Treating Huntington’s Disease Patients
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- Опубліковано 27 вер 2024
- JFK Hartwyck Center is the only designated care facility in New Jersey that specializes in Huntington's disease, which is a fatal neurological disease.
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Just lost my grandmother to it. My mom has it. I'm 22 years old, and 95 days clean from heroin, I don't know if I have it, but I know I must stay clean to care for my mom. Please keep my family in your prayers
A little late, but congratulations on your sobriety!
Dear Emma,
The family from my mother have this.
This is not fair, but this world is not fair.
I pray for you and your family ✝️✝️
From Europe
Praying for you and your family
Just lost my gram to it too. My father was just diagnosed at 50. I lost my brother to heroin. I still struggle with my addiction as well. Emma i dont know you but i feel like i had to reach out. Our stories are too similar. Oh and im 24 btw.
Prayers and god bless you. I dealt with addiction for 10 years and have been sober for almost 4 years. God bless you and your family and keep doing what ya gotta do to be strong and the best person you can be ❤️🙏🏼
my nieces had Huntingtons and they gave them something to stop the movement. I am so grateful this Christmas I didn't get it. Best gift ever.Many in my family died from it. My prayers go out to those who are suffering from this disease. We all need to work to find a cure.
Me too I'm Scared to be tested because I feel like it will make it certain instead of unknown
Thank God for these care givers.
She is so beautiful. So very sorry she has to deal with this.
HD has taken so many lives in my family. Thank God for places like this that offer some measure of peace. I pray for the day we can stop this beast.
Praying for you all❤️🙏🏿
Why would someone who carries this condition have kids with a 50% chance of them inheriting it?
They can because they want to. Nobody can determine the value or outcome of anyone's life. Can you?
Some people don't know they have Huntington's Disease until after they've had children, and the disease starts to show. :(
We didn’t know, her dad started symptoms late
I know this was 2 years ago but there are actually many reasons! HD sometimes doesn't start presenting until people are in their 30s, and if they don't know that one of their parents had HD (they may have died when they were young, or left the family due to the emotional effects), they may have children without realising that they could pass it on. Often the first symptoms are emotional - anger and irritability - so there are cases where a couple has a child, then they end up separating due to this, with the partner who does not have HD never finding out that their child may have it.
@@terisammon5180 I can…and Huntingtons disease should absolutely not be passed on if you know it runs in your family and you won’t get tested or you’ve tested positive. The disease can be eliminated in one generation…just one generation. It’s so horrible to watch someone with HD from beginning to end. There are ways now to have children that are HD free even if you tested positive and there are even funds set up to assist with the expense of it.
What a lovely mom; 😞
I'm a caregiver I lost my client of four years to this disease yesterday. My heavy heart led me here😞Bless all of you that are or have dealt with this❤️🩹😞🙏🏾
Having kids while knowing they might have HD is the most fucked up and selfish thing to do
So what does somebody do? Not have children? Or abort a perfectly healthy baby? I’m curious as to what that tiny little brain of yours thinks.
True...a family freind has it so never had children on purpose
My mom past away from HD last year, my grandma also had it and one of my moms sisters. But we didn’t know what it was until my mom was diagnosed. There is 4 of us my sis/bro. Hopefully we do not have it. I’m already in my 40’s so crossing my fingers.
My father was a great man. He watched his entire family die from this very disease, and it did him in as well. He was in the army and he was a great leader, he made sure he and his men got home to their families during the war is Iraq and Afghanistan. He died a little over a year ago, and I have unfortunately noticed that I have the very same symptoms of it...I can't remember anything as soon as I hear it or see it, I keep choking on words I am trying to say to my family, and I keep spassing out and having seizures in mid conversation. I don't know what to do. I miss my dad very much and if this really is what I have, at least I'll be with my father soon
My birth mom was suspected of having it so I got tested. I do not have it and if I wanted which I don't I can give birth to an unaffected child.
I lost my dad to it almost 2 years ago luckily I don't have it but we all need to work to find a cure
HD is basically Gruesome Death with an installment plan. Audience wishes doomed and grievously afflicted folks all the best. Cheers!
Lecton , you don't understand unfortunately, yes cheers every and each day , 🤔
I'm my wife's advocate she has huntentons chorea, where can I find medicine and advice in Spokane WA??
Discovеr A Simple Holistic Systeeeem For Curing Candida аand Yеаst Infеctions Onссcе And Fоr All using 100% Guаrantееd AАAAll-Naааatural Method.Click Here -->twitter.com/692e39fffe2a3db05/status/784262969735516160 Тrеating Huntingtonâ s Disеase Раtients
University of Washington medical center
Maybe allocate more 🤷♀️ if youre the only one who specializes then maybe only do that so these people have a place!
how bad will be the affect on a patient with 42 repeats ?
usually if someone has over 40 repeats, they will have the disease but the symptoms won't be so outlandish
I don't have a cure, but I may have something that improves the symptoms overtime, I only wish I had one patient and one doctor willing to work on this with me. If I can't test it on a patient I'll never know
Utter rubbish
What is that.. ?
What us it
Paying plenty of taxes without any return from the government. Government should be sued
She's beautiful.
Nina Matt yeah as seem alike she touching my heart as love one as kinda of very special. I believe god knows of those are griefs plus suffering to living with those whose has many kinds of diseases. He will healing them in someday.
This is such an awful diseases
❤❤❤
All thanks to dr Stanley who cured me from my Huntington’s disease I am forever grateful
It's fatal... read the information that's provided...
Gunter Liam
Which Doctor, and where???
Tell us, please.
No they didn't. And it's a horrible thing to try to scam frightened people.
There's no cure... stop spreading false hope. That's heartless!
It's genetic in my mom's side of the family. My mom died or a brain hemorrhage before she could be tested. I'm due a HD test. To clarify there is no cure for huntington's disease or anyway to slow/stop it getting worse. I do hope they find more effective treatments in the future. Won't be in my lifetime but I hope they find a way.
God bless you
I’ve take care of several people with this disease. I’ve always wondered why people with Huntington's disease decide to have children when this is hereditary. To each it’s own but I wldnt wish this on my worst enemy.
A lot of people didn't know about the genetics of it until recently.Also, lots of people only show symptoms once their children have already grown up and had their kids. Also, you can do tests on the placenta to see if its passed on 50% chance with choice to abort at week 11-12 or do IVF to not pass it on.
U r right ...now i fear i will suffer from same disease..im 25
❤❤❤❤❤
Christians please forget about the stigma ascoiated with canniboids which really will slow down the progression of this diseaes and that goes for Alzheimers.
Why in God's name would you have children if it's a 50/50 chance
I think sometimes people don’t always know they have it until they’ve already had kids.
If you do want to have kids, who are you to judge. FFS. 😊
What others do , choses to do ?
Choose to give their child a crippling genetic illness...@@coraldell3091
@@apriljones1013Yes, that's the only valid/blameless reason I can think of.
Please God heal these people for Your purpose... Amen
News flash...asking a pretend god will not cure 1 person suffering from this
@@MyCold1
Thankyou so much for your brilliant comment. ❤❤❤
Has anyone administered or taken GENISTEINE? Supposedly it helps in treating Huntington's? Does anyone know anything?? What were the effects of administration?
cedar Brookfield facility
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