What It's Like to Be Diagnosed with Narcolepsy | WebMD
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- Опубліковано 18 лис 2020
- "I've been tired pretty much as long as I can remember," Judy Ferguson says. Three sleep studies and a difficult diagnosis later, she’s armed to advocate for those with this troubling condition.
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N1 here ugh… I freaking love the way you explained this. I have had police come to my car and make me get outta my car until they understand why I’m sleeping 🤦♀️the note idea is the best!!!! I’m so doing that now ! I’ve had N1 since I was 14, never knew what was wrong, thought u was going crazy. Now finally diagnosed at 55 and start meds this week . Thanks for sharing ❤️
I love how you were happy to find the answer and believe in yourself enough to use that car sign AND inform your coworkers. You are something else!!!
You are so lucky to be so complete about how you are feeling and accepting it the way you have. Congratulations
You’re not alone. Just received my diagnosis at the age of 48.
I am so happy that you get diagnose..for me they say it is epilepsy, i know it is not..waiting for the further diagnostic
Thank you for sharing your story and voice!
This is a great video and perspective. I’ve been wondering if I have some form of narcolepsy. It’s tough to get anyone to understand the level of “tired” that I feel. I want to power through and I absolutely cannot. It’s not just laziness or lack of sleep and one night of proper sleep will reset it. All these things you’ve described here are so similar to my experiences. I’ve had the hallucinations and I fall into REM sleep almost immediately when I nap. I don’t want to self diagnose either, I have the worst health care too so going to a specialist is a challenge. Anyway, thank you for this video. Let’s me know that I’m not alone.
I have the same problem but don't usually have hallucinations or idk because my memory is so bad i can't differentiate between dreams, things my brain made up or actual memories and sometimes I just fall a sleep in random places but everyone around me keeps dismissing it
I was thinking that I must not have narcolepsy because I can stay awake playing video games (usually) but after hearing her say she can stay awake drawing... not sure anymore. Still waiting the results of my overnight sleep study.
Wow! What an amazing video! Thank you for sharing your story! Just voted for you on the Webby Awards
it's good to know she's learned how to deal with all this
good and informative video
Hearing about your sleep paralysis gave me goosebumps because it's a lot like mine but I don't have any medication yet
I swear I've got narcolepsy, probably from years of abuse from eating a high carb diet and doing all nighters using bright screens playing lots of video games... I don't think my body has an inability to produce hypocretin, but it is inhibited from my poor lifestyle choices.
The same, carnivore is the way..i feel so much better
Thank you for sharing! Well done! Carry on even when it means Sleep on! 😁
I like her :)
I want to say a very big thanks to doctor Ben Uda on UA-cam channel for his marvelous work in my life...
Karate helps to control your body and mind and reduce effects a lot!!! 💕
Entering(submersion 3 times with a certain prayer and crossing yourself) in water springs of orthodox saints(which are near or in monasteries)give very much power and sureness to people with depression, panic attacks, Tourette sindrom,narcolepsy, schizofrenia and other soul illnesses before getting to the eucharisty that heals all soul illnesses. There are some springs of mother of mother of God that also heal all soul illnesses. Spring at the Monastery of st. Paraskevi at Tempi in Greece is one of many springs of saints in Greece and in Balkans. If you have chronic fatigue it is from masturbating, watching pornography, hate etc. 99% of all illnesses are from soul. Soul illnesses can be enherited or from sins. If you can not go to the church because of the illness you can call the priest to your home to give you eucharisty if you are baptised orthodox. If you can not go to a spring of orthodox saint you can buy sainted water and pour it on your self or sainted oil and apply a little on your fronthead
If you have diseases, bad luck, impotence, you can only have a discussion with the same person, etc. it can be from witch spellings. In the Zlătari church in Bucharest, every Wednesday at 17.00 it is read the akathist to St. Cyprian and st. Justin against charms and all demons. This akathist can be ordered at any other Orthodox church if you are baptized Orthodox.