I have suffered for over 35+ years until I was diagnosed with AS I have never heard of Axial SA. There needs to be more education for Doctors On these disorders.
I have been for a few blood tests, i had test done for rhumatoid arthiritis it came back false negative, my test for imflammation came back positive, my vitamin D came back low. I had xrays in my back/hip and hand they came back as nothing showing, my neck and shoulders came back saying i have arthitis. Its so confusing as my worst pain comes from my back and hip and right down my left leg, although my full body aches, i wake up 2-3 times a night with my forearms, elbow and shoulders aching, my hands ache, wrist, ankles, hip and lower back, And my groin. Also have plantar fascitits in both feet, if i have over done my upper body is tight and i have difficuilty breathing. After work i feel as though i have been hit by a bus, my heels are so so sore. I have been referred to a rhumatalogist but going to be a long wait. Dont know if i can wait months i have been trying to get this sorted for years this is them just doing these tests. I am so down about my day to day life, my pain on a good day is a 7 out of 10 on a bad day 10. So tired and fed up. Take meloxicam and dhyrcodiene, vitamin d, and onzeprole. Does anyone ever expierence pain i there achilles and calfs. Im am so depressed every night i say to myself maybe tomorrow i will feel better, i have been living like this for years now wondering if the next day will be better and it never is. I try to explain to people how sore and fatigued i am but its like they just dont believe me or understand how i am feeling. Often feel like giving up, if it wasnt for my family i would just give up.ARE ALL THESE SYMPTOMS SIMILAR TO HOW OTHER PEOPLE FEEL????
Have you been reffered to rheumatology? I have axial spondyloarthritis (psoriatic arthritis) since I was mid 20's, so almost 20 years and I'm female. I have had similar symptoms to you and initially I was diagnosed with fibromyalgia, have you heard of that at all as if you have MRIs done and no inflammation or spine issues are found it could be fibro, it causes widespread pain. Definitely ask to have MRIs and that way you'll know if it's an arthritis, or spine issue, and if not it could be fibro. Good luck :)
The patient received NSAIDs, which he was taking daily. The disease improved noticeably in the first year. In the further course, however, the effectiveness decreased again. In the end, the decision was made to start biologics therapy.
great stuff, i loved the backfill part, i need to pay more attention to backfill.
I have suffered for over 35+ years until I was diagnosed with AS I have never heard of Axial SA. There needs to be more education for Doctors On these disorders.
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Can you have this disorder in combination with an upper motor neuron lesion?
Oh, that I don’t know. I guess it would be two diseases independent of each other.
Fantastic explanation! Thank you Dr. Kay
Thank you, Miguel!
Great video, Kay. Loved it. Keep them coming!!
Thank you, this is very motivating!
I have been for a few blood tests, i had test done for rhumatoid arthiritis it came back false negative, my test for imflammation came back positive, my vitamin D came back low. I had xrays in my back/hip and hand they came back as nothing showing, my neck and shoulders came back saying i have arthitis. Its so confusing as my worst pain comes from my back and hip and right down my left leg, although my full body aches, i wake up 2-3 times a night with my forearms, elbow and shoulders aching, my hands ache, wrist, ankles, hip and lower back, And my groin. Also have plantar fascitits in both feet, if i have over done my upper body is tight and i have difficuilty breathing. After work i feel as though i have been hit by a bus, my heels are so so sore. I have been referred to a rhumatalogist but going to be a long wait. Dont know if i can wait months i have been trying to get this sorted for years this is them just doing these tests. I am so down about my day to day life, my pain on a good day is a 7 out of 10 on a bad day 10. So tired and fed up. Take meloxicam and dhyrcodiene, vitamin d, and onzeprole. Does anyone ever expierence pain i there achilles and calfs. Im am so depressed every night i say to myself maybe tomorrow i will feel better, i have been living like this for years now wondering if the next day will be better and it never is. I try to explain to people how sore and fatigued i am but its like they just dont believe me or understand how i am feeling. Often feel like giving up, if it wasnt for my family i would just give up.ARE ALL THESE SYMPTOMS SIMILAR TO HOW OTHER PEOPLE FEEL????
Have you been reffered to rheumatology? I have axial spondyloarthritis (psoriatic arthritis) since I was mid 20's, so almost 20 years and I'm female. I have had similar symptoms to you and initially I was diagnosed with fibromyalgia, have you heard of that at all as if you have MRIs done and no inflammation or spine issues are found it could be fibro, it causes widespread pain. Definitely ask to have MRIs and that way you'll know if it's an arthritis, or spine issue, and if not it could be fibro. Good luck :)
Sounds like ankylosing spondylitis. Get hla b27 test and MR
@@Rene_Christensen Sounds like AS or Axial Psoriatic - to me they overlap, but no blood for PsA test
same here. ❤ getting no answers so far. the pain is the hardest.
What was the medication of this patient, any information will help a lot.
The patient received NSAIDs, which he was taking daily. The disease improved noticeably in the first year. In the further course, however, the effectiveness decreased again. In the end, the decision was made to start biologics therapy.