Thanks for your comment. Your uncertainty is understandable. First, there's still a lot to learn about alpha-synuclein's role in Parkinson's; second, researchers are still looking into the full picture of what these new tests can tell us. Still, one takeaway from this podcast is that these new tests can help improve confidence in a person's diagnosis by providing additional information. Exactly how this information is useful will depend on a variety of factors, including the reason that the diagnosis is challenging. Another thing to note is that, as of today, the new tests typically involve out of pocket cost. Because of this, before you use one of these new tests, it is important to talk with your care team to discuss a.) the information your care team is looking for, b.) why they are looking for it, and c.) what they will be able to clarify with the results of the test you are considering. You may also want to talk with the manufacturers of the tests, CND Life Sciences and Amprion, about your circumstances prior to ordering.
I have very good health insurance in the United States, and even with that my insurance told me my out-of-pocket cost would be approximately $900 for the syn one test 😮.
We totally understand your frustration-healthcare costs can be overwhelming, even with good insurance. In cases like this, both the Syn-One and SynTap test manufacturers sometimes offer assistance programs. It’s worth looking into those options. We know this isn’t a perfect solution, and healthcare costs are a huge challenge for so many people. If you're interested, we also have a blog post that might offer some tips on reducing the costs of Parkinson’s medications and treatments: davisphinneyfoundation.org/reduce-cost-parkinsons-medications/
Still not sure what to think. Wondering if ssi can grasp or accept the iffyness of these tests as diagnostic enough. Either way it's overwhelming.
Thanks for your comment. Your uncertainty is understandable. First, there's still a lot to learn about alpha-synuclein's role in Parkinson's; second, researchers are still looking into the full picture of what these new tests can tell us.
Still, one takeaway from this podcast is that these new tests can help improve confidence in a person's diagnosis by providing additional information. Exactly how this information is useful will depend on a variety of factors, including the reason that the diagnosis is challenging.
Another thing to note is that, as of today, the new tests typically involve out of pocket cost. Because of this, before you use one of these new tests, it is important to talk with your care team to discuss a.) the information your care team is looking for, b.) why they are looking for it, and c.) what they will be able to clarify with the results of the test you are considering. You may also want to talk with the manufacturers of the tests, CND Life Sciences and Amprion, about your circumstances prior to ordering.
I have very good health insurance in the United States, and even with that my insurance told me my out-of-pocket cost would be approximately $900 for the syn one test 😮.
We totally understand your frustration-healthcare costs can be overwhelming, even with good insurance. In cases like this, both the Syn-One and SynTap test manufacturers sometimes offer assistance programs. It’s worth looking into those options.
We know this isn’t a perfect solution, and healthcare costs are a huge challenge for so many people. If you're interested, we also have a blog post that might offer some tips on reducing the costs of Parkinson’s medications and treatments: davisphinneyfoundation.org/reduce-cost-parkinsons-medications/