Thanks Christian! Got my power port today. It will be used for chemo and bloodwork. The actual procedure was a piece of cake.🙂 It's the soreness afterwards.😔
Came across your video it’s 4 years ago but I’m very concerned about the port I didn’t see an updated video but thanks for being so positive most of the videos scare you to death about a port …. I hope you’re doing great n blessing to you a warrior I’m sure 🙏🏾
Thank you for sharing this! From one cancer survivor to another! I’m talking with my oncologist about getting a port installed due to having factor v leiden disorder, I’ll have to be getting draws for life every three months! I’m a bit nervous to get my port installed and am praying they can knock me out completely!
Thank you for this video! February I was diagnosed with Hodgkin lymphoma,March I got a port put in. I was so scared about the port. Never heard of these ports,but glad the doctor push it me. I carry my port card at all times and my port is my best friend.
Thank you for sharing. I got a port, baird power port, jan 24th for chemo to begin Jan 31. At this time you cannot see the port indications, however, I feel the size of the port. Prayerfully, the port was installed properly.
Thank you for your video on the Port. Most videos I watched the people talked more about their animals or art projects just ramble on than the actual subject line...it's frustrating when all you want to do is learn about the main Subject. So thank you again!
Thank you for these videos. I start chemo on Halloween day. (Yay) I got my port last Tuesday. I wasn't given the options you had and was awake during that procedure. Plus too, the oncologist made sure to tell me it would ONLY be accessed for chemo, no blood work or other meds. I guess each situation is very different. Anyway, thanks so much, helps me to prepare and seeing someone more on the smiling side of things helps.
I have the same power port since 2015. I was given it for Entyvio, but that med stopped working. Currently on Stelara every four weeks but will be starting Azathopurine soon. My doctor is having mine flushed every 4 weeks because we are waiting for the next set of biologics which two are infusions will be coming available. We have a port team so and we can get it done. Right now about a year away. Mine is in the jugular vein. No choice given, General was only option given and I stayed overnight post op. But that is severe Crohn’s disease. We got the power port because I have to have regular blood draws and need the option for IV treatments, including hydration if I get really dehydrated, if needed. I am very grateful for it. My body does not tolerate regular it’s, they blow within 24 hours most often. Mine blow up. Horrible feeling very painful and cause bruising and then that vein is useless for a long time.
Hi Christina! I’m in the process of making the decision about a port (I have ehlers Danlos) and found your video to be super helpful and you really covered all of my major questions. So thank you! Hope that you’re doing well!
rachel kamen I am so glad that it did! I wish you quick and easy treatments and a very fast road to recovery. If you have any other questions, I’m here to answer the best I can!
Thank you so much for this video! I get my port tomorrow for my weekly lactate ringer infusions. My veins are horrid due to my EDS and CRPS. Nervous about the procedure but feeling better after your video.
Great video I have the same Power Port. My veins are hard to find as well. They put in my subclavian vein too. I was awake when they inserted the port because I had ate breakfast so they numbed the area and it went well. I’m Tripple negative for breast cancer had a lumpectomy on August 5 2020
I wasn't given a choice. I was supposed to have the tumor removed and then have chemotherapy if necessary. But the tumor had grown and they put in a power port. This isn't my first rodeo with cancer. It started in 2012. By 2014, they finally found the cancer and it was stage 2b cervical cancer. The lumps they found in my breasts were removed in 2008 and I went through radiation treatment. It was caught very early but I still had some chemo but didn't need a port. I just can't seem to escape this Cancer. It keeps showing up all over my body. Breast, lymph nodes cervical cancer and now my left lung. It just sucks
I had my port installed on March 16th. I had my lung collapse while having surgery to remove the tumor from my pancreas. I was in the hospital 7 days. Went home briefly, ended up with an infection went to the ER because of excruciating pain in my left side. It was pancreatitis and pysdocyst. Another 5 days in the hospital. But since then i have been doing okay except for low ANC count which delayed my chemo for 2 weeks.
My PowerPort leaked chemo into my inner chest through almost two full runs of therapy. It was very painful. I kept getting blamed by the nurses for scratching my chest because it was so red and irritating. When they removed it, they discovered the port had a torn hose. What a hunk of junk. Also, an awful experience after having it put in when the meds warn off from the surgery. Never going through that again!
Had my power port placed in a week ago on my left side alongside my lumpectomy and sentinel node removed, its slightly uncomfortable still to breathe and the left of my neck still is stiff. I have my follow up tomorrow, but just hoping this is 100 percent typical of healing from healing.
I use lidocaine ever since the oncology dept went up in size needle. 15 minutes wouldn't work at all. At least an hour and as much as two hours really does the job! I put it on plastic and tape it in position and let the nurses take it off. I can't feel a thing. It's made all the different for me. Just in case someone comes here and could use the info 7 years later. lol
Is it pain full accessing a port? I noticed they have to poke a needle to gain access to port. How painful is it? Would you feel any pain when fluids supplied through port? Please share experience. Thank you!
Hi there! With any needle, there is some slight discomfort. They can give you some numbing cream which you apply prior to your appointment, I never used it but I hear it helps! You will taste flavors in your mouth when they flush the port, it never bothered me but it does for some. I suggest bringing some sugar free gum when your port is accessed. I did not feel pain with any fluids that were being infused. I hope this helps!
I also had a tube sticking out of my side, different reasons, similar case. It sucked cause I was coughing a lot and I could feel the air and fluid going in and out of my side. I still remember the feeling. Anyway, not why I'm here lol. How successful is the power port? I was just diagnosed with lymphoma about a week ago, I had the biopsy like a month ago. I haven't started treatment yet, I'm getting a PET scan tomorrow, then treatment starts on my next appointment. But I just wanna know if there's someone who's used these and has gotten them removed. When I woke up I asked if it can be removed when I don't need it anymore, and my nurse told me it was permanent. I don't want to believe that.
Just Gameplay I’m sorry to hear about the lymphoma! I hope that your PET scan shows only minimal growth so that treatment is also minimal. To answer your question.. this particular port I had was removable and I had it taken out a year after it was placed when all of my treatments were complete. I don’t know if it’s the same for every port. Make sure you ask your doctor. It was very successful when the person using it knew what they were doing. That’s why I say be an advocate for your port! Watch everything they are doing. The nurses at the oncology clinic knew how to use it, but the nurses in the ER and the OR prep did not always know. Make sure you know the rules and stop someone if they are doing something wrong.
My friend asked to have her port which the doctor did. Her brother in law is a jeweler ( hers was all metal) and he made it into a necklace.. a very interesting chain and the port is in the middle... you’d never know what it was it’s really unique and beautiful.
Have u had a mastectomy n implant.. Pls reply i m only 28. Triple positive and unmarried.. Pls pls reply.. How much time u have ur chemo n medication. Now r u alright..
I don’t.. I had it taken out in October 2017 after I completed my herceptin treatments in August 2017. My gallbladder was taken out at the same time as it started to get stones in it during chemo.
Thanks Christian! Got my power port today. It will be used for chemo and bloodwork. The actual procedure was a piece of cake.🙂 It's the soreness afterwards.😔
You are my hero. I got my port today and I am like you. I have small veins. Thank you.
I’m about to get a port and your video is one of the most informative and very well presented. Thank you so much !
My wife's Oncologist doctor recommended her insert a power port which was done on 03/12/2019. Thx for sharing.
Came across your video it’s 4 years ago but I’m very concerned about the port I didn’t see an updated video but thanks for being so positive most of the videos scare you to death about a port …. I hope you’re doing great n blessing to you a warrior I’m sure 🙏🏾
Thank you for sharing this! From one cancer survivor to another! I’m talking with my oncologist about getting a port installed due to having factor v leiden disorder, I’ll have to be getting draws for life every three months! I’m a bit nervous to get my port installed and am praying they can knock me out completely!
Thank you for this video! February I was diagnosed with Hodgkin lymphoma,March I got a port put in. I was so scared about the port. Never heard of these ports,but glad the doctor push it me. I carry my port card at all times and my port is my best friend.
Thank you for sharing. I got a port, baird power port, jan 24th for chemo to begin Jan 31. At this time you cannot see the port indications, however, I feel the size of the port. Prayerfully, the port was installed properly.
Thank you for your video on the Port. Most videos I watched the people talked more about their animals or art projects just ramble on than the actual subject line...it's frustrating when all you want to do is learn about the main Subject. So thank you again!
Great and informative. Just got my port my Chemo starts next week
Thank you for these videos. I start chemo on Halloween day. (Yay) I got my port last Tuesday. I wasn't given the options you had and was awake during that procedure. Plus too, the oncologist made sure to tell me it would ONLY be accessed for chemo, no blood work or other meds. I guess each situation is very different. Anyway, thanks so much, helps me to prepare and seeing someone more on the smiling side of things helps.
I was awake too.
Thanks for all the information , I had my port put in today.
I have the same power port since 2015. I was given it for Entyvio, but that med stopped working. Currently on Stelara every four weeks but will be starting Azathopurine soon.
My doctor is having mine flushed every 4 weeks because we are waiting for the next set of biologics which two are infusions will be coming available. We have a port team so and we can get it done. Right now about a year away. Mine is in the jugular vein. No choice given, General was only option given and I stayed overnight post op. But that is severe Crohn’s disease.
We got the power port because I have to have regular blood draws and need the option for IV treatments, including hydration if I get really dehydrated, if needed. I am very grateful for it. My body does not tolerate regular it’s, they blow within 24 hours most often. Mine blow up. Horrible feeling very painful and cause bruising and then that vein is useless for a long time.
I saw the card in the picture. Lol.
Congratulations Christian! May God continue to bless you and your family! 😘❤🙏🏾
Hi Christina! I’m in the process of making the decision about a port (I have ehlers Danlos) and found your video to be super helpful and you really covered all of my major questions. So thank you! Hope that you’re doing well!
rachel kamen I am so glad that it did! I wish you quick and easy treatments and a very fast road to recovery. If you have any other questions, I’m here to answer the best I can!
Thank you so much for this video! I get my port tomorrow for my weekly lactate ringer infusions. My veins are horrid due to my EDS and CRPS. Nervous about the procedure but feeling better after your video.
Great video I have the same Power Port. My veins are hard to find as well. They put in my subclavian vein too. I was awake when they inserted the port because I had ate breakfast so they numbed the area and it went well. I’m Tripple negative for breast cancer had a lumpectomy on August 5 2020
Amazing and comprehensive. Thank you ❤️
I wasn't given a choice. I was supposed to have the tumor removed and then have chemotherapy if necessary. But the tumor had grown and they put in a power port. This isn't my first rodeo with cancer. It started in 2012. By 2014, they finally found the cancer and it was stage 2b cervical cancer. The lumps they found in my breasts were removed in 2008 and I went through radiation treatment. It was caught very early but I still had some chemo but didn't need a port. I just can't seem to escape this Cancer. It keeps showing up all over my body. Breast, lymph nodes cervical cancer and now my left lung. It just sucks
wingless Angel Praying for you.
Please contact me I would love to talk to you similar illness
I loved this video. Really helpful. Thank you.
I had my port installed on March 16th. I had my lung collapse while having surgery to remove the tumor from my pancreas. I was in the hospital 7 days. Went home briefly, ended up with an infection went to the ER because of excruciating pain in my left side. It was pancreatitis and pysdocyst. Another 5 days in the hospital. But since then i have been doing okay except for low ANC count which delayed my chemo for 2 weeks.
Thank you for sharing
My PowerPort leaked chemo into my inner chest through almost two full runs of therapy. It was very painful. I kept getting blamed by the nurses for scratching my chest because it was so red and irritating. When they removed it, they discovered the port had a torn hose. What a hunk of junk. Also, an awful experience after having it put in when the meds warn off from the surgery. Never going through that again!
Thank you for this video
Your scar looks like it healed really well! Any tips for good scar healing? I'm getting a port soon!
I loved my port I just got mine out
I had a power port placed but I have an incision above my port just below the clavicle
Hi! I have the same port but I wS wondering about exercises ? What can I do and what can’t I do?
Thank you so much
Had my power port placed in a week ago on my left side alongside my lumpectomy and sentinel node removed, its slightly uncomfortable still to breathe and the left of my neck still is stiff. I have my follow up tomorrow, but just hoping this is 100 percent typical of healing from healing.
They did not give me a choice they said I had to have the port. It is easy to access and as she says it prevents veins from being blown out.
I am so sorry to hear about your lung, the fact you didn’t have a choice for your port.. and ALL that you are going through. My thoughts are with you
I use lidocaine ever since the oncology dept went up in size needle. 15 minutes wouldn't work at all. At least an hour and as much as two hours really does the job! I put it on plastic and tape it in position and let the nurses take it off. I can't feel a thing. It's made all the different for me. Just in case someone comes here and could use the info 7 years later. lol
I have the same port, and the catheter is in my neck
I have the same port!!!
Is it pain full accessing a port? I noticed they have to poke a needle to gain access to port. How painful is it? Would you feel any pain when fluids supplied through port? Please share experience. Thank you!
Hi there! With any needle, there is some slight discomfort. They can give you some numbing cream which you apply prior to your appointment, I never used it but I hear it helps! You will taste flavors in your mouth when they flush the port, it never bothered me but it does for some. I suggest bringing some sugar free gum when your port is accessed. I did not feel pain with any fluids that were being infused. I hope this helps!
please talk about Emla cream to lessen anxiety numbs the area
Hi I'm afraid to ask my Dr, why my port site itches so much, I'm afraid he says, yu have to remove it, that's why i got my port, no vein access.
What were your symptoms did you have when your lung was nicked? Please advise.
I also had a tube sticking out of my side, different reasons, similar case. It sucked cause I was coughing a lot and I could feel the air and fluid going in and out of my side. I still remember the feeling. Anyway, not why I'm here lol. How successful is the power port? I was just diagnosed with lymphoma about a week ago, I had the biopsy like a month ago. I haven't started treatment yet, I'm getting a PET scan tomorrow, then treatment starts on my next appointment. But I just wanna know if there's someone who's used these and has gotten them removed. When I woke up I asked if it can be removed when I don't need it anymore, and my nurse told me it was permanent. I don't want to believe that.
Just Gameplay I’m sorry to hear about the lymphoma! I hope that your PET scan shows only minimal growth so that treatment is also minimal. To answer your question.. this particular port I had was removable and I had it taken out a year after it was placed when all of my treatments were complete. I don’t know if it’s the same for every port. Make sure you ask your doctor. It was very successful when the person using it knew what they were doing. That’s why I say be an advocate for your port! Watch everything they are doing. The nurses at the oncology clinic knew how to use it, but the nurses in the ER and the OR prep did not always know. Make sure you know the rules and stop someone if they are doing something wrong.
@@beedlejuice2324 thank you for being so informative, and sharing with us your experience.
Permanent until treatments ends. Your surgent will tell you approximately how long.
Thank you 🙏
Do you find the car seatbelt hurts? My port is new and I find it is too sensitive to have the belt over it…
Oh yes absolutely! Very sensitive. Almost painful! I have had my port out for 6yrs and the skin is still sensitive there.
Does ur hair came when going thrugh medication within one year...
I was not give the choice to be under general anaesthesia and it was not good to have to be operated on for 1.5 hrs .
I'm gonna ask if I can keep mine when it's taken out 😂
Sandi Jenkins I just saw my doc on Friday and asked her if I could, too! She said I can :)
Beedle Juice oh awesome!! Put it in your keepsake box 😊
My friend asked to have her port which the doctor did. Her brother in law is a jeweler ( hers was all metal) and he made it into a necklace.. a very interesting chain and the port is in the middle... you’d never know what it was it’s really unique and beautiful.
What u do for constipation
Good vids
I know I am late but I just got a port that went in jugular vein how long did you have to wait b4 full mobility thanks
Triss 73 I’m late to answer :( and I don’t have an answer for you since I had complications. Most people were up and mobile by the next day!
@@beedlejuice2324 thanks for reply been loving your videos I start chemo on july 6
Have u had a mastectomy n implant.. Pls reply i m only 28. Triple positive and unmarried.. Pls pls reply.. How much time u have ur chemo n medication. Now r u alright..
Do you still have your port in?
I don’t.. I had it taken out in October 2017 after I completed my herceptin treatments in August 2017. My gallbladder was taken out at the same time as it started to get stones in it during chemo.
Jesus about your lungs bless you. I'm sorry that happen to you.
Good Bless You!!! Than you for video…