constantly fatigued.
Sounds like Crohn's
Did you ever find out more about your condition?
I had a biopsy on my arm and celiac was found in my skin. The Dr sent me for a blood test and it did not show up in my blood. Does this mean I have it?
Saw is it painful
Sir,can celiac disease be related to ileitis or ileum ulcer?
Im going yo try a d change ny diet to tahe out gluten because i have diarrhea and constipation almost every day..
When i was little i remember hating bread,pasta etc everything that has heavy flour-y thingy, but mom always force me to eat these or i won't have anything else to eat. Today i found out why i was sick everyday while other kids seems to be happy and active everyday..
Idk how much destroyed my inner organs are but my skin is 80% destroyed, idk what to do 😭
@Cookie Monster i have, it's reallly not easy, it's almost the only thing i could afford right now
I have malabsorption from no gallbladder n maybe celiac??? But… I’m over weight!
Has anyone claimed PIP for coeliac disease, I've read that you can, but wondered if it possible.
I can't burp, never have, I had 1 donut and im sick, no diagnosis yet but I'm sure.... I have diarrhea so bad. I have been losing weight. I have CFS after extremely high EBS test. I have high calcium.... low everything else. Low D2 especially. I have been bruising badly.
Does Celiac Disease go on to damage the liver or gallbladder?
I think yes
Malnutrition It's possible in celiac deseas?
Celiac is not diagnosed when i tested from laboratory. But i can not drink and eat properly. There is lot of stomach pain and pain is relieved when i eat something, then motion start. The pain is worse between meals and night. When i eat rice i feel relaxed but lot of rice leads to asthma at night. Plz help
try to not eat to much rice before sleep
Just don’t understand how they put this in foods, really bothers a large part of the population
It's the environment we keep destroying that is not giving the best nutritions to the food that humans need to consume. We end up being less and less capable to regenerate for our bodies.
Gluten occurs naturally in grains
@nancybender5389 More like wheat, rye and barley are the offending grains. Regular oats are contaminated with these grains which makes them toxic as well
Because grains taste so good. Anything with Gluten tastes good , gluten free bread is ordinary to say the least. Pasta pastries, that are GF free are just not that good. But you adjust, you don’t have much choice 😉 Being celiac, going off the diet and eating gluten is not worth the pain.
Hi from SF CA I have a daughter with celiac feces how you spelling disease
Coeliac is the British and original spelling. Celiac is American and wrong.
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I had a colonoscopy done then 5 weeks later my Docter tested me for celiac could that have been wrong since he did so close after cleaning me out and not really eating Gulten after?
Hi can you tell me how do i get rid of bloating due to celiac disease
Don’t eat gluten
Read Dr Osbornes No Grain No Pain or watch his iTubes. He has celiac
@@phylenejanousek2740 Celiac deases makes allways hungry ? Increase appetite ?
Iberogast from the chemist 20 drops in a little water, helps with pain and bloating. It’s natural herbs,😉 and you can take it several times. It’s saved me many times I wouldn’t be without it
I had constant ulcers when I was small and the doctors couldn’t figure it out
I have literally every single symptom in this that can be detected without testing. This seriously sucks and I don’t want to live with this for the rest of my life.
Gluten gives me hardcore constipation.
I was diagnosed 3 months ago, i’m 17 😢
Are you the Teaching Textbooks guy?