Chronic Illness Weekly Vlog: Lack of Motivation
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- Опубліковано 10 лют 2025
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This week on Chronic Illness Weekly after a very busy Monday the combination of lockdown and January blues starts to set in and I feel a real lack of motivation and disconnect from the world. I get to spend Monday as a princess and also dress Honey up as a princess for National dress up your pet day so its not all depressing :P
Chronic Illness Weekly is, you guessed it, a weekly vlog showing you my life with Chronic Illness. I share my experiences with Ehlers Danlos Syndrome ( EDS ), Postural Orthostatic Tachycardia Syndrome ( POTS ) and Chronic Migraine. I fight chronic pain and fatigue and many other symptoms on a daily basis but I try not to let it stop me.
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I've been unmotivated and fatigued a lot lately, too. It''s frustrating. In a couple of weeks, I hope to finally be on Mestinon (Pyridostigmine) to treat my hEDS brain fog, gastroparesis, and POTS/dysautonomia. Perhaps that will help a lot.
Hoping you feel better soon!
Best of luck with your new treatment! Hope it helps x Spoons & Love x
@@ChronicallyJenni Thanks! If I'm able to get this inexpensive medication that's been around for 60+ years, and if it works well for my EDS issues, I'll be sure to let you know. :)
@@ChronicallyJenni I finally got my Mestinon on Friday! It cost only $9 for a 30-day supply! My constipation and orthostatic hypotension were noticeably better on Saturday, but it's too soon to know for sure how well the Mestinon will do. I'm not even on the full dose yet.
Sending Minion hugs to you, Ian and (Princess) Honey. Keep up the good work 👍 ☺
Thank you so much for all your support as always Jamie! x
Sending you so much love, sweetie. I think this lockdown is getting to all of us in one way or another. You’re not alone, I promise xxxxxxxxxxx
Thank you Penny & to you. Definitely know I'm not alone. Just hate to think how much longer it will all go on for. just looking forward to some warmer weather! x
Love this !❤️
Thank you so much Martha x
Gotta love those bloat babies! Glad to see you taking some time for self care, it's so important.
I know right! not fun! I like guessing how many months people would think I am :P Definitely trying my best x
Ah yes I knew it was coming busy first day and exhausted but I’m glad you are not alone now having to cook all the time. Honey is getting so big bless her xx
Yeah glad to have some help these days! We haven't weighed her in a while to see its so funny becuase we see her everyday we dont really see the growth x
We're not on full lockdown (I'm in the US) but it's really tough being so isolated and seeing people I used to respect having so little concern for public safety. I'm struggling a lot personally with getting answers to health issues and working within a slow moving healthcare system right now. But trying to maintain optimism....
I'm so sorry you're struggling with healthcare right now its such a difficult time to try and get any help or answers in the midst of everything else going on. best of luck and hope you get the answers your looking for. Lots of love x
Hi I think ur little Honey piglet should be doing some exercising with you... she appears to have over-binged during Christmas!
She's a growing girl! We've got her a new wheel recently and she has been doing Hoggie marathons whilst we sleep don't you worry! x