Parents Perspective of Diagnosis 25 years ago - Living with SMA PODCAST #5
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- Опубліковано 5 вер 2024
- Parents Perspective of Diagnosis 25 years ago - Living with SMA PODCAST #5
SMA UK Host Suzanne talks to her mum Margaret where we hear bout her experience as a parent and the SMA diagnosis experience 25 years ago.
If you do have any questions for the team at SMA UK please email us at connections@smauk.org.uk
You can find additional information on SMA diagnosis through the Spinal Muscular Atrophy UK website links below:
SYMPTONS, DIAGNOSIS & EFFECTS OF 5q SMA:
smauk.org.uk/s...
RECENTLY DIAGNOSED WITH SMA:
smauk.org.uk/r...
SMA UK SERVICES:
www.livingwith...
Our thanks to Biogen for sponsoring our digital training in May 2021 to assist with producing these recordings and providing useful guidance for our participants.
Up to one minute ago I was unaware of SMA. I
doubt Christopher Reeve heard the diagnosis either. Jerry Lewis was always raising money for kids with muscular dystrophy. But look at you. Alive and bright enough to interview your mom on UA-cam. My heart goes out to you and your mom & thank you.
Today is Sunday 2024/8/4 and I wish you a long, happy, productive life. God has a plan for U