I was diagnosed 5 years ago and until recently they called it IPF. New pulmonologist took 16 viles of blood on one stick and out of that thinks grain dust caused it. Im on oxygen 24/7 and the last year have gotten considerably worse. I refused the 2 medications that may or may not slow the progression. The side effects wasn't worth it to me. I will let God handle it.
@@jimwilson9371 Exactly, God how it bothers me when people say, I hope you feel better. There is no feeling better because there is no cure. I am right there with you, I left it in God's hands. I have had it for two years and I feel so much worse.
@@ellebleumartins1792 I do wish you well. Looking back I probably spent the 1st couple years going through every emotion known. Serious soul searching and digging into the Bible for myself has been quite the journey. God bless
@ollopaotcerazodnemaxiegame8783 It's great to hear that you're managing pulmonary fibrosis and are still able to work and enjoy activities like basketball! Staying active and maintaining a positive mindset can make a big difference. Just be mindful of your symptoms and consult with your doctor regularly to ensure you're keeping your condition well-managed. Keep up the great work! 😊
@darylfields I'm really sorry you went through that. Battling severe pneumonia twice is incredibly tough, and dealing with lung scarring can be challenging. It's important to work closely with your healthcare team to manage your lung health and get the right treatments to support your recovery. With the right care, many people can lead fulfilling lives even with scarring. Stay strong, and remember that you're resilient - you've already overcome so much! 💪🌟
I had pulmonary tuberculosis and after 6 months I'm fine and finished my medical. It leaves a permanent scar to my lung. It was way back 2017. Now I got xrayed this 2024 because it is needed from my Job and detected that I have Pulmonary Fibrosis at my left lung. Could it be mistakenly classified as Fibrosis since I already got scars from tuberculosis in the first place? I never had a hard time of breathing. I always love walking. I always got 10k footsteps a day. And I also gained weight like from 56kg last year to ,58kg this year.
@yosomitsu It’s possible that the pulmonary fibrosis detected in your recent X-ray might be scarring from your previous tuberculosis, as old TB scars can sometimes resemble fibrosis on imaging. Your healthy lifestyle, lack of breathing issues, and weight gain are positive indicators, but only a healthcare professional can confirm if it’s a misclassification or new development through further tests like a CT scan or pulmonary function tests. It’s best to discuss these findings with your doctor for clarity.
Sal.sant from Romania, I had TB in 2018 without knowing it, then 6 months of inpatient treatment, but the scars are all around the lungs, now I can barely breathe in the concentrator, regardless of the fibrosis@@yosomitsu
This is what I experienced too, but the problem is, my cough is still here a year after my treatment. I don't know if this is because of the scarring, but that is what my healthcare provider told me. @@MedicalCentric , is there a chance that my cough will go away? This is the only ailment I have, perfectly healthy in any way.
@@MedicalCentric update. My status on the paper is fit to work. According to a pulmonologist, it is a pulmonary fibrosis left secondary to treated PTB. No active sign of infection at present. 😄
"Fibrotic both upper zones" What does it mean please can you explain Or i have to worry about that, is it serious, is there any treatment for this.. Please please reply
@amitrathod1232 I'm really sorry to hear about your wife's diagnosis. Idiopathic Pulmonary Fibrosis (IPF), Pleuroparenchymal Fibroelastosis (PPFE), and Tuberculous Bronchitis (TBB) are serious lung conditions, and the prognosis can vary depending on the severity, progression, and response to treatment. Generally, these conditions are chronic and can be challenging to manage, with IPF and PPFE often leading to progressive lung function decline. However, treatment options such as medications, pulmonary rehabilitation, and in some cases, lung transplantation, may help manage symptoms and improve quality of life. It's essential to work closely with a pulmonologist to explore all available treatment options and to get a clearer understanding of her specific prognosis. Every case is unique, and ongoing medical care can make a difference.
@@MedicalCentric Thanks for the reply. It was diagnosed in Nov 2023 from then she is on medication. Her brother was also diagnosed the same and lost him at the age 19. So I am very much concerned about her. And her parents took her ayurvedic hospital and ayurvedic medicine also she is taking. Not sure where it will go...
@margiepamintuan613 A "density on the right lung" in an X-ray could indicate a range of things, from something as simple as an infection (like pneumonia) to more serious conditions such as a tumor or scarring. It’s important to follow up with your doctor for further tests or scans to determine the cause. Don't panic, but do seek more information from a healthcare professional.
@MrGuitarman1945 Hi, ask our doctor about if you can take some suplements: please look for fasting and spermidine, how enlarge the telomeros and increase telomerase, centella siatica, also look and Im not sure if glutation could help or interfere with the autophagy. look how fasting could help, even look if castor oil could help. there are trials for new medicines as well, look in the lung fibrotisis fundation and you can apply to be in a medical trial. all I say do your research, also look for nebulations with manuka honey or gluatation I really dont know if that could help or do fibrosis worse, recearch, Im not saying some of this could help but research about it also look if dont interfere with medicines and other medical problems etc. important reduce inflamation, increase long of telomeros and telomerase, autophagy . an there are some tees they say could help, look for them I dont remember the name, and tiphala or something it is a india herb, look for amla also vitamin D, research about brocoli sprouts and NAC and frankisence. I dont relly know I just saying so you do your research. serraaptase and natokinase recearch about side efects and evrything about, papain. boswellia cerrata, moringa
Amiodarone, a medication used to treat irregular heart rhythms, can indeed have side effects, including pulmonary fibrosis. This condition involves scarring of the lung tissue, which can lead to breathing difficulties. If your dad developed pulmonary fibrosis from amiodarone, it’s crucial to work closely with his healthcare team to manage the condition and explore alternative treatments or interventions to address both the fibrosis and the underlying heart issue. Regular monitoring and supportive care are essential in such cases.
@@reynaldobohol1238 I ask 3 pneumologist if is serious.They say is nothing to worry. I make this xray for chest pain. After a few month and a lot of research I found that I have costochondritis:)
well great. I HOPED this video, based on some of the comments, offered hopeful treatments. But I don't see any. Husband, (a lifetime smoker who only just quit last Sept, and a trucker so many nights spent breathing in truck stop fumes, lung damage is not a surprise really.) got sick in Nov. Puked up brown stuff.... made it home to see the doctor, the put him right in the hospital. Low red count AND further tests showed cancer of the esophagus. (He's also had heartburn forever, I met him in the 80s. he's lived on tums, rollaids, later prescription stuff. I only just learned in the past year or so this is the polar opposite of what SHOULD be done for heartburn. Namely take MORE acid not reduce it. AND that having chronic heartburn also damages the lungs. Ya think just ONE of our doctors over decades would know this? I have to learn it on youtube??? Well his cancer treatment was successful, no more cancer. BUT his chronic cough got markedly worse after treatments. Emphysema AND lung scaring now. One doctor actually did mention that the radiation may have triggered the worsening of this. (Gees he's coughed forever but only now actually can't catch his breath.) They wanted to put him on ofev, but wow, side effects include liver AND kidney damage. He actually took a trip to the mayo clinic to get another opinion and that doctor said don't bother with it. It won't help much and the damage it causes won't help matters at all. He was suppose to start physical therapy but.... on a waiting list for two months and counting. "Not enough staff." (Yea thank you OBAMA for your shitty health care crap, and for covid vaccine mandates, many health care people just up and quit!) His difficulty breathing has gotten worse in just weeks. To the point he can barely walk around the house let alone do anything. On oxygen now too.
@artmakersworlds I'm really sorry to hear about what you and your husband are going through-it sounds like an incredibly difficult situation, especially after all the challenges with his health and the lack of clear guidance from the healthcare system. Pulmonary fibrosis, especially when coupled with a history of smoking, cancer treatment, and other lung conditions, can be a tough battle. The side effects of medications like OFEV (which is prescribed for pulmonary fibrosis) can indeed be severe, and it's frustrating to hear that the alternative advice you've received doesn't offer much hope either. It's understandable to feel let down by the healthcare system, especially when it seems like important information or treatments weren't communicated clearly over the years. The delays in physical therapy due to staffing issues are particularly disheartening, as timely intervention could make a big difference in managing symptoms and improving quality of life. Given the circumstances, it might be worth exploring palliative care options, which focus on improving quality of life and managing symptoms rather than trying to cure the disease. Palliative care teams can often offer support with breathing issues, pain management, and emotional support, both for your husband and for you as his caregiver. It’s also important to advocate for the best care possible, even if it means seeking second opinions or looking into specialized centers that might have more experience with complex cases like your husband's. I know it’s exhausting, but your persistence in seeking the best care is invaluable. Please don't hesitate to seek out support groups, both online and in your community, where others who are going through similar challenges can offer advice, comfort, and a listening ear. You don’t have to go through this alone, and sometimes, the shared experiences of others can provide new insights or just some much-needed comfort. You're doing everything you can, and that counts for so much. Take care of yourself as well during this tough time-your well-being matters too.
@@MedicalCentric Thanks for all that but it's too late. He passed in Sept. I wrote the whole saga on my website, look close at my avitar if you are really interested. I miss him. He was suppose to grow old WITH ME. Worked his ass off all his life and this happens. Not fair.
@negasonicteenagewarhead I'm really sorry to hear that your mother is going through such a difficult time, and I can only imagine how overwhelming it must feel for you. When someone relies on oxygen 24/7, it often indicates a serious respiratory condition, like COPD, pulmonary fibrosis, or another chronic lung disease, and it can be emotionally and physically exhausting for both the person and their caregivers. Here are a few steps you can take to support your mother and manage the situation: 1. **Ensure Consistent Care**: It’s crucial that she receives regular medical attention. If she hasn’t already, a pulmonologist (lung specialist) might be able to offer more specific treatments or management plans. Regular checkups are essential to adjust her oxygen needs and address any new symptoms. 2. **Monitor Oxygen Levels**: Keeping track of her oxygen saturation levels (with a pulse oximeter) is important, especially if she’s using supplemental oxygen at home. This can help you recognize if her oxygen levels drop too low, which may require immediate medical attention. 3. **Create a Comfortable Environment**: Ensure that she is comfortable and has easy access to her oxygen supply. Proper ventilation, a calm environment, and minimizing allergens or pollutants can also help reduce respiratory stress. 4. **Manage Mental Health**: Chronic illness can be emotionally draining, so it’s important to also focus on her mental well-being. Encourage open conversations, and consider talking to a counselor or therapist if she is struggling with feelings of isolation or depression. 5. **Seek Support for Yourself**: Caring for someone who is so dependent on oxygen can be overwhelming. Look into support groups or talk to a healthcare professional to help you manage your stress and ensure you're taking care of your own health, too. 6. **Emergency Preparedness**: Have a plan in case of an emergency-know when to seek urgent care, and make sure you always have backup oxygen cylinders and equipment in case something malfunctions. You’re doing your best by being there for her, and it’s understandable to feel unsure about what to do next. If you ever feel lost or unsure, don’t hesitate to reach out to her healthcare team-they can help guide you in managing her condition more effectively. I truly hope your mother finds some relief, and I’m sending you both strength during this tough time. ❤️
I could relate to you. My mom is just 64 and she has pulmonary fibrosis 24/7 oxygen dependent too. Her lung is scarred and on palliative care now. Being helpless sucks 😣
@MrGuitarman1945 Hi, ask our doctor about if you can take some suplements: please look for fasting and spermidine, how enlarge the telomeros and increase telomerase, centella siatica, also look and Im not sure if glutation could help or interfere with the autophagy. look how fasting could help, even look if castor oil could help. there are trials for new medicines as well, look in the lung fibrotisis fundation and you can apply to be in a medical trial. all I say do your research, also look for nebulations with manuka honey or gluatation I really dont know if that could help or do fibrosis worse, recearch, Im not saying some of this could help but research about it also look if dont interfere with medicines and other medical problems etc. important reduce inflamation, increase long of telomeros and telomerase, autophagy . an there are some tees they say could help, look for them I dont remember the name, and tiphala or something it is a india herb, look for amla also vitamin D, research about brocoli sprouts and NAC and frankisence. I dont relly know I just saying so you do your research. serraaptase and natokinase recearch about side efects and evrything about, papain. boswellia cerrata, moringa
IPF Warriors, DO NOT surrender to this disease. I am 4 yrs into my Pulmonary Fibrosis and I am exploring the Carnivore Diet and holistic treatments to get OFF pharmaceutical medications. I am discovering huge benefits. Follow me on my journey as I lead the way in pioneering better and alternative therapies to IPF. @carnivorelungjourney
@MrGuitarman1945 Hi, ask our doctor about if you can take some suplements: please look for fasting and spermidine, how enlarge the telomeros and increase telomerase, centella siatica, also look and Im not sure if glutation could help or interfere with the autophagy. look how fasting could help, even look if castor oil could help. there are trials for new medicines as well, look in the lung fibrotisis fundation and you can apply to be in a medical trial. all I say do your research, also look for nebulations with manuka honey or gluatation I really dont know if that could help or do fibrosis worse, recearch, Im not saying some of this could help but research about it also look if dont interfere with medicines and other medical problems etc. important reduce inflamation, increase long of telomeros and telomerase, autophagy . an there are some tees they say could help, look for them I dont remember the name, and tiphala or something it is a india herb, look for amla also vitamin D, research about brocoli sprouts and NAC and frankisence. I dont relly know I just saying so you do your research. serraaptase and natokinase recearch about side efects and evrything about, papain. boswellia cerrata, moringa
chronic infections, lead to chronic inflammation, leads to TGFbeta, leads to fibrosis and collagen. resolve the infection and inhibit / reverse the tgfbeta through SMAD3 inhibition: Dichroa febrifuga, cordyceps and zinc.
@MrGuitarman1945 Hi, ask our doctor about if you can take some suplements: please look for fasting and spermidine, how enlarge the telomeros and increase telomerase, centella siatica, also look and Im not sure if glutation could help or interfere with the autophagy. look how fasting could help, even look if castor oil could help. there are trials for new medicines as well, look in the lung fibrotisis fundation and you can apply to be in a medical trial. all I say do your research, also look for nebulations with manuka honey or gluatation I really dont know if that could help or do fibrosis worse, recearch, Im not saying some of this could help but research about it also look if dont interfere with medicines and other medical problems etc. important reduce inflamation, increase long of telomeros and telomerase, autophagy . an there are some tees they say could help, look for them I dont remember the name, and tiphala or something it is a india herb, look for amla also vitamin D, research about brocoli sprouts, castor oil and NAC and frankisence. I dont relly know I just saying so you do your research. serraaptase and natokinase recearch about side efects and evrything about, papain. boswellia cerrata, moringa. cordiceps
I just did an umbilical cord stem cell transplant in Bangkok. It completely reversed the condition.
Congratulations on your successful umbilical cord stem cell transplant , reversing your condition completely! ❤️
@@MedicalCentric And do they offer this in the states???? If not, WHY the hell not?
Where are you from and how much did the treatment cost ?
Oh wow, need more info please - how to set up, restrictions, of course time to reverse (do .i have enough), any insurance coverage (gotta ask)
Healthcare in the US is terrible. Doctor said I have COPD, didn't put it in my records and never mentioned it again. Done with American pill pusher$.
Excellent video. Very interesting, informative and worthwhile video.
Glad it was helpful
I was diagnosed 5 years ago and until recently they called it IPF. New pulmonologist took 16 viles of blood on one stick and out of that thinks grain dust caused it. Im on oxygen 24/7 and the last year have gotten considerably worse. I refused the 2 medications that may or may not slow the progression. The side effects wasn't worth it to me. I will let God handle it.
I healed mine with Darko Velcek’s Self-Healers Protocol
@@Jayyy967 No there is no cure for pulmonary fibrosis.
@@Jayyy967 go away you 'PERVERT' there is no cure!!!
@@jimwilson9371 Exactly, God how it bothers me when people say, I hope you feel better. There is no feeling better because there is no cure. I am right there with you, I left it in God's hands. I have had it for two years and I feel so much worse.
@@ellebleumartins1792 I do wish you well. Looking back I probably spent the 1st couple years going through every emotion known. Serious soul searching and digging into the Bible for myself has been quite the journey. God bless
On 2010 i diagnosed with pulmonary fibrosis but still working now doesn't affect my job. I still can play basketball 😊
@ollopaotcerazodnemaxiegame8783 It's great to hear that you're managing pulmonary fibrosis and are still able to work and enjoy activities like basketball! Staying active and maintaining a positive mindset can make a big difference. Just be mindful of your symptoms and consult with your doctor regularly to ensure you're keeping your condition well-managed. Keep up the great work! 😊
Bro after found that what treatment uhh take plss reply
are there different cases? how to slow it down?
@@pranabdas6881search for CMR316
@@chicomalo3654search about CMR316
What is Fibrotic Patches in Upper Lung Lobe with Bronchiectasis??
Very nice information 👍👍... Thanks
Glad it was helpful.
I battled pneumonia twice and in both case were severe but now my lungs are scarred
@darylfields I'm really sorry you went through that. Battling severe pneumonia twice is incredibly tough, and dealing with lung scarring can be challenging. It's important to work closely with your healthcare team to manage your lung health and get the right treatments to support your recovery. With the right care, many people can lead fulfilling lives even with scarring. Stay strong, and remember that you're resilient - you've already overcome so much! 💪🌟
I am going too pray for you and sub too your YT and you should make a video abt it and bro how long yu been battling ds 🤦🏾♂️🤦🏾♂️
I had pulmonary tuberculosis and after 6 months I'm fine and finished my medical.
It leaves a permanent scar to my lung. It was way back 2017.
Now I got xrayed this 2024 because it is needed from my Job and detected that I have Pulmonary Fibrosis at my left lung.
Could it be mistakenly classified as Fibrosis since I already got scars from tuberculosis in the first place?
I never had a hard time of breathing. I always love walking. I always got 10k footsteps a day. And I also gained weight like from 56kg last year to ,58kg this year.
@yosomitsu It’s possible that the pulmonary fibrosis detected in your recent X-ray might be scarring from your previous tuberculosis, as old TB scars can sometimes resemble fibrosis on imaging. Your healthy lifestyle, lack of breathing issues, and weight gain are positive indicators, but only a healthcare professional can confirm if it’s a misclassification or new development through further tests like a CT scan or pulmonary function tests. It’s best to discuss these findings with your doctor for clarity.
@MedicalCentric thank you very much. Don't worry I will. Right now it gives me relief because of this new information.
Sal.sant from Romania, I had TB in 2018 without knowing it, then 6 months of inpatient treatment, but the scars are all around the lungs, now I can barely breathe in the concentrator, regardless of the fibrosis@@yosomitsu
This is what I experienced too, but the problem is, my cough is still here a year after my treatment. I don't know if this is because of the scarring, but that is what my healthcare provider told me. @@MedicalCentric , is there a chance that my cough will go away? This is the only ailment I have, perfectly healthy in any way.
@@MedicalCentric update.
My status on the paper is fit to work. According to a pulmonologist, it is a pulmonary fibrosis left secondary to treated PTB. No active sign of infection at present. 😄
"Fibrotic both upper zones"
What does it mean please can you explain
Or i have to worry about that, is it serious, is there any treatment for this..
Please please reply
Thanks
Welcome
What is the lifetime of Patients with ILD-PPFE , TBB ?? , my wife diagnosed with this and any chance of recovery?
@amitrathod1232 I'm really sorry to hear about your wife's diagnosis. Idiopathic Pulmonary Fibrosis (IPF), Pleuroparenchymal Fibroelastosis (PPFE), and Tuberculous Bronchitis (TBB) are serious lung conditions, and the prognosis can vary depending on the severity, progression, and response to treatment. Generally, these conditions are chronic and can be challenging to manage, with IPF and PPFE often leading to progressive lung function decline. However, treatment options such as medications, pulmonary rehabilitation, and in some cases, lung transplantation, may help manage symptoms and improve quality of life. It's essential to work closely with a pulmonologist to explore all available treatment options and to get a clearer understanding of her specific prognosis. Every case is unique, and ongoing medical care can make a difference.
@@MedicalCentric
Thanks for the reply.
It was diagnosed in Nov 2023 from then she is on medication. Her brother was also diagnosed the same and lost him at the age 19.
So I am very much concerned about her. And her parents took her ayurvedic hospital and ayurvedic medicine also she is taking. Not sure where it will go...
My xray result says "density on the right lung" .......is it dangerous? What causes it? Thanks
@margiepamintuan613 A "density on the right lung" in an X-ray could indicate a range of things, from something as simple as an infection (like pneumonia) to more serious conditions such as a tumor or scarring. It’s important to follow up with your doctor for further tests or scans to determine the cause. Don't panic, but do seek more information from a healthcare professional.
@@MedicalCentric I really appreciate your reply 😘
I pray to God it's not serious 🙏🙏🙏
Thanks 🙏
You’re welcome 😊
@MrGuitarman1945 Hi, ask our doctor about if you can take some suplements: please look for fasting and spermidine, how enlarge the telomeros and increase telomerase, centella siatica, also look and Im not sure if glutation could help or interfere with the autophagy. look how fasting could help, even look if castor oil could help. there are trials for new medicines as well, look in the lung fibrotisis fundation and you can apply to be in a medical trial. all I say do your research, also look for nebulations with manuka honey or gluatation I really dont know if that could help or do fibrosis worse, recearch, Im not saying some of this could help but research about it also look if dont interfere with medicines and other medical problems etc. important reduce inflamation, increase long of telomeros and telomerase, autophagy . an there are some tees they say could help, look for them I dont remember the name, and tiphala or something it is a india herb, look for amla also vitamin D, research about brocoli sprouts and NAC and frankisence. I dont relly know I just saying so you do your research. serraaptase and natokinase recearch about side efects and evrything about, papain. boswellia cerrata, moringa
My dad developed it from amidrone heart medication.
Amiodarone, a medication used to treat irregular heart rhythms, can indeed have side effects, including pulmonary fibrosis. This condition involves scarring of the lung tissue, which can lead to breathing difficulties. If your dad developed pulmonary fibrosis from amiodarone, it’s crucial to work closely with his healthcare team to manage the condition and explore alternative treatments or interventions to address both the fibrosis and the underlying heart issue. Regular monitoring and supportive care are essential in such cases.
Hi! Can you tell me if " linear lesions of bilateral pulmonary apical fibrosis " is serious?
Same as my xray result 😟
@@reynaldobohol1238 I ask 3 pneumologist if is serious.They say is nothing to worry. I make this xray for chest pain. After a few month and a lot of research I found that I have costochondritis:)
Yep. Take care of your lungs. Don't go near anywhere people smoke. Second hand smoke is deadly. Stay out of casino/hotels that allow any smoking!
A few fibrotic and centribular nudules?? Is fibrosis
No
well great. I HOPED this video, based on some of the comments, offered hopeful treatments. But I don't see any. Husband, (a lifetime smoker who only just quit last Sept, and a trucker so many nights spent breathing in truck stop fumes, lung damage is not a surprise really.) got sick in Nov. Puked up brown stuff.... made it home to see the doctor, the put him right in the hospital. Low red count AND further tests showed cancer of the esophagus. (He's also had heartburn forever, I met him in the 80s. he's lived on tums, rollaids, later prescription stuff. I only just learned in the past year or so this is the polar opposite of what SHOULD be done for heartburn. Namely take MORE acid not reduce it. AND that having chronic heartburn also damages the lungs. Ya think just ONE of our doctors over decades would know this? I have to learn it on youtube??? Well his cancer treatment was successful, no more cancer. BUT his chronic cough got markedly worse after treatments. Emphysema AND lung scaring now. One doctor actually did mention that the radiation may have triggered the worsening of this. (Gees he's coughed forever but only now actually can't catch his breath.) They wanted to put him on ofev, but wow, side effects include liver AND kidney damage. He actually took a trip to the mayo clinic to get another opinion and that doctor said don't bother with it. It won't help much and the damage it causes won't help matters at all. He was suppose to start physical therapy but.... on a waiting list for two months and counting. "Not enough staff." (Yea thank you OBAMA for your shitty health care crap, and for covid vaccine mandates, many health care people just up and quit!) His difficulty breathing has gotten worse in just weeks. To the point he can barely walk around the house let alone do anything. On oxygen now too.
@artmakersworlds I'm really sorry to hear about what you and your husband are going through-it sounds like an incredibly difficult situation, especially after all the challenges with his health and the lack of clear guidance from the healthcare system. Pulmonary fibrosis, especially when coupled with a history of smoking, cancer treatment, and other lung conditions, can be a tough battle. The side effects of medications like OFEV (which is prescribed for pulmonary fibrosis) can indeed be severe, and it's frustrating to hear that the alternative advice you've received doesn't offer much hope either.
It's understandable to feel let down by the healthcare system, especially when it seems like important information or treatments weren't communicated clearly over the years. The delays in physical therapy due to staffing issues are particularly disheartening, as timely intervention could make a big difference in managing symptoms and improving quality of life.
Given the circumstances, it might be worth exploring palliative care options, which focus on improving quality of life and managing symptoms rather than trying to cure the disease. Palliative care teams can often offer support with breathing issues, pain management, and emotional support, both for your husband and for you as his caregiver.
It’s also important to advocate for the best care possible, even if it means seeking second opinions or looking into specialized centers that might have more experience with complex cases like your husband's. I know it’s exhausting, but your persistence in seeking the best care is invaluable.
Please don't hesitate to seek out support groups, both online and in your community, where others who are going through similar challenges can offer advice, comfort, and a listening ear. You don’t have to go through this alone, and sometimes, the shared experiences of others can provide new insights or just some much-needed comfort.
You're doing everything you can, and that counts for so much. Take care of yourself as well during this tough time-your well-being matters too.
@@MedicalCentric Thanks for all that but it's too late. He passed in Sept. I wrote the whole saga on my website, look close at my avitar if you are really interested. I miss him. He was suppose to grow old WITH ME. Worked his ass off all his life and this happens. Not fair.
My mother is having this and she's 24/7 on oxygen. I don't know what to do.
@negasonicteenagewarhead I'm really sorry to hear that your mother is going through such a difficult time, and I can only imagine how overwhelming it must feel for you. When someone relies on oxygen 24/7, it often indicates a serious respiratory condition, like COPD, pulmonary fibrosis, or another chronic lung disease, and it can be emotionally and physically exhausting for both the person and their caregivers.
Here are a few steps you can take to support your mother and manage the situation:
1. **Ensure Consistent Care**: It’s crucial that she receives regular medical attention. If she hasn’t already, a pulmonologist (lung specialist) might be able to offer more specific treatments or management plans. Regular checkups are essential to adjust her oxygen needs and address any new symptoms.
2. **Monitor Oxygen Levels**: Keeping track of her oxygen saturation levels (with a pulse oximeter) is important, especially if she’s using supplemental oxygen at home. This can help you recognize if her oxygen levels drop too low, which may require immediate medical attention.
3. **Create a Comfortable Environment**: Ensure that she is comfortable and has easy access to her oxygen supply. Proper ventilation, a calm environment, and minimizing allergens or pollutants can also help reduce respiratory stress.
4. **Manage Mental Health**: Chronic illness can be emotionally draining, so it’s important to also focus on her mental well-being. Encourage open conversations, and consider talking to a counselor or therapist if she is struggling with feelings of isolation or depression.
5. **Seek Support for Yourself**: Caring for someone who is so dependent on oxygen can be overwhelming. Look into support groups or talk to a healthcare professional to help you manage your stress and ensure you're taking care of your own health, too.
6. **Emergency Preparedness**: Have a plan in case of an emergency-know when to seek urgent care, and make sure you always have backup oxygen cylinders and equipment in case something malfunctions.
You’re doing your best by being there for her, and it’s understandable to feel unsure about what to do next. If you ever feel lost or unsure, don’t hesitate to reach out to her healthcare team-they can help guide you in managing her condition more effectively.
I truly hope your mother finds some relief, and I’m sending you both strength during this tough time. ❤️
@@MedicalCentric Thankyou for your kind words. Recently her condition got worse because of chikungunya and after some treatment she's in recovery.
I could relate to you. My mom is just 64 and she has pulmonary fibrosis 24/7 oxygen dependent too. Her lung is scarred and on palliative care now. Being helpless sucks 😣
👍💡
Can it be reversed
no it cant, there is no curse for it
Only slowed down
No, there is no reverse.
@MrGuitarman1945 Hi, ask our doctor about if you can take some suplements: please look for fasting and spermidine, how enlarge the telomeros and increase telomerase, centella siatica, also look and Im not sure if glutation could help or interfere with the autophagy. look how fasting could help, even look if castor oil could help. there are trials for new medicines as well, look in the lung fibrotisis fundation and you can apply to be in a medical trial. all I say do your research, also look for nebulations with manuka honey or gluatation I really dont know if that could help or do fibrosis worse, recearch, Im not saying some of this could help but research about it also look if dont interfere with medicines and other medical problems etc. important reduce inflamation, increase long of telomeros and telomerase, autophagy . an there are some tees they say could help, look for them I dont remember the name, and tiphala or something it is a india herb, look for amla also vitamin D, research about brocoli sprouts and NAC and frankisence. I dont relly know I just saying so you do your research. serraaptase and natokinase recearch about side efects and evrything about, papain. boswellia cerrata, moringa
IPF Warriors, DO NOT surrender to this disease. I am 4 yrs into my Pulmonary Fibrosis and I am exploring the Carnivore Diet and holistic treatments to get OFF pharmaceutical medications. I am discovering huge benefits. Follow me on my journey as I lead the way in pioneering better and alternative therapies to IPF. @carnivorelungjourney
Can long term Drug users cause this disease ??
No
No.
@MrGuitarman1945 Hi, ask our doctor about if you can take some suplements: please look for fasting and spermidine, how enlarge the telomeros and increase telomerase, centella siatica, also look and Im not sure if glutation could help or interfere with the autophagy. look how fasting could help, even look if castor oil could help. there are trials for new medicines as well, look in the lung fibrotisis fundation and you can apply to be in a medical trial. all I say do your research, also look for nebulations with manuka honey or gluatation I really dont know if that could help or do fibrosis worse, recearch, Im not saying some of this could help but research about it also look if dont interfere with medicines and other medical problems etc. important reduce inflamation, increase long of telomeros and telomerase, autophagy . an there are some tees they say could help, look for them I dont remember the name, and tiphala or something it is a india herb, look for amla also vitamin D, research about brocoli sprouts and NAC and frankisence. I dont relly know I just saying so you do your research. serraaptase and natokinase recearch about side efects and evrything about, papain. boswellia cerrata, moringa
Arm a jta ya ni is diease ma
Viruses
chronic infections, lead to chronic inflammation, leads to TGFbeta, leads to fibrosis and collagen. resolve the infection and inhibit / reverse the tgfbeta through SMAD3 inhibition: Dichroa febrifuga, cordyceps and zinc.
Thanks 🙏
You’re welcome 😊
@MrGuitarman1945 Hi, ask our doctor about if you can take some suplements: please look for fasting and spermidine, how enlarge the telomeros and increase telomerase, centella siatica, also look and Im not sure if glutation could help or interfere with the autophagy. look how fasting could help, even look if castor oil could help. there are trials for new medicines as well, look in the lung fibrotisis fundation and you can apply to be in a medical trial. all I say do your research, also look for nebulations with manuka honey or gluatation I really dont know if that could help or do fibrosis worse, recearch, Im not saying some of this could help but research about it also look if dont interfere with medicines and other medical problems etc. important reduce inflamation, increase long of telomeros and telomerase, autophagy . an there are some tees they say could help, look for them I dont remember the name, and tiphala or something it is a india herb, look for amla also vitamin D, research about brocoli sprouts, castor oil and NAC and frankisence. I dont relly know I just saying so you do your research. serraaptase and natokinase recearch about side efects and evrything about, papain. boswellia cerrata, moringa. cordiceps