I’m a longhauler from March 2020 too... I seen your interview with Dr. McMillan & it’s a fantastic interview. You explain it so well what’s it like to live with Long Covid. It’s hard to explain to others & also for others to understand what it’s like when they don’t experience it themselves. You should try link it to your own UA-cam channel if that’s a possibility, I’m sure a lot of your viewers would resonate with it.
My dr had no idea what it was 2 months ago, I explained my symptoms and my self diagnosis, she looked like a deer in headlights and said she thought it was most likely my depression 🤨😖 like wtf??? I had never had a sore neck, breathing irregularities, pounding pressure headaches, brain fog, muscle spasms/aches, insomnia, joint pain, blah blah blah from my depression. So I located a dr that has studied it, only drawback now is 4 more weeks till my appointment and my symptoms are rapidly progressing. I have studied and read on symptoms for so many hours that it is upsetting to no means and I feel helpless. I contracted the damn mess 3 times since the very beginning, first time before vax was ready, 2nd time in Aug after having the first dose second dose 90 days later, when my cousin decided their vacation was more important than my, or my moms life and brought it from Ks, then about 3 months ago when my 5 month old granddaughter had it. My symptoms were very rough the first time but the other 2 times were almost non noticeable. The month or so after the second time is when the long covid started to manifest, and made everything a struggle. I feel as though I am just biding my time awaiting the inevitable
@@lrgninchrg No you are. NOT Ray. Direct that ignorant GP to Gez 's videos. Take the supplement stack Gez recommends in his video. This is a reversible illness. Research and treatment protocols have shown that. Niacin ( flushing variety) is a great help, too. Thus illness has taken the world by storm and doctors should say, "l just don't know, let me refer you to someone who does." Instead a combination of training and pride makes them come up with a diagnosis which is both harmful ( certainly psychologically) to the patient and their professional reputation as a physician. You also need to take an anti histamine some kind of blood thinners... Speak to your doctor first if not already on them, and N acetyl cysteine. Good luck and God bless your healing. 🙏👍😊
I’m loving these discussions of polyvagal theory and LC. I’ve been saying since early on that this whole thing felt so strangely familiar from the trauma recovery process I had literally just been coming out of when covid hit-but without the flashbacks/PTSD/psychological stuff (which I’m sure some of us have on top of this as well). I could put my finger on why it was like a body-central version of trauma recovery (as opposed to memory-centered? this is hard to describe because obviously psychological trauma also lives in the body), but this does such a good job of explaining why it felt so familiar. It makes me wonder if there’s something to be learned from trauma therapy that could also help us, even if we don’t have PTSD from it, per se.
I am sorry for those who are still suffering from long covid. I still have some symptoms (mostly chills), but now they are very mild and I am completely ignoring them. I got rid of my worst symptom (which was exhaustion after working out that would last for four or five days and I no long have this sympton) after I had my booster shot of Pfizer vaccine in late November, 2021. I have had previously two shots of Astrazeneca but couldn't see any improvement on my exhaustion symptom. I hope some day they will find out what is going on with this disease.
Appreciate each of these videos and the time/energy it takes to bring this content to the community. Holding out hope for the Berlin Cures/BC007 avenue. Would be interesting to hear from folks involved in this area of research. I wish the medical/research community in the US was further along than we seem to be. It seems Microclotting and HELP Apheresis are just starting to get acknowledgement here, though from anything I've heard, not in terms of being ready to start offering this treatment path. Again, thank you for providing this platform of current information.
Thank you Gez and Sally for this fantastic video. What generous people you are, to share your knowledge and expertise so freely, despite your own struggles with energy levels etc...thank you, thank you! Oh I'm with Sally on the acupuncture experience.. finally listened to myself and my body and have given up on it. Thanks Gez for all your videos, they are a lifeline.
Thank you so much for giving this and summing up all the little things you may or may not start to realize throughout going through this trauma for two years. :tears: But life has gotten good again, and I just keep reminding myself, I do feel good a lot of times and I will get there again after set-back. Thanks again Gez.
I've just started watching and maybe this will be covered. The philosophy of stoicism could be helpful. A thorough reading of Viktor Frankl's Man's Search for Meaning might be another. I think it's very important as well to remember that setbacks are a common life feature for billions of people, but life is precious and it's our one shot so therefore it's up to us to appreciate it to the best of our ability. We have that strength within us!!
How many big setbacks scan you take? 2, 3, maybe 4? Everytine l fall down, l get up again. Tub thumping! You. have to Gez, so many people have come to see you as a beacon of hope, an old soldier on this war on LC. You can do it... each time you get up again you're better and stronger, in ways you may not see at first. Fight on, Recovery IS on the horizon. 👍😉
When it comes to "observe" and "describe" in DBT, the very important thing she left out was that you are to do it nonjudgementally!!! If you are having chest pain, for example, you'd say/think "I have chest pain." NOT "Here's this !@#$% chest pain again. I'd wish it would stop. Maybe I'm having a heart attack." etc. etc. Don't assign meaning to it, just observe it as it is.
I don't know how I would have gotten through the last two years of dealing with long haul COVID-19 without the RUN-DMC presentations on UA-cam, and the support of my extended family in recovery. I've been in recovery for addiction for 36 years, and I have a number of support groups in which I actively participate. Being open with my health challenges has helped others who are either dealing with, or have family members and friends who are dealing with long haul COVID. Always mindful that others are not doing well, I've learned is to stay active in supporting others who are struggling, even when I'm feeling much, much better, or experiencing days when I feel healed. It's so important to reach out and stay connected, to be reminded and grateful of the progress that I've made .
@@bigbuu4334 There are long stretches of days where I feel "fully recovered". But I'm not about to relax on a regimen of diet, supplements, and energy management. I'm not willing to take a chance of recidivism to a state where my symptoms were much like Multiple Sclerosis.
THANK YOU!! Once again for a very insightful clip. I actually cried whilst listening to this psychologist (Sally) speak and I certainly feel as though my situation is validated via your channel Gez. Do you think Long Covid will be classed as a disability at some point 🤔I'm 9 months into this relapse and my boss wants me to leave/ retire due to ill health but financially this isn't an option because at the moment LC isn't being recognised as a disability - which it most certainly is. I've battled with Covid symptoms right from the very beginning of the Pandemic and now I've just given in ( Accepted my fate) I miss my old life and the energetic, enthusiastic person that I once was but Covid robs us of our previous identity and it certainly takes some re adjusting to our new way of being doesn't it. THANK YOU for being our life line - No pressure there then hey 🤣👏👏👏
Reminds me of the Fibromyalgia/ Chronic Fatigue/ Post Viral Fatigue I’ve had for decades… There is no place of peace as you put it - nice idea tho - because life has to go on. Its hard to accept not earning, not being out there, and not dealing with my life - eventually lost my job 17 years ago due to it. How to function? I’m single, so it’s up to me. I tried therapies outside the NHS initially, but like so many others, ran out of money. (I’m also a part time carer for my 90 something parents since Covid, as shortage of carers- nobody to call on). Be real - rest doesn’t come into it for most of us. Rest is something for the privileged few… This all sounded like great theory - for those with the means to do it - which I’d respectfully suggest doesn’t exist for most people. My friends know I’m unwell. Period. And the ‘I hear you’ is the worst! I just say I’m having a bad day, and cancel what I was going to do. Therapy costs money, and I don’t have that - because I have chronic illness! Vicious circle. You need money to be long term sick or in long term recovery in order to get help. On a positive note, get rid of all processed foods, carbs and sugars and alcohol. Plant based diet a good idea. Moderate regular exercise - without pushing; sound bites of activity and rest if possible. But listening to this video just made my cognitive brain fog worse than ever.
You seem more vulnerable than usual in this one Gez, probably the omicron and relentless setbacks. We’re still here and have your back. It does seem that very few of us from the first/second wave are getting better so it’s crucially important we stick together, especially in the face of (as you and Sally cover here) widespread medical gaslighting. The gap is visibly widening between the LC research findings (and the push by very poorly doctors such as Dr Asad) and the ability of the medical community to listen with humility/empathy and treat us. But summer is coming, hey 😉
I actually mean thank you for showing your vulnerability-in all your videos, especially the ones with Dr Asad; it’s the no.1 thing that helps because you’re talking about complex medical stuff but seem very human
Thanks Both, interesting Sally mentioned the chest pain being a sign of moving down the ladder, very helpful as not considered that at all when it happens . The workshop sounds a great idea so look forward to hearing more 👍🏼
Hey Gez, I am so happy to see someone so passionate about learning this syndrome that many of us are suffering! It's motivating me to start a video diary and post it as I go through my recovery and ups and downs. Just need to fix my sleep and I will get to work!! An inspiration!
Hey Gez much love from the U.S. I’ve been dealing with long COVID for 2 months now and your videos have really givin me a lot of insight and they make me feel a lot better when I’m having them bad days but I had a few questions for you if you don’t mind answering. 1. Have you looked into Dr. Pierre korys work with his protocol for long haulers 2. Have you seen any work done about NAD Iv treatment or treatment with NAC. 3. The most important question how have you been and what have you been doing yo combat your symptoms.
Hi Julian, sorry to hear you’ve been suffering. 1) I’ve heard of Dr Kory’s work but don’t know enough to comment unfortunately. 2) Watch my most recent film with Dr Wentzel! NAD IV less effective than oral niacin. 3) Watch my film ‘The Great Experiment’. I talk about it all there.
Gez, thank you so much for your videos. I have watched presentations by Dr. David Systrom, a US pulmonologist who works with ME/CFS patients. He has documented that venous blood returns to the heart with abnormally high oxygen levels. Possible explanations are that arterial blood is shunted to the venous system in a way that by passes muscle or that the muscle cells are not removing and using oxygen to produce energy at normal rates. Do you know of any researchers looking at the cellular respiration in long covid? My experience is that I did not develop dysautonomia until after my second major post exertional crash, about 18 months after the acute covid. This makes me think that the sympathetic overactivation may start as a response to the cellular damage that accompanies insufficient energy production by the mitochondria. Would really appreciate a video on mitochondrial dysfunction/damage in long covid if you have access to that info. Again, thank you for all of your efforts. Your videos have been invaluable to me. You are truly helping to fill the gap, as care is not readily available in the US. Thank you!
Hi Chris - I’m not aware of anyone looking at cellular respiration in LC, beyond the recent-ish CPET study. Definitely something that needs digging into properly!
Great convo. LC and CFS/ME is DEf a physiological illness but people are getting themselves well with mind/body work Some adding in diet stuff and few other buts, but mind.brain stuff integral to many who have got better. I have been sick 20 years and now sicker than ever. I despair and hope ev day - it is exhausting. Dr's are trained to save lives, they know nothing of chronic illness unless they have some personal interest in it, and looking to them for help with LC and CFS is waste of time. LC and CFS are way to complicated and nuanced for them to even begin to get to grips with.
I so agree with your view of CBT. I struggled with self loathing because I reached the stage where I totally numbed out(immobilized). I couldn't feel gratitude compassion and felt so disconnected to my self and life. I was in CBD therapy at the time and it just increased the self loathing which increased the insomnia and a rollercoaster to the increase of the symptoms of long covid which I had no awareness of untill I started my own research with the symptoms I was experiencing. I am still numb but I can state I am so deeply grateful for both of you and the hope your message is giving me!!!!
Thanks again to Gez and Dr Sally Riggs! Thinking of the 3 stages of the polyvagal theory throughout the day makes it easier to understand what is going on. I do not know if it is common, but I seem to go through all three stages just about every day. However, it appears that the red sympathetic stage is calming down... maybe due to better mindfulness and pacing or due to rewiring over time... or both in conjunction. As you said in the video, being trapped in a mental health system working with CBT as a cure would be a bad thing. However, I found the free UA-cam "Therapy in a Nutshell" 30-video course to be helpful for me. Luckily I have not needed therapy (even while suffering with long covid I am an optimist-- something wrong with my wiring I guess :-). However, the tools mentioned in these videos were very helpful for me to deal with the constant mental and physical suffering. I would recommend it to anyone who wants help optimizing mental health. It is not a substitute for good care, but it is one of the many "tools" I have used to grow as a person to compensate for the reduced physical and mental abilities.
I've just watched this video for the third time as I'm.back in that horrid immobilisation mode . Gosh I wish I had the amazing Dr Sally Griggs in my tribe ! .
Long Covid ongoing 2 years depression bordering on suicidal thoughts , seeing treatment regimes but not being offered any via my Long Covid Clinic but for see you in 4mths where I guess they believe I'll get better on my own 🥺
I manage to get through the fatigue and I manage to get through the neurological issues. It’s hard but I’m getting by. I’m increasingly struggling with the pain, though. It’s not that it’s worse, it’s that two years down the track the pain is grinding my reserves away. But even that’s not the worst aspect of coping with long Covid and Functional Neurological Symptoms due to Covid. The worst aspect of it is dealing with the medical profession: dismissive attitudes, denial, patient blaming, false attribution to anxiety, malingering, psychiatric disorders etc. For example, I continue to have episodes of O2 desaturation (dropped to 87% at work two days ago, nurse did my obs). A respiratory consultant did a “virtual consultation” (ie no contact with me) and sent a letter saying it was “hyperventilation due to anxiety”. One, my respiratory rate has not been high enough to meet the criteria for hyperventilation. Two, hyperventilation does not result in O2 desaturation (SpO2 can actually increase, usually around 98%), it results in CO2 desaturation. Three, how can a respiratory consultant diagnose anxiety in a patient he’s never met or spoken to? I actually have, or perhaps had, good coping strategies due to a combination of tough jobs, training and academic study (including social psychology and behavioural psychology). Obviously, I have moments of anxiousness about my situation but it’s not constant or unremitting, it doesn’t paralyse me mentally and I’m not constantly anxious about a range of situations and issues, I am bloody angry with the medical profession, which is not an inappropriate response as one GP claimed, but not with the conditions I’ve been left with. Stuff happens, I get on with it. But what I don’t needed is arrogant, doubting, gaslighting, doctor knows best attitudes from the medical profession. I work in the NHS and genuinely believe in compassionate patient-centred care, which makes things even more infuriating.
Ditto. There was a sunny day last week and it reminded me I’m going into my third summer in bed..not good. But I actually feel worse overall about the medical gaslighting, nurses tutting at me at the hospital and people asking me if I’m exercising every day. Despite my best efforts have had no treatment and have decided it’s best to step away for a while, look for alternatives, and hope the NHS catches up! I can’t read any more but follow and take part in research as much as I can using Twitter and just hope one day compassion will return and I’ll be able to go back and get treatment.
Hey, thanks for all your hard work on this topic. I’m a long hauler since November 2020. I’m currently looking into brain retraining, specifically DNRS, after having exhausted all the usual therapies, diet, supplements, meditation, breath work, etc. Have you looked into limbic system impairment in any of your work?
Another great video Gez. Are you able to share how Dr Asad is getting on these days? Did the apheresis help him? I'm guessing it wasn't the silver bullet for you?
The combo with anticoagulants and then HBOT was very effective - until booster and tilt test messed me up. Will have something up on the channel with Asad soon - he’s been v busy working on a study!
@@RUNDMC1 Ah, how frustrating! Fludrocortisone was doing the trick for me until Omicron messed me up! Anyway, thanks for all that you do - it was heartbreaking to hear your comment to Sally Riggs about the "euthanasia button" in the January video - you give hope to so many people Gez, and you've touched more lives than you will probably ever know! Stay strong for us!
Thanks for keeping the conversation going . Super video and very comforting to know we are all in it together with all these empowered , knowledgeable people driving us towards recovery .
Nice video again. Would love hearing from others at what point they feel this condition gets tolerable. Is there a turning point? I think many people are unable or apprehensive about trying new things. The cost and the disappointment we experience each time a treatment modality fails just adds to the frustration. Then you also have people promoting various supplements and diets they say work, but may actually have some financial gain they are pursuing. This just increases the pain and trauma already felt. Hope there will be answers soon. It helps to have someone in the forefront that can keep us all abreast of new things that can help.. Will try the journaling since it will help get out some of the emotions..
@@RUNDMC1 So sorry to hear. Disappointing to come so far and then get slammed down again. Hopefully you are ok. I had only one vax since I had such a bad reaction. {Moderna} so totally unprotected. I am ordering an Alpha Stim and am hopeful will get some relief with the device. The Apollo didn't help like I expected. It's nice of you to take the time to reply. I appreciate the work you do for the cause. Get well soon I hope!
Thank you! Great timing. As a mid-Marcher (2020) I've kept going, researching, hoping until catching something 3 weeks ago which wiped me out and I felt real despair. The 3 stage poly vagal visual worked for me. The black, immobilized, constipated zone is occurring less often which is a fabulous marker. Thank you Sally. And I have those weird yawns too! I've had a nightmare time with trying to get PIP. As someone who would like to believe that this is temporary, it was traumatic to have to detail what I can't do. Then to be refused was devastating. The form, which I found impossible to deal with due to cognitive issues and had extensive help from the wonderful CAB, states that the award isn't about your condition but, instead, it is about how it impacts your life. BUT the judgement is based on your test results and the treatment you are receiving. !!!! So a new condition with no clear protocol for treatment doesn't fit the juggernaut that is the benefit system. Could this be the next problem to be tackled Gez?
So sorry your PIP was declined. I managed to be awarded standard PIP for daily living and mobility in December 2021, also meaning I qualified for a blue badge. It was a real challenge, as you know, to fill out the form and then have the phone assessment and I am an Occupational Therapist and very familiar with these things!. Perhaps challenge the PIP decision? Warm wishes
Gez, thank you very much for this channel. Your work is extremely helpful in finding a way through the jungle. Thank you especially for your interviews with Sally. I feel that you are both mirrowing a lot of my thoughts and therefore giving them a frame of normality. I am a Palliative Care physician, dealing with patients with life limiting diseases.From my professional point of view I thin it is important to highlight the concept of salutogenesis, introduced by Aaron Antonovsky. Saltuogenesis is opposed to pathogenesis and focuses on resources instead of deficits. On important aspect within is the concept of coherence, which consists of the components comprehensibility, manageability and meaningfulness. I thin acknowledging the meaningfulness of the disease is helpful. There has to be something positive about it - well and I think there is. Do I want my life back ?: YES ! Do I want my life back exactly as it was ?: No. Because even with all the panic, pain, anxiety, grief I sometimes manage to see what I gain out of it. And this is particularly a new understanding of myself, even a much better contact with me. I would go so far to say that there is a chance this disease is offering me - although I hate it. Probably a positive thought about this awful disease is a resource or a bit of resilience. However you want to call it, I think it is important. Hopefully that makes sense. Thank you again ! Great, great work. Anke
It’s been about 4 weeks since I had Covid and I still haven’t felt right. I noticed the fatigue and brain fog and my anxiety levels went through the roof. During my two weeks isolation I noticed some symptoms were barely improving. Til this day I still struggle with the fatigue but I’m worried my doctor will say it’s all in my head.
Thank you for the clear explanations. I appreciate that both of you could use the time to speak of your own experiences, but you are careful to use the time most efficiently for your viewers. Kudos! I am thinking that many people turn to alcohol -etc. because of the immediate fix, and they just don’t know they can destress in healthy ways.
I experienced gaslighting from my Dr. He said to me "You have not got long covid because the condition does not exist". I felt devastated and belittled. I've just vented all my issues onto a word document and do feel better for it. Thanks for the advice.
I Really appreciate the time and effort you both are taking. Thank you so much❤️ This video is so so helpful!! Cried so much. I am not alone. Yesterday I had a awful 4 hour attack of fatique, heavy breathing, tingeling vingers and mouth etc. and all I could say was help. Am I in the red or the blue? (I also noticing that I have to clear pee every 10 minutes before and during.) Tip: download the app: I am. It sends all day positive affirmations -and off course the post Its on your mirror. -write down your triggers and signals and all the helpful tips that Sally mentioned
5 weeks after testing negative from covid my cough got worse, experiencing fatigue, random stomach pains, body pain and weakness, on and off sore throat and when I got home from work I feel like I'm having a fever, but upon checking my temperature it is normal. Is this long covid?
What about if you’re already a ‘long hauler’ from ME/ post menopause/hypothyroid and then have Covid. How to measure progress psychologically and physically.
Brilliant discussion Dr Sally, Riggs!!! - My own understanding of the ANS and the Vagus Nerve - of being aware and able to navigate my own feelings of safety,, OR triggers that I reacted to has been a game changer to maintain my resilience to the trauma's of LC
After 8 months long covid and still on oxygen , I have to share except my lungs, most of all the other long covid symptoms cleared with Front line doctors protocol for mast cell activation! Please look into it!!!
For me it seems like the only "cure" for any long covid I have had four times now is when I get a fresh new infection from a more virulent variant. Then I get to experience that variants long haul. With delta it long hauled my brain, Vagus nerve, right eyeball, It felt like a jagged, splintered, shattered shard of wood was lodged in my brain and poked out my right eyebrow. It went down into my neck, thats were it started, a stiff neck that went into my brain giving me a "stiff brain" which lassted for 6 weeks then I conned my self into believing pain and pleasure carry the same chemistry and i had a DMT trip that lasted another month along with all the pain I could possibly ignore, that was "better".. I know it sounds funny and I try to make light of it but I know my brain was permanently damaged but on the bright side it's the part the secret government zapped to stop me from remote viewing their activities. So I was damaged already with enough delusional paradoxes to satisfy any curiosity of am I fucked up or not. Omicron ended deltas reign and thankfully it's long haul has infected my thumbs. I call it "Funky Thumbs" if partially paralyses my thumbs which really fucks with my guitar playing and has lingered for four months now. I keep hoping it will "go away" but the more attention I give it the more it wants to disable and depress me. Sorry little o you are changing me but I will learn to ignore your mutations. I look back at each variant as multiple near death experiences. If my brain wasn't affected over and over some how I come away with consciousness again I will be pretty happy. Even if I'm still dumb after all I can be blissfully ignorant about how I am judged.
Oh my now I’m so confused My husband passed away 2018 and my family is not helping me at all. . I live alone 73 years old Got Covid March April of 21 then again Christmas night and still in the house only been out 3times to drs for appointments. I have my church drop off supplies and food. My heart racing ,I have the shakes , Headaches coughing weakness etc . Cat scan showed nodule in my lung the first time Blood work is fine . Going to watch this again Bless you all . Thanks for trying to help.
I'm so thankful for this channel especially for people like me who were in the "first wave" where we had the original variant with no PCR testing and no way to "prove" we had Covid. Thank goodness I took pictures of my strange toes which turned out to be possibly "Covid toes." All I have to show for this is all the symptoms we all have including SVT (supraventicular tachycardia ).
I am most thankful for RUN-DMC / Gez Medinger and all of the credible guests featured, and especially Dr. Sally Riggs. One more CT scan with contrast of the heart ordered by my cardiologist came out "clear", no problems detected, "See you in a year." And yet I question why there's so much chest pain when all tests are clear. Why is it that sometimes I can't catch my breath and later that day I'm okay. The young cardiologist suggested that I hang out with old, fat, lazy people, and relax my way into oblivion.
6 months after severe covid still suffering for shortness of breath, asthma faster breathing, brain fog ringing on my head, im so very tired of this post covid,, i hope soon i will get better on this kind of devil virus its ruin my life 😭😭
I have same symptoms, how are you now??? Any better? I don’t understand the ongoing dyspnea. I wonder how long this will take and I hope I’m not stuck with this…
So I have waited 3 months for any help from the Long Covid Clinic and I have just got a Health in Mind CBT therapist. I feel it is unclear why this is a traversty? Should I not bother?
Hi Gez, Wondering if you have heard successful stories of people taking antidepressants for symptoms like fatigue, muscle pain? I think remembering for instance Dr. Tamsin Lewis mentioned it but cannot find the video. Thank you!
Trying to see a therapist (psychiatrist)too. My country people still don't believe this exists, I have to come here to get answers most times. My fatigue is better, I've learnt pacing my activities very well but I still struggle with chest pains and I don't know what else to do, hospital gave me medication for gases and my mental health is a mess..anyone experiencing chest pains that done seem to go away? I think I'm in that red box currently
Hello Gez, thanks for the great video. I am not english, and I have hard time to understand the term "CBT" or "CVT" ? Which Dr Riggs is talking about starting 24:15 about the kind of therapy for managing LC. Thanks for the help :)
I am now in deep depression and insomnia from my long covid, and am being treated with benzos, Lexapro, and Wellbutrin. I am on the Dr. Bruce Patterson program and have made some moderate progress in the long covid area, but the depression has sucked the life out of me. What is your thoughts on SSRI's and meds for depression. I am told stress can also lead to long covid flair-ups.
Anthony is actually exactly right! Hes not accepting it. Its ptsd effecting the autonomic nervous system. Then our brains create depression pain and any of 200 symptoms. Fight or flight is brain. ANS is brain. LC is NOT tissue damage
I am on that for 3 months. Still not better, but made some progress. Been through 2 Cytokine tests, the second had improvement in 9 of the 14 markers, 2 got worse. On Maraviroc, statins, Ivermectin and an H1 antihistamine. I have had long covid for 6 months.
@@boxer1639 No idea, but they (Patterson's group) that they usually run that treatment protocol for 2-4 months. In the 1st month, my brain fog and tinnitus disappeared, but I have a neurological flair up after exercise, I am only able to walk on a treadmill at this point. I do not have fatigue, on fact I have a lot of energy and can't sleep. The inability to exercise is really killing me. I also have a weird sensitivity to heat and cold, and my feet sometimes feel like they are freezing when they in fact warm. In the scope of things, I don't think my LC symptoms are really that bad compared to others I have read about.
Interesting video! I now have anti-coagulant and it seems to help quite a bit, alongside regular aspirin daily. A few months ago, I tried nattokinase and it wasn't doing anything, as it is nowhere good enough for long covid micro-clots. Following this channel and Dr Been has been so important, I can't thank you enough. I am still far from 100% recovery, but still, there is a slow trend toward recovery.
@@RUNDMC1 Yes and at the same time, with so many improvements and set-backs, it is kind-of hard to believe that the improvement will stay after I stop them.
@@StaringCompetition It is Xarelto 20mg, but talk to your doctor first, do not take this as medical advice. Aspirin do help and it is easy to get. Even the ''baby aspirin'' will help, with less GI damage. I think there is even variants for people with sensitive gut. Try it first, as it is over the counter and inexpensive.
I’m a longhauler from March 2020 too... I seen your interview with Dr. McMillan & it’s a fantastic interview. You explain it so well what’s it like to live with Long Covid. It’s hard to explain to others & also for others to understand what it’s like when they don’t experience it themselves. You should try link it to your own UA-cam channel if that’s a possibility, I’m sure a lot of your viewers would resonate with it.
My dr had no idea what it was 2 months ago, I explained my symptoms and my self diagnosis, she looked like a deer in headlights and said she thought it was most likely my depression 🤨😖 like wtf???
I had never had a sore neck, breathing irregularities, pounding pressure headaches, brain fog, muscle spasms/aches, insomnia, joint pain, blah blah blah from my depression. So I located a dr that has studied it, only drawback now is 4 more weeks till my appointment and my symptoms are rapidly progressing. I have studied and read on symptoms for so many hours that it is upsetting to no means and I feel helpless.
I contracted the damn mess 3 times since the very beginning, first time before vax was ready, 2nd time in Aug after having the first dose second dose 90 days later, when my cousin decided their vacation was more important than my, or my moms life and brought it from Ks, then about 3 months ago when my 5 month old granddaughter had it. My symptoms were very rough the first time but the other 2 times were almost non noticeable. The month or so after the second time is when the long covid started to manifest, and made everything a struggle.
I feel as though I am just biding my time awaiting the inevitable
@@lrgninchrg No you are. NOT Ray. Direct that ignorant GP to Gez 's videos. Take the supplement stack Gez recommends in his video. This is a reversible illness. Research and treatment protocols have shown that. Niacin ( flushing variety) is a great help, too. Thus illness has taken the world by storm and doctors should say, "l just don't know, let me refer you to someone who does." Instead a combination of training and pride makes them come up with a diagnosis which is both harmful ( certainly psychologically) to the patient and their professional reputation as a physician.
You also need to take an anti histamine some kind of blood thinners... Speak to your doctor first if not already on them, and N acetyl cysteine. Good luck and God bless your healing. 🙏👍😊
The compulsive yawning after breath work - absolutely! Thank you for this context.
I’m loving these discussions of polyvagal theory and LC. I’ve been saying since early on that this whole thing felt so strangely familiar from the trauma recovery process I had literally just been coming out of when covid hit-but without the flashbacks/PTSD/psychological stuff (which I’m sure some of us have on top of this as well). I could put my finger on why it was like a body-central version of trauma recovery (as opposed to memory-centered? this is hard to describe because obviously psychological trauma also lives in the body), but this does such a good job of explaining why it felt so familiar. It makes me wonder if there’s something to be learned from trauma therapy that could also help us, even if we don’t have PTSD from it, per se.
I completely agree Rachel
I've had EMDR therapy for PTSD, and know what a PTSD meltown feels like. If feels just like this long covid immobilization.
@@paulah.9415 Same!
I am sorry for those who are still suffering from long covid. I still have some symptoms (mostly chills), but now they are very mild and I am completely ignoring them. I got rid of my worst symptom (which was exhaustion after working out that would last for four or five days and I no long have this sympton) after I had my booster shot of Pfizer vaccine in late November, 2021. I have had previously two shots of Astrazeneca but couldn't see any improvement on my exhaustion symptom. I hope some day they will find out what is going on with this disease.
You’re not the only one Paulo!
Appreciate each of these videos and the time/energy it takes to bring this content to the community. Holding out hope for the Berlin Cures/BC007 avenue. Would be interesting to hear from folks involved in this area of research. I wish the medical/research community in the US was further along than we seem to be. It seems Microclotting and HELP Apheresis are just starting to get acknowledgement here, though from anything I've heard, not in terms of being ready to start offering this treatment path.
Again, thank you for providing this platform of current information.
I was just looking into this BC007 but I can't find anything... do you have any link to share?
This is very helpful! THANK YOU BOTH !
Thank you Judy!
Thank you Gez and Sally for this fantastic video. What generous people you are, to share your knowledge and expertise so freely, despite your own struggles with energy levels etc...thank you, thank you! Oh I'm with Sally on the acupuncture experience.. finally listened to myself and my body and have given up on it. Thanks Gez for all your videos, they are a lifeline.
Best of luck to you in your recovery Aileen!
Thank you so much for giving this and summing up all the little things you may or may not start to realize throughout going through this trauma for two years. :tears: But life has gotten good again, and I just keep reminding myself, I do feel good a lot of times and I will get there again after set-back. Thanks again Gez.
I've just started watching and maybe this will be covered. The philosophy of stoicism could be helpful. A thorough reading of Viktor Frankl's Man's Search for Meaning might be another. I think it's very important as well to remember that setbacks are a common life feature for billions of people, but life is precious and it's our one shot so therefore it's up to us to appreciate it to the best of our ability. We have that strength within us!!
I agree. Stoicism has helped me a lot! Many of the good points of CBT seem to be borrowed from soicism.
How many big setbacks scan you take? 2, 3, maybe 4? Everytine l fall down, l get up again. Tub thumping! You. have to Gez, so many people have come to see you as a beacon of hope, an old soldier on this war on LC. You can do it... each time you get up again you're better and stronger, in ways you may not see at first. Fight on, Recovery IS on the horizon.
👍😉
Thank you Carol!
When it comes to "observe" and "describe" in DBT, the very important thing she left out was that you are to do it nonjudgementally!!!
If you are having chest pain, for example, you'd say/think "I have chest pain." NOT "Here's this !@#$% chest pain again. I'd wish it would stop. Maybe I'm having a heart attack." etc. etc.
Don't assign meaning to it, just observe it as it is.
Absolutely! Thanks for that helpful reminder!
Just wanted to say thanks again for putting your time into making these videos
Thank you Melanie :)
I don't know how I would have gotten through the last two years of dealing with long haul COVID-19 without the RUN-DMC presentations on UA-cam, and the support of my extended family in recovery.
I've been in recovery for addiction for 36 years, and I have a number of support groups in which I actively participate. Being open with my health challenges has helped others who are either dealing with, or have family members and friends who are dealing with long haul COVID.
Always mindful that others are not doing well, I've learned is to stay active in supporting others who are struggling, even when I'm feeling much, much better, or experiencing days when I feel healed. It's so important to reach out and stay connected, to be reminded and grateful of the progress that I've made .
Hey that’s good to hear ! Are you recovered from long hauling ?
@@bigbuu4334 There are long stretches of days where I feel "fully recovered". But I'm not about to relax on a regimen of diet, supplements, and energy management. I'm not willing to take a chance of recidivism to a state where my symptoms were much like Multiple Sclerosis.
What a brilliant comment - I do hope you’re doing better with your Long Covid :)
THANK YOU!! Once again for a very insightful clip. I actually cried whilst listening to this psychologist (Sally) speak and I certainly feel as though my situation is validated via your channel Gez. Do you think Long Covid will be classed as a disability at some point 🤔I'm 9 months into this relapse and my boss wants me to leave/ retire due to ill health but financially this isn't an option because at the moment LC isn't being recognised as a disability - which it most certainly is. I've battled with Covid symptoms right from the very beginning of the Pandemic and now I've just given in ( Accepted my fate) I miss my old life and the energetic, enthusiastic person that I once was but Covid robs us of our previous identity and it certainly takes some re adjusting to our new way of being doesn't it. THANK YOU for being our life line - No pressure there then hey 🤣👏👏👏
Thank you Dee :) As for LC being counted as a disability - I wouldn’t hold my breath!
@@RUNDMC1 Me neither - The ME PFVS etc community have battled for years haven't they ... oh well onwards and upwards Rodney 🤣
Ps it is I who 'Thank you' and your commitment to our plight 👏👏👏🙏
Reminds me of the Fibromyalgia/ Chronic Fatigue/ Post Viral Fatigue I’ve had for decades…
There is no place of peace as you put it - nice idea tho - because life has to go on.
Its hard to accept not earning, not being out there, and not dealing with my life - eventually lost my job 17 years ago due to it.
How to function? I’m single, so it’s up to me. I tried therapies outside the NHS initially, but like so many others, ran out of money.
(I’m also a part time carer for my 90 something parents since Covid, as shortage of carers- nobody to call on).
Be real - rest doesn’t come into it for most of us. Rest is something for the privileged few…
This all sounded like great theory - for those with the means to do it - which I’d respectfully suggest doesn’t exist for most people. My friends know I’m unwell. Period. And the ‘I hear you’ is the worst! I just say I’m having a bad day, and cancel what I was going to do. Therapy costs money, and I don’t have that - because I have chronic illness! Vicious circle.
You need money to be long term sick or in long term recovery in order to get help.
On a positive note, get rid of all processed foods, carbs and sugars and alcohol. Plant based diet a good idea. Moderate regular exercise - without pushing; sound bites of activity and rest if possible. But listening to this video just made my cognitive brain fog worse than ever.
Yes, I can relate to Everything you have expressed so well. Thank you.
You seem more vulnerable than usual in this one Gez, probably the omicron and relentless setbacks. We’re still here and have your back.
It does seem that very few of us from the first/second wave are getting better so it’s crucially important we stick together, especially in the face of (as you and Sally cover here) widespread medical gaslighting. The gap is visibly widening between the LC research findings (and the push by very poorly doctors such as Dr Asad) and the ability of the medical community to listen with humility/empathy and treat us.
But summer is coming, hey 😉
I actually mean thank you for showing your vulnerability-in all your videos, especially the ones with Dr Asad; it’s the no.1 thing that helps because you’re talking about complex medical stuff but seem very human
Winter has been very hard on my LC. In the fall, it wasn't too bad, so I really hope it will get better during spring and summer!
Thanks Beren :)
Thanks Both, interesting Sally mentioned the chest pain being a sign of moving down the ladder, very helpful as not considered that at all when it happens . The workshop sounds a great idea so look forward to hearing more 👍🏼
Dr. Sally Riggs! I fell instantly in love with her compassion, knowledge and ear rings! What an absolute treasure. Thank you Gez.
Hey Gez, I am so happy to see someone so passionate about learning this syndrome that many of us are suffering!
It's motivating me to start a video diary and post it as I go through my recovery and ups and downs. Just need to fix my sleep and I will get to work!! An inspiration!
Hey Gez much love from the U.S. I’ve been dealing with long COVID for 2 months now and your videos have really givin me a lot of insight and they make me feel a lot better when I’m having them bad days but I had a few questions for you if you don’t mind answering. 1. Have you looked into Dr. Pierre korys work with his protocol for long haulers 2. Have you seen any work done about NAD Iv treatment or treatment with NAC. 3. The most important question how have you been and what have you been doing yo combat your symptoms.
Hi Julian, sorry to hear you’ve been suffering.
1) I’ve heard of Dr Kory’s work but don’t know enough to comment unfortunately.
2) Watch my most recent film with Dr Wentzel! NAD IV less effective than oral niacin.
3) Watch my film ‘The Great Experiment’. I talk about it all there.
@@RUNDMC1 Yes, thank you Gez for Dr Wentzel interview. I am using that protocol with niacin.
Gez, thank you so much for your videos. I have watched presentations by Dr. David Systrom, a US pulmonologist who works with ME/CFS patients. He has documented that venous blood returns to the heart with abnormally high oxygen levels. Possible explanations are that arterial blood is shunted to the venous system in a way that by passes muscle or that the muscle cells are not removing and using oxygen to produce energy at normal rates. Do you know of any researchers looking at the cellular respiration in long covid? My experience is that I did not develop dysautonomia until after my second major post exertional crash, about 18 months after the acute covid. This makes me think that the sympathetic overactivation may start as a response to the cellular damage that accompanies insufficient energy production by the mitochondria. Would really appreciate a video on mitochondrial dysfunction/damage in long covid if you have access to that info. Again, thank you for all of your efforts. Your videos have been invaluable to me. You are truly helping to fill the gap, as care is not readily available in the US. Thank you!
Hi Chris - I’m not aware of anyone looking at cellular respiration in LC, beyond the recent-ish CPET study. Definitely something that needs digging into properly!
Great convo. LC and CFS/ME is DEf a physiological illness but people are getting themselves well with mind/body work Some adding in diet stuff and few other buts, but mind.brain stuff integral to many who have got better. I have been sick 20 years and now sicker than ever. I despair and hope ev day - it is exhausting. Dr's are trained to save lives, they know nothing of chronic illness unless they have some personal interest in it, and looking to them for help with LC and CFS is waste of time. LC and CFS are way to complicated and nuanced for them to even begin to get to grips with.
I so agree with your view of CBT. I struggled with self loathing because I reached the stage where I totally numbed out(immobilized). I couldn't feel gratitude compassion and felt so disconnected to my self and life. I was in CBD therapy at the time and it just increased the self loathing which increased the insomnia and a rollercoaster to the increase of the symptoms of long covid which I had no awareness of untill I started my own research with the symptoms I was experiencing. I am still numb but I can state I am so deeply grateful for both of you and the hope your message is giving me!!!!
Thanks again to Gez and Dr Sally Riggs!
Thinking of the 3 stages of the polyvagal theory throughout the day makes it easier to understand what is going on. I do not know if it is common, but I seem to go through all three stages just about every day. However, it appears that the red sympathetic stage is calming down... maybe due to better mindfulness and pacing or due to rewiring over time... or both in conjunction.
As you said in the video, being trapped in a mental health system working with CBT as a cure would be a bad thing. However, I found the free UA-cam "Therapy in a Nutshell" 30-video course to be helpful for me. Luckily I have not needed therapy (even while suffering with long covid I am an optimist-- something wrong with my wiring I guess :-). However, the tools mentioned in these videos were very helpful for me to deal with the constant mental and physical suffering. I would recommend it to anyone who wants help optimizing mental health. It is not a substitute for good care, but it is one of the many "tools" I have used to grow as a person to compensate for the reduced physical and mental abilities.
I've just watched this video for the third time as I'm.back in that horrid immobilisation mode . Gosh I wish I had the amazing Dr Sally Griggs in my tribe ! .
Long Covid ongoing 2 years depression bordering on suicidal thoughts , seeing treatment regimes but not being offered any via my Long Covid Clinic but for see you in 4mths where I guess they believe I'll get better on my own 🥺
So sorry to hear this. I do hope there’s something in this film that can help to some small degree.
I manage to get through the fatigue and I manage to get through the neurological issues. It’s hard but I’m getting by. I’m increasingly struggling with the pain, though. It’s not that it’s worse, it’s that two years down the track the pain is grinding my reserves away. But even that’s not the worst aspect of coping with long Covid and Functional Neurological Symptoms due to Covid. The worst aspect of it is dealing with the medical profession: dismissive attitudes, denial, patient blaming, false attribution to anxiety, malingering, psychiatric disorders etc. For example, I continue to have episodes of O2 desaturation (dropped to 87% at work two days ago, nurse did my obs). A respiratory consultant did a “virtual consultation” (ie no contact with me) and sent a letter saying it was “hyperventilation due to anxiety”. One, my respiratory rate has not been high enough to meet the criteria for hyperventilation. Two, hyperventilation does not result in O2 desaturation (SpO2 can actually increase, usually around 98%), it results in CO2 desaturation. Three, how can a respiratory consultant diagnose anxiety in a patient he’s never met or spoken to? I actually have, or perhaps had, good coping strategies due to a combination of tough jobs, training and academic study (including social psychology and behavioural psychology). Obviously, I have moments of anxiousness about my situation but it’s not constant or unremitting, it doesn’t paralyse me mentally and I’m not constantly anxious about a range of situations and issues, I am bloody angry with the medical profession, which is not an inappropriate response as one GP claimed, but not with the conditions I’ve been left with. Stuff happens, I get on with it. But what I don’t needed is arrogant, doubting, gaslighting, doctor knows best attitudes from the medical profession. I work in the NHS and genuinely believe in compassionate patient-centred care, which makes things even more infuriating.
Ditto. There was a sunny day last week and it reminded me I’m going into my third summer in bed..not good. But I actually feel worse overall about the medical gaslighting, nurses tutting at me at the hospital and people asking me if I’m exercising every day. Despite my best efforts have had no treatment and have decided it’s best to step away for a while, look for alternatives, and hope the NHS catches up! I can’t read any more but follow and take part in research as much as I can using Twitter and just hope one day compassion will return and I’ll be able to go back and get treatment.
Dr. Bruce Pattersen was seeing success with, maravaroc and stating. I have not tried it, has anyone else?
Hey, thanks for all your hard work on this topic. I’m a long hauler since November 2020. I’m currently looking into brain retraining, specifically DNRS, after having exhausted all the usual therapies, diet, supplements, meditation, breath work, etc. Have you looked into limbic system impairment in any of your work?
It’s essentially the same thing as the autonomic dysfunction we talk about. DNRS has had some decent results I’ve heard about!
How are u now?
Another great video Gez. Are you able to share how Dr Asad is getting on these days? Did the apheresis help him? I'm guessing it wasn't the silver bullet for you?
+1 I really want an update with Dr Asad Khan
The combo with anticoagulants and then HBOT was very effective - until booster and tilt test messed me up. Will have something up on the channel with Asad soon - he’s been v busy working on a study!
@@RUNDMC1 Ah, how frustrating! Fludrocortisone was doing the trick for me until Omicron messed me up! Anyway, thanks for all that you do - it was heartbreaking to hear your comment to Sally Riggs about the "euthanasia button" in the January video - you give hope to so many people Gez, and you've touched more lives than you will probably ever know! Stay strong for us!
Thanks for keeping the conversation going . Super video and very comforting to know we are all in it together with all these empowered , knowledgeable people driving us towards recovery .
Step 1 of long covid recovery: do not read UA-cam comments.
I'm just having difficulty finding any Dr who is treating the condition..
The feeling of being ''on my own'' to treat long covid is terrible. I agree with you.
@@sallyriggs465 Massachusetts...
Nice video again. Would love hearing from others at what point they feel this condition gets tolerable. Is there a turning point? I think many people are unable or apprehensive about trying new things. The cost and the disappointment we experience each time a treatment modality fails just adds to the frustration. Then you also have people promoting various supplements and diets they say work, but may actually have some financial gain they are pursuing. This just increases the pain and trauma already felt. Hope there will be answers soon. It helps to have someone in the forefront that can keep us all abreast of new things that can help.. Will try the journaling since it will help get out some of the emotions..
Hi Pam - yes there is a turning point and I think I went round it a few weeks ago. Then I caught Omicron and it all starts all over again 🙈
@@RUNDMC1 So sorry to hear. Disappointing to come so far and then get slammed down again. Hopefully you are ok. I had only one vax since I had such a bad reaction. {Moderna} so totally unprotected. I am ordering an Alpha Stim and am hopeful will get some relief with the device. The Apollo didn't help like I expected. It's nice of you to take the time to reply. I appreciate the work you do for the cause. Get well soon I hope!
Thank you warmly Gez & Sally xx Just what I needed this evening.
Thanks Chris!
Thank you! Great timing. As a mid-Marcher (2020) I've kept going, researching, hoping until catching something 3 weeks ago which wiped me out and I felt real despair.
The 3 stage poly vagal visual worked for me. The black, immobilized, constipated zone is occurring less often which is a fabulous marker. Thank you Sally.
And I have those weird yawns too!
I've had a nightmare time with trying to get PIP. As someone who would like to believe that this is temporary, it was traumatic to have to detail what I can't do. Then to be refused was devastating. The form, which I found impossible to deal with due to cognitive issues and had extensive help from the wonderful CAB, states that the award isn't about your condition but, instead, it is about how it impacts your life. BUT the judgement is based on your test results and the treatment you are receiving. !!!! So a new condition with no clear protocol for treatment doesn't fit the juggernaut that is the benefit system. Could this be the next problem to be tackled Gez?
It’s certainly a massive issue and not one I’ve felt up to tackling yet!
So sorry your PIP was declined. I managed to be awarded standard PIP for daily living and mobility in December 2021, also meaning I qualified for a blue badge. It was a real challenge, as you know, to fill out the form and then have the phone assessment and I am an Occupational Therapist and very familiar with these things!. Perhaps challenge the PIP decision? Warm wishes
How do we get out of immobilization? Besides hiring a counselor and paying for this "special" music?
Breathing exercises are a good place to start. Plenty of free apps out there. Coherence breathing 6-6 would be my pick.
Gez, thank you very much for this channel. Your work is extremely helpful in finding a way through the jungle. Thank you especially for your interviews with Sally. I feel that you are both mirrowing a lot of my thoughts and therefore giving them a frame of normality.
I am a Palliative Care physician, dealing with patients with life limiting diseases.From my professional point of view I thin it is important to highlight the concept of salutogenesis, introduced by Aaron Antonovsky. Saltuogenesis is opposed to pathogenesis and focuses on resources instead of deficits. On important aspect within is the concept of coherence, which consists of the components comprehensibility, manageability and meaningfulness.
I thin acknowledging the meaningfulness of the disease is helpful. There has to be something positive about it - well and I think there is.
Do I want my life back ?: YES ! Do I want my life back exactly as it was ?: No.
Because even with all the panic, pain, anxiety, grief I sometimes manage to see what I gain out of it. And this is particularly a new understanding of myself, even a much better contact with me. I would go so far to say that there is a chance this disease is offering me - although I hate it.
Probably a positive thought about this awful disease is a resource or a bit of resilience. However you want to call it, I think it is important.
Hopefully that makes sense.
Thank you again ! Great, great work. Anke
What a great comment - thank you Anke! Wishing you the best in your recovery :)
It’s been about 4 weeks since I had Covid and I still haven’t felt right. I noticed the fatigue and brain fog and my anxiety levels went through the roof. During my two weeks isolation I noticed some symptoms were barely improving. Til this day I still struggle with the fatigue but I’m worried my doctor will say it’s all in my head.
Watch my video on how to avoid Long Covid!
Thank you for the clear explanations. I appreciate that both of you could use the time to speak of your own experiences, but you are careful to use the time most efficiently for your viewers. Kudos!
I am thinking that many people turn to alcohol -etc. because of the immediate fix, and they just don’t know they can destress in healthy ways.
Sadly😢
I experienced gaslighting from my Dr. He said to me "You have not got long covid because the condition does not exist". I felt devastated and belittled. I've just vented all my issues onto a word document and do feel better for it. Thanks for the advice.
This is awful. So sorry Andrew!
I Really appreciate the time and effort you both are taking. Thank you so much❤️
This video is so so helpful!! Cried so much. I am not alone. Yesterday I had a awful 4 hour attack of fatique, heavy breathing, tingeling vingers and mouth etc. and all I could say was help. Am I in the red or the blue?
(I also noticing that I have to clear pee every 10 minutes before and during.)
Tip: download the app: I am. It sends all day positive affirmations
-and off course the post Its on your mirror.
-write down your triggers and signals and all the helpful tips that Sally mentioned
Thanks for the lovely comment Yamina and sending you a huge hug. We all know how tough it is!
5 weeks after testing negative from covid my cough got worse, experiencing fatigue, random stomach pains, body pain and weakness, on and off sore throat and when I got home from work I feel like I'm having a fever, but upon checking my temperature it is normal. Is this long covid?
Yes, for me is started like this 1 year ago and nothing is changed
@@matteopraglia1175 Do you still feel the symptoms?
@@watcher2534 yes
@@matteopraglia1175 how do you deal with the sore throat and body aches?
hope they find a cure for this...
Me too!
What about if you’re already a ‘long hauler’ from ME/ post menopause/hypothyroid and then have Covid. How to measure progress psychologically and physically.
Brilliant discussion Dr Sally, Riggs!!!
- My own understanding of the ANS and the Vagus Nerve - of being aware and able to navigate my own feelings of safety,, OR triggers that I reacted to has been a game changer to maintain my resilience to the trauma's of LC
Does the parent course actually focus on LC or is it a broad one on children's behaviours? Is it $99 usd? What currency?
After 8 months long covid and still on oxygen , I have to share except my lungs, most of all the other long covid symptoms cleared with Front line doctors protocol for mast cell activation! Please look into it!!!
I’ve made a few films on MCAS!
@@RUNDMC1 I first heard from you I believe!
For me it seems like the only "cure" for any long covid I have had four times now is when I get a fresh new infection from a more virulent variant. Then I get to experience that variants long haul. With delta it long hauled my brain, Vagus nerve, right eyeball, It felt like a jagged, splintered, shattered shard of wood was lodged in my brain and poked out my right eyebrow. It went down into my neck, thats were it started, a stiff neck that went into my brain giving me a "stiff brain" which lassted for 6 weeks then I conned my self into believing pain and pleasure carry the same chemistry and i had a DMT trip that lasted another month along with all the pain I could possibly ignore, that was "better".. I know it sounds funny and I try to make light of it but I know my brain was permanently damaged but on the bright side it's the part the secret government zapped to stop me from remote viewing their activities. So I was damaged already with enough delusional paradoxes to satisfy any curiosity of am I fucked up or not. Omicron ended deltas reign and thankfully it's long haul has infected my thumbs. I call it "Funky Thumbs" if partially paralyses my thumbs which really fucks with my guitar playing and has lingered for four months now. I keep hoping it will "go away" but the more attention I give it the more it wants to disable and depress me. Sorry little o you are changing me but I will learn to ignore your mutations. I look back at each variant as multiple near death experiences. If my brain wasn't affected over and over some how I come away with consciousness again I will be pretty happy. Even if I'm still dumb after all I can be blissfully ignorant about how I am judged.
Oh my now I’m so confused
My husband passed away 2018 and my family is not helping me at all. .
I live alone 73 years old
Got Covid March April of 21 then again
Christmas night and still in the house only been out 3times to drs for appointments. I have my church drop off supplies and food.
My heart racing ,I have the shakes ,
Headaches coughing weakness etc .
Cat scan showed nodule in my lung the first time
Blood work is fine .
Going to watch this again
Bless you all .
Thanks for trying to help.
I'm so thankful for this channel especially for people like me who were in the "first wave" where we had the original variant with no PCR testing and no way to "prove" we had Covid. Thank goodness I took pictures of my strange toes which turned out to be possibly "Covid toes." All I have to show for this is all the symptoms we all have including SVT (supraventicular tachycardia ).
I got long hauler but mine is burning hands palm
I am most thankful for RUN-DMC / Gez Medinger and all of the credible guests featured, and especially Dr. Sally Riggs.
One more CT scan with contrast of the heart ordered by my cardiologist came out "clear", no problems detected, "See you in a year." And yet I question why there's so much chest pain when all tests are clear. Why is it that sometimes I can't catch my breath and later that day I'm okay. The young cardiologist suggested that I hang out with old, fat, lazy people, and relax my way into oblivion.
Signs when I’m going downhill: chest pain, dizziness, headache, changes in vision
I meant statin.
6 months after severe covid still suffering for shortness of breath, asthma faster breathing, brain fog ringing on my head, im so very tired of this post covid,, i hope soon i will get better on this kind of devil virus its ruin my life 😭😭
Hello what is ringong on the head
@@lindasmith3608 ringing ma'am i think this is tinnitus, and it worse its makes me sleepless
@@michaeljhonfantilanan3207 I hope you get better soon 🙏
Thank you so much mam
I have same symptoms, how are you now??? Any better? I don’t understand the ongoing dyspnea. I wonder how long this will take and I hope I’m not stuck with this…
Sorry CBT
Have you tried CBD? I’ve just started it and I feel amazing - like 60% recovered
I have - didn’t help me that much though!
Which brand? I know they're going to be doing a clinical trial for it in the UK for long covid, some Australian company
@@boxer1639 cannary in the UK - 5%
Is it a cream you rub on? What were your symptoms?
Cranio- sacral therapy is helpful to me.
Always depends on the therapist.
So I have waited 3 months for any help from the Long Covid Clinic and I have just got a Health in Mind CBT therapist. I feel it is unclear why this is a traversty? Should I not bother?
I wouldn’t, personally
Gez, I noticed skis in your room, have you been able to ski? I may try it, but I'm scared of a bad flair up. Maybe just hit the green trails!
Yes I have! I made a film about it recently
Hi Gez, Wondering if you have heard successful stories of people taking antidepressants for symptoms like fatigue, muscle pain? I think remembering for instance Dr. Tamsin Lewis mentioned it but cannot find the video. Thank you!
Some people have been prescribed fluvoxamine. I’ve been on escitalopram and mirtazapine
@@RUNDMC1 Did it help you? I know everyone is different, but just to have an idea.
Trying to see a therapist (psychiatrist)too.
My country people still don't believe this exists, I have to come here to get answers most times.
My fatigue is better, I've learnt pacing my activities very well but I still struggle with chest pains and I don't know what else to do, hospital gave me medication for gases and my mental health is a mess..anyone experiencing chest pains that done seem to go away? I think I'm in that red box currently
So sorry to hear you’re struggling Loiwe. Chest pains are a new symptom for me too
I had the chest pain my doctor put me on a antibiotics now the headache going to get another appointment
Hello Gez, thanks for the great video. I am not english, and I have hard time to understand the term "CBT" or "CVT" ? Which Dr Riggs is talking about starting 24:15 about the kind of therapy for managing LC. Thanks for the help :)
CBT stands for Cognitive Behavioural Therapy
@@RUNDMC1 Thank you :D
I am now in deep depression and insomnia from my long covid, and am being treated with benzos, Lexapro, and Wellbutrin. I am on the Dr. Bruce Patterson program and have made some moderate progress in the long covid area, but the depression has sucked the life out of me. What is your thoughts on SSRI's and meds for depression. I am told stress can also lead to long covid flair-ups.
I’m on SSRIs and they’ve helped me a lot
@@RUNDMC1 Do you think they helped reduce covid flair-ups. I'm told stress can be a trigger.
@RUN-DMC do you or did you have insomnia? How did you manage this? What breathing techniques are you using to get out of Sympathetic system?
The smallest melatonin supplement might help you for insomnia. I don't use every day, but when I had a very bad day, it does help to sleep.
4-7-8 breathing. Using parasympathetic stimulation and melatonin to handle the insomnia
I have long covid and im not accepting the condition, im getting treatment. Anyone who has long covid- YOU can get treatment!
What like?
Anthony is actually exactly right! Hes not accepting it. Its ptsd effecting the autonomic nervous system. Then our brains create depression pain and any of 200 symptoms. Fight or flight is brain. ANS is brain. LC is NOT tissue damage
Are people.not.getting better? What's the deal Gez?
Some are getting better but it’s the minority
How are you doing these days Gez?
Had a rough one today 👎
Thank you for all your hard work, great videos! Have you tried having your bloods done and going through Brice Patterson's protocol?
I am on that for 3 months. Still not better, but made some progress. Been through 2 Cytokine tests, the second had improvement in 9 of the 14 markers, 2 got worse. On Maraviroc, statins, Ivermectin and an H1 antihistamine. I have had long covid for 6 months.
@@garysippin what was their response to this? Did you have any previous illnesses?
@@boxer1639 No previous illness. Got Delta in Sept. 2021, may have gotten Omicron in December, not sure. Not vaxxed.
@@garysippin how long do they think it will take for these medicines to actually work for you?
@@boxer1639 No idea, but they (Patterson's group) that they usually run that treatment protocol for 2-4 months. In the 1st month, my brain fog and tinnitus disappeared, but I have a neurological flair up after exercise, I am only able to walk on a treadmill at this point. I do not have fatigue, on fact I have a lot of energy and can't sleep. The inability to exercise is really killing me. I also have a weird sensitivity to heat and cold, and my feet sometimes feel like they are freezing when they in fact warm. In the scope of things, I don't think my LC symptoms are really that bad compared to others I have read about.
Nailed it today. So very very helpful!
Thank you Venus!
Interesting video! I now have anti-coagulant and it seems to help quite a bit, alongside regular aspirin daily. A few months ago, I tried nattokinase and it wasn't doing anything, as it is nowhere good enough for long covid micro-clots. Following this channel and Dr Been has been so important, I can't thank you enough. I am still far from 100% recovery, but still, there is a slow trend toward recovery.
Great to hear you’re doing better Alexandre! Like you I’ve seen big benefits from the anti coags
@@RUNDMC1 Yes and at the same time, with so many improvements and set-backs, it is kind-of hard to believe that the improvement will stay after I stop them.
What anticoagulants do you take? I can’t take aspirin due to GI upset
@@StaringCompetition It is Xarelto 20mg, but talk to your doctor first, do not take this as medical advice. Aspirin do help and it is easy to get. Even the ''baby aspirin'' will help, with less GI damage. I think there is even variants for people with sensitive gut. Try it first, as it is over the counter and inexpensive.
@@RUNDMC1 Gez have you found a Doc here in the UK to prescribe anti coags or are you having to get them from Germany?
Hey Gez, you sound congested. Are you doing/feeling ok? (I ask in part because I’ve had a relapse- or a new issue come up myself).
Was recovering from Omicron!