I just wanted to thank you for this video. Because of you sharing your experience I was able to track down Dr.T and had my closure one month ago today. I feel like a new person and have been given my life back. You were an important piece to my healing, just by being you. Many love and thanks to you. ❤️
Allie!! I’m so so happy for you, my noblestitch sister! Thank you for sharing with me, I’m so glad I made this video if nothing else, to encourage you on making this decisions. I know it’s one that I am most grateful for that I made in my life. Yes, I truly understand that “getting your life back” feeling and cheering for you!
I'm so glad you are back and the procedure went great! It sounds like you had a great experience 👍 I cant believe you were awake the whole time!😲 I'll be praying for your fast and easy being back to your "normal"🌼
I’m so happy everything went well for you! You seem to be recovering wonderfully🎉 I’m really glad your sister-in-law was there with you. I was worried you would be there alone. I bet it was hard to not lift up your little ones up for hugs when you got home!
I may need to close my PFO that I never knew I had all my 52 yrs of life until 4 days ago when I had a stroke(TIA) that I was hospitalized for and with so many tests - 2 angiogram CT scans, one MRI of brain and one echocardiogram... I was diagnosed with PFO, which caused my TIA. I had a previous TIA in 2009 with my right eyesight going black... Anyways... besides having stage 3 CKD ... cancer 2 times, severe Raynauds etc etc the list goes on.. finding out 4 days ago I have PFO is a lot to take in and something new for me. Everything I've been through is coming together... i.e, all my symptoms... everything. After having my 2nd TIA due to PFO.. everything is moving so fast, which is good. I want my now "extended" medical team to help me and patch me up so I can confidently resume my positive lifestyle without fear of another stroke or a heart attack Thank you for uploading this video❣
Have shortness of breath for 6 months now. First time it happened was when i was working out and my bpm jumped up and down and i was breathless. Took me 6 months to finally diagnosed with PFO. Doing this procedure soon after my TEE test to see how big the hole is. This video really eases me off a lot. Thanks
I had no idea I could work out and not feel like I was going to pass out or feel all the blood in my head, it was a whole new world. Excited for you to get answers and solutions!
I first saw your video back in May 2022, this is when I learned about Nobelstitch. It has taken a while, but I have decided to go through with Nobelstitch. I have an apt in exactly 1 month with Dr. T. Your testimony was so helpful, thank you for sharing!
DR Kavinsky Phd at Rush Hospital in Chicago did my stitch. He is a leader in this field and has conducted trials with data. His team of experts included other cardiologists as Rush is a teaching hospital and the best care is with him and his team.
Allie I live in Sarasota Florida and if I’m not Mistaken Dr. James Thompson is now At John Hopkins All Children’s Hospital in Tampa Florida. Is this where are you tracked him down? It says he has been there since 2020
Thank you for sharing your experience! I am currently scheduled for closure with device in a few weeks, and am still hesitant and weighing my options. This was helfpul to hear perspective of someone who experienced.
Yes, I am thankful for this video also. I was looking at PFO procedures and so happy this popped up in my feed. Now I have another option. Again, thank you!
@@ourhouse I did mine two weeks ago, at Stanford University. I feel OK, but sometimes, I get skipped beat. It was a 30 minute procedure and recovery was 5 hours.
@@Ashmooni I remember feeling the same for a few weeks after and wondered if it was in my head of real lol. I think the heart is getting used to it, but after that I never felt that again. Ive had such a great outcome and so glad I waited until it was an option.
@@ourhouse Great 😊 I got my PFO closed using the device that looks like umbrella 😊. I wish my doctor told me about the NobleStitch procedure. I had two strokes in 2014 and 2020 and I was afraid to get my heart operated on. I hope we don’t get any more strokes.
Hey my name is Mike and I have a PFO/ASD that was found due to a murmur during my checkups. I’m 30 I have an enlarged right side heart and mild pulmonary hypertension due to pressure from the blood shunt. I would love to talk more with you if possible I know this video is 3 years old but I would love to talk and see how things are going and maybe ask a few more questions if possible.
I am on Medicare, I am sure they will not accept that. Did you ever find out how much they would charge you to close the PFO? I have had 2 open heart surgeries and neither doctor closed it while they had my heart in their hands!!! I had a stroke after the second surgery and I need to close this PFO...any info would be greatly appreciated! God bless you and I am glad it worked out for you!!!
@@ourhouse I will be having my PFO closed by Dr Thompson in Va....I have had two brutal open heart surgeries and they did not fix the PFO either time! I am a bit nervous about this procedure but watching and listening to your video and hearing about your experience makes me feel a little more warm and fuzzy...any suggestions as to where to stay that is close by but doesnt cost a fortune? God bless you and thanks!
What a coincidence, was just looking for PFO closure experiences before my c catheterization procedure on Tuesday (Feb 4) and Dr. Thompson is my doctor! I’m going to ask him about if I’m a candidate for the noble stitch. I had an ASD repair when I was 3 so my hole may not be the same as a PFO closure but I’m going to ask about the noble stitch! Thank you for sharing your experience! 🙏
Now I am 43 year old male from India. First of all I am very happy for your health. I had 2 strokes in 2014 and 2015 after that I diagnosed with PFO and since then I am taking Aspirin and antiplatelet. I heard this and very excited to participate. Please help me for information. Thank you, Best regards, Siddhartha
Hey I just came across your PFO closure tutorial. Did you have to go for an initial consultation. I’m going to see doctor on 30 July for consultation. It be nice if they do the stitch method. Excellent tutorial.
Hi Karen, excellent video by the way, extremely informative. I going to have a PFO closure procedure, and I wonder, : Is the Noblestitch PFO closure done in Canada? I live in Ottawa(Province Ontario) and I want to have the safest and no complication after .
Oh! I forgot, can you point me in the right direction for getting information on others procecures and the risk associated with them? Thanks a bunch,,,,
@@ericgirard8910 I would just google whatever PFO closure is being recommended for you and read the potential side effects, clinical trials, studies etc. At the time I did this Dr. Thompson was the only doctor in the US who did it and people flew from all over the world to see him. I am not sure if anybody in Canada is doing it, but there is a very informative Noblestitch FB group with fantastic admins. They might know.
I remember and appreciate how you and your wife and even your sister on the phone, were so helpful during a scary time when I was in the hospital. I'm so relieved to have this "closure" lol.
Thank you so much for your real life experience. I have contacted the doctor as I need the same procedure. I have provided everything however they've asked for a 30 day event monitor report. Did you have to provide this?
Next week, I have an upcoming PFO closure procedure (NobleStitch). I have a history of migraines and exertion headaches, and my brain MRI revealed small white spots referred to as "silent strokes" by my neurologist. Recently, I underwent a bubble test, and my cardiologist confirmed a PFO grade 2-3. I will be administered general anesthesia 💉😴
Boa noite , fiz hoje o meu procedimento em Portugal no Hospital Santa Marta ( serviço nacional saúde) . É recente esta abordagem aqui , mas correu muito bem.❤
Ok your video mentioned my question. WOW I guess I’m excited to see this Noble Stitch method. I would like to get this procedure done. I’m hoping the Doctor I’m referred to is knowledgeable or has done this procedure. I will certainly tell him I know of this closure method. I might call his office to see if he does. Then make contact with hospital in VA. I have Aetna health.
Just a heads up, my cardiologist in Arizona was not supportive of this newer method at all and made me feel terrible about having it done afterwards. I had to leave and find another more supportive cardiologist after that. I did a new bubbly study a few weeks ago and it came back zero shunting and you could barely even see the stitch. I knew I made the right decision and that confirmed it even more.
I'm having this done on the 29th. Thankfully I already live in Virginia a few hours away from Inova, so I don't have to fly to it. I'm having TIAs a lot, so I hope this helps me.
Hi since it’s been 5 years since your procedure how are you doing? Have you experienced any side effects? I was diagnosed with a PFO earlier this year. I am looking at options and the noblestitch sounds very promising to me.
Thank you for this video. I have a PFO that caused a stroke and need to have it closed. I am looking into options and this seems like a really good procedure. Can you tell me what made you choose this over the occluder, and if you have noticed any health benefits from it? Thank you again for the great video. Hope to hear from you.
I did not like the risks of the other closures and the percentage of those that experience side effects. I just had my last echo and given a clean bill of health and don’t even have to go to a cardiologist anymore. It’s completely closed and grown over, 0% shunting. It’s amazing. I noticed a difference in working out, the blood doesn’t feel like it’s rushing straight to my head. I’m so glad I waited until I found something I was comfortable with. In general I feel like this is the ticket to a better quality of life after a situation like ours.
@@ourhouse wonderful, I will push to get it. The Nobelstitch was the first thing I came across, and it looks more and more like the ticket. I just need to find a doctor closee to San Diego who can perform the proceduee. Again, thank you so much, I am glad it worked so well for you.
Mike Wade I only know of a couple doctors in the US who do it, but the trend is growing. There is a Noblestitch Facebook group with the latest information.
Thank you for your video! Have my procedure schedule with Dr. T September 7th in Tampa. Was wondering based on what you mentioned in the video if you are currently on any blood thinner medication or daily aspirin? And if not, when did you stop taking those. Thanks again.
@@ourhouse thank you so much. Nothing right after the procedure either? Did the doctors try to convince you otherwise? I’m really trying not to have to take blood thinners but heard Plavix was recommended for 30 days after the procedure with aspirin and aspirin at least 6 months and potentially for life. Like you said, one would think if hole was closed then what is need for the blood thinners?
Any symptoms? Did you feel any different? Was your breathing, blood pressure etc.. the same? Did u notice anything as for your proceedure experience versus the traveling experience?
Plus, do you know if they do this on kids? I'm so glad you did this video! Thank u. My daughter has a large pfo she needs closed and the same concerns you had I have..
Monique King if it’s causing issues, I don’t see why they wouldn’t do it on kids. Dr T is actually a pediatric cardiologist. I didn’t really have any symptoms prior (except I had a stroke) so I feel the same after the surgery. It was a great recovery, I was sight seeing the next day. My post op visits with my cardiologist at home look great. I couldn’t ask for a better overall experience.
Hello, Do you have the name of the doctor in San Francisco that performed the procedure? I live in California and I’m trying to find a doctor that does the noble stitch.
I also considered this procedure but my septum wall had not only a PFO but several other holes and was thinner than normal, so I had to go with the disks. It took two disk occluders and the procedure took 2 1/2 hours instead of the normal 45 minutes. Mine was done at UNC Rex in Raleigh, NC on 06/29/20. I also did not want to do blood thinners.
Hey! Thank you fpr your video. What happens with the polyprophylen yarns that ist used for the stitch? It is not absorbes so it stays in your heard but what will happen with it over the years? Best wishes!
Your heart tissue will grow over it, just like with the other devices. At my last sonogram the cardiologist could barely even detect it, compared to the other devices.
rarecoolitems I was sightseeing in DC the very next day and flying home alone. I had an appointment yesterday 9 months out and there is zero shunting, the stitch is barely even visible and I feel great! Best decision ever.
I had a stroke in Nov 2018 due to PFO. I have contacted the hospital In VA for the Noble Stitch, as I was going to do the Gore device implant on the 10th of May, but have major concerns about that. Can you tell me how long it took them to contact you? I have emailed and called but only got a response saying my info had been given to the doctor for followup.
Ok so you gave your info to the Inova location where they do the procedure and that is a separate location. I think it would be better if you called his office directly, his staff is fantastic will call you right away unless it's the weekend or in my case they were shut down for bad weather a couple days. I think I sent an email to his office directly and somebody called me back a couple days later. You can google his name and virginia office. It's a pediatric cardiologist practice.
@@ellaj.4994 They got me in super quick, flying from Arizona in just a couple weeks out. They took care of all the insurance stuff for me too. I was very hesitant about the other closures. Noblestitch was the best experience. I pray it goes well for you!
Hello I had my stroke on June 10, 2009. I did a lot of research after and told my cardiologist that I was interested in this PFO closure. It appeared to me my cardiologist was not interested in hearing this and told me that it’s a new procedure that taking aspirin would be just ok. The stitch was not available at the time. Just umbrella type closure. It’s been 11 years since and now my cardiologist same one told me studies and long term research on this closure is very good. He referred me to doctor in New Jersey
Hello Karen. My name is Mike and I am scheduled to have a PFO closure done on the 30 Jan 2020. I have done alot of research and at my consultation I was told that some patients my develop AFIB any time there is manipulation of the heart. Can you tell me if you experienced this at all. Thank you and glad to hear you are doing well and stroke free.
Michael Peron I had a few irregular heart beats during the first couple days but that was all. I felt a lot of fatigue the 2nd day but that could also be because I flew cross country for the procedure and retuned alone. Just make sure you really follow the rule about not lifting nothing over 10lbs and you should be fine.
Karen, I have the noble stitch procedure scheduled for this Saturday. Question, Do you have any issues or complications after your procedure? Any regrets? Do you have to do yearly bubble studies going forward?
Exciting! I have zero regrets, best decision I made when it came to the closure device. You do have to do a few exams but after a year if all looks well, you are all cleared. I no longer even have to see a cardiologist since my results are zero shunting. It has completely sealed and it is barely even detectable on the echo. I was sight seeing in DC the very next day. Just make sure you don't lift anything :)
Hi! Thank you for a informative video! But i do have some questions for you ... When you had your stroke did you have any other health problems? You mentioned that you didnt take blood thinners the idea of a second stroke didnt scare you???.. Im 29 and i have no health conditions and i just had a stroke about a month ago and my drs want me to have the surgery to close the pfo i havesl so we can prevent any stokes, they put me on blood thinners and i should be off them sometime after procedure but reading all the complications im soo scared. Watching your video does give me hope i will defiantly look into this procedure :)
Esmeralda Abad I did not have any other health problems but I was pregnant. They wanted me to inject the blood thinners into my belly twice a day, so I was horrified and refused. Then the baby was born fine and I wanted to nurse so again I didn’t want blood thinners but I took a natural supplement Noattokinase. I was afraid of having a second stroke and my oncologist who checked on my blood work was pretty insulting on my “reckless” path but I refused the blood thinners. The side effects were scarier than a “what if”. I’m glad I wanted for an option that I felt REALLY good about. Everyone believed my blood cloth was due to being pregnant so after not being pregnant, I assumed if I kept myself healthy, “grounding” staying away from dark leafy greens that thicken your blood, smoothies etc, I should be fine. Also I heavily relied on prayers!
@@ourhouse wow thats just crazy im glad you are fine now. How long did it take to have the surgury after you contacted dr. Thompson? I just emailed him yesterday so im waiting... :)
Esmeralda Abad they do all the pro closures one sat a month so I think when I contacted them and heard back, I was scheduled for the following month. It was really fast. I had the physical home in Phoenix and the final bubble test in Virginia in Dr Thompson’s office before the sat procedure.
@@ourhouse WOW, I just learned SO MUCH from this reply. So I need to stay away from green leafy veggies & smoothies- all which I love! Yes, I've been told "reckless" and "negligent" before by physicians if you outright refuse their methodologies and use alternatives. I have just found me a Card in AZ and starting the work-up. Thank you for this information and willingness to share. It is definitely a game changer as I thought the only available solution was the thing that looks like the umbrella.
I had a stroke and recently found out I need a PFO closure also would you be able to provide me the name of the doctor you worked with? Thank you for sharing your story
I wonder why they didn't recommend the Amplatzer PFO Occluder? I kinda see the pros and cons, but to me I want to see the closure device completely close the flap, as opposed to the Noblestitch essentially being one stich that has shown to have degradation after so many years. If you're 75, it seems a suture method would be a no brainer, if you're in your thirties, you've got decades to live.
Where are the studies that show degradation over years? My cardiologist says it has completely closed over with zero shunting and given me a clean bill of health where I don’t even have to follow up with him anymore.
Hi @mishkadean5402, I'm faced with a choice - NS or Occluder. Could you please give more details how do you know that there is possibility of stitches degradation? hard to find any researches :( I will be grateful for your input!
@@seedbm - I tried looking for where I saw that, but because it’s so random when I saw it, I can’t find it. I’ll keep looking and post a link if I find something. Thanks.
I had Noblestitch prosedure 2.5 months ago after having stroke last year December. Since 3 days I am suddenly having weakness on my legs and hands and high heart rate. I am very surprised what it might be this.
@@ourhouse I am feeling fine but I have lot of fear thinking if suddenly I might have dizzy or fatigue or weakness in my body. I have to drive to go shopping or kids apointment. I had sudden weakness 2 or 3 times for a few minutes. My surgeon ordered ECG and ECO and told the result was good. My heart seems fine and he doesn't think it is pfo related. I will update again after a few months and hopefully I'll get bubble test to hear good news about 100 % closure
Will you have to yearly followups after the procedure? Or after all 3 followups we don't need to worry about any complications going forward and go live your life without concerns?
Omg i’ve been researching about PFO for days because my husband is diagnosed with PFO, but not sure about the procedure and just know about this noble-stitch procedure thats seems more simple without implanting anything in the heart, as for the cost, can u share how much the cost of the procedure?
Thankfully we have insurance that covered almost all, but it costs about 50k for the facility costs and 50k for the Dr and prior office visit and tests.
@@Jason-ko3nh Before. I give major thanks to Dr. Thompson for having a peer to peer review with my insurance so that they would cover it. Their office was fantastic with my insurance, who at first tried to say it wasn't necessary.
@@ourhouse thank you! I’m 38 and have had 2 strokes. Because of your video, I learned about the alternative Noblestitch procedure and then found the Facebook group that then led me to my first appointment with Dr. Thompson. I should be getting mine closed next month and will be in a study as well. I’m really nervous, but you have put me at ease. Thank you for sharing your story and bringing awareness.
@@A_Staffoa I’m excited for you, I know for me it was one of the best decisions I made and brought me SO much rest and peace of mind. Say hello to Dr. Thompson for me! :)
I am currently going to a hospital in Md. They dont offer the noble stitch procedure at this time . I am very frustrated. They want to put me on baby aspirin and if need be put this device in my heart. I am not comfortable with any of those ideas. The noble stitch is the way to go I think for me. I understand it's still in trial. Do you know how long the trial is for?
froggy doodle The only restrictions I had were not to lift anything heavy over 10lbs for one week. The next day I was climbing stairs in DC visiting museums but taking it easy or using a handicap ramp if possible.
hey everybody! I see in the comments a lot of people who had the surgery. My sister had it as well about 1 month ago and she is experiencing shortness of breath, despite everything looking well at her check ups. Could you guys tell me how was your recovery in the first months? Did anybody experience this?
I felt like I had some irregular heart beats and maybe some shortness of breath. I think part of it was my heart “finding a new rhythm” and part a little anxiety of what would now happen. Everything was fine and got a clean bill Of health from my cardiologist with zero shunting.
I think you can choose to have it closed anytime, but if you want your insurance to cover it, that would be tricky. As it was, even with me having a stroke, Dr. Thompson had to do a peer- to peer review with my insurance to convince them it was medically necessary.
I’m new to all of this PFO closure stuff lol. I’m so glad I found your video. I’m glad your doing well now.. I was just curious what happens to the plastic bead looking device that holds the sutures in place ? Does it have to stay in your body for the rest of your life ? Thanks in advance
I don’t remember if Dr. Thompson recommended it but I don’t. My local cardiologist gave me the go ahead to no longer have any kind of follow up. I do work on staying as fit and healthy as I can and take supplements.
Edgar Gallegos I’m not sure, you would have to ask. I do know Dr. Thompson said they’ve been using this same technique and material for other procedures and this just a new way to close pfo’s. I am feeling great, I have zero shunting and it has given me great piece of mind that I picked the right procedure.
@@Ashmooni how are you feeling? I had Noblestitch prosedure 2.5 months ago. I'm happy that I did. But today day 3 I am having weakness in my body leg and hands are weak high heart rate. This is scaring me.
@@Tulips77755 Hi Maryam, I am sorry that you’re not feeling well. Did you ask your doctor if what you’re feeling is expected and it’s temporary? I have used the closure device last December and I had my 6 months checkup and it was normal. How low is your heart rate? Just talk to your doctor, you maybe OK and just need to take it easy. All the best to you
@@Ashmooni thanks you, in general I am feeling okay. But some days I have slightly weakness. I am in facebook Noblestitch group and sharing my experience there and people says it might be healing process. I am praying and asking for fully closure after 6 months. My ECO and ECG came normal. I am glad for your health. Hope no more stroke.
Hey my name is Mike and I have a PFO/ASD that was found due to a murmur during my checkups. I’m 30 I have an enlarged right side heart and mild pulmonary hypertension due to pressure from the blood shunt. I would love to talk more with you if possible I know this video is 3 years old but I would love to talk and see how things are going and maybe ask a few more questions if possible.
I just wanted to thank you for this video. Because of you sharing your experience I was able to track down Dr.T and had my closure one month ago today. I feel like a new person and have been given my life back. You were an important piece to my healing, just by being you. Many love and thanks to you. ❤️
Allie!! I’m so so happy for you, my noblestitch sister! Thank you for sharing with me, I’m so glad I made this video if nothing else, to encourage you on making this decisions. I know it’s one that I am most grateful for that I made in my life. Yes, I truly understand that “getting your life back” feeling and cheering for you!
@allie8967, how are you feeling since this post?
@@k.brannen4597 wonderful! Best thing I’ve ever done. Jackie and Dr.T are the absolute best!
I'm so glad you are back and the procedure went great! It sounds like you had a great experience 👍 I cant believe you were awake the whole time!😲
I'll be praying for your fast and easy being back to your "normal"🌼
There is so much that can go wrong with anesthesia, so the being awake part sold me even more..but it is quite the experience! lol
I’m so happy everything went well for you! You seem to be recovering wonderfully🎉 I’m really glad your sister-in-law was there with you. I was worried you would be there alone. I bet it was hard to not lift up your little ones up for hugs when you got home!
It was! The Marco Polo app was so helpful to send videos back and forth and the cards they made me when I got back, I will treasure forever!
All done.I had my procedure on Saturday - 8/8/20. Dr. Thomas stated the procedure went great. Not sure until my followup in 8 weeks.
That's great news!
I may need to close my PFO that I never knew I had all my 52 yrs of life until 4 days ago when I had a stroke(TIA) that I was hospitalized for and with so many tests - 2 angiogram CT scans, one MRI of brain and one echocardiogram... I was diagnosed with PFO, which caused my TIA.
I had a previous TIA in 2009 with my right eyesight going black...
Anyways... besides having stage 3 CKD ... cancer 2 times, severe Raynauds etc etc the list goes on.. finding out 4 days ago I have PFO is a lot to take in and something new for me. Everything I've been through is coming together... i.e, all my symptoms... everything.
After having my 2nd TIA due to PFO.. everything is moving so fast, which is good. I want my now "extended" medical team to help me and patch me up so I can confidently resume my positive lifestyle without fear of another stroke or a heart attack
Thank you for uploading this video❣
Have shortness of breath for 6 months now. First time it happened was when i was working out and my bpm jumped up and down and i was breathless. Took me 6 months to finally diagnosed with PFO. Doing this procedure soon after my TEE test to see how big the hole is. This video really eases me off a lot. Thanks
I had no idea I could work out and not feel like I was going to pass out or feel all the blood in my head, it was a whole new world. Excited for you to get answers and solutions!
I first saw your video back in May 2022, this is when I learned about Nobelstitch. It has taken a while, but I have decided to go through with Nobelstitch. I have an apt in exactly 1 month with Dr. T. Your testimony was so helpful, thank you for sharing!
I’m so glad it was helpful! It was one of the best decisions I’ve ever made and Dr. T is amazing, please tell him I said hi! 😀
I'm so happy you are well!☺. Keeping you in my prayers.
Thank you!
DR Kavinsky Phd at Rush Hospital in Chicago did my stitch. He is a leader in this field and has conducted trials with data. His team of experts included other cardiologists as Rush is a teaching hospital and the best care is with him and his team.
How long did it for you to get into see Dr. KAVINSKY?
I will see Dr T in February!!! I am nervous but excited.
Allie I live in Sarasota Florida and if I’m not Mistaken Dr. James Thompson is now At John Hopkins All Children’s Hospital in Tampa Florida. Is this where are you tracked him down? It says he has been there since 2020
I’m not sure but it looks like it.
Yes he is there In Tampa Florida
So happy you're doing well.
Thank you!
I was praying for you. I'm so glad you came out alright.
Thank you!
Thank you for sharing your experience! I am currently scheduled for closure with device in a few weeks, and am still hesitant and weighing my options. This was helfpul to hear perspective of someone who experienced.
I waited over 3 years so I understand, you will know when you reach the right decision and feel a a peace about it.
Yes, I am thankful for this video also. I was looking at PFO procedures and so happy this popped up in my feed. Now I have another option. Again, thank you!
@@ourhouse
I did mine two weeks ago, at Stanford University. I feel OK, but sometimes, I get skipped beat. It was a 30 minute procedure and recovery was 5 hours.
@@Ashmooni I remember feeling the same for a few weeks after and wondered if it was in my head of real lol. I think the heart is getting used to it, but after that I never felt that again. Ive had such a great outcome and so glad I waited until it was an option.
@@ourhouse
Great 😊
I got my PFO closed using the device that looks like umbrella 😊.
I wish my doctor told me about the NobleStitch procedure.
I had two strokes in 2014 and 2020 and I was afraid to get my heart operated on. I hope we don’t get any more strokes.
Thanks for the update! So glad all went well.
Thank you!
Hey my name is Mike and I have a PFO/ASD that was found due to a murmur during my checkups. I’m 30 I have an enlarged right side heart and mild pulmonary hypertension due to pressure from the blood shunt. I would love to talk more with you if possible I know this video is 3 years old but I would love to talk and see how things are going and maybe ask a few more questions if possible.
You can email me at karen@ourhousehomeschooling.com
I am on Medicare, I am sure they will not accept that. Did you ever find out how much they would charge you to close the PFO? I have had 2 open heart surgeries and neither doctor closed it while they had my heart in their hands!!! I had a stroke after the second surgery and I need to close this PFO...any info would be greatly appreciated! God bless you and I am glad it worked out for you!!!
My insurance covered it but the price tag looked to be roughly 50K each from the facility and from the surgeon's office.
@@ourhouse I will be having my PFO closed by Dr Thompson in Va....I have had two brutal open heart surgeries and they did not fix the PFO either time! I am a bit nervous about this procedure but watching and listening to your video and hearing about your experience makes me feel a little more warm and fuzzy...any suggestions as to where to stay that is close by but doesnt cost a fortune? God bless you and thanks!
@@ourhouse$100,000 total? That sounds way too much for that type of procedure.
What a coincidence, was just looking for PFO closure experiences before my c catheterization procedure on Tuesday (Feb 4) and Dr. Thompson is my doctor! I’m going to ask him about if I’m a candidate for the noble stitch. I had an ASD repair when I was 3 so my hole may not be the same as a PFO closure but I’m going to ask about the noble stitch! Thank you for sharing your experience! 🙏
Hope it all goes well!
Procedure went well! I had another 6mm ASD near bottom of septum so Dr. T couldn’t use NS. I got the GORE occluder, I feel great-so far so good!
Now I am 43 year old male from India. First of all I am very happy for your health. I had 2 strokes in 2014 and 2015 after that I diagnosed with PFO and since then I am taking Aspirin and antiplatelet. I heard this and very excited to participate. Please help me for information.
Thank you,
Best regards,
Siddhartha
There is a Noblestitch fb group with lots of info.
Hey I just came across your PFO closure tutorial. Did you have to go for an initial consultation. I’m going to see doctor on 30 July for consultation. It be nice if they do the stitch method. Excellent tutorial.
Hi Karen, excellent video by the way, extremely informative. I going to have a PFO closure procedure, and I wonder, : Is the Noblestitch PFO closure done in Canada? I live in Ottawa(Province Ontario) and I want to have the safest and no complication after .
Oh! I forgot, can you point me in the right direction for getting information on others procecures and the risk associated with them? Thanks a bunch,,,,
@@ericgirard8910 I would just google whatever PFO closure is being recommended for you and read the potential side effects, clinical trials, studies etc. At the time I did this Dr. Thompson was the only doctor in the US who did it and people flew from all over the world to see him. I am not sure if anybody in Canada is doing it, but there is a very informative Noblestitch FB group with fantastic admins. They might know.
Hi Karen. It's been about 4 years. How are you since Noble Stitch? I was able to track down Dr. T. 🎉. Thanks for posting.
Fantastic, no issues whatsoever and fully discharged a few years ago from the cardiologist.
That is awesome to hear. I pray for these results as well.
Thanks for the update. Glad everything went well.
Thanks for the update, Karen! How scary. I'm glad everything went great!
Thank you!
I remember and appreciate how you and your wife and even your sister on the phone, were so helpful during a scary time when I was in the hospital. I'm so relieved to have this "closure" lol.
Thank you so much for your real life experience. I have contacted the doctor as I need the same procedure. I have provided everything however they've asked for a 30 day event monitor report. Did you have to provide this?
I don't remember how long was the monitor but I did do one, several test etc.
Next week, I have an upcoming PFO closure procedure (NobleStitch). I have a history of migraines and exertion headaches, and my brain MRI revealed small white spots referred to as "silent strokes" by my neurologist. Recently, I underwent a bubble test, and my cardiologist confirmed a PFO grade 2-3. I will be administered general anesthesia 💉😴
Oh, I was thinking of you the whole week, I am so glad everything went well!
Thank you!
Boa noite , fiz hoje o meu procedimento em Portugal no Hospital Santa Marta ( serviço nacional saúde) . É recente esta abordagem aqui , mas correu muito bem.❤
Ok your video mentioned my question. WOW I guess I’m excited to see this Noble Stitch method. I would like to get this procedure done. I’m hoping the Doctor I’m referred to is knowledgeable or has done this procedure. I will certainly tell him I know of this closure method. I might call his office to see if he does. Then make contact with hospital in VA. I have Aetna health.
Just a heads up, my cardiologist in Arizona was not supportive of this newer method at all and made me feel terrible about having it done afterwards. I had to leave and find another more supportive cardiologist after that. I did a new bubbly study a few weeks ago and it came back zero shunting and you could barely even see the stitch. I knew I made the right decision and that confirmed it even more.
I wish I would have known about this before 2/12/24 having the Amplatzer device that did not resolve the PFO, unsuccesful closure.
I'm having this done on the 29th. Thankfully I already live in Virginia a few hours away from Inova, so I don't have to fly to it.
I'm having TIAs a lot, so I hope this helps me.
I'm sure it will al go well!
Hi since it’s been 5 years since your procedure how are you doing? Have you experienced any side effects? I was diagnosed with a PFO earlier this year. I am looking at options and the noblestitch sounds very promising to me.
No side effects, clean bill or health. I don’t even have to see a cardiologist anymore. I’m sooooo glad I went this route.
Thank you for this video. I have a PFO that caused a stroke and need to have it closed. I am looking into options and this seems like a really good procedure. Can you tell me what made you choose this over the occluder, and if you have noticed any health benefits from it?
Thank you again for the great video. Hope to hear from you.
I did not like the risks of the other closures and the percentage of those that experience side effects. I just had my last echo and given a clean bill of health and don’t even have to go to a cardiologist anymore. It’s completely closed and grown over, 0% shunting. It’s amazing. I noticed a difference in working out, the blood doesn’t feel like it’s rushing straight to my head. I’m so glad I waited until I found something I was comfortable with. In general I feel like this is the ticket to a better quality of life after a situation like ours.
@@ourhouse wonderful, I will push to get it. The Nobelstitch was the first thing I came across, and it looks more and more like the ticket. I just need to find a doctor closee to San Diego who can perform the proceduee.
Again, thank you so much, I am glad it worked so well for you.
Mike Wade I only know of a couple doctors in the US who do it, but the trend is growing. There is a Noblestitch Facebook group with the latest information.
Thank you for your video! Have my procedure schedule with Dr. T September 7th in Tampa. Was wondering based on what you mentioned in the video if you are currently on any blood thinner medication or daily aspirin? And if not, when did you stop taking those. Thanks again.
I don’t take anything now but to be fair I never took the blood thinners prior to the surgery either which was a big reason why I wanted the surgery.
@@ourhouse thank you so much. Nothing right after the procedure either? Did the doctors try to convince you otherwise? I’m really trying not to have to take blood thinners but heard Plavix was recommended for 30 days after the procedure with aspirin and aspirin at least 6 months and potentially for life. Like you said, one would think if hole was closed then what is need for the blood thinners?
Any symptoms? Did you feel any different? Was your breathing, blood pressure etc.. the same? Did u notice anything as for your proceedure experience versus the traveling experience?
Plus, do you know if they do this on kids? I'm so glad you did this video! Thank u. My daughter has a large pfo she needs closed and the same concerns you had I have..
Monique King if it’s causing issues, I don’t see why they wouldn’t do it on kids. Dr T is actually a pediatric cardiologist. I didn’t really have any symptoms prior (except I had a stroke) so I feel the same after the surgery. It was a great recovery, I was sight seeing the next day. My post op visits with my cardiologist at home look great. I couldn’t ask for a better overall experience.
My Mom had hers on October 2022 at UC San Francisco. Her experience was really painful she couldn’t walked or bent down for like 2 weeks 😢
Hello, Do you have the name of the doctor in San Francisco that performed the procedure? I live in California and I’m trying to find a doctor that does the noble stitch.
I also considered this procedure but my septum wall had not only a PFO but several other holes and was thinner than normal, so I had to go with the disks. It took two disk occluders and the procedure took 2 1/2 hours instead of the normal 45 minutes. Mine was done at UNC Rex in Raleigh, NC on 06/29/20. I also did not want to do blood thinners.
Wow that's intense, glad you are on the other side of it. It really does give you some peace of mind once it's closed.
Hey!
Thank you fpr your video. What happens with the polyprophylen yarns that ist used for the stitch? It is not absorbes so it stays in your heard but what will happen with it over the years?
Best wishes!
Your heart tissue will grow over it, just like with the other devices. At my last sonogram the cardiologist could barely even detect it, compared to the other devices.
Can you give us an update on how you feel, do you still go for check ups, how long to you were back to a normal day etc. thank you for your video.
rarecoolitems I was sightseeing in DC the very next day and flying home alone. I had an appointment yesterday 9 months out and there is zero shunting, the stitch is barely even visible and I feel great! Best decision ever.
So glad all went well Karen!
Yes, such a relief! Praise God!
I had a stroke in Nov 2018 due to PFO. I have contacted the hospital In VA for the Noble Stitch, as I was going to do the Gore device implant on the 10th of May, but have major concerns about that. Can you tell me how long it took them to contact you? I have emailed and called but only got a response saying my info had been given to the doctor for followup.
Ok so you gave your info to the Inova location where they do the procedure and that is a separate location. I think it would be better if you called his office directly, his staff is fantastic will call you right away unless it's the weekend or in my case they were shut down for bad weather a couple days. I think I sent an email to his office directly and somebody called me back a couple days later. You can google his name and virginia office. It's a pediatric cardiologist practice.
@@ourhouse Thank you, I am so excited and with my surgery date approaching I am not sure what to do!! I will contact them tomorrow> God Bless!
@@ellaj.4994 They got me in super quick, flying from Arizona in just a couple weeks out. They took care of all the insurance stuff for me too. I was very hesitant about the other closures. Noblestitch was the best experience. I pray it goes well for you!
Hello I had my stroke on June 10, 2009. I did a lot of research after and told my cardiologist that I was interested in this PFO closure. It appeared to me my cardiologist was not interested in hearing this and told me that it’s a new procedure that taking aspirin would be just ok. The stitch was not available at the time. Just umbrella type closure. It’s been 11 years since and now my cardiologist same one told me studies and long term research on this closure is very good. He referred me to doctor in New Jersey
Hello Karen. My name is Mike and I am scheduled to have a PFO closure done on the 30 Jan 2020. I have done alot of research and at my consultation I was told that some patients my develop AFIB any time there is manipulation of the heart. Can you tell me if you experienced this at all. Thank you and glad to hear you are doing well and stroke free.
Michael Peron I had a few irregular heart beats during the first couple days but that was all. I felt a lot of fatigue the 2nd day but that could also be because I flew cross country for the procedure and retuned alone. Just make sure you really follow the rule about not lifting nothing over 10lbs and you should be fine.
@@ourhouse Thank you Karen, and glad you are doing well.
Karen, I have the noble stitch procedure scheduled for this Saturday. Question, Do you have any issues or complications after your procedure? Any regrets? Do you have to do yearly bubble studies going forward?
Exciting! I have zero regrets, best decision I made when it came to the closure device. You do have to do a few exams but after a year if all looks well, you are all cleared. I no longer even have to see a cardiologist since my results are zero shunting. It has completely sealed and it is barely even detectable on the echo. I was sight seeing in DC the very next day. Just make sure you don't lift anything :)
After 5 years, have you had any complications? (I hope not)
Nope, a clean bill of health, thank the Lord & Dr. Thompson, and Noblestitch. :)
Great! God bless you
Hi!
Thank you for a informative video! But i do have some questions for you ... When you had your stroke did you have any other health problems? You mentioned that you didnt take blood thinners the idea of a second stroke didnt scare you???.. Im 29 and i have no health conditions and i just had a stroke about a month ago and my drs want me to have the surgery to close the pfo i havesl so we can prevent any stokes, they put me on blood thinners and i should be off them sometime after procedure but reading all the complications im soo scared. Watching your video does give me hope i will defiantly look into this procedure :)
Esmeralda Abad I did not have any other health problems but I was pregnant. They wanted me to inject the blood thinners into my belly twice a day, so I was horrified and refused. Then the baby was born fine and I wanted to nurse so again I didn’t want blood thinners but I took a natural supplement Noattokinase. I was afraid of having a second stroke and my oncologist who checked on my blood work was pretty insulting on my “reckless” path but I refused the blood thinners. The side effects were scarier than a “what if”. I’m glad I wanted for an option that I felt REALLY good about. Everyone believed my blood cloth was due to being pregnant so after not being pregnant, I assumed if I kept myself healthy, “grounding” staying away from dark leafy greens that thicken your blood, smoothies etc, I should be fine. Also I heavily relied on prayers!
@@ourhouse wow thats just crazy im glad you are fine now. How long did it take to have the surgury after you contacted dr. Thompson? I just emailed him yesterday so im waiting... :)
Esmeralda Abad they do all the pro closures one sat a month so I think when I contacted them and heard back, I was scheduled for the following month. It was really fast. I had the physical home in Phoenix and the final bubble test in Virginia in Dr Thompson’s office before the sat procedure.
@@ourhouse WOW, I just learned SO MUCH from this reply. So I need to stay away from green leafy veggies & smoothies- all which I love! Yes, I've been told "reckless" and "negligent" before by physicians if you outright refuse their methodologies and use alternatives. I have just found me a Card in AZ and starting the work-up. Thank you for this information and willingness to share. It is definitely a game changer as I thought the only available solution was the thing that looks like the umbrella.
I had a stroke and recently found out I need a PFO closure also would you be able to provide me the name of the doctor you worked with? Thank you for sharing your story
James Thompson, MD with Child Cardiology Associates
8316 Arlington Blvd Ste 500
Fairfax, VA 22031
Our House thank you!
Did you have an ASA and are you still closed?
I wonder why they didn't recommend the Amplatzer PFO Occluder? I kinda see the pros and cons, but to me I want to see the closure device completely close the flap, as opposed to the Noblestitch essentially being one stich that has shown to have degradation after so many years. If you're 75, it seems a suture method would be a no brainer, if you're in your thirties, you've got decades to live.
Where are the studies that show degradation over years? My cardiologist says it has completely closed over with zero shunting and given me a clean bill of health where I don’t even have to follow up with him anymore.
Hi @mishkadean5402, I'm faced with a choice - NS or Occluder. Could you please give more details how do you know that there is possibility of stitches degradation? hard to find any researches :( I will be grateful for your input!
@@seedbm - I tried looking for where I saw that, but because it’s so random when I saw it, I can’t find it. I’ll keep looking and post a link if I find something. Thanks.
So can I start weigh lifting after that initial week?
I had Noblestitch prosedure 2.5 months ago after having stroke last year December. Since 3 days I am suddenly having weakness on my legs and hands and high heart rate. I am very surprised what it might be this.
Please keep me updated.
@@ourhouse I am feeling fine but I have lot of fear thinking if suddenly I might have dizzy or fatigue or weakness in my body. I have to drive to go shopping or kids apointment. I had sudden weakness 2 or 3 times for a few minutes. My surgeon ordered ECG and ECO and told the result was good. My heart seems fine and he doesn't think it is pfo related. I will update again after a few months and hopefully I'll get bubble test to hear good news about 100 % closure
I was monitored over night
Thank you for this info.
You’re welcome 🙂
Will you have to yearly followups after the procedure? Or after all 3 followups we don't need to worry about any complications going forward and go live your life without concerns?
I think you probably are suppose to keep your once a year check up.
Omg i’ve been researching about PFO for days because my husband is diagnosed with PFO, but not sure about the procedure and just know about this noble-stitch procedure thats seems more simple without implanting anything in the heart, as for the cost, can u share how much the cost of the procedure?
Thankfully we have insurance that covered almost all, but it costs about 50k for the facility costs and 50k for the Dr and prior office visit and tests.
@@ourhouseHi Our House, is the cost (50K + 50K) you mentioned before or after insurance? Thank you!
@@Jason-ko3nh Before. I give major thanks to Dr. Thompson for having a peer to peer review with my insurance so that they would cover it. Their office was fantastic with my insurance, who at first tried to say it wasn't necessary.
@@ourhouse Thank you very much @Our House. It is so great to see you are in great shape and wish you all the best and great health!
Have you had follow ups since your repair? Did the hole fully close?
Yes it did, clean bill of health.
@@ourhouse thank you! I’m 38 and have had 2 strokes. Because of your video, I learned about the alternative Noblestitch procedure and then found the Facebook group that then led me to my first appointment with Dr. Thompson. I should be getting mine closed next month and will be in a study as well. I’m really nervous, but you have put me at ease. Thank you for sharing your story and bringing awareness.
@@A_Staffoa I’m excited for you, I know for me it was one of the best decisions I made and brought me SO much rest and peace of mind. Say hello to Dr. Thompson for me! :)
@@ourhouse I will! Thanks again and I’m so happy you’re doing well and still at peace! ❤️
Can you provide the contact info for Dr Thompson?
www.healthgrades.com/physician/dr-james-thompson-37nf3
I have a pfo. Are you having any complications with the noble stitch?
Not at all, it's completely healed over with zero shunting.
I am currently going to a hospital in Md. They dont offer the noble stitch procedure at this time . I am very frustrated. They want to put me on baby aspirin and if need be put this device in my heart. I am not comfortable with any of those ideas. The noble stitch is the way to go I think for me. I understand it's still in trial. Do you know how long the trial is for?
How long after the procedure are you not allowed to climb stairs?
froggy doodle The only restrictions I had were not to lift anything heavy over 10lbs for one week. The next day I was climbing stairs in DC visiting museums but taking it easy or using a handicap ramp if possible.
hey everybody! I see in the comments a lot of people who had the surgery. My sister had it as well about 1 month ago and she is experiencing shortness of breath, despite everything looking well at her check ups. Could you guys tell me how was your recovery in the first months? Did anybody experience this?
I felt like I had some irregular heart beats and maybe some shortness of breath. I think part of it was my heart “finding a new rhythm” and part a little anxiety of what would now happen. Everything was fine and got a clean bill
Of health from my cardiologist with zero shunting.
How big was ur pfo? I just had a ct and it says small pfo haven’t had a stroke but do have afib I’m also 36
I don’t remember how big.
Do you know if they will close a large pfo with predominant right to left shunt if you haven't had a stroke?
I think you can choose to have it closed anytime, but if you want your insurance to cover it, that would be tricky. As it was, even with me having a stroke, Dr. Thompson had to do a peer- to peer review with my insurance to convince them it was medically necessary.
@@ourhouse ok, thank you. I've had seizure like symptoms but no stroke. I'm going to look into this.
I’m new to all of this PFO closure stuff lol. I’m so glad I found your video. I’m glad your doing well now.. I was just curious what happens to the plastic bead looking device that holds the sutures in place ? Does it have to stay in your body for the rest of your life ? Thanks in advance
Did you have full closure ?
Yes
Hello do you take a baby aspirin for the rest of your life to prevent stroke?
I don’t remember if Dr. Thompson recommended it but I don’t. My local cardiologist gave me the go ahead to no longer have any kind of follow up. I do work on staying as fit and healthy as I can and take supplements.
@@ourhouse do you know of any supplements that are good for an alternative to baby aspirin?
How do feel after a few years of having it. How is your heart.
Everything is great! Zero shunting, healed beautifully and no longer have to see my cardiologist.
@@ourhouse can you tell me the doctor you used
Dr JamesThompson in VA
@@ourhouse Thank you 👍
I have PFO ... but I don't Know About Stroke... please Explain Stroke....
My age is 29... I am From Pakistan
www.stroke.org/en/about-stroke
How many strokes did you have before having the surgery?
One
@@ourhouse was it a stroke or tia?
What type of symptoms did you have?
??
Can a ASD be closed with this type of device or only PFO
Edgar Gallegos I’m not sure, you would have to ask. I do know Dr. Thompson said they’ve been using this same technique and material for other procedures and this just a new way to close pfo’s. I am feeling great, I have zero shunting and it has given me great piece of mind that I picked the right procedure.
Thank you, I really appreciate it
Do you have any concerns about the stitch knot device? Also, do you have any indication / feeling of the stitch in your heart?
Not at all and no. After some tests, I no longer even have to see a cardiologist. Everything worked out fantastic.
@@ourhouse Well my procedure is scheduled for tomorrow at 11am.
@@charleslocke3191 You're in great hands! It will be over so fast and you will have great peace of mind.
How are you doing 5 years into your PFO closure?
Great! I don’t even have to see a cardiologist anymore.
Are they still doing trials?!
Hope Lewis oh yes, there are other surgeons doing the procedure too in the US.
How big was your PFO?
I don't remember the measurement they told me.
How are you feeling after two years?
Awesome, there is zero shunting, clean bill of health from the cardiologist. I haven’t had any issues and feel great.
@@ourhouse
I glad you are doing well!
I am going to ask my cardiologist why he didn’t use that closure method for me?
@@Ashmooni how are you feeling? I had Noblestitch prosedure 2.5 months ago. I'm happy that I did. But today day 3 I am having weakness in my body leg and hands are weak high heart rate. This is scaring me.
@@Tulips77755
Hi Maryam,
I am sorry that you’re not feeling well. Did you ask your doctor if what you’re feeling is expected and it’s temporary?
I have used the closure device last December and I had my 6 months checkup and it was normal. How low is your heart rate? Just talk to your doctor, you maybe OK and just need to take it easy.
All the best to you
@@Ashmooni thanks you, in general I am feeling okay. But some days I have slightly weakness. I am in facebook Noblestitch group and sharing my experience there and people says it might be healing process. I am praying and asking for fully closure after 6 months. My ECO and ECG came normal.
I am glad for your health. Hope no more stroke.
hello
How are you doing so far ? Do you have any contact info for this doctor please?
Dr. James A. Thompson, MD Address: 8316 Arlington Blvd, Fairfax, VA 22031
Phone: (703) 876-8410
I'm doing awesome! My follow up showed zero shunting!
I’m scheduled to do the regular closing tomorrow at 11😓
I know every situation is different, but I think you should feel good about your closure, whatever it is.
Hey my name is Mike and I have a PFO/ASD that was found due to a murmur during my checkups. I’m 30 I have an enlarged right side heart and mild pulmonary hypertension due to pressure from the blood shunt. I would love to talk more with you if possible I know this video is 3 years old but I would love to talk and see how things are going and maybe ask a few more questions if possible.
Feel free to email me at karen@ourhousehomeschooling.com