Anne Marie Has Huntington's Now Safe and Comfortable In Her Atlanta Chair
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- Опубліковано 27 вер 2024
- Anne Marie has Huntington's disease. For years she was sitting in a chair that wasn't suitable for her needs. While the chair may have been appropriate at some point, her involuntary movements meant that she was increasingly at risk from sliding or even falling from her chair. Her family would spend every hour of the day watching her closely as she would fall and injure herself.
Then Anne Marie's family found Seating Matters. The Seating Matters Atlanta was specifically designed by Martina Tierney Occupational Therapist to be a robust, durable chair which aims to be both safe and comfortable for those with Huntington's disease and similar conditions.*
To discover more about the Atlanta, visit seatingmatters....
To read more about Anne Marie's story, visit blog.seatingmat....
Seating Matters are changing the world of healthcare seating.
At Seating Matters we design and manufacture world leading, therapeutic seating for adults and children.
They were designed by Martina Tierney, an Occupational Therapist with 30 years experience in seating patients.
Request The Clinician's Seating Handbook here: www.seatingmatters.com/handbook
Facebook: www.Facebook.com/WhySeatingMatters/
Twitter:@seatingmatters
*DISCLAIMER:
The purpose of this video is to give an overview of the product with some tips to consider on its use. This is not intended to be a substitute for professional or medical advice, diagnosis, prescription or treatment and does not constitute medical or other professional advice. For advice with your personal health or that of someone in your care, consult your doctor or appropriate medical professional.
In addition, the content of this video should not be interpreted as a predictor or guarantee of future financial or clinical outcomes with different patients. Clinicians and users must employ correct decision making, undertake proper assessments, education, comply with local regulations and ensure correct use of equipment.
If you'd like some support in person, you can contact us via Skype, Whatsapp and Facetime or arrange for an appointment for a Seating Specialist to visit you.
Visit www.seatingmatters.com to learn more or email us at contact@seatingmatters.com.
Most people don't start symptoms until theyre 40-50. My Dad started in his late 30s. Ive had involuntary movements similar to Chorea since I was 12. I display many other symptoms and Im only 26. It only gets worse from here.
Edit: He died In Januray. He went peacefully surrounded by his loved ones.
is there no way to prevent it?
@@itsfinnickbitch63 nope.
I'm so sorry about what happens to your dad and especially you, dude. 😞
But i have a curiousity about chorea involuntary movement. Is this really total involuntary? You can't control your body in some places? I have tourette syndrome and this disease is thr disorder around basal ganglia area too. But the involuntary movement isn't really involuntary. It's more like urge to move some parts of my body. But if i forget to surpress the urge, my body would move suddenly.
huntington is a genetic disease so why tf did ur father get children
Dont make the same mistake your dad did. Dont have kids. Im sorry this happened to you
My Uncle Bill died of this terrible disease. I watched his granddaughter, my cousin died of this disease when she was 20 years old.
المرض بحد ذاته غير مميت
That is a very Cruel Disease. 🌹
It really is cruel and heartbreaking to watch. Thank goodness I don't have Huntington's disease in my family. I pray that scientists find a cure soon. Young children also get this disease too. My fiancee had a friend that had it name Katrina and her mother and grandmother also had it. Katrina died 12 years ago. I believe hers was juvenile Huntington's disease because she died in her 30's. I hope that there will be a cure in the next 20 years to save lives. 💔🙏🏻🛐😔🕯️♥️
Glad she got a good chair that helps her stay safe!
I am sorry she got sick like that. 🌸🌺
it is not your mistake . the world is an unjust area
My mom’s symptoms started right at 50, her mom and one of her sisters also had it. No one ever talked about it or were not aware of what it was until my mom was diagnosed. I an 42 and praying I don’t have it.
Das ist sooo traurig 😭
You go girl you are brave and amazing! And cute as a button xx
It's in my mom's side of the family. I'm being tested for it soon
Hey, how are you?
Not too bad. Waiting for an appointment for huntington's disease test
Its in my Dads side. Ive been showing symptoms almost my entire life. Especially Chorea. I can only imagine myself in 10 years.
Sending love to, ❤
Hi. Just to let everyone know. My HD test came back negative. I haven't got it now and the predictive testing shows I won't develop it in the future
😢 hace no mucho vi a un muchacho que fue a comprar sus cosas a una tienda de verduras al verlo venir me senti destrozado y solo agache la mirada sali del lugar con un nudo en la garganta y como las lagrimas anciaban salir de mis ojos :'(
@Barbara Perez se que en lo mas profundo de tu alma darias lo que fuera por ver a tu papá de nuevo como lo conociste incluso clamas a Dios lo ayude a sanar su cuerpo .
Te comprendo espero Dios no se olvide de el ni de cada uno de ustedes en la familia saludos ten desde Veracruz ten fé todo va a salir bien
Yes its very sad, sending ❤ from Australia
What about a pelvic restraint? She is going to work her way down in this new chair. I know that in a care facility a pelvic restraint is not allowed but
those rules do not apply in the home. As with anyone in her condition she should never be alone and the restraint should be removed q 2hrs and examined for safety and comfort.
Exactly, there’s no way to keep her in that chair. She needs a pelvic restraint or a three point harness.
I don’t like this (I’m sorry) words..when seeing ill people... my mother have Huntington disease and I don’t like the feeling of pity ... would you like it when people feels pity towards you? Life is tough... we all have illness and problems that’s not something strange to feel pity about
Heyy, hope you're well, i just have a question, do the mouvements they can control stop sometimes? Like when we sleep or something
@@ju-th9si hi 👋.. thank you very much... yes when she sleep movements stops immediately.. and when she is relaxing but when she get confused about something or get anxiety the movement becomes stronger.
@@creativityandlove8456 thank uuuu for the answer, i know u don't want pity but hum good luck for u and your mum!!
@@creativityandlove8456 Thank you for sharing your experience. I think empathy is always better than pity. As you said we all have our different non-self chosen destinies. Trying to understand how someone feels (although often difficult) regardless of your own situation is important.
I think there's a difference between pity and compassion. Don't you?
man this disease is so disturbing to see 😭
Bro it scary know 50% chance of having it
And comments like this only contribute to the stigma and trauma of it...
@@IHxteHxr -_- bruh where are u learning this shit its 50 percent if someone related to you for example if your mum had huntigtons the chance if you getting the disease too is 50 percent.
Yeah, try having it 🖕
@@huntsman145I don't see the comment that way. I see it as the person had compassion and was disturbed by it because it is sad and upsetting which it, of course, is. Sometimes it would help, though, if people would explain what they are trying to say a little more thoroughly.
انا وصديقتي غفران قمنا بإجراء بحث حول هنغنتون لأنه ليس شيء طبيعي لقد ترسخ في عقولنا لمده طويله وعندما رأينا هذا الفيديو استفدنا حقا لأن غدا لدينا اختبار رياضيات ولم ندرس ونحن توجيهي لكن هنغنتون أهم من كل شيء ولم نستسلم❤️🔥
نعم نعم صحيح نفع الله فينا الامه وجعلنا خير لكل مريض
سنستمر بالبحث نوعدكم
#هنتنغتون في القلب❤
Would THC lessen the uncontrollable movements?
nope!
There is no treatment for Huntington's. It's a neurodegenerative disease. In particular, the cells that allow for your brain to inhibit its aberrant movements die off. So there's no way to remove tremors, in the same way that there's no way to regrow your leg or reverse dementia. It's a sensible question though, given some promising results testing THC on essential tremor in mice. What we need is a cure for Huntington's.
In my experience, yes. It did with my husband. EVERYONE could see the difference in him. He had so much less involuntary movement. That's not to say it would help everyone but it definitely helped my HD diagnosed husband.
Familly must be transparent with hugtiton grand pa or grand ma
Don’t do children
ربي يشفيها
😢😢😢
hahahah lol it's an ad
ياالله 😭😭😭😭😭🤲🤲🤲🥰❤🌷
❤️❤️❤️🙏🙏🙏
😢horrible
Dear Lord, why do things like this happen?😢 I just wish I knew. I often wonder about things like this, and then someone says God does not do this. God bless her🙏
These videos of people with HD makes me so sad my aunt has HD my uncle has been right by her side she is now in the last stages of it and he still is by her side nursing homes is not a good or safe place
My mom has it. I haven't been tested. I know i have it
Minha mãe morreu com essa doença o.meu irmão tá com.essa doença eu tou com medo não vou fazer ñ
Praying for you😢
Ive been showing symptoms for so long. Involuntary movements similar to Chorea. My Dad has it and my Uncle died from it. Im only 26 yet Ive had these movements since I was 12. Most people dont start symptoms until age 40-50.
@@FernandoMartinez-pv1id stay strong. Enjoy life to the fullest
Worst disease on earth, worse than Alzheimer's or cancer
This is heart-breaking.
Здоров'я. 👍🌹
🙁🙁😟😟😟😭😭😭😭😭😭😭😭
❤❤❤❤❤❤❤❤❤❤
how much do huntington patients live? if its onset is about when the patient is 20 years old which is the rarer form.
They can live to about 60 - 65 years old. My mum has this and was diagnosed about 10 years ago. She knew she had it as her mum also had it so she went to docs to get them to confirm it. We have recently (in the last week) just lost mum's sister from HD also. It's a daily struggle and so heartbreaking!
I've heard about 15-20 years from the age when motor symptoms began
@@CD-qx6mb Yeah but how many of those years after symptoms appear can people still function without aid. I don't think it's very long :(
It can be more as well, depend on the allelle count. People in my family have a very slowly progressing form of it, my granddad lives till a 90 though it did start effecting him in his 40s.
@@gdaymates431 It depends, but yes. Can be many years where you depend on others to take care of you.