thank you for posting on PPPD...I was diagnosed with this last September and it has been a very challenging and long journey to go through. The doctors also had me on klonopin for years and after researching this drug it is one of the leading causes of vertigo symptoms...I weaned myself completely off of that pill and my PPPD and vestibular migraine's went from an 8 to a 2 within 2-3 months. I feel so much better and feel like I'm finally getting my quality of life back. I also highly recommend taking Mindfulness classes as well. They tried to put me on another pill but I refused because I wanted my body to do it's natural thing and heal itself holistically and I'm so thankful that I listened to my body. Hope this helps you and anyone else that is reading this. There is light at the end of the tunnel :) Much love!
Thank you so much for posting! Love your videos, and completely agree that people with vestibular migraines (and dizziness in general) are gaining more traction and support because of people like you sharing these stories using your platforms =)
I’m just ready to live a dizzy free life! I love that! I am too! I was seeing a neurologist but then covid hit and he got deployed to the the mercy ship. My treatment is now on hold. Thank you for doing this video. Gives me a lot of encouragement. ❤️ how many years have you been dealing with this? Mine hit about a month after I had our son, a year now for me. Looking forward to tour future updates.
This was a great share because it could help others 💙 it’s awesome that your vertigo has gone down. I understand the struggle of not being able to post due to your baby, 🤣 I have the exact same issue 😁
I think I have pppd and vestibular migraine the pppd is worse since a long attack of vertigo last July but my doctor doesn't even want to listen to me, I just have to try everything on my own, everything you describe i am going through right now
Can you share the link for the VRT? I have cluster migraines and I have suffered for years without success from my neurologist. I gave up on them and have to figure this out for myself and get my life back. I have not been able to work at all and driving scares me bc I don't know when an attack my hit. Thank You for sharing.
Not sure if you have allergies but after I started using nasal spray my dizzy spells have pretty much stopped. I had migraines and dizziness and spent so much money on mris & doctor visits. Discovered on my own that it might be allergy related.
@@teenina6829 I just googled it & looks like the active ingredient is Fluticasone Propionate. Yep, it is a nasal spray used for hay fever and allergies.
Ive been diagnosed with VM and PPPD. Right now trialing Effexor. Currently on 112.5mg. Increasing each week. What dose were you on Effexor? I tried zoloft for 4 weeks at 50mg but couldn’t tolerate the side effects
Lacey Bretthauer no relief yet. Specialist says I may need a higher dose. Initially I had more headaches and some increased dizziness but that went away. Ive also had constipation.
Svea, can you talk about what happened with the Effexor you were on? Did it crap out on you? Side effects? Was there withdrawal when coming off? Did it help at all? This would help a lot thank you!!
This is really interesting - are you finding that the Zoloft is helping you with the dizzies? My neuro-otologist in the UK whos apparently one of the leading in the country said that PPPD is just uncontrolled migraines and wouldnt give me a diagnosis as he said he doesnt think it exists. Im not so sure - I am still getting some issues in visually crowded environments but am generally better outside. Cant wait to hear how the Zoloft works for you as if it is successful ill definitely look to adding it!
Hi Becci, I think I am seing the same neurologist! lol..I would be happy to get in touch and support each other and to share any tips we might have. If you feel like it please send me an email to pablo_bano@yahoo.es.
He’s so cute!!! You should join my FB group for vestibular disorders ♥️ it’s called Mal de Debarquement and vestibular migraine support. We have some 3pd in the group and several vestibular warriors/you tubers. I’m pretty sure I have 3pd as well. I’m dizzy all the time.
For the VRT did your dizziness get WAY worse before it got better? I tried it for 2 sessions and the dizziness and pushing pulling sensation applied tremendously.
thank you for posting on PPPD...I was diagnosed with this last September and it has been a very challenging and long journey to go through. The doctors also had me on klonopin for years and after researching this drug it is one of the leading causes of vertigo symptoms...I weaned myself completely off of that pill and my PPPD and vestibular migraine's went from an 8 to a 2 within 2-3 months. I feel so much better and feel like I'm finally getting my quality of life back. I also highly recommend taking Mindfulness classes as well. They tried to put me on another pill but I refused because I wanted my body to do it's natural thing and heal itself holistically and I'm so thankful that I listened to my body. Hope this helps you and anyone else that is reading this. There is light at the end of the tunnel :) Much love!
Hi! How was ur dizziness? Rocking or spinning? And was it 24/7? Did you heal completely?
@@8QQ8 hi ho este you now with ur dizznes, for me its 24/7
Thank you so much for posting! Love your videos, and completely agree that people with vestibular migraines (and dizziness in general) are gaining more traction and support because of people like you sharing these stories using your platforms =)
You look so positive despite of what you're going through with. A very strong woman indeed! Keep safe always! 😊💛
Thanks for sharing your journey.
Just pray, hope and don’t worry! Praying for you dear💐
I’m just ready to live a dizzy free life! I love that! I am too! I was seeing a neurologist but then covid hit and he got deployed to the the mercy ship. My treatment is now on hold. Thank you for doing this video. Gives me a lot of encouragement. ❤️ how many years have you been dealing with this? Mine hit about a month after I had our son, a year now for me. Looking forward to tour future updates.
SAME! Been dealing with it for over a year.
Megan Henry did yours start after having a child?
@@vee9133 mine started 6 weeks after having a baby.
This was a great share because it could help others 💙 it’s awesome that your vertigo has gone down. I understand the struggle of not being able to post due to your baby, 🤣 I have the exact same issue 😁
Well I'm glad you got a diagnosis, but I wish you get relief. Migraines suck. Lol Jack was like nope I'm ready to nurse !
You are amazing person and hope everything goes well for you ❤️ take care and stay safe 🥰 you have one new friend here
I think I have pppd and vestibular migraine the pppd is worse since a long attack of vertigo last July but my doctor doesn't even want to listen to me, I just have to try everything on my own, everything you describe i am going through right now
Can you share the link for the VRT? I have cluster migraines and I have suffered for years without success from my neurologist. I gave up on them and have to figure this out for myself and get my life back. I have not been able to work at all and driving scares me bc I don't know when an attack my hit. Thank You for sharing.
Hi! I was diagnosed with PPPD. One question How many time have you been taking Sertraline? Greetings from México!
Amigo cómo sigues de los mareos ? Se te quitaron ?
What was the VRT website you used? You mentioned you would leave it below
Thank you did you change your diet to help with migraines is this a forever change.
Not sure if you have allergies but after I started using nasal spray my dizzy spells have pretty much stopped. I had migraines and dizziness and spent so much money on mris & doctor visits. Discovered on my own that it might be allergy related.
What allergy spray did you use
@@teenina6829 Just over the counter flonase.
@@chrissyp3065 I live in Australia we don't have that . Is that just steroid spray for hayfever ?
@@teenina6829 I just googled it & looks like the active ingredient is Fluticasone Propionate. Yep, it is a nasal spray used for hay fever and allergies.
@@chrissyp3065 thank you :)
Ive been diagnosed with VM and PPPD. Right now trialing Effexor. Currently on 112.5mg. Increasing each week. What dose were you on Effexor? I tried zoloft for 4 weeks at 50mg but couldn’t tolerate the side effects
Have you noticed the Effexor helping at all with symptoms? Any side effects?
I am currently on Effexor still! I’m on a super low dose of Zoloft as well! I’ll talk more about it in my next update video!
Lacey Bretthauer no relief yet. Specialist says I may need a higher dose. Initially I had more headaches and some increased dizziness but that went away. Ive also had constipation.
I’ve heard that’s typical side effects. Hope it works for you !
Aww thank you!!!
Do you still feel the rocking / on a boat kind of dizziness ? And if yes it is 24/7 or it comes and goes and you’ve got some relief? Xxx
Hey misha! I do have occasional feelings of rocking when I have a migraine coming on. But it’s not often anymore! I used to have it 24/7
Svea, can you talk about what happened with the Effexor you were on? Did it crap out on you? Side effects? Was there withdrawal when coming off? Did it help at all?
This would help a lot thank you!!
Lacey Bretthauer yes I will do my next video on that ❤️
This is really interesting - are you finding that the Zoloft is helping you with the dizzies? My neuro-otologist in the UK whos apparently one of the leading in the country said that PPPD is just uncontrolled migraines and wouldnt give me a diagnosis as he said he doesnt think it exists. Im not so sure - I am still getting some issues in visually crowded environments but am generally better outside. Cant wait to hear how the Zoloft works for you as if it is successful ill definitely look to adding it!
Hi Becci, I think I am seing the same neurologist! lol..I would be happy to get in touch and support each other and to share any tips we might have. If you feel like it please send me an email to pablo_bano@yahoo.es.
Diagnosed with PPPD three months ago. Any updates?
Update coming soon!
He’s so cute!!! You should join my FB group for vestibular disorders ♥️ it’s called Mal de Debarquement and vestibular migraine support. We have some 3pd in the group and several vestibular warriors/you tubers. I’m pretty sure I have 3pd as well. I’m dizzy all the time.
I will absolutely check that out!!!
That website doesn't work :(
Try now!
www.themigrainemomma.com
For the VRT did your dizziness get WAY worse before it got better? I tried it for 2 sessions and the dizziness and pushing pulling sensation applied tremendously.