Advice for Endometriosis Sufferers
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- Опубліковано 30 вер 2024
- Actress Kate Bond, singer Halsey, and OB/GYN Dr. Thais Aliabadi share tips on how to diagnose and deal with endometriosis pain.
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Makes my cry when nobody takes me seriously about these pains
Me too, they think it’s just cramps. That’s why we need to talk about it more and make them realise how much pain we’re in. So even if people don’t believe you just keep fighting, one day it will be better
Me too honestly, my gyno told me it was normal to cramp 3/4 weeks, my cramps have been so bad that I've walked like I was 8 months pregnant, they hurt so bad that I can't eat sometimes, I get bladder infections after each period. It's insane how doctors don't listen when it's they're job. It's not normal to be in pain on your period.
Me too. No one understands.....
I was diagnosed when I had my Fallopian tube removed and the doctor saw endometriosis. I was not experiencing extensive pain. Just random slight pains and fatigue. In addition inability to get pregnant when I was trying!
You know 😭😭😭
When I was in 8th grade I was send home twice during two different periods and the principle said "you shouldn't be making this into a habit"
Bitch. I knew it wasn't me!
im in 8th grade and yesterday i got sent home :/
Shout out to my Endo Sisters! You are not alone!!
💓
I love you
❤
The struggle is so real.
Yes we are warriors! 💛💛
I’m crying I go through the whole body shaking from bad cramps the first 2 days of my period
Im in my 30s i started suffering from this in my mid 20s and i would have 1week worth of hell before n after period . Misdignosed with stones in my kidney. It took 9 years for someone to give me a giod answer why the pain was crippling... I still suffer from it now and choose healthier food options. But havent gone totally dairy free and glutten free... But on days im good n dont eat those i feel less pain
Go vegan ladies. Ive been veggie for 23 years and gluten free for 10, sugar free for a long time except chocolate on the rare occasion. I watched Dr neal Barnard. He swears to go vegan for endo. Today I'm on my 4th week being vegan.. today is my 2nd day of 6 day period and I've only taken a quarter of a pill. Usyally by now I'd be on pill number 5 or very strong nsaids. This is the way for us ladies. Try it. You'll see. Whole foods and plant based. Cook from scratch as much as you can.
melissa I have been gluten free since second grade and I was vegan for about a year. It did nothing for me unfortunately
@@melissa-uu9oq that’s great that it works for you, but with endo and even pcos there is no such thing as something that works for everyone, not every case of endo or even pcos is the same. it’s actually about finding what works for you, (changing your diet can help, but it is actually different things that affect people’s endo & pcos not one common thing). I have both endo & pcos and going vegan did nothing for either one for me (so the go vegan isn’t really a good piece advice, try go vegan & see if it works for you is a piece of advice).
For me it was Limiting my Caffeine & Alcohol intake & also had to get put on a birth control shot (taken every 3 months the same time every month) to help my estrogen levels (plus be taken vitamin D + Calcium Supplements on a daily bases for not being able to consume enough of it naturally, Because I’m also lactose intolerant, {not because of my pervious dieting} to be on Depo Vera without it doing damage) as naturally nothing was doing enough for me personally, maybe partially because of food allergies, I have, meaning I can’t consume them doesn’t matter if they help or cause, (it naturally limits what i can try), & that’s the reality (some people that have endo & or pcos also have food allergies to different foods for dieting limiting want that can & can’t use, which may not naturally be enough for them). Where as My Sister also has Endo & smoking weed is one of the things that helps her symptoms, (which works similar to Advil but without the side affects, also depends on pain tolerance).
Mercedes Graham omg me too
Way to go Halsey! Thanks for sharing
I’m so happy I’m not alone.
You are not alone. Just had My 5th op.
@@brendakabanda2181 Hello Brenda you're name looks familiar please tell me how you got rid of endo pain
@@dianahjanice4710 I'm Ugandan. I eat vegan most of the time. I stopped taking sugar unless I can't avoid it. Sugar feeds off pain. I also have 2 tablespoons a day of apple cider vinegar. I also make juices of beetroot, carrots with these ingredients as a base fresh ginger, turmeric, celery, lemon. They have helped a lot.
You're not alone darling. I wish u all the best. :)
Me too girl 😘
The doctor was spot on with her 3 red flags. I'm so happy she has gotten some help with her pain. Treatment has really come a long way since the early 90's when I was diagnosed. Periods should not be excruciatingly painful, so don't ignore it in yourself or your daughter. Don't suffer in silence and think this is just what a period is suppose to feel like.
I am so happy that endometriosis is finally being talked about. I suffer from it too and also was misdiagnosed for years. I really hope that they can get the word out to help more women get help.
Yes queen me too we can conquer this👑we r so strong
I'm happy that it's being discussed as well. I'm also 34 and just got diagnosed with endometriosis in August
She has inspired me to go to a gyno. My periods, since I was young would bring on shakes, cold sweats, vomiting, nearly fainting, and pain to the point of where I would be in hysterically crying. My general doctor completely dismissed me and said birth control will fix it, its just your eating habits. While birth control did cure the pain and most of the symptoms, I've also had a history of large painful lumps near my bikini area. When the birth control made everything bareable I decided that I probably didn't need to go to the gyno soon (i'm 20). But after watching this, it prompted me to research and learn that birth control can help with the symtoms but there can be reasons. So, I will be making an appoiment soon.
Ariel god bless! may everything go well for you at your appointment - if not, keep trying, your body deserves the care 💕
Molten Kitty Thank you!
Ariel my dr prescribed Visanne. Look for videos! its no estrogen therapy to suppress endo. You stop your period after 4 months. The estrogen in birth control gave me blood clots which led to a dvt and pulonary embolism. Dr washed his hands from that and I was in and out of hospital 3 times a week for a year! All he had to do was ask me if anyone in my family ever suffered from blood clots and I would have said yes. That question he failed to ask me cost me 1 year of hell, loss of work, health, stress and I still have leg pains and fear or relapse. I relapsed two other times after that. I have to take injections for travel for life! So all to say, I am starting Visanne with high hopes.
Hey, this is two years ago, but do your lumps appear like “boils” it sounds like you may have HS if it’s on the outside on your body
Rosemary Lucy Cosentino Canadian Fine Artist Just saw this, thank you 💕💕
I have SUSPECTED endometriosis. They thought it was ovarian cysts, but there was no cysts when they did the ultrasound. I would randomly get a shock of pain (I was on birth control, so I didn’t have periods) that would go all the way from my stomach to my butt. It was so bad one day, and I wouldn’t stop bleeding, so I had to go to the ER. They gave me pain meds, did scans, said there was nothing they could do, and sent me home. I wanted them to check for endometriosis, but they said no. I’m 17, and it absolutely crushed me that they didn’t bother to take it seriously. Listen to your body!
Plant Food Paradise They told me that it wasn’t “worth” doing the procedure, so they just assumed that it was endometriosis and they put me on the depo shot. I still have pain, and bowel issues. My stepmother had the tissue removal laparoscopically and she said it made the pain worse and it can come back, so she won’t let me get it done.
I want to get it done so bad. I’m so afraid of changing birth control (because then I’ll have a period and it’s hell) that I shaved my head because the depo made my hair fall out. When I first switched from the pill to depo, I had a period and I was bedridden and passing nothing but clots. Even tramadol didn’t help.
I want this all to be over but no one really takes it seriously. Thank you so much for your comment.
I'm sorry. You probably already thought of it, but if you can't do it now, when you turn 18, you definitely should see other doctors.
It's very hard to get diagnosed. I was fortunate enough to have an amazing ob who also treated my mom who has it. I had diagnostic surgery at 15. It helped, but treatment has been constant. If you don't like the depo (I didn't like it) the nexplanon was good, or an extended pack of oral. It's 3 months on the pill, and then a week. If your Dr. Says you can skip the week which is how I manage. If your doctor isn't listing, find a doctor who will. You know your body better than anyone.
I'm suffering from extremely painful periods I literally have to eat like 4 ibrofean every 4 hours
What's crazy about endometriosis is that it can leave your pelvic region...it's very common to have to attached to your bowels but did you know they have been finding endometriosis tissue attached to people's lungs and stomach.. That can explain why you feel the pain so far up and that is always why sometimes it doesn't show up during a lapriscopy. My family has a history of endometriosis and I started my period when I was 12 years old and already started having severe pain just 4 months later!
Halsey it's amazing that your taking charge of your health. You are amazing and absolutely beautiful girl!
Ablation? No! You need excision of endometriosis, not an ablation. You need an excision specialist. Ablation helps to spread endometriosis cells. Excision is the gold standard. You have to take the disease from it's root not just the surface, like it happens w ablation.
AMEN
I agree with you.
Thank you. So frustrating continued misinformation. Ablation also makes it harder for the next Dr to find all the endo. The info is out there. Why are doctors still so uninformed? It's unacceptable. 41 yrs old, officially diagnosed from laparoscopy in 2010 at 33. Symptoms since 14. The disease is...it'll mess you up
Yes! I learned this from Nancy's Nook on Facebook. Are you on that page? It's wonderful!
Exactly!! Doctors that do ablation are not good doctors!!
I've been struggling with my endometriosis for nine years, and watching this actually made me tear up. Please please please keep spreading this message, more people need to know that suffering this way isn't normal.
Thank you Halsey! I'm 60 years old and realize now that I suffered for a reason. My generation was told "that's just part of being a woman!" So glad women these days are being recognized and given explanations."!!
I’m sorry the women of your generation didn’t get the help they needed
Well done girl. I have that horrible disease too. I use to vomit the whole time and I was crippled in pain. It's not easy. My whole tummy felt raw and it felt like it was going to explode.
THANK YOU FOR TALKING ABOUT THIS, PLEASE TALK ABOUT THIS MORE !!!
I am diagnosed now at 42. Thank God I have children may Allah bless and protect them. I feel sorry for the pain endo women are going through I feel sorry for women struggling with pain pain and fighting to be mom. Stay strong much love 💞
Ameen Sister
I have endometriosis, and have lost four pregnancys due to it. I'm in pain most of the time. And when I go to my obgyn they just dismiss it. I feel like I have no hope 😔
Krystal Mendez Try to find an endometriosis specialist in your area! There’s a FANTASTIC endo and fertility specialist in Boston, if you happen to live around here
I know how you feel.. I had my first laparoscopy for this when I was 17, and another when I was 19. I was told that I will need a hysterectomy sooner than later, and its terrifying for me. Since I was 16 I've had to worry about never having my own children..
Change OBGYN Stat!!!
Krystal Mendez Praying for you.....please find a specialist who cares about you wanting to have a baby.
I have had 2 miscarriages and my dr said she really thinks I have it but doesn’t wanna do the surgery
Halsey...a fantastic artist and apparently a super person. Thanks for telling your story. You have helped people by sharing your struggle. Respect.
I’m 30 and just diagnosed with endo.... I had these really painful periods all my life ALL MY LIFE and never missed a day of work, I couldn’t afford it, never missed a class at the U (and I got two degrees) I just stamped a good amount of pain killers.
I completely understand you! Been there done that
I started crying after she said mentioned the three major symptoms. I have my labroscoy in 3 weeks and I hope I can finally be pain free.
Are you pain free now? 🙏🏽
Are u pain free??
Why do people bring up coke in the comments ? We're talking about endometriosis here, that has nothing to do with drugs ! It's like if you tell me that you broke your foot and I answer "Bet smoking weed is not helping" like wtf ! Coke has nothing to do with endometriosis ! And also, y'all need to stop being so naive, drugs are very very common in the music industry ! Probably the majority of the artists you hear on the radio do drugs so blaming Halsey for doing drugs is like blaming a college student for skipping lectures, it's in no way a good thing but everybody does it, so you can't blame only one person for it ! The music industry is a complete different world from our reality and it's very easy to get caught up in an unhealthy lifestyle. It's sad and I'm in no way saying coke is great and stuff, I'm just saying that if you don't like Halsey it's fine but don't go and say she's a bad person for doing drugs when your favorite artist probably does the same !
Have you even done cocaine? It is poison
Lmao yeah I know what cocaine is, thanks ! But what does that have to do with endometriosis though ? Like why do people bring it up here and now, this is a video where Halsey is doing something great, she's raising awareness about something important and all people do is talk about the fact that she's done cocaine, what's the point ? It's off topic !
You're right! It's funny because cocaine was once used as pain medication.. it wouldn't make her endometriosis worse, it would actually probably dull the pain. Though it's not good for one's body when used frequently. Also weed would probably help her too. Some people are so misinformed about marijuana and a lot of other recreational drugs, there's a huge negative stigma around them when it's really not THAT bad. Some pharmaceuticals are even worse.
@@soundtrip6991 i completely agree with you
Exactly and some don't understand how painful this condition is
Man I wish SHE was my OBGYN!
Me too
Me too it wouldn't have taken then 15 years to diagnose it would have probably taken 1 year lol
Which she are you referring to?
I think its important to remember you can have endometriosis without the pain, and the severity of pain does not correspond with the stage of endometriosis. I now have infertility due to endometriomas on both ovaries from endometriosis. There needs to be a better screening tool, and it should be routine in order to prevent infertility from occurring in women that otherwise wouldnt suspect it.
I agree ,it doesn't have to be that painful
This has been enlightening. Thank you so much. And it's unfortunate that sometimes it's other fellow women that judge others for "not being strong" when you try to tell them that you're in excruciating pain💔 Emotional support is essential. This is a topic that's underrated, especially here in Africa
I've had endometriosis sense I was 14 and have been through 3 surgery and have had so many hospital visits and have tried every thing and have it really Severe and I am 24 years old and have two blessings 2 girls one is 3 and the other is almost 2 and I went through a lot of miscarriages but never gave up and I'm pregnant with our last child after 2 other miscarriages but now we finally got our boy and I'm due in Sep of this year 2018 and after he's born they are taking everything out because of how bad my medical is with Endrometriosis
Tiffany Hartman I had to respond because reading your comment about being able to carry children made me so happy for you!! What a blessing! Congratulations!!
Pinja Maria thank u it has been a big blessing to us to have two healthy toddler girls and a healthy boy on the way with dealing with the severe endromeioses I'm happy I could 3 blessings the doctors said no more after I have are third this Sep bc of my endromeioses being so bad my body won't be able to handle any more but I told them hey I've manage to deal with this horrible pain and having some miscarriages which was really hard to deal with too but told them I was able to get three blessings so after I have are baby boy in Sep they are doing a full Hysterectomy bc of the endromeioses:) thank u so much i have been through a lot and it means a lot to share my story to tell people with endromeioses to not give up :)
Tiffany Hartman That is just pure amazing!! Just being able to hear that there are people out there like you who are so strong to deal with this and still manage to deliver healthy beautiful babies is just so fricking awesome!! We could call that a superpower, right?!:) I myself go trough absolutely horrible pain too and my doctor once mentioned endometriosis to me but Im so scared to look into it because It’s a dream of mine to have children one day...but I’am only 17 so I’am hopeful that this period pain will settle but I have a gut feeling that it’s not going to be that simple.
Pinja Maria I believe strongly u will get the babies u want in the future I did even going through how serve I have it and had miscarriages but never gave up and now I have a 3 year old girl that's deaf but runs in my family and she is just an amazing little girl and then I have a almost 2 year old girl and the boy on his way and then getting my big surgery but it's been a long road and a lot of hospital visits and surgery and pain and I wouldn't change it for the world :) it's ur stories that u have that make u who u are today and there's a lot of hope :) and showing people not to give up when something bad comes ur way u just have to keep pushing through and keep trying :)
Tiffany Hartman Exactly! No matter what we have to keep on going in life and go trough what we go trough to become even better human beings trough our experiences! We need to keep up the strong hope for everything good in life! The internet is an amazing place to talk to people like you who inspire others! It’s really eye opening to hear somebodys story so thank you for sharing!:) I wish all the best for your family and your up coming Hysterectomy!:)
Took me till 38/39 to be diagnosed. And that was only because an ultrasound picked up a bladder mass. The urologist who did my cytoscopy had no idea what he was seeing. A 4cm square was removed from the inside of my bladder wall....pathology showed endometrial and endocervical cells. Comments of interstitial cystitis was also noted. Yet in the previous year I had a gynae registrar dismiss my bladder and bowel symptoms as psychosomatic!!! 3 days before my surgery with the urologist I had another gynae team tell me that his and his supervisors decision was I didn't have enough symptoms of endometriosis to warrant the risk of investigation! I kid you not.
In my mid 20s my Dr's attitude to me missing work due to severe period pain and nausea was that being on the pill would control it from growing. That nothing needed to be done in the way of investigation unless I was trying for a baby and had difficulties. I'm so angry at the missed diagnosis opportunities and what it's cost me. If I'd seen a private gynaecologist rather than the free hospital clinic this could have been managed so much differently and better.
Fact. Dr's questions are too rigid to determine if endometriosis is present.
Fact. Not everyone has difficulty with sex causing pain.
Fact. Pain is only one symptom. It shouldn't be the sum total in a decision. Sure I had painful periods but I didn't miss work the way I missed school when younger.
Fact. When someone describes needing to empty their bladder and wind up with bowel spasms something is very very wrong. Especially when someone reports seeing blood on the paper after wiping their behind. It's not just down to straining without an examination.
I could go on so much. Hopefully there are better tools a Dr cam use in a few years that cuts down the time to diagnosis. Even a treatment for it that works more effectively. There's no point in a woman being told she needs to conceive but the contraceptive pill is the only way to keep it at bay.
Doesn't estrogen in the pill make it worse ??
I faint due to the pain during my period, everytime i have to vomit, get this body fatigue, tiredness and faint also sleep because of the severe pain, my body is weak afte the pain is like i've been through a fight or a surgery i get tired and unable to move and after waking up it feels like i just took punchs in my uteru literally, sometime i go to hospital to take pain killers and shoots, and of course my day offs from work due too the unusual pain, i'm 23 years old and my period times is unstable sometimes it's 10 sometimes 15 days sometimes i get it only after a week between each period and it's always heavy, i've done every medical test out there and no answer some said its bladder infection and I took the medicines needed for that but nothing changed so idk lf i might have this but idk how to make sure?
Marwa Mt keep searching and trying to find a doc that will help you, and let them know thoroughly of all your symptoms, that you think you may have endo, etc, until you find one that takes you seriously
Marwa Tanna Girl we have the same problem. Whenever I get my period I literally cannot do anything for 3 days. My period is also heavy and I have blood clots. I’m anemic because of this.
I’ve seen 3 different doctors (two of which are gynecologists) and they’ve all put me on oral contraceptives. I’ve been taking them for two years now and there has been no change 😭
I went vegan, then vegetarian and now I rarely drink milk. And my symptoms just went away!!! The other day I took painkillers for my period cramps and 30 minutes later, I was good to go. To this day, I can't believe that I used to spend at least one day in agony due to period cramps!!! Try cutting out meat and dairy products two weeks before your period bcoz going vegan/vegetarian might be difficult. Try that first and see if it helps.
This is so horrible it's painful and its like no one understands how painful it is. ...it gets so bad for me I lay in bed throughout my period and throw up ..screaming and crying sweating I can't eat I can't walk can't do anything and the bleeding its soo much and it gets stuck and my belly swells up it hurt so bad
I'm really very much happy i shrunk my multiple fibriods, painful periods , heavy bleeding. with Dr Aluda herbal supplement on UA-cam, God will bless you continuosly sir
Dealing with endometriosis every so often is a daunting experience each time you’re on your period. I’d like to share my journey because maybe just one person would read it and it would help prevent a lot of pain and sadness for them in the future.
I always had irregular periods with pain and at 13 years old, I was put on birth control. After getting married, I decided to come off birth control to have children. I got pregnant 7 months later and gave birth to a baby girl. But, when I stayed off birth control to want to have a second child, the endometriosis (not yet diagnosed at this time) became worse- painful periods. I landed in hospital for another reason, burst appendix where they had to do laparoscopy and was then diagnosed with endometriosis at 30. It’s true, if you suspect you have it- you won’t get a diagnosis till you’re much older. And even if you do get around to a diagnosis, theres only pain management for you to do. The things that worked for me was, cutting out allllllllll carbs before and during my periods, Maxidol are the pills I would take just at the on set of symptoms of my period (1-2 days before the start of my period) and during it.
I really think going on birth control when I was young stopped the endometriosis from destroying my system. It did grow tremendously just in the short time that I was off birth control, imagine if I never went on it, what that would have done to my system. Endometriosis, besides the pain, makes everything very sticky- please do yourself a favour and go on birth control for pain management and to prevent endometriosis from getting worse.
Focus on your symptoms but think about what pain management works for you and your future fertility goals.
I hope sharing my story helps someone out there! Sending love, peace and healing.
Hei, had you manage to become give birth to your second child?
Preach... Lord please heal all of us from endometriosis 🙏🙏🙏
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This is great, I absolutely love Halsey and glad this is being brought up. However, it’s important to mention that in some cases of women that suffer from endometriosis, pain can be a constant day to day thing. They mention that it is pain during your menstrual cycle, which is accurate, but it is possible to suffer outside of that too
I have stage 4 Endo and I am in pain constantly all the time.
I relate as I got endometriosis at 14 which really changed my life I found I have been debilated while on my period making me miss out on alot of things that a teenager should be doing and watching my friends on snapchat having fun and knowing I was unable to go because of the pain really hurt my already poor mental health due to the fact I have been combating severe anxiety, depression and suicidal thoughts since I was a child.
Same here. I’m on medicine now but it is still agony sometimes. Also I love your profile picture lol
- Mushroom haha are you irish too
uh yes nah I’m Scottish but I love Father Ted haha 😂
I was finally diagnosed at 25 after years of seeing doctors. It took an ovarian torsion/emergency surgery to get that diagnosis. I already had 2 little boys so 1 year later I ended up having a full hysterectomy. It's not a cure but made me feel a million times better. Thank you Halsey for speaking out about this!!
Some say that you feel more pain because I don't have much pain tolerance but I know what I feel.And I don't know what I'm suffering from. It's frustrating
It’s so sad when others don’t understand. I cry of the pain
We all know how it feels but they don't.. have you ever tried herbal medications it worked for me
@@gloriawhite2214 no never! Anything you can recommend? I’ll try it! Going in for surgery in a few months, but I’m desperate
I was diagnosed when I was 26. While talking with my OBGYN she came to the conclusion that I had been suffering from endometriosis since I was 12. I remember the school telling me I can't call home and I would just lie in the corner of the room in so much pain crying and they would tell me suck it up it's called being a woman.
It's so sad when someone tells you it's normal for a lady having period but they don't have an idea how painful it is and how it affects you mentally.
I’m 32. Just found a doctor that took all my symptoms seriously and actually cared. Having an ultra sound in a couple weeks. She recommended Depo Provera, which I am really nervous about, but we’ll see!
Stage 4 endo right here tried everything I could and now... I'm having so many flare ups and apparently the Dr can't do anything else to help! So glad this is FINALLY being talked about.
Get a new doctor and ask for excision
So sorry. I am also stage 4. Try the laparoscopic surgery for removal if possible. Don’t bother with a hysterectomy because it isn’t a cure.
I'm 100 percent sure I've found out what I've had for soooooo long! I went to the gyno and they couldn't even tell me what was wrong, they only checked for ovarian cysts. My heart goes out to everyone who is having fertility issues. I'm lucky enough to have had my son, and now the symptoms are less to none because of an IUD.
I started to get cramps while watching this 😬
I was 19 when I was diagnosed with PCOS. Now I'm almost 21 still struggling to conceive a baby. It's horrible thing to live with everyday.
I got diagnosed with endometriosis in 2015 told I couldnt get pregnant and I now have my 1 year old son !
All because of Natural healing ! Toxic free living and natural supplements
What did you do? What supplements did you take?
My periods are super painful, but the older women in my life as I was growing up always made me feel dramatic. They cramp too, get over it. But I'm halfway into my 20's and I almost went to the ER yesterday because the pain was UNREAL. Started my period today. I don't even know where to begin...
I've had lympho node inflammation for years, then very heavy periods, so heavy I had to stay at home. I I went out, I woldn't be able to reach toilet to change pad on time and it will overrun. I went through 2 packs of maxi per day and I never knew that it's not normal.
I'm really very much happy i shrunk my multiple fibriods, painful periods , heavy bleeding. with Dr Aluda herbal supplement on UA-cam, God will bless you continuosly sir
I’ve been crying to multiple doctors about my pain. I always left feeling dismissed and without answers. I’ve been dealing with this pain for over 10 years. These last 4 years have been unbearable to the point where I am in pain during ovulation as well. This past year, I have been bed ridden because I cramp 24/7 now. I can’t eat, I can’t sleep, I can’t walk, I can’t work, I can’t have sex without pain, and now I sometimes bleed for 2 months straight. I feel like I’m dying, yet no one seems to hear me. I finally found a doctor who is willing to do a hysterectomy and hopefully then they will see what has destroyed everything I’ve worked hard for. Even though the pain has me screaming and being slave to the pain, the worst part about this is that I had to go through this for a decade (my entire 20’s) without any of my doctors listening, taking me serious, or helping me find a solution.
Are you ok now, after your hysterectomy? I hope so
Hi kyrsta I have adonoymiosis at stage 4 now I went through all the stuff u said and they kept saying that its normal after having a child I'm now having a hysterectomy as it has destroyed my life I would love to speak to u as this has really damaged me but I wasnt having it with these doctors I'm 31 now but it all started when I was 16 if u can please reply I wanted to ask did it effect ur skin sensitivity as I'm allergic to everything due to the hormone imbalance but the doctors say it dosent effect the skin they make me sick
@tylertheinsane156 did the hysterectomy help? I was told it wouldn't help me. I feel the same way as the original poster. I've experienced several sides affects from this disorder but sadly most are blown off.
🤔Smart!
Halsey is realistic and we'll informed.
Blessed day everyone want to say a big thank you to Dr Mabosa on UA-cam 12years of PCOS gone and ENDOMETRIOSIS gone!! they told me i won't be able to conceive right now I'm pregnant 😊soon to be a mother 😍 after years of pain and hurt
When she said "It makes you feel like less of a woman" I lost it. So unbelievably true 😭 and it isn't even our fault
!!!!! This hit 😢❤
I have suffered for years with endometriosis... I’ve had two laparoscopic done and my pain was still the same, even worst. My Gynaecologist didn’t take my illness seriously for years, my endometriosis is now so bad it’s already attaching itself to other organs and now @37 years old I’m gearing up to do a full hysterectomy.
Unfortunately for most doctors painful periods is NOT a red flag. Unbelievable.
I don't have terrible pain during my period tho I do get cramps, it's two weeks BEFORE my blood flow that is painful. Is that endo, fibroids or a cyst?
Halsey is a mama! I was recently diagnosed with pcos but when I was experiencing my periods I would bleed so heavy and throw up and pass out. I’ve been in the hospital twice before because of it I should ask about this..
I'm really very much happy i shrunk my multiple fibriods, painful periods , heavy bleeding. with Dr Aluda herbal supplement on UA-cam, God will bless you continuosly sir
*Nothing can compare the joy in my
heart for being free from this terrible
disease fibroids, for 2years I suffer
from it not until I saw a review on
how Dromocure on UA-cam Cured
someone from Fibroids…I contact him
and bought his Herbal.☘️ medicine lucky for me
I was cured and free from this fibroids pain with the help of his herbal medicine....
Email ( dromo596@gmail. com )
WhatsApp. +2349033505260
. Dr Omo can also help you get rid of gallstones, Endometriosis, Ovarian cysts, Herpes, Pcos, low sperm& weak erection , Herpes virus, Blocked tubes, infections, Infertility & bleeding. Please help me share Dr Omo herbal medicine work fine no side effects .x ✝️ ☘️ >>☘️.
My endo hurts so bad. Drs. Don't take me seriously. They make me feel stupid. It's like nobody will listen.
I got diagnosed with endometriosis last February and undergone surgery 5 days ago.
*Nothing can compare the joy in my
heart for being free from this terrible
disease fibroids, for 2years I suffer
from it not until I saw a review on
how Dromocure on UA-cam Cured
someone from Fibroids…I contact him
and bought his Herbal.☘️ medicine lucky for me
I was cured and free from this fibroids pain with the help of his herbal medicine....
Email ( dromo596@gmail. com )
WhatsApp. +2349033505260
. Dr Omo can also help you get rid of gallstones, Endometriosis, Ovarian cysts, Herpes, Pcos, low sperm& weak erection , Herpes virus, Blocked tubes, infections, Infertility & bleeding. Please help me share Dr Omo herbal medicine work fine no side effects .x ✝️ ☘️ >>☘️
They can diagnosis but it involves biopsy of tissue which usually means a surgical procedure but thats how mine was dx. I will prob make a video talking about it.
Ugh I’m 28 and want kids but won’t be having them in the foreseeable and have only started this process recently. I can’t afford to freeze my eggs and get IVF and it feels like it’s going to be too late for me…
India is one of the worst countries to have endometriosis .... I've had a ppl tell me grow up don't make it a big deal ....
I've had a dr tell me I'm making it an excuse
If you freeze your eggs they only have a 10% chance of actually becoming a child. Better start freezing a dozen
Thank you so much, doctor. This was a really good video. You explained everything amazingly. It's just nice to realize that you aren't alone. And, it's even better to see that there are good people out there. Like, you, who help you through all this. Keep up the superb work!
When i was in 10th grade i was sitting in Chem class with absolutely terrible cramps and at one time i let out a Yelp and a little cry because it was hurting so bad and the female teacher said to me, "stop being dramatic, if you think this is bad just wait till you have kids" not only did she belittle me but she dismissed my pain and set a precedence for how I handled my period for the next 7 years. In the last 6 months i have been in the ER three times for my period and they are just now talking about endometriosis, imagine if i had not been dismissed by another woman how long ago i could have been diagnosed
I lost my left kidney because of endometriosis. Im happy people are talking about it. Its more than cramps!
Exactly. I've just been diagnosed with endometriosis in August, and I've been having bad pain flare ups, nausea, dizziness, fatigue, and back problems
I was diagnosed with endometriosis at the age of 34. At the age of 35 i had a bowel resection with stage 3 endo. It took me 12 months to recover fully but i have been blessed in finding a birth control pill that took all my pain away and 13 years later i am still going well and pain free.
I am luckier than most and feel for those women who are in a worse situation.
*Nothing can compare the joy in my
heart for being free from this terrible
disease fibroids, for 2years I suffer
from it not until I saw a review on
how Dromocure on UA-cam Cured
someone from Fibroids…I contact him
and bought his Herbal.☘️ medicine lucky for me
I was cured and free from this fibroids pain with the help of his herbal medicine....
Email ( dromo596@gmail. com )
WhatsApp. +2349033505260
. Dr Omo can also help you get rid of gallstones, Endometriosis, Ovarian cysts, Herpes, Pcos, low sperm& weak erection , Herpes virus, Blocked tubes, infections, Infertility & bleeding. Please help me share Dr Omo herbal medicine work fine no side effects .x ✝️ ☘️ >>☘️
This made me thinking of my doctor who dismissed me saying this horrible pain I feel is normal and I'm just overreacting
The pain doesn’t have to only be severe during your period!! That’s just misinformation. The pain can occur any time during your cycle!
And it can be a constant daily thing too
My mom was bleeding for about half a year. Doctors said it was normal & “stress”. Just watching this now now I know what my mom really has. Thanks for sharing !!!
I recently diagnosed with endometriosis and had a Laposcropic surgery on dec 14 .. It was a horrible experience for me ... 😪😪😪😪😪
So now your cyst went away?
Please reply
I'm so happy to see them bringing attention to this. So many women suffer horribly and are told they need to women up. I have been told my countless doctors in the past that I'm being dramatic because of hemorrhaging and severe pain. Once you end up in the er getting a blood transfusion the doctors and nurses act like you're careless for letting it get that bad when in reality your primary doctor and ob/gyn are the ones who told you that you were over exaggerating your pain and bleeding. You can't win most of the time in the US where doctors mistakes are the 3rd leading cause of death.
She is so fucking beautiful 😍💘 I love you Ashley
I was diagnosed with endo a year ago. Ugh it sucks. My gyno put me on the mirena. It’s helped a bit, but honestly one of my symptoms has gotten better another one still happens not as regularly, but my other ones are still there. Ugh wish we could find a fix not a band it for it, but maybe one day we will find a cure for it.
I have to appalled Halsey for standing up and telling her story. I have lost two children and I have two children and I had to have a hysterectomy at age 28 due to this. So many Women suffer and are ashamed to speak up about it.
Today I go to a gyno for the first time I've been suffering with painful stomach ache around the time I get my period for 11years hopefully I can get diagonosed so I know I'm not crazy
I hope you're able to find peace and be less in pain 😟 it sucks having this. I think I have it too. I've been in bed for two days in pain and can't even move..
UPDATE: I'm getting surgery early next year I'm hoping they can find something
I am 25 and I was diagnosed w/ endometriosis after I complained about my belly button bleeding while on my period! Your story is so touching to me!
Im 39 and just found out i have endo omg took so long for a Dr to find out why im in pain im just grateful finally got diagnosed
Wish there was a segment for people like me who suffer from Adenomyosis, endometriosis, and pcos. There’s many of us out there who know the Endo end that sucks and can come back but also not close to menopause and want to keep their uterus if possible otherwise a hysterectomy is my next choice because I cannot deal with these painful conditions together.
what can I do if I've been dealing with this for 23yrs? This has been going on since I was 10yrs old and blown off by all doctors I went to. I'm 33 almost 34 and no longer have health insurance. I'm going to college to become a radiologist but the pain has become so intense I can take it anymore. I wrote to the show cause I really need help bad but I haven't heard anything. I don't know what its like to not have the pain. I've tried everything for the pain but gets worse. Please I'm desperate for help. I want to finish college and get that awesome job not lay in bed feeling miserable all the time
MetallicaAE86girl go to go found me and raise money I know that pain my dear. I don’t know u I which I had enough money I would help
I've been having pain for a while now. A lot of doctors kept saying just take medication for an infection. It's just recurring infections, but my periods were so bad that I missed a lot of school. It was so painful that I had a hard time getting out of bed. Now I finally found a doctor who recognized that it could be endometriosis. Maybe it is or maybe it isn't. But it's a start from what I was being diagnosed before.
I was diagnosed with endo aged 22 but had symptoms many years before (misdiagnosed). Im 24 now and I’ve already had two surgeries. I was stage 2 first time, now I’m stage 4. And I’m back in pain already again. I wish I had the finances to freeze my eggs. I’m so worried about my future fertility :( sighhh it’s awful
Plant Food Paradise oh gosh, I’m so sorry to hear that. I honestly hope they find a cure for us soon. I think it’s highly underrated how painful it is :( I’m glad you’re feeling better! I’ll definitely ask the doctor about the shot x
I am glad I am not the only one!!! My Doctor swore I should get a few years of no pain after my lapriscopy, but NOPE I was already having pain again after 3 months! and I too also feel like my pain has only gotten worse after having the surgery done.
Fina Armania Im so glad I’m not alone as well! I’ve got the mirena coil in, which hasn’t helped at all. Although it has stopped my periods which is great lol. My doctor told me it wouldn’t come back so quickly as well but I knew it had as could feel it and I was right!! Just shows we need to listen to our own bodies x
I’m 38 going on my 9th surgery. I wish I had the money as well.
I am 38 and had my last surgery 10/2017. I was tired of having surgeries, so I decided to research holistic methods. In 1/2018, I began a new life regimen: stopped eating meat, no dairy, no white bread, and starting taking black seed oil. Let me say, the past 3 months I have NOT had to take ANY pain pills during my period! Amazingly, the first time in 27 years I've had my period...no pain pills! I went from fainting, vomiting, severe pain, and hospitalization to where I am today. To my fellow survivors, stay away from birth control as well! I took all types, even Lupron which puts you in a pseudomenopause and none worked. Do your research!!
Best of luck on each survivor's journey.
Halsey is a true queen
Love you Halsey! Happy to see you’re taking charge of your body and health despite battling this illness!
You continue to inspire me everyday with your music and then I see this PSA! So much love for you girl! ❤️
Women's issues are never taken seriously. I have PMDD which is server form of PMS. No one would listen to me. It wasn't until my husband said something wasn't right that I got help. He has been my biggest support and even came to the doctors office to help me explain my issues and to make sure I got the help I needed.
I was 14 when I was diagnosed with endometriosis. I am almost 24 now. It is such a horrible thing to live with.
So ive recently been diagnosed with endo and its been terrifying because my treatment options are limited because i have a mood disorder. We never caught it before because my birth control pills were helping but then there was a brand switch that i didnt react well to so i had to stop taking it and my body just started going back to the horrible pain it was in before.
They wont do an iud because last time it was placed wrong and i got sepsis and almost died. Most hormonal birth controls mess me up mentally and there a 6 month long treatment that they say works but my doctor said isnt a good option for me because it'll mess with my hormones and make me irritable and make my life difficult for those months. So honestly im scared right now.
Im 24 and just trying to figure my life out
Check out CBD oil
i think i have endo 😭😭😭😭
Jayne Skye Me too. It’s a fucked up situation.
I have stage 4 diagnosed Endometriosis that I haven't had surgery for in 8 years...I have been diagnosed with zero control over my pelvic muscles. I've researched through Endometriosis Centers and found out about Frozen Pelvis.... adhesions and scar tissue fuses muscles and all organs in the pelvis together causing frozen pelvis... But getting any of my small town doctor's to listen to me is like talking to the wall. It feels hopeless.
Holly Stauffer-Bailey, there are only a handful of specialists globally who know how to many endometriosis. Please find a Facebook group called “Nancy’s Nook endometriosis education” and join it. They have tons of resources on endo plus a listing of doctors globally who specialize in excision surgery. Ablation surgery (which is what non-specialist doctors do) in most cases exacerbates endo rather than helping.
I'm being diagnosed stage 3 endometriosis. It was real hard for me to accept it and people don't understand why I have to keep taking medical leave or why I'm always feeling so painful.
I was crying within 1 minute and 15 seconds 🥺 endometriosis has impacted my life so much. So happy it’s getting exposure so hopefully it will get more attention, research and resources.
I just received diagnosis...I am so thankful that my pain has not been ignored...
I honestly got really lucky with my doctor. I literally told him my symptoms and the same day he mentioned endo a month later I had a laparoscopy and he removed as much lesions as he could.
I feel so guilty for my diagnosis. Endo wasn’t even on my radar-despite my bf being diagnosed with it and subsequently having a full hysterectomy. Fast forward to two years after that-having debilitating pain is normal, isn’t it? To the point where you can’t even sit or stand comfortably- and my wonderful general practitioner who during my annual exam was worried about my extreme “sensitivity” to my pelvic exam and who immediately referred me to an OBGYN. Two months after that I was having my own hysterectomy, and after found out that my endo was “quite extensive” and “everywhere”.
My diagnosis was so quick, and the surgery was life changing. It grieves me to know that others have to fight so hard just be be heard. I am 100% an anomaly, and I 100% should not be.
It took Multiple doctors and years of pain, time off work and Tafe, 3 ambulance trips costing $990 each trip and Iv been prescribed wayy too much tramadol over the years!
Finally found a doctor that wanted to listen. I've had two operations to unfuse my bowel and remove endometriosis.
May as well remove my my left ovary as it is useless.
Looks like the third operation isn't far away. This really sucks. And to think there are people with worse endo than me.
Bless you all and I'm sending back rubs and hugs. Xxx
Thinking of you all.
it's horrible how long and painful this journey is for people with endometriosis. I hope that one day there will be a cure for this. remember that you are not alone, even if it feels that way. I'm 23 with suspected endo from many doctors, but not have gotten a proper diagnosis. I pray for all of you that is going through this & for myself. take care.
I'm so happy that I found more people like me. I'm 15 years old and my mom took me to the doctor and a week later I had surgery for it. My doctor said if my mom didn't being me to the doctor when she did that in a year that i wouldn't be able to have kids.
I had my left ovary removed this January and my OB found a ton of endo in and on my uterus, thankfully she removed it but I know it can come back. I thought that my pain was just normal because my mom had severe pain during her periods as well. Turns out it wasn’t normal 🤷🏻♀️ I would usually skip work/school once or twice a month because of the pain.
I don't have Endometriosis, at least I don't think so, but I can't function without birth control. I was fortunate enough to have access to it early, thanks Planned Parenthood. I tried going off it in college, because I had been on it for about five years at the time and I wasn't sure if I was accurately remembering the pain, bloating, nausea, fatigue, and heavy bleeding. Literally one month off and I was dragging my behind back to the health center. The amount of pain killers I would go through, just to be somewhat present had to be worse than anything I could experience on the pill. Without birth control I literally can't sleep on my period the pain is so bad.
JessieBanana was your bloating constantly or just before and while on your period? How are you doing now ?
It was the same for me..I tried evening primrose...then vitamin b and cold liver oil tabs ...the pain is at a minimum now
Halsey is gorgeous. This is so eye-opening. Since i got my period at 14, my periods were so painful to the point where i couldn't even walk and if i tried to get up for painkillers or something, I would pass out from the pain. I missed so much school in high school because of it. I've been in so much pain from my periods that I've actually thrown up. And it's weird because my periods are so painful but I barely bleed at all. Luckily, I've been on birth control since i was 14 and that's managed my pain better, but I still worry that I have an underlying issue like endometriosis because of how much pain my period causes naturally.
.. Thank you for this video, its really hard when you your suffering this kimd of pain, I am 26yrs old i endemetriosis on left and right side with 9cm amd 7cm.. the doctor told to go an operation but sad to say after the operation it come again, then other way is to stop your menstruation amd other words early minoposal, for me its hard because its to early, but theres no other way... until now i havent decide yet i stocks a lot of pain reliever in case of so much pain... your show really helps understand my situation..
I have endrometreosis stage three and am recovering. Fertility is a main concern for me, I am 25 a grad student and have no extra income to freeze my eggs. I have already been told that I will not be able to have children. Insurance has not been kind and offers really little help for patients like me.. I am glad Halsey has the funds to protect her family in the future, I just wished for the rest of us, there was more help. :(
I've had problems almost since I started having a period, I go in 2 weeks for laparoscopic surgery, to find out if it's endo. I turn 32 in a week