Nurse With Endometriosis Shares Painful Journey To Diagnosis | TODAY
Вставка
- Опубліковано 3 вер 2019
- The 3rd hour of TODAY welcomes registered nurse Jenneh Bockari-Rishe as she discusses her tough medical journey and eventual diagnosis with endometriosis, a uterus disorder that affects one in 10 women worldwide. She’s joined by Dr. Iris Orbuch, author of “Beating Endo” and director of Advanced Gynecologic Laparoscopy Center.
» Subscribe to TODAY: on.today.com/SubscribeToTODAY
» Watch the latest from TODAY: bit.ly/LatestTODAY
About: TODAY brings you the latest headlines and expert tips on money, health and parenting. We wake up every morning to give you and your family all you need to start your day. If it matters to you, it matters to us. We are in the people business. Subscribe to our channel for exclusive TODAY archival footage & our original web series.
Connect with TODAY Online!
Visit TODAY's Website: on.today.com/ReadTODAY
Find TODAY on Facebook: on.today.com/LikeTODAY
Follow TODAY on Twitter: on.today.com/FollowTODAY
Follow TODAY on Instagram: on.today.com/InstaTODAY
Follow TODAY on Pinterest: on.today.com/PinTODAY
#Endometriosis #JennehBockariRishe #TodayShow
Nurse With Endometriosis Shares Painful Journey To Diagnosis | TODAY
This video literally brought me to tears. I’m only 21 and still trying to find a doctor to take my pain serious. I’m in the ER every month and it’s been going on for years
Have you ever tried out herbal medication it worked for me with no side effects whatsoever with the help of Dr Mabosa Herbal on UA-cam
same here but they ended up putting me on pain meds and because I didnt take them like they wanted me to they kicked me off cold turkey and I got really sick and still am getting sick because I still deal with the endometriosis til this day smh... it's sad because the doctors really don't care about the people only the paycheck.
@@SimplyASweetHeart oh so sorry about that that’s why you should give herbal medication a try it worked for me i assure you it will work for you too
Praying for your healing
See Dr. Cherie Marfori with GWU Hospital in DC.
I think doctors have a bias towards believing women when they say they’re in pain. People in general tend to think women are just emotional and/or wusses. So they usually just think we’re exaggerating when we tell them our symptoms.
Especially black women. It's been proven time and time again that health "professionals" often dismiss our claims. Supposedly we have super strength and higher pain tolerance than other women and should just deal with it.
@@Justnoone21 Don't blame yourself you were just a child. We know our bodies the best and if one doctor tells you no... keep fighting for your health until somebody is willing to listen and do something about it.
Thank you. Thank you for this because I’m tired of constantly explaining myself and saying “No, I’m really hurting”.
BR I This made me cry because this is me. I’ve fainted during periods and the doctors says “drink coffee and the pain will stop”. Then like two weeks before my period I’m getting sharp pains in my back and hooha. I’m like I’m tired of taking things just tell me what this is so I can fix it.
@@Justnoone21 i found a cure for mine. Got a CBD company to test their product on me and it worked. I'm doing a video on the company soon and will share it with the world.
She started crying and so did I...
Me too.
Me too I’m here now suffering I don’t want to live this way for ever
Me too. I know how she feels🥺
Cheers for this, I've been looking for "causes of cervical pain during intercourse" for a while now, and I think this has helped. Have you heard people talk about - Siyrooklynd Eminent Secret - (Have a quick look on google cant remember the place now ) ? It is an awesome one off guide for discovering how to end your fibroids problem minus the hard work. Ive heard some incredible things about it and my co-worker got excellent success with it.
i wanted to cry but even crying makes my cramps worse-
As someone with endometriosis and ovarian cysts, I totally understand the pain. The first time I experienced the pain I thought I was dying, I was in so much pain to the point where I couldn't even walk.
This is me almost daily now. I'm lucky to get a pain free day. 12 years later finally diagnosed and waiting for surgery.
You’re not alone there
Omg I feel this pain 🥲and doctors don’t take it serious
I just got this pain 3 days ago 😢
same!
My endometriosis went undiagnosed for about 4 or 5 years it end up developing into stage 3 cancer I had to have a full hysterectomy at the age of 28 with no children It was hard but it was my new reality.
I am so sorry! But don't worry sis you still can be a mother no matter what . 🙏🏾
Omg im so very sorry. I hope you are able to find peace. I dont have endometriosis but i am 40 with no children and 3 failed IVF cycles; so i know your pain of the reality that we will never have biological children. God bless you.
😥
I will have a kid for you
I’m sorry love! God bless you with baby bless 🙏🏾😘
I am a 27 year old woman who was just diagnosed for endometriosis 1 week ago by a male obgyn. My 2 female gynecologist disregarded my symptoms, my awful pain, my nausea, diarrhea with periods. He told me: you deserve the help you’ve been looking for for 2 years. It brought me hope and relief and hearing this woman talk, brought me to tears, thank you for sharing your story
Hey in endometriosis does our periods gets stopped pls reply yes or no
What were your symptoms?
Have y’all tried herbs? It works 💯, ever since I got herbs from this doctor to cure Endometriosis and my fibromyalgia is perfectly managed 100%, almost all the symptoms are gone and I don’t feel any pain anymore as I used to. I feel very free and normal again. I practically contact him for every single illness or symptoms and his herbs works all the time. He is open to WhatsApp on this +44 7441 443148
I got my diagnosis by a male gynecologist all the female ones were fobbing me off all those 15 years!!! Of having 3 week periods they accused me of lying!! They even said that my ovaries were being overworked due to stress!!! 😱😱😱😱 When it was not
@@taylorjane152 you trolls are getting really good at your spamming 😭
It's because they don't care. It makes no sense for gynecologists to be so careless. That is your one job. And if you are a black woman, it is worse. They care less.
charnae young Facts
According to them we don't feel pain at the same rate they do. 🤔 Oh and 70% of MD's think black skin is thicker than a white counter part
Yes. I tried taking birth control last yr for 4 months and i didnt know as much as i would have thought i was supposed to b told. The dr pretty much brushed off my concerns of break through bleeding. Like i felt as though i was lost. I just decided to lean myself off and probably nvr get it again.
charnae young exactly
I was just ready to right this exact comment
I used to vomit and pass out with the pain and after 4 surgeries I still ended up infertile, but now the mother of a beautiful daughter after adopting.
Endometriosis was never heard of here in Ireland so I got on the web and discovered myself what the problem was.
I am just waiting to get pregnant to get rid of mine...
@Mary Smith James 2 of my sisters had bad cramps n after giving birth dats it. Besides when my sis found out that she rid her pain after her 1st child, she told a lady fren about it n the lady got pregnant n dat was it for her pain. The lady i told u had it so bad, she would ave to get injection every month, as pills wasn't helping her... I mean that's what i ave experienced with my sisters n the lady, so i can't say it is going to work for others. Whenever i get pregnant then i will know for a fact...
+@Mary Smith James It didn't for me, am a 26-year-old wife and mom of 3 and just this week this demon took a hold of me. I honestly thought it was going to be my last day on earth.😭 I suffered so bad i couldn't walk, my mouth started watering then i threw up, i don't wish this on anyone!
+@Mary Smith James Yes, i am going to discuss it with my doctor soon.
O dear really feeling bad for you.
Her saying living with the pain made her not want to live.... I feel this i was crying in the shower in horrible pain this morning asking why me what did I do to deserve this 😭
It took me 13 years to get my endometriosis diagnosis. When you're in pain for so long with no one listening to you, it's a relief when someone actually hears you.
Going through this right now. When she cried, i felt that pain - most endo and adeno sufferers understand exactly what she feels. Frustrating to have suffered for decades and not get a solution. I'm still grappling with this. It is criminal, how little is being done to find treatment options.
Same... suffering from a year... Want to know the cure... medicine aren't working so well☹️
@@shanvi7011progesterone cream will help you
Could someone share what adeno is in reference to?
In my experience, I find that sometimes having a male obgyn can be better because they will run a battery of tests to find out where the symptoms are coming from. They ask more questions and try to get more information because although they study women's bodies they have no predisposition about what a woman is going through. Women obgyn's sometimes dismiss things because they are women themselves and think they know what's going on. You have to really push women for more diagnostics.
@@bricbrac28 wow! I'm so glad you were able to get that 2nd opinion and have that taken care of.
When I first got pregnant, my friend gave me that advice and she was right. I have the best obgyn he's funny, personable, runs tests and answers all questions.
@@msblessing2000 excuse me? A Male obgyn had the nerve of telling me that I was faking my pain
@@kimberly11091 Well I'm sorry you had to go through that.
My friends and I have had both male and female obgyn's and we stuck with the male. A lot of the female obgyn's said the exact thing your male obgyn said.
At the end of the day, I hope you were healed of whatever ailed you.
My worst gyn was a man. He doesn't even have lady parts & he had the nerve to tell me endometriosis is "annoying" but not painful. He actually argued with me over my symptoms because he claimed women don't actually know what they're experiencing so he's just "correcting" us on what symptoms we're feeling 😠😠
msblessing2000 it's true. it sounds sexist but it's true.
I have a friend who suffers from this and though she explained it to me I felt the need to search around for more information and get a further understanding of it. I wish you women who experience this didn't go through this painful discomfort.
You’re an amazing friend.
You're a great friend. It's terrible. I've told my husband & drs I feel like I'm giving birth to Freddy Kruger! That's how painful it is.
@@michellediaz2218
😔 I understand how it's severely painful and how crippling it makes you feel. I pray that you'll find what it is that will work for you in either eliminating or relieving this infirmity.
You are an amazing friend... i have endometriosis and the pain feels worse then active labor, i would definitely choose birthing my children again over having endometriosis that's for sure. Endometriosis can be very debilitating and disrupt your life, and sleep.
@@franchescavandyk8149 Thank you. We are still friends and some days are good and other days are rough.
I'm only 17, about to turn 18, and I've been experiencing all the symptoms since I was around 12. Doctors won't listen, saying it's a bad period. I want kids when I'm older. But this pain, it's just not worth it. It breaks me every month. Knowing I'm going through this for almost no point.
Keep trying, that’s all you can do I’m also 17 (turning 18 next year) and I also have debilitating period pain. I hope you get through to a great helpful doctor soon!
Freeze your eggs and get surgery
Same as you. I am 18 years old at the moment with terrible symptoms. Extremely painful cramps, and I honestly agree that it's not worth it.
But I do not want to regret it later on in life so I'm just sittin there takin the pain with no doctors taking the condition seriously.
I feel you, im 18 and was diagnosed with endo this year, if you have questions feel free to ask!
@@LexiNc8284how do you prevent it. Ive had painless cycles since I was 12 1/2 (when I started menstruating) now 14, and I don’t want to get it(endo)
When she said I didn’t want to live like that I felt it , my situation right now no one understands the pain
Even dr. also not understands.. i also suffer from this from past 10 years.. I'm only 27 years old.. it started when I'm in 12th class
Hugs to all ladies who has been dealing with the same pain. It's really exhausting.
Want to give also Hugs and Love to all of you who are in Pain .My daughter has also this sickness
it killing,I can't do anything
I suffered. Then I was told that cows get endometriosis too. Farmers gave them selenium supplements. I started taking it along with vitamin c and vitamin e. I then discovered that Brazil nuts are a fantastic source if selenium. I ate few daily with an orange. It helped me greatly. I hope this helps someone. Don't give up. God has the healing power.
Cows get endometriosis because of the food they eat which is soy based. Soy increases a hormonal reaction in the body that causes severe tissue growth especially the reproductive system. Virtually all the food products we eat today have soy which which increases the hormone estrogen. An over abundance of this hormone causes endometriosis and eventually STERILITY.
hurdlesharon8187 TRUTH!
At age 25 I was diagnosed with endometriosis and told I might never have kids. Long story short. My husband and I prayed and here I am with two beautiful children. I still get a lot of pain every month but yes, God is a healer. Never give up.
hurdlesharon8187 most women with the standard American diet are not eating large sources of soy. I am vegan now and soy does not cause me any type of menstrual issues. Dairy is a cocktail of hormones and it causes lumps, cysts and a host of hormonal issues in women. There’s a difference between a cow eating soy when it should eat grass, and a human eating soy.
Thank you so much. I will try this for my endo.
Endometriosis is the worse 🤦🏽♀️
I just had my surgery 5 days ago! I dealt with this disease for years! Makes me cry just talking about it. God bless you..
Hey sorry You went through this hope you are doing well. What is ur advice for surgery, mine just put me on birth control and told me to take Advil 🤦♀️
How are you feeling now?
Seriously started crying, and seriously still am. I have all the symptoms and have been in so much pain for the longest. I was scared to have the talk with my husband, but I think I'm ready now. I didn't want him to feel guilty, because it's not his fault it hurts so badly. I guess I forgot that it's not my fault either.
It's no one's fault. And ao sorry your going through this pain. Hopefully you can get it figured out so you can live a better quality of life. Prayers to you 🙏
Progesterone cream will help you
I’m tired of being prescribed birth control for my symptoms. There has to be an easy solution through medication that could help us, and they just don’t care. Endometriosis is CHRONIC and dehabilitating, and the pain is unbelievable. It’s like our body wants to punish us and so does the rest of the world by not giving a crap.
Best comment ❤
Or worse being told it's psychosomatic anxiety. Happened to me by 2 physicians
Wow. No one knows the pain we go through. We are Endo Warriors. It took a year for me to be diagnose. I found me a new OBGYN and all I can say is I thank God for her. She gave me hope I’m now getting back to my regular life. I am a ENDO WARRIOR 🎗🎗💛💛
That is beautiful Allegra! I am glad it only took you switching your doctor once to find someone that would listen to you.
Diagnosing Endo is already hard enough, I can’t even imagine what it’s like to be a black woman and not have people take your pain seriously
Smh.
Have y’all tried herbs? It works 💯, ever since I got herbs from this doctor to cure Endometriosis and my fibromyalgia is perfectly managed 100%, almost all the symptoms are gone and I don’t feel any pain anymore as I used to. I feel very free and normal again. I practically contact him for every single illness or symptoms and his herbs works all the time. He is open to WhatsApp on this +44 7441 443148
How about just being A Woman no one believes...White Women have the Same issues.
Wow
ALL WOMEN MATTER tf is wrong with you
I was just diagnosed this week with stage IV endometriosis after doing exploratory laparoscopy. I only saw OB/GYN specialist because I had infertility problems. If I didn't have surgery, I would have never known and I am a nurse also. Crazy! But so true!!
@@sirid2987 I've had excision surgery thank goodness from some good surgeons where i live. My symptoms are much better. Hopefully I can get pregnant soon and yes I've heard excision is the best way to get rid of endo.
What symptoms did you have?
@@gaentstudio3228 Hi, can you please give me your Doctor’s address?
Natalie, is the incision surgery something my own OB GYN doctor can do? I’ve recently just had a laparoscopy to diagnosis my issues and just found out I have stage 4 endometriosis and my doctor had to remove my right falloupian tube from how severely damaged it was due to endometriosis. It’s been an emotional rollercoaster.
Pretty much endo is only really diagnosed for sure during exploration surgery
Its funny how Jenneh is the one who suffered and had the disease but yet spoke the least. Lets start letting the patient speak more, its their body. The doctor can only speak from her text book and what she seen clinically but yet we have a patient who went through it. I think Jenneh should have been the one to speak on signs and symptoms, its HER diagnosis.
Trevor George yes they started first talking to the doctor when the patient is the one that is actually going through the pain, the doctors are not always right, smh, doctors practice medicine it’s not 100%
@@rhirhi7260 not only that is she is expert as "patient" bit also a qualified nurse.
@@povertron Excellent point
I started bawling my eyes out, when she said that she didn't want to live, if this was what she had to live with. I felt that so much, as that is where I am at right now. It took me over 10 years for a doctor to even want to check me for endometriosis. I only got diagnosed earlier this summer and my intestines have now fused with my pelvic cavity. I have had 3 months in constant agony and I am not sure I can take it much longer. The dream of having kids has been shattered and now I only dream of one day hopefully having surgery and regaining a bit of energy. I would be more than happy to just be pain free every other day. I lost my job because of this, and honestly everything just sucks. I am going to see the doctor who diagnosed me tomorrow, and hopefully she will refer me to a clinic where I can start to get some sort of treatment if possible.
Hope you get treatment soon! ❤
How did things go for you? Did you get the surgery? ❤
Sending you love x
20 years before my diagnosis, destroys lives, marriages, and careers, I was a Registered nurse for 20 years. Years of gp visits and consultants. Final surgery when discovered was attached to organs everywhere in abdomen. I am so glad there is more awareness of this disease now 🙏
At 48 years old I’ve been suffering over a decade. I knew something was wrong and this can’t be normal. I finally got a diagnosis. Now I’m going to solve the problem to live my absolute best life now. Thank you.
I just got my diagnosis this week after a laparoscopy. I waited 15 years for this diagnosis, i am so relieved that my Pain Can be explained🙏🏼 i hope more doctors will listen and not dismiss!
I have been living with my pain from the minute i started my period until this day n i am 30...
Hello, I have a product that could help you
Same here.
@@lakeishajackson7370 pls what product?
@@MonaDanna I used Jewel sanitary napkins, it reduced my cycle from 10 to 3 days and I have less cramps, if interested to try go to www.justicewithlakeisha.com
You can also subcribe to my youtube channel as well
For more information go to www.jfmj.org
Lakeisha Jackson I call it weed.
I think that’s what I’m suffering from. Since my menstrual started at age 12 I get crucial pain, body over heats, and throwing up before period comes and during. 26 now and still dealing w. It
Go to a gynecologist and suggest that you might have endometriosis
I have a product that can help you
I am the same. I got my period at age 12, and i have been in awful pain. I throw up, my body over heat, back pain , can’t even do anything. I have been to emergency so many times but no doctors ever talked me about endometriosis,
Absolutely my symptoms were all written off as IBS for 20+ years. Nausea. Constipation. Diarrhea. Pain. Bloating.
Allison Baxter omg now I’m scared bc I’ve been diagnosed with IBS and I have those symptoms and my periods are bad
I’ve been diagnosed with IBS 5 years ago and my GI doc referred me to a gynecologist. I never went, but I honestly regret it. My periods can be pretty painful, not to the point of feeling nauseous though. I’ll cramp for the first 3-4 days of my period. My hips become sore and occasionally my back would hurt too. But I do get pms, sometimes the mild cramps would start as soon as a week b4. My body is weird though cuz my cycles are hella inconsistent, usually very long (30-49 days.) My period itself is 4-6 days. GI issues off period, but it just intensifies when I’m on my period. I’m not sure if I have endometriosis though.
RawrLyss you should ask !
Darker Image I definitely will go see a gyno as soon as rona settles down. Tired of my body 🙄
Have a look on the UK endometriosis website, there’s been a new link found between not only endo being misdiagnosed as IBS but also people with Endometriosis developing IBS through the Endo
Jesus she's beautiful
I’ve suffered with unbearable, heavy periods for years. I would have severe abdominal cramps, diarrhea, nausea, even pain in my legs, no amount of pain killers would even make a dent in the pain, & I felt like people thought I was exaggerating the pain. I ended up severely anemic needing blood transfusions, iron infusions, left me having a hard time breathing, insomnia, irregular heartbeat, extreme fatigue. I would go through 3 large pads & 10-12 ultra Tampons in an hour, I asked a previous ob years ago if it could possibly be endometriosis, and was ignored. I finally caved & had a hysterectomy in December. Just found out yesterday from my ob’s Pa, that I had endometriosis all over my uterus & they also had to remove my tubes as it had spread to there. I’m so frustrated that this maybe could have been dealt with years ago. It’s sad to say but sometimes you have to be your own advocate.
Brave, beautiful nurse Jenneh . I hope she gets better. Blessings to her, and to anyone suffering this terrible disease.
This is me right now. My mom had stage 4 and I now have it as well. I’m only 17 and it hurts so much. It feels so hopeless
I am so sorry you have to go through this. I at this moment am in the process of being diagnosed with my chronic infections and the pain is unbearable. I hate how people expect us to live like this. It is utterly painful knowing that our lives could suffer longterm (infertility, loss of certain bodily functions etc) with these conditions. I am so angry at the world. You are not at all alone.
Black women if a dr denies you treatment then ask them to record it on your health records and then report them. Im sure they will do something about it then.
It happened to me too and I'm not black
I will do that. Watch I get all of them fired. I don't care if I see them on the streets begging for change. If they see me and ask me for anything I will say "Sorry there is nothing I can do for you."
Irony.
@@mbererm It happens more often to black women. That is not to take anything from your experience, but in every arena of care, black women are neglected and our mortality rates, particularly maternal mortality rates prove it.
Queen Dionne I’m not discrediting what you’re saying. However this is a video about endometriosis. She talks about the lack of knowledge there is about the condition within the medical industry. She herself, who has a medical background, was not aware of the illness up to her diagnosis. Her experience is my experience and the experience of many, many women who have the disease.
@@mbererm 👍🏾
I've been in excruciating pain for 3 years and today I just scheduled my laparoscopic surgery for endomerriosis. Its hard for doctors to listen to patients especially black women. I actually studied this condition for years and I kept telling my doctors this really could be it and they never looked into it. I actually had said it could be umbilical endometriosis which is rare and 2 days ago I had an MRI of the abdomen and pelvis and they found a 1.8cm nodule in the umbilicus area. Now we are scheduling a surgery to remove the noodle and check for endometriosis in the pelvis and umbilicus. I studied my symptoms and medical research over the 3 years and I am finally going to get confirmation that I was right. I'm so relieved.
Ive self diagnosed more than once. If our doctors actually did their job snd gave a crap we wouldn’t need to do this!!
I have been suffering since middle school. I vomit and have diarrhea at the same time. I can’t eat food and cannot keep fluids down. I basically live in the bathroom and scream all day. It is very embarrassing because nobody understands what causes pain every month for me to scream. So I suffer in silence until I live with my boyfriend he is so shocked every month at my pain he even asked if he can drive me to the hospital. When I was in middle school I asked my doctor what can we do and all she said was she can prescribe me painkillers. I gave up since then but now I realize something really must be wrong because I still have not met anyone with this pain like me. I will try to see another doctor until I get taken seriously
I’m going through the same thing rn. Doctors don’t like curing people they just want the money from “treating” them.
Please don't give up! Don't just go to another doctor... Go to a OBGYN specialist in your area. Those are the doctors that have spent the time studying disorders.
@@cringefest7841 Please don't give up! There are doctors out there that will listen and help you. Try finding a specialist in your area.
Hi, @Christina Charles. This strong pain isn't "normal", but very "diffused" and a lot of girl suffer with it, but you don't have to be afraid, because you can do a lot to prevent and avoid your pain. I'm a nurse, from a lot of years I've been studying the severe menstrual pain and some methods to prevent it, first by means of an easy progressive thermal stimulation and after, if necessary, by a particular controle of your food. The cause of your pain must be studied, understanded and resolved. You can write to me by my email osv1950@gmail.com : we can speak better than here and I will send you an attachment (here not possible) of a first method, very glad to help you not to suffer unnecessarily next times.
You need birth control to stop your periods. My gynaecologist told me that’s the only treatment.
Shes so pretty
Poor health and no end in sight does deteriorate you mentally and physically. Glad she got to a solution.
This brought on a lot of emotions I was diagnosed with stage 4 endo 2 years ago and have been struggling to get the help I need to get my life back. So thankful endo is getting more attention so us who suffer daily can get the care we need and deserve.
I was diagnosed when I was 19 . And had surgery. I’m 28 now been free since then
You are so lucky you were, younge that's why you feel naw
Lucky you
Sorry if this is imposing but did it leave you infertile
Im 20 and I'm sure almost positive I have something like endometriosis... my periods are ridiculous!
This pain is unbearable I have suffering with this pain for over 6 years. Have been to many doctors and have not been given anything but birth control which i refuse to take.
Have you thought about going to a GYN Specialist? It wasn't until I went to a specialist that I was diagnosed.
@@HealthyKyla what was their treatment besides surgery?
@@Evettecord There isn't any. Doctors will throw birth control at it, but it doesn't help. There is no cure for endo.
Please go to the gynaecologist as soon as possible to get it checked out.
@@AA-yk4dy it is really stupid that we are in 2021 and still there is no cure for an illness many women suffer from. It almost seems like world doesn't care about women at this point.
Thank you for bringing awareness to this. I can literally only say thank you and I hope more people and doctors will take it seriously.
She said the symptoms omg I have al of those 😭 I’m on my period I’m in so much pain I’m shaking I just want it to stop
You have to get surgery.. it’s the only way because it only gets worse because it grows.
Just got diagnosed with endo after 6 years of searching for a doctor to help me and 13 years of heavy bleeding and pain. If I would have stopped at doctor #1 I would have died 6 years ago. If something feels wrong keep fighting , keep searching help is out there. ❤
Wdym died??
Died? You had endometrial cancer?
I have been diagnosed with endometriosis since I was 17. I suffered since I started my period at 13. With no diagnosis. But I've had 3 surgeries since then. And I'm still suffering. There's no cure for endometriosis. But thank God she has relief. Bc so many people just say go have the surgery AMD you'll be cured. But that's not always the case. God bless her so glad she's not in pain now. Hopefully it will last. 🌺
I’ve been in so much pain since having my first born almost 2 years ago. There are times while on my period where the pain is so severe I fall to the floor and want to vomit. Exact symptoms! Thank you so much for posting this video. I have not mentioned anything to my doctor bc I was scared they’ll just say I was being dramatic. Thank you for opening my eyes. 😢
I was able to mange my endo with diet and exercise! I was able to conceive a year later and now have a healthy 5 year old. I did research on what foods to stay away from and what to eat more of.
Yup! A lot of women don't realize that diet plays a critical part in the management of the disease. I too suffer from it. It took me years to figure it out and now I can't get a doctor to listen to me. I have been able to control my symptoms with a drastic change in diet however, until I can get a doctor to listen, I remain infertile at 40 with weight issues and no answers from anyone (although I work out religiously and eat like a bird) among other symptoms. In any event, I am glad to hear I am not alone in my struggles. Stay hopeful ladies but keep your diet plant based, low carb and eliminate estrogen rich foods and chemicals. It does help over time. God bless 😘
Can you ladies elaborate on what changes you made to your diet please? X
Yes more info of diet changes!
Can you elaborate on what diet changes you made? Thank you!
I included soy in my diet (non GMO) and flax seeds. I'm also vegan and eat quite clean but I can say that soy and flax seeds work best for me. I don't eat sugar or anything that can cause inflammation. Hope this can help someone. Wish I knew all this 20 years ago.
It took me 25 years to be taken seriously and diagnosed. You do start to feel hopeless. When she started crying, i did too. I had a black woman gyno. She downplayed my pain until i started bleeding from my rectum. Surgery happens(by a male surgeon). All my organs were fused together, i had thickscarring from previous c sections, adhesions had pulled my intestine to my belly button and..adhered. also found cysts and endosalpingiosis as a secondary diagnosis. I cried so hard. I wasnt imagining it ❤❤❤ also...shes absolutely gorgeous.
Praying for great health, and healing for any women who experience or suffer with this pain or any pain and discomfort 🙏🏿♥️✨
Oh yes they're on point I have this condition. Painful periods, bowel symptoms & infertility & all the others mentioned in this video. It makes you sick for a week or 2, literally you feel like you can't function daily & in alot of pain & discomfort sometimes. I did the surgery, injection treatment & birth control. As long as you have ovaries it comes back because the estrogen is to high.
yes estrogen feeds it
Estrogen is high because of a high consumption of SOY virtually all foods are SOY based which increases estrogen in the body and is also a hormone disruptor which will eventually lead to fibroids, endometriosis and ultimately sterility
If you have excision surgery, endometriosis should not come back even with ovaries. You need a surgeon who is skilled specifically in excision. There aren’t many in the US and fewer world-wide. The Facebook group Nancy’s Nook has a list of surgeons committed to excision treatment and recurrence is less than 20% with these surgeons. I’ve had 12 surgeries total. My last being with Dr. Mosbrucker in WA state. I’d suffered for 25 years. Now I live pain free.
@@amyallen3269 thank you Amy I'll look into that & see how it goes. So your saying I don't have to remove my ovaries?? Which is good. Have a blessed day.
@@hurdlesharon8187 This is new to me I don't like soy but as you said alot of foods has soy in them, how sad. I do read ingredients so I'll check up on that & watch further more than I'm already doing what I'm eating. Thank you have a blessed day.
Wow crazy my friend had this is the 1980s here in Portland Or. She was diagnosed and treated with orthosopic surgery way back then. What the heck? That's 35 years ago.
Thank you for shining a light on this. As a endo warrior myself it means the world to me! ❤️
I recently get rid of my Endometriosis through herbal supplement i ordered from Dr Aluda on UA-cam..
Mind blown. It's a minor miracle that this doctor came out and admitted her medical training let her down! I take my hat off to her. She must be a very aware doctor. Now good on you!!
My endometriosis was not diagnosed for years - 30 years later I am finally diagnosed. However, 20 years later there was some diagnostic inkling. This was a really good interview. Good on you for speaking out to the lady who suffers it. We all know how you feel!
My best friend just had the same thing happen. She got diagnosed with endometriosis yesterday after 4 years of pain and over 10 different doctors and multiple gynaecologists. She had surgery yesterday. I'm a nurse and know about endometriosis, and have always thought that that was the problem. They even removed her appendix a couple years ago thinking she had appendicitis. Had her on long term NSAID medications which is terrible for your stomach. She finally found a gynaecologist that helped her and put her on the list for surgery within 3 months. It's not just a racism problem it's the fact that people don't understand how debilitating endometriosis is. It's not just period pain, it's severe pain and it gets worse. My friend has been in severe pain everyday for the last 6 months. Plus all the other symptoms on top of that she has barely been able to get herself out of bed.
Hi, I'm diagnosed with ibs but not very convinced as I have been going to ER a few days before my period starts. Symptoms like vomiting and abdominal pain was really bad. I'm having symptoms such as nausea, brain fog, insomnia everyday for the past 2 months. One of my gut doctor said it could be long covid. I'm really hoping you can give me an insight of what's ur friend's daily symptoms (even when she dun have her period?)
I went through a lot before my diagnosis! Please go until you get a diagnosis!!🙌🏽
I’m going this right now. No dr. Hears me . It’s absolutely the worst.
Annabel’s Mother hi there. i want you to know that i know exactly what you’re going through. i know i have endo and no doctor believes me. i’m actually seeing my fifth gyno tomorrow and as much as i pray that he’ll believe me, i know in my heart that he won’t. i feel your pain. keep fighting. we can get through this. we’re women and that’s the worlds greatest superpower!
@@watchmyshatterededgesglisten how did it go?
@@Rachel-qx8gn thank you so much for asking. it went just as well as all the others did, and all were train wrecks. i’ve seen three more gynos since and no one has believed me. it’s beyond devastating not being believed and being brushed off as just “too sensitive” or “not strong enough”. in the new year, i’m going to see an endo specialist. it’s really expensive and my insurance won’t cover it but i don’t care anymore. this pain has controlled my life since i was twelve (it’s been nine years). i can’t live like this anymore. wish me luck in the new year that all goes well!
Was just diagnosed after 6 years of issues. Wow this is good info to help others
God Bless you Jenna
I cried along with you..my cramps/chronic pain is so bad I definitely the if this is what my life is going to be then I dont want to live
Don't give up Lisa! There are so many women and support groups out there that want to help you. I have Stage IV Endometriosis, and I just learned the steps I need to take to find relief.
@@HealthyKyla
❤
I truly am sorry for the people that have it. I’m only 12 years old, I don’t have endo but I do suffer from intense cramps myself! Cramps are no joke! I’m praying for people that have it!🥺
I have endometriosis, fibroids and one block tube due to the endometriosis i wasn't able to get pregnant. Permit me introduce you the herbal mixture that cured my endometriosis in a period of 14 days. I am a living wit- ness of this wonderful work of this doc. For information on how I was cured, contact @doctor_saibu now by email drsaibu2@gmail.com for more details on herbal medications and get the cure completely @doctor_saibu Herbs are also effective in curing the HIV, cancer, hepatitis, fibroids, HPV, etc .
I am happy to finally see more coverage on this subject. I had extremely painful endometriosis that started at age 11. I begged doctors to give me a hysterectomy at 19 and no one would do it because I didn't have children. I tried to have children with my husband and in the end we were divorced bc I couldn't bare his children. I finally put up a go fund me at the age of 32 to just pay out right for my hysterectomy and I am so happy to say I am 80% pain free. I realize now that a hysterectomy isn't a cure since I still get reoccurring cysts that burst, however that beats what my life once was. I wish the best to anyone struggling with this awful pain. Just know you are not alone.💜
Miss Nachami try reading sacred woman by Queen Afua.
But they will give ANY MAN A VASECTOMY!!
Currently laying in bed crying and in pain rn and trying not to throw up because of how painful this is, my lower stomach and lower back are most affected and it feels like I’m dying quite literally😭 Just trying not to pass out😖
Hello sister use Dr Omo herbal medicine very powerful and active am free from pain after using it will help you...
@@rhondapagan5759 I’ll definitely look it up tysm girl🤞
Reach him on email and order.
Thank you for explaining how debilitating it is. It literally does make you want to take you’re own life it is a horrendous thing. It’s on par with cancer level pain apparently and it’s dismissed so easily. My husband doesn’t care he has no clue why it past few years whatever kicked it up a gear to 6 hospital stays surgery fatigue leaving work because inability to handle it just will not listen. So so frustrating.
I have lived with this as long as I can remember and now I am told just to learn to live with such chronic pain that has even affected my nerves
Hello my sister use Dr Omo herbal supplement it will help you get rid of them naturally his Herb's are very active
I have always had painful periods and finally at 37 I ended up in the ER a few times. I have endometriosis and I bleed very heavy, vomit of the pain and roll up in a ball for 3 days every month. I can’t work, I can’t workout, I can’t even eat and the hospitals Doctor say they can’t prescribe me pain medication. I can not continue to live this way. This is a very real problem people. I’m glad that this young lady is being awareness to this horrible disease .
As a nurse who didn’t get diagnosed until 5 years later, I’m so grateful to be working with a doctor who is finally helping ❤
I can relate and it seems like nobody cares....her story is my mine. God bless ❤️
Stage IV Endometriosis Mom Here! This interview is so powerful! For the ladies in the comments that think that there is no hope to living without pain, there is! If you doctor is not taking your pain seriously, find a specialist! Also, the right vitamins can truly relieve you of pain! I recently did a video sharing the ones I use. Just know you can fight this!!
Please share what you take
Pls share the vitamins
Wonderful video! Thanks for this interview ❤️💓🙏
I suffered from endometriosis for 8.yrs before I was diagnosed. I started the pain from my very first period. I finally had a Laparoscopy at the age of 20 while I was a nursing student. I even lost a job due to my pain. I finally had a hysterectomy when I was 36 yrs old. I also had 8 losses due to endometriosis. I felt better since the hysterectomy. I never knew anout an association for my disease.
It took 9 years for my diagnosis to be done & still on the journey, in Kenya many doctors, medical practitioners have no idea how to even deal with a patient.
It took me so many doctors to get my diagnosis! When you all for tests and doctors decline ask them to note why they chose not to do the tests they usually end up doing it
10years here complained on all sorts of deaf hears was told this was my normal 😳😳 I had a 16day period and passed out at work😩🤦🏽♀️ finally found a doctor who was like this isn’t normal not for you or anyone. (I love her it’s like drowning and someone giving you their hand) 😢😢😢 got my diagnosis and doing several treatments and we’ll see where this goes 🤞🏾🤞🏾🤞🏾
Thank you for sharing Jenneh ❤️
It’s interesting to hear physician opinions. I’ve smas and endometriosis. By far it’s the most episodic and erratic feeling. Today was a day where I couldn’t get up. Stuck in a malaise of pain.
The first time I learned about endometriosis I was in eighth grade age 12 and I’m 29 now... I’m shocked that it’s so many women aren’t learning about this
I went through menopause a year ago. After decades of pain so severe I can’t describe it. It affected every aspects of my life. And never was treated because it’s just pain.
Did your menopause lessen the endo pain?
SUCH AN IMPORTANT CONVERSATION.
As women our pain is almost always blamed on anxiety. Doctors, even female doctors, rarely take women's pain seriously.
I cried watching this. It’s not only me! Other women suffer. Ive been turned down so much. It is criminal.
That tear... I felt it. Endo pain leaves you traumatized because feel the worst kind of pain that even years on thinking about it can make you cry.
I feel like these days most doctors don't seem to care. I've only had one Doctor In my lifetime that would go above and beyond for her patients and sadly she moved. I remember I was having tremendous pain and swelling in my throat 2016. I couldn't talk for long, my voice would disappear which lead me to get fired from my call center job. I went to an ent dr, but he kept telling me nothing was wrong. I kept going back n he got irritated with me. I found another ent and he told me I have tonsillitis. I had to have my tonsils removed, and I feel so much better. Now I'm going through tremendous physical pain and I don't know why. No one can give me an answer, and they don't even bother to check the root of the problem.
It took my doctors over 30 years before they finally diagnosed me with endometriosis and the worst thing I had an endoscopy to remove the endometriosis but now another few years later and I'm almost certain it's back. The pain is becoming unbearable that I can't leave the house from severe pain. Even applying heat isn't easing it and I'm on strong medication for my nerve damage in my spine and its not easing any pain in my stomach. It makes you feel like losing the will to live its just awful. I pray one day to wake up completely free of pain because this isn't a life and if I were an animal I'd be put out of my misery. Honestly anyone who doesn't believe a woman going through this needs a reality check. Endometriosis is an awful disease to have plus the fact it stopped me from ever having children to feel like a complete woman its a cruel disease.
Same here sister. 30 years later I finally have a diagnosis. Youre not alone hey. Please hang in there.
Ive been invalidated too, by people who needed a reality check over the years.
Im trialling cbd and medical cannabis oil right now. I have only just started. Its meant to reduce the pain and also seems promising to reduce the growth or stop endo growth. I am not an agent, lol, just trying to help others. Its too early for me to tell if this will help me but ive heard good reports from other endo people that its helped them.
Ive never had any surgery for this. I have a 5 cm endometrioma. A good diet has helped me also. No gluten, limited dairy, and limited sugar. Plus raw cruceriferous veg, big salads, tsp fresh grated ginger per day (proven to be very good for counteracting ovarian cancer). So far my endometrioma hasnt grown any further and my blood levels improved a lot! But it takes time - years - so you need to kickstart your body in other ways too. Supplements etc. Etc. Lemon balm powder will get rid of any viruses that sit in your pelvis too. I also did intermittent fasting.
I had been suffering pass outs and chronic pain and unbearable fatigue and awful periods before any doctor could tell what my problem was. I really identified with her when she cried. Its just you get blamed at work and society for sth thats not even your fault!!!!
I was just diagnosed with endo yesterday!! It all makes sense now as to why I have constant pain during and around my period! My dad used to say don’t be soo dramatic!!! I must of had it for years!!!! I defo don’t have it reallly badly cos I still maintain a pain free life but that could change! I don’t really have bad period pains like I did when I was younger! Maybe I have it milder than others!!!
I experienced the same problem and dealt with it for over 10 years of the same things. My doctor told me that she didn’t believe me after I had been seen by her for over a year and that she didn’t experience it every month & she wouldn’t do my hysterectomy. I got a second opinion and they told me what was wrong with me & they did my hysterectomy. I had fibroids and another form of endometriosis. My uterus was 6.6 oz in weight. Six times the size of a normal uterus.
Endometriosis is getting a lot of recognition now which is good but what about PCOS? Similar symptoms painful periods, infertility, bloating, weight gain, high testosterone levels, acne and so much more.
Kay’s Lovely Boutique oh GOD and don’t forget about the “facial hair”
313angie1 absolutely!
Recently diagnosed with both!
@@313angie1 That isn't the most important symptom to mention. It is sexist to suggest that it is important.
Pcos is more widely spoke about than endometriosis
Endo is not a uterine disorder... it is an ectopic condition where tissue SIMILAR to the lining of the uterus is found outside of the uterus. Hope you can spread the correct information.
L. E. So is hysterectomy the answer please if u have some knowledge please share I am in terrible mess
Mary Real if you are on Facebook join the group called Nancys Nook. Look up Dr Redwine here on UA-cam and listen to his 1989 interview about endometriosis.
jenuhful thank u dear
Mary Real hysterectomy is not a cure for endometriosis. It may help women with adenomyosis but if you have endometriosis (where lesions are located outside of the uterus) then it does not necessarily solve the issue of pain especially if the lesions have not been excised and have been left in by your surgeon.
Mary Real First off, understand that your ovaries produce the hormones that cause endometriosis lesions to flare up. A hysterectomy will not cure endometriosis but if the ovaries are removed, it will prevent you from having further flare ups and pain. My doctor performed a hysterectomy after my endo was found. While she was performing my procedure, she also removed all of the endometriosis lesions she saw. I no longer have endometriosis pain, although also no longer having ovaries caused a another host of problems. If I had it to do all over again, I would have sought a second opinion because having a hysterectomy at the age of 32 wasn’t the best decision, in my case.
Every doctor I go to and tell them I have abnormally painful periods, I bleed like crazy, I have terrible back pain and would dread my period because I knew I wouldn’t want to do anything for days. Not to mention pain with penetration, bladder problems everything in the book, And they always say I just have a heavy period and need birth control. Never fails and it’s so sad because it really takes a toll on me and it’s something that I would love to never have to worry about again
Endometriosis is so painful and even resulted in an ectopic pregnancy for me. I have dealing with pain since i was 15, and now at 28, infertility as well. I’ve had two laparoscopies and i’m due for a third to remove more lesions. It’s so so hard and it needs to be taken seriously. It greatly decreases your quality of life. 😢
My endometriosis symptoms were: cistitis like symptoms very often, like every 2-3 months, bleeding when sexual contact. For 2 years was treated for cistitis until I refused to believe it so I was finally suggested to see the gyno. The gyno only with these 2 symptoms said she thought I had the endometriosis but required a laparoscopia. At my first laparoscopic -2 days after seeing the gyno-test was found around 5 locations of the endometriosis on the uterus and ovaries. No pain until years after the diagnosis, endometriosis must have developed somewhere around the colon. But the pill stopped the pain. The pill works for me.
In my experience of chronic pain, female gynes seem to do anything to disregard you’re symptoms and slam you onto medication. The worst thing about being female and suffering from constant pain is that you have to SHOUT will all your might to be heard, to be seen and for someone to take action. The amount of times I was told my pain could be ‘in my head’ it broke my mind and soul.
Contact doctor_saibu UA-cam channel
I'm in pain all night and day and can't breathe a week before period. Finally have a doctor taking my symptoms seriously. I have many symptoms, I hope its not to late to remove where the cells are.
Hi, i'm suffering fm nausea whenever I move everyday! and vomiting a few days before my period, been to ER for the last 2 months! What kind of pain do u have on a daily basis?? I'm trying to figure out if I have endo, long covid or ibs!
I have this condition. Started one good day after i playing netball. In the night i woke up to this sharp pain that i couldn't walk to the bathroom that was a minute away from my bed. I thought my c-section wound of over 7yrs was torn.. Pain comes and goes monthly mostly around periods week. This week its when my Gynecologist said it was this endometriosis. Praying for healing....
Keep strong
We need to fight for our rights. Bring awareness to woman’s issues and provide relief to women everywhere.
I've been looking for an answer for over 5 years and I finally got a diagnosis today after speaking to half a dozen drs..... . I finally have hope.
God Bless her. Amen and God Bless.🙏🏽❤️❤️