Hi, pls help. I have yeast infection. It is caused by candida albicans. I am having curdy white discharge. I tried all medications say topical cream which is candid cream, vaginal capsules, probiotics as per course. But it comes back after i stop it. My partner also got tested with antifungals. What can i do now ??? Pls help.
After a mild covid infection I’m dealing with chronic “hives” (I don’t have a better word for what I have, they look like hives but when they go down a red bump remains, painful and itchy) I also have Lupus (managed by diet alone) Now wondering if I have a mast cell issue?
Pretty certain I have mcas unfortunately.. more than 1 system reactions. I have read that long-term antihistamines are also not good and can make DAO enzyme even worse. Also doctors deny my anaphylactic reactions stating they are not.. which seems strange to me when I have had several severe reactions including my throat closing and other symptoms of anaphylaxis include even just low blood pressure states a form from the hospital about anaphylexis. So frustrating to even get diagnosed, it's been years now and got given steroids for my reactions which made me have TSW (steroid addiction/withdrawal which I nearly died from and so the doctors only made me more sick, after the steroids my stomach was completely destroyed and worse than it already was, same with my skin literally all coming off etc.
I work in health care and never thought much about this diagnosis. Then after a COVID vaccine reaction four times, I developed what I thought were allergies. Near anaphylaxis to foods I've eaten my whole life. Testing for allergies found nothing. The allergist reluctantly tested for the "designer disease of the moment" as he called it. Not only did my urine show MCAS, but I am positive for KIT mutation D816V, as well as HaT. This is a real thing. I am starting to feel better, but having to figure out treatment on my own. My Allergist and Hematologist don't really want to treat me, but they also have no referrals. Thank you Dr. Jill for your wise words. They have been so helpful to me as I navigate this lonely road.
Omg same here, not to the vaccine tho, so either covid or something else. But the rest of your experience is so similar. They tell me it's not even anaphylexis which does my head in. You got further than me tho, they don't even want to test me. Who did your testing if I may ask?
@@Yazzie101what supplements do you take and do you believe it's safe long-term? I'm looking at taking DAO supplements and low histamine probiotics? Maybe magnesium?
Covid was my last straw. Mold and EMF was in my environment. My son and I were both dealing with this, Doctors have known nothing. I believe it takes time for the Mast cells to be replaced. We are still dealing with exhaustion and IBS. Hoping to get some relief with functional medicine. No one talks about the anxiety and insomnia from the constant elevated cortisol and autonomic nervous system dysfunction. Also limbic system is involved. She named every symptom I have had. I just wish they could develop a better test for MCAS.
Wow what a great interview. Thank you for having Dr Jill on here. I purchased her book and can't wait to read it. I've been dealing with MCAS, MIGRAINES AND INSOMNIA since having parts of my colon taken out. There aren't any doctors around me who understand and it's very difficult to deal with alone. So I really appreciate kind and caring people like Dr Jill. So thank you so much!!
This was by far one of the best video interviews I’ve watched regarding Mast Cell Activation. The message at the end was especially powerful and heart warming. I’ll be sharing this video often. ❤
So informative! Dealing with diagnosed and some undiagnosed PoTS, eds, MCAS, eczema, HS, elevated histamines, food allergies, Vasovagal syncope, long COVID, and chemical sensitivities diagnoses in our family and trying to put it all together. Unbelievable how so many of these things are linked. Does having elevated histamines and/or possible MCAS make it more difficult or prevent pregnancy? Thank you for this video!!
Wow so good. For so many years the doctors made me feel like I was crazy or it was all in my head. Thank you for telling us to trust our bodies. I am 54 and have probably had this issue since my early 20’s and I just now got a possible diagnosis. I pray things get better for future generations.
Great podcast. I was dubious at first, due to the fact that so many UA-camrs are jumping on the "disease" bandwagon (some are AI run) just to get hits and to monetize, but you both pulled though with current data and sincerity. A major roadblock to those with MCAS (or any "rare" disease) is the lack of knowledge by most doctors, so suffering patients describe their symptoms, doctors are unfamiliar, so they default to a "mental health" diagnosis and suggest the person goes to a shrink. And of course, the cost of meds (Cromolyn Sodium Oral for example, is $2600 a month in the USA) and many insurance companies won't cover them. So, by the time people get accurately diagnosed, they can no longer work, are bankrupt, close to or are homeless, and then stand almost no chance of improving. Anyway, well done by both of you...truly.
Thanks for hanging in there and sharing your thoughts! MCAS is a serious condition which is very under-recognized. I talk about many different conditions that impact skin including some that no one talks much about like Prurigo Nodularis + Grovers Disease in addition to other chronic skin issues. I have also gone through health struggles so I very much understand the situation you're describing. It's my hope that I can help connect someone with answers sooner rather than later because we don't get that time back. 💛
FYI: I found Cromolyn Sodium in a nasal spray form...called NasalCrom. The nasal route is a way to get around the stomach...since the drug is sprayed directly into the nose tissues. I found 2 bottles of spray for $20 at Walmart online in US. (I haven't seen my dr yet so was looking for an OTC mast stabilizer to try before the appt....proof that these meds are helping and hopefully by now (yr 2024), the dr will know more than when I started seeing dr in 2019.
Thank you for this interview!!! For a few months I am dealing with hives, always been healthy until this . This has been very eye opening and helped me with understanding all of what is happening in my body !
I had more than one severe mold exposure and it has ruined my health and now even if it's mold it's anything and everything triggering all these symptoms now mcs and now certain it's mcas I can't stop the swelling in ny eyes and feet and ankles now, which is triggering fibromyalgia pain all over and joint pain I feel like a broken mess and I'm a single mom. Im in so much trouble and drowning and I need to find docs who can do all the proper testing to see what else made me predisposition I was so healthy and normal til 35. Now im almost 48 and barely coping to live. There's so much info I never no what to do and I'm broke. I'm sure I struggle to methylate too not sure if I should take DAO and others but I think my system is so clogged and now I can hardly be inside buildings at all. Im so sick Im one of the sicker patients youte talking about and I believe it's life threatening for me. I need help. I need to know which kind of doctor to look for and what can be done before it's too late
I believe Benadryl ongoing isn't ideal (I am NOT suggesting you stop taking it abruptly). It might be a good idea to talk to your doctor though and find a more suitable long term antihistamine or h1/h2 blocker. 🙂
How do you get tested for histamine intolerance? It’s it allergies? What about MCAS testing?I think my son has it after Lyme and Covid that he stopped his treatment for. His house with his father was just remediated (with enzyme foggers) for mold, but they are both having issues. They say it was tested after, but the didn’t put protective barriers on their beds, clean out the clothes that were in the drawers and closets. I’ve had mold toxicity before and now have horrible chronic Lyme and pain.
What’s your experience with MCAS? Have you suspected it? I’d love to hear your thoughts in the comments.
Hi, pls help. I have yeast infection. It is caused by candida albicans. I am having curdy white discharge.
I tried all medications say topical cream which is candid cream, vaginal capsules, probiotics as per course. But it comes back after i stop it. My partner also got tested with antifungals. What can i do now ??? Pls help.
After a mild covid infection I’m dealing with chronic “hives” (I don’t have a better word for what I have, they look like hives but when they go down a red bump remains, painful and itchy) I also have Lupus (managed by diet alone) Now wondering if I have a mast cell issue?
Pretty certain I have mcas unfortunately.. more than 1 system reactions. I have read that long-term antihistamines are also not good and can make DAO enzyme even worse. Also doctors deny my anaphylactic reactions stating they are not.. which seems strange to me when I have had several severe reactions including my throat closing and other symptoms of anaphylaxis include even just low blood pressure states a form from the hospital about anaphylexis. So frustrating to even get diagnosed, it's been years now and got given steroids for my reactions which made me have TSW (steroid addiction/withdrawal which I nearly died from and so the doctors only made me more sick, after the steroids my stomach was completely destroyed and worse than it already was, same with my skin literally all coming off etc.
I work in health care and never thought much about this diagnosis. Then after a COVID vaccine reaction four times, I developed what I thought were allergies. Near anaphylaxis to foods I've eaten my whole life. Testing for allergies found nothing. The allergist reluctantly tested for the "designer disease of the moment" as he called it. Not only did my urine show MCAS, but I am positive for KIT mutation D816V, as well as HaT. This is a real thing. I am starting to feel better, but having to figure out treatment on my own. My Allergist and Hematologist don't really want to treat me, but they also have no referrals. Thank you Dr. Jill for your wise words. They have been so helpful to me as I navigate this lonely road.
Learn your lesson? We tried to warn you about that Pharma poison.....
Same here .. I did my own research as Drs gave me allergy meds that I react to… they have zero help advise so I turned to supplements myself!
Omg same here, not to the vaccine tho, so either covid or something else. But the rest of your experience is so similar. They tell me it's not even anaphylexis which does my head in. You got further than me tho, they don't even want to test me. Who did your testing if I may ask?
@@Yazzie101what supplements do you take and do you believe it's safe long-term? I'm looking at taking DAO supplements and low histamine probiotics? Maybe magnesium?
Which urine test? And genetic test? Thank you so much for sharing 🙏❤️
Nice to finally hear a Dr. That actually knows.and understands what we are going through !!!! Xoxoxo
Covid was my last straw. Mold and EMF was in my environment. My son and I were both dealing with this, Doctors have known nothing. I believe it takes time for the Mast cells to be replaced. We are still dealing with exhaustion and IBS. Hoping to get some relief with functional medicine. No one talks about the anxiety and insomnia from the constant elevated cortisol and autonomic nervous system dysfunction. Also limbic system is involved. She named every symptom I have had. I just wish they could develop a better test for MCAS.
Wow what a great interview. Thank you for having Dr Jill on here. I purchased her book and can't wait to read it. I've been dealing with MCAS, MIGRAINES AND INSOMNIA since having parts of my colon taken out. There aren't any doctors around me who understand and it's very difficult to deal with alone. So I really appreciate kind and caring people like Dr Jill. So thank you so much!!
This was by far one of the best video interviews I’ve watched regarding Mast Cell Activation. The message at the end was especially powerful and heart warming. I’ll be sharing this video often. ❤
Excellent video! I’ve been dealing with toxins for 21 years, and now I have Lyme and can’t even go outside anymore!
So informative! Dealing with diagnosed and some undiagnosed PoTS, eds, MCAS, eczema, HS, elevated histamines, food allergies, Vasovagal syncope, long COVID, and chemical sensitivities diagnoses in our family and trying to put it all together. Unbelievable how so many of these things are linked.
Does having elevated histamines and/or possible MCAS make it more difficult or prevent pregnancy?
Thank you for this video!!
Wow so good. For so many years the doctors made me feel like I was crazy or it was all in my head. Thank you for telling us to trust our bodies. I am 54 and have probably had this issue since my early 20’s and I just now got a possible diagnosis. I pray things get better for future generations.
Can MCAS be triggered by the Covid vaccine?
Short answer: yes.
Absolutely
Great podcast. I was dubious at first, due to the fact that so many UA-camrs are jumping on the "disease" bandwagon (some are AI run) just to get hits and to monetize, but you both pulled though with current data and sincerity. A major roadblock to those with MCAS (or any "rare" disease) is the lack of knowledge by most doctors, so suffering patients describe their symptoms, doctors are unfamiliar, so they default to a "mental health" diagnosis and suggest the person goes to a shrink. And of course, the cost of meds (Cromolyn Sodium Oral for example, is $2600 a month in the USA) and many insurance companies won't cover them. So, by the time people get accurately diagnosed, they can no longer work, are bankrupt, close to or are homeless, and then stand almost no chance of improving. Anyway, well done by both of you...truly.
Thanks for hanging in there and sharing your thoughts! MCAS is a serious condition which is very under-recognized. I talk about many different conditions that impact skin including some that no one talks much about like Prurigo Nodularis + Grovers Disease in addition to other chronic skin issues. I have also gone through health struggles so I very much understand the situation you're describing. It's my hope that I can help connect someone with answers sooner rather than later because we don't get that time back. 💛
FYI: I found Cromolyn Sodium in a nasal spray form...called NasalCrom. The nasal route is a way to get around the stomach...since the drug is sprayed directly into the nose tissues. I found 2 bottles of spray for $20 at Walmart online in US. (I haven't seen my dr yet so was looking for an OTC mast stabilizer to try before the appt....proof that these meds are helping and hopefully by now (yr 2024), the dr will know more than when I started seeing dr in 2019.
@@maryr7593 Hope it helps...truly.
@@maryr7593 any side effects from NasalCrom?
Thank you for this interview!!!
For a few months I am dealing with hives, always been healthy until this . This has been very eye opening and helped me with understanding all of what is happening in my body !
Great video!! Ive been trying to find more info about MCAS related to hEDS and this was the most enlightening video ive found so far..
I had more than one severe mold exposure and it has ruined my health and now even if it's mold it's anything and everything triggering all these symptoms now mcs and now certain it's mcas I can't stop the swelling in ny eyes and feet and ankles now, which is triggering fibromyalgia pain all over and joint pain I feel like a broken mess and I'm a single mom. Im in so much trouble and drowning and I need to find docs who can do all the proper testing to see what else made me predisposition I was so healthy and normal til 35. Now im almost 48 and barely coping to live. There's so much info I never no what to do and I'm broke. I'm sure I struggle to methylate too not sure if I should take DAO and others but I think my system is so clogged and now I can hardly be inside buildings at all. Im so sick
Im one of the sicker patients youte talking about and I believe it's life threatening for me. I need help. I need to know which kind of doctor to look for and what can be done before it's too late
I have LYME & the MCA is insane all over my body 😂 can’t live without Benadryl Thanks very much appreciated
I wasn’t aware of Benadryl. Have you found it better than quercetin? Thanks
I believe Benadryl ongoing isn't ideal (I am NOT suggesting you stop taking it abruptly). It might be a good idea to talk to your doctor though and find a more suitable long term antihistamine or h1/h2 blocker. 🙂
Truly appreciate you!
Wish I could heal and know what to do foodwise 😢
How do you get tested for histamine intolerance? It’s it allergies? What about MCAS testing?I think my son has it after Lyme and Covid that he stopped his treatment for. His house with his father was just remediated (with enzyme foggers) for mold, but they are both having issues. They say it was tested after, but the didn’t put protective barriers on their beds, clean out the clothes that were in the drawers and closets.
I’ve had mold toxicity before and now have horrible chronic Lyme and pain.
I just was tested for histamine intolerance and mast cell activation (tryptase test) via blood draw.
If you get rid of the spike protein does the mast cells calm down?
I think so from my experience. I use milk thistle.
@@ooblem did you develop MCAS after covid19 infection or its v a x?
@@behnamkhaki4986 after natural infection of Covid.
@@behnamkhaki4986 natural infection
For me the Covid but got worse after the vac