DESCRIBING MY SKIN CONDITION IN A SIMPLE WAY | Q&A

Thank you for your support!
I am answering your questions,
Questions came from my Instagram account: 0urdestiny
#QandA #Ourdestiny #EpidermolysisBullosa
I would love to read your letters:
Must be addressed to
OurDestiny
PO Box 46271
Las Vegas Nevada 89114
My name is Destiny, I was born with a genetic skin disease called Epidermolysis Bullosa (eb). The purpose of my channel is to educate and shed light on this disease.
We babies born with eb are often referred to as “the butterfly children” because our skin is as fragile as a butterfly’s wings.
Come Join me as I document my life with the help of my parents and siblings.
Help me spread awareness for this rare disease.
Every subscriber is a step towards spreading awareness and ultimately finding a cure.
You can find me on Instagram, Facebook, and Snap chat
@ OurDestiny
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My story was shared on these articles below-
/ debraofamerica
www.dailymail.c...
www.foxnews.com...
people.com/hum...
To learn more about Epidermolysis Bullosa please visit www.debra.org