I have focal seizures and sometimes you can be right back to normal right after. Though often time I do need to sit down and sort of 'reboot' or just sleep. Not all are the same. Sometimes it messes with my speech afterward and sometimes just my mood.. Try not to trash the video if you have never experienced (not witnessed) them first-hand. As an educational clip, it is very insightful for the uninitiated.
Mine sound like they are very similar to yours. I can wake up from sleep in a panic. I get them usually when I'm sitting or asleep, and can generally tell if I'm going to get them based on how I feel during the day. The strange thing about mine is that I have to stand up, move, and get water. For some reason, water breaks them fast. My neurologist said that's really strange, but I directed her to a study that was performed. It's called Peri-ictal water drinking (PIWD). I've also noticed that my seizures are more likely to happen after eating, or eating right before bed. I thought maybe it had something to do with glucose, but during one seizure I was aware enough to test my glucose level right after the focal seizure stopped. My glucose level was within normal range. I'm allowed to drive, because I have Tonic-Clonics only when I sleep - and luckily haven't have them for years (medications are effective for now). The focal ones, I'm pretty well aware during them and they seem to only last for about 20-30 seconds. My primary care provider can't understand how epileptics are allowed to drive. I'm sure you know how frustrating it is having to deal with people who can't understand a disability if it's not physically apparent. So aggravating. Employers always request my medical records for verification, because I'm not missing a hand or a leg or something.
@@jangid_deepak_2268 Mine are short, like 20-30 seconds. I can remember most of it, but it's like really hazy tunnel vision and just fear. Not fear of anything in particular, just fear.
I'm going through treatment for focal seizure. It's really a hell we go through, even our loved ones can't understand and it's not their fault. That is our hell. I feel for anyone that has to endure this. This internet stranger is in your corner. You are not alone....... Frostproof,FL.
The medications suck. The depression keeps getting worse. I know I aggravate my family and co-workers when they happen. My wife especially. I know they piss her off. I tell her all the time that I'm sorry. I'm just over these things.
@@RalphSmith-cj5he yeah it sucks...... I've been on motorcycles for years. 400plus miles just to get a loaf of bread just to ride kind of thing. Had to give all that up 5 years ago. Now my pride and joy sits rusted and neglected. May never get to ride again. I fell for you pard'ner. D. Frostproof, FL.
@@My_Druid_journey. One neurologist clarified that Seizure disorder is treated with AED "yes but technically" is not Epilepsy. Oh well. A supportive group of friends, family helps.
As an epileptic myself and a volunteer for the epilepsy foundation shes having whats called a complex partial. This is the type that causes what he mentioned in the video. Many focals like mine do not cause this and there is no first aid for them other then to wait. Consciousness remains in tact and focals can occur in clusters which usually aren't medical emergencies. The type she had in the video is more likely to go into a full blown seizure so be mentally prepared
I AM HAVING FOCAL SEIZURES FROM 2016 and I am on LEVIPIL500mg and PHYSCO SAFE MIMI 0.5mg.......BU WHY DOES I HAVE A SEIZURE WHEN I START LUNCH OR DINNER .....and particularly after taking the last morsels of food ???
This is extremely helpful, thank you so much for clarifying! Sometimes it’s difficult to access information on seizures, as not too much is known about some types.
Great Experience I had with you DOC OKOUGBO UA-cam channel after using his herbal product & get cured from Epilepsy totally. Thanks so much DOC OKOUGBO UA-cam..
I have both focal aware and focal impaired awareness seizures, occasionally tonic -clonic. Sometimes I come round completely unaware that it's happened, other times I can't speak or see properly. I highly recommend for anyone with epilepsy to put the info onto your phones medical ID , this is so helpful for ambulance or hospital staff especially if you're often alone, its helped me a lot in the past and has my full medical history on there. Hopefully this helps ❤
I was diagnosed with absence seizures when I was 15 but something about it didn’t really make sense. After watching this it feels like everything has fallen into place. I think I’ve been having FAS instead of absences for the past 11 years!
I AM HAVING FOCAL SEIZURES FROM 2016 and I am on LEVIPIL500mg and PHYSCO SAFE MIMI 0.5mg.......BU WHY DOES I HAVE A SEIZURE WHEN I START LUNCH OR DINNER .....and particularly after taking the last morsels of food ??? @Rachel scott
I'm epileptic and have these often.. and so I'm allowed to pick up on the line "are you OK Annie" (mj) joking aside it'd a pain as most people think I'm drunk or on something else. Also one feels like crap after a seziure.i have focal and the shaky kind.. thankfully I can tell.when it's.coming but focal is a strange one and you just go blank yet are still aware but can't respond.. follow the tips in this video xxx
I once went out with friends and I wasn't having alcohol because of the meds. But everyone said I am behaving like an alcoholic...only my family and close friends noticed I was actually having a seizure.
I had one at work yesterday as I could not speak or respond.All I could do was look at my coworkers and cry. I so desperatly wanted to tell them what was going on, as I could hear in my head what it was that I wanted to say but it came out as jibberish. I sat down for about a half hour and I think I told someone I needed to go home and sleep. I drove home with moments of navigation lapses and don't remember some of my short drive: I know: really stupid but I could not speak so I procceded home and I was sort of pacing around. I managed to make myself some lunch and put my things back in unusual places and found them after I woke up from my 2 hour nap. I felt fine after that like nothing had happened. This was the first one I had during the middle of the day as most have happened at night. I have the best work crew ever as they are so reassuring and kind to me.
Mine have always been really weird. They only last for about 30 seconds and I talk during it answering “Umm, I’m not sure, ok, idk”. And I can always remember what happened after I recover. The Drs didn’t believe me so they did many EEG tests and made me have seizures then said a colour or a sentence and made me repeat it, I got 100%. It’s good bc It makes me really good at looking like I’m conscious in a conversation and not having a seizure
Temporal lobe seizures, it's not always reflected on the EEG, and most of the time the people surrounding you won't notice it unless you are speaking with them and se that you are not able to understand what they are saying, or your are not able to articulate words correctly
I don't understand why we never seemed to learn much about this stuff in school... I think every child in primary school should be educated on autism, ADHD, epilepsy, Tourettes. You're never too young to experience a challenging situation involving any of these things and it would likely help children with these disorders feel less alienated. I don't know, maybe things have changed since I left school.
I live in N Ireland that's had so much terrorist violence, we've had a brain drain, people are scared of new ideas esp about epilepsy and I've been fighting to get info about us to Joe blogs, I'm still thought to be too dangerous
I am pretty sure that the person who just comes out from the focal seizure doesn’t act normal as fast as shown in this video. My girlfriend has this and I have to calm her down for minutes. Usually after the seizure, she is confused, disoriented, doesn’t respond at all and her head feels heavy. The most common symptoms for Focal impaired awareness seizures is movement of mouth like chewing, automatic movements of body and unusual speech. She also doesn’t remember anything for like a minute or so. I usually see these symptoms in her and I always make sure nothing harmful object is near her. I usually hug her to calm her down. That way I can make sure she is nowhere near danger. It’s kinda hurtful to see someone going through that 😔.
You don't remember squat.....and you are not the same for at least a few hours....my focal really screws with life..I think my wife of 30 years is almost done with it.....it's not her fault. She doesn't understand.
What annoys me is that what I experience seems completely different to everything I've seen/read about focal seizures. Recently, it's been like psychological torture/bullying, where I'm forced to think certain things, and I'd create an alternate reality in my head with memories, and deja vu of those memories. Worlds are created and changed in the blink of an eye. I'd stop/slow down what I'm doing, not because I don't know where I am or anything. I just think "oh my god, this is crazy" while being bombarded with 5000000 thoughts every split second. It's more like a panic attack, and what helps for me is just talking to someone. Not have them ask me if I was alright, but just try and pull my mind away from the trippiness in my mind.
My first few months of experiencing focal seizures back in 2021 seem similar to the ones you described "bombarded with 5000000 thoughts every split second". I recall trying to describe it as a sort of projector 📽️ rapidly flicking through all these different "slides" with different thoughts and sensations of deja vú. Three years on, and my focal seizures are still a near daily occurrence unfortunately. However, they're now in the form of the more common symptoms as pointed out in the video as well as gastrointestinal pain and just the general feeling/anticipation of losing consciousness any second every time it hits me. Thankfully... so far... I haven't lost consciousness during these episodes and hope I continue to 😅
@@a1sauce44 Update: apparently the majority of my seizures are non-epileptic, which they could've told me years ago 😑 Valium and cbd/thc capsules help.
High humidity and low atmospheric pressure is the reason why people get seizures! I found out because my previous seizure was during when the hurricane and I googled it and found out. That's why places with high humidity such as The UK and Pakistan have the highest percentage of Epileptics.
@@ryancosta4555 hi, I'm in search for herbal medicine that will help me with my focal seizures, can you recommend me the one you're using? Thanks and God bless. I hope you reply.
Most of the time when I was about to have focal impaired awareness I got an aura like change in dimension of the room but i can communicate with anyone to tell them that i am about to have seizure and after having seizures I am usually tired and sometimes alert and after and hour or two I usually have postictal headache.. I have taken medication but sometimes I have seizure even with medication. The reason why I have focal impaired awareness seizure is due to Left Mesial Temporal Epidermoid Cyst of about 3cms
last month my room mate had the same problem as he has Epilepsy. He used to shout, laugh loud, sing and just talk non stop and not sleep therefore, we had to call the ambulance to take him to the hospital but after 2 nights he came back again with medicine prescribed for him
I'm a tonic clonic seizure patient which is the most horrible type I have sustained injuries as well during the traumatic experience. I wish I could have these focal ones much easier for my loved ones to go through then then the full blown ones 😢
I have this strange sensation feeling that tingles through my body, and then my vision goes all black and I can just see little spots of what’s happening. I’ve had them twice before and I don’t know what they are but it looks just like that.
Also to add, some people are not diagnosed with epilepsy yet. After recovering from the seizure, make sure they are ok and aware that they had a seizure and may have epilepsy or need extra medication. It may take 20 minutes to recover from a seizure and they may not fully remember it afterwards. In some cases they may be confused or impaired immediately after a seizure.
Dont forget about respiratory. When I have episodes, i hear ringing, tunnel vission, and it feels like my respiratory system doesn't recognize the air molecules leading to a headache in the revovery.
I tried a THC edible and it made me have an out of body experience. I was scared out of my mind; paranoid and kicking things I didn’t think it would ever go away. I lived in the fear of feeling like that again… then two months later I got a panic attack which triggered this episode that took me to that same feeling. People would start talking to me andI wouldn’t understand stand, everything was spiraling out of control, my legs felt like they were going to give out, I felt like I was going to collapse and was rushed over with anxiety. I couldn’t form full sentences and would just end up getting distracted and slurring words. My dad told me I seemed drunk. I was rushed to the ER. The doctors didn’t know what was wrong they all thought I was on drugs and tested me for drugs. I was in this episode for 6 hours… I thought I was going to be stuck forever. They gave me a pill and I was able to get out of it at last. Ever since I’ve been having extreme dejavús and headaches, I’ve also been twitching weirdly. Flooded thinking I have a brain tumor or something catastrophic. I don’t know if this is what it is… how do you get tested? What kind of doctor tests you?
There are a number of medical conditions that can cause symptoms similar to epilepsy. So if you want to find out what your symptoms are, it would be best to get a medical diagnosis. If the doctors thinks it could be epilepsy, we have information on epilepsy and how epilepsy is diagnosed. This is relevant to the UK. It may be different in other countries. www.epilepsy.org.uk/info/about www.epilepsy.org.uk/info/diagnosis
If we can be of any more help and you live in the UK, please feel free to contact our helpline team directly. You can either email helpline@epilepsy.org.uk or phone the Epilepsy Action Helpline freephone 0808 800 5050. Our helpline is open Monday to Friday 8.30am until 5.00pm and Saturday 10.00am until 4.00pm. Regards Diane Helpline Team
I have ones that I will ask someone a question and then I can’t make sense of their answer. Like going through a tunnel with a cell phone…it’s choppy. That’s how I know one is starting. Then I can’t seem to speak my thoughts out. Then hours later it becomes a tonic-clonic seizure. Not one particular type of seizure defines what I experience.
'Annie (inconveniently sighs) I think you're having a seiz-jah. Sounds so apathetic. I'd rather hear Brent say 'BUTI DON'T AGREE WITH THAT IN THE WORKPLACE' 😂😂
I feel this partially explains mine. I will begin to stare. But I can talk just can't keep track of what I am saying. I can't count to ten and get stuck mid scentance. I don't have them very often but they can last for hours but are really unnoticeable. I just act really out of it. Not many people know I have them because of how little they happen. In fact I am struggling to get diagnosed because people don't recognise it when they see it.
I can feel it coming in my head, like a pressure feeling , so I relax, and prepare myself to loose control over my body, I lie or sit down otherwise am going to fall, it feels as if am drawing back into my self, i feel like am in the Center of my head while it becomes dark around me. It takes all my energy away while its happening. I feel panicky and scared. I can feel it in my head at first it’s like a some sort of pressure coming down and consuming me. My brain starts to shut of and I am very sleepy . I get very sleepy and tired when it’s happening. My head falls down to side when am laying down or forward if am sitting up straight, and my eyes close I start saying prayers in my head because I get anxious. I can hear things happening around me so am conscious but at the same time I am detached. I can’t talk while it’s happening nor can I respond to anyone or move my body, my body feels limp and weak.. i get a rising feeling in my stomach like when you are in a roller coaster and it’s going down fast, also i get this feeling of nauseousness in my stomach. I start to swallow a lot during it and for abit more after it. It last for about minute and a half max or 15 secs minimum, then I come back again slowly to myself. I feel weak and tired after it. I feel fine 10 minutes later When it’s for 15 sec or so less symptoms present themselves and when it longer like a min or so then all the symptoms show. Or Annabelle Lande what is witnessed exactly if you you don’t mind sharing hun x This is what I experience below I get a warning that it’s going to happen, the warning feels like am going to blackout. some sort of sensation comes down from my brain and consumes my head and body. It’s very hard to explain I get a feeling of extreme dread and fear. I have started to relax now, and prepare myself to loose control over my body, so I lie or sit down, when it is happening. (My last one I didn’t have a warning ) The next stage feels as if am drawing back into myself as if am fainting, while my eyes become dark so I close them. Am still aware of what’s happening, I dont loose consciousness. This experience takes all my energy away. My brain starts to shut of and I get very sleepy and beyond exhausted while it’s happening and afterwards aswell. My head falls down to side. I tell my self to be calm and that it will be over soon (in my head) I feel very anxious and fearful during it, a feeling like am about to die. I get a feeling like when your stomach drop when you are on a really fast rollercoaster going downward. It’s aaccompanied with a feeling of nausea. I start to swallow rapidly during the episode and also a while after it has finished. I can’t talk while it’s happening nor can I respond to anyone or move my body, and I don’t have the ability to snap out of it my body feels limp and weak I can’t lift my arms or legs and I can only stare blankly. I don’t have control over my body so I have to let it run its cause. As am going more and more into this state, any noises, eg tv, any small talk, cars, radio or whatever else quietens down and for split second I dont hear anything at all but before long they start to pick up the volume again as am coming back to myself. It lasts for about minute max and 30 secs min I am aware of everything happening from start to finish I come back again slowly to my normal self. I feel weak, sleepy and tired after it.
Hi Marian Abdullahi, I experience exactly the same symptoms as you have described in your comment section. May i know how often it happens for you and also if you’ve found some kins of food or medicine that reduces the focal seizures? Thank you, Ettiene
Lol my home health provider found me walking into a wall repeatedly. She managed to get me to walk to the bed and lay down but apparently I tried to walk through my wall.
I know it feels like seizures inside but not on the outside...I press the center of my forehead and rub it and tap it and or I blink rapidly..I think it's a panic attack..my forehead feels squiggly and eyes get blurry and I get a fight or flight feeling and either pace or just zombie walk. I zone out and these last around 5 minutes at a time and then I'm just slow functioning for a long time afterwards
I started to have this at the start of 2020 and whilst being investigated to confirm it, it then strangely stopped on its own for about a year before even starting meds and now it’s a fight even with the meds despite increasing gaps as my medication has to keep getting upped until I find the right doseage
Absence seizures are when you pause your body for a few seconds and you might drop something and focal seizures are kinda hard to explain but it’s in this video
You have my maximum respect Dr Obulor,I want to appreciate you for all the awesome things you do to give people a second chance to live you are my hero thanks for putting up with the herbal recommendation to cure Epilepsy
Can this lead or be connected to MS?, my sister had this at age 8 and is now 34 and has MS. She had MS symptoms for 9 years before being diagnosed 2 years ago.
Hi Ceilidh Thank you for your comment. The relationship between multiple sclerosis (MS) and epilepsy is not well understood, but some research does suggest there is a link. But more research is needed. People diagnosed with MS often have other medical conditions, which may include epilepsy.
It may be a good idea to speak to the doctor as they can give individual medical advice. Rosie Helpline team
As a person having seizures or a person watching an unknown person having a seizure, how does a person know if they should wait it out as the male character in this video did or must come closer swiftly to ensure that the patient doesn't fall over unconscious?
Hi, that's a really useful question to ask. Usually, if a focal seizure is going to develop into a seizure where someone becomes unconscious, this would happen very quickly, and you wouldn't usually notice the focal seizure itself. You might find our information about different types of seizures, which explains more about this helpful to read: www.epilepsy.org.uk/info/seizures Carrying a medical ID can also be useful to explain what happens during a seizure and how to help: www.epilepsy.org.uk/living/safety-equipment/medical-id-products I hope this helps to answer your question. Mags Helpline team.
As long as I've been alive, every now and then I've had this weird thing I would do and it's only recently occurred to me that it could be some kind of seizure. I'll be lying in bed, relaxed and with my eyes closed but not yet asleep. All the sudden I'll either get a weightless kind of feeling like I'm dropping feet first through an endless tunnel or a choppy feeling like the whole room is shaking back and forth quickly. This sense of shaking and dropping and movement and weightlessness is accompanied by a feeling I can only describe as a full-body high with like a light-headedness and tingle up my spine and a sense of euphoria for no reason. I know absolutely nothing about seizures, but can they only be had at night? I've never had this during the day. Also, I'm able to "wake up" whenever I want out of it and open my eyes and move around. It feels like pure ecstasy until I get this creepy feeling like it's about to "take over" and I get scared and move around to get rid of it.
I'm with the epilepsy foundation and an epileptic. Much of what you're describing could be for a multitude of reasons/conditions including epilepsy so it's best to see a neurologist. If epilepsy is suspected an epileptologist
Whilst we do not currently have any videos covering nocturnal seizures, we do have a page on our website which covers the subject. You can find it here: www.epilepsy.org.uk/info/seizures/sleep-seizures
So sometimes I tend to "zone out." One time I remember being in chemistry lab. I was standing at the front of the room, near the whiteboard and a friend of mine from across the room started waving her hands frantically at me until I noticed her. I have no idea how long I was standing there or why I was standing there in the first place. I don't even remember thinking about anything while I was zoned out. I was quite confused afterwards, but it didn't seem like anyone else noticed except her. I work with birds now and their random sounds seem to keep me from zoning out as often, but sometimes I just feel like my body and brain just disconnect. Also, I have always had the tendency to drop things. It just feels like my hand lets go for no reason. Any ideas?
Thank you for your comment. This sounds like a confusing experience.
If you have a diagnosis of epilepsy, if you haven’t already, you may wish to talk to your epilepsy specialist regarding your concerns. If you don't have a diagnosis, you need to get a medical diagnosis or explanation of what is happening. You would have to talk to your GP. If they think you’ve had an epileptic seizure, they should arrange an appointment for you with an epilepsy specialist. We have information on how epilepsy is diagnosed that you may find helpful. www.epilepsy.org.uk/info/diagnosis
As trained epilepsy advisers, we can give general information on epilepsy. But we’re not able to diagnose your symptoms. If your symptoms are related to epilepsy, it could be some type of focal seizure. www.epilepsy.org.uk/info/seizures/focal-partial In these seizures the epileptic activity starts in just a part of your brain. You may remain alert during this type of seizure, or you may not be aware of what is happening around you. You may have movements that you can’t control, or unusual sensations or feelings.
Keeping a diary of these events could be helpful for your doctor. www.epilepsy.org.uk/info/diagnosis/seizure-diary
If you would like further information or to discuss this further, please contact our helpline team directly. You can either email helpline@epilepsy.org.uk or phone the Epilepsy Action Helpline freephone 0808 800 5050. Our helpline is open Monday to Friday 8.30am until 5.00pm and Saturday 10.00am until 4.00pm. www.epilepsy.org.uk/info/support/helpline Regards Diane Helpline Team
I that to soon after the seizure. Only thing I can think of is that our nerves control our bladder to as we are having seizure just like it is control the rest of our muscles
@Ann mine happens when i have no seizure it comes out only like that instead of seizure. It’s just an inattention like 2 seconds when my nerve gives it. What I’m thinking is that it is better to have the urine than the seizure. I’m almost 1/5 years without seizure,since that time had only uncontrolled urine. Actually I’m aware when all this happens so i can save myself.
I started my son on trileptal several yrs ago due to focal seizures but now he has cluster grandmals seizures should we ask neurologist for a different med ? And which med helps for grandmals thank you
I seam to have my seizures when I am asleep and suffer bouts of confusion at other times when I have a sleep seizure I can wonder around not knowing who I am or knowing anyone around me I also do not like men and it can take me up to three days to get anywhere near right again but ever since my first seizure I have a constant ringing in my ears and I feel like I have a cloud in my head as well as arura migraines any info and help would be appreciated as I am a bit lost on what to do and who to turn to for help
Hi @oldbag3043 This sounds like an unpleasant experience.
Following a tonic-clonic seizure (www.epilepsy.org.uk/info/seizures/tonic-clonic) either in your sleep or a wake, you can experience tiredness, confusion and memory problems (www.epilepsy.org.uk/living/health/memory-problems-and-epilepsy). How quickly you recover will be individual to you. But it can take weeks. As these symptoms are related to you having seizures, the best way to treat them is to try stop the seizures happening.
Are you being seen by an epilepsy specialist so they can review your treatment (www.epilepsy.org.uk/info/treatment/anti-epileptic-drug-treatment)and look at other possible reasons for your seizures to still be happening? They may suggest altering the dosage of your epilepsy medicine or trying a different one if you are already on a high dosage. If you has tried various types of epilepsy medicines, it may be the specialist could look into other treatment options for you. If you are not under a specialist, you will need to ask your family doctor to refer you. This would usually be to a neurologist. The ideal would be to someone with a specialist interest in epilepsy, as there are many different neurological conditions, and neurologists tend to specialise in different ones.
I wonder if you have an epilepsy nurse you can also contact.
You can talk to your epilepsy team about your vacant episodes and the ringing in your ear. Otherwise talk to your GP about the ring in the ear.
If we can be of any more help, please feel free to contact us again, either by email, live chat or the Epilepsy Action Helpline (www.epilepsy.org.uk/support-for-you/the-epilepsy-action-helpline) freephone 0808 800 5050. Our helpline is open Monday to Friday 8.30am until 5.00pm and Saturday 10.00am until 4.00pm. UK only.
Hi. My partner has seizures where he wil repeat phrases like 'yeah sure, yeah sure' and laugh even if it has nothing to do with the conversation.loses all his colour. Clammy hands afterwards. Is this a focal seizure?
Thank you for your comment. It's possible that your partner is experiencing focal seizures. But we aren't medically trained so we can't say for sure. If your partner is concerned then we would recommend he contacts his doctor. Our website also has more information about focal seizures which may be useful.
If you'd like to talk more about this or have any other questions please feel free to contact our Helpline free in the UK on 0808 800 5050. The helpline is open Monday to Friday 8.30am until 5.00pm and Saturday 10.00am until 4.00pm. www.epilepsy.org.uk/info/seizures/focal-seizures www.epilepsy.org.uk/info/support/helpline Regards
I am suffering from focal seizure or say simple partial seizure.... I feel strange feeling like "deja vu" then feeling of vomiting and heavy head and feel like my whole nurve are paining.... i am having treatment since 3 year ...will it completely cure ?
There are different treatments for epilepsy. How effective they are varies depending on the type of treatment and how someone is effected by their epilepsy. The usual treatment for epilepsy is taking medicine. This doesn't cure epilepsy, but aims to stop or reduce your seizures. Around 7 in 10 people will stop having seizures with the right epilepsy medicine. We have more information about the different treatments for epilepsy on our website www.epilepsy.org.uk/info/treatment/getting-right-treatment-care-for-epilepsy.
You might find it helpful to contact our Epilepsy Action Helpline team either by email or on our freephone 0808 800 5050. Our helpline is open Monday to Friday 8.30am until 5.00pm and Saturday 10.00am until 4.00pm. Where we will work to answer your question in more detail. www.epilepsy.org.uk/info/support/helpline
Can someone help? I have seizures for 7 years, most of the time, I'll be stiff or rigid then I'll black out or I'll be unconscious. I was diagnosed with complex partial seizure. Somehow after taking some medicines for years, I'll have a seizure but I can talk to people while in a normal conversation. The problem is that I am not actually conscious of what I'm doing and after the seizure I don't have any memory of what I've done. Does anyone know what type this new seizure I'm experiencing is?
Hi, Thank you for your comment. I wonder if you have spoken to your epilepsy specialist or GP about this? They may be able to work with you to help understand what you may be experiencing and how they can support you with it. Some people find their epilepsy can change throughout their life and they may start to experience different types of seizures. You may find it useful to read out information about seizure types. www.epilepsy.org.uk/info/seizures-explained It might be helpful to contact us again, either by email or the Epilepsy Action Helpline freephone 0808 800 5050. Our helpline is open Monday to Friday 8.30am until 5.00pm and Saturday 10.00am until 4.00pm
I think I may have Temporal Lobe Epilepsy due to the symptoms. Tried talking to my doctor about it. They've been useless. I was told 'It's unlikely you have it because it's rare.' Meanwhile, I have several other 'rare' conditions. Rare does NOT rule anything out. But it dies make many medics rules out a diagnosis before proper investigation is done. Today was low level symptoms nearly all day. Today I've had two BIG episodes. It's scary. So scary.
I'm with the epilepsy foundation and an epileptic. To date there are I believe around 30 meds for epilepsy but it depends on your personal situation so u should talk to your dr
Thank you for your comment. It would be a good idea to talk to your neurologist or doctor about treatment. They should be able to talk through the options with you. Our website has some information about treatment in the UK. www.epilepsy.org.uk/info/treatment
@@letsgolesbians9617 aw man. thanks for the information. that sucks... i hope i dont get one where i might put anybody or myself in a dangerous situation
@@brotherjoll1802 if you’ve only ever have focal you should be alright- I’m not diagnosed with epilepsy yet, we’re still trying to figure out whether it’s epilepsy or NEAD, but good luck to you
I'm with the epilepsy foundation and epileptic. Any seizure can become grand mal if the electrical signals in the brain misfire far enough to include both hemispheres
My brother has these, he will lose Consciousness and fall to the ground, grabbing at his clothes, lip smacking, Curiosity (switching things off and doing odd things), its horrible to see. No drugs have ever worked for him and he can have many in a month, doctors just say keep taking the tablets although they just dont help and have bad side effects. He will be better when he is dead, he cannot step outside the door without worry, which is no life for anyone. A debilitating condition with no cure, it has taken his independence and the level of care is a disgrace
Baka po may makasagot saken dito. Noong highschool po ako sumasakit po ng sobra ang tiyan ko tapos namamanhid at pinagpapawisan po ako ng malamig hanggang sa himatayin na po ako nun, kwento po ng mama ko naninigas daw po ang mga daliri ko, hinihimatay po ako pero aware po ako sa nangyayari sa paligid ko pero di ko maramdaman yung katawan ko. Tas maglalast lang po sya ng segundo then after po nun dun po ako mapopoop tas nagiging okay na pakiramdam ko katagalan after magpahinga. Mild Epilepsy po ba yung ganun? Nagpa check up po kasi ako tas kwinento ko lang nangyayari sakin tas sabi po saken mag pa ecg kasi may epilepsy daw po. Ilang beses na po nangyari saken yun pero buti po ngayon hindi ko naman nararanasan ulit.
He is aware that he's having a seizure, but most of the time, he won't understand what they are saying to him and will not be able to articulate words, but he will not lose consciousness
I think i have a focal seizure because the right side of my body from the brain to the toe feels the electric shock sensation and its verv pain full, and i pass gas, then it becomes normal. If something similar happens with anyone, then please let me know
I AM HAVING FOCAL SEIZURES FROM 2016 and I am on LEVIPIL500mg and PHYSCO SAFE MIMI 0.5mg.......BU WHY DOES I HAVE A SEIZURE WHEN I START LUNCH OR DINNER .....and particularly after taking the last morsels of food ???
I've finally found out I have focal awareness seizures, I describe it as like a special lens on your camera , I know I'm in the world but can't make sense of it, if people try to restrain, talk with me they seem like horrid monsters and I go into fight or flight. However, even nurses and doctors don't understand it, I've had bad fights with them. I can "black out" but still go on walking, working etc, I've often finished up in odd places with no idea how I got there, bought things. Epilepsy is a very strange thing in the way it happens different from one person to another. The only first aid for any seizure is take away anything dangerous around them then stand back and let the seizure continue until it has finished, then reassure them, they will be badly disoriented
What if you're having something similar to this but your completely aware of where you are and whats happening? On top of also having an aura before hand usually and metallic taste or sensation?....I'm asking for myself. The idiot neurologist i saw nearly two months ago tried writing off my experiences as just being caused by bottled up trauma and told me to go back to therapy.
During a focal aware seizure (www.epilepsy.org.uk/info/seizures/focal-seizures), you stay fully aware of what’s happening around you, even if you can’t move or respond. This type of seizure used to be called a simple partial seizure. An aura is in fact the seizure starting in a single part of the brain as a focal aware seizure.
It may help to keep a diary of these events and try video some of them to share with your neurologist.
If we can be of any more help, please feel free to contact us again, either by email or the Epilepsy Action Helpline freephone 0808 800 5050. Our helpline is open Monday to Friday 8.30am until 5.00pm and Saturday 10.00am until 4.00pm. www.epilepsy.org.uk/support-for-you/the-epilepsy-action-helpline Regards Diane Helpline Team
@@epilepsyaction I saw a Neurologist the first of Sept for the first time in my life. She was not helpful. She barely looked at my chart, didn't look at the journal I use to keep and basically said with out saying it directly, that it's all in my head. LMAO Which that is exactly the problem, it Is all in my head *rolls eyes* Wasted half a tank of gas to get to her office and back home for nothing. As a teen I would sporatically have these sudden extreme "cold chill" like shaking. these occured Very few and Very far between. Then about ten years ago they happened again only stronger and i could feel them internally like tremors. They stopped after I had my antidepressant changed so I thought that's what caused them. But two years ago they started again. This time I can feel when ones going to hit. slowly at first, then the aura's got worse and the attacks stronger. i'm sure it is the right side of my brain that this is happening as when they edge in my left hand looses coordination and feels useless. the left side of my face feels sort of numb in just the skin. Then the rest hits. what gets me is during the day i'll have a headache, just in my forehead on one side or the other. I'll also get a metallic taste/smell and ..this sound strange but with the headache, the headache itself feels metallic like how burning metal smells sort of. sorry for the novel. i'm just so frustrated. Disability keeps telling me I can "Adjust/Adapt" and now i've been cut down to 3 days a week at work.
You're such a wonderful doctor and you always make me feel so safe Dr Dagba on youtube Thank you for being the best doctor for me. thank you for curing my epilepsy keep up the good work doc .
@@spencerstandardisthebestma6309 I'm sorry to hear you are feeling this way. In the UK, the Samaritans are available 24/7 on 116 123. It would be a good idea to speak to your doctor about how you've been feeling.
Let me take out a moment in my busy life to send a thank you note to a very amazing doctor who is full of love and commitment,Dr ogie is truly a blessing to the world thanks for curing my epilepsy
Shoutout to the writer who named the character Annie so they could repeatedly ask if she was okay.
Hehe Michael Jackson reference
YES-
I too was wondering whether to comment this 😂
hahahahaha! thats awesome
😂😂😂😂😂
I have focal seizures and sometimes you can be right back to normal right after. Though often time I do need to sit down and sort of 'reboot' or just sleep. Not all are the same. Sometimes it messes with my speech afterward and sometimes just my mood.. Try not to trash the video if you have never experienced (not witnessed) them first-hand. As an educational clip, it is very insightful for the uninitiated.
What make seizures come on
@@tylerdobby4137 👋
Do you remember everything in these 2~3 minutes or not?
Mine sound like they are very similar to yours. I can wake up from sleep in a panic. I get them usually when I'm sitting or asleep, and can generally tell if I'm going to get them based on how I feel during the day. The strange thing about mine is that I have to stand up, move, and get water. For some reason, water breaks them fast. My neurologist said that's really strange, but I directed her to a study that was performed. It's called Peri-ictal water drinking (PIWD).
I've also noticed that my seizures are more likely to happen after eating, or eating right before bed. I thought maybe it had something to do with glucose, but during one seizure I was aware enough to test my glucose level right after the focal seizure stopped. My glucose level was within normal range.
I'm allowed to drive, because I have Tonic-Clonics only when I sleep - and luckily haven't have them for years (medications are effective for now). The focal ones, I'm pretty well aware during them and they seem to only last for about 20-30 seconds. My primary care provider can't understand how epileptics are allowed to drive.
I'm sure you know how frustrating it is having to deal with people who can't understand a disability if it's not physically apparent. So aggravating. Employers always request my medical records for verification, because I'm not missing a hand or a leg or something.
@@jangid_deepak_2268 Mine are short, like 20-30 seconds. I can remember most of it, but it's like really hazy tunnel vision and just fear. Not fear of anything in particular, just fear.
I'm going through treatment for focal seizure. It's really a hell we go through, even our loved ones can't understand and it's not their fault. That is our hell. I feel for anyone that has to endure this.
This internet stranger is in your corner. You are not alone....... Frostproof,FL.
The medications suck. The depression keeps getting worse. I know I aggravate my family and co-workers when they happen. My wife especially. I know they piss her off. I tell her all the time that I'm sorry. I'm just over these things.
I feel sorry for the people that watch us go through it. I can’t remember a thing but they hear it all.
I had to give up CDL driving due to a seizure disorder. I was able to qualify for disability and adapt to the importance of taking the AED
@@RalphSmith-cj5he yeah it sucks...... I've been on motorcycles for years. 400plus miles just to get a loaf of bread just to ride kind of thing. Had to give all that up 5 years ago.
Now my pride and joy sits rusted and neglected.
May never get to ride again. I fell for you pard'ner.
D. Frostproof, FL.
@@My_Druid_journey. One neurologist clarified that Seizure disorder is treated with AED "yes but technically" is not Epilepsy. Oh well. A supportive group of friends, family helps.
As an epileptic myself and a volunteer for the epilepsy foundation shes having whats called a complex partial. This is the type that causes what he mentioned in the video. Many focals like mine do not cause this and there is no first aid for them other then to wait. Consciousness remains in tact and focals can occur in clusters which usually aren't medical emergencies. The type she had in the video is more likely to go into a full blown seizure so be mentally prepared
I AM HAVING FOCAL SEIZURES FROM 2016 and I am on LEVIPIL500mg and PHYSCO SAFE MIMI 0.5mg.......BU WHY DOES I HAVE A SEIZURE WHEN I START LUNCH OR DINNER .....and particularly after taking the last morsels of food ???
@@riyazahmad1115 talk to your dr
This is extremely helpful, thank you so much for clarifying! Sometimes it’s difficult to access information on seizures, as not too much is known about some types.
Great Experience I had with you DOC OKOUGBO UA-cam channel after using his herbal product & get cured from Epilepsy totally. Thanks so much DOC OKOUGBO UA-cam..
Mine would start like this and when interrupted...can quickly go to a full blown seizure with generalisation
These examples are important, and they're really helping me to understand. Thank you.
I have both focal aware and focal impaired awareness seizures, occasionally tonic -clonic. Sometimes I come round completely unaware that it's happened, other times I can't speak or see properly. I highly recommend for anyone with epilepsy to put the info onto your phones medical ID , this is so helpful for ambulance or hospital staff especially if you're often alone, its helped me a lot in the past and has my full medical history on there. Hopefully this helps ❤
Thank you for the video, learning to care for my elderly epileptic father. He has these types of seizures probably monthly...
I was diagnosed with absence seizures when I was 15 but something about it didn’t really make sense. After watching this it feels like everything has fallen into place. I think I’ve been having FAS instead of absences for the past 11 years!
Welcome to the club! Lol
I AM HAVING FOCAL SEIZURES FROM 2016 and I am on LEVIPIL500mg and PHYSCO SAFE MIMI 0.5mg.......BU WHY DOES I HAVE A SEIZURE WHEN I START LUNCH OR DINNER .....and particularly after taking the last morsels of food ???
@Rachel scott
I have tonic seizures
@@riyazahmad1115 i am also having this same problem when i start eating just for only 2 mins.
@@riyazahmad1115 Do you remember everything in these 2~3 minutes or not?..........plz tell me
I'm epileptic and have these often.. and so I'm allowed to pick up on the line "are you OK Annie" (mj) joking aside it'd a pain as most people think I'm drunk or on something else. Also one feels like crap after a seziure.i have focal and the shaky kind.. thankfully I can tell.when it's.coming but focal is a strange one and you just go blank yet are still aware but can't respond.. follow the tips in this video xxx
I once went out with friends and I wasn't having alcohol because of the meds. But everyone said I am behaving like an alcoholic...only my family and close friends noticed I was actually having a seizure.
It's interesting watching there videos because I don't actually know how I look having a seizure. I mostly have Focal, but sometimes Tonic Clonic
I can only hope that some day we have such respect and understanding in America.
I had one at work yesterday as I could not speak or respond.All I could do was look at my coworkers and cry. I so desperatly wanted to tell them what was going on, as I could hear in my head what it was that I wanted to say but it came out as jibberish. I sat down for about a half hour and I think I told someone I needed to go home and sleep. I drove home with moments of navigation lapses and don't remember some of my short drive: I know: really stupid but I could not speak so I procceded home and I was sort of pacing around. I managed to make myself some lunch and put my things back in unusual places and found them after I woke up from my 2 hour nap. I felt fine after that like nothing had happened. This was the first one I had during the middle of the day as most have happened at night.
I have the best work crew ever as they are so reassuring and kind to me.
Man and after the seizure you have this strong headache in the part of the brain where it occured
Mine have always been really weird. They only last for about 30 seconds and I talk during it answering “Umm, I’m not sure, ok, idk”. And I can always remember what happened after I recover. The Drs didn’t believe me so they did many EEG tests and made me have seizures then said a colour or a sentence and made me repeat it, I got 100%. It’s good bc It makes me really good at looking like I’m conscious in a conversation and not having a seizure
Just like my son's current type
I have same problem.. What tablet 💊 are you have taken
Temporal lobe seizures, it's not always reflected on the EEG, and most of the time the people surrounding you won't notice it unless you are speaking with them and se that you are not able to understand what they are saying, or your are not able to articulate words correctly
Thank you so much sir, hearty thanks from India 🙏🙏🙏
Thank you for this demonstration!
"You've had a seeeeeeizure" made me LOL
Annie, are you OK? Are you OK? Are you OK Annie?
Sorry, I know this is serious. I just couldn't resist.
I have tonic-clonic epilepsy and you got a good laugh out of me.
1:58 Someone need to make a meme vid.
Lol I'm called annie
And now i cant resist removing the comnent.
I feel a little better but still have auras off and on.Monday, I will be able to talk to neurologist. Thanks, Apryl.
I don't understand why we never seemed to learn much about this stuff in school... I think every child in primary school should be educated on autism, ADHD, epilepsy, Tourettes. You're never too young to experience a challenging situation involving any of these things and it would likely help children with these disorders feel less alienated. I don't know, maybe things have changed since I left school.
I live in N Ireland that's had so much terrorist violence, we've had a brain drain, people are scared of new ideas esp about epilepsy and I've been fighting to get info about us to Joe blogs, I'm still thought to be too dangerous
I am pretty sure that the person who just comes out from the focal seizure doesn’t act normal as fast as shown in this video. My girlfriend has this and I have to calm her down for minutes. Usually after the seizure, she is confused, disoriented, doesn’t respond at all and her head feels heavy. The most common symptoms for
Focal impaired awareness seizures is movement of mouth like chewing, automatic movements of body and unusual speech. She also doesn’t remember anything for like a minute or so. I usually see these symptoms in her and I always make sure nothing harmful object is near her. I usually hug her to calm her down. That way I can make sure she is nowhere near danger. It’s kinda hurtful to see someone going through that 😔.
With focal aware seizures, you can resume activities almost immediately after.
Do you remember everything in these 2~3 minutes or not?
You don't remember squat.....and you are not the same for at least a few hours....my focal really screws with life..I think my wife of 30 years is almost done with it.....it's not her fault. She doesn't understand.
She is lucky to have you!
All the best to both of you!
What annoys me is that what I experience seems completely different to everything I've seen/read about focal seizures. Recently, it's been like psychological torture/bullying, where I'm forced to think certain things, and I'd create an alternate reality in my head with memories, and deja vu of those memories. Worlds are created and changed in the blink of an eye.
I'd stop/slow down what I'm doing, not because I don't know where I am or anything. I just think "oh my god, this is crazy" while being bombarded with 5000000 thoughts every split second.
It's more like a panic attack, and what helps for me is just talking to someone. Not have them ask me if I was alright, but just try and pull my mind away from the trippiness in my mind.
My first few months of experiencing focal seizures back in 2021 seem similar to the ones you described "bombarded with 5000000 thoughts every split second". I recall trying to describe it as a sort of projector 📽️ rapidly flicking through all these different "slides" with different thoughts and sensations of deja vú. Three years on, and my focal seizures are still a near daily occurrence unfortunately. However, they're now in the form of the more common symptoms as pointed out in the video as well as gastrointestinal pain and just the general feeling/anticipation of losing consciousness any second every time it hits me. Thankfully... so far... I haven't lost consciousness during these episodes and hope I continue to 😅
@@a1sauce44 Update: apparently the majority of my seizures are non-epileptic, which they could've told me years ago 😑
Valium and cbd/thc capsules help.
High humidity and low atmospheric pressure is the reason why people get seizures! I found out because my previous seizure was during when the hurricane and I googled it and found out. That's why places with high humidity such as The UK and Pakistan have the highest percentage of Epileptics.
Many many many triggers not just weather related. Stress, lack of sleep, hunger, dehydration are just some of the many symptoms.
Just found out today I have focal seizures. I been having these since I was in 8th grade.
Hey friend i am happy now as i get cured from this disease with natural medicine you can also have a try to get herbal medicine
@@ryancosta4555 hi, I'm in search for herbal medicine that will help me with my focal seizures, can you recommend me the one you're using? Thanks and God bless. I hope you reply.
Most of the time when I was about to have focal impaired awareness I got an aura like change in dimension of the room but i can communicate with anyone to tell them that i am about to have seizure and after having seizures I am usually tired and sometimes alert and after and hour or two I usually have postictal headache.. I have taken medication but sometimes I have seizure even with medication. The reason why I have focal impaired awareness seizure is due to Left Mesial Temporal Epidermoid Cyst of about 3cms
I have that same condition, and also due to a cyst in the mesial temporal lobe
@@Taekwondorocks have you consulted Neurologist?
last month my room mate had the same problem as he has Epilepsy. He used to shout, laugh loud, sing and just talk non stop and not sleep therefore, we had to call the ambulance to take him to the hospital but after 2 nights he came back again with medicine prescribed for him
I'm a tonic clonic seizure patient which is the most horrible type I have sustained injuries as well during the traumatic experience. I wish I could have these focal ones much easier for my loved ones to go through then then the full blown ones 😢
I have this strange sensation feeling that tingles through my body, and then my vision goes all black and I can just see little spots of what’s happening. I’ve had them twice before and I don’t know what they are but it looks just like that.
Also to add, some people are not diagnosed with epilepsy yet. After recovering from the seizure, make sure they are ok and aware that they had a seizure and may have epilepsy or need extra medication. It may take 20 minutes to recover from a seizure and they may not fully remember it afterwards. In some cases they may be confused or impaired immediately after a seizure.
Thank you so much for this message 💗
Hes a smooth fella. Gonna knock the dust off that in the staff room.
gosh, that's what I thought too... we're terrible
Dont forget about respiratory.
When I have episodes, i hear ringing, tunnel vission, and it feels like my respiratory system doesn't recognize the air molecules leading to a headache in the revovery.
I tried a THC edible and it made me have an out of body experience. I was scared out of my mind; paranoid and kicking things I didn’t think it would ever go away. I lived in the fear of feeling like that again… then two months later I got a panic attack which triggered this episode that took me to that same feeling. People would start talking to me andI wouldn’t understand stand, everything was spiraling out of control, my legs felt like they were going to give out, I felt like I was going to collapse and was rushed over with anxiety. I couldn’t form full sentences and would just end up getting distracted and slurring words. My dad told me I seemed drunk. I was rushed to the ER. The doctors didn’t know what was wrong they all thought I was on drugs and tested me for drugs. I was in this episode for 6 hours… I thought I was going to be stuck forever. They gave me a pill and I was able to get out of it at last. Ever since I’ve been having extreme dejavús and headaches, I’ve also been twitching weirdly. Flooded thinking I have a brain tumor or something catastrophic. I don’t know if this is what it is… how do you get tested? What kind of doctor tests you?
Hi Sebastian
This sounds like an unpleasant experience.
There are a number of medical conditions that can cause symptoms similar to epilepsy. So if you want to find out what your symptoms are, it would be best to get a medical diagnosis.
If the doctors thinks it could be epilepsy, we have information on epilepsy and how epilepsy is diagnosed. This is relevant to the UK. It may be different in other countries.
www.epilepsy.org.uk/info/about
www.epilepsy.org.uk/info/diagnosis
If we can be of any more help and you live in the UK, please feel free to contact our helpline team directly. You can either email helpline@epilepsy.org.uk or phone the Epilepsy Action Helpline freephone 0808 800 5050. Our helpline is open Monday to Friday 8.30am until 5.00pm and Saturday 10.00am until 4.00pm.
Regards
Diane
Helpline Team
This happened to me !!!!!!!! I still don’t know what’s going on but I get that fear once in a while and headaches too
I would love to reach out to you and talk about this experience !
You should try and Indica strain as it will give you a body calming effect. I use CBD gummies to help with sleep, no THC as it's going to amp you up.
“Annie are you okay?”
Micheal Jackson is copyrighting you as a ghost lol XD great video though, I’m more educated now!
I was waiting for a comment like this 😂
Thanks so much from Colombia
I have ones that I will ask someone a question and then I can’t make sense of their answer. Like going through a tunnel with a cell phone…it’s choppy. That’s how I know one is starting. Then I can’t seem to speak my thoughts out. Then hours later it becomes a tonic-clonic seizure. Not one particular type of seizure defines what I experience.
Good video to people with focal seizures
'Annie (inconveniently sighs) I think you're having a seiz-jah. Sounds so apathetic. I'd rather hear Brent say 'BUTI DON'T AGREE WITH THAT IN THE WORKPLACE' 😂😂
Annie are u ok? Are you ok Annie?
@@lalitakellum6263 thank you. I was looking for the right spot to say this 🤣
When someone feels uncomfortable should inform someone around him or her
I feel this partially explains mine. I will begin to stare. But I can talk just can't keep track of what I am saying. I can't count to ten and get stuck mid scentance. I don't have them very often but they can last for hours but are really unnoticeable. I just act really out of it. Not many people know I have them because of how little they happen. In fact I am struggling to get diagnosed because people don't recognise it when they see it.
If you are still having issues take notes whenever you notice something for your Dr so basically a journal
I can feel it coming in my head, like a pressure feeling , so
I relax, and prepare myself to loose control over my body, I lie or sit down otherwise am going to fall, it feels as if am drawing back into my self, i feel like am in the Center of my head while it becomes dark around me. It takes all my energy away while its happening. I feel panicky and scared.
I can feel it in my head at first it’s like a some sort of pressure coming down and consuming me. My brain starts to shut of and I am very sleepy . I get very sleepy and tired when it’s happening. My head falls down to side when am laying down or forward if am sitting up straight, and my eyes close
I start saying prayers in my head because I get anxious.
I can hear things happening around me so am conscious but at the same time I am detached. I can’t talk while it’s happening nor can I respond to anyone or move my body, my body feels limp and weak.. i get a rising feeling in my stomach like when you are in a roller coaster and it’s going down fast, also i get this feeling of nauseousness in my stomach. I start to swallow a lot during it and for abit more after it. It last for about minute and a half max or 15 secs minimum, then I come back again slowly to myself. I feel weak and tired after it.
I feel fine 10 minutes later
When it’s for 15 sec or so less symptoms present themselves and when it longer like a min or so then all the symptoms show.
Or
Annabelle Lande what is witnessed exactly if you you don’t mind sharing hun x
This is what I experience below
I get a warning that it’s going to happen, the warning feels like am going to blackout.
some sort of sensation comes down from my brain and consumes my head and body.
It’s very hard to explain
I get a feeling of extreme dread and fear.
I have started to relax now, and prepare myself to loose control over my body, so I lie or sit down, when it is happening.
(My last one I didn’t have a warning )
The next stage feels as if am drawing back into myself as if am fainting, while my eyes become dark so I close them. Am still aware of what’s happening, I dont loose consciousness. This experience takes all my energy away.
My brain starts to shut of and I get very sleepy and beyond exhausted while it’s happening and afterwards aswell.
My head falls down to side.
I tell my self to be calm and that it will be over soon (in my head) I feel very anxious and fearful during it, a feeling like am about to die. I get a feeling like when your stomach drop when you are on a really fast rollercoaster going downward. It’s aaccompanied with a feeling of nausea.
I start to swallow rapidly during the episode and also a while after it has finished.
I can’t talk while it’s happening nor can I respond to anyone or move my body, and I don’t have the ability to snap out of it
my body feels limp and weak I can’t lift my arms or legs and I can only stare blankly. I don’t have control over my body so
I have to let it run its cause.
As am going more and more into this state, any noises, eg tv, any small talk, cars, radio or whatever else quietens down and for split second I dont hear anything at all but before long they start to pick up the volume again as am coming back to myself.
It lasts for about minute max and 30 secs min
I am aware of everything happening from start to finish
I come back again slowly to my normal self. I feel weak, sleepy and tired after it.
Hi Marian Abdullahi, I experience exactly the same symptoms as you have described in your comment section. May i know how often it happens for you and also if you’ve found some kins of food or medicine that reduces the focal seizures? Thank you, Ettiene
What about those person who has a Psychogenic Non Epileptic Seizures? Can you please make a video for this ? How can we help them?
Lol my home health provider found me walking into a wall repeatedly. She managed to get me to walk to the bed and lay down but apparently I tried to walk through my wall.
I hade a focal sezuire for over 20 minutes randomly in school and hade to go to the hospital
I know it feels like seizures inside but not on the outside...I press the center of my forehead and rub it and tap it and or I blink rapidly..I think it's a panic attack..my forehead feels squiggly and eyes get blurry and I get a fight or flight feeling and either pace or just zombie walk. I zone out and these last around 5 minutes at a time and then I'm just slow functioning for a long time afterwards
I started to have this at the start of 2020 and whilst being investigated to confirm it, it then strangely stopped on its own for about a year before even starting meds and now it’s a fight even with the meds despite increasing gaps as my medication has to keep getting upped until I find the right doseage
This is an excellent video!
What’s the difference between focal and absence seizures?
Absence seizures are when you pause your body for a few seconds and you might drop something and focal seizures are kinda hard to explain but it’s in this video
@@chachadaturkey8724 Gotcha! Thank you so much for taking the time to explain!
Focal you're aware absence used to be called petite mal. U black out for a few sec to a min or so
I am feeling of deja vu and after that heavy head ....which type of seizure is this ?
🎶 Annie are you OK,are you OK Annie 🎶
You have my maximum respect Dr Obulor,I want to appreciate you for all the awesome things you do to give people a second chance to live you are my hero thanks for putting up with the herbal recommendation to cure Epilepsy
Epilepsy doesn’t have a cure.
I have half absent half partial focal
Jesus Christ his posture is good
that's an odd detail to notice
@@bogusmcbogus2637 ik lol
Mean
@@geraldinepugh4093 how-
How is this seizure at its lowest. Idk now and then I feel confused. It just happen. My lips gets numb and my body is numb
Can some1 please tell me what this could be?
Talk to your dr
Can this lead or be connected to MS?, my sister had this at age 8 and is now 34 and has MS. She had MS symptoms for 9 years before being diagnosed 2 years ago.
Hi Ceilidh
Thank you for your comment. The relationship between multiple sclerosis (MS) and epilepsy is not well understood, but some research does suggest there is a link. But more research is needed. People diagnosed with MS often have other medical conditions, which may include epilepsy.
It may be a good idea to speak to the doctor as they can give individual medical advice.
Rosie
Helpline team
Looks similar however i seemed aware this was happening and still what people were saying.
that's what I have a focal seizure I do take my medication to stop having them it is lacosamide it makes you tried more easily and drowsily.
As a person having seizures or a person watching an unknown person having a seizure, how does a person know if they should wait it out as the male character in this video did or must come closer swiftly to ensure that the patient doesn't fall over unconscious?
Hi, that's a really useful question to ask.
Usually, if a focal seizure is going to develop into a seizure where someone becomes unconscious, this would happen very quickly, and you wouldn't usually notice the focal seizure itself. You might find our information about different types of seizures, which explains more about this helpful to read: www.epilepsy.org.uk/info/seizures
Carrying a medical ID can also be useful to explain what happens during a seizure and how to help: www.epilepsy.org.uk/living/safety-equipment/medical-id-products
I hope this helps to answer your question.
Mags
Helpline team.
As long as I've been alive, every now and then I've had this weird thing I would do and it's only recently occurred to me that it could be some kind of seizure. I'll be lying in bed, relaxed and with my eyes closed but not yet asleep. All the sudden I'll either get a weightless kind of feeling like I'm dropping feet first through an endless tunnel or a choppy feeling like the whole room is shaking back and forth quickly. This sense of shaking and dropping and movement and weightlessness is accompanied by a feeling I can only describe as a full-body high with like a light-headedness and tingle up my spine and a sense of euphoria for no reason. I know absolutely nothing about seizures, but can they only be had at night? I've never had this during the day. Also, I'm able to "wake up" whenever I want out of it and open my eyes and move around. It feels like pure ecstasy until I get this creepy feeling like it's about to "take over" and I get scared and move around to get rid of it.
lucid dreaming maybe? maybe see a doctor, i know narcolepsy can cause sort of delusions around morning/bedtime
I'm with the epilepsy foundation and an epileptic. Much of what you're describing could be for a multitude of reasons/conditions including epilepsy so it's best to see a neurologist. If epilepsy is suspected an epileptologist
My mom has these seizures and I can tell you that you don't just come out of it just like that.
Everyone is different
Yes. Can be
Well I have these, but I get attacked by dark forces and energy while I fall into these…. How can I avoid having these?
You can’t
Idk your beliefs but that sounds like it could be evil possession..
Same thing happened to me!
What about nocturnal seizure?
Do you have videos that can easily identify, learn more, and understand nocturnal seizure?
Whilst we do not currently have any videos covering nocturnal seizures, we do have a page on our website which covers the subject.
You can find it here: www.epilepsy.org.uk/info/seizures/sleep-seizures
So sometimes I tend to "zone out." One time I remember being in chemistry lab. I was standing at the front of the room, near the whiteboard and a friend of mine from across the room started waving her hands frantically at me until I noticed her. I have no idea how long I was standing there or why I was standing there in the first place. I don't even remember thinking about anything while I was zoned out. I was quite confused afterwards, but it didn't seem like anyone else noticed except her. I work with birds now and their random sounds seem to keep me from zoning out as often, but sometimes I just feel like my body and brain just disconnect. Also, I have always had the tendency to drop things. It just feels like my hand lets go for no reason. Any ideas?
Hi Jackie
Thank you for your comment. This sounds like a confusing experience.
If you have a diagnosis of epilepsy, if you haven’t already, you may wish to talk to your epilepsy specialist regarding your concerns. If you don't have a diagnosis, you need to get a medical diagnosis or explanation of what is happening. You would have to talk to your GP. If they think you’ve had an epileptic seizure, they should arrange an appointment for you with an epilepsy specialist. We have information on how epilepsy is diagnosed that you may find helpful. www.epilepsy.org.uk/info/diagnosis
As trained epilepsy advisers, we can give general information on epilepsy. But we’re not able to diagnose your symptoms. If your symptoms are related to epilepsy, it could be some type of focal seizure. www.epilepsy.org.uk/info/seizures/focal-partial
In these seizures the epileptic activity starts in just a part of your brain. You may remain alert during this type of seizure, or you may not be aware of what is happening around you. You may have movements that you can’t control, or unusual sensations or feelings.
Keeping a diary of these events could be helpful for your doctor. www.epilepsy.org.uk/info/diagnosis/seizure-diary
If you would like further information or to discuss this further, please contact our helpline team directly. You can either email helpline@epilepsy.org.uk or phone the Epilepsy Action Helpline freephone 0808 800 5050. Our helpline is open Monday to Friday 8.30am until 5.00pm and Saturday 10.00am until 4.00pm. www.epilepsy.org.uk/info/support/helpline
Regards
Diane
Helpline Team
@@epilepsyaction Thank you! I will look into it. This makes so much sense.
Yeah, it could be eplipesy, an absence seizure maybe. You should certainly get it check to rule out any neurologic condition!!
Does this also cause bad breath? Like weird medicinal or alchobol smell?
Mine takes just 1- 2 seconds and then comes the unaware urine.? How do you explain me this.!! Pls
I that to soon after the seizure. Only thing I can think of is that our nerves control our bladder to as we are having seizure just like it is control the rest of our muscles
@Ann mine happens when i have no seizure it comes out only like that instead of seizure. It’s just an inattention like 2 seconds when my nerve gives it. What I’m thinking is that it is better to have the urine than the seizure. I’m almost 1/5 years without seizure,since that time had only uncontrolled urine. Actually I’m aware when all this happens so i can save myself.
well done
I started my son on trileptal several yrs ago due to focal seizures but now he has cluster grandmals seizures should we ask neurologist for a different med ? And which med helps for grandmals thank you
We would recommend that you speak to a neurologist for advice regarding both of your questions.
I have seizures and i lots of deftly kinds of seizures so sometimes people don’t know
I seam to have my seizures when I am asleep and suffer bouts of confusion at other times when I have a sleep seizure I can wonder around not knowing who I am or knowing anyone around me I also do not like men and it can take me up to three days to get anywhere near right again but ever since my first seizure I have a constant ringing in my ears and I feel like I have a cloud in my head as well as arura migraines any info and help would be appreciated as I am a bit lost on what to do and who to turn to for help
Hi @oldbag3043 This sounds like an unpleasant experience.
Following a tonic-clonic seizure (www.epilepsy.org.uk/info/seizures/tonic-clonic) either in your sleep or a wake, you can experience tiredness, confusion and memory problems (www.epilepsy.org.uk/living/health/memory-problems-and-epilepsy). How quickly you recover will be individual to you. But it can take weeks. As these symptoms are related to you having seizures, the best way to treat them is to try stop the seizures happening.
Are you being seen by an epilepsy specialist so they can review your treatment (www.epilepsy.org.uk/info/treatment/anti-epileptic-drug-treatment)and look at other possible reasons for your seizures to still be happening? They may suggest altering the dosage of your epilepsy medicine or trying a different one if you are already on a high dosage. If you has tried various types of epilepsy medicines, it may be the specialist could look into other treatment options for you.
If you are not under a specialist, you will need to ask your family doctor to refer you. This would usually be to a neurologist. The ideal would be to someone with a specialist interest in epilepsy, as there are many different neurological conditions, and neurologists tend to specialise in different ones.
I wonder if you have an epilepsy nurse you can also contact.
You can talk to your epilepsy team about your vacant episodes and the ringing in your ear. Otherwise talk to your GP about the ring in the ear.
If we can be of any more help, please feel free to contact us again, either by email, live chat or the Epilepsy Action Helpline (www.epilepsy.org.uk/support-for-you/the-epilepsy-action-helpline) freephone 0808 800 5050. Our helpline is open Monday to Friday 8.30am until 5.00pm and Saturday 10.00am until 4.00pm. UK only.
Regards
Diane
Helpline Team
Hi. My partner has seizures where he wil repeat phrases like 'yeah sure, yeah sure' and laugh even if it has nothing to do with the conversation.loses all his colour. Clammy hands afterwards. Is this a focal seizure?
Dear Geraldine
Thank you for your comment. It's possible that your partner is experiencing focal seizures. But we aren't medically trained so we can't say for sure. If your partner is concerned then we would recommend he contacts his doctor. Our website also has more information about focal seizures which may be useful.
If you'd like to talk more about this or have any other questions please feel free to contact our Helpline free in the UK on 0808 800 5050. The helpline is open Monday to Friday 8.30am until 5.00pm and Saturday 10.00am until 4.00pm.
www.epilepsy.org.uk/info/seizures/focal-seizures
www.epilepsy.org.uk/info/support/helpline
Regards
Epilepsy Action Helpline Team
I am suffering from focal seizure or say simple partial seizure.... I feel strange feeling like "deja vu" then feeling of vomiting and heavy head and feel like my whole nurve are paining.... i am having treatment since 3 year ...will it completely cure ?
Thank you for your comment.
There are different treatments for epilepsy. How effective they are varies depending on the type of treatment and how someone is effected by their epilepsy. The usual treatment for epilepsy is taking medicine. This doesn't cure epilepsy, but aims to stop or reduce your seizures. Around 7 in 10 people will stop having seizures with the right epilepsy medicine. We have more information about the different treatments for epilepsy on our website www.epilepsy.org.uk/info/treatment/getting-right-treatment-care-for-epilepsy.
You might find it helpful to contact our Epilepsy Action Helpline team either by email or on our freephone 0808 800 5050. Our helpline is open Monday to Friday 8.30am until 5.00pm and Saturday 10.00am until 4.00pm. Where we will work to answer your question in more detail.
www.epilepsy.org.uk/info/support/helpline
Can someone help? I have seizures for 7 years, most of the time, I'll be stiff or rigid then I'll black out or I'll be unconscious. I was diagnosed with complex partial seizure. Somehow after taking some medicines for years, I'll have a seizure but I can talk to people while in a normal conversation. The problem is that I am not actually conscious of what I'm doing and after the seizure I don't have any memory of what I've done. Does anyone know what type this new seizure I'm experiencing is?
Hi,
Thank you for your comment.
I wonder if you have spoken to your epilepsy specialist or GP about this? They may be able to work with you to help understand what you may be experiencing and how they can support you with it.
Some people find their epilepsy can change throughout their life and they may start to experience different types of seizures. You may find it useful to read out information about seizure types. www.epilepsy.org.uk/info/seizures-explained
It might be helpful to contact us again, either by email or the Epilepsy Action Helpline freephone 0808 800 5050. Our helpline is open Monday to Friday 8.30am until 5.00pm and Saturday 10.00am until 4.00pm
I like this one
I think I may have Temporal Lobe Epilepsy due to the symptoms. Tried talking to my doctor about it. They've been useless. I was told 'It's unlikely you have it because it's rare.' Meanwhile, I have several other 'rare' conditions. Rare does NOT rule anything out. But it dies make many medics rules out a diagnosis before proper investigation is done. Today was low level symptoms nearly all day. Today I've had two BIG episodes. It's scary. So scary.
I'm so sorry about that. Could you try seeing other doctors? Especially a neurologist. That isn't fair to you at all.
Please tell me about any medicine for this
I'm with the epilepsy foundation and an epileptic. To date there are I believe around 30 meds for epilepsy but it depends on your personal situation so u should talk to your dr
Sir i have CPS epilepsy....there have any treatment?
Hi Chevy
Thank you for your comment. It would be a good idea to talk to your neurologist or doctor about treatment. They should be able to talk through the options with you. Our website has some information about treatment in the UK.
www.epilepsy.org.uk/info/treatment
Kind regards
Rosie
Helpline Team
Quick question; can they develop to grand mal’s?!
I personally think so. Some people have tonic clonic seizures (grand mals) that have a focal onset, so yeah, a focal seizure can lead into a grand mal
@@letsgolesbians9617 aw man. thanks for the information. that sucks... i hope i dont get one where i might put anybody or myself in a dangerous situation
@@brotherjoll1802 if you’ve only ever have focal you should be alright- I’m not diagnosed with epilepsy yet, we’re still trying to figure out whether it’s epilepsy or NEAD, but good luck to you
I'm with the epilepsy foundation and epileptic. Any seizure can become grand mal if the electrical signals in the brain misfire far enough to include both hemispheres
Let's just say I was at swedish hospital in medical coma for 30hrs so yeah
Did you have to say Annie are you ok?
ARE YOU OK ANNIE?
Yes.
Give us an example of what you would say?
Love the accent
My brother has these, he will lose
Consciousness and fall to the ground, grabbing at his clothes, lip smacking, Curiosity (switching things off and doing odd things), its horrible to see. No drugs have ever worked for him and he can have many in a month, doctors just say keep taking the tablets although they just dont help and have bad side effects. He will be better when he is dead, he cannot step outside the door without worry, which is no life for anyone. A debilitating condition with no cure, it has taken his independence and the level of care is a disgrace
Tell him to apply for a seizure alert dog.
@@saurabhtriphati7464 English please.
@@saurabhtriphati7464 I don’t speak double dutch.
@@saurabhtriphati7464 I don’t speak double dutch.
Baka po may makasagot saken dito. Noong highschool po ako sumasakit po ng sobra ang tiyan ko tapos namamanhid at pinagpapawisan po ako ng malamig hanggang sa himatayin na po ako nun, kwento po ng mama ko naninigas daw po ang mga daliri ko, hinihimatay po ako pero aware po ako sa nangyayari sa paligid ko pero di ko maramdaman yung katawan ko. Tas maglalast lang po sya ng segundo then after po nun dun po ako mapopoop tas nagiging okay na pakiramdam ko katagalan after magpahinga. Mild Epilepsy po ba yung ganun? Nagpa check up po kasi ako tas kwinento ko lang nangyayari sakin tas sabi po saken mag pa ecg kasi may epilepsy daw po. Ilang beses na po nangyari saken yun pero buti po ngayon hindi ko naman nararanasan ulit.
If someone is having focal seizure than at that time (after 2~3 minutes) he remembers everything that he did in this 2~3 minutes. Or not?
Plzzz reply
No. They may be very confused.
He is aware that he's having a seizure, but most of the time, he won't understand what they are saying to him and will not be able to articulate words, but he will not lose consciousness
I think i have a focal seizure because the right side of my body from the brain to the toe feels the electric shock sensation and its verv pain full, and i pass gas, then it becomes normal. If something similar happens with anyone, then please let me know
I can't explain how i feel 😢😢😢😢
I AM HAVING FOCAL SEIZURES FROM 2016 and I am on LEVIPIL500mg and PHYSCO SAFE MIMI 0.5mg.......BU WHY DOES I HAVE A SEIZURE WHEN I START LUNCH OR DINNER .....and particularly after taking the last morsels of food ???
Do you mean when you start making lunch or dinner? Or when you start eating lunch or dinner?
I get so so tired after my seizures 😢
So, Annie are you okay? Are you okay, Annie? Annie, are you okay? Will you tell us that you’re okay?
I've finally found out I have focal awareness seizures, I describe it as like a special lens on your camera , I know I'm in the world but can't make sense of it, if people try to restrain, talk with me they seem like horrid monsters and I go into fight or flight. However, even nurses and doctors don't understand it, I've had bad fights with them. I can "black out" but still go on walking, working etc, I've often finished up in odd places with no idea how I got there, bought things. Epilepsy is a very strange thing in the way it happens different from one person to another. The only first aid for any seizure is take away anything dangerous around them then stand back and let the seizure continue until it has finished, then reassure them, they will be badly disoriented
What if you're having something similar to this but your completely aware of where you are and whats happening? On top of also having an aura before hand usually and metallic taste or sensation?....I'm asking for myself. The idiot neurologist i saw nearly two months ago tried writing off my experiences as just being caused by bottled up trauma and told me to go back to therapy.
Hi Neelie
During a focal aware seizure (www.epilepsy.org.uk/info/seizures/focal-seizures), you stay fully aware of what’s happening around you, even if you can’t move or respond. This type of seizure used to be called a simple partial seizure. An aura is in fact the seizure starting in a single part of the brain as a focal aware seizure.
It may help to keep a diary of these events and try video some of them to share with your neurologist.
If we can be of any more help, please feel free to contact us again, either by email or the Epilepsy Action Helpline freephone 0808 800 5050. Our helpline is open Monday to Friday 8.30am until 5.00pm and Saturday 10.00am until 4.00pm. www.epilepsy.org.uk/support-for-you/the-epilepsy-action-helpline
Regards
Diane
Helpline Team
@@epilepsyaction I saw a Neurologist the first of Sept for the first time in my life. She was not helpful. She barely looked at my chart, didn't look at the journal I use to keep and basically said with out saying it directly, that it's all in my head. LMAO Which that is exactly the problem, it Is all in my head *rolls eyes*
Wasted half a tank of gas to get to her office and back home for nothing.
As a teen I would sporatically have these sudden extreme "cold chill" like shaking. these occured Very few and Very far between. Then about ten years ago they happened again only stronger and i could feel them internally like tremors. They stopped after I had my antidepressant changed so I thought that's what caused them.
But two years ago they started again. This time I can feel when ones going to hit. slowly at first, then the aura's got worse and the attacks stronger. i'm sure it is the right side of my brain that this is happening as when they edge in my left hand looses coordination and feels useless. the left side of my face feels sort of numb in just the skin. Then the rest hits.
what gets me is during the day i'll have a headache, just in my forehead on one side or the other. I'll also get a metallic taste/smell and ..this sound strange but with the headache, the headache itself feels metallic like how burning metal smells sort of.
sorry for the novel. i'm just so frustrated. Disability keeps telling me I can "Adjust/Adapt" and now i've been cut down to 3 days a week at work.
You're such a wonderful doctor and you always
make me feel so safe Dr Dagba on youtube Thank you for being the best doctor for me. thank you for curing
my epilepsy keep up the good work doc .
Help me help me seizure i can’t stop it please help me i wanna end it right now
For a seizure that isn't stopping, call for an ambulance.
@@epilepsyaction how do i End this once in for all i mean I’m taking medicine but i still want to end it once in for All I’m sick of tired of it
@@spencerstandardisthebestma6309 I'm sorry to hear you are feeling this way. In the UK, the Samaritans are available 24/7 on 116 123. It would be a good idea to speak to your doctor about how you've been feeling.
Annie are you okay
I have grand mal seizure
Is was scary for my parents
Once I had a seizure that lasted 47 minutes
🥺omg
I'm with the epilepsy foundation. If that were the case u would have serious brain damage if u survived status epilepticticous is often fatal
I declare healing to myself in Jesus name
Same here no one understands my problem..my friends even tease me that I'm a mental..but I believe in God ,he will change my life surely
prayers for y'all
This isn’t church.
@@danielledewitt1 true. but it's not NOT church...?
@@lovesstillalive3910 That’s right it’s not church. It’s youtube.
Let me take out a moment in my busy life to send a thank you note to a very amazing doctor who is full of love and commitment,Dr ogie is truly a blessing to the world thanks for curing my epilepsy
no way they did that joke 💀
I get deja-vus ...
Annie are okay are you okay are you okay annie
The recreation is hilarious
My partner has absent seizures
Hey friend i am happy now as i get cured from this disease with natural medicine you can also have a try to get herbal medicine
@@ryancosta4555 which one?
@@ryancosta4555 which one please tell me