MCAS Mast Cell Activation Syndrome Symptoms + Treatment (It's Histamine Hell) | Jill Carnahan

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  • Опубліковано 2 лип 2024
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    Complete transcript + original post: www.skinterrupt.com/319
    Mast cell activation syndrome (MCAS) is a complex health problem often underdiagnosed or ignored that can leave you feeling extremely sick. It’s kind of like histamine intolerance on steroids!
    If you’re not familiar with what are mast cells and how they are involved with mast cell activation disorder, this is the perfect video for you to watch!
    To be clear, MCAS is not the same as histamine intolerance - it’s much more severe often requiring specific mast cell stabilizing medications in addition to supplements + lifestyle shifts in your mast cell activation symptom and treatment plan.
    My guest today is Dr. Jill Carnahan, Your Functional Medicine Expert® dually board certified in Family Medicine for 10 years and in Integrative Holistic Medicine. She is the founder and Medical Director of Flatiron Functional Medicine. As a survivor of breast cancer, Crohn’s disease, and toxic mold illness, she specializes in searching for the underlying causes of illness through cutting-edge lab testing and personalized medicine protocols.
    LINKS DISCUSSED IN THIS EPISODE:
    • Find Dr. Carnahan online - www.jillcarnahan.com/
    • Dr. Jill’s Instagram - / drjillcarnahan
    • Dr. Jill’s Facebook - / flatironfunctionalmedi...
    • Dr. Jill's book “Unexpected: Finding Resilience through Functional Medicine, Science, and Faith” - readunexpected.com/
    • Watch “Doctor/ Patient” - doctorpatientmovie.com/
    • Healthy Skin Show 036: Using Low-Dose Naltrexone (LDN) For Chronic Skin Rash Conditions - www.skinterrupt.com/036
    • Healthy Skin Show 261: Chronic Hives: Why They Aren't Going Away - www.skinterrupt.com/261
    • RESEARCH: Mast Cell Current Diagnostic Criteria (Consensus-2) - bit.ly/3SCK092
    IN THIS EPISODE:
    00:00 Introduction
    01:20 MCAS vs. histamine intolerance
    06:21 Mast cell activation syndrome symptoms
    09:23 Environmental triggers like MOLD
    12:10 MCAS diet solution?
    13:34 Genetic component to MCAS cases
    15:03 COVID and mast cell activation
    17:41 Mast cell activation disorder treatment options
    20:58 Thoughts on feeling hopeless from chronic illness
    24:00 Dr. Jill's personal health story & mindset
    30:24 Closing remarks
    _________________
    ABOUT JENNIFER FUGO, MS, CNS:
    Jennifer Fugo, MS, LDN, CNS is a clinical nutritionist empowering women who’ve been failed by conventional medicine to beat chronic skin and unending gut challenges. Because she’s overcome a long history of gut issues and eczema, Jennifer has empathy and insight to help her clients discover missing pieces and create doable integrative plans.
    She holds a Master’s degree in Human Nutrition from the University of Bridgeport and is a Licensed Dietitian-Nutritionist and Certified Nutrition Specialist, and is the host of the Healthy Skin Show.
    FREE eGUIDE: Are you ready to identify the hidden root causes triggering your chronic skin rashes? Download my Skin Rash Root Cause Finder to get started: www.skinterrupt.com/opt-in-ro...
    _________________
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    DISCLAIMER: Jennifer Fugo is a clinical nutritionist who offers health, wellness + nutritional information for educational purposes only. You should not rely on this information as a substitute for, nor does it replace professional medical advice, diagnosis, or treatment. It also does not create a client-practitioner relationship between yourself + Jennifer. If you have any concerns or questions about your health, you should consult with a physician or other healthcare professional first before making any changes. Do not disregard, avoid, or delay obtaining medical or health-related advice because of something you may have seen in these videos.
    NOTE: This description may contain affiliate links that allow you to easily find the items discussed in this video that support my channel at no cost to you. While this channel may earn minimal sums when you use the links, you (the viewer) are in NO WAY obligated to use these links. Either way, I appreciate you for your support!
    #MastCells #MCAS #Histamine

КОМЕНТАРІ • 37

  • @jenfugo
    @jenfugo  7 місяців тому +2

    What’s your experience with MCAS? Have you suspected it? I’d love to hear your thoughts in the comments.

    • @benchit4772
      @benchit4772 7 місяців тому

      Hi, pls help. I have yeast infection. It is caused by candida albicans. I am having curdy white discharge.
      I tried all medications say topical cream which is candid cream, vaginal capsules, probiotics as per course. But it comes back after i stop it. My partner also got tested with antifungals. What can i do now ??? Pls help.

    • @christiethomas6905
      @christiethomas6905 3 місяці тому +1

      After a mild covid infection I’m dealing with chronic “hives” (I don’t have a better word for what I have, they look like hives but when they go down a red bump remains, painful and itchy) I also have Lupus (managed by diet alone) Now wondering if I have a mast cell issue?

    • @irisvandijk570
      @irisvandijk570 Місяць тому

      Pretty certain I have mcas unfortunately.. more than 1 system reactions. I have read that long-term antihistamines are also not good and can make DAO enzyme even worse. Also doctors deny my anaphylactic reactions stating they are not.. which seems strange to me when I have had several severe reactions including my throat closing and other symptoms of anaphylaxis include even just low blood pressure states a form from the hospital about anaphylexis. So frustrating to even get diagnosed, it's been years now and got given steroids for my reactions which made me have TSW (steroid addiction/withdrawal which I nearly died from and so the doctors only made me more sick, after the steroids my stomach was completely destroyed and worse than it already was, same with my skin literally all coming off etc.

  • @dietriche6798
    @dietriche6798 5 місяців тому +12

    I work in health care and never thought much about this diagnosis. Then after a COVID vaccine reaction four times, I developed what I thought were allergies. Near anaphylaxis to foods I've eaten my whole life. Testing for allergies found nothing. The allergist reluctantly tested for the "designer disease of the moment" as he called it. Not only did my urine show MCAS, but I am positive for KIT mutation D816V, as well as HaT. This is a real thing. I am starting to feel better, but having to figure out treatment on my own. My Allergist and Hematologist don't really want to treat me, but they also have no referrals. Thank you Dr. Jill for your wise words. They have been so helpful to me as I navigate this lonely road.

    • @insertmyidentityhere
      @insertmyidentityhere 2 місяці тому

      Learn your lesson? We tried to warn you about that Pharma poison.....

    • @Yazzie101
      @Yazzie101 2 місяці тому +3

      Same here .. I did my own research as Drs gave me allergy meds that I react to… they have zero help advise so I turned to supplements myself!

    • @irisvandijk570
      @irisvandijk570 Місяць тому

      Omg same here, not to the vaccine tho, so either covid or something else. But the rest of your experience is so similar. They tell me it's not even anaphylexis which does my head in. You got further than me tho, they don't even want to test me. Who did your testing if I may ask?

    • @irisvandijk570
      @irisvandijk570 Місяць тому +1

      ​@@Yazzie101what supplements do you take and do you believe it's safe long-term? I'm looking at taking DAO supplements and low histamine probiotics? Maybe magnesium?

  • @christinawojtowicz2698
    @christinawojtowicz2698 4 місяці тому +6

    Nice to finally hear a Dr. That actually knows.and understands what we are going through !!!! Xoxoxo

  • @cindilacasa3291
    @cindilacasa3291 5 місяців тому +3

    Wow what a great interview. Thank you for having Dr Jill on here. I purchased her book and can't wait to read it. I've been dealing with MCAS, MIGRAINES AND INSOMNIA since having parts of my colon taken out. There aren't any doctors around me who understand and it's very difficult to deal with alone. So I really appreciate kind and caring people like Dr Jill. So thank you so much!!

  • @MishaLee
    @MishaLee 2 місяці тому +8

    Can MCAS be triggered by the Covid vaccine?

  • @shelcoller7893
    @shelcoller7893 2 місяці тому

    Truly appreciate you!

  • @Tinyteacher1111
    @Tinyteacher1111 2 місяці тому +1

    Excellent video! I’ve been dealing with toxins for 21 years, and now I have Lyme and can’t even go outside anymore!

  • @cornconnoisseur413
    @cornconnoisseur413 Місяць тому

    Great video!! Ive been trying to find more info about MCAS related to hEDS and this was the most enlightening video ive found so far..

  • @allisonForever42davis
    @allisonForever42davis Місяць тому

    Thank you for this interview!!!
    For a few months I am dealing with hives, always been healthy until this . This has been very eye opening and helped me with understanding all of what is happening in my body !

  • @maartje3262
    @maartje3262 Місяць тому

    Wish I could heal and know what to do foodwise 😢

  • @Tinyteacher1111
    @Tinyteacher1111 2 місяці тому +1

    How do you get tested for histamine intolerance? It’s it allergies? What about MCAS testing?I think my son has it after Lyme and Covid that he stopped his treatment for. His house with his father was just remediated (with enzyme foggers) for mold, but they are both having issues. They say it was tested after, but the didn’t put protective barriers on their beds, clean out the clothes that were in the drawers and closets.
    I’ve had mold toxicity before and now have horrible chronic Lyme and pain.

    • @ooblem
      @ooblem 14 днів тому

      I just was tested for histamine intolerance and mast cell activation (tryptase test) via blood draw.

  • @deborahakey9308
    @deborahakey9308 2 місяці тому +1

    I have LYME & the MCA is insane all over my body 😂 can’t live without Benadryl Thanks very much appreciated

    • @lyrical-feline
      @lyrical-feline Місяць тому

      I wasn’t aware of Benadryl. Have you found it better than quercetin? Thanks

    • @NicoleSandborn
      @NicoleSandborn 27 днів тому

      I believe Benadryl ongoing isn't ideal (I am NOT suggesting you stop taking it abruptly). It might be a good idea to talk to your doctor though and find a more suitable long term antihistamine or h1/h2 blocker. 🙂

  • @user-id2pz9sq1q
    @user-id2pz9sq1q 2 місяці тому +2

    If you get rid of the spike protein does the mast cells calm down?

    • @ooblem
      @ooblem 2 місяці тому +2

      I think so from my experience. I use milk thistle.

    • @behnamkhaki4986
      @behnamkhaki4986 Місяць тому

      @@ooblem did you develop MCAS after covid19 infection or its v a x?

    • @ooblem
      @ooblem Місяць тому

      @@behnamkhaki4986 after natural infection of Covid.

    • @ooblem
      @ooblem Місяць тому

      @@behnamkhaki4986 natural infection

    • @user-id2pz9sq1q
      @user-id2pz9sq1q Місяць тому +2

      For me the Covid but got worse after the vac

  • @ChronicExcessiveManliness
    @ChronicExcessiveManliness 7 місяців тому +5

    Great podcast. I was dubious at first, due to the fact that so many UA-camrs are jumping on the "disease" bandwagon (some are AI run) just to get hits and to monetize, but you both pulled though with current data and sincerity. A major roadblock to those with MCAS (or any "rare" disease) is the lack of knowledge by most doctors, so suffering patients describe their symptoms, doctors are unfamiliar, so they default to a "mental health" diagnosis and suggest the person goes to a shrink. And of course, the cost of meds (Cromolyn Sodium Oral for example, is $2600 a month in the USA) and many insurance companies won't cover them. So, by the time people get accurately diagnosed, they can no longer work, are bankrupt, close to or are homeless, and then stand almost no chance of improving. Anyway, well done by both of you...truly.

    • @jenfugo
      @jenfugo  7 місяців тому +2

      Thanks for hanging in there and sharing your thoughts! MCAS is a serious condition which is very under-recognized. I talk about many different conditions that impact skin including some that no one talks much about like Prurigo Nodularis + Grovers Disease in addition to other chronic skin issues. I have also gone through health struggles so I very much understand the situation you're describing. It's my hope that I can help connect someone with answers sooner rather than later because we don't get that time back. 💛

    • @maryr7593
      @maryr7593 2 місяці тому +4

      FYI: I found Cromolyn Sodium in a nasal spray form...called NasalCrom. The nasal route is a way to get around the stomach...since the drug is sprayed directly into the nose tissues. I found 2 bottles of spray for $20 at Walmart online in US. (I haven't seen my dr yet so was looking for an OTC mast stabilizer to try before the appt....proof that these meds are helping and hopefully by now (yr 2024), the dr will know more than when I started seeing dr in 2019.

    • @ChronicExcessiveManliness
      @ChronicExcessiveManliness 2 місяці тому +1

      @@maryr7593 Hope it helps...truly.

    • @ooblem
      @ooblem Місяць тому

      @@maryr7593 any side effects from NasalCrom?