Living with FASD: Myles Himmelreich
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- Опубліковано 22 кві 2013
- Myles speaks to what it is like to live with Fetal Alcohol Spectrum Disorder on a daily basis, what his journey has been growing up, and what he needs in order to have success today.
I had no idea that there was an entire community of people just like me out there in the world. Im 28 and as of this year I'll have held a steady job for almost 4 years. Repetition has been key to my success there. I do learn best hands on. There are basic things like driving a car or managing my own finances that I don't do. I want to drive and have that freedom to go do whatever I want. I just keep working hard and trying to get a little better each day
Wow!! This is the answer I’ve been looking for. I can completely identify.
My mum drank while carrying me, I have problems remembering things. I also need to have a set routine. Good to know I'm not alone.
i have fasd,adhd,and ocd you just have it easy my friend and it is a good thing too i need a person with me at all times. i love your efforts to try to over come it
Breezy o
Breezy I’m alone
His voice is so gentle and sweet. Loved his dry sense of humor too! :) I was hooked the whole time.
Myles, well done son, clearly put and spoken by an expert on FASD, YOU. You are doing the best thing you can, spreading the word. FASD as you know is nick named the invisible disability and by experience it truly is just that. Good luck m8
i wish my brother was alive to see this. He had fas and i use to cry everytime i try to teach him somthing and he would forget if we took a 10 min break.
i miss him soo much.
he is not alone i have fasd,adhd,and ocd. you just take it easy my friend. i need a person with me at all times. i love your efforts
i express my sorrow to you because of your loss
I can not thank you enough for sharing your life's experiences and struggles!! I am the mother of 3 amazing children, all 3 by the gift of adoption, all 3 with special needs, 2 of which have FAS & FAE. I am continually searching for better understanding of the challenges they are going thru and ways I can help them be over comers in the fight. Your speech helped me more than you can ever imagine. I was searching for something today in desperate need to help my 13 yr old son with some struggles and came across your video. I have a renewed encouragement and understanding of how to better support him thru this time in his development. Thank you and God bless you as you continue on your journey!
Another one of God’s blessings 💟✝️💟 Love from Australia 🇦🇺
out of the ashes rises the Phoenix - you are that Phoenix Myles - well done !
+Joodi BlueEyes What a lovely metaphor!
He seems smart and has a great sense of humor
Myles, you are an incredibly articulate and sensitive man who is a true inspiration in every way. I got here by accident, as I was wanting to learn more about this disorder after seeing a young boy on TV., however, finding you is serendipity at its finest.
I have been searching all over the internet for probably a couple of years to find another story similar to mine. I could never find one from our pov, it was mostly just scientists and foster moms perspective but never the person that actually had fasd. I got frustrated because I saw videos with other more common disabilities and they had huge community’s and support systems from millions of people and a couldn’t find one single source that had there own story about fasd and there struggles growing up until I stumbled upon this video. I just want to thank you for putting your voice out there and sharing your experiences it made me feel less like I was the only one who had such similar struggles. Certain parts of the video triggered me but I’m so grateful that there IS and fasd community and I’m hoping and praying that it will grow. Maybe one day I’ll be confident enough to share my experiences too.
I just made a statement on fb about this very thing. I recently found the how to ADHD. And it's similar things I deal with since I also have that. But with people with FASD it's different and..
there is nothing out there. Where is the ted talks the speeches the There is talks for ADHD for ASD but not FASD
From Parents to parents about it but does that help us?
It was so hard to find anything. Any success stories and it's been really upsetting to see. Very glad to have finally found this.
Crying my eyes out Myles. You are such a wonderful person and such a loveable man! Bless you! You’re amazing and so smart and insightful!
He’s turning his abusive childhood experiences into a gift for other kids and adults. Such a blessing.
So glad you shared this! I now understand my adopted son. I like your honesty and the way you explained your feelings. Keep on speaking about FASD!! You are doing a great thing
A Mom
This is incredible. As a mom (adoptive) to two with suspected FAS, I cannot tell you how much I appreciate this and how much insights and knowledge you have given me to help support them better. Thanks Myles
Myles was a kind person who just wanted to be wanted and loved......and his so called "friends" took advantage of him
I have struggled for over 69 years with FASD. I never could find any resources to help me.
What an amazing person! Great orator. Keep doing what you are doing!
Wow... you are amazing... communicated such a touching soulful speech and food for thought x thank you
i have FAE and it's hell...
words alone cannot describe the depression i feel every day. my friendships, family life, personal relationship...all crumbling, and a tough economy for the average joe is a nightmare today for me. i just turned 36, and as well as i am doing compared to others in my shoes may be seen as some measure of 'success' but it's a sad thing comparing it to a normal person.
i'm slipping hard and i don't know where to go...i need help
Please go to an AA or Al Anon meeting and please share your experience and you are looking for and needing help. The people in those rooms will point you in the bright directions to obtain the help to find a solution. They will not be able to help direct except by way of emotional and spiritual, but will know where to look for the rest that you seek and need. Best of luck my friends. My name is Q and I am an addict.
Love. Pay it forward. True help I can never pay back.
Q
@@economynotstable Sorry for my ignorance on FASD why is the life expectancy only 34?
@@kr1221E I think it’s cause they get into a lot of accidents, risky behaviour and get into addiction
Do you know how to make everything o.k.? I too am making this hard for myself but when/if we come out of this it'll be okay.
Wow, the message is extremely powerful and the speaker has come full circle. Keep it up!
Definitely a superstar.
Thanks for sharing.
What an excellent and well spoken presentation. I understand and can reflect on these matters with something closer to a personal familiarity now.
Thank you for helping us to understand FASD.
Thank you for your courage to speak out and bless you for helping others.
Thank you, Miles. You have helped me grow personally and in understanding my grandson. Bless you.
Thank you miles for sharing your story it gives me a little bit of an understanding about my adopted son 💓.
What a great speaker you are! Very interesting. Thanks for sharing your story.
Thank you for sharing your story.
Born to be who you are dear Myles! You made me cry, you made me laugh, you made me take so many notes about all your beautiful speeches and lines, you made me clap my hand sitting in front of my computer, and you are definitely helping and supporting in Changing the World and make it a way better place in regards to FASD! Love you brother! God bless! 👏👍💝...
What an amazing speaker! Thank you Myles. This is indeed what life is all about. Working with who we are, and making the best of it
Thank you for sharing your story. It gives me insight as a parent.
My daughter and son are adopted and my daughter is probably a person with FASD, something that I've figured out only a few months ago. I'm still strugling to get a correct diagnosis. It's very difficult to deal with a condition that almost no one knows about (usually the professionals and educators here in Brazil know only about FAS). She came home when she was 7, had a lot of terapeutics help (for ADHD an behaviour issues) but there has always been something more and things we haven't been able to explain or understand. She's almost 13 now. It's kind of shocking - and also gives me hope - to see a lot of similarities when you described school years.
Bravo! What an inspiration you are! God bless you! I got so much out of your talk; I especially liked the part where you shared about the importance of loving oneself first before we can accept love from others.
Thank you, I love your poem
So inspiring Myles! I really enjoyed hearing your story well done!❤️
You are an inspiration!
Keep up the good work. All the power to you.
You are a courageous man! Congrats on being so strong and overcoming such adversity!
Excellent, very personally helpful; stay well.
Thank you so much for your presentation. I believe my son has FSD, he is 24 now and really has no goals. She always struggled particularly with math in school and he had some odd personality quirks. You have helped me to understand Just a little bit of what he might be going through. God bless you
Thank you for sharing your story :-)
This is so relatable. I was diagnosed with. FASD Myself. ARND I believe is the diagnosis?
I was also diagnosed with inattentive ADHD. Also and that was the one I remembered. So that's what I told people. And Trying to explain. It. The lack of understanding things. Being unable to verbalize. And being unable to remember something I just learned...I was also put in we called it special education.
You have done an amazing job. Explaining. And telling your story. And thankyou for sharing. 💗 It's a great encouraging thing to hear
Makes so much sense, the part about being thought of as just lazy, but if he’d tried to object he’d have to’ve admitted he couldn’t do the work. So, he just accepted it and acted the part. It really sheds a different light on what we think of as learning disabilities. A child who has a problem with memory, like so many FASD kids do, wouldn’t be helped by traditional LD teaching techniques. *It made me really angry that a religious family, in particular, would kick their 15-year old out of the house. Their failure to provide for his needs, to where he had to drop out of school, is astonishing. It’s also illegal.
I wish i found this a long time ago explains so much
Thank you.
Thanks Myles!
Awesome job 👏
i hope to be so good at speaking like he is
IT seems as if you did not get the proper assistance you required at school nor proper accommodations for class work. You should have received speech as well, to help you learn how to say what you mean. You are very clear about your problem and can help teachers and parents and kids how to overcome your disability. You speak well, and make yourself understood succinctly.
I am 24 years old and when I was born I was 2lbs 14oz premie and I recently found out I have FASD an in going threw what this man is and its not fun :(
an ADHD an exsiady and borderline intellectual functing an a list of stuff all because of my dead beat mother
What an incredible young man.
7:09 P.M. Thank you! I
I struggle with FASD...... while growing up i couldn't really do what a normal person is capable of.... `` I can't go to college or University or move out on my own I have to get someone to always take care of me and FASD gave me a different type of face then most normal people have and when I'm older i wanted to start a family but I realized I couldn't make one because of FASD.....
your not alone i have fasd,adhd,and ocd you just have it easy my friend and it is a good thing too i need a person with me at all times. i love your efforts to try to over come it
steven quill people with FASD can't have kids??
Well i\m not sure everywhere else but thats what it appears where i come from
steven quill
Yes
I hope you have good people who you can trust. You may always need some support. You can still learn and grow. Everyone has strengths.
I'm in Washington, D.C. Similar story...I have depression a lot and no established home or place...in and out of college...still trying to go back. Don't really feel I have family friends or significant others...I wanted suicide a month ago, I'm taking addium, thought it would work...I want to feel loved too, basically someone to be close and concerned. Jeez I thought fas was gonna go away as I got older...nope.
Awestruck.
Lloyd p
So... the fosterparents knew he had a mom who drank during pregnancy but didn't seem to do a lot with that knowledge in quiding this young fellow. Thàt makes me angry, because it left this kid stumbling through live ànd hasically kicked him out of the house :(.
So, he has a lot of strength managing himself the way he did, basically all by himself.
Impressive.
This happens a lot in Canada. Often these adopted kids are ethnic trophies for white Christian families, so they can parade around their "Indian burden" and show how they're reforming the Indian inside him, like good Euro-Christians. There isn't much incentive for the families to actually help, because he's there to exist as an ethnic failure (and make white Canada look good).
I'm not exaggerating. Try living up north here.
Hi M y l e s, I'm making this comment because I need help as soon as possible. And it was wondering if I could talk to you or meet with you in regards to my 30 three-year-old son, who was diagnosed when he was about 15 years old, finally, that he had not only F. A. SD but AD HD severely and several other disabilities. But those were the 2 that we focused on when he was younger. Because we didn't know what was wrong. We had adopted him from social services and found out that his mother had continued drinking and drove in during the pregnancy. So Peter ended up suffering with all these disabilities. We've managed over the years, me and my ex-husband but it's coming to the point. Now, what are we need help? I'm 66 and just had a stroke during the Pan. Demic, so it's left me in a wheelchair. I am trying to desperately still live independently, but it's hard because I'm still having to care for Peter. I guess me and my ex kinda did things wrong and just did what we could to survive another day. So I guess in a way we.
Empowered him a while later. You say it trying to keep him out of the.
Legal system You know, wanting him to get a career or a trade. But nothing we did seem to work. He's not a bad person. He's actually quite a nice guy. He does help his friends out a lot. But I've been telling him Peter. I could really use your help. I'm just able to know forever and I need you to help me but he doesn't hardly ever. He calls us horrible names, me, and my ex-husband is really hurting my ex-husband he called me today and said that he believes he's gonna end up in emergency or dead because he can't handle the stress any longer. So that's what I'm reaching out to find out if there's anything we can do to get him changed back around and all. Or is it too late and we just have to let go? And whatever happens happens. I didn't want to do that because I worked with people like that. 420 years and I know how it turns out usually.
If you can. If you want to call me , my number is 3065366033 and I live in regina , and i'm always home , usually , ha ha ha
I have FASD and im in a program that is called the rights program and the other kids did drugs and i think to my self i do belong here
Lina !!!!! Are you still in that same program now. You have a disorder you should not be punished with kids who messed up and did drugs that’s not fair and makes me sad. I hope you are doing well anyways.
I'm sorry that Myles' mother was negligent. He and I have different abilities - not disabilities - I'm an autistic published author.
hi
He absolutely has the facial features though 🤔
Chicken and bread help.
Why arent the mothers jailed for doing this to their children?
Justin Hill Well that is blatantly obvious. The question really is why aren't there laws to prevent this disgusting behaviour.
+John Smith from just one comment i can already tell your extremely religious, well done
+John Smith from just one comment i can already tell your extremely religious, well done
Up until recently women were told that one glass of wine a day was healthy.
Because of legalized abortion. The fetus isn't legally considered a person, even though they biologically are.
He's cute though
I feel for myles, birth mothers of FAS should be treated as criminals.. Locked up
what a moronic suggestion.
Many birth mothers who drink during pregnancy have FASDs themselves and don't have the ability to control impulses or to make a plan to keep from giving in to addictions. The disabilities they were born with didn't go away just because they got pregnant.
Getting non-white women drunk is the way of the Canadian family.
Good luck trying to be sober, especially if you're not white, here in Canada. Drinking is mandatory.
Yeah yeah - OR we could prohibit alcohol !!! OH NO
As an adopted child myself there should be an avenue for sterilization with women like this... This sounds harsh but obviously they have no business procreating
What a snooze fest. This guy is not a good story teller
He has a birth defect, please give him a break, he is trying to help people.
I think he's doing great, maybe you schould listening to what he is talking about
@@casperasthebest BOOOOOORING