I’m so happy for you Hannah. I’ve had my ileostomy since the age of 18 in 2019. I lost my son at 23 weeks due to my UC. I didn’t have my bag at the time, I actually lost him due to toxic mega colon, after his birth I gained my stoma within two days. It was A LOT to process. I miss him so much, and I’m so upset my disease took him. I wish you the best of luck and I cannot wait til I get my rainbow baby! Having your videos helps me mentally so much. I don’t feel so alone. Thank you. I’ve watched your videos since day one. You have always been by my side. So to know your pregnant gives me so much joy . I can’t wait to become pregnant again, im a little nervous due to my ileostomy.
omg that is a lot to process, I'm so sorry you had to go through that 💛 I wish you all the best for future pregnancies! And whilst as you can see from this video it's been quite frustrating with the stoma, at no point (for me) has having an ileostomy actually impacted the pregnancy/foetus!
I am sorry for your loss. I hope you will get the chance to Raise your next child while seeing them grow up happy and healthy and get to their older brother who never got the chance to grow up.
It’s very normal for older siblings to have a hard time adjusting when they’re not used to sharing mum’s attention. As Mona spends more time with the baby hopefully she’ll learn it’s okay that she can’t have your belly all to herself anymore.
As a nurse who looks after patients with stomas all the time (I work with intestinal failure patients) this was such a good video to watch! Ive already shared it with my nursing colleagues so we can recommend it to our patients who are thinking of getting pregnant and worried about this aspect of it. I gotta say, it was really frustrating when I could see you struggling and I was thinking about the different tricks we would try on the ward to help with the peristomal skin being excoriated. I know there's a lot of anxiety around changing the kind of bag you have/how big you cut it as it's scary to change things which have worked for so long. The fold-up bags are a pain to empty, I agree. Like someone else mentioned, it helps to use a tissue to wipe inside the bag after you empty it. As I'm sure you're aware it won't be a permanent change though! All the best for the rest of your pregnancy, and I'm looking forward to seeing how your stoma situation changes in the postpartum period. xxx
I just want to say thank you, i got kinda emotional watching the video, with how helpful and 'there every step of the way' her nurses were and then to see you in the comments wanting so badly to help is the best. So even though i don't personally have a stoma, thank you❤️ (Context; i am bedridden, my diagnosis are on a brink of a new discovery and they are working on the research papers, but it's looking promising so far, though I'm being put in the middle of doctor politics right now.. and I'm just hurt that my doctor's would not be hopeful with me. As the surgeries so far is giving people as bad as me, their life back, so even if it would be shown to not be permanent, how much would not almost a year of life- actual life- mean. To say it's not worth it 'because it might come back' is not something you would say to cancer patients, now is it, but it's the argument they tried on me. And it's just good to see the empathy flourishing in this field, after I've had an emotional week.)
I don't think it's even possible to get across just how awesome it is how open you are about your stoma and experiences with it. not to mention being so lighthearted about the poo stuff and treating it as normal! My whole family has digestive issues and IBS, and while I've not got UC or a stoma, it does make me feel so much better to see someone taking it all in their stride, tough times and all - I can only imagine how great it is for those watching who have a stoma and/or other similarly lifechanging issues
My mum has had an ileostomy since before I was born so must have had to go through this while pregnant with me and my twin sister, twins!! 😳 I have a whole new respect for what she must have gone through now! I'm hoping I can watch this video with her soon as she loves seeing all your stoma videos and wishes she could have seen videos like this when she was in her twenties and going through the same as you. Thanks for making this Hannah! x
I’m showing this to my little girl. She’s ten and had her stoma for three years now. Hers can’t be reversed and she will be very interested to watch this. Thank you, for making this video. ❤️
I'm a pharmacy student so I often see stoma patients from that perspective but it's really interesting to see how exactly you manage your stoma and how bag changes work etc. Thank you!
as a young person with IBD i cannot tell you how much these videos help me feel better about the possibility that i’ll have a stoma one day. Seeing you live your life takes all the medicalised-mystery out of it and you make such a valuable impact by making these videos, so thank you. sending lots of good vibes for the rest of your pregnancy!
hi Hannah! my grandma was fitted with a stoma around 8 months ago. I have used your videos to educate myself and we have watched them together, you helped us feel much less afraid of the process! Now that she can't change her bag herself, I am able to have the confidence to help her :) so thanks! you really helped us on the journey
I’m also currently pregnant with a stoma and going through all the fun and games - thank you so much for sharing and making me feel a little bit less alone in that experience!
I found you when my mom had her stoma for positive research years ago. She sadly lost her cancer battle and I unsubbed. You popped back up for me with your pregnancy announcement and we’re a couple of weeks apart in our pregnancy. Thanks for sharing your journey with the stoma. It’s been really interesting to watch. I don’t know you, but I feel very proud of you for how your handling it ❤️
I'm sure you've heard it before - but I'll repeat it anyway. I am a nurse (ICU) and so thankful for your videos on your Stoma. It really helps to see your perspective over the medical heavy viewpoint we are taught. Also the tips that you share from your Stoma nurses are so beneficial.
i hope you can recommend Hannahs/other peoples videos to your patients...it would have made a world of difference for me regarding shame surrounding medical issues like this one.
please try do the same in regards to mental health. ive only met a hand full of nurses who actually understand why im even presenting at the emergency room.
Good to hear. Here in Australia my dad has presented many times to icu with infections and stoma troubles. The majority of nurses have no clue where the bags are kept let alone how to change a bag or care for someone with a stoma. This is so beneficial.
As someone who doesn't have a stoma, I really feel like I've learnt so much from this video. Thank you for documenting your journey and allowing us to understand xx
I’m surprised you weren’t recommended adhesive rings, they are life savers when you’re struggling. They’re coloplast and can be stretched to a much larger diameter so no risk. Anyone struggling with stomas in pregnancy or any other rapid weight changes, I would definitely recommend!
Dear Hannah, I respect you so much for this video and how open you are about a rather intimate theme. I am currently in my second trimester and I was ashamed about telling my partner, that I am bloated all the time. How silly of me, I know haha. You are a few months ahead of me and your trimester videos gave me so much comfort knowing, that I am not the only one going through these changes! Can’t wait for third trimester video! All the love and health to you and your baby from Prague
Thank you so much Hannah for showing this information to the world!! Im a medical student and I’ve seen tons of people with stomas in the hospital but pregnancy is never brought up or taught in our lectures. This is great work!!💛💛
Hannah!! THANK YOU for this video!! I’m 30 and I’ve had my ileostomy for 8 years and am now pregnant so this was super helpful/relatable!!! You are amazing!
I was diagnosed with UC 2 months after I started trying to get pregnant and it was...devastating, to say the least. I don't have a stoma, yet at least, but watching your pregnancy journey continues to give me hope as over a year later I've still yet to reach remission. Thank you for your willingness to be so vulnerable online.
I'm a relatively new CNA and so grateful for all the practical and personal information you've shared in this video. It will help me so much in understanding and providing stoma care for my patients. Thank you!
Love the video! As someone who without this channel would have remained ignorant to the subject of disabilities, I really appreciate and value the education your work provides me with. ☀️🌻
My son has an eilyostomy since birth. Which is the small intestine. I changed his bags up until he was 14 yrs old Then he practiced and he got the hang off I had to be on call everyday when he was at school if he had an accident off yo school and bring home) nowhere at school to change his bag) The area around his eileostomy is very looks very angry but he has learnt to cope with it He is now 57yrs old. He is married to a great guy. Congratulations on the pregnancy I wish well and your husband. God bless the three of you. Takecare.
"Structurally insecure, not emotionally" (Hannah takes a deep breath in) ha ha. This is so wonderful to share with people who are experiencing this and may feel like its not possible. Thanks for being so honest about the good and bad of it.
Loved this video!! I’ve had my stoma for 11 years and just gave birth to my daughter in September! I can relate to so many of your struggles. One thing that’s really helped me preserve the life of my bags has been to use tegaderm tape (clear tape that they use to keep your IV on your skin), on top of the edges of the sticky part that attaches to my tummy. You can buy a big roll. It’s been my best ostomy hack to date!
I only had a stoma for six months before I was 'replumbed', but that was enough so that I could appreciate your discussion of this topic. Thanks and good luck!
This is the most enjoyable "series of unfortunate events"; you're such a ray of sunshine! 🌻 I'm so impressed by how you deal with things not going to plan. As always, a pleasure to watch. ☺️
I’ve been binging your stoma related content as it’s possibly the next stage in my mums treatment and I can’t even explain how much it’s helped! You’ve helped a full family be much more confident with some pretty big health changes so thank you so much 💖💖💖💖
Hannah, you don't even know how useful this video is for so many people- whether with stoma themselves, or their friend or family, or even without related experience. You shed a light on how important medical equipment is for patients, including regarding aethetic and comfort, not just utility. I'm really happy you have amazing support. I wish my dad had that as well when he was still alive. Sadly, we had very limited options, and we couldn't just text a professional at all times either. I hope your pregnancy and delivery goes well. Wishing you, the baby and Dan health!
I have Crohn's and I've had a bunch of surgeries but so far haven't had a stoma. So it's something I'm pretty scared of and seeing someone talk about it and the issues and stuff really helps!
While I didn't experience pregnancy while I had my stoma due to cancer, I am so grateful for you being so open about yours & your experiences with it. Your previous videos really helped me get into a better mindset about having an ileostomy. Watching this video reminded me of so many bag changes and just trying to nail down everything. I only had my stoma for 6 weeks and it changed so often during that time. We rarely got the cutting correct, had to do so many changes when "Sally" was active, and I had many leaks/raw skin/adhesive issues. It turns out, I'm also VERY allergic to medical adhesives. My husband did every single one of my bag changes that wasn't done by a stoma nurse because I just didn't have the energy while recovering from surgery. Sometimes, you just need help. Thank you for also talking about how mentally exhausting it is and for continuing to educate people about stoma life!
Thank you so much for sharing all of this, Hannah. I have GI issues and the idea of them getting worse to the point of needing something like a stoma has always terrified me. Then I found your videos, and over the past year or so of watching your journey with Mona has made me feel so much better about all of it, and disabilities in general. Thank you for your part in educating myself and so many others about our bodies! I hope my GI issues never worsen, but even if they do, I know I will be much more confident in dealing with them because of you.
Althea. I was diagnosed with UC the end of 2019. Year of 2020 I did not respond to any medications and progressly I got worst. 2021, I was rushed to the hospital for emergency surgery. They removed my colon. I now have a ileostomy. Getting use to it was not a problem. I now can eat pretty much anything I want and have gained 21 lbs back from the 72 lbs I lost. In a couple of months it will be a year and I will be having surgery to reverse my bag. I have to say it is not bad with a bag. I pretty much do anything I want to with my bag. I am at the gym every morning for 2 hours and a lot more active now. Hannah is good explaining all of this. Hopefully you will improve and never go through this but if you do it is not the end of the world.
Love this video! What a blessing for pregnant women who have a stoma. Such a unique perspective. Your poop explosions remind me of baby poop disasters I've dealt with, so this is probably lots of training for inevitable diaper disasters!
I loved this video! I loved that it was an hour long. And also just how informative it was. I love all stuff «anatomy», and love to learn about all of it :D Your «this is my stoma» video way back, was actually the first video I ever watched, it showed up on me feed mostly because of all my body-anatomy videos I was watching :D
The information you're sharing and visibility of pregnancy with an ileostomy is amazing. Seems like many people can experience infertility with chronic bowel disease, what a blessing to become pregnant and document it!
That was so interesting and educational! I am also pregnant right now, due date May 5th and pregnancy is already so much to adapt to regarding changes on your body, pains etc. I can't imagine dealing with stoma as well... Good luck with rest of the pregnancy and I wish you safe delivery :)
I had a temporary colostomy due to car accident injuries. I was able to have it reversed after 10 months. Seeing your stoma instantly reminded me of that pain around the skin and it brought me back to that time. I hope you are doing okay and finally have a bag that fits comfortably.
Videos like these are just SO helpful for people with stomas. I’m not pregnant but the bag reviews & real life funny stories are honestly just great. I’ve had my stoma nearly 3 years and I’m still learning new things about it! Xx
The part when you talked about needing Dan's help to get more wipes and how there was poop everywhere seems like your stoma is getting you ready for having a baby 😂
I've heard that pregnancy makes the bowels do all sorts of weird things. The growth of the uterus pushes all the organs around and the hormones bouncing around in the blood stream stimulate the bowels. So, I imagine having a stoma while pregnant is way harder and more challenging. I'm wishing you all the best of luck and the best outcome possible for you and your baby.
Not sure why this channel was recommended as I was researching for my pet who is having major tummy trouble . I watched all in awe of your so upbeat personality . you are amazing and such a reminder to me that all my present problems are nothing . wishing you a more comfortable time ahead and looking forward to catching up again soon
I am so grateful for seeing real pregnant bodies with scars and all. My mom has a huge scar down her back and she was so ashamed of it. I don’t think there were many images of different body types at that time. When I was younger, I viewed pregnancy as disfiguring and scary. Just seeing different bodies helps normalize variation and makes it all less scary
I've been watching you since OG days and I have to say, it was lovely to sit with you for an hour. I wish I'd have made a cup of tea, because it felt like I was catching up with an old friend. I'm glad you're doing well now! thank you for updating us and spreading awareness
So glad to see a video on stomas. My mom had an illiostomy at 56 and lived another 40 years with it. Every once and a while she’d have issues with it (mostly irritated skin) but I think for the most part she did pretty well. Congratulations on your baby.
I had a physical job with a stoma - and have 2 suggestions to protect your bag from leaking and a blow-out. First, you can reinforce it with additional tape. I used Brava(R) Elastic Barrier Strips, available by Coloplast. Also, my dad made me a protective shield with a knee pad and elastic and buckle around my waist. I could be moderately active at ease!
Hi Hannah! My grandfather has just had a stoma, and I just wanted to say that your videos on the topic have really helped me to understand what he's going through and offer support, comfort, resources, and information for him. So I just wanted to say a quick thank you for being so candid and open with this topic
Tip for drainable bags to stop poo from getting everywhere after closing it up; I use a folded up piece of tissue and stick it in the opening after emptying the bag and wipe it around the inside, use a good amount of tissue so you don't get poo on your fingers! I use the salts bags and love them but everyone's different and theres so many options which is great!
Thank you for letting me learn about this! I don’t really have a desire to have children but I find pregnancy really fascinating and the different stories people can have during their pregnancy. A friend of mine I worked with is diabetic and I watched how the pregnancy was for her with 3-4 insulin shots per day on her belly the entire pregnancy and it is inspiring to see what Moms go through.
I'm sorry to hear you've had to deal with these changes whilst also being pregnant, it sounds extremely challenging! Your support staff sound amazing helping you navigate everything 👍 Happy Birthday and Best of Luck with everything! 💜👍
I’m a general surgery floor nurse and work with ostomy patients on the daily. Thank you so much for sharing your experience! While most of the people I work with are “beyond childbearing years” (read: grandmas with colon cancer,) we do see a fair number of young people, including a couple of gals who had their ileostomy creations while pregnant. While our wound/ostomy nurses are AWESOME, there’s def not enough representation of stomas in pregnancy. I especially appreciate hearing your thoughts about the aesthetics, as we deal mostly with the transparent postop pouches for teaching and assessment. Totally agree, the flaps on Hollister pouches are a total PITA, especially when they’re new. 💩 Can’t wait to hear about your third trimester and postpartum experiences, and for you to meet your baby!! ☀️
I love how you're so open about your stoma and how it affects your pregnancy! It not only helpy other people with a stoma but it also educates people without one. I have a completely new appreciation for the all the struggles women can go through pregnancy! It just shows how amazing our bodies are to go through all these changes and still do what they're supposed to!
Thank you for once again not hiding these parts of your pregnancy and I know this will be helpful to someone in a similar situation. I don't have a stoma but these real videos about struggles that come with certain disabilities have made me a much better advocate for myself and have helped me figure out how to do this whole disabled thing in general. I did grow up with a disabled mother but her being hard of hearing isn't the same as my walking disability and my chronic pain. It never hurt her physically and while her issue made me an advocate too from a very young age now I had to learn to advocate for different things suddenly. Like I was used to telling people to please repeat themselves when I noticed my mom didn't understand them, something my mom is very thankful for and I have done ever since I was a very young child and really clued in on all of the signs that my mom didn't hear something(can't even tell you what it is really it's just second nature to me and subconscious at this point).
Oh my goodness what a saga! ❤️ I think a lot of people can underestimate just how much faff and management it can take to live with a disability so thank you so much for being so open about it. I'm also so glad you have such great people in your life and such a wonderfully supportive husband who you can have a good cry on when it all gets too much. I hope you have smooth sailing from here on xxx
Congratulations to you….hopefully your sweet baby has safely arrived! I worked as an RN one hundred years ago until my children came along. I cared for a fair number of patients with stomas in hospital, on Gen Med floor, and I was curious to see if things have changed much. I came across your utube and watched you talk/show/tell about your experiences managing stoma care while you were pregnant, as you adapted. You are so confident and positive. I applaud you so much for sharing openly and honestly, and with humor! Your medical assessments are sound and you are a very good teacher/educator. Thank you for the time and effort you put in to making your progressive videos. Doubtless there were days you were exhausted and busy, yet you continued to record. I know you inspire so many people who have a stoma and care for themselves or have assistance with care. You are a breath of fresh air! I loved your baby belly dances in the mirror! 👩🏻⚕️ On a side note, 👩🏻⚕️ I noticed you had some areas of your face that look just like my skin when I have a flare up of a skin condition called peri-oral facial dermatitis. Skin is irritated and inflamed, (dermatitis) around the mouth (peri-oral) can be around the nose, and can spread toward the chin. It kind of looks like acne at times, and it itches and hurts at the same time.. You may already know all about it, and have a dermatologist who treats you. If not, a dermatologist can help you with diagnosis and treatments. If you tried topical over the counter steroid cream, such a Cortaide, you know that that only makes it worse. Odd, but true. Topical prescription cream 2X daily to get it under control and healed is recommended first for mild to moderate cases, and some times an oral antibiotic is also added 2X daily for stubborn or moderate to severe case. It comes and goes, often no known cause. Can flair when life is especially stressful. That happens to me. I can go one to three years between flairs. Some people who get this form of skin problem ALSO have Rosacea. I do. Redness and irritation on areas of face. This is a dermatology thing too. Different from peri-oral facial dermatitis. Can flare up and cycle also. Topical cream. Face wash and moisturizer as recommend by dermatologist. Often seen in families, as is true for us. If you are nursing your baby dermatologist will discuss oral antibiotic options if you need it. BEST wishes to you as you begin parenting! The US Navy has a slogan used in campaign ads “the toughest job you will ever love.” I have long said that I think it is most apropos for parenting! Cheers!
omg i haven’t seen one of your videos in agessss i was obsessed with your content during the lockdowns!! congratulations on your pregnancy, you’re an angel :)
Nurse here! A tip to put on non convex stomabags when opague. Just bend them in half so you see a semi circle. Adhere the lower half easily because yiu can see what you are doing. Then flip it normal and adhere the upper half. Good luck!
Hi Hannah - love your videos 💗. My daughter just got her ileostomy a few weeks ago, and I got her an OXO brand clear plastic squeeze bottle with a pointed spout (it’s actually for condiments like ketchup - got it on Amazon) so she could fill it with water and squirt it into her bag when she empties it. It works great! Much better than having to walk to your sink 😊. Best of luck to you with the rest of your pregnancy!
Thank you for sharing your positive energy while also being real about the whole emotional side of things. Since my UC has been acting up a lot I've been super scared of getting a stoma at one point in my life and you and other people talking about it so openly is helping so much in combating that fear.
I can't get pregnant and I don't have a stoma, but your videos are always SO enlightening, it's a whole different world to what I live and I can't thank you enough for being so open about it and sharing your story!
Okay this has been said a hundred times, but I think the algorithm just needs to know: Thank you so much for your content Hannah! I've been following you for five years now and you've always been so helpful with getting more comfortable talking about sex. And now I know a lot more about a condition I didn't know about before you got it! So much respect for handling Mona along with the baby.
Very interesting and I have all the respect for you, Hannah!! You never really complain or pitty yourself and just focus on finding solutions. But I guess thats what it takes having a cronic illness. Still very admirable. All the best for you and your baby xxx
This was so so interesting. Thanks for sharing your experience. I also think it's amazing that you had a great team who helped throughout the process so far and thank goodness for the NHS because I can't imagine going through that whole long and frustrating process and then having to pay loads for it. Wishing you all the best for the rest of your pregnancy!
As someone who’s had a stoma since I was 19, and hopes to get pregnant in the future, this video was very informative, especially as you said, there’s not many videos on ostomate’s pregnancy journeys
Thank you SO MUCH for educating me and the rest of your audience on this! I'm graduating from nursing school in a month and I've only ever seen really sick, elderly patients with stomas (acute patient stays just happen more frequently with the elderly). I've never thought about what a younger patients experience might be or these big bodily changes like pregnancy and how they impact an ileostomy. And, honestly, you gave me so much insight about body image and picking a bag that feels comfortable and makes you confident. I should've realized the importance for older patients too, but hearing it from someone younger just made it click.
From my experience talking to other mums, everyone has something. I am autistic so having extra pressure on my body during pregnancy was overwhelming and I found myself needing sensory breaks almost every day. I have many friends with hyperemesis (morning sickness all the way to the end of pregnancy), friends who were put on bed rest, friends with gestational diabetes, friends with low lying placentas affecting their birth choices and so many more. Pregnancy is a wild ride for us all but as long as we have a great team of loved ones and professionals to support us, it’s so worth it ❤️
Sounds like you have the best stoma-nurse in the stoma-verse! 🙌🙌🙌 so glad you have someone who is listening and who is being an amazing medical partner to try and get you the best fit for you!!
Incredibly grateful that we have access to super valuable info and experiences because of people like you Hannah 💛 Thank you for sharing your experience 😊I'm here for all the sex stuff all the poop stuff and all the pregnancy stuff!
My grandma was a WOCN for 45 years before she retired and she’s always been my idol. It’s nice to know how much your nurses have helped you 💕 makes me feel more connected to my grammy in a strange way
I've got an ileostomy, coming up on 4 years as well! I always always wear flange extenders, they make me feel like I've got added protection and I've never had any leaks or the bag lifting. When you go swimming again I'd definitely recommend flange extenders to keep it extra water tight!
This is one of the most educational things I have ever seen. I think you are awesome for sharing this. So much needed and I have learned so much of things I've never thought. I wish they teach things like this in school. Hope you have an amazing test of pregnancy and birth. Sending you all the love 💙💙
I am 55yr and 7 months with a stoma , I enjoyed watching your video in how you are coping with pregnant with a stomer, I feel you did an amazing job in your videos , 💞 I found it very interesting the different bags that you use. I don't have drainable bags , I also have a 2pices , so I just changed the bag , I think you are so brave sharing your story , it will be a great help to young women like your self. You are a beautiful soul 🌹❤️ many blessings to you and your family.💞
Thank you for sharing this! I’m not pregnant but recently had an ileostomy surgery and getting used to everything has been so hard, and trying to get used to the whole process of having a stoma has been a massive learning curve. I cannot thank you enough for helping me (and I’m sure others) in the same situation feel normal and seen 💜
The part about adhesives is so interesting to me because when I was pregnant I reacted to everything. I couldn't even wash my body except with water. This is such a fascinating topic, thank you for taking the time to share with us all
If you like the pelican bags try their pelican modiVi bags ... fabric is practically identical to the coloplast ones and they fold in half . They also come in black as well as 'skin colour' if you struggle with the pelican unsticking then you can stick them on the coloplast skin patches, yes it an extra step and a bit of a faff as you have to cut a hole for the stoma . But it means that you get all the benefits of the modaVi bags without the skin issues like I did . The coloplast Brava skin patches are square so cover a lot of skin giving extra security and due to the size the hole can be massive. Good luck with being a new mother. I love your videos your openness and honesty. I have only just come across your videos and I really wish I found you earlier. I have had my ileostomy 2 years ago now and still feel unsettled frustrated and I get very upset. Thank you for making me smile and saying it as it is! Lots of love xx🥰 Oh I forgot to mention have you seen comfizz's products? You will love their waist band it is so soft and comfy and hold everything in stops your bag from flapping about and added benefit it holds your podgy wobbly bits in! Fae better than the velcro bags you have. (I have them too and never used them) the Confizz range also includes high waisted pants, boxers, even thongs. They do them in different colours and sizes and do vests as well if you feel you need level 2 (slightly firmer) support. Plus they are available on prescription! 😁
your videos are so thoughtful and informative, but i also love how insightful the comment sections are! so often the internet is a place that encourages misunderstanding, but it seems like people find even more understanding and community here!
I don't have a stoma nor do I know anyone who does, but your videos on the topic are so interesting and informative that I watch all of them. I didn't even realize how long this one was until it was over! Thank you so much for being willing to teach us!
Amazing video! I've had a stoma for 3 years now and your video's have helped me immensely. Being able to follow you on your pregnancy journey is really helpful (I'd like to have kids in the future). You should definitely check with your stoma nurse if you can get the opaque version of the Dansac bags. I've been using those ever since surgery.
I have so much respect for you! Not only are you going through this but your sharing the experience with us. hope the rest of the pregnancy goes well for you xx
You’re amazing! I don’t know how you do it, you cope like a boss, honestly found your Channel by accident and I’ve subbed you’re an inspiration. Keep going! x
You seem like a very strong woman. I just got diagnosed with bladder cancer and will be opting for the India pouch. I will be praying for your sadness to subside. You take care and God bless.
You are seriously changing lives with these videos Hannah, thanks for normalising something that is affecting so many people across the world but just isn't spoken about much. I don't have a stoma but have a close friend who may be getting the op soon due to her UC so I'm trying to understand how it may affect her, your vids have totally saved her mental health
Hi, thank you for making this video. I'm mid-40s with a colostomy (I'm not pregnant) but just wanted to say I hear you. Watching you learn and adapt is so inspiring. I use the flat Salts bags (in black) and think they are amazing. I have a retracted stoma and my stoma nurse can't believe I'm getting away with the flat ones. The hard plates on the other designs just seem to pop off my skin (we're all different eh?) Thank you for being honest with how difficult it can be with the daily challenges/leaks/sore skin etc most people only bring the positives to UA-cam and I really need to hear someone else's story that it's not all sunshine and roses with a stoma (even if we're VERY grateful about being able to have one) xx
Such an insightful video, thank you for sharing. Your videos always provide such education- I shamefully knew nothing about stomas and can honestly say I have learnt so much within this video, what a women you are 💕
I’m so happy for you Hannah. I’ve had my ileostomy since the age of 18 in 2019. I lost my son at 23 weeks due to my UC. I didn’t have my bag at the time, I actually lost him due to toxic mega colon, after his birth I gained my stoma within two days. It was A LOT to process. I miss him so much, and I’m so upset my disease took him. I wish you the best of luck and I cannot wait til I get my rainbow baby! Having your videos helps me mentally so much. I don’t feel so alone. Thank you. I’ve watched your videos since day one. You have always been by my side. So to know your pregnant gives me so much joy . I can’t wait to become pregnant again, im a little nervous due to my ileostomy.
omg that is a lot to process, I'm so sorry you had to go through that 💛 I wish you all the best for future pregnancies! And whilst as you can see from this video it's been quite frustrating with the stoma, at no point (for me) has having an ileostomy actually impacted the pregnancy/foetus!
@@hannahwitton you give me hope to have my rainbow baby. Thank you so much.
@@bethany7808 you will have what you want and deserve!
❤️ ur strong will and heart are something admirable
I am so sorry for your loss
I am sorry for your loss. I hope you will get the chance to Raise your next child while seeing them grow up happy and healthy and get to their older brother who never got the chance to grow up.
I can’t get over the name Dansac. Dan’s sac is what got you into this situation in the first place! 😂
😂😂😂
I wish I could love this comment! 10/10 hahaha
I had not gotten this far in the video yet and was genuinely confused and thought somebody (you) thought this was a good baby name idea 😅
@@marieantoinettepaddelboot3149 that’s hilarious 😭
Hahaha
It’s very normal for older siblings to have a hard time adjusting when they’re not used to sharing mum’s attention. As Mona spends more time with the baby hopefully she’ll learn it’s okay that she can’t have your belly all to herself anymore.
Omg hahaha lol best comment :D
😂😂
And you win the comments.
🤣
LOL
Really enjoyed this - so much insight into something I didn’t know a lot about. Hoping the rest of pregnancy and post partum treats you and Mona well!
Hearing personal accounts of this kind of stuff is so educational in a way that textbooks just aren't. Super informative, thanks for sharing!
As a nurse who looks after patients with stomas all the time (I work with intestinal failure patients) this was such a good video to watch! Ive already shared it with my nursing colleagues so we can recommend it to our patients who are thinking of getting pregnant and worried about this aspect of it. I gotta say, it was really frustrating when I could see you struggling and I was thinking about the different tricks we would try on the ward to help with the peristomal skin being excoriated. I know there's a lot of anxiety around changing the kind of bag you have/how big you cut it as it's scary to change things which have worked for so long. The fold-up bags are a pain to empty, I agree. Like someone else mentioned, it helps to use a tissue to wipe inside the bag after you empty it. As I'm sure you're aware it won't be a permanent change though! All the best for the rest of your pregnancy, and I'm looking forward to seeing how your stoma situation changes in the postpartum period. xxx
I just want to say thank you, i got kinda emotional watching the video, with how helpful and 'there every step of the way' her nurses were and then to see you in the comments wanting so badly to help is the best. So even though i don't personally have a stoma, thank you❤️
(Context; i am bedridden, my diagnosis are on a brink of a new discovery and they are working on the research papers, but it's looking promising so far, though I'm being put in the middle of doctor politics right now.. and I'm just hurt that my doctor's would not be hopeful with me. As the surgeries so far is giving people as bad as me, their life back, so even if it would be shown to not be permanent, how much would not almost a year of life- actual life- mean. To say it's not worth it 'because it might come back' is not something you would say to cancer patients, now is it, but it's the argument they tried on me. And it's just good to see the empathy flourishing in this field, after I've had an emotional week.)
I don't think it's even possible to get across just how awesome it is how open you are about your stoma and experiences with it. not to mention being so lighthearted about the poo stuff and treating it as normal! My whole family has digestive issues and IBS, and while I've not got UC or a stoma, it does make me feel so much better to see someone taking it all in their stride, tough times and all - I can only imagine how great it is for those watching who have a stoma and/or other similarly lifechanging issues
I have IBS too and it’s taken being in a relationship for 6 years (and married for 2!) for me to be really open with my husband about my poo 😂
My mum has had an ileostomy since before I was born so must have had to go through this while pregnant with me and my twin sister, twins!! 😳 I have a whole new respect for what she must have gone through now! I'm hoping I can watch this video with her soon as she loves seeing all your stoma videos and wishes she could have seen videos like this when she was in her twenties and going through the same as you. Thanks for making this Hannah! x
I’m showing this to my little girl. She’s ten and had her stoma for three years now. Hers can’t be reversed and she will be very interested to watch this. Thank you, for making this video. ❤️
I'm a pharmacy student so I often see stoma patients from that perspective but it's really interesting to see how exactly you manage your stoma and how bag changes work etc. Thank you!
as a young person with IBD i cannot tell you how much these videos help me feel better about the possibility that i’ll have a stoma one day. Seeing you live your life takes all the medicalised-mystery out of it and you make such a valuable impact by making these videos, so thank you. sending lots of good vibes for the rest of your pregnancy!
Hannah also takes the edge off the fear as well! I'm so grateful for the honest information she shares with us!
hi Hannah! my grandma was fitted with a stoma around 8 months ago. I have used your videos to educate myself and we have watched them together, you helped us feel much less afraid of the process! Now that she can't change her bag herself, I am able to have the confidence to help her :) so thanks! you really helped us on the journey
❤️
I’m also currently pregnant with a stoma and going through all the fun and games - thank you so much for sharing and making me feel a little bit less alone in that experience!
How are you doing… I have a stoma and my boyfriend and I are trying for a baby…
I found you when my mom had her stoma for positive research years ago. She sadly lost her cancer battle and I unsubbed. You popped back up for me with your pregnancy announcement and we’re a couple of weeks apart in our pregnancy. Thanks for sharing your journey with the stoma. It’s been really interesting to watch. I don’t know you, but I feel very proud of you for how your handling it ❤️
Im so sorry for your loss. I hope the rest of your pregnancy goes well!
Sorry for your loss
Glad your back ❤️
Sorry for your pregnancy, it gets better
I'm sure you've heard it before - but I'll repeat it anyway. I am a nurse (ICU) and so thankful for your videos on your Stoma. It really helps to see your perspective over the medical heavy viewpoint we are taught. Also the tips that you share from your Stoma nurses are so beneficial.
i hope you can recommend Hannahs/other peoples videos to your patients...it would have made a world of difference for me regarding shame surrounding medical issues like this one.
please try do the same in regards to mental health. ive only met a hand full of nurses who actually understand why im even presenting at the emergency room.
Good to hear. Here in Australia my dad has presented many times to icu with infections and stoma troubles. The majority of nurses have no clue where the bags are kept let alone how to change a bag or care for someone with a stoma. This is so beneficial.
As someone who doesn't have a stoma, I really feel like I've learnt so much from this video. Thank you for documenting your journey and allowing us to understand xx
Ditt0 💗
I’m surprised you weren’t recommended adhesive rings, they are life savers when you’re struggling. They’re coloplast and can be stretched to a much larger diameter so no risk.
Anyone struggling with stomas in pregnancy or any other rapid weight changes, I would definitely recommend!
+
+
I LOVE my rings!! I use Hollister adapt rings. Without them, I have hours before a change, but with one, I can go close to a week!
@@vanessabrannan4059 oh I’m really happy to hear that!
Commenting to help your comment get boosted up!!!
so tickled by the bag being called 'Hollister' - imagine a dark, heavily perfumed shop full of stoma bags on hangers...
Dying 😂😂😂
LMAO
Hollister is the brand
Hahahaha!
Dear Hannah, I respect you so much for this video and how open you are about a rather intimate theme. I am currently in my second trimester and I was ashamed about telling my partner, that I am bloated all the time. How silly of me, I know haha. You are a few months ahead of me and your trimester videos gave me so much comfort knowing, that I am not the only one going through these changes! Can’t wait for third trimester video! All the love and health to you and your baby from Prague
Thank you so much Hannah for showing this information to the world!! Im a medical student and I’ve seen tons of people with stomas in the hospital but pregnancy is never brought up or taught in our lectures. This is great work!!💛💛
Hannah!! THANK YOU for this video!! I’m 30 and I’ve had my ileostomy for 8 years and am now pregnant so this was super helpful/relatable!!! You are amazing!
I might be coming to you for questions throughout my pregnancy!!
Congrats!
How have you been? I have a stoma and am trying for a bbay
I was diagnosed with UC 2 months after I started trying to get pregnant and it was...devastating, to say the least. I don't have a stoma, yet at least, but watching your pregnancy journey continues to give me hope as over a year later I've still yet to reach remission. Thank you for your willingness to be so vulnerable online.
I'm a relatively new CNA and so grateful for all the practical and personal information you've shared in this video. It will help me so much in understanding and providing stoma care for my patients. Thank you!
Love the video! As someone who without this channel would have remained ignorant to the subject of disabilities, I really appreciate and value the education your work provides me with. ☀️🌻
My son has an eilyostomy since birth. Which is the small intestine. I changed his bags up until he was 14 yrs old
Then he practiced and he got the hang off
I had to be on call everyday when he was at school if he had an accident off yo school and bring home) nowhere at school to change his bag)
The area around his eileostomy is very looks very angry but he has learnt to cope with it
He is now 57yrs old. He is married to a great guy.
Congratulations on the pregnancy I wish well and your husband. God bless the three of you. Takecare.
"Structurally insecure, not emotionally" (Hannah takes a deep breath in) ha ha. This is so wonderful to share with people who are experiencing this and may feel like its not possible. Thanks for being so honest about the good and bad of it.
Loved this video!! I’ve had my stoma for 11 years and just gave birth to my daughter in September! I can relate to so many of your struggles. One thing that’s really helped me preserve the life of my bags has been to use tegaderm tape (clear tape that they use to keep your IV on your skin), on top of the edges of the sticky part that attaches to my tummy. You can buy a big roll. It’s been my best ostomy hack to date!
I only had a stoma for six months before I was 'replumbed', but that was enough so that I could appreciate your discussion of this topic. Thanks and good luck!
This is the most enjoyable "series of unfortunate events"; you're such a ray of sunshine! 🌻 I'm so impressed by how you deal with things not going to plan. As always, a pleasure to watch. ☺️
I’ve been binging your stoma related content as it’s possibly the next stage in my mums treatment and I can’t even explain how much it’s helped! You’ve helped a full family be much more confident with some pretty big health changes so thank you so much 💖💖💖💖
Hannah, you don't even know how useful this video is for so many people- whether with stoma themselves, or their friend or family, or even without related experience. You shed a light on how important medical equipment is for patients, including regarding aethetic and comfort, not just utility. I'm really happy you have amazing support. I wish my dad had that as well when he was still alive. Sadly, we had very limited options, and we couldn't just text a professional at all times either.
I hope your pregnancy and delivery goes well. Wishing you, the baby and Dan health!
I have Crohn's and I've had a bunch of surgeries but so far haven't had a stoma. So it's something I'm pretty scared of and seeing someone talk about it and the issues and stuff really helps!
While I didn't experience pregnancy while I had my stoma due to cancer, I am so grateful for you being so open about yours & your experiences with it. Your previous videos really helped me get into a better mindset about having an ileostomy. Watching this video reminded me of so many bag changes and just trying to nail down everything. I only had my stoma for 6 weeks and it changed so often during that time. We rarely got the cutting correct, had to do so many changes when "Sally" was active, and I had many leaks/raw skin/adhesive issues. It turns out, I'm also VERY allergic to medical adhesives. My husband did every single one of my bag changes that wasn't done by a stoma nurse because I just didn't have the energy while recovering from surgery. Sometimes, you just need help. Thank you for also talking about how mentally exhausting it is and for continuing to educate people about stoma life!
I am neither pregnant or have a stoma bag and this was still one of the most interesting videos I've ever watched on UA-cam! ❤️
Thank you so much for sharing all of this, Hannah. I have GI issues and the idea of them getting worse to the point of needing something like a stoma has always terrified me. Then I found your videos, and over the past year or so of watching your journey with Mona has made me feel so much better about all of it, and disabilities in general. Thank you for your part in educating myself and so many others about our bodies! I hope my GI issues never worsen, but even if they do, I know I will be much more confident in dealing with them because of you.
Althea. I was diagnosed with UC the end of 2019. Year of 2020 I did not respond to any medications and progressly I got worst. 2021, I was rushed to the hospital for emergency surgery. They removed my colon. I now have a ileostomy. Getting use to it was not a problem. I now can eat pretty much anything I want and have gained 21 lbs back from the 72 lbs I lost. In a couple of months it will be a year and I will be having surgery to reverse my bag. I have to say it is not bad with a bag. I pretty much do anything I want to with my bag. I am at the gym every morning for 2 hours and a lot more active now. Hannah is good explaining all of this. Hopefully you will improve and never go through this but if you do it is not the end of the world.
Love this video! What a blessing for pregnant women who have a stoma. Such a unique perspective. Your poop explosions remind me of baby poop disasters I've dealt with, so this is probably lots of training for inevitable diaper disasters!
I loved this video! I loved that it was an hour long. And also just how informative it was. I love all stuff «anatomy», and love to learn about all of it :D Your «this is my stoma» video way back, was actually the first video I ever watched, it showed up on me feed mostly because of all my body-anatomy videos I was watching :D
The information you're sharing and visibility of pregnancy with an ileostomy is amazing. Seems like many people can experience infertility with chronic bowel disease, what a blessing to become pregnant and document it!
That was so interesting and educational! I am also pregnant right now, due date May 5th and pregnancy is already so much to adapt to regarding changes on your body, pains etc. I can't imagine dealing with stoma as well... Good luck with rest of the pregnancy and I wish you safe delivery :)
I had a temporary colostomy due to car accident injuries. I was able to have it reversed after 10 months. Seeing your stoma instantly reminded me of that pain around the skin and it brought me back to that time. I hope you are doing okay and finally have a bag that fits comfortably.
Videos like these are just SO helpful for people with stomas. I’m not pregnant but the bag reviews & real life funny stories are honestly just great. I’ve had my stoma nearly 3 years and I’m still learning new things about it! Xx
The part when you talked about needing Dan's help to get more wipes and how there was poop everywhere seems like your stoma is getting you ready for having a baby 😂
I thought that, and the 3am poo mess 😂
I've heard that pregnancy makes the bowels do all sorts of weird things. The growth of the uterus pushes all the organs around and the hormones bouncing around in the blood stream stimulate the bowels. So, I imagine having a stoma while pregnant is way harder and more challenging. I'm wishing you all the best of luck and the best outcome possible for you and your baby.
Not sure why this channel was recommended as I was researching for my pet who is having major tummy trouble .
I watched all in awe of your so upbeat personality . you are amazing and such a reminder to me that all my present problems are nothing . wishing you a more comfortable time ahead and looking forward to catching up again soon
I am so grateful for seeing real pregnant bodies with scars and all. My mom has a huge scar down her back and she was so ashamed of it. I don’t think there were many images of different body types at that time. When I was younger, I viewed pregnancy as disfiguring and scary. Just seeing different bodies helps normalize variation and makes it all less scary
I've been watching you since OG days and I have to say, it was lovely to sit with you for an hour. I wish I'd have made a cup of tea, because it felt like I was catching up with an old friend. I'm glad you're doing well now! thank you for updating us and spreading awareness
This comment made me get up and make myself a pot of tea :)
So glad to see a video on stomas. My mom had an illiostomy at 56 and lived another 40 years with it. Every once and a while she’d have issues with it (mostly irritated skin) but I think for the most part she did pretty well.
Congratulations on your baby.
I had a physical job with a stoma - and have 2 suggestions to protect your bag from leaking and a blow-out. First, you can reinforce it with additional tape. I used Brava(R) Elastic Barrier Strips, available by Coloplast. Also, my dad made me a protective shield with a knee pad and elastic and buckle around my waist. I could be moderately active at ease!
Hi Hannah! My grandfather has just had a stoma, and I just wanted to say that your videos on the topic have really helped me to understand what he's going through and offer support, comfort, resources, and information for him. So I just wanted to say a quick thank you for being so candid and open with this topic
Tip for drainable bags to stop poo from getting everywhere after closing it up; I use a folded up piece of tissue and stick it in the opening after emptying the bag and wipe it around the inside, use a good amount of tissue so you don't get poo on your fingers! I use the salts bags and love them but everyone's different and theres so many options which is great!
I do this too, after every empty! Keeps the spout nice and clean.
Thank you for letting me learn about this! I don’t really have a desire to have children but I find pregnancy really fascinating and the different stories people can have during their pregnancy. A friend of mine I worked with is diabetic and I watched how the pregnancy was for her with 3-4 insulin shots per day on her belly the entire pregnancy and it is inspiring to see what Moms go through.
I'm sorry to hear you've had to deal with these changes whilst also being pregnant, it sounds extremely challenging! Your support staff sound amazing helping you navigate everything 👍
Happy Birthday and Best of Luck with everything! 💜👍
That was sooooo interesting!!! I was hooked for the whole hour and I learned so much
I’m a general surgery floor nurse and work with ostomy patients on the daily. Thank you so much for sharing your experience! While most of the people I work with are “beyond childbearing years” (read: grandmas with colon cancer,) we do see a fair number of young people, including a couple of gals who had their ileostomy creations while pregnant. While our wound/ostomy nurses are AWESOME, there’s def not enough representation of stomas in pregnancy. I especially appreciate hearing your thoughts about the aesthetics, as we deal mostly with the transparent postop pouches for teaching and assessment. Totally agree, the flaps on Hollister pouches are a total PITA, especially when they’re new. 💩 Can’t wait to hear about your third trimester and postpartum experiences, and for you to meet your baby!! ☀️
I love how you're so open about your stoma and how it affects your pregnancy! It not only helpy other people with a stoma but it also educates people without one. I have a completely new appreciation for the all the struggles women can go through pregnancy! It just shows how amazing our bodies are to go through all these changes and still do what they're supposed to!
Thank you for once again not hiding these parts of your pregnancy and I know this will be helpful to someone in a similar situation.
I don't have a stoma but these real videos about struggles that come with certain disabilities have made me a much better advocate for myself and have helped me figure out how to do this whole disabled thing in general.
I did grow up with a disabled mother but her being hard of hearing isn't the same as my walking disability and my chronic pain. It never hurt her physically and while her issue made me an advocate too from a very young age now I had to learn to advocate for different things suddenly.
Like I was used to telling people to please repeat themselves when I noticed my mom didn't understand them, something my mom is very thankful for and I have done ever since I was a very young child and really clued in on all of the signs that my mom didn't hear something(can't even tell you what it is really it's just second nature to me and subconscious at this point).
Oh my goodness what a saga! ❤️ I think a lot of people can underestimate just how much faff and management it can take to live with a disability so thank you so much for being so open about it.
I'm also so glad you have such great people in your life and such a wonderfully supportive husband who you can have a good cry on when it all gets too much.
I hope you have smooth sailing from here on xxx
Congratulations to you….hopefully your sweet baby has safely arrived! I worked as an RN one hundred years ago until my children came along. I cared for a fair number of patients with stomas in hospital, on Gen Med floor, and I was curious to see if things have changed much. I came across your utube and watched you talk/show/tell about your experiences managing stoma care while you were pregnant, as you adapted. You are so confident and positive. I applaud you so much for sharing openly and honestly, and with humor! Your medical assessments are sound and you are a very good teacher/educator. Thank you for the time and effort you put in to making your progressive videos. Doubtless there were days you were exhausted and busy, yet you continued to record. I know you inspire so many people who have a stoma and care for themselves or have assistance with care. You are a breath of fresh air! I loved your baby belly dances in the mirror! 👩🏻⚕️ On a side note, 👩🏻⚕️ I noticed you had some areas of your face that look just like my skin when I have a flare up of a skin condition called peri-oral facial dermatitis. Skin is irritated and inflamed, (dermatitis)
around the mouth (peri-oral) can be around the nose, and can spread toward the chin. It kind of looks like acne at times, and it itches and hurts at the same time.. You may already know all about it, and have a dermatologist who treats you. If not, a dermatologist can help you with diagnosis and treatments. If you tried topical over the counter steroid cream, such a Cortaide, you know that that only makes it worse. Odd, but true. Topical prescription cream 2X daily to get it under control and healed is recommended first for mild to moderate cases, and some times an oral antibiotic is also added 2X daily for stubborn or moderate to severe case. It comes and goes, often no known cause. Can flair when life is especially stressful. That happens to me. I can go one to three years between flairs. Some people who get this form of skin problem ALSO have Rosacea. I do. Redness and irritation on areas of face. This is a dermatology thing too. Different from peri-oral facial dermatitis. Can flare up and cycle also. Topical cream. Face wash and moisturizer as recommend by dermatologist. Often seen in families, as is true for us. If you are nursing your baby dermatologist will discuss oral antibiotic options if you need it. BEST wishes to you as you begin parenting! The US Navy has a slogan used in campaign ads “the toughest job you will ever love.” I have long said that I think it is most apropos for parenting! Cheers!
This was really fascinating and educational! I'm glad you were finally able to find a new bag that worked for you.
omg i haven’t seen one of your videos in agessss i was obsessed with your content during the lockdowns!! congratulations on your pregnancy,
you’re an angel :)
Nurse here! A tip to put on non convex stomabags when opague. Just bend them in half so you see a semi circle. Adhere the lower half easily because yiu can see what you are doing. Then flip it normal and adhere the upper half. Good luck!
Hi Hannah - love your videos 💗. My daughter just got her ileostomy a few weeks ago, and I got her an OXO brand clear plastic squeeze bottle with a pointed spout (it’s actually for condiments like ketchup - got it on Amazon) so she could fill it with water and squirt it into her bag when she empties it. It works great! Much better than having to walk to your sink 😊. Best of luck to you with the rest of your pregnancy!
You are amazing. I have had a stoma for over 25 years. I imagine your attitude, insight and transparency are helping so many people. Thank you! ❤️
Thank you for sharing your positive energy while also being real about the whole emotional side of things. Since my UC has been acting up a lot I've been super scared of getting a stoma at one point in my life and you and other people talking about it so openly is helping so much in combating that fear.
Hope the issues calm down for the rest of your pregnancy, poor Mona struggling to adapt 😊🍀
I can't get pregnant and I don't have a stoma, but your videos are always SO enlightening, it's a whole different world to what I live and I can't thank you enough for being so open about it and sharing your story!
Okay this has been said a hundred times, but I think the algorithm just needs to know: Thank you so much for your content Hannah! I've been following you for five years now and you've always been so helpful with getting more comfortable talking about sex. And now I know a lot more about a condition I didn't know about before you got it! So much respect for handling Mona along with the baby.
Very interesting and I have all the respect for you, Hannah!! You never really complain or pitty yourself and just focus on finding solutions. But I guess thats what it takes having a cronic illness. Still very admirable. All the best for you and your baby xxx
WOW... You are amazing....god you have bin through the mill... I do hope you just get a break. You serrtenly deserve it 💛
This was so so interesting. Thanks for sharing your experience. I also think it's amazing that you had a great team who helped throughout the process so far and thank goodness for the NHS because I can't imagine going through that whole long and frustrating process and then having to pay loads for it. Wishing you all the best for the rest of your pregnancy!
As someone who’s had a stoma since I was 19, and hopes to get pregnant in the future, this video was very informative, especially as you said, there’s not many videos on ostomate’s pregnancy journeys
Thank you SO MUCH for educating me and the rest of your audience on this! I'm graduating from nursing school in a month and I've only ever seen really sick, elderly patients with stomas (acute patient stays just happen more frequently with the elderly). I've never thought about what a younger patients experience might be or these big bodily changes like pregnancy and how they impact an ileostomy. And, honestly, you gave me so much insight about body image and picking a bag that feels comfortable and makes you confident. I should've realized the importance for older patients too, but hearing it from someone younger just made it click.
From my experience talking to other mums, everyone has something. I am autistic so having extra pressure on my body during pregnancy was overwhelming and I found myself needing sensory breaks almost every day. I have many friends with hyperemesis (morning sickness all the way to the end of pregnancy), friends who were put on bed rest, friends with gestational diabetes, friends with low lying placentas affecting their birth choices and so many more. Pregnancy is a wild ride for us all but as long as we have a great team of loved ones and professionals to support us, it’s so worth it ❤️
Thank you so much for doing this, it's invaluable to me while 14 weeks pregnant with twins! Making so many notes!
I feel like pregnancy is tough already, and you've had to deal with a whole other level of challenges with the stoma! Thanks for sharing
You are SO ready for catastrophic dirty nappies! After all this, I seriously doubt there's anything that could phase you and Dan.
Sounds like you have the best stoma-nurse in the stoma-verse! 🙌🙌🙌 so glad you have someone who is listening and who is being an amazing medical partner to try and get you the best fit for you!!
My baby bellies were always so itchy from all of the stretching, so I'm sure that doesn't help the situation! I hope you're doing great today!
That was a lot to go through. You work through it with such logical optimism. Thank you for sharing your process, ups, and downs with all of us.
Incredibly grateful that we have access to super valuable info and experiences because of people like you Hannah 💛 Thank you for sharing your experience 😊I'm here for all the sex stuff all the poop stuff and all the pregnancy stuff!
My grandma was a WOCN for 45 years before she retired and she’s always been my idol. It’s nice to know how much your nurses have helped you 💕 makes me feel more connected to my grammy in a strange way
I've got an ileostomy, coming up on 4 years as well! I always always wear flange extenders, they make me feel like I've got added protection and I've never had any leaks or the bag lifting. When you go swimming again I'd definitely recommend flange extenders to keep it extra water tight!
Wow, you are so lovely! Really warmed hearted. I pray you and your family and also that you have a safe pregnancy.
This is one of the most educational things I have ever seen. I think you are awesome for sharing this. So much needed and I have learned so much of things I've never thought. I wish they teach things like this in school.
Hope you have an amazing test of pregnancy and birth. Sending you all the love 💙💙
I am 55yr and 7 months with a stoma , I enjoyed watching your video in how you are coping with pregnant with a stomer,
I feel you did an amazing job in your videos , 💞 I found it very interesting the different bags that you use.
I don't have drainable bags , I also have a 2pices , so I just changed the bag , I think you are so brave sharing your story , it will be a great help to young women like your self.
You are a beautiful soul 🌹❤️ many blessings to you and your family.💞
Thank you for sharing this!
I’m not pregnant but recently had an ileostomy surgery and getting used to everything has been so hard, and trying to get used to the whole process of having a stoma has been a massive learning curve.
I cannot thank you enough for helping me (and I’m sure others) in the same situation feel normal and seen 💜
The part about adhesives is so interesting to me because when I was pregnant I reacted to everything. I couldn't even wash my body except with water. This is such a fascinating topic, thank you for taking the time to share with us all
If you like the pelican bags try their pelican modiVi bags ... fabric is practically identical to the coloplast ones and they fold in half . They also come in black as well as 'skin colour' if you struggle with the pelican unsticking then you can stick them on the coloplast skin patches, yes it an extra step and a bit of a faff as you have to cut a hole for the stoma . But it means that you get all the benefits of the modaVi bags without the skin issues like I did . The coloplast Brava skin patches are square so cover a lot of skin giving extra security and due to the size the hole can be massive. Good luck with being a new mother. I love your videos your openness and honesty. I have only just come across your videos and I really wish I found you earlier. I have had my ileostomy 2 years ago now and still feel unsettled frustrated and I get very upset.
Thank you for making me smile and saying it as it is! Lots of love xx🥰
Oh I forgot to mention have you seen comfizz's products? You will love their waist band it is so soft and comfy and hold everything in stops your bag from flapping about and added benefit it holds your podgy wobbly bits in! Fae better than the velcro bags you have. (I have them too and never used them) the Confizz range also includes high waisted pants, boxers, even thongs. They do them in different colours and sizes and do vests as well if you feel you need level 2 (slightly firmer) support. Plus they are available on prescription! 😁
your videos are so thoughtful and informative, but i also love how insightful the comment sections are! so often the internet is a place that encourages misunderstanding, but it seems like people find even more understanding and community here!
I don't have a stoma nor do I know anyone who does, but your videos on the topic are so interesting and informative that I watch all of them. I didn't even realize how long this one was until it was over! Thank you so much for being willing to teach us!
Amazing video! I've had a stoma for 3 years now and your video's have helped me immensely. Being able to follow you on your pregnancy journey is really helpful (I'd like to have kids in the future). You should definitely check with your stoma nurse if you can get the opaque version of the Dansac bags. I've been using those ever since surgery.
I have so much respect for you! Not only are you going through this but your sharing the experience with us. hope the rest of the pregnancy goes well for you xx
Such a really informative and interesting video to watch! I am not pregnant or planning to be and I love to see your perspective. Thank you, Hannah!
Fascinating Hannah. So much respect for you.
You’re amazing! I don’t know how you do it, you cope like a boss, honestly found your Channel by accident and I’ve subbed you’re an inspiration. Keep going! x
You seem like a very strong woman. I just got diagnosed with bladder cancer and will be opting for the India pouch. I will be praying for your sadness to subside. You take care and God bless.
You are seriously changing lives with these videos Hannah, thanks for normalising something that is affecting so many people across the world but just isn't spoken about much. I don't have a stoma but have a close friend who may be getting the op soon due to her UC so I'm trying to understand how it may affect her, your vids have totally saved her mental health
Hi, thank you for making this video. I'm mid-40s with a colostomy (I'm not pregnant) but just wanted to say I hear you. Watching you learn and adapt is so inspiring.
I use the flat Salts bags (in black) and think they are amazing. I have a retracted stoma and my stoma nurse can't believe I'm getting away with the flat ones. The hard plates on the other designs just seem to pop off my skin (we're all different eh?)
Thank you for being honest with how difficult it can be with the daily challenges/leaks/sore skin etc most people only bring the positives to UA-cam and I really need to hear someone else's story that it's not all sunshine and roses with a stoma (even if we're VERY grateful about being able to have one) xx
So much love for what you do, you're a brave, intelligent and inspirational woman 👏
Such an insightful video, thank you for sharing. Your videos always provide such education- I shamefully knew nothing about stomas and can honestly say I have learnt so much within this video, what a women you are 💕