Do you already use some of these strategies to handle brain fatigue? What are some other things that you may do to keep neuro fatigue at bay (aside from being a "master napper" like Kim)? Let us know!
Mish And Kim I use pretty much all of the strategies. The one thing I don’t have is a good support system. I find that healthy eating helps tremendously. when I eat a variety of fruits and dry roasted nuts, I feel more energetic and feel better all around.
Thanks for watching! I'm happy to hear that you've been using many of the same strategies to manage fatigue - it's definitely not an easy task! It's undoubtedly a constant daily challenge. I've been experimenting with gluten free and incorporating more whole foods/less process foods, myself. Fruits and nuts are a great suggestion. Also, if there aren't any local groups in your area, there are a few 'closed' support groups on FB (such as Amy Zellmer's TBI Tribe) that might provide a helpful place for encouragement. ~Kim
Thanks for this video, you have no idea the time I've had explaining neuro fatigue to doctors even, I'm increasingly shocked at how uninformed people are with this.
3 months out from injury, this was very helpful. When Kim said that he had trouble regulating his temperature... I literally heard the hallelujah chorus. My thermometer is broken for sure. Thank you for sharing. I shared your video with family and friends... to hopefully be a tool to open that dialogue with them.
I'm three almost four years out of my mTBI! I still have issues getting out words sometimes, dizziness, and stuttering (especially when nervous). I also get overwhelmed in situations I never would have before. You're not alone!!
Brilliant video , i too am a brain injury surviver , one bit of advice ... please don’t add background music as it causes me to feel nauseated , as a result of my brain injury , thank you
You 2 are so sweet and very funny I have a TBI too, and I experience all symptoms you talk about. So glad you use humor to deal with the seriousness of the New normal. My injury happened in 2007. I'm just now getting treatments, but refuse meds because my brain is foggy enough . Just trying to cope has been a daily on going. Especially without the support system. You have been very refreshing. TY
Thanks for taking the time to go through this. I know I feel guilty about these symptoms that I’m being lazy or weak and should push through. Helps to see others with same issues so I have more justification to take it easy on myself and take care of myself. Thanks again guys!
I beat myself up because I feel like I’m lazy, but I get a lot of physical exercise, so I remind myself of that. I just have trouble doing things that involve executive functions.
I like it! I'm 4 years along from my tbi and use similar strategies, had vision issues also. Mindfulness and meditation have been highly effective for me.
Awesome video guys; I had a TBI 2007, which led to multiple surgeries; I've had headache flair-ups ever since, and at 42 it's taking its toll. Keep up the good work!
I’ve loved watching this & can definitely relate! I’m sure I will come back to this video again, when I’m fatigued and struggling to express myself!… In fact, I might just pass this on when needed as an easy reference! Anyway, thank you very much for being brave enough to speak for us with TBI.
Amazing video guys. I love the husband wife approach to TBI symptoms. My wife is struggling to understand what the symptoms and triggers are after 1.5 years after the TBI. You got a new subscriber here. Look forward to watching the rest of the videos on your channel.
I'm totally forwarding this to my family! My injury was in August 2015, and I know that they're sick of hearing about it from me, but my life truly does suck now. I'm totally looking into moving into a facility or establishment that will accept my inactive lifestyle without making me feel bad. It's all self inflicted guilt or dissatisfaction; they don't show anger towards me. I've got to get out of here for my own sanity!
I just feel the need to clarify/verify... My family loves me a ton, because I was a handful early on in recovery. They could've sent me to a facility, but they CHOSE to put up with me. My empathetic sensors have become extra sensitive since that day, because I swear that they all want to give me away. 🤦🏽♀️
Thank you so much for this information… I just subscribed today. My bf of 18 months had 2 strokes 6 years ago after a traumatic blow to the back of his head. He was in the hospital and rehab for months.. I noticed when we started dating was when he got tired he got clumsy ( his leg on his affected side would give out), his pupils would be unequal, he was very irritable and struggle w outbursts… he’s not pleasant! He always has those loud yawns…he would sleep the entire weekend. I also noticed he had a difficult time w remembering details. I honestly thought it was ADHD in the beginning but after he confided to me about his history I knew right away he was suffering from a TBI.. he was horrible w doctors and taking care of himself. I’m now getting him back to a neurologist… and I’ve encouraged him to minimize his hours at work ( he works a very physically demanding job which kills him) and just educating him on what a TBI is ( he gets very frustrated and angry w himself not understanding what was wrong)… so grateful for these videos; I have him watch them and he’s like “wow it’s not just me”…. Thank you! 🙏🏻
Your content is spot on ... just one thing... the background music is really invasive (to me anyway!!) which makes it harder to concentrate on what you’re saying!! Hope things are going as well as they can be for you both... n
Thank you so much for this video, I literally cried with it. I had a TBI 8 months ago, it was very frustratiing to realaize, after the cognitive and motory recovery, that I had fatigue, the way you describe it is almost the same I feel, I also start to not be able to focus when I have fatigue ( I don´t know if its the same thing) but i also have a fourth nerve palsy on my left eye. You brang me hope when you said that you can work and handdle it.
Just subbed. Mine is caused by damage from a prescribed biological drug. I'm left with paralysis on and off, seizures ( few different types), fatigue and all over pain. I sleep all day most days when I'm bad. Good to find you guys xx
Guys, you spoke my language today. I had a staph infection in my right hemisphere, specifically parietal and temporal lobes. Had to under go several surgeries to remove the abscesses. As you can imagine,this upended my life. And now I'm living in the brain up Nathan 2.0 Fatigue, memory, and Attention are top3 cognitive things I steuggle with daily. I also lost some of my left visual field called Hynonomos Hemianopia. Ive made a ton of progress to the point where I live independently , have a job I can walk too and great bosses who are very accomedating. I only work 3 hours at a time. 12 hrs a week, but even that is proving too much. The days I work, the rest of the day is off the table. I gotta get better at saying NO! Keep making these videos please 🙏
I can relate. I had a tooth extracted and air from the instruments got stuck in my head for four months. Closed head injury. My life has been turned upside down literally.
I'm dealing with a 3rd brain injury...tired all the time..major constipation..weight loss..mood changes...muscle loss...major depression...loud noise ..people shopping mall no way...from 130lbs to 122lbs...now I have spleen problem..unemplyable right now
Yes I feel like that...what's taking so long why am I not better yet...sucks to deal with life..relation...stress with life...and this problem people can be ignorant and not understand
just started up year 3 after my sTBI sustained from a mugging in june of 2018. I still to this day have incredible fatigue...I "burn out" so quickly. Even things that I use for relaxation have a tendency to exhaust me far faster than they did prior to my injury. I'm also literally "afraid" of the dark...I can't sleep for longer than 2 hours before I'm WIDE awake and frozen. Not sure what this is, but I took damage to the frontal, occipital, and brainstem functions. I'm "as independent" as I'll ever be, but I have to live with friends now, at minimum. My cognition is quick, my ability to speak and discuss are fluid, but my maximum output is like...30% at best
I am going on 2 weeks after. Major migraine/ blood clot in the brain..I feel horrible..I’m needed at work..tomrw is the day I go back..everything I do is exhausting..I pray I feel like my energetic self again soon..btw sound goes right threw me like a knife..
My husband has TBI from war. PTSD makes things stressful which adds to it. Very few people understand and a lot of people are not in our life because they don't understand. Can you give some tips for time management
It's been 9 months for me. My TBI was caused by Dr malpractice.i made so much progress the first 6 months,and then I hit a wall with depression and anxiety. Is this commen?
How are you doing these days? I’m about at the 9 month mark now and have had a similar progression. Lots of progress the first 6 months but recently it feels like I’ve hit a wall. Have you found anything that has helped you?
i'm onto year 3 after my mugging-induced sTBI, and I have to say, extreme depression and seemingly randomized sadness are a massive daily dilemma. One minute, things are great and I'm confident as can be. within seconds, i'm bordering on suicidal. My sTBI was incredibly brutal, scaling damage to my frontal, occipital, and brainstem functions. Because of this, I suffer intense PTSD and acute physical malady almost hourly. It won't go away, but it can 500% be managed, I promise this!
I'm sure this could have been a helpful video if you had just left out the VERY distracting background noise! Why add something totally unnecessary that only adds to the brain fatigue of your target viewers? Bad idea, thumbs down.
Why would you have such irritating and distracting music on a video for peopke with brain injuries. Also, some people don't have anyone to support them.
Do you already use some of these strategies to handle brain fatigue? What are some other things that you may do to keep neuro fatigue at bay (aside from being a "master napper" like Kim)? Let us know!
Mish And Kim I use pretty much all of the strategies. The one thing I don’t have is a good support system. I find that healthy eating helps tremendously. when I eat a variety of fruits and dry roasted nuts, I feel more energetic and feel better all around.
Thanks for watching! I'm happy to hear that you've been using many of the same strategies to manage fatigue - it's definitely not an easy task! It's undoubtedly a constant daily challenge. I've been experimenting with gluten free and incorporating more whole foods/less process foods, myself. Fruits and nuts are a great suggestion. Also, if there aren't any local groups in your area, there are a few 'closed' support groups on FB (such as Amy Zellmer's TBI Tribe) that might provide a helpful place for encouragement. ~Kim
I put myself in time out for no more than an hour.
Have you tried using CBD for the pressure?
Yes I almost do the same, but my way of resting is to switch off the brain, is like meditating.
3 years in and this video describes the challenges of PCS to a T!
I had a small stroke 4 years ago. I still sleep in total 16 to 20 hours every day. Your video helps me feel less alone. Thank you and God Bless.
Thanks for this video, you have no idea the time I've had explaining neuro fatigue to doctors even, I'm increasingly shocked at how uninformed people are with this.
Thanks so much! I'm 14 years out from my accident and still learning, sharing this with friends and fam. Big help!
3 months out from injury, this was very helpful.
When Kim said that he had trouble regulating his temperature... I literally heard the hallelujah chorus. My thermometer is broken for sure.
Thank you for sharing. I shared your video with family and friends... to hopefully be a tool to open that dialogue with them.
I am only a year and a half out from my "Mild" TBI (There's nothing mild about it!), and I have these symptoms, too. So, thank you for posting this.
I'm three almost four years out of my mTBI! I still have issues getting out words sometimes, dizziness, and stuttering (especially when nervous). I also get overwhelmed in situations I never would have before. You're not alone!!
Omg BRAIN FOG is what I have too every day! I forgot the word for it...exhibit a
Brilliant video , i too am a brain injury surviver , one bit of advice ... please don’t add background music as it causes me to feel nauseated , as a result of my brain injury , thank you
You 2 are so sweet and very funny
I have a TBI too, and I experience all symptoms you talk about. So glad you use humor to deal with the seriousness of the New normal. My injury happened in 2007. I'm just now getting treatments, but refuse meds because my brain is foggy enough . Just trying to cope has been a daily on going. Especially without the support system. You have been very refreshing. TY
Thanks for taking the time to go through this. I know I feel guilty about these symptoms that I’m being lazy or weak and should push through. Helps to see others with same issues so I have more justification to take it easy on myself and take care of myself. Thanks again guys!
I beat myself up because I feel like I’m lazy, but I get a lot of physical exercise, so I remind myself of that. I just have trouble doing things that involve executive functions.
I like it! I'm 4 years along from my tbi and use similar strategies, had vision issues also. Mindfulness and meditation have been highly effective for me.
Awesome video guys; I had a TBI 2007, which led to multiple surgeries; I've had headache flair-ups ever since, and at 42 it's taking its toll. Keep up the good work!
Thank you for this. I feel like you describing me.
I used to be so organized, now I feel just drained all the time.
I’ve loved watching this & can definitely relate!
I’m sure I will come back to this video again, when I’m fatigued and struggling to express myself!… In fact, I might just pass this on when needed as an easy reference!
Anyway, thank you very much for being brave enough to speak for us with TBI.
Amazing video guys. I love the husband wife approach to TBI symptoms. My wife is struggling to understand what the symptoms and triggers are after 1.5 years after the TBI. You got a new subscriber here. Look forward to watching the rest of the videos on your channel.
My wife simply quit me after tbi ,she could’nt understand it
Thanks for sharing your story and symptoms etc, I found it very helpful. Hope you are doing well.
I'm totally forwarding this to my family!
My injury was in August 2015, and I know that they're sick of hearing about it from me, but my life truly does suck now.
I'm totally looking into moving into a facility or establishment that will accept my inactive lifestyle without making me feel bad.
It's all self inflicted guilt or dissatisfaction; they don't show anger towards me.
I've got to get out of here for my own sanity!
I just feel the need to clarify/verify...
My family loves me a ton, because I was a handful early on in recovery. They could've sent me to a facility, but they CHOSE to put up with me.
My empathetic sensors have become extra sensitive since that day, because I swear that they all want to give me away. 🤦🏽♀️
Thank you so much for this information… I just subscribed today. My bf of 18 months had 2 strokes 6 years ago after a traumatic blow to the back of his head. He was in the hospital and rehab for months.. I noticed when we started dating was when he got tired he got clumsy ( his leg on his affected side would give out), his pupils would be unequal, he was very irritable and struggle w outbursts… he’s not pleasant! He always has those loud yawns…he would sleep the entire weekend. I also noticed he had a difficult time w remembering details. I honestly thought it was ADHD in the beginning but after he confided to me about his history I knew right away he was suffering from a TBI.. he was horrible w doctors and taking care of himself. I’m now getting him back to a neurologist… and I’ve encouraged him to minimize his hours at work ( he works a very physically demanding job which kills him) and just educating him on what a TBI is ( he gets very frustrated and angry w himself not understanding what was wrong)… so grateful for these videos; I have him watch them and he’s like “wow it’s not just me”…. Thank you! 🙏🏻
Your content is spot on ... just one thing... the background music is really invasive (to me anyway!!) which makes it harder to concentrate on what you’re saying!! Hope things are going as well as they can be for you both... n
Thank you so much for this video, I literally cried with it. I had a TBI 8 months ago, it was very frustratiing to realaize, after the cognitive and motory recovery, that I had fatigue, the way you describe it is almost the same I feel, I also start to not be able to focus when I have fatigue ( I don´t know if its the same thing) but i also have a fourth nerve palsy on my left eye. You brang me hope when you said that you can work and handdle it.
So helpful! Thank you!
Love this video. This is so similar to my journey! Thank you for sharing.
I have over ten concussions thank u guys sharing this
Just subbed. Mine is caused by damage from a prescribed biological drug. I'm left with paralysis on and off, seizures ( few different types), fatigue and all over pain. I sleep all day most days when I'm bad. Good to find you guys xx
Thank you You made me feel normal. It has allowed my spouse to see what my day is like. Thankyou.
Guys, you spoke my language today. I had a staph infection in my right hemisphere, specifically parietal and temporal lobes.
Had to under go several surgeries to remove the abscesses. As you can imagine,this upended my life. And now I'm living in the brain up Nathan 2.0 Fatigue, memory, and Attention are top3 cognitive things I steuggle with daily. I also lost some of my left visual field called Hynonomos Hemianopia. Ive made a ton of progress to the point where I live independently , have a job I can walk too and great bosses who are very accomedating. I only work 3 hours at a time. 12 hrs a week, but even that is proving too much. The days I work, the rest of the day is off the table. I gotta get better at saying NO! Keep making these videos please 🙏
How long have you had brain injury? Did it effect your digestive? And how long did it last?
I can relate.
I had a tooth extracted and air from the instruments got stuck in my head for four months. Closed head injury. My life has been turned upside down literally.
I'm dealing with a 3rd brain injury...tired all the time..major constipation..weight loss..mood changes...muscle loss...major depression...loud noise ..people shopping mall no way...from 130lbs to 122lbs...now I have spleen problem..unemplyable right now
Yes I feel like that...what's taking so long why am I not better yet...sucks to deal with life..relation...stress with life...and this problem people can be ignorant and not understand
funny editing. thanks for sharing your story!
Guys, great content. However, it would be so much better if the background music was not there. Had to turn you off; over stimulation!,
Yes thank you for telling us that it is also the spouses or the parent of partying or whoever helping the person with tvi so hard on us
just started up year 3 after my sTBI sustained from a mugging in june of 2018. I still to this day have incredible fatigue...I "burn out" so quickly. Even things that I use for relaxation have a tendency to exhaust me far faster than they did prior to my injury.
I'm also literally "afraid" of the dark...I can't sleep for longer than 2 hours before I'm WIDE awake and frozen. Not sure what this is, but I took damage to the frontal, occipital, and brainstem functions. I'm "as independent" as I'll ever be, but I have to live with friends now, at minimum. My cognition is quick, my ability to speak and discuss are fluid, but my maximum output is like...30% at best
I am going on 2 weeks after. Major migraine/ blood clot in the brain..I feel horrible..I’m needed at work..tomrw is the day I go back..everything I do is exhausting..I pray I feel like my energetic self again soon..btw sound goes right threw me like a knife..
My husband has TBI from war. PTSD makes things stressful which adds to it. Very few people understand and a lot of people are not in our life because they don't understand. Can you give some tips for time management
Great video! Thank you!
The VA should hire you guys
It's been 9 months for me. My TBI was caused by Dr malpractice.i made so much progress the first 6 months,and then I hit a wall with depression and anxiety. Is this commen?
How are you doing these days? I’m about at the 9 month mark now and have had a similar progression. Lots of progress the first 6 months but recently it feels like I’ve hit a wall. Have you found anything that has helped you?
i'm onto year 3 after my mugging-induced sTBI, and I have to say, extreme depression and seemingly randomized sadness are a massive daily dilemma. One minute, things are great and I'm confident as can be. within seconds, i'm bordering on suicidal. My sTBI was incredibly brutal, scaling damage to my frontal, occipital, and brainstem functions. Because of this, I suffer intense PTSD and acute physical malady almost hourly.
It won't go away, but it can 500% be managed, I promise this!
Hmmm.. any new videos?
I'm sure this could have been a helpful video if you had just left out the VERY distracting background noise! Why add something totally unnecessary that only adds to the brain fatigue of your target viewers? Bad idea, thumbs down.
Why would you have such irritating and distracting music on a video for peopke with brain injuries.
Also, some people don't have anyone to support them.