Fabulous communication for the rare disease communities and patients. Please take the time to share for the world to see. Thank you Nord and Eurordis for creating this message.
i'm on the list #MOYAMOYAdisease THANK YOU for such a beautiful message of #hope #health #happiness #qualityoflife #dignity #equality #acceptance and so much more !!!!
This is awesome love to see all our friends watching and paying attention to these things as we never know who will be affected. Even in our own family it is not all that rare to have one of these rare diseases.
There's a million mouths to feed I got everything I need, I'm breezing. There's a hurting thing inside And I've got everything to hide. You're breathing. Hey, Hey, I saved the world today... And everybody's happy now, The bad thing's gone away. And everybody's happy now The good thing's here to stay Please let it stay. Songwriters: LENNOX, ANNIE / STEWART, DAVID ALLAN Eurythmics: I Saved The World Today
Hola Victor - Si esta en Espanol. Hay dos versiones, una de 3 minutos y otra de 30 secundos - disponible desde el sito web Rare Disease Day Gracias para compartir el video con su communidad en Chile.
Es lamentable que no se publique tambien en Español...// It is unfortunate that there is also published in Spanish ... En Chile falta mucha conciencia, en especial de las Autoridades de Gobierno // In Chile a lack of understanding, especially of government authorities.
Lindo, vou divulgar todos devemos perceber a diferença com o coração cheio de compreensão e solidariadade.... Todos temos coração, portanto.... Rosália
I wish for all those out there with rare diseases that a cure may be found so that they may be liberated and so all diseases will fly away in a hot air ballon! God Bless You All.
Fabulous communication for the rare disease communities and patients. Please take the time to share for the world to see. Thank you Nord and Eurordis for creating this message.
Thank you for all your work on this film. I will be sure to share it.
I'm on board. Thank you for the awareness video.
i'm on the list #MOYAMOYAdisease THANK YOU for such a beautiful message of #hope #health #happiness #qualityoflife #dignity #equality #acceptance and so much more !!!!
This is awesome love to see all our friends watching and paying attention to these things as we never know who will be affected. Even in our own family it is not all that rare to have one of these rare diseases.
Please Spread the word, so many are affected!
There's a million mouths to feed
I got everything I need,
I'm breezing.
There's a hurting thing inside
And I've got everything to hide.
You're breathing.
Hey, Hey, I saved the world today...
And everybody's happy now,
The bad thing's gone away.
And everybody's happy now
The good thing's here to stay
Please let it stay.
Songwriters: LENNOX, ANNIE / STEWART, DAVID ALLAN
Eurythmics: I Saved The World Today
This is the link for support for Rare Diseases, Please take the time to listen and share!
Everyone deserves a voice after all, all of life is a memory and rare diseases will never take away our memories
Hola Victor - Si esta en Espanol. Hay dos versiones, una de 3 minutos y otra de 30 secundos - disponible desde el sito web Rare Disease Day
Gracias para compartir el video con su communidad en Chile.
Thank you for all that support all of us "orphans". I thank those especially to those especially who support Ehlers-Danlos Syndrome. #EDS
Excellent message of this video
belle video cela rechauffe le coeur ,faite passer ces important merci.
Beautifully done! Thank you for all your support with Fibromuscular Dysplasia! FMDChat
Brilliant video!
Nice video which makes you feel there's hope!
Great video! Happy Rare Disease Day!
Fantastic work guys! Really well done!
Great video!!
merci
Es lamentable que no se publique tambien en Español...// It is unfortunate that there is also published in Spanish ...
En Chile falta mucha conciencia, en especial de las Autoridades de Gobierno // In Chile a lack of understanding, especially of government authorities.
Lindo, vou divulgar todos devemos perceber a diferença com o coração cheio de compreensão e solidariadade....
Todos temos coração, portanto....
Rosália
Precioso vídeo,
Excellent!
Hoping they can find cure's real soon for all disease's
Gorgeous! xx
It was a good idea to use that 1/20 statistic. United we are stronger. We deserve a voice.
I wish for all those out there with rare diseases that a cure may be found so that they may be liberated and so all diseases will fly away in a hot air ballon! God Bless You All.
Εxtraordinarily !!!!
nice video !
Nice.
Great Video!! naitbabies x