A Day with Jeff - Technology and Essential Tremor
Вставка
- Опубліковано 29 вер 2015
- At Google, we care deeply about the power of technology to change people’s lives for the better. We’re particularly passionate about the ways in which it can impact users with a range of disabilities. In this video, Jeff’s daily experiences and challenges living with essential tremor help us understand how the innovation happening both inside and outside of Google could close the gaps and make a fundamental difference in people’s lives. Learn more about accessibility at Google (www.google.com/accessibility/) and the Google Impact Challenge: Disabilities (www.google.org/impactchalleng....
- Розваги
I have a familial tremor. I will be 59 in June and have never known what it is like not to have it. They say I got it from my father. He had a similar problem. I have coffee in what I like to call my adult sippy cup. Without it my coffee would be everywhere. I can feel it coming on sometimes. When I am nervous it makes it worse. Sometimes I can get so frustrated and angry about it.
This video moved my heart, I had my wife watch it with me. I don't have it as bad as he does but it is still very prominent. I remember being chastised by my German Grandmother as to what was wrong with me. My father came to my defense with it explaining that it was not my fault. My father is long gone but I will never forget it. My heart goes out to all who are affected by this. Thank you for this video.
Hi Timothy, my dad also tried to be supportive of me as a little guy when I was so uncoordinated and shaky. I found that the older Contigo insulated "Twist-Seal" thermos mugs were great. The snap lid ones are easy for me to spill while trying to pop the lid but the Twist-Seal ones were great. I wish they still made them. 🙁
I have essential tremors and its been 50 years without any help. I wish their was a way that we could share our experiences. I believe I've tried everything I could, from medicines, weighted utensils, booze and creating my own gloves that didn't work. Watching this video, I have the same intensity that Jeff has and its very hard to be independent. I'm certainly tired of being fired from doctors care, because of no cure.
My E tremors started when I was 28 yrs old. I am now 72, but my tremors aren't as bad as Jeff so far. I keep thinking about Ultrasound for the tremors. I would love to talk with some people who have had it done, and how they feel after 2 years.
I'm 75 and I was diagnosed with essential tremors about 20 years ago. My children noticed them long before I did. Even today I'm sometimes surprised when someone asks why I'm shaking, I don't even realize I'm doing it. I see in you many of the same difficulties I have, eating, writing, texting. I've learned to cope and adapt, most of the time. Thank you for sharing your story. And I've found that anxiety makes it worse, a sense of humor makes it better.
My tremor started when I was 12 and I'm 21 now. I whent trough my teenage years with a tremor and it has made me incredibly insecure and socially anxious. I've given up trying to find a cure because all the medicine I tried makes me feel bad. I now started to practice confidence . I hope that if I'm less stressed and nervous it will not be as bad. My biggest fear is that it will become as bad as in this video... this really made me cry
Im sorry to hear you are having this too! What medicine have you tried?
I am so sorry that you got it in your pre-teens. Kids are so brutal at those ages! Mine showed up in the Third Grade and I can really relate to your insecurities. Growing up being picked last for all of the elementary school play ground activities sure doesn't inspire confidence! :( I am blessed with a sweet wife now that not only helps me by carrying the glass of water to the dinner table, but also is constantly encourages me.
@@shakyslim Wow! I hope I will find someone like that someday! Also its been about 1 year ago since I made this comment and I'm a lot more confident now! I've spoken to a lot of people with ET and I even joined a support group at one point! I tried to ignore my ET in the hope that it would go away, but who knew that actually doing research and talking to people would help so much... yes it still gets me down sometimes but I have better ways to deal with it now.
Yes, Knowing more about it is so important. I am so glad that you're feeling much more confident now!
@@shakyslim its so embarrassing to have ET in your head/neck. I get head tremors from the age of 14-15, im now 45 and they are not present all the time but even an eye to eye stare can trigger my head tremor, or when anxious or when i simply need to stay still taking a photo or when at barber(i never go, im balding now and i cut it bald). I dont have a driving license, i dont have a wife, i have nothing and im nobody! ET with anxiety issues is hell!!!
Believe it or not Jeff, your Essential Tremors are mild, compared to mine. I was on Primidone for 35 years. I started at 50mg a day and it did help. As time went on the tremors got worse and the the dosage increased. Fast forward 25 years and I was taking 1500mg of Primidone a day and the Doctor told me that is the max he can prescribe.
One day 5 years ago a friend told me about DBS Surgery. My Doctor had never heard of DBS (deep brain stimulation). I called the hospital to talk to somebody about DBS. Four weeks later I was talking to the Doctor that performs the operation. After a series of tests it was determined that I was a good candidate for DBS Surgery. Six weeks later I had the 7 hour surgery. For me, the recovery was extremely painful for about 2 months but having lived - sorry - existed for all those years I would go through it all again - in a heart beat.
It's been 5 years since my surgery and at least 95% of my tremors are gone. I should say, controlled. No more medications.
Ask your Doctor about DBS. If he doesn't know contact your Hospital and ask for the Neurology Department. Tell them you want to talk about DBS and Essential Tremors.
DBS surgery has given me my life back. BTW, I was 61when I had my surgery.
I wish you well.
Massive congrats on the surgery I'm 14 and it's rly mild
But I have a talk at my school and I have to talk for 10mins and I k ow my head will shake
Like I manage the eating w cereal but the head I wish would just go I its so embarrassing and I rly don't want it to get worse gald you are better tho
How was it painful. Imhaving it done but scared.
@@victoriaelisabeth866 All I can say is: Would you rather shake or not and have your life back. My recovery was very painful. I have talked to others that had DBS and their recovery was not painful. Every person is different.
I wouldn't let a few weeks of pain stop me from having my life back. I have been "Shake Free" for over 6 years. For ME, nothing could stop me from having the surgery.
There are side affects. I have 2 side affects. They don't bother me to much. One is my speech has slurred somewhat over the past 6 years. It was fine for the first 4 years and then it started to slur. The second is: My balance is off a bit. Sometimes I don't feel real steady on my feet. So far it is quite manageable.
I surely didn't mean to scare anybody regarding the pain. Each and every person has to make up his or her own mind and weigh out the possible side affects.
@@teddyfield2164 Hang in there Ted. Sometimes people are cruel. I used to get asked all the time - are you nervous? My hands and head shook all the time. I used to tell people I make great milk shakes, lol. Once in awhile I would get a "Mr know it all" who thought he knew why I shake. After listening to some BS I would tell him: A lot of people with an extremely high IQ tend to shake. That's not true, but that guy didn't know that, lol.
Hang in there Ted. Try not to let people bother you.
@@DC-jb7oz lol
thank you:)
It's been a lot better lately and I hardly ever shake
Hope you continue to feel better
I'm from Madrid (Spain) and being diagnosed of essential tremor with just 17 years old was hard to me because actually I´m 19 and I find really difficult to do some things such as write or even eat and it's becoming worse.
I have to say thanks to Jeff the one in this video because he gives me hope and also a humorous way to see this disease although I'm accept it a bit more everyday.
Thank you so much
just keep calm u can succeed in life who know you might be good at something
Jeff has people to help with is essential tremor
I know it's ver difficult but keep on being who are love ur self
who cares if people make fun of u. u are a person and Noone should make fun of u
+jemily 080933 thank you so much for your words and your supporting you are completely true! Thank you! :)
Pauli García photo credit
Did anyone ever diagnose the reason for your tremors, my daughter has a tremor in her arm but no one can find the cause of it.
I got essential tremors at age 65 but now at 75 i am getting internal tremors not very nice but the essential tremors are not so bad now, i have noticed since having essential tremors i feel the cold more also my muscles twitch all over my body not easy trying to sleep . Tablets help a little.
i was on Depakote for 7 years for a seizure disorder This is how Depakote affected me it caused massive weight gain, memory loss, a severe hand tremor a one point i stoped eating i had no appetite i was severely depressed and suisidal . i was taken off but still had a small tremor this is my personal experience of the medication and i know that everyone will react differently to any kind of medication
now i have a tremor in my left hand as it is my non dominant and my right hand also shakes not a big shake but i can feel it even if no one sees
How can he still drive? Im trying to learn to drive but its very difficult even tho my tremors are a lot less significant, but im also shaking from my legs thats probably why
Thank you for sharing Jeff.
Highly appreciate Google for doing it very detailed. I feel like speaking with him personally and replying to my questions.
That is SO horrible (I am heading that way at age 46), but this man's (and his wife) attitude is 10/10. Well done you guys, that must be so very hard for you to deal with & you're truly amazing. My thoughts and prayers are with you 🙏❤
My neighbor has essential tremors. He had an implant that helps tremendously. It's similar to a pacemaker. It stimulates part of the brain that triggers the tremors.
This made me laugh and cry, Ive had it for as long as i can remember, certainly quite noticable from very early teens, and has got worse over time, now in my 60s and work is definately becoming a struggle, with a cycle of frustration making the problem worse, and writing is becoming more and more impossible, i am on my own so thankfully most people dont get to witness the daily problems
My doc prescribed Xanax, and that helped so significantly. Everything is so much easier to do!
Have you tried Cal Trio? It works for me amazing.
This is really sad
May God Bless you and your wife
Jeff is a hero
To those who disliked you're horrible people
Maybe they disliked the video cause they dislike this condition!?
@@AexoeroV good point but disliking a video is not the way to show support
@@aceadge9351 i agree but who knows what is in peoples mind! If they disliked it for any other reasons they indeed not good people, its so much constant frustration and psychological pain in such diseases that many cant comprehend.
Kinda know how ya feel Jeff........May the Good Lord Bless You!
i can identify . especially eating with plastic utensils and with hand writing which becomes impossible . sometimes holding a coffee mug it spills all over . like there is a tsunami in the cup .
I have this when i get nervous. Trying to rack pool balls and pull the rack away in a tournament. Or trying to fill my water bottle at the gym. What happens if you close your eyes?
I had tremors as bad as this guy and I went for deep brain surgery. It worked wonders I have almost no problem with tremors anymore, Sure it was scary as hell but, it was worth it.
He is lucky to have such a great wife. Do muscle relaxers work as well as alcohol without the negative side effects?
Alcohol is definitely the most effective chemical for relieving essential tremors in my opinion. When I first discovered its ability to take away my tremor in my late teens it was like a miracle, it would make it so I had absolutely no tremor and I could draw, write with perfect penmanship, and play the guitar ect... over the years though it loses its effectiveness. Of course it has its side effects, and besides the physical side effects it can you cause people to look at you in a certain way even if you have just had one drink before going to work or school where you need fine motor skills, even if you try explaining your tremors most people just will not believe you. For me muscle relaxers (Tizanidine) do not help with the Tremor when taking it, and also after taking it for consecutive days my tremors will be worse after, especially if I stop taking the muscle relaxers.
Have the same kind of tremors, have you tried Betablockers?
Focused Ultrasound is now available to provide relief for your tremor condition, and I’m confident you know all about the treatment and have probably undergone the procedure! If so, I hope you’re happy with the result!
Hello,is it a permanent cure?
@@AexoeroV Benefits have been shown to last multiple years
@@omrifunaro and then you get back the shakings? Does it work for head tremors too or just hands?
@@AexoeroV Not necessarily, but there is no published longer term data yet. There is no information regarding effect on head tremor. I recommend pursuing more information by checking out the company website or contacting one of the many treatment centers
@@omrifunaro thanks for the answer, whats the company or their web site?
I have essential tremor and am 61 nearly 62 now (Aug. 2019). It is painful to watch Jeff struggling and he has a great attitude but it's not fun. Mine may not be quite as pronounced but I am considering Deep Brain Stimulation surgery that would help my dominant (left) hand function more normally. It is of course scary to think about surgery but I think my quality of life and emotional life may improve considerably. No meds. seem to help it and I'm not a candidate for Focused Ultrasound which though causes permanent change to the brain while DBS is reversible if necessary. It's all scary stuff to me.
Hello, why you are not a candidate for focused ultrasound?
Shawnmelreed@gail@gmail.com
Hi
Rmelanielynn252@gmail.com
@@AexoeroV I would never ever get focused ultrasound.
if a depressant like alcohol works, is the issue some type of neurological overstimulation?
So far as I know it is caused be the motor neurones in the brain firing when they shouldn't. At least that is what I understand of the science side. Can say from experience though that it gets WAY worse if I'm stressed, angry or upset. Anti depressants also make it a lot worse too.
So cute couples
I'm so nervous
I found that the best thing for me was methadone because it has a slight depressant effect, on top of its boost in dopamine, and it helps keep me from drinking to much, although now I am unable to get it due to the "opioid epidemic" scaring doctors into prescribing only very small amounts or none at all.
My
Propranolol has helped me
Sure it works
Has Jeff considered DBS?
Perhaps his Doctor doesn't know what DBS is. My Doctor didn't know. My Essential Tremors are much worse than Jeff. I was taking 1500mg of Primidone per day with little affect. I had DBS 5 1/2 years ago. 99% of my tremors are going after I turn the stimulator on.
I got Tremors and I'm only 45 please help
There is help for ET. Primidone, targeted ultrasound, deep brain stimulation, nutritional changes etc...and taking a GABA supplement...
@@kontopoulos3107 Gaba supplement, reducing or eliminating caffein.
8665
Beta blockers is a temporary solution
Beta blockers made my bp dangerously low.
Does weed help?