I have been diagnosed with primary hyperparathyroidism, and I have to go get a sestamibi test. My biggest symptoms have been anxiety, depression, memory loss, sleep issues, and bad knee pain. I'm 55, and I find myself crying almost everyday because I don't think my family understands how horrible I feel sometimes. 😢❤
I’m so sorry you are going through this. Know that once you treat it you will feel significantly better. This is one of what is considered and “invisible illness” because there is no outward sign that you are ill, but you feel horrible inside. Please find an expert surgeon to quickly treat it.
For YEARS I`ve felt...not right to down right awful. I have joint pain, soreness all over, SUPER fatigued, depressed, high BP despite eating WFPB diet w/ ZERO sodium and exercising, heart palpitations (had Atrial flutter 5 years ago) etc. But I just thought that was from getting older (currently 63yr WM). Well, I checked my blood results from my yearly exams at the Veteran`s Administration and my calcium has been over 11.0 for 7 years! I asked the doc about it and she did another test for INTACT-PTH and PO4 and CALCIUM. My INTACT-PTH is 198.3! CAL is 11.4 and PO4 is low. So, for years and years I`ve suffered and suffered no one said a word or investigated further until i did my own research. And people wonder why veterans HATE the damn VA.
I m in the same situation as yours, 12 years struggling to find out why i have body pain i ve seen a lot of doctors during this period but none asked me to check my PTH until last year during a routine check up that i found my pth was high and everything else was normal.
I’ve had kidney stones for over 20 years. Been recently dx with CKD Stage 3A. Calcium has reached 9, but fluctuates. HPT has reached 134. I have a 5mm kidney stone and hydronephrosis. Vitamin D is 27 in spite of being on megadose for 6 weeks now and supplements for 6 months (was as low as 11 6 months ago). Depression, anxiety, fatigue, burning in my legs, terrible pain in my legs, yet feeling of lead in my legs when walking and legs won’t work right. Burning and heaviness in torso. Burning feeling going up my back. I feel like I’m in my 80’s. I’m 63. I could go on and on. Thank you for your videos, Dr. I wish I could see you in your office! 😭
Hi Erin, I’m sorry you are having so much trouble. I’d be happy to see you or you can arrange a zoom consult with my staff. Contact them at info@larianmd.com and they can easily arrange it.
Thankyou so much Doctor.you are like an angel for people living life of hell for years. My PTH was at 131 with calcium at 10.3, vitd 56, 3 year ago. Recently got it done again not PTH is 152, calcium 9.4 and vitd 34. Having symptoms of Anxiety, may be depression, Muscles pain, bone spur at Achilles tendon, bone pain, memory issues, feels older, fatigue, mood swings, Gallstones surgery done 2 year ago, fracture in tail bone etc but haven't had kidney stones so far. Pls suggest if above problems are due to Hyper Parathyroid and I'm right candidate for surgery? No parathyroid found in USG. Now doctor has suggested for Sestamibi Scan. Kindly suggest should I go for Sestamibi or 4D ct.
Thank you for your expertise in this disease. You’re a wealth of information, and make it easy to understand. I’ve had symptoms for years, and recently got worse. Osteoporosis, kidney stones, fatigue, bone pain, and more. My PTH is high, but calcium is on higher side of normal, so my doctor sent me for genetic testing, because my calcium is not high enough, my symptoms get worse everyday, but it’s taking too long for a diagnosis. Any suggestions?
Hi Renee, I’m sorry you are going through this. You have normocalcemic hyperparathyroidism with osteoporosis, as such you don’t need to wait. You need to see a parathyroid surgeon asap. You can either make an appointment yourself with one or contact my office at info@larianmd.com and I’d be more than happy to help.
For some reason there isn't much for hyperparathyroid on youtube. I like your videos because they are easy to understand. I'm having brain overload trying to figure out supplements for gluten intolerant/primary parahyperthyroid/osteoporosis.
Hi sir, i am Abhishek (age 33 ) from India. I had parathyroid adenoma surgery but after 1 month of surgery my pth level still rising 208 with normal clacium level 9 and phosphorus level 2.6. Pre operative satuts..Pth level- 788 , calcium level 12.9, and phosphorous level 1.6 . 3.2 cm adenoma was found but after 15 minutes of surgery doc checked my pth level , it was goes down to 40, and after 24 hrs of surgery it was 10. Now , it worrying situation for me , why pth level going upward . Please, sir i want your opinion on it…
I got diagnosed with HPT due to elevated calcium and PTH. I am scheduled for surgery in July. Now my blood test comes back normal calcium and normal high PTH. Is this still hyperparathyroid?
Yes, when you have hyperparathyroidism there can be occasions when your calcium will be back in the normal range, and others when PTH is normal. It is impotent to look at calcium and PTH together and follow the pattern to come up with the correct diagnosis.
@@LarianMD I am in Asheville NC. I've been struggling for years to get answers on my health. It has been found to be normalcalcemic HPTH. I have no insurance and wish I could see a surgeon like you to change my life. I am grateful for the help I have received but now I need the next step. The Dr's keep saying my case is perplexed to which I dont understand. I dive very deep into all this and I see I am not different than many others with this same diagnosis. Praying for guidance
Probably. If you have hyperparathyroidism then often time it is complemented by having low vitamin D levels. Correcting the vitamin D issue will not fix the problem
I noticed that ever since this started, my hypertension has gotten worse. I have both high calcium levels and high pth. Is the hyperparathyroidism causing my high blood pressure to be worse?
I have been diagnosed with primary hyperparathyroidism, and I have to go get a sestamibi test. My biggest symptoms have been anxiety, depression, memory loss, sleep issues, and bad knee pain. I'm 55, and I find myself crying almost everyday because I don't think my family understands how horrible I feel sometimes. 😢❤
I’m so sorry you are going through this. Know that once you treat it you will feel significantly better. This is one of what is considered and “invisible illness” because there is no outward sign that you are ill, but you feel horrible inside. Please find an expert surgeon to quickly treat it.
@@LarianMD Thank you for your reply. I am getting the sestamibi test done this Thursday. I wish I lived closer to your clinic. ❤️
I'm so thankful for you!
For YEARS I`ve felt...not right to down right awful. I have joint pain, soreness all over, SUPER fatigued, depressed, high BP despite eating WFPB diet w/ ZERO sodium and exercising, heart palpitations (had Atrial flutter 5 years ago) etc. But I just thought that was from getting older (currently 63yr WM). Well, I checked my blood results from my yearly exams at the Veteran`s Administration and my calcium has been over 11.0 for 7 years! I asked the doc about it and she did another test for INTACT-PTH and PO4 and CALCIUM. My INTACT-PTH is 198.3! CAL is 11.4 and PO4 is low. So, for years and years I`ve suffered and suffered no one said a word or investigated further until i did my own research. And people wonder why veterans HATE the damn VA.
I m in the same situation as yours, 12 years struggling to find out why i have body pain i ve seen a lot of doctors during this period but none asked me to check my PTH until last year during a routine check up that i found my pth was high and everything else was normal.
I’ve had kidney stones for over 20 years. Been recently dx with CKD Stage 3A. Calcium has reached 9, but fluctuates. HPT has reached 134. I have a 5mm kidney stone and hydronephrosis. Vitamin D is 27 in spite of being on megadose for 6 weeks now and supplements for 6 months (was as low as 11 6 months ago). Depression, anxiety, fatigue, burning in my legs, terrible pain in my legs, yet feeling of lead in my legs when walking and legs won’t work right. Burning and heaviness in torso. Burning feeling going up my back. I feel like I’m in my 80’s. I’m 63. I could go on and on. Thank you for your videos, Dr. I wish I could see you in your office! 😭
Hi Erin, I’m sorry you are having so much trouble. I’d be happy to see you or you can arrange a zoom consult with my staff. Contact them at info@larianmd.com and they can easily arrange it.
Hi Elin, darn autocorrect. Or I should say aunti Elin
Thankyou so much Doctor.you are like an angel for people living life of hell for years.
My PTH was at 131 with calcium at 10.3, vitd 56, 3 year ago. Recently got it done again not PTH is 152, calcium 9.4 and vitd 34. Having symptoms of Anxiety, may be depression, Muscles pain, bone spur at Achilles tendon, bone pain, memory issues, feels older, fatigue, mood swings, Gallstones surgery done 2 year ago, fracture in tail bone etc but haven't had kidney stones so far.
Pls suggest if above problems are due to Hyper Parathyroid and I'm right candidate for surgery?
No parathyroid found in USG. Now doctor has suggested for Sestamibi Scan. Kindly suggest should I go for Sestamibi or 4D ct.
Can you please tell me what it means on bloodwork results when it states that Tertiary is high and it also states hypercalcemia.
Thank You
Thank you for your expertise in this disease. You’re a wealth of information, and make it easy to understand. I’ve had symptoms for years, and recently got worse. Osteoporosis, kidney stones, fatigue, bone pain, and more. My PTH is high, but calcium is on higher side of normal, so my doctor sent me for genetic testing, because my calcium is not high enough, my symptoms get worse everyday, but it’s taking too long for a diagnosis. Any suggestions?
Hi Renee, I’m sorry you are going through this. You have normocalcemic hyperparathyroidism with osteoporosis, as such you don’t need to wait. You need to see a parathyroid surgeon asap. You can either make an appointment yourself with one or contact my office at info@larianmd.com and I’d be more than happy to help.
For some reason there isn't much for hyperparathyroid on youtube. I like your videos because they are easy to understand. I'm having brain overload trying to figure out supplements for gluten intolerant/primary parahyperthyroid/osteoporosis.
I’m very happy this is helpful. The only real supplements to take are vitamin D3 and K2. Nothing else really helps before surgery.
Hi I’m in the uk can I have a virtual
Consult with you please ?
Yes dear you can please arrange with my staff by contacting them at info@larianmd.com
thanks for this video.
You're welcome
Hi sir, i am Abhishek (age 33 ) from India. I had parathyroid adenoma surgery but after 1 month of surgery my pth level still rising 208 with normal clacium level 9 and phosphorus level 2.6.
Pre operative satuts..Pth level- 788 , calcium level 12.9, and phosphorous level 1.6 .
3.2 cm adenoma was found but after 15 minutes of surgery doc checked my pth level , it was goes down to 40, and after 24 hrs of surgery it was 10.
Now , it worrying situation for me , why pth level going upward .
Please, sir i want your opinion on it…
is there a correlation of people born with NF1 and getting tumors on their parathyroid?
I got diagnosed with HPT due to elevated calcium and PTH. I am scheduled for surgery in July. Now my blood test comes back normal calcium and normal high PTH. Is this still hyperparathyroid?
It probably is. I would have to see all your numbers to give you an educated answer.
Currently my PTH is 250. Calcium is 12.1. free calcium is 6.35. What should I do?
One more question can your levels go everywhere ip down then in range one min your hypo with bith pth a d calcium low then up again as mine
Yes, when you have hyperparathyroidism there can be occasions when your calcium will be back in the normal range, and others when PTH is normal. It is impotent to look at calcium and PTH together and follow the pattern to come up with the correct diagnosis.
What treatment for this situation
Generally speaking surgery to remove the abnormal parathyoid gland. Relatively simple surgery in the hand of a surgeon with interest and expertise.
@@LarianMD I am in Asheville NC. I've been struggling for years to get answers on my health. It has been found to be normalcalcemic HPTH. I have no insurance and wish I could see a surgeon like you to change my life. I am grateful for the help I have received but now I need the next step. The Dr's keep saying my case is perplexed to which I dont understand. I dive very deep into all this and I see I am not different than many others with this same diagnosis. Praying for guidance
Can i please ask does this disease afect your esr a d can it raise your tsh kathy
No it shouldn’t affect either that ESR or TSH.
Low VitD for 3 years. RX High VitD and now high VitD. Still have symptoms. Does that just mask the problem?
Probably. If you have hyperparathyroidism then often time it is complemented by having low vitamin D levels. Correcting the vitamin D issue will not fix the problem
I noticed that ever since this started, my hypertension has gotten worse. I have both high calcium levels and high pth. Is the hyperparathyroidism causing my high blood pressure to be worse?
Yes, one of the symptoms of hyperparathyroidism is high blood pressure.
I wish I could afford to see this dr.....
I did call Drs. Office and inquire.....one day 🙏