Too Much Sleep: Quality of Life in Patients with Idiopathic Hypersomnia

Idiopathic hypersomnia (IH) is characterized by excessive daytime sleepiness (EDS), cognitive dysfunction, and extreme fatigue despite excessive hours of sleep. Patients with IH report brain fog, poor memory, and sleep inertia, despite 50% of patients sleeping 10 hours or more nightly. In a QoL study of patients with IH, patients with long sleep time had worse outcomes in multiple areas, including cognition, daily functioning, work absenteeism, depression, and activity impairment, compared to patients with IH with non-LST. Adding to disparities caused by IH, the poor QoL is significantly underestimated, and patients often feel misunderstood by the general public. In order to treat patients with IH and improve QoL, HCPs must first recognize the impact of symptoms and the work/psychosocial functioning for patients with IH.
This CMEO Snack will aid clinicians in overcoming these inadequacies by equipping them with a clear picture of what IH is and the poor QoL outcomes it is associated with. Please join expert faculty in a discussion on how to better recognize the significant impact of IH symptoms on QoL.
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[@KathrynStorer]

18hrs a day since 1971 ...in Yorkshire it dosnt exist.im so alone..im just getting more crippled more sleepy no Colon function now ..I haven't been able to walk for 14 yrs ..I'm so sick of living like this in this mess in this loneliness..I will be gone by the time my family or friends give a shit.. neuropathy burning...I'm so so used to been the one left behind..I ger no treatment apart fron dr. Reading James cook university hospital Middlesbrough..I don't know what I would have done without him 😢

[@KathrynStorer]

😢

[@KathrynStorer]

😢😢😢😢