I get an extremely panicky feeling in my stomach that something really bad is about to happen and I'm not able to explain it. It's incredibly scary. Plus I'm 27 and just started having seizures for the first time this year, so this is all super new to me still. My heart goes out to anyone dealing with the same thing ❤️
I'm 28, been having seizures for 3 years, and it's very much like you described. Warmth, goosebumps all around, and a buildup of panic and adrenaline for 20 seconds max, then I disappear into the seizure. If I'm lucky, I will either try to focus in place, or get up and move by walking or pacing during that short time window, and that often stops the aura from escalating. I have an aura every day, and a handful of seizures a month. Always looking for anything that helps. Glad to see so many people who can truly relate through having experienced the same thing.
Mine are usually de ja vu or I get an intense feeling of fear. I have had a couple of auras where it was as if I was shown a great secret that the world was not real...if that makes any sense. I was always jealous of the people that get the pleasant auras. Thankfully I haven’t had a seizure in 14 years thanks to my lamictal
Actuallykaren I My auras are as you described. Deja vu with intense feelings of fear. By the time this happens my ability to cry out for help is gone although I want to cry out so badly. Then I go into a grand mal only to be terrorized by the aura when I’m conscious again. That fearful feeling stays with me for a long time and not one neurologist has been able to help me with that. I’m not afraid of the seizures, I’m afraid of the aura before the seizures.
@@Maria-lynn im kinda enjoying that aura..i know its kinda scary feeling..yeterday..i was mad with my wife..and because of my anger emotion..i encountered again the dejavu feeling
This has been happening to me for the last week. My aura before feels like déjà vu. I suddenly get super dizzy and after the dizziness goes away my breathing is very labored. It's scary as hell.
I have only had one seizure a year and a half ago. Ever since I get random body jerks and sometimes this aura feeling with intense fear and feel like I am going to collapse but then nothing happens. I live my life with such uncertainty and It just sucks.
Aura is a seizure in itself and part of the tonic clonic or grand seizure. I will get clusters of aura seizures up to a week prior to a bad seizure coming on. I feel dizzy and wobbly with a metallic taste in my mouth. It is still not an indication that I will have a seizure but from my previous experience I can tell that my seizure threshold has dropped and I am at risk of having a bad seizure when the Aura seizures start to present themselves. I also have the Aura seizure right before the tonic clonic seizure occurs.
You’re telling me.. I’m going to Japan on Sunday for a trip with my dad and I’m scared simply just going on the plane… let alone actually being in a country that is new to me and jam packed.. it upsets me because I want to be super excited, but instead the excitement is in the back of my mind. I can only focus on simply being safe because what’s the fun if I seize? It’s sad man I really feel you. Idk if your anti weed, but I HIGHLY recommend you try weed. Avoid distillate, shatter, and even edibles (most are just distillate) at all cost. Focus on bud, live resin, rosin, and hash rosin. What I do is always carry a pen with me in my pocket with my live resin cartridge attached… I can’t even stress how many times it has saved me from not only having a seizure, but literally I haven’t even had aura in the past 7 months until today. I have to take a tolerance break because I leave on Sunday (started on Thursday night) and just want to make sure there are no potential side effects I deal with. I have a 3.95 GPA in college thanks to weed I don’t struggle nor blank out over tests anymore like I did in highschool with my aura. I’d literally just take one or two hits and go to class and finally be like everyone else (not worry about aura nor any seizure) and the relief is incredible! I recommend Gelato, GG #4, Gelato #33, GSC, Gods Gift, Dos Si Dos, MAC, and Grandaddy Purple as a couple suggestions I’ve felt fantastic with in terms of no headaches etc. Peace and love
I can relate the last time I got a seizure was a year ago and it was really bad I wasn’t even diagnosed with epilepsy then. I didn’t get enough sleep and I was cooking it was me and my little sister alone in the house my hands started jerking and I tried to relax or eat something but I was like in a stage between reality and dream I would like sleep and come back it was very strange then I woke up I found my self on the ground and my sister crying she was really worried I tried to call her down like I didn’t even know what epilepsy was, my mom got really worried so we went to the doctor and I started my treatment. I never got a serious seizure after this one it was the worst, I lived with epilepsy 2 years undiagnosed and it was getting worse I thought it was normal if I had bad night sleep, my family only saw a small part of what I was going through so they didn’t think much of it and I thought it was normal so I didn’t say anything but it was making me insane not trusting your own body is so scary like you can fall any time and thinking about something happening in public makes me more anxious. But after I understood what’s happening and how I can know if it’s coming or not made it a lot better.
Agreed. I like that calling it an “aura” that sounds much more accurate. For me, when the full-on seizure is coming it’s almost like your worst nightmare finally found you after chasing you so long. It’s daunting. It’s terrifying but so I try so hard to psychologically fight it as much as possible and pray that medication works this time. I posted a few videos going more in-depth on my channel because seizures really are otherworldly.
I have only had 3 seizures in my life, all of which happened in a 1 year span over 6 years ago. I still get the aura feeling every once in a while. I always felt my tongue cramp up completely to the point where it felt like it was blowing up like a balloon in my mouth, suffocating me a bit which made me panic. But apart from that, my aura was the most peaceful experience i've ever felt. Like the feeling of weightlessness or as if you're about to fall asleep and your mind has just been cleared. There are no thoughts in your head. It's like time is suddenly slowed down, you have complete tunnelvision and your vision slowly turns black as you lose consciousness. My aura most often occurs right before i fall asleep, which makes it difficult to differentiate between my aura and just the sensation of falling asleep. I've discovered that the feeling of my tongue cramping up disappears when i breathe in or drink water because it makes my tongue feel a different sensation and snap out of it. Auras are odd, but as strange as it may sound, i miss the aura before a full on seizure from time to time. It was just so peaceful, slowed down and quiet, with only me and the silent darkness in front of me. Even if it only lasted for a couple of seconds, i felt like every aspect of my existence was reduced to nothing but emptiness. Extremely frightening but peaceful at the same time. I've recently come to the realization that this is, quite honestly, what i imagine death to feel like, which makes me feel grateful for having been given the opportunity to feel a sensation that most people will never experience in their lives twice.
I started having seizures when i was in my early 20s. I think they where brought on because i was having somthing that i cared alot about (my grandmas farm) being taken from me and destroyed. I always knew 45 sec to a minute before i would have mine. I would smell a strong chemical smell. Then i would lay down and close my eyes and everything would go black to the center. Like the old televisions used to do. Then it would feel like somthing was draining all my energy. Then i would come out of it. I had hundreds of what i call small seizures. Then i had a bad one that kept me out for 45 min or more. I spent 3 days in the hospital and was put on (dilantin) i think. But the big seizure cured my serizures and i have not had one sence. Im 43 now and had my last seizure before my 28 birthday. Hard thing to live with and i pray for everyone who has them. Not fub
I get a heatwave going across my body, and this insane feeling of dejavu that I've been here before and I've experienced this all before. Makes me feel really sick as well. Sometimes I can live my life well and go without this aura for months, but sometimes it just starts again and it's the worst feeling ever. I find that if I'm especially tired or exhausted from travelling or a long week at work / lack of sleep, I get these. Luckily this aura doesn't instantly transition into a seizure - I take meds against that so hopefully they are helping, but I do start getting all sorts of twitches. At that point I really do have to take a day off work to rest.
I had my first full loss of conciousness seizure at work two days ago. But I have had this deja vu thing for years now. I cant remember when it started but have felt like something was wrong for awhile. Watching this and reading everything makes it seem so much clearer but scarier.
I have controlled mine very well by avoiding alchohol and a prescription for phenytoin, so I haven't had a grand mal(tonic-clonic) seizure in 25+ years, petite mal(Absence) seizures have occurred more frequently . My auras have included: increased sensitivity to sounds or a fluttering sound(I believe because my ear-canal muscles were contracting), the back of my head felt warm and/or numb, the simplest words became difficult to recall, stuttering, uttering odd noises. There may have been others, but I can't recall them currently. I am 49 and in my entire adult life, I have 2 or 3 grand mal seizures, but I still get auras or aura-like feelings from time to time, especially if I go too long without sleep or physically exhaust myself.
@@realdavebob Absence seizures are a different name for petit mal seizures. They typically involve momentary loss of consciousness like someone is staring off into space, but in my case it was more of what you might see if someone was or has had mini-strokes. Temporary loss of mental clarity, momentary confusion, can't remember simple words or phrases, odd sensations, Etc. They usually do not involve or lead to physical injury because they do not involve intense involuntary muscle activity. I have been very fortunate in that I have only had seizures during the brief period between sleep and fully awake, not very often when they did occur and have not occurred in several decades.
@@jasondutchman6736 hey Jason, I feel like you and I may have very similar seizure like things happen in between sleep and consciousness. Do you hear strange buzzing or fluttering noises? Do you feel like you have sleep paralysis? Or like you're stuck in some sort of strange area between sleep and wakeness.
I have had generalized clonic tonic seizures since I was 18. I had them in my sleep and when awake without any aura when they started after a car wreck I was in that gave me a concussion. Then it was waking up to a brain fog and being sore - hurting and bitten tongue. Frothy at mouth at times with blood from biting tongue. Hurt to talk. Hurt to swallow. And eating was not pleasurable. Urinated on self many times. Witnesses would have to describe what happened because I couldn't remember. A few years later - I started feeling the deja vu - as if- internally I knew it wasn't sure until it became consecutive. After a few more seizures with the deja vu warning- I took heed to lay down. Wouldn't be but a few seconds and seizure would start. Then I would awake - dazed, confused, body in pain from generalized seizure and only wanting to sleep. Few years after this - now when they occur - it feels like electricity literally shooting me in my brain before seizure happens. It is the scariest sensation but a blessing to adhere. Gives only a few seconds warning to get safe - lie down or tell someone around you what is about to happen. Auras are my stop whatever I am doing and lay on my side in recovery position. Still never leaves time to get a pillow or something soft for head - but better than free falling for the whole body to collapse into the floor. Light effects ( like fireworks, concerts, rain/snow/ and even shower water have all triggered my seizures. I learned to close my eyes for a lot of these light issues to prevent seizures. My visuals don't register light as it should. I accept this. It is what I have to do. Sleep deprivation, stress, not eating in regular intervals and alcohol all triggered my seizures. It is scary experiencing them. It can be heartbreaking to explain to others who do not understand seizures nor care to know or they don't believe you about them. But listen to your body and brain sensations. Doctors try their best to stay on top of research- education and neurology. But the brain is the most complex organ in the body and still very much a mystery to most experts. Epilepsy and seizures are not a condition to take lightly. Be observant and aware of your diet- sleep routines - quality/quantity of sleep - identify what you were doing that may have created a seizure. Be aware. Learn and educate your self on the symptoms you have and what your body or brain is feeling. We have one life to live and I don't know about others - but for me - auras were a blessing. Those few seconds to get safe make all the difference. Almost drowning in a bath tub taught me to shower only and close my eyes when doing it. Falling without warning and getting bruised taught me to take seizures seriously. And that not every opinion matters when it comes to the health of my life - when they don't understand nor get it. They don't have too and talking about auras will freak people out who don't have seizures. But do it and listen to your body anyways. These warnings could save your life or others. Take care of self when having seizures and when not having seizures because one aspect affects the other. Best wishes for strength and courage to all.
Cynthia Cox wow. You explained the exact same story as mine and exactly what i go through...mine started ever since hitting my head in a car accident and having a concussion. And i have the Auras and deja vu and i feel like stress and anxiety and lack of consistent sleep were triggers....but mine also happen either the week right before my menstrul cycle or the week after. So it seems hormones could potentially be a cause as well. They happen monthly.
My Auras cause Jamais Vu (opposite of deja vu), stomach turns, intense fear, get very hot and sweaty, nauseated, then aphasia kicks in. But my aura's rarely turn into full seizures.
My auras have changed and now i see blinking lights or everything becomes extremely bright. My whole body will start trembling for a few hours and i can't control it and my knees will start to shake uncontrollably.
Wow never heard that b4. Make it possible for me to explain mine if I had that. I am VERY early on wondering if your meds change the Auras just started having ones I use to when I was little and just changed my meds been on Lamictal most of my life but in the last 3-5yrs what causes them has changed. So now on Lamictal 200 mg and Keppra 750mg. Hence y im at the earliest stage of wondering but clear problem is I have not gone to one then another and back again but still my Auras have gone back to what they use to be. Anythoughts do Medication play a part in your Auras.
Wow-what an amazing video. I am a first responder who was just diagnosed with epilepsy last Thursday. I went to bed as normal and woke up four hours later in the ER with two dislocated shoulders, Rahbdo and kidneys that were shutting down.. The past two years I've had these episodes of this rising feeling in the gut, followed by a tingling that goes out to my head and limbs. I'd also get this really detached feeling in my head. I thought this was just stress or panic attacks and was kinda succeeding in managing it. I wasn't managing it I was having Auras during the day and Grand Mal seizures at night. The only reason i know is the soreness I feel now is the same I was feeling some mornings after nocturnal seizures. If you are having this feeling and you don't have seizures during the day, or are unaware you are. Get an MRI immediately....
Before I always have my grand mal seizures my auras usually start with me feeling weird all over my body, then I get this deja vu feeling that I’ve been in the situation around me before, I also get this voice running through my head, or sometimes I’ll get weird smells. If nobody is around I’ll find a good spot to be in and sit down. Whenever I was around someone and tried to warn them it’s coming they usually tell me after I’ve had it that my words never came out properly.
Let me tell you my aura. Imagine a fear like feeling or the feel you got when you were nervous about something. For example before getting SAT results and nervous/fearing you mightof gotten.
Hey Skinny Medic...thanks so so much for addressing things like seizures. My wife has a history of stroke and she has lateral seizures on occasion...her warning sign is often smelling "burning leaves"...she is on 1500mg of Keppra twice daily and that really seems to help a bunch. Love your channel and I'll support you in any way I can...keep up the top notch work brother! 👍
Mine is basically like I'm seeing something from past which has happened before (it starts off as a memory or remembering something), but what's weird is that initially it feels like I can just get up and move on or think about something else and it will be ok (this is the time when I realise it's coming). But instead of that, after a few seconds, I just feel like getting dragged by it, sinking deeper on my bed (when I'm lying down). The thing I don't understand is that for the first few seconds, I feel like I can control it, but then it starts to control me and I almost go unconscious. What is really scary is that the entire time I can feel what's going on, hear others, but still can't do anything.
What is the name of that diagnose? I’ve had the same kind of problem for the last 4-5months, and I’ve gone to the hospital couple of times and still waiting for a answer. Please answer as quick as you can, and maybe if you can. Could you give me some more information about your “experience” if your seizures😅?
That sinking feeling like you are going into an abyss is crazy. I get it sometimes and all I can do is lie down and wait for it to pass or realize I had been unconscious for a minute. I usually come out of a seizure very disoriented and I can’t figure out what happened. One time I had a fall and I must have been clonic tonic because I was covered in bruises and I realized the next morning there was a hole in the wall where I must have hit my head. And it was big and I had a pretty bruised head so now I’m thinking I must have been bashing my head against the wall not even just once. But no one was there to witness it so I can never know. I went to bed and I think I passed out a second time too. Sometimes I get an aura which is a ringing in my ears and I feel like my hearing is muffled and I get claustrophobic
My auras are a sense of FEAR, DREAD, MOCKERY, SHAME, EMBARRASSMENT, URGENCY, and it buried but horrible. Next thing I know I'm waking up hours later, bleeding, malaise and exhausted. About every 13 months. Hate it.
I almost ALWAYS have auras with mine. For me, it's audio/visual distortion. They seem to blend starting behind my ears and come around to my vision, both forming a black funnel to darkness. That's the most common one for me. I have also gone temporarily blind without any warning. Just in a flash, watching what I'm doing to having zero sight. It only last about 45 seconds to a minute, but it's weird. I don't know about anybody else's auras, but mine (not the surprise blind ones) are very alluring. I can feel them coming on and a part of me wants to try to push them back, but they draw me in every time. It's a weird thing that I really wish I didn't fully understand. Thanks for spreading the word, because we truly aren't attempting to be psychic when we say that we are in an aura.
Skinny. Aura before migraine can not only be visual but also sense of smell. eg. smell of burning wires. Looking forward to another longer video on the subject. Best
1:55 very important. I have broken both shoulders, my nose, I have had my tongue stitched up more times than I can count. My aura has always been a feeling of weightlessness, like I am floating. Another thing, before the grand mal seizure happens. Often times people will have absence seizures or myoclonic jerks. Loved ones should keep an eye out for that activity as well. Great video, again!
Torn my rotator cuff, sucks. My aura used to be deja vu, or felt like being poisoned. Usually with a knarly head rush. Went to Seattle had a EEG on my head for a week. Changed my meds, I get absent seizures now. Do some weird stuff while I'm at work talking to friends and family. But rarely grand mal seizures now. Still got them though.
At first I smell a metallic scent, i get a feeling as though a ghost gone through me. Same time I see everything slowing down it’s as though i’m watching myself in a film. Moments in my gran mal attacks although i have no control of my body & i’m just screaming & crying.. I’m still conscious to feel the pain.
This happened to me last night, fully conscious but convulsing uncontrollably. I had tasted this metallic thing in my mouth and I'm only just know finding out that this was an aura.
If I'm by myself - I usually smell something burning that I know instantly is not present in my area and maybe met with a feeling in my gut and then a random memory from long ago plays out. Usually a nice one but I cannot remember the memory that plays out to save my life. If I'm in conversation - I don't really get an aura, the communication just gets really weird and confusing for a few seconds and feel like a get a head wave suction feeling, like Whoa what was that. Then its over.
I’ve only had one aura and it was an overpowering terror combined with the feeling that there was something behind me... super freaky then the seizing started.
I totally understand.... It's so hard to describe to your loved ones and have anyone understand. Mostly I've mastered how to catch myself from having a seizure fully come on more recently....but it took years to know the auras! I usually have strong migraines, nausea, loss of vision, feeling of sicknesses, extreme tiredness or irritation for no reason, heighten senses of smell or hearing things wrong. THEY vary depending on the type of seizure activity I may have!! I'm so use to having Grand Mal Seizure activity whenever I sleep throughout my years, they now have seemed to evolved to disturbing my everyday functions, and I don't even know until it's too late. I feel bad that my family has to figure my mindset sometimes. I'm very functional and do so much for my family, but I hate that epilepsy has gripped my life. I rather give ALL of me..... and not have to at all be a weight on anyone! I love my family that has & continues to be my strength!
I get chills and tingling in my hands and feet before a seizure. Sometimes I have the symptoms for a whole day before the seizure hits. I also have a headache after and nausea.
thank you so much! i have seizures and have auditory and visual auras, as well as nausea... i always thought i was just a weirdo until i figured out yes, i AM having a seizure, and it's helpful to know you've got a few minutes to get somewhere comfortable, find your spouse or a trusty coworker, and just get it over with. thank you! :)
Okay, before having seizures. You will have a muscle spasm or muscle contraction. Sometimes you will feel like you're left arm or right arm are feeling numb. Sometimes you feel scared. Sometimes you feel tired or sleepy and headache. So what i'll do is, I'll start walking around the house and try to think and focus on myself and not to think a lot but calm myself down and breath slowly. Breathing helps because your brain is having a high extreme activity. Meaning your brain cell that connects to each other are going crazy. So breathing slowly could bring in more oxygen into your body and might calm down the brain activity. Always remember to have someone by your side before having the seizure. When having the seizure, also tell your partner to lay you on your side before the seizure, so that you don't choke to death.
I hear this music in my ears about 30sec before i pass out, cant describe it for the life of me. If i hear something similar somewhere by any chance I always freeze, im so scared of it. But now I havent had a seizure in a while its much better.
Severe nausea for me. Its coming within minutes but I get up in the morning with that feeling on days I have them. I always like to point out that my aura is exactly the same feeling I would get after a night of partying. I've been sober for 6 years but auras to me feel exactly like a hangover. They are (thank god) my get to a bed or couch now warning. I also get really sensitive to noise and light right before. I remember when I was younger working st a restaurant and the sound of the silverware in the restaurant was like murder to my ears, I was able to get myself to the bathroom and out of sight but I left the door unlocked to allow for someone to find me just incase. I love auras. They are a life saver.
I was born with epilepsy and before I get a seizure I get an aura and it feels as if I were to have a panic attack and start to become scared of open spaces and feel like someone or something is watching me and sometimes feel like they’re trying to kill me. My whole point of view changes from my surroundings as well as my feelings. I feel as if I were in a total different place.
Whenever I get aura I clap hard as I can and my family knows there's an aura. I can't speak I can't listen in aura. Claps really help me to convey they message.
i get a deja vu feeling and i also get a weird nervous feeling so while it's happening i'm just sitting there scared wishing for it to go away. i get flashes of auras that can last a second and sometimes they last about 2-3 minutes. thank u for explaining it correctly.
COULD IT BE LIKE DEJA VOU????... I'VE HAD THOSE OVER THE YEARS FROM TIME TO TIME....I FEEL LIKE I WANT TO VOMIT AND FEELING LIKE "IVE DONE THIS OR BEEN HERE BEFORE....
My seizures are partial, mostly auras, usually with this pattern: long deja-vu after that less than 10 seconds of euphoria followed by extreme anxiety/remorse and then nausea/vomit + fatigue, just two times i've fainted (but never with convulsions). Now i'm searching again because in all this week i've been having strange feelings all day that i can't describe i'm sure it's an aura but i can't identify it (it's a feeling, most closer will be "dreamlike", or just "i feel a thing that must be an aura").
I was really hoping this would explain how to control it..... I have this feeling where right before, I start to feel like life is slowing down, my breathing is awkward and then I pass out :( The scariest thing to go through. Im 28 and its only happened 2 times, but the first time it happened I thought i was dying, so when it happened yesterday I immediately knew what was happening
The thing with auras is you can't control it. It comes and goes depending on what type of nerve in your brain is triggered at the moment. When I have small ones that I feel coming on I'll direct my attention to something else so I don't get stressed out and wait for it to pass. Or I lay down on my side which is a good thing to do do in the moment so it subsides faster.
Courtney Cazes what kind of aura would you say you get, or feel before the seizure comes on? My aura has always been a strong sense of deja vu. I've been really trying to figure out what it is that I can do to help keep my mind more present.
rob will I get that sometimes too, like it will feel good? Those aren’t the ones with the bad auras that are scary or the ones caused by lights though. Do you happen to know what causes the euphoric feeling?
my auras consist of staring off and my hands shaking terribly. they happen in sequences like three or more in a row. i could be talking and mid sentence just freeze up and shake then be very confused and try my best to regather myself after. hoping that no one noticed. after that, if theyre really bad auras, ill feel intense panic and get a headache. i usually get auras every couple of days. havent had a total tonic-clonic seizure in about 8 months though :) thank u keppra
I work in a detention center and I get a lot of people that are detoxing off of something either alcohol or drugs. So I see a lot of people who have a history of seizures. But I've always been told and read that you can't tell when you are about to have a seizure and I've also been told and read that when people wake up from a seizure they don't know they just had one. A lot of the people I deal with are trying to get out of jail and of which doesn't work. Just want more info.
Most epileptics, or people with seizure conditions, that are not inflicted by drugs or alcohol, do have auras. I personally know I've had a seizure once I come out of it, but I do remember being young and not really knowing what had just happened. Now that I'm an adult, have dealt with them for so long, and probably even because of medication advances I'm aware that I've just had a seizure, though I can't usually tell you what happened during my seizures. People that have seizures because of drugs are not seizure patients, they don't have seizure conditions, their bodies are just out of wack.
I've had thousands of seizures the last 20yrs. From 10 a day to about 10 a month & that's just from PTSD (never in military), double depression, anxiety and sleep apnea has all been getting to me again. I take 14 seizure pills a day (300mg lamictal, 300mg zonisamide & 10mg onfi 2X a day). To me having a seizure is nothing now. The same as going to sleep, waking up or to the bathroom....... BUT!!! Here's how it goes for me. Seizures have put me in many coma's & other times Dr's have had to put me in a coma to stop my seizures. A funny time-i walked out of the bathroom pointed my finger in the air and said "Babe I" & instantly I feel a hard bump, open my eyes & a nurse had slammed her med cart into my bet & said "Mr Longoria" lol (a week had passed). Dr tells me when u have a seizure u tear muscle tissue & leave red blood cells flowing through Ur veins & they count them. 200-300 normal, 600-800 severe & 1200+ deadly. He tells me my was 41,000+ after 3 & he put me down. Said even if I live to 100yrs I'll probably die from a seizure.... At the beginning of my epilepsy a seizure felt this. I would feel over intoxicated, throw up & during the seizure it felt like my brain itself was connected to an electric outlet. All I could see was extreme blue electric scramble with a black background & I had to take the deepest breath I could the fastest I could & scream extremely loud at just the right pitch for as long as I could in between each breath to make the electric make a sort of flat line & least amount of pain (nonstop 2-3hrs after about 10 seizures before meds) before onfi I used different thicknesses of boards to hit my head daily to deal with the pain in my brain. For me a standard FULL BLOWN seizure on its way FEELS LIKE. Ur afraid of small areas & heights, then locked in a coffin & thrown off a building.
for me its deja vu, a feeling like " I've done this before " or the idea of my mind is collapsing, hell even my body will vibrate like a motor (just enough to stop me in my tracks, not jerk )and my mind will "split" and go different directions.... I can't even enjoy some songs cause the rhythm triggers a aura. Even on medication I still have auras just now it stops just before blackout seziures
I only discovered I had epilepsy last year at 26. I had two big epilepsy fit after drinking too much and not sleeping enough (but like drinking WAY too much). The first time it happened I was alone and at the emergency room they saw my bitten tongue and they were like, 'oh that's an epilepsy fit'. My mother and I were in complete disbelief. But then it happened again about three months later on the train :/ Since there were many witnesses that time there was no disputing it. When I saw the neurologist we talked and I learned that what was dismissed as panic attacks when I was a pre-teen were actually seizures! Mine are usually an intense threatening and scary feeling, followed by a deja vu feeling and a sort of out of body experience (as if Im a witness to the scene). I can still function and talk but its very odd and unpleasant. Since I was told it was anxiety, I just dealt with them by pausing and taking deep breaths until it calms down. Since Ive been taking lamotrigine my absence seizures sometimes feel a lot more intense and I can simply forget what happened during a few seconds or minutes.
Damn. I didn't know what it was until a few years after bc I was dismissing it was dehydration or simply dejavu. I don't ha might have had a night seizure a few nights ago bc I had been staying up too late and in specifically that night I stayed up all night crashing red bulls to finish a deadline for work. I think caffeine might be my trigger since I typically get them at work and at work I'm drinking caffeinated drinks.
I am 70 years old and I have am had seizures starting at age 14; I get an intense feeling of fear that something bad is going to happen-and I am intensely scared. I feel as if I am reliving these moments from before- as if I have been pre warned of them. After it fades in about two or three minutes I can stop myself and say “You just had another aura!” It really gets beyond aura phase but those moments are pure hell-it feels so frightening. And all the sensation is in the top of my stomach-or “Solar Plexus “as I have been told. It is so simple but seems so frustrating when it is happening. I wish just the auras would stop at any expense.
i will start seeing rainbows and then I'll start having the most scary uncomfortable feeling, it can be super scary and I know if I try to just keep going along like nothing happened I'll have a seizure . so I close my eyes and wish it away. I've never met anyone that knows what I'm talking about.
When I have an aura, I usually have a feeling in my gut, which reminds of city hall clock chime, each every couple of seconds (ding, ding, ding). I also have a need to "take care of business".
The biggest thing is to stay relaxed. The seizure really is influenced by people around the person. Don't start freaking out and really just leave the person alone.
For me, it is always a rush of what I tend to consider "long lost memories". Usually lasts a good minute or so, but it prevents me from thinking for myself.. so making the decision to get in a safer position is almost impossible.
At first I had a strong wave sensation in my head, but now I get butterflies in my stomach and chest. I also feel like nothing is real, the feeling is very difficult to describe
@@andreaflores677 it’s difficult to explain, but I would suddenly get a feeling in my head which slowly grew and got more intense over a few seconds, also causing my head to feel heavy. It wasn’t painful, but it was overwhelming for the few seconds it lasted
I feel like I’m going to vomit.. I have had 3 seizures and usually I get a feeling of dread followed by a potential headache, a metal taste (like sucking on a battery) in my mouth, the feeling of wanting to vomit and an urge to crouch down on the ground. This happened at night last time and I kept waking up to crouch on the ground. Eventually I ran in to my mothers room, after I woke up on the ground in the kitchen to the worried screams of her cat, and had a grand mal. Fracking scary.
A note to those who don’t know much about seizures; not all seizures are grand mal - the type where you fall to the floor and start convulsing. I really wish more people would know this!!! I had a seizure a few months ago and my neighbor is still going around telling people I’m crazy and making things up. She said “you weren’t flipping around or foaming at the mouth! You did NOT have a seizure”. This coming from my housebound crazy neighbor who now tells everyone I’m a liar and likely on drugs. Smh.
I one had sudden fear, doom&gloom, sadness, and anguish (all mixed up and intense), then 30 minutes later It was like I was trapped in my head, I couldn't feel happy, as if there was no dopamine :( Then I started feeling weak and fainting, then I woke up but felt ikky, and heavy. *Days before that I had a dizzy spell where I had a difficult time driving to the hospital w/ some shitty sensory disturbances, and one conscious conclusive episode, all after starting "high doses" of Flouxtine (20mg) + mirtazpine (30mg)
Kind of like whatever movie you’re watching, and suddenly the main character starts looking and talking at you through the screen. Breaking the Fourth Wall! This the stuff of nightmares. It’s a super “meta” experience, huh!
I had a spell a few yrs ago at work. I don't remember a lot of it. They said I suddenly started staring in a daze, touched my head and said something 'popped' idn. I saw a pic, I looked off. Since then I've had 'deja vu' spells, it makes me break out in sweat usually...
Had to dispense a DiaStat Accudial for the first time the other day for a patient in case of status epilepticus. Seizures can be pretty scary which is why education and building a knowledge base is so important.
I've always had such difficulty explaining my aura, because it's some kind of weird feeling like the top of my head is being slightly pinched, or how you get when you've been holding your breath ( of course not the same though😒) i've found it a bit weird that by stopping everything and slowing down I can sort of put of my seizure for a bit (it's still going to come just not that moment), but I never even thought to explain it through things like fear. insightful
I get deja vu, when lights flicker, or I smell certain things and I feel like I'm falling through air, and I get dizzy and my head is pounding, and I get headaches but I forget what I saw and quickly forget what caused it.
My mind and body just feels fuzzy, I also feel really weak afterwards. I haven’t had a seizure in 5 years. But auras show up here and there, the best way I can describe it from my perspective is a mixture of a panic attack and body aches. Very odd feeling
I was diagnosed with epilepsy in 2013, but I've had it for as long as I can remember (when I was young doctors thought my absence seizures were a "phase"). Anyways, I don't remember having an aura or feeling before I'd have one, but I know before I was put on medication to control my seizures, I would occasionally feel like I couldn't breathe right or focus. I can't pinpoint if that happened before any of my absence seizures or anything, but I haven't felt that since my seizures have been controlled so I'm willing to assume that could've been an aura that I was going to lose focus. When I learned about auras, I didn't know some people could tell when a seizure was about to happen. Really interesting... :)
OK, this isn't exactly on topic, but it reminded me of something I saw on Animal Planet's "Dogs 101." There was a lady on there who has seizures, and her little dog is her warning alarm. Her chihuahua is so tuned into her that it knows when a siezure is about to start and lets her know in time for her to get somewhere safe before it starts, i.e., not on the stairs or behind the wheel. She even got it certified as a service dog so that she can take it everywhere she goes, which I think is pretty cool.
I get intense deja-vu, my vision getsfuzzy and tunnel like, and it feels like someone's turning down the volume knob of life and turning up the volume of this very specific droning beep. I know I'm going to seize and my coping mechanisms aren't going to prevent it when the droning beep gets louder than the outside world.
My aura is like a black cloud is coming around my head and intense heat. I have not lost consciousness or fallen down. It's of short duration thankfully. I've not found anyone else with this sensation. I have had Absence seizures where I lose awareness but don't fall. Most of the seizures have not been preceded by an aura. This is all pretty new so I'm searching for answers.
I get this trippy feeling of déjà vu. My vision gets blurry and my words get slurred…then I tell myself, alright dude have you been here before, are you here now…just don’t panic, slow your heart beat, a little bit, try and take a look around…try & I snap out… Strangely, the past times I’ve had these someone has always been around 🤷🏿♂️ and been there to be like “are you okay.” Then I can ask them wtf just happened. What did it look like, cause I never really know, you know.😢
Deja Vu, disorientation and not recognising surroundings and a general feeling of helplessness. Sometimes one, sometimes a combination, sometimes all 3. Suffer with partial seizures in my left temporal lobe which are now (touch wood) under control. But it is always lurking there i guess. Thats the frightening thing that it's lurking waiting for the moment to "pounce"
Yea I get deja vu and then my short term memory is wiped. But I know what you mean, sometimes while it’s happening I get a nasty chemical taste in my mouth and I hold my breath because the taste gets worse as I breath.
My first one was at 23. I had a really low blood sugar in the middle of the night. I was in a dorm and fell off my bed and woke up on the ground. That terrified me. They became more and more frequent after that. I always got a feeling of de-ja-vu in a bad way. Probably because of all the times it happened being at night, alone, by myself. I have mentally been able to prevent them from happening for over a year now. I just have to calm down, get sugar, and then I will be fine
Mine start as ringing in my ear that starts off low and gets louder and higher pitch, then leads to nystagmus and heavy breathing that turns into focal seizures (sometimes aware and sometimes complete)
Hey Skinnymedic. I just found your channel! I’m a 911 operator and get seizure calls all of the time. Every once in a while, a caller will say there is blood coming from the patient’s mouth after a seizure. Is this due to biting the tongue or the inside of the mouth or is it related to epilepsy or other medical issues?
Yes it is I bitten my tounge both of my seizures my first one was on January 13,2019 and my last once was on March 3,2019 and both times I bit my tongue.
many people just don't understand epilepsy.. and think the the only thing to do is get their fingers bit off putting a teeth clench in. it begins with the aura.
The bad thing is I have no feeling nor aura when I'm about to have a seizure, maybe sometimes I get this feeling of about to fall off(??) or spacing out but those things don't usually come out every time, most times I just fell and immediately have a seizure
I get Jamais vu and the feeling I’m someplace I shouldn’t be and there is someone or something that isn’t happy im there. I’ve had a couple of ecstatic auras where I felt like I was going to learn the meaning of the universe and why im here all before blacking out and forgetting 99% of the feelings and thoughts that were going through my head.
One time after I started two antidepressants (then stopped; because I felt a shock sensation when on it). I then felt very very very sad, fearful, and just not right. Then when I went to class It was as if I was paralyzed in my own body. For a moment I felt slow, sad, very heavy, and weak; I almost fainted. When I felt I was gonna "black out" I felt my heartbeat in my neck, then I come back again. That day it felt like there was a balloon inside my head. Had terribly cognitive stuff afterwards. (I was unable to read at some point) *I had a convulsion one night. 4 months later I had an EEG done, it showed 6 spikes and I was prescribed 500mg valproic acid.
the trigger are cold feel, the aura will come please remember only when the person have that seizure fear dead come to him that cold given at the person when they are dying and asked want dead or not if not choose dead, than that aura will come when the person sense dead ,call with splash their feet with water at morning ,or wind blowing at morning ,also same at night. remember only when the seizure person sense dead is coming to him. it happen cause the person eat teeth ,hair , nail
My auras look something like: I don’t recognize anything or anyone around me, I talk crap and nonsense, I get dizzy and feel like I’m floating. Sometimes I can’t breathe.. it’s all different ;) but in most of my auras I have a few but I don’t actually have a seizure afterwards because I’m trying to breathe normally. But I make sure to inform anyone around me just in case
I haven’t had a seizure before but I remember this one day I felt off like something bad was going to happen, sense of fear, anxiety and shakiness but it didn’t happen. It really felt like I was going to have seizure I just knew it but it didn’t happen. So I’m not sure what that was.
I get tired, nauseous, dizzy, lightheaded, sweaty, very anxious, rapid breathing, light sensitive, whooshing sound in my ears, head pain, and then a tunnel vision if my eyes are still open.
I HAVE THOSE AURAS BY SIGHT AND FEELING, AND A HISTORY OF VERY BAD MIGRAINES, BUT NOT ANY SEIZER THAT I KNOW OF, BUT I HAVE WOKE UP THINKING I MIGHT HAVE HAD A MINI STROKE WHILE SLEEPING, BLIND SPOTS AND ARMS NUMB.
The ones without warming for me are usually caused by riding in the front seat of a car, and the light flickering through the trees on the mountain cause a painful one. Feels like fire, and afterwards my brain? Feels like what it would be similar to putting a piece of pizza in the microwave too long (burnt / plasticy) and I lose my vision and only see red? Fire looking colors
My auras are always the same like something coming through me. It is what I picture when someone says Jesus come into them and filled them. I do not believe that but what a cool cool feeling.
I get an extremely panicky feeling in my stomach that something really bad is about to happen and I'm not able to explain it. It's incredibly scary. Plus I'm 27 and just started having seizures for the first time this year, so this is all super new to me still. My heart goes out to anyone dealing with the same thing ❤️
I'm 31 and had my first 7 months ago, and two more since then. All tests came up good so doctors have no idea what's going on. Pretty shitty.
I get extreme anxiety and the weird stomach feeling too.. no one takes it seriously
@@bingbong_swimz7806same
I'm 28, been having seizures for 3 years, and it's very much like you described. Warmth, goosebumps all around, and a buildup of panic and adrenaline for 20 seconds max, then I disappear into the seizure. If I'm lucky, I will either try to focus in place, or get up and move by walking or pacing during that short time window, and that often stops the aura from escalating. I have an aura every day, and a handful of seizures a month. Always looking for anything that helps. Glad to see so many people who can truly relate through having experienced the same thing.
@@trobertwyup i just had 2 seizures at 22 and the doctors have no idea why, i hope youre doing better btw
Mine are usually de ja vu or I get an intense feeling of fear. I have had a couple of auras where it was as if I was shown a great secret that the world was not real...if that makes any sense. I was always jealous of the people that get the pleasant auras. Thankfully I haven’t had a seizure in 14 years thanks to my lamictal
This happens to me a lot. Any advice on what to do during ?
Which medicines are you taking?
Actuallykaren I My auras are as you described. Deja vu with intense feelings of fear. By the time this happens my ability to cry out for help is gone although I want to cry out so badly. Then I go into a grand mal only to be terrorized by the aura when I’m conscious again. That fearful feeling stays with me for a long time and not one neurologist has been able to help me with that. I’m not afraid of the seizures, I’m afraid of the aura before the seizures.
Wow..same here..like dejavu feeling..scary but i kinda like it..after that im unconscious and woke up..dont know what happend
@@Maria-lynn im kinda enjoying that aura..i know its kinda scary feeling..yeterday..i was mad with my wife..and because of my anger emotion..i encountered again the dejavu feeling
This has been happening to me for the last week. My aura before feels like déjà vu. I suddenly get super dizzy and after the dizziness goes away my breathing is very labored. It's scary as hell.
SAME
Same here. Tons of fear too. Crazy scary
same
Does your mouth have an odd taste?
I can have like 20 auras a day without a seizure
I have only had one seizure a year and a half ago. Ever since I get random body jerks and sometimes this aura feeling with intense fear and feel like I am going to collapse but then nothing happens. I live my life with such uncertainty and It just sucks.
I get that feeling sometimes too
Aura is a seizure in itself and part of the tonic clonic or grand seizure. I will get clusters of aura seizures up to a week prior to a bad seizure coming on. I feel dizzy and wobbly with a metallic taste in my mouth. It is still not an indication that I will have a seizure but from my previous experience I can tell that my seizure threshold has dropped and I am at risk of having a bad seizure when the Aura seizures start to present themselves. I also have the Aura seizure right before the tonic clonic seizure occurs.
Crap. I’m so sorry. That sucks.
You’re telling me.. I’m going to Japan on Sunday for a trip with my dad and I’m scared simply just going on the plane… let alone actually being in a country that is new to me and jam packed.. it upsets me because I want to be super excited, but instead the excitement is in the back of my mind. I can only focus on simply being safe because what’s the fun if I seize? It’s sad man I really feel you. Idk if your anti weed, but I HIGHLY recommend you try weed. Avoid distillate, shatter, and even edibles (most are just distillate) at all cost. Focus on bud, live resin, rosin, and hash rosin. What I do is always carry a pen with me in my pocket with my live resin cartridge attached… I can’t even stress how many times it has saved me from not only having a seizure, but literally I haven’t even had aura in the past 7 months until today. I have to take a tolerance break because I leave on Sunday (started on Thursday night) and just want to make sure there are no potential side effects I deal with. I have a 3.95 GPA in college thanks to weed I don’t struggle nor blank out over tests anymore like I did in highschool with my aura. I’d literally just take one or two hits and go to class and finally be like everyone else (not worry about aura nor any seizure) and the relief is incredible! I recommend Gelato, GG #4, Gelato #33, GSC, Gods Gift, Dos Si Dos, MAC, and Grandaddy Purple as a couple suggestions I’ve felt fantastic with in terms of no headaches etc. Peace and love
I can relate the last time I got a seizure was a year ago and it was really bad I wasn’t even diagnosed with epilepsy then. I didn’t get enough sleep and I was cooking it was me and my little sister alone in the house my hands started jerking and I tried to relax or eat something but I was like in a stage between reality and dream I would like sleep and come back it was very strange then I woke up I found my self on the ground and my sister crying she was really worried I tried to call her down like I didn’t even know what epilepsy was, my mom got really worried so we went to the doctor and I started my treatment. I never got a serious seizure after this one it was the worst, I lived with epilepsy 2 years undiagnosed and it was getting worse I thought it was normal if I had bad night sleep, my family only saw a small part of what I was going through so they didn’t think much of it and I thought it was normal so I didn’t say anything but it was making me insane not trusting your own body is so scary like you can fall any time and thinking about something happening in public makes me more anxious. But after I understood what’s happening and how I can know if it’s coming or not made it a lot better.
Agreed. I like that calling it an “aura” that sounds much more accurate.
For me, when the full-on seizure is coming it’s almost like your worst nightmare finally found you after chasing you so long. It’s daunting. It’s terrifying but so I try so hard to psychologically fight it as much as possible and pray that medication works this time. I posted a few videos going more in-depth on my channel because seizures really are otherworldly.
yeah mine used to be the same its so scary its almost as if you'r about to die, I'd cry even before the seizure started
I have only had 3 seizures in my life, all of which happened in a 1 year span over 6 years ago. I still get the aura feeling every once in a while. I always felt my tongue cramp up completely to the point where it felt like it was blowing up like a balloon in my mouth, suffocating me a bit which made me panic. But apart from that, my aura was the most peaceful experience i've ever felt. Like the feeling of weightlessness or as if you're about to fall asleep and your mind has just been cleared. There are no thoughts in your head. It's like time is suddenly slowed down, you have complete tunnelvision and your vision slowly turns black as you lose consciousness. My aura most often occurs right before i fall asleep, which makes it difficult to differentiate between my aura and just the sensation of falling asleep. I've discovered that the feeling of my tongue cramping up disappears when i breathe in or drink water because it makes my tongue feel a different sensation and snap out of it. Auras are odd, but as strange as it may sound, i miss the aura before a full on seizure from time to time. It was just so peaceful, slowed down and quiet, with only me and the silent darkness in front of me. Even if it only lasted for a couple of seconds, i felt like every aspect of my existence was reduced to nothing but emptiness. Extremely frightening but peaceful at the same time. I've recently come to the realization that this is, quite honestly, what i imagine death to feel like, which makes me feel grateful for having been given the opportunity to feel a sensation that most people will never experience in their lives twice.
Wow...
wow
I started having seizures when i was in my early 20s. I think they where brought on because i was having somthing that i cared alot about (my grandmas farm) being taken from me and destroyed. I always knew 45 sec to a minute before i would have mine. I would smell a strong chemical smell. Then i would lay down and close my eyes and everything would go black to the center. Like the old televisions used to do. Then it would feel like somthing was draining all my energy. Then i would come out of it. I had hundreds of what i call small seizures. Then i had a bad one that kept me out for 45 min or more. I spent 3 days in the hospital and was put on (dilantin) i think. But the big seizure cured my serizures and i have not had one sence. Im 43 now and had my last seizure before my 28 birthday. Hard thing to live with and i pray for everyone who has them. Not fub
That chemical smell... it’s sharp and metallic smelling no?
I get a heatwave going across my body, and this insane feeling of dejavu that I've been here before and I've experienced this all before. Makes me feel really sick as well. Sometimes I can live my life well and go without this aura for months, but sometimes it just starts again and it's the worst feeling ever. I find that if I'm especially tired or exhausted from travelling or a long week at work / lack of sleep, I get these. Luckily this aura doesn't instantly transition into a seizure - I take meds against that so hopefully they are helping, but I do start getting all sorts of twitches. At that point I really do have to take a day off work to rest.
What’s your medications? I take Keppra 3000mg and lacosamide 100mg
Omggg mine is like exactly the same now every time I get regular dejavu I get worried it’ll b a seizure
I had my first full loss of conciousness seizure at work two days ago. But I have had this deja vu thing for years now. I cant remember when it started but have felt like something was wrong for awhile. Watching this and reading everything makes it seem so much clearer but scarier.
I have controlled mine very well by avoiding alchohol and a prescription for phenytoin, so I haven't had a grand mal(tonic-clonic) seizure in 25+ years, petite mal(Absence) seizures have occurred more frequently . My auras have included: increased sensitivity to sounds or a fluttering sound(I believe because my ear-canal muscles were contracting), the back of my head felt warm and/or numb, the simplest words became difficult to recall, stuttering, uttering odd noises. There may have been others, but I can't recall them currently. I am 49 and in my entire adult life, I have 2 or 3 grand mal seizures, but I still get auras or aura-like feelings from time to time, especially if I go too long without sleep or physically exhaust myself.
Ive finally decided to stop drinking alcohol..because after ny last shot..its almost a week that ive feeling those auras..very weird
Has your neurologist or PCP told you anything about “micro-seizures”? I haven’t heard about absence seizures before but they sound the same to me.
@@realdavebob Absence seizures are a different name for petit mal seizures.
They typically involve momentary loss of consciousness like someone is staring off into space, but in my case it was more of what you might see if someone was or has had mini-strokes. Temporary loss of mental clarity, momentary confusion, can't remember simple words or phrases, odd sensations, Etc.
They usually do not involve or lead to physical injury because they do not involve intense involuntary muscle activity.
I have been very fortunate in that I have only had seizures during the brief period between sleep and fully awake, not very often when they did occur and have not occurred in several decades.
I'm the same way I have Grand mal sezuire I wouldn't wish this on my worst enemy 😞💯
@@jasondutchman6736 hey Jason, I feel like you and I may have very similar seizure like things happen in between sleep and consciousness. Do you hear strange buzzing or fluttering noises? Do you feel like you have sleep paralysis? Or like you're stuck in some sort of strange area between sleep and wakeness.
I have had generalized clonic tonic seizures since I was 18. I had them in my sleep and when awake without any aura when they started after a car wreck I was in that gave me a concussion. Then it was waking up to a brain fog and being sore - hurting and bitten tongue. Frothy at mouth at times with blood from biting tongue. Hurt to talk. Hurt to swallow. And eating was not pleasurable. Urinated on self many times. Witnesses would have to describe what happened because I couldn't remember. A few years later - I started feeling the deja vu - as if- internally I knew it wasn't sure until it became consecutive. After a few more seizures with the deja vu warning- I took heed to lay down. Wouldn't be but a few seconds and seizure would start. Then I would awake - dazed, confused, body in pain from generalized seizure and only wanting to sleep. Few years after this - now when they occur - it feels like electricity literally shooting me in my brain before seizure happens. It is the scariest sensation but a blessing to adhere. Gives only a few seconds warning to get safe - lie down or tell someone around you what is about to happen. Auras are my stop whatever I am doing and lay on my side in recovery position. Still never leaves time to get a pillow or something soft for head - but better than free falling for the whole body to collapse into the floor. Light effects ( like fireworks, concerts, rain/snow/ and even shower water have all triggered my seizures. I learned to close my eyes for a lot of these light issues to prevent seizures. My visuals don't register light as it should. I accept this. It is what I have to do. Sleep deprivation, stress, not eating in regular intervals and alcohol all triggered my seizures. It is scary experiencing them. It can be heartbreaking to explain to others who do not understand seizures nor care to know or they don't believe you about them. But listen to your body and brain sensations. Doctors try their best to stay on top of research- education and neurology. But the brain is the most complex organ in the body and still very much a mystery to most experts. Epilepsy and seizures are not a condition to take lightly. Be observant and aware of your diet- sleep routines - quality/quantity of sleep - identify what you were doing that may have created a seizure. Be aware. Learn and educate your self on the symptoms you have and what your body or brain is feeling. We have one life to live and I don't know about others - but for me - auras were a blessing. Those few seconds to get safe make all the difference. Almost drowning in a bath tub taught me to shower only and close my eyes when doing it. Falling without warning and getting bruised taught me to take seizures seriously. And that not every opinion matters when it comes to the health of my life - when they don't understand nor get it. They don't have too and talking about auras will freak people out who don't have seizures. But do it and listen to your body anyways. These warnings could save your life or others. Take care of self when having seizures and when not having seizures because one aspect affects the other. Best wishes for strength and courage to all.
Cynthia Cox wow. You explained the exact same story as mine and exactly what i go through...mine started ever since hitting my head in a car accident and having a concussion. And i have the Auras and deja vu and i feel like stress and anxiety and lack of consistent sleep were triggers....but mine also happen either the week right before my menstrul cycle or the week after. So it seems hormones could potentially be a cause as well. They happen monthly.
My Auras cause Jamais Vu (opposite of deja vu), stomach turns, intense fear, get very hot and sweaty, nauseated, then aphasia kicks in. But my aura's rarely turn into full seizures.
What's aphasia
I know I'm about to have one when I start hearing the beat or lyrics of a certain song in one ear.
Omg same!!!!!
I hear that song my girl echo and every thing go red and I get a headache
My auras have changed and now i see blinking lights or everything becomes extremely bright. My whole body will start trembling for a few hours and i can't control it and my knees will start to shake uncontrollably.
Wow never heard that b4. Make it possible for me to explain mine if I had that. I am VERY early on wondering if your meds change the Auras just started having ones I use to when I was little and just changed my meds been on Lamictal most of my life but in the last 3-5yrs what causes them has changed. So now on Lamictal 200 mg and Keppra 750mg. Hence y im at the earliest stage of wondering but clear problem is I have not gone to one then another and back again but still my Auras have gone back to what they use to be. Anythoughts do Medication play a part in your Auras.
My aura is different I feel like I’m going to pass out
Wow-what an amazing video. I am a first responder who was just diagnosed with epilepsy last Thursday. I went to bed as normal and woke up four hours later in the ER with two dislocated shoulders, Rahbdo and kidneys that were shutting down..
The past two years I've had these episodes of this rising feeling in the gut, followed by a tingling that goes out to my head and limbs. I'd also get this really detached feeling in my head. I thought this was just stress or panic attacks and was kinda succeeding in managing it. I wasn't managing it I was having Auras during the day and Grand Mal seizures at night. The only reason i know is the soreness I feel now is the same I was feeling some mornings after nocturnal seizures.
If you are having this feeling and you don't have seizures during the day, or are unaware you are. Get an MRI immediately....
Same for me I had seizures at night and went to the hospital and my kidneys were also under stress
Before I always have my grand mal seizures my auras usually start with me feeling weird all over my body, then I get this deja vu feeling that I’ve been in the situation around me before, I also get this voice running through my head, or sometimes I’ll get weird smells. If nobody is around I’ll find a good spot to be in and sit down. Whenever I was around someone and tried to warn them it’s coming they usually tell me after I’ve had it that my words never came out properly.
Your response is there, like you intuitively know how to reply but it’s sort of tied up in your brain and won’t come out, right?
Let me tell you my aura. Imagine a fear like feeling or the feel you got when you were nervous about something. For example before getting SAT results and nervous/fearing you mightof gotten.
It’s like you are tethered, inescapable, to that fear and also detached from your body during the whole experience.
Hey Skinny Medic...thanks so so much for addressing things like seizures. My wife has a history of stroke and she has lateral seizures on occasion...her warning sign is often smelling "burning leaves"...she is on 1500mg of Keppra twice daily and that really seems to help a bunch. Love your channel and I'll support you in any way I can...keep up the top notch work brother! 👍
Thank you for the input
Mine is basically like I'm seeing something from past which has happened before (it starts off as a memory or remembering something), but what's weird is that initially it feels like I can just get up and move on or think about something else and it will be ok (this is the time when I realise it's coming). But instead of that, after a few seconds, I just feel like getting dragged by it, sinking deeper on my bed (when I'm lying down). The thing I don't understand is that for the first few seconds, I feel like I can control it, but then it starts to control me and I almost go unconscious. What is really scary is that the entire time I can feel what's going on, hear others, but still can't do anything.
What is the name of that diagnose? I’ve had the same kind of problem for the last 4-5months, and I’ve gone to the hospital couple of times and still waiting for a answer. Please answer as quick as you can, and maybe if you can. Could you give me some more information about your “experience” if your seizures😅?
That sinking feeling like you are going into an abyss is crazy. I get it sometimes and all I can do is lie down and wait for it to pass or realize I had been unconscious for a minute. I usually come out of a seizure very disoriented and I can’t figure out what happened. One time I had a fall and I must have been clonic tonic because I was covered in bruises and I realized the next morning there was a hole in the wall where I must have hit my head. And it was big and I had a pretty bruised head so now I’m thinking I must have been bashing my head against the wall not even just once. But no one was there to witness it so I can never know. I went to bed and I think I passed out a second time too. Sometimes I get an aura which is a ringing in my ears and I feel like my hearing is muffled and I get claustrophobic
My auras are a sense of FEAR, DREAD, MOCKERY, SHAME, EMBARRASSMENT, URGENCY, and it buried but horrible. Next thing I know I'm waking up hours later, bleeding, malaise and exhausted. About every 13 months. Hate it.
*brief not buried
I almost ALWAYS have auras with mine. For me, it's audio/visual distortion. They seem to blend starting behind my ears and come around to my vision, both forming a black funnel to darkness. That's the most common one for me. I have also gone temporarily blind without any warning. Just in a flash, watching what I'm doing to having zero sight. It only last about 45 seconds to a minute, but it's weird. I don't know about anybody else's auras, but mine (not the surprise blind ones) are very alluring. I can feel them coming on and a part of me wants to try to push them back, but they draw me in every time. It's a weird thing that I really wish I didn't fully understand. Thanks for spreading the word, because we truly aren't attempting to be psychic when we say that we are in an aura.
Skinny. Aura before migraine can not only be visual but also sense of smell. eg. smell of burning wires. Looking forward to another longer video on the subject. Best
Thank you
1:55 very important. I have broken both shoulders, my nose, I have had my tongue stitched up more times than I can count. My aura has always been a feeling of weightlessness, like I am floating. Another thing, before the grand mal seizure happens. Often times people will have absence seizures or myoclonic jerks. Loved ones should keep an eye out for that activity as well. Great video, again!
Ouch
I've broken my shoulder aswell.
Can understand ur pain ...broken my nose too
Torn my rotator cuff, sucks. My aura used to be deja vu, or felt like being poisoned. Usually with a knarly head rush. Went to Seattle had a EEG on my head for a week. Changed my meds, I get absent seizures now. Do some weird stuff while I'm at work talking to friends and family. But rarely grand mal seizures now. Still got them though.
At first I smell a metallic scent, i get a feeling as though a ghost gone through me. Same time I see everything slowing down it’s as though i’m watching myself in a film. Moments in my gran mal attacks although i have no control of my body & i’m just screaming & crying.. I’m still conscious to feel the pain.
This happened to me last night, fully conscious but convulsing uncontrollably. I had tasted this metallic thing in my mouth and I'm only just know finding out that this was an aura.
If I'm by myself - I usually smell something burning that I know instantly is not present in my area and maybe met with a feeling in my gut and then a random memory from long ago plays out. Usually a nice one but I cannot remember the memory that plays out to save my life.
If I'm in conversation - I don't really get an aura, the communication just gets really weird and confusing for a few seconds and feel like a get a head wave suction feeling, like Whoa what was that. Then its over.
Seizures are a nightmare coming from your head and into our real world. It’s nightmarish, I know.
i just found this 4 years later and i sent this video to my family because it does a good job explaining it. thanks!
I’ve only had one aura and it was an overpowering terror combined with the feeling that there was something behind me... super freaky then the seizing started.
Same
I always get the aura and feeling like something is behind me also
I totally understand.... It's so hard to describe to your loved ones and have anyone understand. Mostly I've mastered how to catch myself from having a seizure fully come on more recently....but it took years to know the auras! I usually have strong migraines, nausea, loss of vision, feeling of sicknesses, extreme tiredness or irritation for no reason, heighten senses of smell or hearing things wrong. THEY vary depending on the type of seizure activity I may have!! I'm so use to having Grand Mal Seizure activity whenever I sleep throughout my years, they now have seemed to evolved to disturbing my everyday functions, and I don't even know until it's too late. I feel bad that my family has to figure my mindset sometimes. I'm very functional and do so much for my family, but I hate that epilepsy has gripped my life. I rather give ALL of me..... and not have to at all be a weight on anyone! I love my family that has & continues to be my strength!
I get chills and tingling in my hands and feet before a seizure. Sometimes I have the symptoms for a whole day before the seizure hits. I also have a headache after and nausea.
thank you so much! i have seizures and have auditory and visual auras, as well as nausea... i always thought i was just a weirdo until i figured out yes, i AM having a seizure, and it's helpful to know you've got a few minutes to get somewhere comfortable, find your spouse or a trusty coworker, and just get it over with. thank you! :)
I feel you my sister I’m having the same problem too Mollie Albright
Okay, before having seizures. You will have a muscle spasm or muscle contraction. Sometimes you will feel like you're left arm or right arm are feeling numb.
Sometimes you feel scared. Sometimes you feel tired or sleepy and headache. So what i'll do is, I'll start walking around the house and try to think and focus on myself and not to think a lot but calm myself down and breath slowly. Breathing helps because your brain is having a high extreme activity. Meaning your brain cell that connects to each other are going crazy. So breathing slowly could bring in more oxygen into your body and might calm down the brain activity. Always remember to have someone by your side before having the seizure. When having the seizure, also tell your partner to lay you on your side before the seizure, so that you don't choke to death.
I hear this music in my ears about 30sec before i pass out, cant describe it for the life of me. If i hear something similar somewhere by any chance I always freeze, im so scared of it. But now I havent had a seizure in a while its much better.
Somehow I thought about the movie Inception when I read this
it's kinda nice chatting to people who relate.
I may not always comment but I do watch. I have learned a lot from your channel. Thanks.
Thank you for watching!
Severe nausea for me. Its coming within minutes but I get up in the morning with that feeling on days I have them. I always like to point out that my aura is exactly the same feeling I would get after a night of partying. I've been sober for 6 years but auras to me feel exactly like a hangover. They are (thank god) my get to a bed or couch now warning. I also get really sensitive to noise and light right before. I remember when I was younger working st a restaurant and the sound of the silverware in the restaurant was like murder to my ears, I was able to get myself to the bathroom and out of sight but I left the door unlocked to allow for someone to find me just incase. I love auras. They are a life saver.
I was born with epilepsy and before I get a seizure I get an aura and it feels as if I were to have a panic attack and start to become scared of open spaces and feel like someone or something is watching me and sometimes feel like they’re trying to kill me. My whole point of view changes from my surroundings as well as my feelings. I feel as if I were in a total different place.
Same!!! I get the same feeling that somebody somewhere is watching me !
Congratulations! Jamais vu! It’s the opposite of de ja vu. You pretty much explained mine to a T
Whenever I get aura I clap hard as I can and my family knows there's an aura. I can't speak I can't listen in aura. Claps really help me to convey they message.
i get a deja vu feeling and i also get a weird nervous feeling so while it's happening i'm just sitting there scared wishing for it to go away. i get flashes of auras that can last a second and sometimes they last about 2-3 minutes. thank u for explaining it correctly.
COULD IT BE LIKE DEJA
VOU????... I'VE HAD THOSE OVER THE YEARS FROM TIME TO TIME....I FEEL LIKE I WANT TO VOMIT AND FEELING LIKE "IVE DONE THIS OR BEEN HERE BEFORE....
Yes it can
I WAS WONDERING WHAT WAS GOING ON...SHOULD I TELL MY DOCTOR?....
WHAT CAN CAUSE THESE???
I experience de-ja-vu before a seizure. It is a strange sensation. And sometimes I feel like I may vomit.
the deja vu is the worst. i can handle the other auras, but this one is the worst. and it usually results in a grand mal. god it's horrible.
My seizures are partial, mostly auras, usually with this pattern: long deja-vu after that less than 10 seconds of euphoria followed by extreme anxiety/remorse and then nausea/vomit + fatigue, just two times i've fainted (but never with convulsions).
Now i'm searching again because in all this week i've been having strange feelings all day that i can't describe i'm sure it's an aura but i can't identify it (it's a feeling, most closer will be "dreamlike", or just "i feel a thing that must be an aura").
Well... less than a month ago i had my first grand mal seizure (with 30y/o)... I suppose that now i know why i had those strong auras...
I was really hoping this would explain how to control it..... I have this feeling where right before, I start to feel like life is slowing down, my breathing is awkward and then I pass out :( The scariest thing to go through. Im 28 and its only happened 2 times, but the first time it happened I thought i was dying, so when it happened yesterday I immediately knew what was happening
SuperDan I get a euphoric feeling
Have you all figured anything out on how to prevent the seizure after the aura is felt?
The thing with auras is you can't control it. It comes and goes depending on what type of nerve in your brain is triggered at the moment. When I have small ones that I feel coming on I'll direct my attention to something else so I don't get stressed out and wait for it to pass. Or I lay down on my side which is a good thing to do do in the moment so it subsides faster.
Courtney Cazes what kind of aura would you say you get, or feel before the seizure comes on? My aura has always been a strong sense of deja vu. I've been really trying to figure out what it is that I can do to help keep my mind more present.
rob will I get that sometimes too, like it will feel good? Those aren’t the ones with the bad auras that are scary or the ones caused by lights though. Do you happen to know what causes the euphoric feeling?
I've been diagnosed epileptic for almost 16 years now. My aura is deja vu and fear
my auras consist of staring off and my hands shaking terribly. they happen in sequences like three or more in a row. i could be talking and mid sentence just freeze up and shake then be very confused and try my best to regather myself after. hoping that no one noticed. after that, if theyre really bad auras, ill feel intense panic and get a headache. i usually get auras every couple of days. havent had a total tonic-clonic seizure in about 8 months though :) thank u keppra
i get the rising feeling
Nice video 👍
I have epilepsy and I have that Aura feeling every time before seizures
I work in a detention center and I get a lot of people that are detoxing off of something either alcohol or drugs. So I see a lot of people who have a history of seizures. But I've always been told and read that you can't tell when you are about to have a seizure and I've also been told and read that when people wake up from a seizure they don't know they just had one. A lot of the people I deal with are trying to get out of jail and of which doesn't work. Just want more info.
When they are detoxing they will not have an aura because they are more than likely acute onset and do not have a history of them.
Most epileptics, or people with seizure conditions, that are not inflicted by drugs or alcohol, do have auras. I personally know I've had a seizure once I come out of it, but I do remember being young and not really knowing what had just happened. Now that I'm an adult, have dealt with them for so long, and probably even because of medication advances I'm aware that I've just had a seizure, though I can't usually tell you what happened during my seizures. People that have seizures because of drugs are not seizure patients, they don't have seizure conditions, their bodies are just out of wack.
I get extremely nauseous out of nowhere and if I'm standing, I feel like I'm walking on clouds.
I've had thousands of seizures the last 20yrs. From 10 a day to about 10 a month & that's just from PTSD (never in military), double depression, anxiety and sleep apnea has all been getting to me again. I take 14 seizure pills a day (300mg lamictal, 300mg zonisamide & 10mg onfi 2X a day). To me having a seizure is nothing now. The same as going to sleep, waking up or to the bathroom....... BUT!!! Here's how it goes for me. Seizures have put me in many coma's & other times Dr's have had to put me in a coma to stop my seizures. A funny time-i walked out of the bathroom pointed my finger in the air and said "Babe I" & instantly I feel a hard bump, open my eyes & a nurse had slammed her med cart into my bet & said "Mr Longoria" lol (a week had passed). Dr tells me when u have a seizure u tear muscle tissue & leave red blood cells flowing through Ur veins & they count them. 200-300 normal, 600-800 severe & 1200+ deadly. He tells me my was 41,000+ after 3 & he put me down. Said even if I live to 100yrs I'll probably die from a seizure.... At the beginning of my epilepsy a seizure felt this. I would feel over intoxicated, throw up & during the seizure it felt like my brain itself was connected to an electric outlet. All I could see was extreme blue electric scramble with a black background & I had to take the deepest breath I could the fastest I could & scream extremely loud at just the right pitch for as long as I could in between each breath to make the electric make a sort of flat line & least amount of pain (nonstop 2-3hrs after about 10 seizures before meds) before onfi I used different thicknesses of boards to hit my head daily to deal with the pain in my brain. For me a standard FULL BLOWN seizure on its way FEELS LIKE. Ur afraid of small areas & heights, then locked in a coffin & thrown off a building.
for me its deja vu, a feeling like " I've done this before " or the idea of my mind is collapsing, hell even my body will vibrate like a motor (just enough to stop me in my tracks, not jerk )and my mind will "split" and go different directions.... I can't even enjoy some songs cause the rhythm triggers a aura. Even on medication I still have auras just now it stops just before blackout seziures
I only discovered I had epilepsy last year at 26. I had two big epilepsy fit after drinking too much and not sleeping enough (but like drinking WAY too much). The first time it happened I was alone and at the emergency room they saw my bitten tongue and they were like, 'oh that's an epilepsy fit'. My mother and I were in complete disbelief. But then it happened again about three months later on the train :/
Since there were many witnesses that time there was no disputing it. When I saw the neurologist we talked and I learned that what was dismissed as panic attacks when I was a pre-teen were actually seizures! Mine are usually an intense threatening and scary feeling, followed by a deja vu feeling and a sort of out of body experience (as if Im a witness to the scene). I can still function and talk but its very odd and unpleasant. Since I was told it was anxiety, I just dealt with them by pausing and taking deep breaths until it calms down.
Since Ive been taking lamotrigine my absence seizures sometimes feel a lot more intense and I can simply forget what happened during a few seconds or minutes.
Damn. I didn't know what it was until a few years after bc I was dismissing it was dehydration or simply dejavu. I don't ha might have had a night seizure a few nights ago bc I had been staying up too late and in specifically that night I stayed up all night crashing red bulls to finish a deadline for work. I think caffeine might be my trigger since I typically get them at work and at work I'm drinking caffeinated drinks.
Wow you described this soo accurately. My seizures come from a brain tumor.
I am 70 years old and I have am had seizures starting at age 14; I get an intense feeling of fear that something bad is going to happen-and I am intensely scared. I feel as if I am reliving these moments from before- as if I have been pre warned of them. After it fades in about two or three minutes I can stop myself and say “You just had another aura!” It really gets beyond aura phase but those moments are pure hell-it feels so frightening. And all the sensation is in the top of my stomach-or “Solar Plexus “as I have been told. It is so simple but seems so frustrating when it is happening. I wish just the auras would stop at any expense.
I also experience the same thing. I really want to stop these Auras for good
i will start seeing rainbows and then I'll start having the most scary uncomfortable feeling, it can be super scary and I know if I try to just keep going along like nothing happened I'll have a seizure . so I close my eyes and wish it away. I've never met anyone that knows what I'm talking about.
snowinblood I don’t see rainbows while having an aura but I experience extreme fear. The fear and deja vu scare me more than the actual seizure.
When I have an aura, I usually have a feeling in my gut, which reminds of city hall clock
chime, each every couple of seconds (ding, ding, ding). I also have a need to "take care of business".
That's very interesting. I get the weird gut feeling and a feeling of dejavu, and I hear these gears like from a clock turning in my head.
The biggest thing is to stay relaxed. The seizure really is influenced by people around the person. Don't start freaking out and really just leave the person alone.
For me, it is always a rush of what I tend to consider "long lost memories". Usually lasts a good minute or so, but it prevents me from thinking for myself.. so making the decision to get in a safer position is almost impossible.
At first I had a strong wave sensation in my head, but now I get butterflies in my stomach and chest. I also feel like nothing is real, the feeling is very difficult to describe
hi can you explain the wave sensation in your head please
@@andreaflores677 it’s difficult to explain, but I would suddenly get a feeling in my head which slowly grew and got more intense over a few seconds, also causing my head to feel heavy. It wasn’t painful, but it was overwhelming for the few seconds it lasted
I feel like I’m going to vomit.. I have had 3 seizures and usually I get a feeling of dread followed by a potential headache, a metal taste (like sucking on a battery) in my mouth, the feeling of wanting to vomit and an urge to crouch down on the ground.
This happened at night last time and I kept waking up to crouch on the ground. Eventually I ran in to my mothers room, after I woke up on the ground in the kitchen to the worried screams of her cat, and had a grand mal.
Fracking scary.
A note to those who don’t know much about seizures; not all seizures are grand mal - the type where you fall to the floor and start convulsing. I really wish more people would know this!!! I had a seizure a few months ago and my neighbor is still going around telling people I’m crazy and making things up. She said “you weren’t flipping around or foaming at the mouth! You did NOT have a seizure”. This coming from my housebound crazy neighbor who now tells everyone I’m a liar and likely on drugs. Smh.
I one had sudden fear, doom&gloom, sadness, and anguish (all mixed up and intense), then 30 minutes later It was like I was trapped in my head, I couldn't feel happy, as if there was no dopamine :(
Then I started feeling weak and fainting, then I woke up but felt ikky, and heavy.
*Days before that I had a dizzy spell where I had a difficult time driving to the hospital w/ some shitty sensory disturbances, and one conscious conclusive episode, all after starting "high doses" of Flouxtine (20mg) + mirtazpine (30mg)
Kind of like whatever movie you’re watching, and suddenly the main character starts looking and talking at you through the screen. Breaking the Fourth Wall!
This the stuff of nightmares. It’s a super “meta” experience, huh!
I had a spell a few yrs ago at work. I don't remember a lot of it. They said I suddenly started staring in a daze, touched my head and said something 'popped' idn. I saw a pic, I looked off. Since then I've had 'deja vu' spells, it makes me break out in sweat usually...
Had to dispense a DiaStat Accudial for the first time the other day for a patient in case of status epilepticus. Seizures can be pretty scary which is why education and building a knowledge base is so important.
its the same for me start to having feeling of fear.
love these quick tips things
Thank you
I've always had such difficulty explaining my aura, because it's some kind of weird feeling like the top of my head is being slightly pinched, or how you get when you've been holding your breath ( of course not the same though😒)
i've found it a bit weird that by stopping everything and slowing down I can sort of put of my seizure for a bit (it's still going to come just not that moment), but I never even thought to explain it through things like fear.
insightful
I get deja vu, when lights flicker, or I smell certain things and I feel like I'm falling through air, and I get dizzy and my head is pounding, and I get headaches but I forget what I saw and quickly forget what caused it.
My mind and body just feels fuzzy, I also feel really weak afterwards. I haven’t had a seizure in 5 years. But auras show up here and there, the best way I can describe it from my perspective is a mixture of a panic attack and body aches. Very odd feeling
Thank you. Very helpful.
I was diagnosed with epilepsy in 2013, but I've had it for as long as I can remember (when I was young doctors thought my absence seizures were a "phase"). Anyways, I don't remember having an aura or feeling before I'd have one, but I know before I was put on medication to control my seizures, I would occasionally feel like I couldn't breathe right or focus. I can't pinpoint if that happened before any of my absence seizures or anything, but I haven't felt that since my seizures have been controlled so I'm willing to assume that could've been an aura that I was going to lose focus. When I learned about auras, I didn't know some people could tell when a seizure was about to happen. Really interesting... :)
I think im about to have one im feeling the feeling is the same feeling. In this im crying
OK, this isn't exactly on topic, but it reminded me of something I saw on Animal Planet's "Dogs 101." There was a lady on there who has seizures, and her little dog is her warning alarm. Her chihuahua is so tuned into her that it knows when a siezure is about to start and lets her know in time for her to get somewhere safe before it starts, i.e., not on the stairs or behind the wheel. She even got it certified as a service dog so that she can take it everywhere she goes, which I think is pretty cool.
Yes some dogs can be trained to pick up on these
I get intense deja-vu, my vision getsfuzzy and tunnel like, and it feels like someone's turning down the volume knob of life and turning up the volume of this very specific droning beep. I know I'm going to seize and my coping mechanisms aren't going to prevent it when the droning beep gets louder than the outside world.
I get a home sick feeling before I have mine
My aura is like a black cloud is coming around my head and intense heat. I have not lost consciousness or fallen down. It's of short duration thankfully. I've not found anyone else with this sensation. I have had Absence seizures where I lose awareness but don't fall. Most of the seizures have not been preceded by an aura. This is all pretty new so I'm searching for answers.
I get this trippy feeling of déjà vu. My vision gets blurry and my words get slurred…then I tell myself, alright dude have you been here before, are you here now…just don’t panic, slow your heart beat, a little bit, try and take a look around…try & I snap out… Strangely, the past times I’ve had these someone has always been around 🤷🏿♂️ and been there to be like “are you okay.” Then I can ask them wtf just happened. What did it look like, cause I never really know, you know.😢
Deja Vu, disorientation and not recognising surroundings and a general feeling of helplessness. Sometimes one, sometimes a combination, sometimes all 3. Suffer with partial seizures in my left temporal lobe which are now (touch wood) under control. But it is always lurking there i guess. Thats the frightening thing that it's lurking waiting for the moment to "pounce"
I had and aura myself but it was a taste in my mouth that I can’t explain kinda like copper or metal 28 and just had my first one ☝️ super scared 😱
Yea I get deja vu and then my short term memory is wiped. But I know what you mean, sometimes while it’s happening I get a nasty chemical taste in my mouth and I hold my breath because the taste gets worse as I breath.
My first one was at 23. I had a really low blood sugar in the middle of the night. I was in a dorm and fell off my bed and woke up on the ground. That terrified me. They became more and more frequent after that. I always got a feeling of de-ja-vu in a bad way. Probably because of all the times it happened being at night, alone, by myself. I have mentally been able to prevent them from happening for over a year now. I just have to calm down, get sugar, and then I will be fine
Mine start as ringing in my ear that starts off low and gets louder and higher pitch, then leads to nystagmus and heavy breathing that turns into focal seizures (sometimes aware and sometimes complete)
Hey Skinnymedic. I just found your channel! I’m a 911 operator and get seizure calls all of the time. Every once in a while, a caller will say there is blood coming from the patient’s mouth after a seizure. Is this due to biting the tongue or the inside of the mouth or is it related to epilepsy or other medical issues?
Yes it is I bitten my tounge both of my seizures my first one was on January 13,2019 and my last once was on March 3,2019 and both times I bit my tongue.
my dad has epil. and knowing the Aura is very excellent tip! time to have someone else drive, take a day in bed, treat them like a prince for a day.
Right
many people just don't understand epilepsy.. and think the the only thing to do is get their fingers bit off putting a teeth clench in. it begins with the aura.
The bad thing is I have no feeling nor aura when I'm about to have a seizure, maybe sometimes I get this feeling of about to fall off(??) or spacing out but those things don't usually come out every time, most times I just fell and immediately have a seizure
I have had seizures since 2012 then my dog in 2015 then my daughter in 2016. It's crazy and it sucks.
I get Jamais vu and the feeling I’m someplace I shouldn’t be and there is someone or something that isn’t happy im there. I’ve had a couple of ecstatic auras where I felt like I was going to learn the meaning of the universe and why im here all before blacking out and forgetting 99% of the feelings and thoughts that were going through my head.
One time after I started two antidepressants (then stopped; because I felt a shock sensation when on it). I then felt very very very sad, fearful, and just not right. Then when I went to class It was as if I was paralyzed in my own body. For a moment I felt slow, sad, very heavy, and weak; I almost fainted. When I felt I was gonna "black out" I felt my heartbeat in my neck, then I come back again.
That day it felt like there was a balloon inside my head. Had terribly cognitive stuff afterwards. (I was unable to read at some point)
*I had a convulsion one night.
4 months later I had an EEG done, it showed 6 spikes and I was prescribed 500mg valproic acid.
my aroura is I cant tell if reality is real. thats the best way i can explain it and its extremely terrifying
the trigger are cold feel, the aura will come please remember only when the person have that seizure fear dead come to him
that cold given at the person when they are dying and asked want dead or not if not choose dead, than that aura will come when the person sense dead ,call with splash their feet with water at morning ,or wind blowing at morning ,also same at night.
remember only when the seizure person sense dead is coming to him.
it happen cause the person eat teeth ,hair , nail
I know when I'm about to pass out (not seizure).
Low blood pressure, too much oxygen or whatever.
I drop to the ground to avoid smacking my head :/
Interesting
@@SkinnyMedic cardioconvulsions do happen, also many people suffer from simple syncope. Epilepsy has 40% misdiagnose rate, never trust it or meds
Sometimes it goes no further than the flashing aura and feeling stoned. Other times, it proceeds a Tonic Clonic seizure.
My auras look something like: I don’t recognize anything or anyone around me, I talk crap and nonsense, I get dizzy and feel like I’m floating. Sometimes I can’t breathe.. it’s all different ;) but in most of my auras I have a few but I don’t actually have a seizure afterwards because I’m trying to breathe normally. But I make sure to inform anyone around me just in case
Helpful information.
I've fallen down stairs twice. This is advice everyone with siezures should take
Mine is myvears start ringing loudly like when you're on a plane and they pop and everything starts feeling fuzzy
I haven’t had a seizure before but I remember this one day I felt off like something bad was going to happen, sense of fear, anxiety and shakiness but it didn’t happen. It really felt like I was going to have seizure I just knew it but it didn’t happen. So I’m not sure what that was.
Sounds like panic. See a neurologist and a psychologist
I get tired, nauseous, dizzy, lightheaded, sweaty, very anxious, rapid breathing, light sensitive, whooshing sound in my ears, head pain, and then a tunnel vision if my eyes are still open.
I HAVE THOSE AURAS BY SIGHT AND FEELING, AND A HISTORY OF VERY BAD MIGRAINES, BUT NOT ANY SEIZER THAT I KNOW OF, BUT I HAVE WOKE UP THINKING I MIGHT HAVE HAD A MINI STROKE WHILE SLEEPING, BLIND SPOTS AND ARMS NUMB.
I hate the feeling. It terrifies me. I quickly try to distract myself when I feel it coming on but when the aura hits, it’s awful.
Have you made an in-depth video about seizures like you said you would? Can you post a link? Thank you!
The ones without warming for me are usually caused by riding in the front seat of a car, and the light flickering through the trees on the mountain cause a painful one. Feels like fire, and afterwards my brain? Feels like what it would be similar to putting a piece of pizza in the microwave too long (burnt / plasticy) and I lose my vision and only see red? Fire looking colors
My auras are always the same like something coming through me. It is what I picture when someone says Jesus come into them and filled them. I do not believe that but what a cool cool feeling.
Mine are white or dark spots that shoot across my vision very rapidly... the more visions I have, the more severe the seizures
I use aromatherapy to help curb my TLE auras, rosewater works best for me, I keep it everywhere