Otosclerosis: The Invisible Disease
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- Опубліковано 10 сер 2016
- This video discusses my personal journey dealing with the disease otosclerosis. I define what otosclerosis is, the various symptoms of otosclerosis, and how I battled through this disease. Feel free to ask me any questions, concerns, or any special request videos. Share this video with as many people as you would like. This disease affects people of ALL ages!
Follow me on Instagram at: aunboo28
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Thanks for your video. I had my stapedectomy done six days ago and have already noticed significant improvement in my hearing. Can’t wait to get this packing out!!
Hi, thanks for stopping by and watching my video!! I’m so glad that your hearing is already improving post-surgery. The packing is extremely annoying but a part of the healing process. Best wishes to you!
I want to thank you for making this video, for once i feel someone can actually understand everything i have been dealing with for so many years, i can relate to everything you mentioned, i have always been very outgoing, social and super friendly, but not being able to hear conversations in outings, groups, or gatherings was leaving me with such frustration, depression, and anxiety attacks left and right, i just simply started to shut down and stayed home and didn't want to socialize or have company.. I wanted to do this surgery for a very long time but insurance took for ever to approve and all the tests that needed to be done first several appointments later and the approval finally came thru, i just had my first surgery at USC hospital California 3 days ago!!
I still have the packing in going in 3 days to get it removed, its very uncomfortable and im still very dizzy but no pain. Im hoping once the packing is removed i will feel better.
Im thinking of doing some videos myself to show my progress as im going thru the recovery stage!
Anyway thank you !
Noemi Castrejon Hi Noemi! Thanks so much for stopping my page and sharing your own personal experience with this disease! I hope that you have a smooth recovery and it will all go UPhill from here on out! Definitely consider making a few videos documenting your journey. I would love to know more! Best wishes! ✨
Thank you for posting such an informative video. My daughter is 16 and we are scheduling her surgeries soon. She's intellectually disabled so i really found your info valuable since she may not be able to effectively tell me what she is feeling post op. I would've never knew that hearing is so amplified the first few days post op. She probably would just scream without being able to tell me that things are so loud. So glad I know this before surgery. I'm hoping it improves her nausea and vertigo also. I'm excited for her to get her hearing back. I hope you were able to get your other ear done. Good luck to you in life. You are a well spoken young woman.
Joely Ayala Hi!! Thanks so much for watching my video and sharing a little background on your on your daughter! Please keep me posted on how the surgery goes for her. I hope that she has a smooth recovery. ✨
thank you so much for the clarification, your video gives me a lot of hopes. I am experiencing the same things as you in my first week after surgery. hopefully I will heal too :)
billy kelly Hi! Thanks for stopping by and watching my video! I hope that you continue to have a smooth healing process and will be back to your normal activities soon! 😊
You're welcome! Yeah it's my dream. Also I want to go back to college. Thanks again
Aunye - I'm 72. Thanks so much for this excellent, sensible report of the experiences before and after. I've been diagnosed as likely otosclerosis of left ear, and recently booked to discuss the operation. I think it was caused decades ago by daily cruelly loud sound shocks from my workplace headset as technician in telephone exchanges. About 40dB loss. The good thing is that my hearing can probably be restored just as yours was, continuing the precious ability to communicate with people and enjoy music, etc. By the way, my confidence at 72 is partly based on learning about Dr. David Sinclair at Harvard University, where their recent years research reveals that aging can be slowed and even for some tissue, reversed. In other words, my policy is to maintain my health, including hearing, maximally as science switches from regarding aging and death as 'natural', to instead regarding aging as a collection of specific 'diseases' that can be treated by new epigenetic interventions and specific diet and exercise and lifestyle. There's plenty of other evidence if you want to look. Thanks again.
Hi, Bruce! Thanks for taking the time to watch this video. I hope that you end up agreeing to the stapedectomy and have a successful operation on your ear. I will definitely be researching Dr. Sinclair and the new theory of aging! Stay in touch!
Thanks Aunye Boone for your testimony. I underwent the surgery on 13.09.2021, I had the effect of hearing well the first two hours, after the surgery, I was reborn but then my right ear closed. I've been through some tough months, it's a sickness that takes hold of you. I avoided meetings with friends and relatives, I could not follow their speeches and I tended to isolate myself, not to be with anyone. I couldn't hear the phone and the cars passing by on the street. Your video is a hope for me that in two months I will be able to regain my hearing. Thanks
Hi, thanks for taking the time to watch my video. I am praying that your hearing is restored. Sending positive thoughts and well wishes your way!! Stay safe during this time!
@@aunyeboone8576 Thanks Aunye for your video. Come are you now? I am afraid that the prosthesis has moved. I tell you this because immediately after the surgery I felt very well, but after about 2 hours the ear closed again, like when the electricity suddenly goes away. Did it happen to you too? The doctors told me this is normal. unfortunately I can only hear from the other ear that this too has the same problem. Thanks again see you soon
@@carven7380 How are you now
Thanks Ms Aunye for sharing this info to the needy.
Thanks for taking the time to listen to the video!
So happy to have found your video. I am going in for surgery in a few days and feeling nervous and a bit scared about the surgery and outcome. Hope I have a good outcome as well. I felt all the same thing you did- crazy to be so young and have a hearing issue.
Lauren Bloom Hi Lauren, thanks for taking the time to watch my video!! I am sending good vibes your way and praying that you have a smooth recovery after your surgery!
Thank you, I too will have the surgery in March. This was very helpful to me.😄♥️
Hi Nadine, best of luck to you! I hope that you have a smooth and successful surgery! ✨
Great info Aunye, scheduled tomorrow for surgery. Have had hearing loss since mid 20's. I'm 56 today.
Kevin Taylor Hi there!! Happy Birthday to you, and best of luck with your surgery tomorrow. I hope that you have an amazing recovery! Keep me posted!
Hi! Thank u for taking your time to share with us your experience with this op. I had mine last wednesday(Jan 9) and i totally underestimated the recovery process. It's been very difficult because of the dizziness. I start walking and try to lift my head up or down but i feel like my head is heavy and it goes the other way. The struggle is real. I have two kids so I've been kind of anxious seeing i cannot perform like i used to. I'm scared as to how long this symptom will continue and if the op was a success since i can't still hear any difference. Fingers crossed and hope to hear from u soon!
Melisa Vega-Santiago Hi Melisa! I’m hoping that your recovery has been smooth since your last update post-surgery! The dizziness after the surgery is normal, and you should be regaining your hearing again; you should be hearing noises louder than you ever have hopefully. I wish you well with the rest of your recovery. Please keep me posted!
Thank you for posting this! I just found out yesterday that I may have Otosclerosis and actually listening to your story lines up so much with my own. I'm now waiting for a follow up appointment to confirm it. How much dizziness do you have with your Otosclerosis? That's something I'm really struggling with at the moment. It's not every day, It's not all the time but when I get it I can't walk or sit up too quickly, turn my head too fast etc
Hi Emily, I'm so glad that you came across my page. It is good to be able to chat about this disease with other people who have it too! I experience a small amount of dizziness some days, and it is just like you described yours; sudden movements or getting up too quickly cause my the dizziness. Keep me posted on the results of your testing. Surgery will definitely change your life!
Hi there :) I also have otosclerosis. I have had it since puberty but I haven't been able to have the surgery yet so I have bilateral hearing aids until I can get my surgeries. My hearing tests are dismal and I can hardly hear without my hearing aids. (btw thank you for speaking loudly and clearly in this video!)
Hi there! I hope that you can one day get the surgery; it will change your life!
Excellent video! I started to lose my hearing in 2006. It got bad in 2012. At the time, I was fearful that I had Meniere's disease which is much, much worse than otosclerosis - so I avoided going to the doctor until 2014 for insurance reasons (didn't want a pre-existing condition clause to block insurance coverage). It's 2020 now, but I never got the operation - I just use hearing aids. I figure that, one day, I'll get the operation - but, I'm in no rush. Anyway, thanks a bunch for sharing your experience - especially about how things taste after the operation. Cheers!
Hi there, thanks for taking the time to watch the video and sharing your personal hearing loss story. I’m sending you good vibes and I hope that you can get the operation one day. Stay safe during this pandemic!
Hi :) I have never got dizzy but my hearing in my left ear is so bassy and loud and my right ear isn't. When I did an audiogram at 2000hz in my right ear it sounded odd, like fluttery. Did you have something similar? Thanks :)
wow thanks for sharing I just had my first surgery 2 weeks ago. all you talked about I can relate God Bless you
tina kelsey I️ hope that you have an amazing recovery!! This is such a life-changing surgery. God bless you as well!
i have some degree hearing loss but it is in normal range
i am not satisfied with this
is this surgery make me hear better
Just had mine two days ago. All the normal in and out of hearing,popping etc. it’s weird how loud EVERYTHING seems. Hate chewing crunchy stuff. On the mend . Thanks for making a video. Hoping others will overcome their fear.
Hi Ginger, the loud noises should subside over time. I hope that you have a smooth recovery. Thanks for watching my video!
I am going in for a stapedectomy tomorrow and I'm a little nervous about it. How long after surgery were you able to run and workout? Also, I'm a musician and need to be able to hear, how long until you are able to listen to music normally? Any encouragement is welcome. Thank You for posting this video.
Hi, thank you for your testimonial. My first stapedectomy is scheduled for this summer. I was wondering how your second ear surgery went, and if having two ears done added anything to the experiences you detail in the video above.
tinawilk Hi, I’m so glad that you watched my video! I have not received the second stapedectomy to my second ear, but I will record another video whenever I do. I hope that you have a successful surgery this summer!!
Hi Aunye, I am about to go for this surgery this coming friday. Just woke up mid of the night thinking I will cancel the surgery. Your video is inspiringly me to go for it. Still nervous abt the procedure. Thanks a tons for sharing the video. Will share my experience soon, hope it will be good, fingers crossed....🤞🏼
Surya M Hi, thank you for taking the time to watch my video! I hope that you went through with the surgery; being nervous about the procedure is normal. Sending you good vibes!
Hi Surya, can you plz share your experience, i have same issue, worrying for surgery.
I have been diagnosed with it as well but have been apprehensive to have the surgery. Did you have loud ringing in your ears? If so did it get better with the surgery?
Hi. Aunye boone
When do u get hearing back after surgery...i m 28 n having this...dr advised me to surgery..
I have had this for a very long time but was told that the first time that the risks outweighed the benefits for this surgery. Seventeen years later I went to my ENT for sinus issues and he asked me why I have not had the surgery. When I told him he was shocked and said that the risks were only about 1% negative. I am scheduled to see a surgeon for more info today. Thank you for all of this wonderful information. Have you tried flying on an airplane yet?
Leah Conley : Thanks for stopping by and sharing your personal story! I am sending you best wishes and luck as you prepare to meet with your surgeon. I have flown twice (on an airplane) since my surgery, and recommend wearing ear plugs (bought my ear plugs from Walmart) to decrease any buzzing in your ears during the “takeoff” portion of the flight.
Great video! I just had my first surgery 3 days ago. I first noticed my hearing loss in my R ear after a severe sinus infection that went untreated for 2 weeks. The first ENT I saw did not explain my condition and I left afraid and did not go back for years. My hearing declined more and my L ear began to decline as well. I finally got hearing aids (for the last 2 years). I was feeling frustrated and still not hearing great so I finally saw another ENT who was was wonderful. She explained my condition, drew pictures and explained the surgery. I finally felt confident and well informed. I wish I had seen a better ENT the first time, 6 years ago! I could have saved a lot of money and personal struggle. I didn’t realize how much my hearing loss was affecting my whole life. I was isolating myself and the people around me seemed impatient and could not understand.
My post surgery experience was very different from yours. I’ve had little to no dizziness, no nausea, just the pulsing blood/whooshing sound in my ear for the first couple days. My surgeon put no physical restrictions on me except for not lifting over 10lbs. I have been practicing yoga for over 20 years, so I gently went right back to my practice the first day after surgery. I have been avoiding full inversions and just going slower. The poses in Kundalini yoga help to balance the brain so I feel like it can only help my recovery and my brain to integrate the changes. I’m walking 2-3mi a day.
I highly recommend anyone struggling with this to get more information, as Aunye sates, ..”hearing is everything!!” 🙏🏽💓
Hi Elizabeth, I’m so glad that you took the time to watch my video! Congrats on getting the surgery. It is interesting how our post-surgery experiences were so different!! Best wishes to you, and continue doing yoga-one of the best forms of exercise!
@@aunyeboone8576 Could you please share your experience on if you had tinnitus before stapedectomy and does it cured by surgery. My surgery is done 2 weeks ago and I am observing hearing improvement but I am observing some vibrating sensation as well along with tinnitus. Please reply. 🙏
@@vaishalichavhan4536 Hi, I did not experience tinnitus before the stapedectomy. However, after the surgery was complete, I experienced tinnitus and still do occasionally. I hope that you have a smooth recovery!
@@aunyeboone8576 Thanks a lot dear for quick reply. Does you doctor recommend something for tinnitus? in my case tinnitus is continuous.
@@vaishalichavhan4536 My doctor hasn’t recommended anything for tinnitus. I recommend that you chat with your doctor about why the tinnitus is continuous for your. I’m sure you want answers immediately. I can only imagine!
Hey there! Great video...did u ever end up getting the second surgery for other ear? Also how is the first surgery ear doing? Very curious as I have been having these ear issues as well and may eventually have to go for surgery. If you can write or do an update video would be so great. Just want to know if you had any changes in the ear that was operated on? Has it remained the same or changed etc... I have heard the surgery lasts about 20-30 years but wasnt sure so wanted to see how youre doing...also did the doctor say you cannot fly in the airplane? or was that contraindicated rather. Thank you again in advance, looking forward to hearing back!
Hi, thanks for taking the time to watch my video! I did not get the second surgery yet for my other ear, but my ear from the first surgery is doing well (my hearing is excellent in that ear and has remained the same). The surgery was and still is a success. I was unable to fly on airplanes the first few weeks after the surgery, as the ear needs to heal and adjust. Best of luck to you as you figure out next steps for your ears!
@@aunyeboone8576 thank you yes will keep in touch ....and keep up ur amazingness too :D Im so happy to hear your surgery ear side is doing well and that the hearings still excellent...thats wonderful to hear and im excited in case i ever do need to get the surgery to hear theres hope. Best wishes!
I am diagnosed with this disease 2yrs back and thinking of surgery. I already have lot of balance issues n tinnitus which is bothering my everyday life.do u think surgery will help with this? I would really appreciate ur reply .Thankyou
Hi Aunye, thanks for making the video and sharing your experience. Have a question - is it safe to do air travel after 2-3 months of surgery? Did your surgeon give any specific guidance on this?
Rahul Sarda Hi Rahul, thanks so much for taking the time to watch my video and hear about my experience! Regarding air travel: you are safe to travel by plane & train after 4-6 weeks. My surgeon provided me with this information. Best of luck with your journey!
@@aunyeboone8576 Thank you Aunye for taking out time and responding to my query. Really helpful and glad to know this ! Take care.
Hi kindly answer to my question
My stapedectomy surgery done since 1.5 month but after that I can't hear anything else kindly advise what can I do please
i've just got my polyp removed and the doctor diagnosed me with otosclerosis.and im still in highschool with a huge dream and im just afraid that the surgery mught clashw ith my school work so that sucks
I know this is an old video, and I just came across it. Did you also have tinnitus as one of the symptoms?
Hi Aunye. I had a stapedectomy about a month ago and my hearing has been greatly improved since then! I have been having some tinnitus the last few weeks, so I was curious if you experienced that as well and if it went away over time? I'm hoping it is just a side effect of the ear healing, or the gelfoam dissolving. Apologies if you've answered this already.
Hi, I’m glad to hear that your hearing has i morphed due to the stapedectomy. Congrats! The tinnitus went away, over time, for me. I hope that your eventually goes away. Sending you well wishes as you fully recover!
@@aunyeboone8576 That's great to hear! Thank you so much for sharing your story, you and others who've shared your experiences have made this process so much easier for people like me.
@@aunyeboone8576 Do you recall about how long post-op the tinnitus lasted for? A few days? Months?
Hi, I just had the stapedectomy done yesterday. Your video inspired me to take the plunge. I'm a little worried because I cannot hear much at all from that ear, but of course the packing is still in the ear, so it seems obvious that you cannot tell the full effect until it comes out. However, I saw a video where a person said that they could hear better even with the packing still in. Did you have to wait for it to come out before you heard normally? Thanks again for your generous video.
Hi, I'm so glad that my video inspired you to get the surgery! The packing limited some of my hearing initially, but once it was removed, my hearing was 100%. I hope that you are making a good recovery and that you are hearing better each day!
Hey there! Yes, I am really glad that I did it. My hearing wasn't 100% right after they took out the packing, but I would say about 30-40% better, and my Dr. told me that I would hear the full effect after two months, and it seems to get better every day. It may sound silly, but I was really nervous about getting it done. I don't like anesthesia, and the idea of them cutting around my eardrum gave me the willies. But, Now I am really glad I did it. And your video definitely inspired me to just get it done. Thanks again!
Did you ever get the other ear done ? I'm scheduled to do it tomorrow.
Hey there, I have not gotten the right ear done yet! I may consider getting the surgery in about two more years. Best of luck to you with your surgery. Sending good vibes your way! ✨
Hi aunye, my name nirav , I'm having otosclerosis and wanted to few things from .
1. What it sound like after surgery i mean it sound artificial or natural after surgery.?
2. What was the experience with your second surgery?Any improvement?Or is it bad or not ok or good or better?
3. How to choose right doctor for this purpose which is gonna affect us for life in good /bad way?
Hello ! I hope you doing well. i have a question. Can I go back to gym ( run, Work out) after 3 months of having this surgery ?
billy kelly Hi Billy! Thanks for stopping my page and viewing my video! You should be good to go to the gym, run, and workout roughly a month after surgery! Ease into things though and know your limits!
thank you so much !!
I have otosclerosis too. I had stapedectomy surgeries in both ears at age 29 the latter half of 2016. Months a part of course. The car, and coffee shops were painfully loud. I'm glad you're doing great. Do you ever get sharp pains in your ears, or the hearing go away briefly? This happens to me on occasion.
Dylan State Hi! I definitely get sharp pains and ringing in my ears a few times month. I noticed that when my sinuses/allergies are bad, I have balance issues and ringing in my left ear. I agree about the coffee shops and other venues: VERY loud! Do you feel as if your stapedectomy was successful? I hope all is well!
Aunye Boone hey! It was definitely successful. My otosclerosis was very advanced. My hearing is like night and day. I hear things I never knew made sounds. Some of it is a bit annoying though,to be honest. I have a bit of nerve damage so my hearing is 100% in one ear.
I had completely accepted that I was going to become deaf eventually. I took ASL 1,2 & 3 in college and was ready to force myself to become fluent. I really only decided to have surgery because my mother was concerned for my safety.
I'm happy I did it. I had my first surgery 8-01-16 and my second 10-03-16. Both ears now have Titanium Bartels Bucket Handle Prothesis.
What prothesis do you have?
Hi Dylan...was wondering how you are doing i know its been 4 years since your post. Trying to figure out how the long term effects are after the surgery.Do you still have any pains? Also did your hearing remain very high like 90-100% or how are u doing with time...Wishing you all the best.
@@Daisgirl23 my hearing is great. Honestly I think once you get your surgery you are good to go. I think it is very rare for there to be issues if done correctly. I get ear pain on occasion but not sure if it is related at all. Also, some high pitched sounds are painful, but those are not something encountered daily. Very happy and thankful with the out come.
@@dylanstate1076 this is good to hear and know....and yes maybe in the future i will get the surgery for now im okay but Im so happy that it has helped you and this gives me hope if i need to get it one day :D thank you for sharing ur experience! will keep in touch in future if ever have questions lol. best wishes!
I watched this years ago and this has helped me to to this day with actually going in and getting the help I need. Thank You!
Faith Lea Hi Faith, I am so glad that you watched this video and got the help that you needed!! I pray that all is well with your hearing loss journey!
@@aunyeboone8576 hi
How is your ears now. Is your surgery success? Would love to know if update
I had surgery yesterday, hearing improved on the operation table , it was like a conference. Having trouble chewing . Dr says for 2 days I'll hear intermittently , is that correct. Currently I can not hear from operated ear and sometimes I hear high frequency noises.
Hi Shailesh, congrats on getting your surgery! I hope that you have a smooth recovery. To answer your question: I would listen to your doctor’s advice and I’m sure that your hearing will be fully restored in the timeframe that he estimated!
@@aunyeboone8576 thanks. It's been 4 weeks now after surgery and now my hearing is less than 75% . Does the hearing improve after 2 months ?
Is these a long time deasiaes after opertion itt may occur
I want answer for this
I was just diagnosed otosclerosis..My ENT thought it was meneires's disease..took 4 months to figure out my diagnose and still not 100 percent sure yet ....... I had ,3-4 types blood work ,cat scan mri,and still came up negative......this disease was found in mostly caucasian pregnant females majority of the time i was told, i've lost hearing both ears but more in my right ear ,and i get occasional head fog and headaches, i am 43 years old male by the way ,just how how u describe your self, i'm healthy , i run and exercise every day ,eat healthy sleep good ,never had any health issues my whole life..so my question to you is Aunye is ...did your insurance cover this surgery and what was the doctor's name that operated on you? you said you got it done in maryland? i so afraid if the surgery goes wrong i can go deaf completely...now its getting worst in both ears i'm about 50/50 hearing now in both ears lost 50 percent hearing...more or less i'm just looking for positive results from people that had gotten this done...but i also heard it can damage ur hearing ,taste permanent if surgery unsuccessful...thank you for making this video...i know i'
m not alone now..
Hitch Hiker Hi, I got the surgery performed at University of Maryland-Baltimore Hospital by the surgeon Dr. Eisenman. Insurance covered the majority of my surgery but I was still left with a $3,000 bill. I hope that you consider getting the surgery. The recovery time is quick and it will definitely change your life!
Thank you!
Hi Aunye! I had a stapedectomy done with a titanium bucket handle implant put in place about 4 days ago. My biggest concern has been that after i removed the ear cup and dressings after 48 hours of the surgery, I cannot here anything out of that ear except for a very high pitch ringing noise inside my head. If I cover my right ear with my finger I hear nothing at all. I was wondering if you had a similar experience and if so how long did it take for you to be able to hear again?
Hi Lorelie! I did not experience that with my ears post-surgery, but you may want to contact your surgeon’s medical facility to speak with a medical staff member who can explain why this is occurring. I hope that your recovery goes smoothly and that you regain 100% heating! Thank you for stopping by my page and leaving a comment.
Lorelie Rivera I had the surgery done 1 week ago and I had similar initial experience of feeling everything too noisy for couple of days but last days i am noticing same as you where don’t hear anything in my ear if I cover my working ear. Did it got better? I have my surgeon appointment next week to remove packaging. Feeling little bit worried...
How are you feeling now?
@@iVue Has it gotten better?
Ravi V from my experience as long as I scratch my head behind the ear and if I can hear that all good. Wait for the surgeon appointment to clear the ear. Everything will be good. My hearing improved from 20% to 80% approximately. First 2-3 weeks are the one which gonna test your nerve. But don’t worry everything will be ok.
Hello
Till how many months we shouldn't use the earphones after the surgery.
Dileep Ksheerasagar Hi! Based on my own personal experience, I would start using headphones again 2 months after the surgery!
Hi do you of anyone who’s had surgery and blow there nose after the surgery?
Im new to this i was told i going to have surgery im 29 im freaked out to do this all its my left ear.everything your saying its me im tried of truning up tv and headphones or having people repeat altime.i just had scar tissue moved out and they found out i have this
omg really Thank you for stopping by my page! I wish you the best of luck with your surgery and you will be so happy that you did it after you recover and regain your hearing!
@@aunyeboone8576 thanks.i fill like your the only video that explains everything just how i fill
Hi. I am 27 year-old hungarian guy and according to my doctor I also have otosclerosis in my right ear. My hearing on my left ear is 100%. The doctor suggested me having a surgery, but I'm a bit afraid of it. He told me about the risks of this surgery and I got confused. He said the surgery can cause the lack of sense of taste and the face moving nerves can be damaged. That's why I'm really scared. And he also said I will have to lie a week in the hospital beacuse of the strong dizziness and vomiting and after that another week at home. I am civil engineer with a lot of work, I don't have time for lying two weeks. Do you think these things are real or do you have any of them? Is that true that flying after the surgery is not allowed anymore? Thanks for your answers in advance.
Yes you will get lack of senses on your tongue a side. But the senses will get cure slowly. And no need to lie down in hospital for a week. I was in the hospital for only one day, after my surgery was done. And i got dizziness only for one day. But for one week you must take care yourself. And you are correct that flying must stop upto 3 months.
I was diagnosed with this. Can't afford the hearing aids I want. I'm considering the surgery, but I'm nervous. Oh, and add tinnitus to the mix.
Lissa Brooks Hi! You should definitely consider the surgery for better long-term hearing. I was afraid of surgery as well, but the procedure went very smoothly.
I have been diagnosed with Otosclorosis last Sept. I live in Belize City, Belize Central America and we do not have an otolaryngologist here in Bze. So I need to do go to merida to do the surgery I am very reluctant tho, because it's not a common disease in this part of the world
Annica Hill Hi, and thanks for stopping by and watching my video! I am sending good vibes your way that you get further treatment/surgery in Merida. This is still an uncommon disease across the world, and I hope we can all stay informed and connected within the hearing loss community!
I had the surgery, first time on the right ear and all went well. Second surgery was 6 years later, on the left ear. The surgeon screwed up. He killed off the nerve. I was left with no hearing in that ear, 3 weeks of vomiting, the lost of my equilibrium. Which took a year of therapy to be able to walk on my own. I now only have 50 percent hearing on one side. It made my life a living he'll, so when a surgeon says there are only one percent chance of something going wrong, please please take that into consideration. Signed......the 1 percent!!!!!
Allure 2999 Hi there, thanks for sharing your story! I am so sorry that you had the worst possible scenario happen to you. These surgeries definitely come with many risks, and I hope that you can somehow have a medical solution to fix that ear if at all possible!
I am reading through all the comments and yes ive heard the surgery is risky, Im so so sorry that this happened to you, and i am praying that you are okay...please let us know how you are...Were doctors able to help with hearing aids? I am hoping you were able to get more comfortable over time...best wishes.
@@Daisgirl23 Aww thank you for your concern. It was a devastating blow to my life. Hearing aids will not work in that ear, since the doctor destroyed the nerve. I'm completely deaf on the left side and only have 50% hearing on the right side. It took away my ability to distinguish where sounds are coming from, so if someone is saying hello I have to scan to see where they are. I know it's a scary story to tell but I never want to let anyone going through this procedure to know, that sometimes the outcome can go horribly wrong. As for me, with prayers, family and friends support. You learn to live with it. Again, very sweet message and thank you 😊
@@Allure-zb1fn yes truly wishing you all the best and yes same here my weak right ear makes me sometimes have to look arnd to know where the sounds coming from lol. but i havent had the surgery yet maybe one day if i need it...and would be careful of course. maybe for the 50 % ear if you ever need the one that is a bone conduction hearing aid just for that side but of course 50 % is still enough to hear out of the ear for sure...well wishing you the best and yes good family and friends support is always what counts :D im happy to hear you are okay , keep up the positive vibes!
Is it true that you can never travel by air after the operation?
Did you ever travel by air after the operation... if yes.. then what was the impact of that air travel on quality of your hearing?
Hi, yes you can travel by air after the operation. Consult with your surgeon/doctor, but I was instructed that I could travel by air after a month of recovery. Air travel does not have a negative affect on my hearing, but I would suggest wearing ear plugs during takeoff if you decide to travel via airplane post-surgery.
@@aunyeboone8576 Good morning Aunye, many thanks for the prompt response on this. I forgot to ask one more question; is it true that this operation has some age limitations and we should not do it after 50 years of age?
@@zulfiqaralizaidi3088 I am not exactly sure of the age restrictions. You should consult a doctor or surgeon for that information!
Hi I had surgery on Feb 5 2020 in my right ear. I still can't hear anything. Can anyone tell me what is the solution
How is your condition now?
Hi! Thanku so much for sharing!
I had surgery 10days before in my left ear. I still can't listen anything.
1 week after operation they called me and removed outer packing, inner packing is at the same place now, they have told me to wait for another 2 weeks and visit them. But untill now I can't listen anything,
Is it normal?
Can I expect hearing back after 2 weeks?
What type of packing that they put inside which is blocking my whole hearing process?
They have even provided ear drop to use.
I am tense now, I hope for ur attention.
Hi...how is your hearing now? I had my right ear surgery 10days ago...but can't find huge difference...it is same as before...dr has given me ear drop and asked me to visit after 15 days.
Perhaps getting surgery done was not wise decision, my conditions is even worse, hearing less than before n tinitinus? Well it is back with days.
Hope you ll do good! Give time, normally 2-3 months should be trial period.
@@VibeWithRohit. Im also having tinnitus...dr told me to wait 6 months to observe maximum recovery.... 🙂
Best of luck, !!
@@shilpasaha5893 Hey how is your hearing improvements??
I suffer otosclerosis in both ears ... it has been misdiagnosed since I was 13 ... finally an ENT has diagnosed it ... I have had a BAHA ... screws in the conductive bone for no point.... hopefully, the Eant will operator on my deaf right ear then the better left ear after.
W Wood Hi! Thanks for sharing your personal story. I hope that you can get a successful operation on your ears!! Wishing you the best!
Thanks for the best wishes.. so glad your operation was successful... I just hope my ENT will operate.. he is very, erm, dismissive of my issue.
I had mine done yesterday !
How's it going?
It’s still healing. Not much difference yet.
@@anamiranda4037 how are you now
Hi Aunty Thank you. But unfortunately. When the auditory nerve is killed off, there is nothing that can fix that. I was watching both yourself and another woman's video about the surgery and I thought that I needed to, post my story so someone else having that surgery, thinks long and hard about the pro's and con's of having it done. I would be heartbroken if someone had the results that I had.
Tell us your story.
Thank you for sharing your story I am deciding wether to get it done or getting hearing aids. Especially now with covid going on.
Hello.mam...I have done my surgery one day back....Bt I have suffering close year...No sound can't hear....I have many doubts that how much time to recovery and doing every job....
mohit crazy Hi, I wish you the best of luck as you recover from your surgery. Recovery time is unique to every person, but with proper rest you will heal quickly!
Thanks mam....Bt sometimes very loud sound comes in my ear....And other ear to be feel that closed....Why....
mohit crazy You may want to contact your medical provider to describe what’s going on with your ears!
Ohk thanks for this...Btw how I contact u....Do u have any account on social media
I just had my surgery its been a week still gloged doing drops right now
omg really Hi, thanks for stopping by and watching my video. Sending you good vibes as you recover from the surgery!
@@aunyeboone8576 i have an implant now can't really tell if its working i go on 19th for haering test but my head dose hurt above my left ear sometimes and i get dizzy alot
Hello Madam,
I am 25yrs old. I also have the Otosclerosis
What happen if the surgery goes wrong ??
My doctor assured 50 % of success
saurabh patel Hi! To answer your question: I believe the surgeon would have to come up with alternate solutions if something goes wrong with the surgery. The surgery success rate is fairly high! I wish you all the best with your future surgery if you decide to go through with it!
Last Oct I woke up with vertigo. Saw ent in Annapolis and he said I did have otosclerosis but he said it wouldnt cause vertigo. He didnt know what was wrong with me so he referred me to Dr Eiseman. And even he said he doesnt know what iui s wrong with me. It's so frustrating. So glad to hear your story.
Green House Homestead Thanks for stopping by and sharing your story! I hope that you find answers regarding your condition soon. Best of luck with everything!