An Orphan with Williams Syndrome and his Caregiving Grandmother
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- Опубліковано 7 лют 2025
- Pierre is an orphan with Williams syndrome (a deletion on the 7th chromosome). He is being raised by his grandmother, who is doing her best to provide for his needs in her retirement. Pierre started speaking at 7 years old, and has developed his own unique way of communicating as a now 11 year old. Pierre and his grandmother want others to know that it's okay to part with societal norms and connect with Pierre the way he prefers.
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The way that Pierre communicates is unique, but it is also fantastic. Think about this for a second… As mentioned in this video, he didn’t speak until he was 7 years old. Now he has developed a way to share his passions and interests, like New Kids on the Block! It is so important when a child reaches out for connection to make it a positive experience. If I instantly tried to make Pierre communicate in more “societally accepted” way before accepting and enjoying his current state of communication, he would only feel resentful for the lack of love and safety. For someone to reach their full potential, they must first feel safe, secure, and appreciated.
Chris can communicate with everyone in their own way!!!
Absolutely beautiful. This child is such a joy. Thank you so much for what you do, Chris ❤🙏🏻
Anyone who loves New Kids Or The Block, is a Friend of mine. What a great kid.. let’s give it up to Pierre and his Nana🖐🏼🙌👏👍✌🏼🤟🏼🤘🏼✋🏼🤚🏼🖖🏼👋🤙🏼🫲🏼🫱🏼💪
Brilliant connection Chris ! You're so talented at listening and reacting. What a wonderful Grandma who has also has had to deal with her own grief for her daughter.
You rock Pierre 😊
For someone who only started talking a year or two ago Pierre’s verbal skills are wonderful. Let’s give it up for Pierre!
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I was thinking the same! He's doing amazing, and I'm sure his communication will only get more and clearer too as you can tell he loves to talk!
Yes for him to be delayed in speech he’s doing very well
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Do you see a wonderful little boy and a very special lady? I do.
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Absolutely!
I love kids and would do anything I can for them, it’s amazing how they’re so happy and just keep going even after challenges that most people wouldn’t even know how to manage
Great comment 😍🤗❤️
This made me tear up 😭😭
What a beautiful woman, I always wonder why wonderful women like this are never on magazines as women of the year or sponsored by bigger brands. Why do we look at actors or athletes as hero’s when women and men are the real hero’s in this world ❤ These’s people are the inspiration that makes us better people ❤
Grandparents day poster right there.
People like my mom dude, I swear his Nana and my mom are so similar
I love this idea!
Amen!
So true. We live in a broken world
It was very sweet when he rested his head on her when she was talking about his mother passing
I noticed that too…he feels and knows they’re talking about his mom
I might be hearing things, but at 10:05, Pierre clearly vocalizes one of the most famous guitar riffs by Jimi Hendrix from the song "voodoo child". He heard and saw Chris imitate a guitar and referenced to it, this never would've happened if Chris didn't "open the floor" for judgment-free/ free form communication. That blew me away! What a special kid, indeed. Kudos to Chris and Pierre! You two were having fun!
he did the sweet child o’ mine riff after that too!!
@@normalguy246 oh dang good catch! had to listen again and it sure was
yes i noticed this too!
His impression of an electric guitar was actually spot on. Like indistinguishable. That was crazy.
Right?!
My daughter has Williams Syndrome(The Happy Syndrome) as well and one of their distinct traits is an affinity with music 💙💚
And the drumming!! I was blown away
@@AnissaTrivetteI like that you call it the happy syndrome. It certainly seems like they are all about just pure joy ❤
What a beautiful and loving person, is grandma. "Let's give it up" for her. 💛
He’s a beautiful boy with a beautiful grandmother.
This Nana seems so calm and soothing I’m sure that is just one of the qualities that helps tremendously. Pierre is so fortunate to have her. Wishing them the best always.😊
My goddaughter had Williams Syndrome. She was 6 years old and went in for eye surgery. Unfortunately, she passed away due to malpractice. She was such a light in this world.
I am so sorry for your loss❤️🩹🤍 It takes a lot to share that on a public platform such as this. I’m glad that channels such as this one are sharing people’s stories to raise awareness
That is sooo very sad💔 I'm really sorry for your families loss🙏🛐🤲✝️🙌🩷
Im so sorry for you and your family's loss 🙏🏾🙏🏾🙏🏾🙏🏾🙏🏾
What a beautiful voice this woman has... quiet, warm, deep... but not too deep, it would calm anyone down...I would listen to her for hours, in silence, with my eyes closed. Ideal for Pierre, who is funny, lively, very tender...
Isn’t she amazing. Such a calming presence she is ❤
@meggo4206 She could tell me whatever she wants with that voice: basically a caress with a velvet glove
Agreed!
Him saying “let’s give it up for…” and then listing all his favorite things is the absolute best hahaa now I want to do that
Lets give it up for…….you🎉
How lucky Pierre is to have a loving grandmother
Nana is SO cool and calm. Her energy definitely helps little Pierre feel comfortable. What an amazing woman ❤
Let’s give it up for Nana!! What an amazing woman with her beautiful grandson ❤ xx
With love from England 🇬🇧
Pierre has such good musical rhythm!!!
His grandma is amazing!
Hope he keeps learning new words and communicating in his own way!!!
I was thinking that, too, and wondering if he plays an instrument.
@@amrita4468 I think music therapy will help him he'll enjoy a lot !
Musicality is actually a feature of William’s Syndrome!
@@amrita4468 I think music therapy will help him and he'll enjoy it too !!!
My daughter has “Happy puppet” syndrome now known as ANGELMANS SYNDROME… besides the health issues she is the happiest girl on earth!! These amazing kiddos make life so much better!! Thank you for doing these videos❤❤
I have 2 angleman brothers and I clicked on this video originally because I thought it was referring to angleman syndrome
Didn't colin Farrel make a video on how his son has angelmans syndrone and hes setting up a foundation for people with the syndrone.
@kiragoe Yes, his son does have angleman syndrome, and he does have a foundation! 💙
Is this what Colin Farrells son has too? Xxx
@gailgreen2264 it is my brother who has a copy of the 15th chromosome. I think his son has a deletion of that portion of the chromosomes
I’m a special education teacher and watching your videos has helped me understand people with disabilities better.
I used to volunteer at a haunted house attraction with a girl who had Williams syndrome! She’s the sweetest happiest girl ever. We have the same birthday and even if I don’t see her for a while she always remembers to send me a voice note saying “happy birthday my birthday twin! I love you!”
"Neurodivergent children deserve friendship and the opportunity to be included."
That's absolutely right! It might take a little bit longer to understand them and communicate effectively, but its worth the effort and time. Often, they see the world in a way we don't, and letting yourself see the world through their eyes can change your life for the better, and lets them know they're valuable, important, and loved!
I think Pierre will make more friends as he gets older and his communication skills improve. That golden smile is going to win people over soon enough.
instantly adore this lil dude
A game of chess. And Chris is always willing to play. His ability to adapt and connect to those around him is truly remarkable
Grandma looks good, wise and loving
She’s amazing. I want to be like her in life.
That woman is one of the kindest softest people I have ever witnessed. God puts these people on earth for angels like Pierre.
Yes!
Anybody else hear Pierre do the opening to Jimi Hendrix Voodoo Child at 10:05 ? That’s amazing 😭❤️ he seems so musically inclined. He reminds me of my little brother sm. He was also speech delayed but one thing I noticed that helped him is when I started to center a lot of his learning around music. It helped tremendously. Seeing Pierre is being loved on by his nana and given so much room to explore and learn really warms my heart. Thank you Grandma for being so active in his journey called life, you’re raising an amazing little boy 😊
i didnt see anyone else comment about hearing voodoo child i was blown away! amazing how children can pick up on the world around them, I never heard of many 11 year olds that can do that!
I totally got Hendrix too! I was going to comment the same thing! I'm glad someone else caught it! I bet if Pierre was given a drum set or a kazoo he'd pick up a beat very quickly.
Knew I knew it from somewhere! 😊 amazing boy
@thesilverangel13 that would be amazing! I hope his grandmother sees your comment 🥹
@josephhih4218 I truly believe he’s gifted 🥹❤️
Pierre has an extensive vocabulary..what a blessing.
His guitar impression was spot on 🎸
He listens intently when she talks. I want her as my G'Ma!! 😢 Thank You for being Awesome!
Pierre may not always be able to express himself the way he wants to with words, but the way he put his hands on his nana and laid in her lap when she talked about his mother’s passing speaks volumes. What a precious little boy and wonderful grandmother.
Nana is an angel! People with Williams Syndrome are often called "The happiest kids on the planet". They are pure love, all the time.
She is. She's one of my favorite aunts
She is such a beautiful grandma.♥️
She’s beautiful and he is also beautiful
Thats my absolutely Amazing Auntie Sharon & cousin Pierre. So proud of them both. ❤️
Pierre is the most adorable kid ever! His verbal skills are amazing for only speaking for four years! Thanks for sharing him and his wonderful grandmother with us!
lol Pierre is like a little happiness generator: just keep him fueled and he pumps out constant positivity. He's full of music, too. I think they should take their duo on the road. :)
I am halfway through the video. Just have to comment how great Chris is with finding a way to communicate, connect, and have fun. I could see the child engage more. I greatly admire his grandma.
I think he would do amazing with music therapy and learning instruments. He spent a lot pf tine mimicking bits of songs he has heard. He has a great ear for music
Especially with his communication bwing in repeating things lick echololia
What a blessing that this handsome young man is verbal. My best friend has a son with Williams syndrome and he’s mostly non verbal. What a beautiful interaction with Pierre! He has special gifts. I hope that he will have a few good friends in his lifetime. He is deserving of love, safety and compassion. Thank you Nana..he’s an exceptional child❤️
He seems like such a sweetheart. His grandmother is doing a great job.
He’s so cute!! I always love seeing Williams Syndrome on this channel because they have such a positive outlook on life and it’s amazing🫶🏻
Pierre is adorable, God bless him and his grandmother!
Nana you have me crying happy tears for your willingness to learn and your strength to push forward.
Much love to you and Pierre.❤🥹😇
Such a BEAUTIFUL woman inside and out!! God bless her!! She is an absolute angel. Pierre is such a playful, happy, energetic kid. May God bring many blessings, protection, and happiness to this family. Sending love and prayers. Thanks for sharing your story. This made my day!! 🤍🤍
Let’s definitely give it up for nana!!!! What a wonderful woman!
Grandmothers are something special. Her grandson is such a happy kid😊
Nana is so lovely...I could listen to her talk all day she's so comforting.
His Gram is such a beautiful, patient & kind lady. "Let's give it up for Nana!" Absolutely ❤
Let's give it up for....Grandma! Such a beautiful woman of faith and hope. May God provide her with some RV time, she sure could use it.
Pierre is the BEST. Just got to love that boy. ❤
God bless this wonderful grandmother, it’s so clear how loved this little boy is.
Nana seems like such a lovely person. Perfect person to be in Pierre's care
what a sweet caring grandmother! pierre is a sweetheart as well
Chris you have such talent for communication! This Grandma is an angel having to deal with her own grief. Pierre is delightful.
He’s so cute!! I love Cookie Monster to Pierre!! I’m so glad you have an amazing Nana that loves and takes care of you!! You’re a strong young man making it thru heart surgery! Sending you love from Colorado! Praying God Continues to bless your lives
What a beautiful young man. I just love his smile. It seems he loves music and instruments. He has a very special grandmother. ❤️
What a wonderful woman his grandmother is. He is delightful!
I believe Pierre would love a music class! He seems gifted. It would be great if he could even go to someone’s band practice. I hope he’s watching a lot of music on UA-cam! What a beautiful child and grandma! 🎉🎉🎉
I love how Pierre communicates with "let's give it up for...." I think all of his statements were great items to celebrate! Babies, toddlers, New Kids on the Block, Chuck E Cheese, Paw 🐾 Patrol...I love all those awesome things too, Pierre!
Watching this video, I am reminded... I have been watching your channel since I was a teenager. I am now a caseworker who works with children with disabilities. And despite having no formal schooling or training regarding children, I am often told asked how I learned to "get through" and understand what children with different communication styles are saying. It's all you Chris, watching your videos has taught me that there are infinite ways of communication, and all it takes to "unlock" someone's language is patience! Very grateful!
What an adorable young man, that smile! I wonder if he likes to sing.
And Nana is a treasure!
Sending love to you both. ❤
I am so very impressed with this lovely lady....bless her and her grandbaby
I’ve seen people with Willams syndrome and they are the kindest people.
Pierre is amazing! I love how excited he is to tell Chris about the things he likes. And Nana is such an angel. Hope to see an update in the future.
This is a truly amazing woman and child - so much love and grit ❤
He’s so handsome and full of light 😊
Pierre is a miracle. He is not an orphan. He has a wonderful grandmother who loves him with all that she is. Such a beautiful soul match. ❤
Hey there Pierre! I loved your video, it made me really happy to see you and hear your story. You’re surrounded by a bunch of people that love you for you, and I think that’s fantastic!
Makes me wonder if he plays a musical instrument! Seemed to have rhythm! What a couple of beautiful souls ❤❤
Nana, may the Lord bless you for your labor of love with your grandson, thank you for sharing this, I work with people with special needs, and I learn something about how to improve my working with them every time I watch one of these .And sometimes I just need encouragement to keep going when its challenging or I feel burned out, watching these reminds me to stay positive and have joy in doing what God has called me to do in this wonderful calling and service to these precious people and in serving HIM.
Nana is so patient and loving. Pierre has a unique way of communicating. Such a wonderful family. ♥️
Hello from Florida! What a blessing to see all these wonderful people! God bless all!
Nana, you are love personified. Pierre is beyond blessed to have you.
Pleased to meet Pierre! And his wonderful Nana. Loved seeing Pierre smile after making a true connection with Chris.
You have a heart of gold man. I wish nothing but the best for you and for those whose lives you've touched.
Pierre seems like a cool, kind kid! And his Nana is awesome! You can tell how much love they have for each other. ❤️❤️❤️
thank you from the bottom of my heart for this channel. you made me believe in humanity again ❤ I love all you guys. thank you for existing. may god bless yall ❤
Pierre is so smart, it's just amazing. I hope he gets to do something productive in his life. You are so good with these people, thank you for giving them a voice, and sharing their life with us.
ive noticed people with williams syndrome have lovely voices
You are an amazing mother and grandmother. May God bless you guys with peace, love and grace. He’s precious.
The grandmother’s voice is so relaxing! Chris, you were so great in figuring out his communication/pattern. Very impressive
He is a very sweet, happy, smart young boy. His grandma is the sweetest, most loving, caring, and smart person. She has a lot of qualities like my perfect grandma.
You are so good with this precious, happy boy!
Aloha 🌺 What a wonderful Nana & Grandson! Such a loving nature. Thank you! Please take care! 🌺🥰❤️
I will forever look up to you Chris your the reason I wanna work with people with Disabilities ❤❤❤❤❤
He definitely knows what he is saying! I love this kid.
🎄♥️Merry Christmas, dear wonderful angels friends. May God bless and protect you all... Thank you so much for sharing your great and wonderful video with us, dear Chris! Like 👍🏻 and shared with love ♥️♥️♥️💙💙💙
What a wonderful granny ❤ bless her, her demeanor is amazing. Blessings to this sweet child.
What a lovely woman!! She’s blessing Pierre more than he can understand, but the love he has for her is very sweet.
What a amazing boy!! Hoping for your family for prayers and blessing for all.
He's adorable already!!!
What a sweet young boy. Wishing him all the best. Unique communication style with asking questions and turning his back to the person he is talking with.
Lets give it up for Pierre, Nana and Chris!!
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What an adorable little boy. He's very out going and has a wonderful smile. Nana, you are beautiful and you're doing a great job with him 🥰
It is amazing how you communicated with him. You could tell he was having fun. And u was so impressed with him grandmother. Beautiful interview.
Guitar playing was soooo cute❤
That smile Pierre has makes my heart so joyful!! God bless him and his WONDERFUL grandma?
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So much love to everyone in this video!!! ❤❤❤ Nana, you are instantly one of my favorite people and your faith in God’s plan and openness to go where He leads is so inspiring!!! Thank you for sharing your lives in this video. ❤
Amen!
very sweet interview. i did have a wee chuckle when pierre said "let's give it up for toes!"
What a heartwarming interview. My son has different developmental issues than Pierre, but I can't say enough good things about the Special Olympics organization. It could be a great way for Pierre to continue to improve with social skills, make friends and have fun playing different sports at the same time.